Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-09DOI: 10.1177/17423953241282664
Prema Naittee George, Ganesh Mp
{"title":"Beyond the battle: A cross-sectional study on cancer-related fatigue and predictors of quality of life in female adolescent and young adult survivors.","authors":"Prema Naittee George, Ganesh Mp","doi":"10.1177/17423953241282664","DOIUrl":"10.1177/17423953241282664","url":null,"abstract":"<p><p>ObjectivesThe study delves into the intricacies of cancer-related fatigue (CRF), the quality of life (QoL), and other demographic variables of female adolescent and young adult cancer survivors (AYACS) in the landscape of Kerala, India.MethodsThe cross-sectional study included 288 female AYACS who were selected through purposive sampling and completed self-reported questionnaires on CRF, QoL, and demographic and clinical data. Statistical analyses were applied, including correlation, one-way ANOVA, and regression.Resultsand discussion: The temporal dimension is particularly interesting, as individuals three to five years post-treatment report heightened CRF and QoL scores. Furthermore, the research unveils the pivotal role played by predictors such as marital status, educational attainment, and employment status in shaping QoL. Marital status and education emerge as positive predictors of well-being. The study unveils compelling insights into AYA cancer survivorship, revealing a profound impact of CRF on the quality of life dimensions. The role of spirituality, sometimes affecting social connectedness, adds intrigue.ConclusionThe findings provide insights into the complex world of female AYACS, compelling researchers to ponder the significance of addressing CRF and tailoring rehabilitation systems during the critical post-treatment phase, with recognition of gender-specific challenges.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"291-301"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-11-08DOI: 10.1177/17423953231213853
Wenxue Lin
{"title":"Knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses: A cross-sectional analysis of 2019 HINT Survey.","authors":"Wenxue Lin","doi":"10.1177/17423953231213853","DOIUrl":"10.1177/17423953231213853","url":null,"abstract":"<p><p>ObjectiveThe aim of this study was to assess and compare knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses.MethodsWe used a cross-sectional study design to analyze the Health Information National Trends Survey (HINTS) 5, Cycle 3 (2019). Participants were classified into four categories based on their substance use status: (a) nonsmoker and nondrinkers; (b) nonsmokers but drinkers; (c) smokers but nondrinkers; and (d) smokers and drinkers. Weighted logistic regression models were utilized to evaluate the association between knowledge of heavy alcohol consumption and health conditions by participants' substance use status.ResultsMore than 79% of participants were aware that drinking too much alcohol causes liver disease. However, less than 40% of them realized that heavy alcohol consumption also contributes to cancer. The odds of correctly identifying heavy alcohol consumption as a risk factor for diabetes were 3.00 times (95% confidence interval (CI): 1.29,7.00) higher among smokers but nondrinkers than smokers and alcohol drinkers. Education level was significantly associated with participants' awareness of risk factor (p < 0.01).DiscussionThere is an urgent need for targeted educational campaigns and interventions to increase understanding of the impact of heavy alcohol consumption on cancer risk.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"253-262"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-10-26DOI: 10.1177/17423953231210121
Abigail Kukay, Cliff McKinney
{"title":"Chronic illness and psychological problems in emerging adults: Moderation by perceived parental distress.","authors":"Abigail Kukay, Cliff McKinney","doi":"10.1177/17423953231210121","DOIUrl":"10.1177/17423953231210121","url":null,"abstract":"<p><p>ObjectiveThe aim of the current study was to better understand if perceived parental distress moderates the effects of having a chronic illness and poor physical quality of life on psychological problems reported by emerging adults.MethodsParticipants consisted of 538 college-attending emerging adults (53.5% women; 46.5% men). Participants completed an online study that was composed of questions regarding chronic illness, the World Health Organization Quality of Life - Brief, the Adult Self-Report scale, and the Adult Behavior Checklist.ResultsIn both emerging adult women and men, endorsing a chronic illness is significantly associated with psychological problems. Psychological problems in both emerging adult women and men were significantly predicted by the three-way interaction between endorsing a chronic illness, physical quality of life, and perceived maternal distress. Specifically, increased perceived maternal distress was associated with higher psychological problems in both emerging adult women and men with chronic illnesses and low physical quality of life.DiscussionFor emerging adult women and men with a chronic illness, higher perceived maternal distress was associated with poorer psychological adjustment, while lower perceived maternal distress was associated with better psychological adjustment.