Journal of Bioethical Inquiry最新文献_第4页

Navigating the Nexus of Bioethics and Geopolitics: Implications for Global Health Security and Scientific Collaboration. 探索生物伦理与地缘政治的联系：对全球健康安全和科学合作的影响》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-08-20 DOI: 10.1007/s11673-024-10379-3

Alexandra Klimovich-Mickael, Mariusz Sacharczuk, Michel Edwar Mickael

{"title":"Navigating the Nexus of Bioethics and Geopolitics: Implications for Global Health Security and Scientific Collaboration.","authors":"Alexandra Klimovich-Mickael, Mariusz Sacharczuk, Michel Edwar Mickael","doi":"10.1007/s11673-024-10379-3","DOIUrl":"https://doi.org/10.1007/s11673-024-10379-3","url":null,"abstract":"Bioethics plays a pivotal role in guiding ethical decision-making within the realm of medical research and healthcare. However, the influence of geopolitics on bioethical considerations, particularly regarding bioweapons research, remains an underexplored area. This study delves into the uncharted territory of how international political interests can intersect with bioethical principles, potentially shaping collaborative efforts and global health policies related to bioweapons research. Through a hypothetical scenario involving a hypothetical pathogen, a collaborative effort between unspecified countries, we examine the implications of such cooperation on global health governance, with a specific focus on bioweapons research. Ethical dilemmas surrounding responsible research, potential risks and benefits, equitable distribution of findings, and biosafety measures are explored. This analysis underscores the importance of transparent and responsible practices in bioweapons research amidst geopolitical tensions. By striking a balance between national interests and international solidarity, we advocate for robust bioethical frameworks to navigate such collaborations for the collective well-being of humanity and to mitigate potential risks associated with bioweapons research.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142009828","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ethical Challenges in Information Disclosure and Decision-making in Prenatal Testing: A Focus Group Study of Chinese Health Professionals in Maternal and Child Health Services. 产前检测中信息披露和决策的伦理挑战：中国妇幼保健专业人员焦点小组研究》。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-08-20 DOI: 10.1007/s11673-024-10376-6

Yuqiong Zhong, Tianchi Hao, Xing Liu, Xin Zhang, Ying Wu, Xiaomin Wang, Dan Luo

{"title":"Ethical Challenges in Information Disclosure and Decision-making in Prenatal Testing: A Focus Group Study of Chinese Health Professionals in Maternal and Child Health Services.","authors":"Yuqiong Zhong, Tianchi Hao, Xing Liu, Xin Zhang, Ying Wu, Xiaomin Wang, Dan Luo","doi":"10.1007/s11673-024-10376-6","DOIUrl":"https://doi.org/10.1007/s11673-024-10376-6","url":null,"abstract":"The international community has proposed a comprehensive strategy to prevent congenital abnormalities. And China, with a high incidence of congenital diseases, has implemented measures including prenatal screening and diagnosis to reduce the morbidity of congenital abnormalities. However, ethical challenges arise in the practice of prenatal screening and diagnosis among healthcare professionals. Five focus group discussions were conducted with twenty-four health professionals working in maternal and child health services in Hunan Province, China, to explore the ethical challenges they encountered in prenatal testing decision-making and information disclosure practices, as well as their views on these challenges. Participants were selected through purposive sampling, ensuring maximum demographic diversity. Three main themes were identified: 1) balancing between information disclosure and privacy protection; 2) patient-oriented decision-making and tensions within family-oriented decision-making; 3) the disparity between the limited help clinical ethics committees (CECs) can provide and professionals' need for CECs. Ethical norms for information disclosure and autonomous decision-making within prenatal screening and diagnostic institutions must be established. Utilizing CECs is crucial to guide professionals in delivering prenatal testing services while simultaneously focusing on targeted improvement of communication skills among these professionals.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142005715","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Retrospective Radiology Research: Do We Need Informed Patient Consent? 回顾性放射学研究：我们需要患者知情同意吗？

