Chronic Illness最新文献

Development and validation of a broadly applicable instrument to measure patients' health promotion and empowerment process in chronic disease.

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-10 DOI: 10.1177/17423953241306268

Kristin Heggdal, Kisha Thompson, Natalie Stepanian, Krystyna de Jacq, Keville Frederickson

{"title":"Development and validation of a broadly applicable instrument to measure patients' health promotion and empowerment process in chronic disease.","authors":"Kristin Heggdal, Kisha Thompson, Natalie Stepanian, Krystyna de Jacq, Keville Frederickson","doi":"10.1177/17423953241306268","DOIUrl":"https://doi.org/10.1177/17423953241306268","url":null,"abstract":"Objectives: This study aimed to develop and validate a generic, non-disease-specific, self-assessment measure that recognizes patients' health capacities and their empowering process of health promotion in chronic illness by using Bodyknowledging as the theoretical frame.Methods: Item generation and expert content validity analysis were the first steps in instrument development. Potential items were then validated in focus group interviews with six patients diagnosed with various chronic diseases. The research team reviewed the resulting items and undertook item reduction. A sample of adults (n = 357) with chronic disease surveyed the instrument items. Exploratory factor analysis with Oblimin rotation was conducted.Results: A 3-factor solution was identified: nine items on the regaining health and wellness subscale, seven items on the uncertainty and bereavement subscale, and eight items on the loss of control and distancing subscale. Cronbach alpha for the scale was .92. The final 24-item instrument is non-disease-specific and broadly applicable for use in health promotion within the context of chronic disease. The instrument demonstrates high internal consistency reliability with initial face and construct validity.Discussion: The new instrument has the potential for measuring patients' empowering process of health promotion in chronic disease and the outcomes of person-centered interventions and may guide clinicians in tailoring individual support.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953241306268"},"PeriodicalIF":1.8,"publicationDate":"2024-12-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142802696","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Personal variation in patient-centered relevance Index based on individual characteristics and medical conditions among patients with diabetes Mellitus in Korea.

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-05 DOI: 10.1177/17423953241277900

Hyeki Park, Eun-Cheol Park, Woo-Ri Lee, Sungyoun Chun

{"title":"Personal variation in patient-centered relevance Index based on individual characteristics and medical conditions among patients with diabetes Mellitus in Korea.","authors":"Hyeki Park, Eun-Cheol Park, Woo-Ri Lee, Sungyoun Chun","doi":"10.1177/17423953241277900","DOIUrl":"https://doi.org/10.1177/17423953241277900","url":null,"abstract":"Objectives: This study aimed to identify patients at higher risk for regional disengagement from health services using the Patient-centered Relevance Index (P-RI).Methods: This nationwide retrospective cohort study analyzed the relationship between the P-RI and individual patient characteristics, including medical conditions and healthcare utilization patterns. The National Health Insurance Service claims database was used to characterize healthcare utilization by 3,046,914 patients with DM from 2017 to 2020.Results: As compared to the mild condition group, all other groups had a lower P-RI. Significant differences were observed among the groups with P-RI lower by 16.5%, 14%, 13%, 0.4%, and 0.6% in the repeated inpatient treatment (β = -0.165, P < 0.001), complication (β = -0.141, P < 0.001), extended long-term care stay (β = -0.130, P < 0.001), comorbidity (β = -0.041, P < 0.001), and other (β = -0.058, P < 0.001) groups, respectively. Additionally, the P-RI was high among low-income and older patients with high acuity.Discussion: South Korea's healthcare delivery system is not regionally self-sufficient. A relatively low P-RI in the high income and younger groups indicates healthcare access inequity. Therefore, a continuous management system that ensures uniform healthcare access needs to be established.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953241277900"},"PeriodicalIF":1.8,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Relationship between parent-adolescent communication and parent involvement in adolescent Type 1 diabetes management, parent/family wellbeing and glycaemic control. 父母与青少年沟通与父母参与青少年1型糖尿病管理、父母/家庭幸福感和血糖控制之间的关系。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-06-29 DOI: 10.1177/17423953231184423