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"229-241"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54231601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-09DOI: 10.1177/17423953241282665
Summer C Martin
{"title":"Social support within couples coping with Parkinson's disease.","authors":"Summer C Martin","doi":"10.1177/17423953241282665","DOIUrl":"10.1177/17423953241282665","url":null,"abstract":"<p><p>ObjectivesTo contribute to a better understanding of the complexities of social support exchanged within couples coping with Parkinson's disease (PD), the present study aimed to identify costs and complications of support between persons with PD (PWPs) and their partners, as well as how to effectively manage such challenges.MethodsIn-depth interviews were conducted with 63 participants, including 31 PWPs and 32 partners. Interviews were transcribed and analyzed using constant comparative techniques.ResultsParticipants reported the following complications and costs of social support: <i>partners' differing approaches to coping can make support difficult, support can be perceived as identity-threatening and controlling, support can lead to dependency,</i> and <i>support can be draining.</i> In addition, participants discussed effectively managing challenges of support by <i>seeking/providing support subtly, taking the other's perspective,</i> and <i>relinquishing control.</i>DiscussionIn health care and interventions, it is important for PWPs and partners to be educated about social support so that couples can anticipate these costs and complications of support and consider which management strategies are likely to be effective for them in various circumstances.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"302-314"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-10-23DOI: 10.1177/17423953231209462
Nizar B Said, Mohammed Hayek, Aseel E Alsayed
{"title":"The perceived social support, life events, and depressive features among patients with diabetes mellitus.","authors":"Nizar B Said, Mohammed Hayek, Aseel E Alsayed","doi":"10.1177/17423953231209462","DOIUrl":"10.1177/17423953231209462","url":null,"abstract":"<p><p>ObjectiveThis study evaluated the relationship between life events, perceived social support, and depressive features among people with diabetes.MethodsThis study was a cross-sectional design using convenience sampling. Questionnaires were distributed to targeted patients in primary health care services in the Nablus district.Questionnaires used wereThe Holmes-Rahe Stress Inventory Scale, The Beck Depression Inventory, and The Multidimensional Scale of Perceived Social Support.ResultsAbout 120 diabetic patients participated in this study. Findings revealed that higher diabetes mellitus prevalence was among older ages (39.2% are 60 years or older). More than half of the participants were smokers. Regarding life events, 53.3% of the patients have a 50% chance of developing major breakdowns in the next two years. Depression was found to be normal among 32.5% of participants, while 22.5% were moderately depressed. More patients had a disagreement that they could find social support from their friends than their family members.DiscussionPeople with diabetes are affected significantly by life events, depressive features, and perceived social support, hence, further attention is needed accompanied by frequent assessment for such factors for effective diabetes management.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"205-215"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49693221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-05DOI: 10.1177/17423953241282246
Olga Doris, Eimear C Morrissey
