Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka.

IF 1.8 3区 哲学 Q2 ETHICS
Salik Ansari, Ravi Vaswani
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引用次数: 0

Abstract

Perspectives of IVF users on their spare embryos is a less explored subject in the Indian context despite the country's population and abundance of IVF clinics. We conducted a qualitative study using in-depth interviews in a selected district of the Indian state of Karnataka. Seven individuals were recruited independently of any assistance from an IVF clinic. The interviews explored participants' knowledge and perception of the spare embryos using a set of guiding questions exploring the theme of the informed consent process, views on research, preferences for embryo donation, the role of family and the dynamics of decision-making, amongst other things. The interviews were qualitatively analysed using Corbin and Strauss's grounded theory approach. Our findings reveal that the participants do not learn about the prospects of spare embryos from the very start of their IVF journeys, and they may not be informed about the various options available to decide the fate of the spare embryos. Irrespective of their views on research and moral perceptions of embryos, participants expressed a sense of responsibility and ownership towards their embryos and a general reluctance to donate them. Our findings have implications for guiding future inquiries on this subject, which can better the informed consent process and unravel the role of ownership in the ethics of spare embryos in the Indian context.

Abstract Image

试管婴儿用户对备用胚胎的看法:印度南部卡纳塔克邦选定地区的探索性研究。
尽管印度人口众多,试管婴儿诊所林立,但印度试管婴儿用户对其剩余胚胎的看法却鲜有人问津。我们在印度卡纳塔克邦的一个选定地区开展了一项深入访谈的定性研究。在没有试管婴儿诊所协助的情况下,我们招募了七名参与者。访谈使用一组指导性问题探讨了参与者对备用胚胎的了解和看法,这些问题的主题包括知情同意程序、对研究的看法、对胚胎捐赠的偏好、家庭的作用和决策动态等。我们采用科尔宾和斯特劳斯的基础理论方法对访谈进行了定性分析。我们的研究结果表明,参与者并不是从试管婴儿旅程的一开始就了解备用胚胎的前景,他们可能并不了解决定备用胚胎命运的各种选择。无论参与者对胚胎研究和道德观念的看法如何,他们都表示对自己的胚胎有一种责任感和主人翁感,并且普遍不愿意捐献胚胎。我们的研究结果对指导今后有关这一主题的调查具有重要意义,它可以改善知情同意程序,并揭示所有权在印度备用胚胎伦理中的作用。
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来源期刊
Journal of Bioethical Inquiry
Journal of Bioethical Inquiry 医学-医学:伦理
CiteScore
5.20
自引率
8.30%
发文量
67
审稿时长
>12 weeks
期刊介绍: The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies. The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following: -philosophy- bioethics- economics- social theory- law- public health and epidemiology- anthropology- psychology- feminism- gay and lesbian studies- linguistics and discourse analysis- cultural studies- disability studies- history- literature and literary studies- environmental sciences- theology and religious studies
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