Journal of Bioethical Inquiry最新文献_第6页

"They Really Save Us From Ourselves" : Autism Researchers' Insights on Community Engagement and Ethics. “他们真的拯救了我们”：自闭症研究人员对社区参与和道德的见解。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2026-05-18 DOI: 10.1007/s11673-025-10511-x

Chloe Silverman, Michael Yudell, Amy Carroll-Scott

{"title":"\"They Really Save Us From Ourselves\" : Autism Researchers' Insights on Community Engagement and Ethics.","authors":"Chloe Silverman, Michael Yudell, Amy Carroll-Scott","doi":"10.1007/s11673-025-10511-x","DOIUrl":"10.1007/s11673-025-10511-x","url":null,"abstract":"Autism research depends on the participation of autistic children and adults as well as their families, but researchers have not routinely involved autistic people in the planning or execution of research. Community-engaged research practices, standard in other fields such as areas of public health, are gaining acceptance in autism research, although some researchers and other stakeholders remain concerned about their appropriateness, feasibility, or utility. This study, part of a larger project on stakeholder views on the ethics of community engagement practices in autism research, examines researchers' ethical beliefs about community engagement. We find that the researchers with whom we spoke cite multiple specific ethical and epistemological benefits of these practices and relatively few risks. Barriers to community engagement are, in their view, often institutional and practical, including the longer timelines of community-engaged research, resistance or lack of comprehension on the part of funding organizations and grant reviewers, the need for additional resources to support appropriate compensation, and ensuring that community stakeholders and researchers have a shared understanding of terminology.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"629-642"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13645854/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147965341","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Deconstructing Anthropocentrism : Ecological Ethics in Shunji Iwai's "Wallace and a Mermaid". 解构人类中心主义：岩井俊二《华莱士与美人鱼》中的生态伦理。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2026-03-09 DOI: 10.1007/s11673-025-10497-6

Y Zhang, Y Yang, L Yang

引用次数: 0

Mapping Ethical Blind Spots in the Use of New Technologies to Support Elder Care. 利用新技术支持长者护理的伦理盲点。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2025-12-23 DOI: 10.1007/s11673-025-10502-y

Tenzin Wangmo, Yi Jiao Angelina Tian, Emilian Mihailov, Lester D Geneviève

{"title":"Mapping Ethical Blind Spots in the Use of New Technologies to Support Elder Care.","authors":"Tenzin Wangmo, Yi Jiao Angelina Tian, Emilian Mihailov, Lester D Geneviève","doi":"10.1007/s11673-025-10502-y","DOIUrl":"10.1007/s11673-025-10502-y","url":null,"abstract":"This paper maps the ethical concerns involved in using new technologies in the care of older persons by type of participant group and technology used. The study presents data from sixty-seven participants in total from three stakeholder groups (older persons, professional caregivers, and family caregivers) who relayed their opinions on three types of technologies: wearables, ambient sensors, and social assistive robots. The interview data collected was analysed using content analysis. Participants raised ethical concerns about user control, stigma, over-reliance on technology, isolation, deception, privacy breaches, and the replacement of human care. However, these concerns were not uniformly emphasized across participant groups, and not all concerns applied to each of the three technologies. Our findings revealed a reduced ethical sensitivity and preparedness for risk in the case of certain technologies. These ethical blind spots evident in our results pertained to privacy, stigma, and deception. With technologies continuously developing, such blind spots are a cause for concern.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"563-576"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13645913/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145811016","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Use of HIV Phylogenetic Analysis in Public Health in Victoria, Australia: Regulatory Considerations. 在澳大利亚维多利亚州公共卫生中使用HIV系统发育分析：监管考虑。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2026-02-17 DOI: 10.1007/s11673-025-10496-7

Casey M Haining, Aaron Cogle, Richard Keane, George Taiaroa, Jane Brophy, Mihaela Ivan, Doris Chibo, Jane S Hocking, Deborah A Williamson, Sharon R Lewin, Louise Keogh

{"title":"Use of HIV Phylogenetic Analysis in Public Health in Victoria, Australia: Regulatory Considerations.","authors":"Casey M Haining, Aaron Cogle, Richard Keane, George Taiaroa, Jane Brophy, Mihaela Ivan, Doris Chibo, Jane S Hocking, Deborah A Williamson, Sharon R Lewin, Louise Keogh","doi":"10.1007/s11673-025-10496-7","DOIUrl":"10.1007/s11673-025-10496-7","url":null,"abstract":"Human immunodeficiency virus (HIV) phylogenetic analysis has been introduced in a select number of jurisdictions globally for the purposes of HIV public health surveillance. Using this epidemiological tool in this way can enhance public health efforts aimed at managing HIV transmission. This application, however, presents many legal and ethical concerns that may counter such efforts, particularly in regulatory environments where HIV transmission can be subject to criminal prosecution. This article uses Victoria, Australia, as a case study and analyses the current regulatory frameworks relevant to HIV transmission and explores how these may influence the future implementation of phylogenetic analysis in this setting. The article concludes by offering a series of regulatory recommendations including considerations relevant to law and policy reform; procedures and practice; education and guidance; and community engagement and research.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"577-592"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13646006/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146214795","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Between Memory and Oblivion : Considerations on The Ethical Challenges of Anthropological Research on Identifiable Individuals. 在记忆与遗忘之间：关于可识别个体的人类学研究的伦理挑战的思考。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2026-03-23 DOI: 10.1007/s11673-025-10519-3