{"title":"Experiences of students with chronic illness in university education in Ireland.","authors":"Olga Doris, Eimear C Morrissey","doi":"10.1177/17423953241282246","DOIUrl":"10.1177/17423953241282246","url":null,"abstract":"<p><p>ObjectiveThe aim of this study was to explore the experiences of university students with a chronic illness in Ireland. The study also aimed to gain insight into students' experiences with Disability Support Services (DSS) and identify gaps where additional supports and resources are needed.DesignCross-sectional qualitative study.MethodsFourteen students from three Irish universities participated in semi-structured interviews. The interviews were audio-recorded, transcribed, and analysed through the six-step process of reflexive thematic analysis.ResultsFour themes were developed: (1) The burden of managing a chronic illness alongside university education; (2) Interruptions, disruptions and alterations to college life; (3) Flexible supports for fluctuating conditions; (4) Achieving in educating while living with a chronic illness.ConclusionsParticipants reported a physical and emotional burden. Despite engaging in rigorous management strategies, many participants missed lectures and socialising with peers. Some found the supports from DSS to be useful, however many were unsure if they qualified for support, or found the supports available to be generic and inadequate for their needs. There is significant scope for the delivery of both teaching and DSS to be improved for this cohort, ensuring that all students, regardless of their health status, have equal opportunities for success.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"277-290"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142134233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2025-02-27DOI: 10.1177/17423953241306275
Mansueto Gomes Neto, William Suzart Coutinho de Araujo, Ana Carolina Pereira Nunes Pinto, Micheli Bernardone Saquetto, Bruno Prata Martinez, Vinicius Afonso Gomes, Carlos Brites, Vitor Oliveira Carvalho
{"title":"Effects of physical rehabilitation interventions on exercise performance, dyspnea, and health-related quality of life in acute and post-acute COVID-19 patients: Systematic review and meta-analysis.","authors":"Mansueto Gomes Neto, William Suzart Coutinho de Araujo, Ana Carolina Pereira Nunes Pinto, Micheli Bernardone Saquetto, Bruno Prata Martinez, Vinicius Afonso Gomes, Carlos Brites, Vitor Oliveira Carvalho","doi":"10.1177/17423953241306275","DOIUrl":"10.1177/17423953241306275","url":null,"abstract":"<p><p>ObjectiveTo analyze the published randomized controlled trials (RCTs) that investigated the effects of physical rehabilitation interventions provided directly (face to face) and by telerehabilitation on exercise performance, dyspnea, and health-related quality of life (HRQoL) in acute and post-acute COVID-19 patients.MethodsFor this systematic review and meta-analysis, different electronic databases were searched up to January 2023. Mean difference (MD), (standardized mean difference (SMD) were calculated.Results34 studies (2214 patients) met the study criteria. Physical interventions may improve aerobic capacity in acute COVID-19 (SMD 1.7; 95% CI 0.37, 2.8) and in post-acute COVID-19 participants (MD 0.4; 95% CI 0.1, 07) compared to usual care for acute and pos-acute COVID-19 patients, respectively. Physical interventions may also improve dyspnea in acute (SMD -1.4; 95% CI -0.8, -0.01) and in post-acute COVID-19 participants (MD -0.4; 95% CI -0.7, -0.2) compared to usual care. Physical interventions may result in an improvement in HRQoL (physical domain) (SMD 0.6; 95% CI 0.3) in post-acute COVID-19 participants compared to usual care in pos-acute COVID-19 patients.DiscussionThe results support that physical rehabilitation interventions improve aerobic capacity and dyspnea in acute and post-COVID-19 patients. Moreover, physical interventions improve physical domain in HRQoL.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"183-204"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143524905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Investigating the role of treatment adherence in predicting marital satisfaction among women with coronary artery disease: A cross-sectional study from Iran.","authors":"Parvin Zandi Rad, Tayebeh Gharibi, Hakimeh Vahedparast, Razieh Bagherzadeh","doi":"10.1177/17423953231213850","DOIUrl":"10.1177/17423953231213850","url":null,"abstract":"<p><p>IntroductionDespite the effect of coronary artery disease on sexual function and the relation between sexual function and marital satisfaction, few studies have investigated the effect of treatment adherence on marital satisfaction. The present study aims to investigate the role of treatment adherence in predicting marital satisfaction among women with coronary artery disease.MethodologyIn this cross-sectional study, 385 women with coronary artery disease in Bushehr-Iran, 2021, were selected using a convenient sampling method. The data were collected using the demographic form, Seyed Fatemi medication adherence scale, female sexual function index, and evaluation and nurturing relationship issues, communication, and happiness marital satisfaction scale. The data was analyzed using univariate and multivariate logistic regression tests.ResultsThe mean (± standard deviation) age of the participants was 52.19 ± 12.15 years old. Considering the effect of demographic variables, treatment adherence (<i>β</i> = 0.164, <i>P</i> = 0.001) and sexual function (<i>β</i> = 0.156, <i>P </i>= 0.001) were positive predictors of marital satisfaction.ConclusionTreatment adherence was a positive predictor of marital satisfaction. Healthcare providers should pay attention to the family consequences of non-adherence to treatment. Moreover, when counseling patients to adhere to the treatment, they should mention the physical benefits as well as psychological and family outcomes in order to motivate patients to follow their treatment.