Journal of Bioethical Inquiry最新文献_第5页

Attitudes Towards Non-directiveness Among Medical Geneticists in Germany and Switzerland. 德国和瑞士医学遗传学家对非指导性的态度。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-22 DOI: 10.1007/s11673-024-10355-x

J Eichinger, B S Elger, S McLennan, I Filges, I Koné

{"title":"Attitudes Towards Non-directiveness Among Medical Geneticists in Germany and Switzerland.","authors":"J Eichinger, B S Elger, S McLennan, I Filges, I Koné","doi":"10.1007/s11673-024-10355-x","DOIUrl":"https://doi.org/10.1007/s11673-024-10355-x","url":null,"abstract":"The principle of non-directiveness remains an important tenet in genetics. However, the concept has encountered growing criticism over the last two decades. There is an ongoing discussion about its appropriateness for specific situations in genetics, especially in light of recent significant advancements in genetic medicine. Despite the debate surrounding non-directiveness, there is a notable lack of up-to-date international research empirically investigating the issue from the perspective of those who actually do genetic counselling. Addressing this gap, our article delves into the viewpoints and experiences of medical geneticists in Germany and Switzerland. Twenty qualitative interviews were analysed employing reflexive thematic analysis. Participants' responses revealed substantial uncertainties and divergences in their understanding and application of the concept. It seems to cause distress since many geneticists stated that the principle was difficult to put into clinical practice and was no longer ethically justified given the increasing likelihood of therapeutic implications resulting from genomic testing outcomes. The insights provided by our qualitative empirical study accord with the ongoing theoretical debate regarding the definition, legitimacy, and feasibility of the principle. An adequately nuanced understanding and application of non-directiveness seems crucial to circumvent the risks inherent in the principle, while promoting patient autonomy and beneficence.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Human Brain Organoid Research and Applications: Where and How to Meet Legal Challenges? 人脑类器官的研究与应用：在哪里以及如何应对法律挑战？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10349-9

M Kataoka, T-L Lee, T Sawai

引用次数: 0

The Wrong of Eugenic Sterilization. 优生绝育的错误。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10350-2

Aleksy Tarasenko-Struc

引用次数: 0

Doctor-Parent Disagreement for Preterm Infants Born in the Grey Zone: Do Ethical Frameworks Help? 灰色地带早产儿的医生与家长分歧：伦理框架有帮助吗？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10354-y

Alice Cavolo, Danya F Vears, Gunnar Naulaers, Bernadette Dierckx de Casterlé, Lynn Gillam, Chris Gastmans

{"title":"Doctor-Parent Disagreement for Preterm Infants Born in the Grey Zone: Do Ethical Frameworks Help?","authors":"Alice Cavolo, Danya F Vears, Gunnar Naulaers, Bernadette Dierckx de Casterlé, Lynn Gillam, Chris Gastmans","doi":"10.1007/s11673-024-10354-y","DOIUrl":"https://doi.org/10.1007/s11673-024-10354-y","url":null,"abstract":"Objective: To examine i) how ethical frameworks can be used in concrete cases of parent-doctors' disagreements for extremely preterm infants born in the grey zone to guide such difficult decision-making; and ii) what challenges stakeholders may encounter in using these frameworks.Design: We did a case analysis of a concrete case of parent-doctor disagreement in the grey zone using two ethical frameworks: the best interest standard and the zone of parental discretion.Results: Both ethical frameworks entailed similar advantages and challenges. They have the potential 1) to facilitate decision-making because they follow a structured method; 2) to clarify the situation because all relevant ethical issues are explored; and 3) to facilitate reaching an agreement because all parties can explain their views. We identified three main challenges. First, how to objectively evaluate the risk of severe disability. Second, parents' interests should be considered but it is not clear to what extent. Third, this is a value-laden situation and different people have different values, meaning that the frameworks are at least partially subjective.Conclusions: These challenges do not mean that the ethical frameworks are faulty; rather, they reflect the complexity and the sensitivity of cases in the grey zone.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141538853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurses and Voluntary Assisted Dying: How the Australian Capital Territory's Law Could Change the Australian Regulatory Landscape. 护士与自愿协助死亡：澳大利亚首都地区的法律如何改变澳大利亚的监管格局。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-13 DOI: 10.1007/s11673-024-10370-y

