{"title":"Does Honouring Assent Really Respect the Preferences and Values of Research Participants with Intellectual and Developmental Disabilities?","authors":"Mary McBride, Abraham Graber","doi":"10.1007/s11673-026-10592-2","DOIUrl":"https://doi.org/10.1007/s11673-026-10592-2","url":null,"abstract":"<p><p>Processes of representative consent and individual assent for those with intellectual and developmental disabilities (IDD) in the research context are intended to protect such individuals from the power imbalance between participants and researchers. However, these protections often lead to exclusionary practices, leaving those with IDD without the opportunity to reap the same benefits from research as other, less vulnerable populations. Current conversations regarding research ethics heavily emphasize relying on participant assent as the solution to exclusionary research practices, as obtaining assent best respects the preferences and values of participants. In response to such arguments, we propose that the extent to which assent serves as a remedy to issues of those with IDD in research is unclear.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148609683","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bioethics Across Borders : Mapping Key Cases and Exploring the Ethical Implications of Patient and Healthcare Staff Mobility Between Germany and Poland.","authors":"Anna Sierawska, Saskia Metan, Florian Bruns","doi":"10.1007/s11673-026-10577-1","DOIUrl":"https://doi.org/10.1007/s11673-026-10577-1","url":null,"abstract":"<p><p>Despite the physical proximity between Poland and Germany, there are differences between the two countries in terms of language, customs, healthcare systems, legal frameworks, and socio-economic conditions. These differences and the membership of both countries in the European Union make cross-border healthcare a complex bioethical field. This paper examines the key areas of healthcare provision that are influenced by the political and geographical circumstances between Poland and Germany. This work employs an exploratory approach to map ethical risks and challenges using literature reviews and diverse sources (policy documents, local media reports, etc.). Ethical analysis is rooted in various established frameworks. We outline six areas where patient and healthcare staff mobility may raise ethical issues: (1) access to termination of pregnancy, (2) implications of differing regulations on artificial reproductive technologies, (3) dental care, (4) patient mobility for planned treatments under Directive 2011/24/EU, (5) healthcare challenges in border regions, and (6) migration of healthcare staff. The German and Polish healthcare systems, rooted in principles of solidarity, aim to provide equal access to healthcare services. European Union regulations allow patients to receive treatment abroad, but this can strain state budgets, particularly in less affluent countries. Language barriers might also impact doctor-patient interactions and the process of gaining informed consent. Political and economic differences further complicate ethical dilemmas, affecting healthcare migration and treatment availability. Asymmetric resources might contribute to the growth of private healthcare, affecting integrated public services locally and internationally.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148609655","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reflections on Conscientious Objection in Australia Through an Ethic of Solidarity.","authors":"Bolarinwa Ayomide Harrison, Ademola Kazeem Fayemi","doi":"10.1007/s11673-026-10555-7","DOIUrl":"https://doi.org/10.1007/s11673-026-10555-7","url":null,"abstract":"<p><p>The decriminalization of surgical and medical abortion in many Australian jurisdictions has led to discussions about the systemic and moral barriers to accessing abortion services. This article reflects on Conscientious Objection (CO), as one of such barriers in abortion services in Australia. Two broad positions are identified in the moral disagreement between a patient's legal right to abortion and a doctor's right to conscientiously object to providing such service: (1) pro-conscientious protection and (2) anti-conscientious protection. While each of these positions motivates different courses of action that may independently count as right, a fundamental ethical challenge is resolving the disagreement in ways that both positions are jointly satisfiable. This article argues that (1) and (2) are prima facie flawed as they may perpetuate medical paternalism, psycho-social and moral distress, medical abandonment, moral standing diminution, and reproductive injustice, which considerably impact both patient and physician to varying degrees. This article suggests an Ethic of Solidarity (ES) as an important relational anthropological frame that inspires some compromise in the moral disagreement. When the virtues of solidarity, such as cooperation, sharing, and reciprocity, are applied to the dilemma between respecting a patient's right or doctor's professional conscience in abortion service encounters, inclinations toward interchangeable compromises emerge. This article concludes that an ES is worth taking seriously in the CO debate in Australia and beyond.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148580979","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Algorithm's Blindspot: An Ethical Critique of Data-Fetishism and the Deskilling of the Clinical Gaze in Ophthalmology.","authors":"Hasan Erbay, Zeki Baysal","doi":"10.1007/s11673-026-10593-1","DOIUrl":"https://doi.org/10.1007/s11673-026-10593-1","url":null,"abstract":"<p><p>The rapid integration of artificial intelligence (AI) in ophthalmology has produced remarkable diagnostic accuracy while simultaneously raising significant ethical and epistemic concerns. This article argues that the prevailing AI paradigm fosters a form of data-fetishism: the tendency to treat datasets and algorithmic outputs as objective truth, privileging measurable metrics over the patient's lived experience and clinical context. Inspired by Marx's concept of commodity fetishism, the analysis demonstrates how this phenomenon produces \"algorithmic substitution\": a process through which the clinical encounter is converted from an ethically engaged encounter into a data-centric transaction, subordinating beneficence to statistical optimization. Four interconnected manifestations are examined: (1) dataset bias, where the marginalization of rare diseases and non-Western populations constitutes an epistemic injustice; (2) citation bias, which reinforces academic power structures; (3) the \"covidization\" of research, illustrating metric distortion; and (4) language hegemony, resulting in the epistemic erasure of regional medical knowledge. Clinical evidence reveals that these biases produce systematic errors in high-stakes domains such as ocular oncology and retinal surgery. The analysis concludes that data-fetishism enables a \"moral deskilling\" of ophthalmologists, redirecting professional fidelity from the suffering patient to the optimized dataset. Preserving the fiduciary essence of medicine requires a reorientation towards epistemic justice, emphasizing representativeness, ethical design, and the maintenance of the clinical gaze.