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"242-252"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-10-30DOI: 10.1177/17423953231210117
Jane A Evered, Alessandra LaJeunesse, Madison Wynn, Emily Mrig, Mark Schlesinger, Rachel Grob
{"title":"Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable.","authors":"Jane A Evered, Alessandra LaJeunesse, Madison Wynn, Emily Mrig, Mark Schlesinger, Rachel Grob","doi":"10.1177/17423953231210117","DOIUrl":"10.1177/17423953231210117","url":null,"abstract":"<p><p>ObjectivesThe COVID-19 pandemic has left many suffering from long COVID, an episodic and debilitating chronic condition affecting people's ability to work and manage medical expenses. Though the Biden Administration has committed to conducting research and building support programs to alleviate the strain on those affected, in practice, static eligibility criteria for unemployment and disability benefits, patchy insurance coverage, and insufficient paid leave programs have left many people vulnerable. Given the magnitude of long COVID and the dearth to date of large-scale studies about its financial consequences, a focused qualitative analysis of lived experiences is warranted to understand and highlight gaps in the policy landscape.MethodsWe conducted in-depth semi-structured interviews from 2020 to 2022 with 25 people with experience of long COVID living predominately in the Midwest.ResultsOur inductive analysis revealed ways people became financially exhausted by uncertain medical care costs and precarious employment that left them trying, often alone, to access benefits. People described both experiences with workplace benefits and attempts to access federal benefits to address unstable employment situations created by protracted and uncertain functional impairments.DiscussionWe explore pre- and post-pandemic era unemployment, disability, and insurance policies and offer recommendations for better supporting people with long COVID.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"216-228"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11058107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71414840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-12-05DOI: 10.1177/17423953241277900
Hyeki Park, Eun-Cheol Park, Woo-Ri Lee, Sungyoun Chun
{"title":"Personal variation in patient-centered relevance Index based on individual characteristics and medical conditions among patients with diabetes Mellitus in Korea.","authors":"Hyeki Park, Eun-Cheol Park, Woo-Ri Lee, Sungyoun Chun","doi":"10.1177/17423953241277900","DOIUrl":"10.1177/17423953241277900","url":null,"abstract":"<p><p>ObjectivesThis study aimed to identify patients at higher risk for regional disengagement from health services using the Patient-centered Relevance Index (P-RI).MethodsThis nationwide retrospective cohort study analyzed the relationship between the P-RI and individual patient characteristics, including medical conditions and healthcare utilization patterns. The National Health Insurance Service claims database was used to characterize healthcare utilization by 3,046,914 patients with DM from 2017 to 2020.ResultsAs compared to the mild condition group, all other groups had a lower P-RI. Significant differences were observed among the groups with P-RI lower by 16.5%, 14%, 13%, 0.4%, and 0.6% in the repeated inpatient treatment (β = -0.165, P < 0.001), complication (β = -0.141, P < 0.001), extended long-term care stay (β = -0.130, P < 0.001), comorbidity (β = -0.041, P < 0.001), and other (β = -0.058, P < 0.001) groups, respectively. Additionally, the P-RI was high among low-income and older patients with high acuity.DiscussionSouth Korea's healthcare delivery system is not regionally self-sufficient. A relatively low P-RI in the high income and younger groups indicates healthcare access inequity. Therefore, a continuous management system that ensures uniform healthcare access needs to be established.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"263-276"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142781491","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}