Ailbhe Benson, Caroline Rawdon, Ella Tuohy, Nuala Murphy, Ciara McDonnell, Veronica Swallow, Pamela Gallagher, Veronica Lambert

{"title":"Relationship between parent-adolescent communication and parent involvement in adolescent Type 1 diabetes management, parent/family wellbeing and glycaemic control.","authors":"Ailbhe Benson, Caroline Rawdon, Ella Tuohy, Nuala Murphy, Ciara McDonnell, Veronica Swallow, Pamela Gallagher, Veronica Lambert","doi":"10.1177/17423953231184423","DOIUrl":"10.1177/17423953231184423","url":null,"abstract":"Objectives: This study investigated the relationship between parent-reported degree of openness and extent of problems in parent-adolescent communication and parent involvement in adolescent Type 1 diabetes management, parent and family wellbeing and adolescent glycaemic control.Methods: A cross-sectional quantitative survey was conducted. Parents completed measures of parent-adolescent communication, parent monitoring of diabetes care, diabetes family responsibility, parent knowledge of diabetes care, parent activation, parent diabetes distress, and diabetes family conflict.Results: In total, 146 parents/guardians (121 mothers, mean age 46.56 years, SD 5.18) of adolescents aged 11-17 years (mean age 13.9 years, SD 1.81) with Type 1 diabetes completed the survey. Open parent-adolescent communication was significantly correlated to adolescents' voluntarily disclosing diabetes-specific information to their parents more frequently, increased parental knowledge of their adolescent's diabetes care completion, parents feeling more capable and willing to take action in relation to their adolescent's diabetes health, lower levels of diabetes-related parental distress, less diabetes-specific family conflict, and optimal glycaemic control.Discussion: Parent-adolescent communication has an important role to play in Type 1 diabetes healthcare management and psychosocial wellbeing during adolescence. Optimising open parent-adolescent communication represents a potentially useful target for interventional research and should be considered by healthcare professionals during healthcare encounters.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"669-683"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11622523/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9690182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Socio-Clinical factors associated with Parkinson's disease-related specific self-management behaviours. 与帕金森病相关的特定自我管理行为相关的社会临床因素

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-09-06 DOI: 10.1177/17423953231198893

Michal Kafri, Maram Abu Taieh, Michal Duvdevani, Ilana Schlesinger, Maria Nassar, Ilana Erich, Rafi Hadad, Galit Yogev-Seligmann

{"title":"Socio-Clinical factors associated with Parkinson's disease-related specific self-management behaviours.","authors":"Michal Kafri, Maram Abu Taieh, Michal Duvdevani, Ilana Schlesinger, Maria Nassar, Ilana Erich, Rafi Hadad, Galit Yogev-Seligmann","doi":"10.1177/17423953231198893","DOIUrl":"10.1177/17423953231198893","url":null,"abstract":"Objective: To test associations between socio-clinical factors, self-management and patient activation among patients with Parkinson's disease (PD), and to explore the use of regression tree to find the cut-off levels of socio-clinical factors which associate with lower or higher self-management behaviours and patient's activation.Methods: A cross-sectional study of patients with PD (n = 62) who underwent assessment of their socio-clinical factors including age, gender, cognitive status, comorbidities, disease severity (motor and non-motor symptoms) and social support. The associations of these factors to specific aspects of self-management behaviours including utilization of rehabilitative treatments, physical activity and patient activation were tested.Results: Most patients did not utilize rehabilitative treatments. Non-motor symptoms and cognitive status were significantly associated with physical activity (R2 = 0.35, F(3, 58) = 10.50, p < 0.001). Non-motor symptoms were significantly associated with patient activation (R2 = 0.30, F(1, 30) = 25.88, p < 0.001). Patients with Mini-Mental State Exam score ≤24 performed less physical activity, relative to those with a higher score. Patients with ≤5 non-motor symptoms showed higher activation relative to those with >5.Conclusion: In PD, disease-specific clinical characteristics overshadow other personal factors as determinants of self-management behaviours. The role of non-motor symptoms in reduced self-management behaviours and activation is highlighted.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"699-711"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11622522/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10534304","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effectiveness of peer mentoring and self-monitoring to improve blood pressure control in a vulnerable population in Argentina: Pragmatic randomized open-label controlled trial. 同伴指导和自我监测改善阿根廷弱势人群血压控制的有效性:实用的随机开放标签对照试验

