Chronic Illness最新文献

{"title":"The effect of patient empowerment on patient activation level: A review of individuals with cardiovascular diseases.","authors":"Barış Düzel,&nbsp;Meltem Saygili,&nbsp;Özlem Özer,&nbsp;Melek Zubaroğlu Yanardağ","doi":"10.1177/17423953231170400","DOIUrl":"10.1177/17423953231170400","url":null,"abstract":"<p><strong>Objectives: </strong>The aim of this study is to examine the effect of patient empowerment on patient activation level in individuals with cardiovascular diseases.</p><p><strong>Methods: </strong>The population of the study is adult individuals receiving inpatient treatment in the Cardiology clinic of a city hospital operating in Turkey. In the study, convenience sampling method was applied, and a questionnaire was conducted from 543 patients.</p><p><strong>Results: </strong>As a result of the analyses made in the study, positive and low correlations were detected between the patient empowerment scale sub-dimensions and the patient activation level. According to regression analysis results, it was identified that the patient empowerment sub-dimensions together accounted for 6.4% of the total variance on the patient activation level, and the increase in the 'knowledge and understanding' levels of the patients statistically increased their perceptions of the patient activation level.</p><p><strong>Discussion: </strong>The results show that by providing patient empowerment in individuals with chronic diseases, their active participation can be increased in the treatment processes and consequently in the chronic disease management.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"665-674"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9665474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Linguistic adaptation and psychometric properties of the health literacy questionnaire in serbian language among people with chronic diseases.","authors":"Sladjana Arsenović,&nbsp;Olufemi Oyewole,&nbsp;Goran Trajković,&nbsp;Richard H Osborne,&nbsp;Megan Wiltshire-Fletcher,&nbsp;Teodora Gazibara,&nbsp;Darija Kisić Tepavčević,&nbsp;Tatjana Pekmezović,&nbsp;Tatjana Gazibara","doi":"10.1177/17423953221102630","DOIUrl":"https://doi.org/10.1177/17423953221102630","url":null,"abstract":"<p><strong>Objective: </strong>To translate the Health Literacy Questionnaire (HLQ) to Serbian language and examine its psychometric characteristics.</p><p><strong>Methods: </strong>This cross-sectional study was conducted among 295 people with chronic diseases from the Foča region (Republic of Srpska, Bosnia and Herzegovina). The HLQ was translated according to the translation integrity procedure. Construct validity was tested using confirmatory factor analysis (CFA) using the maximum likelihood estimator and reliability was estimated using the α and ω coefficients.</p><p><strong>Results: </strong>Minor linguistic differences in 17 items were observed between the original and the initial forward translation and were corrected. The parameters of one-factor CFA on domains 3 and 8 fitted well. The parameters of the CFA for domains 1, 2, 4, 5, 6, 7 and 9 were acceptable after modification using residuals' correlation. The α and ω coefficients for all domains were good to excellent (>0.80).</p><p><strong>Conclusion: </strong>Each domain of the HLQ in Serbian has acceptable construct validity and overall good reliability. This study adds to the growing evidence that the HLQ is a useful tool to provide in-depth multidimensional information on health literacy to improve researchers and policymakers understanding of the health literacy strengths, needs and preferences across cultures and languages.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"605-624"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41148501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social support and diabetes distress: Does the messenger matter as much as the message?","authors":"Sorayya Seddigh,&nbsp;Tricia S Tang","doi":"10.1177/17423953221102622","DOIUrl":"https://doi.org/10.1177/17423953221102622","url":null,"abstract":"<p><p>We explored the relationship between social support (family/friends and health care team) and four diabetes distress subscales in 196 adults with type 2 diabetes in a specialty care setting. Health care support was associated with lower physician- and regimen-related distress, while friends/family support was related to lower interpersonal distress. The study was registered on clinicaltrials.gov (NCT02804620).</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"681-685"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41154022","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Using latent class analysis to inform the design of an EHR-based national chronic disease surveillance model.","authors":"Laura Nasuti, Bonnie Andrews, Wenjun Li, Jennifer Wiltz, Katherine H Hohman, Miriam Patanian","doi":"10.1177/17423953221099043","DOIUrl":"10.1177/17423953221099043","url":null,"abstract":"<p><p>The Multi-state EHR-based Network for Disease Surveillance (MENDS) developed a pilot electronic health record (EHR) surveillance system capable of providing national chronic disease estimates. To strategically engage partner sites, MENDS conducted a latent class analysis (LCA) and grouped states by similarities in socioeconomics, demographics, chronic disease and behavioral risk factor prevalence, health outcomes, and health insurance coverage. Three latent classes of states were identified, which inform the recruitment of additional partner sites in conjunction with additional factors (e.g. partner site capacity and data availability, information technology infrastructure). This methodology can be used to inform other public health surveillance modernization efforts that leverage timely EHR data to address gaps, use existing technology, and advance surveillance.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"675-680"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/7e/0f/10.1177_17423953221099043.PMC10515457.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41153170","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Urban-rural disparities in hypertension management among middle-aged and older patients: Results of a 2018 Chinese national study.","authors":"Hon Lon Tam,&nbsp;Siu Fung Chung,&nbsp;Qun Wang","doi":"10.1177/17423953221102627","DOIUrl":"https://doi.org/10.1177/17423953221102627","url":null,"abstract":"<p><strong>Objectives: </strong>Hypertension is a well-known global risk factor associated with significant morbidity and mortality. Medication use and urban-rural disparities in medication usage patterns affect hypertension management. We investigated patient characteristics across different geographical areas to determine factors that affect medication use among Chinese patients aged ≥ 45 years, diagnosed with hypertension.