Nicol Rossetti, Marta Licata, Roberta Fusco, Arianna Vanni, Mario Picozzi

{"title":"Between Memory and Oblivion : Considerations on The Ethical Challenges of Anthropological Research on Identifiable Individuals.","authors":"Nicol Rossetti, Marta Licata, Roberta Fusco, Arianna Vanni, Mario Picozzi","doi":"10.1007/s11673-025-10519-3","DOIUrl":"10.1007/s11673-025-10519-3","url":null,"abstract":"The bioarchaeological study of identified human remains represents a powerful tool for reconstructing past lives and enriching historical knowledge. Through osteobiography, it is possible to integrate bioanthropological, archaeological, molecular, and archival data to provide a deeper understanding of individual life histories. However, this approach raises ethical concerns, particularly regarding post-mortem privacy, the right to be forgotten, and the limits of public disclosure. While scientific research contributes to preserving individual and collective memory, it must also consider the perspectives of descendant communities and the potential social and cultural implications of disseminating such detailed personal information. This paper explores these ethical dilemmas, reporting different case studies and discussing the challenges of balancing scientific inquiry, historical memory preservation, and respect for the deceased's dignity. The article aims to encourage further critical reflection on the management of post-mortem memory in anthropological research.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"689-697"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147505397","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Noninferiority and Efficiency/Revenue Facilitation (NERF) Endpoints : Shifting Grounds of Argument in Health AI Interventional Studies. 非劣效性和效率/收益促进（NERF）终点：卫生人工智能介入研究中争论的转移基础。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2025-11-18 DOI: 10.1007/s11673-025-10501-z

S S Graham, J Shiva Edward, K R Harrison

引用次数: 0

The Legal Landscape for People Living with Chronic Hepatitis B in Australia: : A Consensus-Based View of Priority Justiciable Issues from Sector Leaders. 澳大利亚慢性乙型肝炎患者的法律环境：部门领导人对优先可诉问题的共识观点。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2025-11-21 DOI: 10.1007/s11673-025-10487-8

David J Carter, Anthea Vogl, Dion Kagan, Daniel Storer, Hamish Robertson, Elsher Lawson-Boyd

{"title":"The Legal Landscape for People Living with Chronic Hepatitis B in Australia: : A Consensus-Based View of Priority Justiciable Issues from Sector Leaders.","authors":"David J Carter, Anthea Vogl, Dion Kagan, Daniel Storer, Hamish Robertson, Elsher Lawson-Boyd","doi":"10.1007/s11673-025-10487-8","DOIUrl":"10.1007/s11673-025-10487-8","url":null,"abstract":"The law and legal processes have a demonstrable impact on the public-health management and lived experience of people living with blood-borne viruses. However, very little is known about how the legal environment informs the experience of chronic hepatitis B or the justiciable issues experienced by people living with and affected by the virus. This article reports on a deliberative consensus process conducted with leaders of hepatitis B-related community organizations in Australia that aimed to identify, characterize, and prioritize the legal issues faced by people in the communities they support. Four priority legal areas were identified in relation to: 1) hepatitis B testing and disclosure; 2) migration law; 3) public health orders; and 4) hepatitis B-related stigma and discrimination. Identifying and describing these areas of law and justiciable issues, and organizing them through a consideration of their urgency, prevalence, and health impacts is a key starting point from which to address the neglect of these issues in current policy and practice, and to support the framing and interpretation of further research with people in affected communities. The results of this deliberative consensus process establish clear priorities for further research and for legal and public health policy, practice, resourcing, and reform.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"459-471"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145566151","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Right to Remain Unaugmented: A Critical Response to Braidotti's Posthuman Ethics for AI. 保持不扩大的权利：对Braidotti的后人类人工智能伦理的批判性回应。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-09-01 Epub Date: 2026-05-26 DOI: 10.1007/s11673-026-10575-3

