Journal of Bioethical Inquiry最新文献_第4页

Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka. 试管婴儿用户对备用胚胎的看法：印度南部卡纳塔克邦选定地区的探索性研究。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-29 DOI: 10.1007/s11673-024-10359-7

Salik Ansari, Ravi Vaswani

{"title":"Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka.","authors":"Salik Ansari, Ravi Vaswani","doi":"10.1007/s11673-024-10359-7","DOIUrl":"https://doi.org/10.1007/s11673-024-10359-7","url":null,"abstract":"Perspectives of IVF users on their spare embryos is a less explored subject in the Indian context despite the country's population and abundance of IVF clinics. We conducted a qualitative study using in-depth interviews in a selected district of the Indian state of Karnataka. Seven individuals were recruited independently of any assistance from an IVF clinic. The interviews explored participants' knowledge and perception of the spare embryos using a set of guiding questions exploring the theme of the informed consent process, views on research, preferences for embryo donation, the role of family and the dynamics of decision-making, amongst other things. The interviews were qualitatively analysed using Corbin and Strauss's grounded theory approach. Our findings reveal that the participants do not learn about the prospects of spare embryos from the very start of their IVF journeys, and they may not be informed about the various options available to decide the fate of the spare embryos. Irrespective of their views on research and moral perceptions of embryos, participants expressed a sense of responsibility and ownership towards their embryos and a general reluctance to donate them. Our findings have implications for guiding future inquiries on this subject, which can better the informed consent process and unravel the role of ownership in the ethics of spare embryos in the Indian context.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Consideration of Sustainability When Approving Human Medical Research-A Scoping Review. 批准人类医学研究时对可持续性的考虑--范围审查。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-25 DOI: 10.1007/s11673-024-10365-9

Tony Skapetis, Bernadette Nicholl, Kellie Hansen

引用次数: 0

Honesty in Human Subject Research. 以人为研究对象的诚信。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10357-9

Sungwoo Um

引用次数: 0

Genome Editing Dilemma: Navigating Dual-Use Potential and Charting the Path Forward. 基因组编辑的两难选择：探索双重用途的可能性并规划前进的道路。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10358-8

Ana Ruxandra Badea, Oliver Feeney

引用次数: 0

Family-Oriented Living Organ Donation in Bangladesh: A Bioethical Defence. 孟加拉国以家庭为导向的活体器官捐赠：生物伦理辩护。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-22 DOI: 10.1007/s11673-024-10361-z

S Siraj

{"title":"Family-Oriented Living Organ Donation in Bangladesh: A Bioethical Defence.","authors":"S Siraj","doi":"10.1007/s11673-024-10361-z","DOIUrl":"https://doi.org/10.1007/s11673-024-10361-z","url":null,"abstract":"This study focuses on issues related to living organ donation for transplantation in Bangladesh. The policy and practice of living organ donation for transplantation in Bangladesh is family-oriented: close relatives (legal and genetic) are the only ones allowed to be living donors. Unrelated donors, altruistic donors (directed and non-directed), and paired/pooled or non-directed altruistic living donor chains-as many of these are implemented in other countries-are not legally allowed to serve as living donors in Bangladesh. This paper presents normative arguments explaining why the family-oriented nature of regulations and practices surrounding living organ donation for transplantation is essential for Bangladesh. In this article, I specifically argue that if the Bangladesh government revises the current biomedical policy robustly beyond relatives and allows unrelated donors to donate organs legally, this may foster organ selling due to the poverty and corruption problems in Bangladesh. The family-oriented requirement of the living organ donation policy and practice is defensible and morally justifiable as it preserves common notions of the family unit and family bonding in Bangladesh. Maintaining the current living-donation regulations and promoting deceased donation is the way forward, as this safely preserves the family values, protects against organ selling, and increases access to organ transplantation.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Attitudes Towards Non-directiveness Among Medical Geneticists in Germany and Switzerland. 德国和瑞士医学遗传学家对非指导性的态度。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-22 DOI: 10.1007/s11673-024-10355-x