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-07-11 DOI: 10.1177/17423953231187170

Analía Nejamis, Martin Chaparro, Luz Gibbons, Rosana Poggio, Daniela Luz Moyano, Vilma Irazola

{"title":"Effectiveness of peer mentoring and self-monitoring to improve blood pressure control in a vulnerable population in Argentina: Pragmatic randomized open-label controlled trial.","authors":"Analía Nejamis, Martin Chaparro, Luz Gibbons, Rosana Poggio, Daniela Luz Moyano, Vilma Irazola","doi":"10.1177/17423953231187170","DOIUrl":"10.1177/17423953231187170","url":null,"abstract":"Objective: To evaluate the effectiveness of blood pressure (BP) self-monitoring and peer mentoring to improve the control of hypertension in clinical practice in primary care centers (PCCs) located in low-resource settings in Argentina.Methods: An individual randomized controlled trial was carried out to test two different approaches based on behavioral interventions in PCCs in Argentina. Hypertensive adults were randomly assigned to one of three arms: BP self-monitoring, peer mentoring, and usual care. The primary outcome was the change in BP values from baseline to the end of follow-up at 3 months. A qualitative approach of participants' experiences of the peer mentoring arm was also conducted.Results: A total of 442 participants with hypertension were included in the study. Self-monitoring and peer mentoring interventions did not show a significant difference in BP control compared to usual care. However, this trial showed an improvement regarding antihypertensive medication adherence among those assigned to the peer mentoring intervention compared to the control at the end of follow-up (p = 0.031).Discussion: Self-monitoring and peer mentoring interventions did not demonstrate to be effective in BP control compared to usual care. Implementing a peer support strategy was demonstrated to be feasible and effective in improving medication adherence in this population.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"684-698"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9757538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patients' perception towards chronic disease self-management and its program: A cross-sectional survey. 患者对慢性疾病自我管理的认知及其方案:一项横断面调查。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-07-04 DOI: 10.1177/17423953231185385

Nur Atiyah Abdul Halim, Nur Hikmah Ahmad Sopri, Yuet Yen Wong, Qarem Mohamed Mustafa, Qi Ying Lean

{"title":"Patients' perception towards chronic disease self-management and its program: A cross-sectional survey.","authors":"Nur Atiyah Abdul Halim, Nur Hikmah Ahmad Sopri, Yuet Yen Wong, Qarem Mohamed Mustafa, Qi Ying Lean","doi":"10.1177/17423953231185385","DOIUrl":"10.1177/17423953231185385","url":null,"abstract":"Objective: This study aimed to assess the perceptions towards chronic disease self-management and its program among patients with chronic diseases.Methods: A cross-sectional study using pre-validated questionnaire was conducted among patients with chronic diseases at outpatient pharmacy in a hospital in Penang, Malaysia from April to June 2021.Results: Of 270 patients participated in this study, 87.8% were interested in chronic disease self-management. Nonetheless, they faced common barriers including time constraint (71.1%), no health monitoring devices (44.1%) and poor health knowledge (43.0%). More than half of the patients expressed that having a better knowledge of the disease and its treatment (64.1%), getting supportive guidance from healthcare providers (59.6%) and having monitoring devices (58.1%) were the top three facilitators to self-management. The patients preferred chronic disease self-management programs that (a) discuss the topic of motivation (b) are available both as mobile applications and hands-on training, (c) individual session, (d) range between 1 and 5 sessions with a duration of 1 to 2 h/session, (e) occurring on monthly basis, (f) conducted by doctor or healthcare professionals and (g) fully sponsored by government or at affordable fee.Conclusion: The findings serve as pre-requisite step in future design and development of chronic disease self-management program, targeting the patients' needs and preferences.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"640-654"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9751330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Effects of the discharge plan on the caregiving load of people with chronic disease: Quasi-experimental study. 出院计划对慢性病患者护理负荷的影响:准实验研究。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-08-03 DOI: 10.1177/17423953231192131

