Journal of Bioethical Inquiry最新文献

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Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka. 试管婴儿用户对备用胚胎的看法:印度南部卡纳塔克邦选定地区的探索性研究。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-07-29 DOI: 10.1007/s11673-024-10359-7
Salik Ansari, Ravi Vaswani
{"title":"Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka.","authors":"Salik Ansari, Ravi Vaswani","doi":"10.1007/s11673-024-10359-7","DOIUrl":"https://doi.org/10.1007/s11673-024-10359-7","url":null,"abstract":"<p><p>Perspectives of IVF users on their spare embryos is a less explored subject in the Indian context despite the country's population and abundance of IVF clinics. We conducted a qualitative study using in-depth interviews in a selected district of the Indian state of Karnataka. Seven individuals were recruited independently of any assistance from an IVF clinic. The interviews explored participants' knowledge and perception of the spare embryos using a set of guiding questions exploring the theme of the informed consent process, views on research, preferences for embryo donation, the role of family and the dynamics of decision-making, amongst other things. The interviews were qualitatively analysed using Corbin and Strauss's grounded theory approach. Our findings reveal that the participants do not learn about the prospects of spare embryos from the very start of their IVF journeys, and they may not be informed about the various options available to decide the fate of the spare embryos. Irrespective of their views on research and moral perceptions of embryos, participants expressed a sense of responsibility and ownership towards their embryos and a general reluctance to donate them. Our findings have implications for guiding future inquiries on this subject, which can better the informed consent process and unravel the role of ownership in the ethics of spare embryos in the Indian context.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Consideration of Sustainability When Approving Human Medical Research-A Scoping Review. 批准人类医学研究时对可持续性的考虑--范围审查。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-07-25 DOI: 10.1007/s11673-024-10365-9
Tony Skapetis, Bernadette Nicholl, Kellie Hansen
{"title":"Consideration of Sustainability When Approving Human Medical Research-A Scoping Review.","authors":"Tony Skapetis, Bernadette Nicholl, Kellie Hansen","doi":"10.1007/s11673-024-10365-9","DOIUrl":"https://doi.org/10.1007/s11673-024-10365-9","url":null,"abstract":"<p><p>This article attempts to highlight the importance of including research sustainability as imperative when assessing human medical research in terms of ethical principles. Using a scoping review of recent literature, the complexity of research sustainability is highlighted with key themes and concepts surrounding this important topic being recognized and discussed. An overall paucity of guidance documents was identified and recommendations have been made to practically address this deficiency. An example of a research sustainability evaluation tool which is currently being piloted has been provided for possible adaptation and use by Ethics Committees and Institutional Review Boards to bolster the concept and inclusion of sustainability during the research approval process.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141767991","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Honesty in Human Subject Research. 以人为研究对象的诚信。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10357-9
Sungwoo Um
{"title":"Honesty in Human Subject Research.","authors":"Sungwoo Um","doi":"10.1007/s11673-024-10357-9","DOIUrl":"https://doi.org/10.1007/s11673-024-10357-9","url":null,"abstract":"<p><p>In this paper, I discuss the ethical issues related to deception in human subject research in terms of honesty. First, I introduce the background and suggest the conception of honesty that understands it as involving respect for the right not to be deceived (RND). Next, I examine several ways to address the ethical issues of deceptive elements in the human subject research and show why they fail to adequately meet the demand of honesty. I focus on how to make an honest research plan and examine after participation and before participation phases in turn. Then I conclude by suggesting possible strategies to minimize dishonesty in human subject research.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753271","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Genome Editing Dilemma: Navigating Dual-Use Potential and Charting the Path Forward. 基因组编辑的两难选择:探索双重用途的可能性并规划前进的道路。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10358-8
Ana Ruxandra Badea, Oliver Feeney