J Eichinger, B S Elger, S McLennan, I Filges, I Koné

{"title":"Attitudes Towards Non-directiveness Among Medical Geneticists in Germany and Switzerland.","authors":"J Eichinger, B S Elger, S McLennan, I Filges, I Koné","doi":"10.1007/s11673-024-10355-x","DOIUrl":"https://doi.org/10.1007/s11673-024-10355-x","url":null,"abstract":"The principle of non-directiveness remains an important tenet in genetics. However, the concept has encountered growing criticism over the last two decades. There is an ongoing discussion about its appropriateness for specific situations in genetics, especially in light of recent significant advancements in genetic medicine. Despite the debate surrounding non-directiveness, there is a notable lack of up-to-date international research empirically investigating the issue from the perspective of those who actually do genetic counselling. Addressing this gap, our article delves into the viewpoints and experiences of medical geneticists in Germany and Switzerland. Twenty qualitative interviews were analysed employing reflexive thematic analysis. Participants' responses revealed substantial uncertainties and divergences in their understanding and application of the concept. It seems to cause distress since many geneticists stated that the principle was difficult to put into clinical practice and was no longer ethically justified given the increasing likelihood of therapeutic implications resulting from genomic testing outcomes. The insights provided by our qualitative empirical study accord with the ongoing theoretical debate regarding the definition, legitimacy, and feasibility of the principle. An adequately nuanced understanding and application of non-directiveness seems crucial to circumvent the risks inherent in the principle, while promoting patient autonomy and beneficence.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Human Brain Organoid Research and Applications: Where and How to Meet Legal Challenges? 人脑类器官的研究与应用：在哪里以及如何应对法律挑战？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10349-9

M Kataoka, T-L Lee, T Sawai

引用次数: 0

The Wrong of Eugenic Sterilization. 优生绝育的错误。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10350-2

Aleksy Tarasenko-Struc

引用次数: 0

Doctor-Parent Disagreement for Preterm Infants Born in the Grey Zone: Do Ethical Frameworks Help? 灰色地带早产儿的医生与家长分歧：伦理框架有帮助吗？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-05 DOI: 10.1007/s11673-024-10354-y

Alice Cavolo, Danya F Vears, Gunnar Naulaers, Bernadette Dierckx de Casterlé, Lynn Gillam, Chris Gastmans

{"title":"Doctor-Parent Disagreement for Preterm Infants Born in the Grey Zone: Do Ethical Frameworks Help?","authors":"Alice Cavolo, Danya F Vears, Gunnar Naulaers, Bernadette Dierckx de Casterlé, Lynn Gillam, Chris Gastmans","doi":"10.1007/s11673-024-10354-y","DOIUrl":"https://doi.org/10.1007/s11673-024-10354-y","url":null,"abstract":"Objective: To examine i) how ethical frameworks can be used in concrete cases of parent-doctors' disagreements for extremely preterm infants born in the grey zone to guide such difficult decision-making; and ii) what challenges stakeholders may encounter in using these frameworks.Design: We did a case analysis of a concrete case of parent-doctor disagreement in the grey zone using two ethical frameworks: the best interest standard and the zone of parental discretion.Results: Both ethical frameworks entailed similar advantages and challenges. They have the potential 1) to facilitate decision-making because they follow a structured method; 2) to clarify the situation because all relevant ethical issues are explored; and 3) to facilitate reaching an agreement because all parties can explain their views. We identified three main challenges. First, how to objectively evaluate the risk of severe disability. Second, parents' interests should be considered but it is not clear to what extent. Third, this is a value-laden situation and different people have different values, meaning that the frameworks are at least partially subjective.Conclusions: These challenges do not mean that the ethical frameworks are faulty; rather, they reflect the complexity and the sensitivity of cases in the grey zone.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":null,"pages":null},"PeriodicalIF":1.8,"publicationDate":"2024-07-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141538853","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Nurses and Voluntary Assisted Dying: How the Australian Capital Territory's Law Could Change the Australian Regulatory Landscape. 护士与自愿协助死亡：澳大利亚首都地区的法律如何改变澳大利亚的监管格局。

IF 2.4 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-06-13 DOI: 10.1007/s11673-024-10370-y

R Jeanneret, S Prince

引用次数: 0