Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-03-25DOI: 10.1177/17423953241241758
Kebir Yasmina, Saint-Dizier de Almeida Valérie
{"title":"The content of patients' emotional expressions during follow-up consultations for chronic diseases.","authors":"Kebir Yasmina, Saint-Dizier de Almeida Valérie","doi":"10.1177/17423953241241758","DOIUrl":"10.1177/17423953241241758","url":null,"abstract":"<p><strong>Objectives: </strong>In this article, we seek to extract the themes that patients share when they express negative emotions in the context of follow-up consultation of chronic illness. We are mainly interested in patients with chronic illnesses, as these pathologies have a significant emotional overload leading to a significant deterioration of the patient's quality of life.</p><p><strong>Methods: </strong>Our corpus included audio recordings of 12 chronic disease follow-up consultations conducted by physicians practicing in neurology, nutrition, internal medicine and infectiology. The 12 patients participating suffer from various chronic diseases: Parkinson's, HIV, diabetes, etc. We performed thematic content analyses on the emotional sequences in order to extract the themes underlying these emotional expressions.</p><p><strong>Results: </strong>The 10 themes we have extracted are related to physical aspects, psychological aspects, the healthcare system and/or the healthcare provider, prognostic elements, social life, family life, aspects of professional life, issues of daily life, treatments and finally, aspects related to objectives and disease progress.</p><p><strong>Discussion/conclusion: </strong>Our results show that follow-up consultations for chronic illnesses are consultations during which patients express emotions for different purposes. These emotional expressions concern particular themes that are not found in other forms of medical consultations. We will compare these results in the discussion part of this article.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"424-433"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-03-26DOI: 10.1177/17423953241241764
Ding Yunmei, Cui Yan, Gu Jiayun, Sherry L Grace
{"title":"Translation, cultural adaptation, and psychometric validation of the Provider Attitudes toward Cardiac Rehabilitation and Referral (PACRR-C) Scale in Simplified Chinese.","authors":"Ding Yunmei, Cui Yan, Gu Jiayun, Sherry L Grace","doi":"10.1177/17423953241241764","DOIUrl":"10.1177/17423953241241764","url":null,"abstract":"<p><strong>Background: </strong>The Provider Attitudes toward CR and Referral (PACRR) scale was translated into Simplified Chinese and psychometric validation ensued.</p><p><strong>Methods: </strong>Brislin's Translation Model was applied, with two independent forward translations followed by back-translation. Experts assessed the face, content and cross-cultural validity of items, and item analysis followed. For validation, 227 physicians from hospitals in 14 Chinese provinces completed the PACRR-C. Structural validity was assessed through exploratory and confirmatory factor analysis. Internal and split-half reliability were assessed.</p><p><strong>Results: </strong>Some items were rephrased and one item was deleted. The content validity index for the total scale was 0.965. The correlation coefficients between the 18 items and the total scale ranged between 0.28 and 0.76. Consistent with the English version, four factors were extracted (Cronbach's alpha ranged from 0.671-0.959) through the factor analysis, accounting for 71.21% of the total variance. Split-half reliability was 0.945. The greatest factors impacting physician's CR attitudes were inconvenience of the referral process (3.93 ± 0.65/5); lack of standard referral forms (3.92 ± 0.66), perceiving referral as the responsibility of another clinician (3.89 ± 0.67), and need for support in completing the referral form (3.89 ± 0.64).</p><p><strong>Conclusions/significance: </strong>The reliability, as well as content, face, cross-cultural, and structural validity of the 18-item, 4-subscale PACRR-C, were supported.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"469-486"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289317","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enhanced adherence counselling outcomes among people living with HIV with virological failure: Single-centre experience in Pune, India.","authors":"Prajakta Kadale, Pallavi Shidhaye, Shraddha Gurav, Pournami Ap, Manisha Ghate","doi":"10.1177/17423953241253869","DOIUrl":"10.1177/17423953241253869","url":null,"abstract":"<p><strong>Objectives: </strong>World Health Organization has recommended enhanced adherence counselling (EAC) for people living with HIV (PLHIV) with virological failure. This study aimed to assess the outcomes of EAC and its associated factors among PLHIV with virological failure.</p><p><strong>Methods: </strong>Data collected between March 2020 and February 2022 on viral load (VL) testing at antiretroviral therapy (ART) centre in Pune, India were reviewed. PLHIV with viral load ≥1000 copies/ml followed by three EAC sessions and a repeat viral load test were included. Multivariate logistic regression analysis was used to assess the factors associated with virological suppression (<1000 copies/ml).