在两个患有自闭症的青少年的父亲和母亲组成的双语家庭中提供由家长管理的结果测量:简要报告。

IF 1.1 4区 医学 Q4 CLINICAL NEUROLOGY
Developmental Neurorehabilitation Pub Date : 2022-02-01 Epub Date: 2021-06-25 DOI:10.1080/17518423.2021.1942281
Laura Del Hoyo Soriano, Lauren Bullard, Angela John Thurman, Cesar Hoyos Alvarez, Leonard Abbeduto
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引用次数: 0

摘要

治疗研究需要心理计量学上可靠的结果测量方法,这些方法对家庭的负担较小,并且能以多种语言提供。我们开发了一种英语和西班牙语的语言评估,家长可以通过远程医疗程序在家对孩子进行评估。本案例研究提供了一个由两个亲子二人组组成的单亲家庭的描述性数据。来自一个家庭的母亲和父亲都接受了母语(西班牙语)培训,学习如何通过远程医疗递送程序,用母语(英语)对他们两个讲英语的单语 ASD 儿子进行表达性语言采样--叙述(ELS-N)。父母双方都学会了如何按照预先确定的忠实度实施该程序。这种以家庭为基础、由家长管理的测试需要推广到更多的双语家庭样本中;不过,目前的结果表明,即使培训和管理的语言不同,这种测试也是可行的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.

Providing a parent-administered outcome measure in a bilingual family of a father and a mother of two adolescents with ASD: brief report.

There is a need for psychometrically sound outcome measures for treatment studies that have a low burden for families and that are available in multiple languages. We have developed a language assessment in English and Spanish that parents can administer to their children at home via telehealth-delivered procedures. The current case study presents descriptive data on a single family of two parent-child dyads. Both the mother and father from a single family were trained in their primary language (Spanish) on how to administer the Expressive Language Sampling - Narration (ELS-N) in their secondary language (English) to their two English-speaking monolingual sons with ASD through telehealth-delivered procedures. Both parents learned to administer the procedures to a predetermined level of fidelity. Extension to a larger sample of bilingual families is needed for this home-based, parent-administered test; however, the present results suggest feasibility even when the language of training and administration differ.

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来源期刊
Developmental Neurorehabilitation
Developmental Neurorehabilitation CLINICAL NEUROLOGY-PEDIATRICS
CiteScore
3.10
自引率
0.00%
发文量
27
审稿时长
6-12 weeks
期刊介绍: Developmental Neurorehabilitation aims to enhance recovery, rehabilitation and education of people with brain injury, neurological disorders, and other developmental, physical and intellectual disabilities. Although there is an emphasis on childhood, developmental disability can be considered from a lifespan perspective. This perspective acknowledges that development occurs throughout a person’s life and thus a range of impairments or diseases can cause a disability that can affect development at any stage of life.
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