反思认识上的不公正,以推进以人为本的护理,通过经验的人与慢性疼痛。

IF 1.5 3区 哲学 Q2 ETHICS
Felix Gabathuler, Kristina Würth, Martina Hodel, Andrea Glässel, Nikola Biller-Andorno, Bettina Schwind
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引用次数: 0

摘要

理由:患有慢性疼痛的人报告说,尽管努力实现以人为本的护理,但他们的声音在医疗保健中被边缘化。目的和目的:本研究旨在探讨慢性疼痛患者的医疗保健经验,通过认识不公正的镜头,以推进以人为本的护理。方法:对20名德语瑞士参与者的横断面访谈进行了二次分析,这些参与者最初是作为DIPEx瑞士项目的一部分收集的。使用专题分析对数据进行了审查。结果:结果揭示了两个总体主题。在认知挑战(Epistemic Challenges)中,参与者感到被忽视、被误解,或者被一个重视可量化措施而不是主观经验的系统降级为被动角色。这种对客观数据的过度依赖,通过忽视病人的证词和使系统性的不足永久化,助长了认识上的不公正。在认知机会下,参与者报告说,当他们的专业知识得到承认,同情被展示,专业人员认识到自己的局限性时,他们的知识交流更有效。结论:研究结果强调需要平衡客观评估和患者的主观观点,认识到慢性疼痛患者是合法的合作者。通过整合他们的生活专业知识,医疗保健系统可以减轻认识上的不公正,并提供更多的同理心,有效的护理。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
Reflections on Epistemic Injustice to Advance Person-Centred Care Through the Experiences of Persons with Chronic Pain.

Rationale: Persons with chronic pain report that their voices are marginalized in healthcare, despite efforts to achieve person-centred care.

Aims and objectives: This study aims to explore the healthcare experiences of persons with chronic pain through the lens of epistemic injustice to advance person-centred care.

Method: A secondary analysis of cross-sectional interviews with twenty German-speaking Swiss participants, originally collected as part of the DIPEx Switzerland project, was conducted. Data were examined using thematic analysis.

Results: Results revealed two overarching themes. Under Epistemic Challenges, participants felt dismissed, misunderstood, or relegated to passive roles by a system privileging quantifiable measures over subjective experiences. This overreliance on objective data fosters epistemic injustice by discounting patient testimonies and perpetuating systemic inadequacies. Under Epistemic Opportunities, participants reported more effective knowledge exchange when their expertise was acknowledged, empathy was shown, and professionals recognized their own limitations.

Conclusions: Findings underscore the need to balance objective assessments with patients' subjective perspectives, recognizing persons with chronic pains as legitimate collaborators. By integrating their lived expertise, healthcare systems may mitigate epistemic injustices and provide more empathetic, effective care.

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来源期刊
Journal of Bioethical Inquiry
Journal of Bioethical Inquiry 医学-医学:伦理
CiteScore
5.20
自引率
8.30%
发文量
67
审稿时长
>12 weeks
期刊介绍: The JBI welcomes both reports of empirical research and articles that increase theoretical understanding of medicine and health care, the health professions and the biological sciences. The JBI is also open to critical reflections on medicine and conventional bioethics, the nature of health, illness and disability, the sources of ethics, the nature of ethical communities, and possible implications of new developments in science and technology for social and cultural life and human identity. We welcome contributions from perspectives that are less commonly published in existing journals in the field and reports of empirical research studies using both qualitative and quantitative methodologies. The JBI accepts contributions from authors working in or across disciplines including – but not limited to – the following: -philosophy- bioethics- economics- social theory- law- public health and epidemiology- anthropology- psychology- feminism- gay and lesbian studies- linguistics and discourse analysis- cultural studies- disability studies- history- literature and literary studies- environmental sciences- theology and religious studies
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