</p><p><strong>Results: </strong>Of 170 PLHIV, 81 (47.6%) showed virological suppression. Being literate (<i>p</i> = 0.027), females (<i>p</i> = 0.021), on second-line ART regimen (<i>p</i> = 0.020), and with EAC initiation within a month (<i>p</i> = 0.016) were significantly associated with virological suppression. No association was found between reported barriers to treatment adherence and virological suppression.</p><p><strong>Discussion: </strong>Early initiation of EAC is crucial for virological suppression among PLHIV with high viral load. It is important to highlight the significance of treatment adherence among individuals on first-line ART regimen. The use of effective visual tools during EAC sessions may help in achieving virological suppression among those with low literacy.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"405-412"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140923567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-03-27DOI: 10.1177/17423953241241759
Jeong-Hui Park, Sun Jung Kim, Mar Medina, Tyler Prochnow, Kisuk Min, Jongwha Chang
{"title":"Are comorbidities associated with differences in healthcare charges among lung cancer patients in US hospitals? Focusing on variances by patient and socioeconomic factors.","authors":"Jeong-Hui Park, Sun Jung Kim, Mar Medina, Tyler Prochnow, Kisuk Min, Jongwha Chang","doi":"10.1177/17423953241241759","DOIUrl":"10.1177/17423953241241759","url":null,"abstract":"<p><strong>Objective: </strong>The clinical aspects of lung cancer patients are well-studied. However, healthcare charge patterns have yet to be explored through a large-scale representative population-based sample investigating differences by socioeconomic factors and comorbidities.</p><p><strong>Aim: </strong>To identify how comorbidities associated with healthcare charges among lung cancer patients.</p><p><strong>Methods: </strong>We examined the characteristics of the patient sample and the association between comorbidity status (diabetes, hypertension, or both) and healthcare charge. Multivariate survey linear regression models were used to estimate the association. We also investigated sub-group association through various patient and socioeconomic factors.</p><p><strong>Results: </strong>Of 212,745 lung cancer patients, 68.5% had diabetes and/or hypertension. Hospital charges were higher in the population with comorbidities. The results showed that lung cancer patients with comorbidities had 9.4%, 5.1%, and 12.0% (with diabetes, hypertension, and both, respectively) higher hospital charges than those without comorbidities. In sub-group analysis, Black patients also showed a similar trend across socioeconomic (i.e. household income and primary payer) and racial (i.e. White, Black, Hispanic, and Asian/Pacific Islander) factors.</p><p><strong>Discussion: </strong>Black patients may be significantly financially burdened because of the prevalence of comorbidities and low-income status. More work is required to ensure healthcare equality and promote access to care for the uninsured, low-income, and minority populations because comorbidities common in these populations can create more significant financial barriers.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"434-444"},"PeriodicalIF":16.4,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11562292/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140294896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-07-23DOI: 10.1177/17423953241264862
Bridget A Graney, Jennifer Dickman Portz, David B Bekelman
{"title":"\"I Felt Like I Mattered\": Caring is a key ingredient of collaborative care for chronic illness.","authors":"Bridget A Graney, Jennifer Dickman Portz, David B Bekelman","doi":"10.1177/17423953241264862","DOIUrl":"10.1177/17423953241264862","url":null,"abstract":"<p><strong>Objectives: </strong>To identify perceptions and experiences related to caring science and collaborative care in intervention participants of the Collaborative Care to Alleviate Symptoms and Adjust to Illness (CASA) study, a randomized, multi-site clinical trial for patients with chronic heart failure and reduced health status.</p><p><strong>Methods: </strong>Forty-five participants completed semi-structured, telephone interviews with a focus on intervention components, impact of the intervention on participants' lives, and recommendations for intervention change. Data were analyzed using an inductive content analysis approach focusing on the presence and frequency of text to identify patterns, categories, and themes across participants without an a priori code book. The validity of the identified categories was enhanced through triangulation.</p><p><strong>Results: </strong>Three themes were identified: (1) intervention providers' caring/helping attitude and caring/helping communication; (2) care team availability to respond to concerns or questions; and (3) help with understanding and navigating the healthcare system.</p><p><strong>Discussion: </strong>Patients highly value caring attitudes and communication, availability, and empowerment to understand and navigate healthcare systems. These attitudes and behaviors may be important mediators of the success of collaborative care programs. These are consistent with the theory of caring science, a framework that is relevant more broadly to patient-centered and team-based care models.