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-08-19 DOI: 10.1007/s11673-024-10368-6

Yfke Ongena, Thomas C Kwee, Derya Yakar, Marieke Haan

{"title":"Retrospective Radiology Research: Do We Need Informed Patient Consent?","authors":"Yfke Ongena, Thomas C Kwee, Derya Yakar, Marieke Haan","doi":"10.1007/s11673-024-10368-6","DOIUrl":"https://doi.org/10.1007/s11673-024-10368-6","url":null,"abstract":"While knowledge of the population's view on the need for informed consent for retrospective radiology research may provide valuable insight into how an optimal balance can be achieved between patient rights versus an expedited advancement of radiology science, this is a topic that has been ignored in the literature so far. To investigate the view of the general population, survey data were collected from 2407 people representative of the Dutch population. The results indicate that for non-commercial institutions, especially hospitals (97.4 per cent), respondents agree with the retrospective use of imaging data, although they generally indicate that their explicit consent is required. However, most respondents (63.5 per cent) would never allow commercial firms to retrospectively use their imaging data. When including only respondents who completed the minimally required reading time of 12.3 s to understand the description about retrospective radiology research given in the survey (n = 770), almost all (98.9 per cent) mentioned to have no objections for their imaging data to be used by hospitals for retrospective research, with 57.9 per cent indicating their consent to be required and 41.0 per cent indicating that explicit patient consent to be unnecessary. We conclude that the general population permits retrospective radiology research by hospitals, and a substantial proportion indicates explicit patient consent to be unnecessary when understanding what retrospective radiology research entails. However, the general population's support for the unrestricted retrospective use of imaging data for research purposes without patient consent decreases for universities not linked to hospitals, other non-commercial institutions, government agencies, and particularly commercial firms.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001201","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"A Picture Paints a Thousand Words"-A Systematic Review of the Ethical Issues of Prenatal Ultrasound. "一图绘千言"--产前超声波伦理问题系统回顾。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-08-19 DOI: 10.1007/s11673-024-10360-0

M Favaretto, M Rost

{"title":"\"A Picture Paints a Thousand Words\"-A Systematic Review of the Ethical Issues of Prenatal Ultrasound.","authors":"M Favaretto, M Rost","doi":"10.1007/s11673-024-10360-0","DOIUrl":"https://doi.org/10.1007/s11673-024-10360-0","url":null,"abstract":"Prenatal ultrasound is a non-invasive diagnostic examination. Despite the recognized diagnostic value, this technology raises complex ethical questions. The aim of this study is to provide a comprehensive analysis that coherently maps the ethical challenges raised by prenatal ultrasound examination, both 2D and 3D. We performed a systematic literature review. Six databases were systematically searched. The results highlight how concerns related to beneficence, informed consent, and autonomy are mainly related to routine use of prenatal ultrasound in the clinical context, while considerations linked to overmedicalization of pregnancy, discrimination, and fetal ontology were often reported in relation to the impact ultrasound is having on medicine and society. Ethical issues in the context of pre-abortion ultrasound, obstetric practices in low-income settings, and keepsake ultrasound imaging were also greatly discussed. Since prenatal ultrasound practices critically impact pregnant people's autonomy and their role within pregnancy, we conclude that information providing strategies should be developed to appropriately inform pregnant people about the nature, purpose, risks, and choices revolving around prenatal ultrasound. In addition, as it is becoming increasingly difficult to separate the social and clinical dimensions of prenatal ultrasound, future research should focus on examining if and how such dimensions should be reconciled.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-08-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142001200","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Decision-Making Capacity and Authenticity. 决策能力与真实性。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-08-14 DOI: 10.1007/s11673-024-10372-w

Tim Aylsworth, Jake Greenblum

引用次数: 0

Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka. 试管婴儿用户对备用胚胎的看法：印度南部卡纳塔克邦选定地区的探索性研究。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-29 DOI: 10.1007/s11673-024-10359-7