Gloria Carvajal Carrascal, Alejandra Fuentes Ramírez, Sandra Patricia Pulido Barragán, Maryory Guevara Lozano, Beatriz Sánchez-Herrera

{"title":"Effects of the discharge plan on the caregiving load of people with chronic disease: Quasi-experimental study.","authors":"Gloria Carvajal Carrascal, Alejandra Fuentes Ramírez, Sandra Patricia Pulido Barragán, Maryory Guevara Lozano, Beatriz Sánchez-Herrera","doi":"10.1177/17423953231192131","DOIUrl":"10.1177/17423953231192131","url":null,"abstract":"Objective: To determine the effect of an anticipated care plan, structured around hospital discharge (PC-AH-US), regarding the caregiving load of people with NTCD residing in Colombia, 2019-2021.Method: This is a quasi-experimental study with pre- and post-intervention measurements. It includes 1170 participants who represented 585 chronic disease patient-caregiver pairs. We compared the PC-AH-US intervention, to the regular intervention.Results: The PC-AH-US intervention group showed better results in all dimensions when compared to the regular intervention group: Awareness 8.7 (SD: 0.7) and 6.8 (SD: 1.7); Acknowledgement of their unique conditions 11.3 (SD: 1.0) and 9.4 (SD: 1.8); Capacity to fulfill care tasks 8.8 (SD: 0.7) and 7.5 (SD: 1.5); Wellbeing 11.4 (SD: 0.90) and 8.87 (SD: 2.3); Anticipation 5.88 (SD: 0.4) and 4.7 (SD: 1.1) and Support Network 11.4 (SD: 0.8) and 9.9 (SD: 2.5).Conclusion: The PC-AH-US intervention group showed a statistically significant decrease in the caregiving load for people with NTCD (p < 00). There were no significant institutional differences in readmissions or deaths. The PC-AH-US intervention backs institutional policies meant to care for people with NTCD.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"712-723"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11622529/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10309324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient-centric holistic integrative therapies as an adjuvant in checking the progression of chronic kidney disease: A case study. 以患者为中心的整体综合疗法作为辅助检查慢性肾脏疾病的进展:一个案例研究。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-06-08 DOI: 10.1177/17423953231181413

Karishma Silwal, Hemanshu Sharma, Gulab Rai Tewani, Pradeep Mk Nair

{"title":"Patient-centric holistic integrative therapies as an adjuvant in checking the progression of chronic kidney disease: A case study.","authors":"Karishma Silwal, Hemanshu Sharma, Gulab Rai Tewani, Pradeep Mk Nair","doi":"10.1177/17423953231181413","DOIUrl":"10.1177/17423953231181413","url":null,"abstract":"Objective: Chronic kidney diseases (CKDs) characterized by progressive loss of kidney function impart significant burden on the patients. Besides physical disabilities, CKD affects the mental health and quality of life of the patients. Recent studies suggest the need for interdisciplinary patient-centric care in the management of CKD.Methods: The present study introduced patient-centric holistic integrative therapies (YNBLI) in a 64-year-old female diagnosed with CKD in 2021, who presented with breathlessness, fatigue, loss of appetite, and anxiety. She is a known case of type 2 diabetes, hypertension and osteoarthritis of knee. She was advised for dialysis by her nephrologists', however, she was reluctant to undergo dialysis due to anxiety about the side effects and lifelong dependency on dialysis. She initially underwent a 10-day YNBLI program at our inpatient setting followed by adhering to the home-based YNBLI for 16 weeks.Results: She showed significant improvement in the kidney function, hemoglobin levels, quality of life and symptoms with no adverse events. The improvements were consistent throughout the 16 weeks after discharge.Discussion: This study presents the effective use of patient-centric holistic integrative therapies (YNBLI) as an adjuvant in the management of CKD. Future studies are warranted to substantiate these findings.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"724-732"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9964562","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"It just makes you more vulnerable as an employee": Understanding the effects of disability stigma on employment in Parkinson's disease. “这只会让你作为一名雇员更容易受到伤害”:了解残疾耻辱感对帕金森病患者就业的影响。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-07-04 DOI: 10.1177/17423953231185386