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"383-394"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Determinants of medication adherence among elderly with high blood pressure living in deprived areas.","authors":"Maryam Afshari, Akram Karimi-Shahanjarini, Lili Tapak, Somayeh Hashemi","doi":"10.1177/17423953241241803","DOIUrl":"10.1177/17423953241241803","url":null,"abstract":"<p><strong>Introduction: </strong>The current study was conducted to determine the impact of health literacy and factors related to adherence to drug treatment, using the model proposed by the World Health Organization, in older adults with hypertension residing in informal settlements in Hamadan.</p><p><strong>Methods: </strong>This cross-sectional study was conducted on 405 patients in Hamadan city, located in the western part of Iran. Data were collected using an interviewer-administered questionnaire that included the 5-dimensional model proposed by the World Health Organization, Health Literacy for Iranian Adults, and Morisky Medication Adherence Scale-8. A two-stage sampling procedure was used to select patients from 14 comprehensive health service centers and health bases. The data were analyzed using SPSS v.24.</p><p><strong>Results: </strong>The study found that medication adherence was suboptimal in 63% of the participants. Additionally, 87.5% of patients had inadequate or insufficient health literacy. Factors related to medication adherence included age (odds ratio (OR) = 1.07), annual income (OR = 0.17), duration of hypertension (OR = 7.33), health literacy (OR = 1.03), self-reported health status (P < 0.05), and regular medication use (P < 0.008).</p><p><strong>Conclusion: </strong>The results of this study indicate that more than half of the older adults in the study had suboptimal medication adherence and insufficient health literacy. The study also found that various factors, such as socioeconomic status, disease and treatment-related factors, and patient-related factors, influence medication adherence among older adults.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"487-503"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141311982","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2023-11-08DOI: 10.1177/17423953231213847
Cihad Dundar, Hatice Nilden Arslan, Özlem Terzi
{"title":"How close are children with obesity to becoming an adult with chronic illnesses?","authors":"Cihad Dundar, Hatice Nilden Arslan, Özlem Terzi","doi":"10.1177/17423953231213847","DOIUrl":"10.1177/17423953231213847","url":null,"abstract":"<p><strong>Objectives: </strong>Childhood obesity has become a global threat due to its serious negative consequences. We aimed to determine the patterns of metabolic syndrome and cardio-metabolic risk factors in Turkish children with obesity.</p><p><strong>Methods: </strong>We examined 169 schoolchildren with obesity in April and May 2019 in Samsun, Turkey. After clinical evaluation and anthropometric measurements, fasting blood samples were collected to measure total cholesterol, low and high-density lipoprotein, fasting blood glucose, triglycerides, and insulin levels.</p><p><strong>Results: </strong>The proportion of those who met the metabolic syndrome criteria in boys was 14.3%, but it was twice as high in girls (28.2%). The most prevalent component of cardio-metabolic risk factor was increased waist circumference (96.4%) followed by a high homeostasis model assessment insulin resistance index (74.6%) and high blood pressure (29.0%). While the average high-density lipoprotein was higher in boys than in girls, on the contrary, insulin, HbA1c, and homeostasis model assessment insulin resistance concentrations were higher in girls. The prevalence of dyslipidemia was also higher in girls (67.1%) than in boys (47.6%), as were all impaired metabolic syndrome components.</p><p><strong>Conclusions: </strong>One in five children with obesity was at risk of metabolic syndrome. For early intervention and prevention, children with obesity should be monitored in terms of cardio-metabolic risk factors, but obese girls are more prioritized.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"535-544"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523031","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-07-23DOI: 10.1177/17423953241264875
Meryem Chinoune, Farid Flici
{"title":"Which chronic diseases contribute the most to healthy life years lost in Algeria?","authors":"Meryem Chinoune, Farid Flici","doi":"10.1177/17423953241264875","DOIUrl":"10.1177/17423953241264875","url":null,"abstract":"<p><strong>Objectives: </strong>Chronic diseases contribute significantly to healthy years lost (HYLs). It is critical to investigate which are the most contributing diseases to enable enhancing health programs' effectiveness in improving health expectancy. This paper investigates disease-specific contributions to years lived with chronic diseases in Algeria and examines their recent evolution.