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148537762","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Fiduciary Argument Against Conscientious Refusal in Healthcare.","authors":"Michael Robinson","doi":"10.1007/s11673-026-10586-0","DOIUrl":"https://doi.org/10.1007/s11673-026-10586-0","url":null,"abstract":"<p><p>The question of when, if ever, healthcare professionals with conscientious objections should be accommodated by permitting them to refuse to provide medical interventions to which they morally object is a heated issue that has received significant attention in the medical ethics literature. While many professional medical associations have long held that such objections may be accommodated in a broad range of cases, a vocal and growing minority has been fervently arguing that the medical profession should cease accommodating conscientious objections and should rarely, if ever, permit clinicians to refrain from providing medical care merely because it conflicts with their conscience. One of the most popular arguments offered by non-accommodationists focuses on the claim that conscientious refusal is incompatible with healthcare professionals' fiduciary duty to put patients' interests ahead of their own. The aim of this paper is to show that, despite its initial plausibility, this argument is unable to withstand scrutiny. There is no fiduciary duty that is obviously incompatible with conscientious refusal that it is plausible to think healthcare practitioners actually have.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148521545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Memorial for Alphonso Lingis.","authors":"Duane H Davis","doi":"10.1007/s11673-026-10596-y","DOIUrl":"https://doi.org/10.1007/s11673-026-10596-y","url":null,"abstract":"","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148521549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Another Interpretation of \"Limited Space\" for Manuscript Rejection: A Seasoned Doctor's Small Wish.","authors":"Shigeki Matsubara","doi":"10.1007/s11673-026-10598-w","DOIUrl":"https://doi.org/10.1007/s11673-026-10598-w","url":null,"abstract":"","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148521581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Ethical and Psychosocial Dimensions of Palliative Care in Prison : A Scoping Review.","authors":"Ana Gehl-Costa, P Reis-Pina","doi":"10.1007/s11673-026-10562-8","DOIUrl":"https://doi.org/10.1007/s11673-026-10562-8","url":null,"abstract":"<p><strong>Background: </strong>With prison populations expanding and aging, palliative care (PC) is an urgent concern. People in prison (PIP) face chronic illness, mental health conditions, and social vulnerabilities, creating ethical and psychosocial challenges to dignified end-of-life (EOL) care.</p><p><strong>Objective: </strong>This scoping review mapped key ethical and psychosocial domains in the provision of PC in prisons.</p><p><strong>Methods: </strong>PubMed, Web of Science, and ScienceDirect were searched using the strategy: Population-individuals in prison; Concept-ethical and/or psychosocial issues in PC; Context-PC provision in prisons across regions and healthcare models. Data were coded inductively, organized into ethical and psychosocial domains, and synthesized narratively.</p><p><strong>Results: </strong>Sixteen studies were included, mainly conceptual analyses (n=10), most from North America (n=11). Ethical domains included structural neglect of PIP with life-limiting illness, barriers to compassionate release, compromised autonomy, denial of death in prison culture, and inadequacies in care quality and access. Psychosocial domains encompassed stigma, mistrust, isolation, existential suffering, and fractured social bonds. PIP-led hospice models offered companionship but raised tensions around labour, confidentiality, and the normalization of death in custody.</p><p><strong>Conclusion: </strong>Prison-based PC requires systemic reforms, staff training, family and advocacy involvement, and legal safeguards to ensure equitable, compassionate, and dignified EOL care.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148450482","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Reviewer Activity: Self-esteem Rather Than Incentive.","authors":"Shigeki Matsubara","doi":"10.1007/s11673-026-10599-9","DOIUrl":"https://doi.org/10.1007/s11673-026-10599-9","url":null,"abstract":"","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148450505","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Why the Social Gradient in Health-Related Behaviour is Unjust : An Unconditionalist Perspective.","authors":"Paul-Loup Weil-Dubuc","doi":"10.1007/s11673-026-10574-4","DOIUrl":"https://doi.org/10.1007/s11673-026-10574-4","url":null,"abstract":"<p><p>Lower socio-economic position is consistently associated with a higher likelihood of engaging in health-damaging behaviours, a phenomenon known as the social gradient in health-related behaviour (SGHB). This article examines and endorses an unconditionalist view, according to which the SGHB is unjust in all cases because it results from structural injustice. This position is contrasted with a conditionalist view, which holds that the SGHB is unjust if and only if it stems from an unequal distribution of the social conditions normatively required for autonomous health-related choices and that a residual gradient may be justified once these conditions are met. Several influential approaches to health justice fall within this conditionalist framework. Despite their substantive differences, these conditionalist approaches share a deeper normative commitment to evaluative individualism. This foundation supports three critiques of unconditionalism: that it entails health perfectionism, that it neglects individuals as agents, and that it relies on a controversial empirical theory that threatens consensus. The first two critiques are considered unpersuasive, while the third raises genuine theoretical and practical challenges.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148363694","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}