Kelsi Carolan

{"title":"\"It just makes you more vulnerable as an employee\": Understanding the effects of disability stigma on employment in Parkinson's disease.","authors":"Kelsi Carolan","doi":"10.1177/17423953231185386","DOIUrl":"10.1177/17423953231185386","url":null,"abstract":"Objective: Parkinson's disease (PD) is one of the most common neurodegenerative diseases in the United States, affecting approximately 1 million Americans. However, there is a dearth of research on the employment experiences of individuals with PD. This research article makes a crucial contribution to the literature by examining the role of disability stigma in shaping employment options in PD, with relevance to the experiences of adults with chronic and/or progressive diseases more broadly.Methods: The author conducted individual semi-structured interviews with 23 adults under the age of 65 with PD. Interviews were audio-recorded and transcribed. The author utilized an integrated approach to analysis, primarily employing a thematic analysis approach. Additionally, a narrative analysis strategy, the Listening Guide, was integrated into the broader thematic analysis to deepen analysis of discrimination and stigma.Results: Findings demonstrate how internalized, anticipated and/or experienced disability-related stigma profoundly affects employment experiences, influencing participants' work outcome expectations and acting as an employment barrier.Discussion: Findings have implications for health care practice and education, disability policy, early intervention strategies after the onset of PD and priorities for future research.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"655-668"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10110752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Barriers and facilitators of self-management behaviors among patients with chronic obstructive pulmonary disease and chronic comorbidities: A mixed-methods investigation. 慢性阻塞性肺疾病和慢性合并症患者自我管理行为的障碍和促进因素:一项混合方法调查

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-12-01 Epub Date: 2023-07-06 DOI: 10.1177/17423953231187172

Kimberly A Muellers, Rachel O'Conor, Andrea M Russell, Guisselle Wismer, James W Griffith, Michael S Wolf, Juan P Wisnivesky, Alex D Federman

{"title":"Barriers and facilitators of self-management behaviors among patients with chronic obstructive pulmonary disease and chronic comorbidities: A mixed-methods investigation.","authors":"Kimberly A Muellers, Rachel O'Conor, Andrea M Russell, Guisselle Wismer, James W Griffith, Michael S Wolf, Juan P Wisnivesky, Alex D Federman","doi":"10.1177/17423953231187172","DOIUrl":"10.1177/17423953231187172","url":null,"abstract":"Objectives: We investigated how individuals with chronic obstructive pulmonary disease (COPD) and multi-morbidity (MM) navigate barriers and facilitators to their health management.Methods: We conducted a mixed-methods study using semi-structured interviews and survey assessments of adults with COPD, hypertension, and/or diabetes. We recruited 18 participants with an average age of 65, with 39% being male, 50% Black, and 22% Hispanic/Latino/a. Five investigators used an iterative, hybrid-coding process combining a priori and emergent codes to analyze transcripts and compare quantitative and qualitative data for themes.Results: Participants reported a generalized approach to their health rather than managing MMs separately. Individuals with good or mixed adherence found daily routines facilitated regular medication use, while those with poor adherence experienced complex prescriptions and life stressors as barriers. Walking was viewed as beneficial but challenging due to limited mobility. Most participants viewed diet as important to their MMs, but only two reported high diet quality and many held inaccurate beliefs about healthy diet choices.Discussion: Participants with MM were highly motivated to engage in self-management activities, but some individuals experienced barriers to maintaining them. Emphasizing an individualized clinical approach to assessing and solving patient barriers may improve self-management outcomes in this complex population.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"605-617"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10117549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0