{"title":"Genome Editing Dilemma: Navigating Dual-Use Potential and Charting the Path Forward.","authors":"Ana Ruxandra Badea, Oliver Feeney","doi":"10.1007/s11673-024-10358-8","DOIUrl":"https://doi.org/10.1007/s11673-024-10358-8","url":null,"abstract":"<p><p>Contemporary genome editing techniques have made genomic intervention-from microorganism to human-more accessible, easier to use, and more accurate than previous methods. We argue that, notwithstanding its merits in treating and preventing disease in humans, genome editing represents a potential threat for domestic and international security, requiring an integrated approach in regulating, detecting, preventing, and mitigating the risk of its use for malicious purposes. Despite the global regulatory ambitions of the 2021 WHO framework, we see insufficient attention given to the future prospect of dual-use genomic technology. Drawing parallels with the nuclear field, we suggest tentative practical steps for a way forward in dealing with genome editing technologies, such as: 1) adapting national (bio)security and defence strategies to include genome editing as a possible threat (with conceivable WMD potential); 2) enhancing the international dialogue on genome editing and raising the issue at the highest level; 3) working towards a global, legally binding verification mechanism; 4) tracking genome editing technologies.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Silently Navigating Ethical Paradoxes in the Israel-Hamas Conflict: A Short Note. 在以色列-哈马斯冲突中悄然应对伦理悖论:简短说明。
IF 2.4 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-05 DOI: 10.1007/s11673-024-10348-w
Zvi Bekerman
{"title":"Silently Navigating Ethical Paradoxes in the Israel-Hamas Conflict: A Short Note.","authors":"Zvi Bekerman","doi":"10.1007/s11673-024-10348-w","DOIUrl":"https://doi.org/10.1007/s11673-024-10348-w","url":null,"abstract":"<p><p>I embark on the writing of this short note not as an expert in ethics or a seasoned war analyst but rather as an involved observer nudged into the spotlight by a colleague's overestimation of my insight into the Israel-Hamas conflict. I approach this task with scepticism yet hoping to morph it into a form of therapy. My own therapy, a means to break the shackles of silence that have gripped not only myself but, I suspect, many others in Israel.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141248859","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Amid Explosions in Gaza, The Silence from the Bioethics Community is Deafening. 在加沙的爆炸声中,生命伦理学界的沉默令人震耳欲聋。
IF 2.4 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-05 DOI: 10.1007/s11673-024-10364-w
Sualeha Shekhani, Aamir Jafarey
{"title":"Amid Explosions in Gaza, The Silence from the Bioethics Community is Deafening.","authors":"Sualeha Shekhani, Aamir Jafarey","doi":"10.1007/s11673-024-10364-w","DOIUrl":"https://doi.org/10.1007/s11673-024-10364-w","url":null,"abstract":"<p><p>Bioethicists, through their writings, have been known to represent the conscience of the times. Speaking up against injustices, they have acted as moral compasses in the past. The events of October 7, 2023 and the resulting armed onslaught of Israeli forces on Gaza has created a huge humanitarian crisis. However, response of the global bioethics community appears muffled. In order to gain an objective insight, we conducted a scoping review of articles published on the current conflict in the top ten bioethics journals, as classified by Google metrics. Broadening this search, we included relevant grey literature and selected medical and global health journals in our review. All types of articles published from the initiation of the conflict to the end of March 2024 were included. Findings from our exercise highlight the paucity of articles published on this crisis. This apparent indifference towards the Gaza crisis can be explained either by reluctance by bioethicists to write on this issue or perhaps due to editorial restraints. We argue that bioethicists, instead of focusing on esoteric issues, have a greater moral responsibility to speak out against injustices in Gaza. Their silence amounts to complicity and erodes the very foundations of the discipline of bioethics.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141248815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Making Sense of "Ethics" of War: Just War, Just Peace, and Ethic of Care. 理解战争 "伦理":正义战争、正义和平与关爱伦理。
IF 2.4 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-04 DOI: 10.1007/s11673-024-10366-8
Michalinos Zembylas
{"title":"Making Sense of \"Ethics\" of War: Just War, Just Peace, and Ethic of Care.","authors":"Michalinos Zembylas","doi":"10.1007/s11673-024-10366-8","DOIUrl":"https://doi.org/10.1007/s11673-024-10366-8","url":null,"abstract":"<p><p>This paper reviews briefly the main approaches in the literature on ethics of war and suggests the need to move beyond an ethic of justice towards an ethic of care. The analysis problematizes dominant understandings of \"just war\" and \"just peace\" in the literature and highlights that incorporating elements of an ethic of care, our understanding of ethics of war and peace can be redefined, sharpened, and redeployed through an enlarged ethical lens. The author suggests that scholars and practitioners in different fields of study and domains of social and political life can make important contributions by defining, elucidating, and advocating why both perspectives, those of ethic of justice and care, together allow us to capture the prospects of a broader understanding and the practice of peace.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-06-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141238571","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
What Ethics Support for Resolving Ethical Conflicts Do Internists Use in Spanish Hospitals? 西班牙医院的实习医生使用什么道德支持来解决道德冲突?
