Felix Gabathuler, Kristina Würth, Martina Hodel, Andrea Glässel, Nikola Biller-Andorno, Bettina Schwind
{"title":"反思认识上的不公正,以推进以人为本的护理,通过经验的人与慢性疼痛。","authors":"Felix Gabathuler, Kristina Würth, Martina Hodel, Andrea Glässel, Nikola Biller-Andorno, Bettina Schwind","doi":"10.1007/s11673-025-10457-0","DOIUrl":null,"url":null,"abstract":"<p><strong>Rationale: </strong>Persons with chronic pain report that their voices are marginalized in healthcare, despite efforts to achieve person-centred care.</p><p><strong>Aims and objectives: </strong>This study aims to explore the healthcare experiences of persons with chronic pain through the lens of epistemic injustice to advance person-centred care.</p><p><strong>Method: </strong>A secondary analysis of cross-sectional interviews with twenty German-speaking Swiss participants, originally collected as part of the DIPEx Switzerland project, was conducted. Data were examined using thematic analysis.</p><p><strong>Results: </strong>Results revealed two overarching themes. Under Epistemic Challenges, participants felt dismissed, misunderstood, or relegated to passive roles by a system privileging quantifiable measures over subjective experiences. This overreliance on objective data fosters epistemic injustice by discounting patient testimonies and perpetuating systemic inadequacies. Under Epistemic Opportunities, participants reported more effective knowledge exchange when their expertise was acknowledged, empathy was shown, and professionals recognized their own limitations.</p><p><strong>Conclusions: </strong>Findings underscore the need to balance objective assessments with patients' subjective perspectives, recognizing persons with chronic pains as legitimate collaborators. By integrating their lived expertise, healthcare systems may mitigate epistemic injustices and provide more empathetic, effective care.</p>","PeriodicalId":50252,"journal":{"name":"Journal of Bioethical Inquiry","volume":" ","pages":""},"PeriodicalIF":1.5000,"publicationDate":"2025-07-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Reflections on Epistemic Injustice to Advance Person-Centred Care Through the Experiences of Persons with Chronic Pain.\",\"authors\":\"Felix Gabathuler, Kristina Würth, Martina Hodel, Andrea Glässel, Nikola Biller-Andorno, Bettina Schwind\",\"doi\":\"10.1007/s11673-025-10457-0\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Rationale: </strong>Persons with chronic pain report that their voices are marginalized in healthcare, despite efforts to achieve person-centred care.</p><p><strong>Aims and objectives: </strong>This study aims to explore the healthcare experiences of persons with chronic pain through the lens of epistemic injustice to advance person-centred care.</p><p><strong>Method: </strong>A secondary analysis of cross-sectional interviews with twenty German-speaking Swiss participants, originally collected as part of the DIPEx Switzerland project, was conducted. Data were examined using thematic analysis.</p><p><strong>Results: </strong>Results revealed two overarching themes. Under Epistemic Challenges, participants felt dismissed, misunderstood, or relegated to passive roles by a system privileging quantifiable measures over subjective experiences. This overreliance on objective data fosters epistemic injustice by discounting patient testimonies and perpetuating systemic inadequacies. Under Epistemic Opportunities, participants reported more effective knowledge exchange when their expertise was acknowledged, empathy was shown, and professionals recognized their own limitations.</p><p><strong>Conclusions: </strong>Findings underscore the need to balance objective assessments with patients' subjective perspectives, recognizing persons with chronic pains as legitimate collaborators. By integrating their lived expertise, healthcare systems may mitigate epistemic injustices and provide more empathetic, effective care.</p>\",\"PeriodicalId\":50252,\"journal\":{\"name\":\"Journal of Bioethical Inquiry\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2025-07-29\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Bioethical Inquiry\",\"FirstCategoryId\":\"98\",\"ListUrlMain\":\"https://doi.org/10.1007/s11673-025-10457-0\",\"RegionNum\":3,\"RegionCategory\":\"哲学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"ETHICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Bioethical Inquiry","FirstCategoryId":"98","ListUrlMain":"https://doi.org/10.1007/s11673-025-10457-0","RegionNum":3,"RegionCategory":"哲学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"ETHICS","Score":null,"Total":0}
Reflections on Epistemic Injustice to Advance Person-Centred Care Through the Experiences of Persons with Chronic Pain.
Rationale: Persons with chronic pain report that their voices are marginalized in healthcare, despite efforts to achieve person-centred care.
Aims and objectives: This study aims to explore the healthcare experiences of persons with chronic pain through the lens of epistemic injustice to advance person-centred care.
Method: A secondary analysis of cross-sectional interviews with twenty German-speaking Swiss participants, originally collected as part of the DIPEx Switzerland project, was conducted. Data were examined using thematic analysis.
Results: Results revealed two overarching themes. Under Epistemic Challenges, participants felt dismissed, misunderstood, or relegated to passive roles by a system privileging quantifiable measures over subjective experiences. This overreliance on objective data fosters epistemic injustice by discounting patient testimonies and perpetuating systemic inadequacies. Under Epistemic Opportunities, participants reported more effective knowledge exchange when their expertise was acknowledged, empathy was shown, and professionals recognized their own limitations.
Conclusions: Findings underscore the need to balance objective assessments with patients' subjective perspectives, recognizing persons with chronic pains as legitimate collaborators. By integrating their lived expertise, healthcare systems may mitigate epistemic injustices and provide more empathetic, effective care.
期刊介绍:
The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies.
The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following:
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