R Jeanneret, S Prince

引用次数: 0

Silently Navigating Ethical Paradoxes in the Israel-Hamas Conflict: A Short Note. 在以色列-哈马斯冲突中悄然应对伦理悖论：简短说明。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-05 DOI: 10.1007/s11673-024-10348-w

Zvi Bekerman

引用次数: 0

Amid Explosions in Gaza, The Silence from the Bioethics Community is Deafening. 在加沙的爆炸声中，生命伦理学界的沉默令人震耳欲聋。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-05 DOI: 10.1007/s11673-024-10364-w

Sualeha Shekhani, Aamir Jafarey

{"title":"Amid Explosions in Gaza, The Silence from the Bioethics Community is Deafening.","authors":"Sualeha Shekhani, Aamir Jafarey","doi":"10.1007/s11673-024-10364-w","DOIUrl":"https://doi.org/10.1007/s11673-024-10364-w","url":null,"abstract":"Bioethicists, through their writings, have been known to represent the conscience of the times. Speaking up against injustices, they have acted as moral compasses in the past. The events of October 7, 2023 and the resulting armed onslaught of Israeli forces on Gaza has created a huge humanitarian crisis. However, response of the global bioethics community appears muffled. In order to gain an objective insight, we conducted a scoping review of articles published on the current conflict in the top ten bioethics journals, as classified by Google metrics. Broadening this search, we included relevant grey literature and selected medical and global health journals in our review. All types of articles published from the initiation of the conflict to the end of March 2024 were included. Findings from our exercise highlight the paucity of articles published on this crisis. This apparent indifference towards the Gaza crisis can be explained either by reluctance by bioethicists to write on this issue or perhaps due to editorial restraints. We argue that bioethicists, instead of focusing on esoteric issues, have a greater moral responsibility to speak out against injustices in Gaza. Their silence amounts to complicity and erodes the very foundations of the discipline of bioethics.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":2.4,"publicationDate":"2024-06-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141248815","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Making Sense of "Ethics" of War: Just War, Just Peace, and Ethic of Care. 理解战争 "伦理"：正义战争、正义和平与关爱伦理。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-04 DOI: 10.1007/s11673-024-10366-8

Michalinos Zembylas

引用次数: 0

Mental Privacy, Cognitive Liberty, and Hog-tying. 精神隐私、认知自由和捆绑。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-03 DOI: 10.1007/s11673-024-10344-0

P Crutchfield

引用次数: 0

What Ethics Support for Resolving Ethical Conflicts Do Internists Use in Spanish Hospitals? 西班牙医院的实习医生使用什么道德支持来解决道德冲突？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-01 Epub Date: 2023-10-26 DOI: 10.1007/s11673-023-10276-1

Antonio Blanco Portillo, Rebeca García-Caballero, Diego Real de Asúa, Karmele Olaciregui Dague, Benjamín Herreros

{"title":"What Ethics Support for Resolving Ethical Conflicts Do Internists Use in Spanish Hospitals?","authors":"Antonio Blanco Portillo, Rebeca García-Caballero, Diego Real de Asúa, Karmele Olaciregui Dague, Benjamín Herreros","doi":"10.1007/s11673-023-10276-1","DOIUrl":"10.1007/s11673-023-10276-1","url":null,"abstract":"Background Ethical conflicts generate difficulties in daily clinical activity. Which methods of ethical advice are most frequently used to resolve them among Spanish doctors has not been studied. The objective of this study is to describe what methods hospital internal medicine physicians in Spain use to resolve their ethical doubts and which they consider most useful. Design A cross-sectional observational study was conducted through a voluntary and anonymous survey and distributed through an ad hoc platform of the Spanish Society of Internal Medicine. Measures We measured methods by which to resolve doubts, types of tools sought, frequency of consulting the Clinical Ethics Committees, and satisfaction with resolution of ethical issues. Results Of 261 internists surveyed, 86 per cent resolve their ethical doubts with assistance, the most frequently used method being consultation with colleagues (58.6 per cent), followed by using specific protocols or guides (11.8 per cent) and consultation with experts in bioethics (9.6 per cent). The most preferred tools are the creation of protocols (30.3 per cent) and the establishment of a consultant/expert in bioethics (27.8 per cent). Conclusions Internists in Spain usually seek assistance to resolve their ethical doubts. Consulting colleagues is the most frequently adopted method. The majority regard tools to resolve ethical conflicts as necessary, seeking above all protocols and consultants/experts in bioethics.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":"285-293"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"50163495","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0