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-01 Epub Date: 2023-10-26 DOI: 10.1007/s11673-023-10276-1
Antonio Blanco Portillo, Rebeca García-Caballero, Diego Real de Asúa, Karmele Olaciregui Dague, Benjamín Herreros
{"title":"What Ethics Support for Resolving Ethical Conflicts Do Internists Use in Spanish Hospitals?","authors":"Antonio Blanco Portillo, Rebeca García-Caballero, Diego Real de Asúa, Karmele Olaciregui Dague, Benjamín Herreros","doi":"10.1007/s11673-023-10276-1","DOIUrl":"10.1007/s11673-023-10276-1","url":null,"abstract":"<p><p>Background Ethical conflicts generate difficulties in daily clinical activity. Which methods of ethical advice are most frequently used to resolve them among Spanish doctors has not been studied. The objective of this study is to describe what methods hospital internal medicine physicians in Spain use to resolve their ethical doubts and which they consider most useful. Design A cross-sectional observational study was conducted through a voluntary and anonymous survey and distributed through an ad hoc platform of the Spanish Society of Internal Medicine. Measures We measured methods by which to resolve doubts, types of tools sought, frequency of consulting the Clinical Ethics Committees, and satisfaction with resolution of ethical issues. Results Of 261 internists surveyed, 86 per cent resolve their ethical doubts with assistance, the most frequently used method being consultation with colleagues (58.6 per cent), followed by using specific protocols or guides (11.8 per cent) and consultation with experts in bioethics (9.6 per cent). The most preferred tools are the creation of protocols (30.3 per cent) and the establishment of a consultant/expert in bioethics (27.8 per cent). Conclusions Internists in Spain usually seek assistance to resolve their ethical doubts. Consulting colleagues is the most frequently adopted method. The majority regard tools to resolve ethical conflicts as necessary, seeking above all protocols and consultants/experts in bioethics.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"285-293"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50163495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Identity Disclosure Between Donor Family Members and Organ Transplant Recipients: A Description and Synthesis of Australian Laws and Guidelines. 捐献家庭成员和器官移植受者之间的身份披露:澳大利亚法律和指南的描述和综合。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-01 Epub Date: 2023-12-07 DOI: 10.1007/s11673-023-10287-y
Anthony Cignarella, Andrea Marshall, Kristen Ranse, Helen Opdam, Thomas Buckley, Jayne Hewitt
{"title":"Identity Disclosure Between Donor Family Members and Organ Transplant Recipients: A Description and Synthesis of Australian Laws and Guidelines.","authors":"Anthony Cignarella, Andrea Marshall, Kristen Ranse, Helen Opdam, Thomas Buckley, Jayne Hewitt","doi":"10.1007/s11673-023-10287-y","DOIUrl":"10.1007/s11673-023-10287-y","url":null,"abstract":"<p><strong>Introduction: </strong>The disclosure of information that identifies deceased organ donors and/or organ transplant recipients by organ donation agencies and transplant centres is regulated in Australia by state and territory legislation, yet a significant number of donor family members and transplant recipients independently establish contact with each other.</p><p><strong>Aim: </strong>To describe and synthesize Australian laws and guidelines on the disclosure of identifying information.</p><p><strong>Method: </strong>Legislation and guidelines relevant to organ donation and transplantation were obtained following a search of government and DonateLife network websites. Information about the regulation of identity disclosure was extracted and synthesised using a process guided by Walt and Gilson's (1994) policy analysis framework.</p><p><strong>Findings: </strong>Nineteen documents were examined. Six guidelines refer to and were consistent with current legislation. Four documents did not address identity disclosure. All jurisdictions prohibit healthcare professionals from disclosing identifying information. In three states, the prohibition extends to all members of the public including donor family members and transplant recipients.</p><p><strong>Conclusion: </strong>Restrictions on identity disclosure have implications for public promotion of donation and transplantation where sharing of stories and images of organ donors and transplant recipients is common. Further research is required to understand the perspective of donor family members, transplant recipients, and healthcare professionals impacted by the current laws.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"309-329"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138500058","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Review of The Political Economy of Organ Transplantation : Boas, Hagai. 2023. The Political Economy of Organ Transplantation. London and New York: Routledge. 器官移植的政治经济学评论:鲍,哈盖。2023.器官移植的政治经济学。伦敦和纽约:劳特利奇。
IF 1.8 3区 哲学
Journal of Bioethical Inquiry Pub Date : 2024-06-01 Epub Date: 2023-10-26 DOI: 10.1007/s11673-023-10294-z
Z Lederman
{"title":"Review of The Political Economy of Organ Transplantation : Boas, Hagai. 2023. The Political Economy of Organ Transplantation. London and New York: Routledge.","authors":"Z Lederman","doi":"10.1007/s11673-023-10294-z","DOIUrl":"10.1007/s11673-023-10294-z","url":null,"abstract":"","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"381-384"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50163493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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