</p><p><strong>Methods: </strong>We used morbidity data from the last three waves of the Multiple Indicator Cluster Surveys of 2006, 2012-13, and 2018-19. The studied chronic diseases included hypertension, cardiovascular diseases (CVDs), joint diseases, respiratory diseases, and diabetes. We calculated disease-specific contributions using the cause-deleted health expectancy approach. Then, we analyzed time changes and gender-based differences in contributions.</p><p><strong>Results: </strong>The leading cause of HYLs in women is hypertension, followed by diabetes, joint diseases, CVDs, and respiratory diseases. The same ranking applies to men, with joint diseases coming last. The time evolution of relative disease-specific contributions shows an increase in CVDs for women and diabetes for both genders, against a decrease for the other diseases.</p><p><strong>Discussion: </strong>To improve chronic disease-free life expectancy in Algeria, effective prevention programs must be implemented, with an emphasis on hypertension and diabetes. Further investigation into the risk factors affecting the prevalence and incidence of these diseases is also required.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"395-404"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753057","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2023-12-19DOI: 10.1177/17423953231221845
N P Edirisinghe, P T R Makuloluwa, A A T D Amarasekara, C S E Goonewardena
{"title":"Severity, interference, qualities, and correlates of severe pain: Descriptive cross-sectional study on pain experience of cancer patients in Sri Lanka.","authors":"N P Edirisinghe, P T R Makuloluwa, A A T D Amarasekara, C S E Goonewardena","doi":"10.1177/17423953231221845","DOIUrl":"10.1177/17423953231221845","url":null,"abstract":"<p><strong>Objective: </strong>Pain is the most debilitating and subjective experience of cancer patients. This study examines the severity, interference, characteristics, and associations of severe pain in Sri Lankan cancer patients.</p><p><strong>Methods: </strong>A descriptive study was conducted in Sri Lanka on 384 patients at age 18 or older who had cancer pain for 3 months or more due to the initial lesion, secondaries, radiation, or chemotherapy. Patients with non-cancerous pain or brain metastases were excluded. Data was collected using a validated Sinhala version of the Short-Form Brief Pain Inventory and the Short-Form McGill Pain Questionnaire-2. Logistic regression was used to identify severe pain correlations.</p><p><strong>Results: </strong>The mean of the \"worst pain\" experience was 7.97, and 73.2% reported their \"worst pain\" as severe. The \"normal works\" (62.5%) and \"sleep\" (58.3%) were severely influenced by pain. \"Aching pain,\" was the most reported pain quality. A statistically significant association was shown between severe pain and male gender (adjusted odds ratio (AOR) = 1.723), being in marriage (AOR = 1.947), absence of family commitments (AOR = 1.8), and pain of 3 months or more duration (AOR = 1.76).</p><p><strong>Conclusion: </strong>The experiences of cancer pain vary, with the majority suffering from severe pain.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"515-526"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138812670","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-05-15DOI: 10.1177/17423953241253874
Ya-Ching Huang, Muna Bhattarai, Emma Cho, Hyunwoo Yoon
{"title":"The impact of social and emotional support on serious psychological distress among people with functional disabilities and type 2 diabetes.","authors":"Ya-Ching Huang, Muna Bhattarai, Emma Cho, Hyunwoo Yoon","doi":"10.1177/17423953241253874","DOIUrl":"10.1177/17423953241253874","url":null,"abstract":"<p><strong>Objectives: </strong>To examine the impact of social and emotional support on serious psychological distress (SPD) in individuals with type 2 diabetes (T2DM) and functional disabilities after controlling for socio-demographic factors and health status. Findings provide information for healthcare providers to enhance patients' psychological well-being.</p><p><strong>Methods: </strong>Data from 529 adults were obtained from the 2021 National Health Interview Survey, including those who had T2DM and also reported significant difficulty or inability to perform an activity in any of the following domains: seeing, hearing, walking or climbing stairs, communicating, remembering or concentrating, or practicing self-care. Descriptive analysis and a hierarchical regression model of SPD were used.</p><p><strong>Results: </strong>The mean age of participants was 67.88 years old, and the mean duration of diabetes diagnosis was 16.88 years. Notably, 12.5% of individuals reported SPD. A decreased likelihood of reporting SPD occurrence was associated with older age (odds ratio (OR) = 0.95), a longer duration of T2DM diagnosis (OR = 0.97), having at least a high school education (OR = 0.54), and receiving social and emotional support.</p><p><strong>Discussion: </strong>Social and emotional support likely mitigates psychological distress, suggesting that social and emotional support resources should be enhanced, especially among individuals who are younger and those more recently diagnosed with T2DM.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"413-423"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140945557","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}