Salik Ansari, Ravi Vaswani

{"title":"Perspectives on Spare Embryos amongst IVF users: An Exploratory Study from a Selected District of the Southern Indian State of Karnataka.","authors":"Salik Ansari, Ravi Vaswani","doi":"10.1007/s11673-024-10359-7","DOIUrl":"https://doi.org/10.1007/s11673-024-10359-7","url":null,"abstract":"Perspectives of IVF users on their spare embryos is a less explored subject in the Indian context despite the country's population and abundance of IVF clinics. We conducted a qualitative study using in-depth interviews in a selected district of the Indian state of Karnataka. Seven individuals were recruited independently of any assistance from an IVF clinic. The interviews explored participants' knowledge and perception of the spare embryos using a set of guiding questions exploring the theme of the informed consent process, views on research, preferences for embryo donation, the role of family and the dynamics of decision-making, amongst other things. The interviews were qualitatively analysed using Corbin and Strauss's grounded theory approach. Our findings reveal that the participants do not learn about the prospects of spare embryos from the very start of their IVF journeys, and they may not be informed about the various options available to decide the fate of the spare embryos. Irrespective of their views on research and moral perceptions of embryos, participants expressed a sense of responsibility and ownership towards their embryos and a general reluctance to donate them. Our findings have implications for guiding future inquiries on this subject, which can better the informed consent process and unravel the role of ownership in the ethics of spare embryos in the Indian context.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789741","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Consideration of Sustainability When Approving Human Medical Research-A Scoping Review. 批准人类医学研究时对可持续性的考虑--范围审查。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-25 DOI: 10.1007/s11673-024-10365-9

Tony Skapetis, Bernadette Nicholl, Kellie Hansen

引用次数: 0

Honesty in Human Subject Research. 以人为研究对象的诚信。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10357-9

Sungwoo Um

引用次数: 0

Genome Editing Dilemma: Navigating Dual-Use Potential and Charting the Path Forward. 基因组编辑的两难选择：探索双重用途的可能性并规划前进的道路。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-24 DOI: 10.1007/s11673-024-10358-8

Ana Ruxandra Badea, Oliver Feeney

引用次数: 0

Family-Oriented Living Organ Donation in Bangladesh: A Bioethical Defence. 孟加拉国以家庭为导向的活体器官捐赠：生物伦理辩护。

IF 1.8 3区哲学

Journal of Bioethical Inquiry Pub Date : 2024-07-22 DOI: 10.1007/s11673-024-10361-z

S Siraj

{"title":"Family-Oriented Living Organ Donation in Bangladesh: A Bioethical Defence.","authors":"S Siraj","doi":"10.1007/s11673-024-10361-z","DOIUrl":"https://doi.org/10.1007/s11673-024-10361-z","url":null,"abstract":"This study focuses on issues related to living organ donation for transplantation in Bangladesh. The policy and practice of living organ donation for transplantation in Bangladesh is family-oriented: close relatives (legal and genetic) are the only ones allowed to be living donors. Unrelated donors, altruistic donors (directed and non-directed), and paired/pooled or non-directed altruistic living donor chains-as many of these are implemented in other countries-are not legally allowed to serve as living donors in Bangladesh. This paper presents normative arguments explaining why the family-oriented nature of regulations and practices surrounding living organ donation for transplantation is essential for Bangladesh. In this article, I specifically argue that if the Bangladesh government revises the current biomedical policy robustly beyond relatives and allows unrelated donors to donate organs legally, this may foster organ selling due to the poverty and corruption problems in Bangladesh. The family-oriented requirement of the living organ donation policy and practice is defensible and morally justifiable as it preserves common notions of the family unit and family bonding in Bangladesh. Maintaining the current living-donation regulations and promoting deceased donation is the way forward, as this safely preserves the family values, protects against organ selling, and increases access to organ transplantation.","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.8,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735561","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0