K Yamada

{"title":"The Right to Remain Unaugmented: A Critical Response to Braidotti's Posthuman Ethics for AI.","authors":"K Yamada","doi":"10.1007/s11673-026-10575-3","DOIUrl":"10.1007/s11673-026-10575-3","url":null,"abstract":"Braidotti (2025) argues that AI-driven transhumanism erases human diversity by classifying non-normative bodies as \"noise.\" This article accepts her diagnosis of structural exclusion but challenges her prescriptions. Prosthetic and augmentation technologies may dissolve the very axes of exclusion Braidotti identifies-sex, race, and disability-by rendering bodily characteristics subject to individual choice. The Proteus effect, whereby altered self-representation transforms behaviour, becomes irreversible through permanent prosthetic embodiment. Yet this liberation generates a new exclusionary axis: as augmentation becomes structurally compulsory, the unaugmented face quiet displacement through market forces and actuarial logic rather than overt discrimination. As the treatment-enhancement distinction collapses, this structural pressure-which this article terms crawling selection-renders the choice to remain unaugmented increasingly untenable. Braidotti's exclusion thesis is not wrong; the axis of exclusion rotates. This article proposes two correctives: a shift from static to dynamic tracking of exclusionary axes and the institutional protection of a right to remain unaugmented-the logical consequence of Braidotti's own affirmative ethics of becoming.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"769-773"},"PeriodicalIF":2.1,"publicationDate":"2026-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148037240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Should All Living Donors Receive Equal Priority in Organ Allocation? An Equality of Opportunity Perspective. 所有活体捐献者都应该享有器官分配的同等优先权吗？机会均等的观点。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-08-25 DOI: 10.1007/s11673-026-10603-2

Richard C Armitage

{"title":"Should All Living Donors Receive Equal Priority in Organ Allocation? An Equality of Opportunity Perspective.","authors":"Richard C Armitage","doi":"10.1007/s11673-026-10603-2","DOIUrl":"https://doi.org/10.1007/s11673-026-10603-2","url":null,"abstract":"Priority rules in organ allocation confer preferential access to organs for individuals who have previously donated or pledged to do so. Several countries extend such rules to living donors. Yet existing systems do not distinguish between different kinds of living donation. This paper examines whether all living donors should receive equal priority or whether distinctions are justified, using John Roemer's conception of equality of opportunity as the analytical framework. The paper develops a typology of living donation along two axes: interest-based versus altruistic motivation and directed versus non-directed allocation. Interest-based directed donation occurs when someone gives directly to a loved one; interest-based non-directed donation when they donate through paired or pooled exchange. Altruistic directed donation involves giving to a specified stranger, often following a media appeal, while altruistic non-directed donation involves donating to an unspecified recipient, sometimes initiating a donor chain. Holding circumstances constant, equality of opportunity appears to favour greater recognition for altruistic non-directed donation, as it involves the least offset effort. However, closer attention to circumstances-such as awareness of donation pathways, illness within a personal network, and exposure to media campaigns-suggests that differences between donor types cannot be attributed to effort alone. Moreover, many altruistic non-directed donors report a sense of moral duty and psychological relief, indicating that their effort is also partially offset by personal benefit. The analysis concludes that priority rules might recognise all living donors but any additional recognition for particular donor types should be modest and sensitive to circumstance and motivation.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148820169","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Imperatives in Social Media and Beyond: A Lingisian Analysis. 社交媒体及其他领域的指令：Lingisian分析。

IF 2.1 3区哲学

Journal of Bioethical Inquiry Pub Date : 2026-08-25 DOI: 10.1007/s11673-026-10612-1

Robert Switzer

{"title":"Imperatives in Social Media and Beyond: A Lingisian Analysis.","authors":"Robert Switzer","doi":"10.1007/s11673-026-10612-1","DOIUrl":"https://doi.org/10.1007/s11673-026-10612-1","url":null,"abstract":"It has become a commonplace that our phones and other devices have a strange and unhealthy hold on us. Social media seemed to promise us a world where we are all linked into a borderless community where each could be seen, recognized, and valued in our individuality. But in fact, things have turned out very differently. Our devices, social media, and A.I. grab and manipulate our attention with the peculiar force of moral and psychological imperatives. In this paper, I turn to the philosopher Alphonso Lingis, who has written with uncommon clarity and depth about the nature of imperatives and of community, in hopes of finding a way out of these dark times. Building on the insights of Lingis, I argue that this is not best approached as a traditional moral battle, e.g. along Kantian lines. Rather, we have to develop a sense of community that can transcend partisan interests and go deeper into the nature of imperatives, beyond autonomous, self-regulating reason, toward our embodied, affective encounter with others, in which the need and vulnerability of the other human, suffering and facing their finitude, calls to us and makes the demand on us that is the truly compelling moral imperative.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.1,"publicationDate":"2026-08-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148820157","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0