</p><p><strong>Methods: </strong>Data were extracted from the China Health and Retirement Longitudinal Study 2018. We recorded differences in medication use, advice from healthcare providers, and health-related behaviors between urban and rural areas.</p><p><strong>Results: </strong>The study included 2115 patients with hypertension (mean age 62.06 years). Advice received and medication use were significantly lower in patients from rural areas than in those from urban areas. Our findings showed that urban residence, comorbidities, advice regarding lifestyle changes, and smoking were positive predictors of medication use, whereas alcohol consumption and regular exercise reduced the likelihood of medication use.</p><p><strong>Discussion: </strong>We observed urban-rural disparities in hypertension management, and several strategies, including distribution of reminders and written materials can be integrated into current clinical practice to improve the rate of medication use among rural residents with hypertension.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"581-590"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41178839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Cytokine network analysis in a community-based pediatric sample of patients with myalgic encephalomyelitis/chronic fatigue syndrome.","authors":"Leonard A Jason, Caroline L Gaglio, Jacob Furst, Mohammed Islam, Matthew Sorenson, Karl E Conroy, Ben Z Katz","doi":"10.1177/17423953221101606","DOIUrl":"10.1177/17423953221101606","url":null,"abstract":"<p><strong>Objectives: </strong>Studies have demonstrated immune dysfunction in adolescents with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS); however, evidence is varied. The current study used network analysis to examine relationships between cytokines among a sample of pediatric participants with ME/CFS.</p><p><strong>Methods: </strong>10,119 youth aged 5-17 in the Chicagoland area were screened for ME/CFS; 111 subjects and controls were brought in for a physician examination and completed a blood draw. Youth were classified as controls (Cs, N = 43), ME/CFS (N = 23) or severe (S-ME/CFS, N = 45). Patterns of plasma cytokine networks were analyzed.</p><p><strong>Results: </strong>All participant groups displayed a primary network of interconnected cytokines. In the ME/CFS group, inflammatory cytokines IL-12p70, IL-17A, and IFN-γ were connected and included in the primary membership, suggesting activation of inflammatory mechanisms. The S-ME/CFS group demonstrated a strong relationship between IL-17A and IL-23, a connection associated with chronic inflammation. The relationships of IL-6 and IL-8 in ME/CFS and S-ME/CFS participants also differed from Cs. Together, these results indicate pro-inflammatory responses in our illness populations.</p><p><strong>Discussion: </strong>Our data imply biological differences between our three participant groups, with ME/CFS and S-ME/CFS participants demonstrating an inflammatory profile. Examining co-expression of cytokines may aid in the identification of a biomarker for pediatric ME/CFS.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"571-580"},"PeriodicalIF":1.8,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9666669/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41143742","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The psychological implications and health risks of cystic fibrosis pre- and post- CFTR modulator therapy.","authors":"Rebecca Keyte,&nbsp;Sophia Kauser,&nbsp;Michail Mantzios,&nbsp;Helen Egan","doi":"10.1177/17423953221099042","DOIUrl":"https://doi.org/10.1177/17423953221099042","url":null,"abstract":"<p><strong>Objectives: </strong>Cystic Fibrosis (CF) care is entering a period of personalised medicine with the emergence of CF transmembrane conductance regulator (CFTR) modulator therapies. Anecdotally individuals are reporting life-changing effects of modulator therapies, proposing an important area of study.</p><p><strong>Methods: </strong>Twenty adult participants (males: 8, age range: 22-51 years, average FEV₁: 53.45%) were recruited via social media to participate in a semi-structured interview; 17 participants were currently taking Elexacaftor/Tezacaftor/Ivacaftor (Kaftrio).</p><p><strong>Results: </strong>An appreciation of a \"normal life\" post-modulator therapy is paramount, with improvements in symptoms and quality-of-life bringing a more urgent imperative for the provision of effective support to encourage positive health and lifestyle choices.</p><p><strong>Discussion: </strong>In this new era of CF care, there remains many challenges present for the CF community, with participants suggesting that proactive psychological support is required along with proactive awareness regarding health risk behaviours for the current and future CF generations.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"539-556"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41162037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Towards a patient-centred approach in therapeutic patient education. A qualitative study exploring health care professionals' practices and related representations.","authors":"Sandrine Roussel,&nbsp;Mariane Frenay","doi":"10.1177/17423953221088629","DOIUrl":"https://doi.org/10.1177/17423953221088629","url":null,"abstract":"<p><strong>Objectives: </strong>This study aimed to explore the practice-representation links among Health Care Professionals (HCP)s practising Therapeutic Patient Education (TPE). Understanding these links might actually help to address the challenges of TPE implementation, particularly the patient-centred dimension.</p><p><strong>Methods: </strong>A qualitative study using individual interviews was conducted with HCPs practising in French-speaking Belgium or in France. Data analysis was carried out in two steps: to draw up a typology of educational practices (including variations) and, in line with the Social Representation Theory, to identify possible related social representations.</p><p><strong>Results: </strong>The typology, based on HCP-Patient power distribution, was built from 26 interviews. Four types and nine subtypes were identified. Besides the power distribution, practice (sub)types were also specific regarding communication modes, consideration for patients' representations, motivational approach, personalization, complexity of methods and learning contents, and practice reflexivity. Practices were seldom constant. Three variations were highlighted: within a subtype, between different subtypes, and between education and technical care. Both practice subtypes and variations were related to specific decisive representations.</p><p><strong>Discussion: </strong>Representations related to practices and those related to practices variations offer new perspectives for TPE implementation. There is no panacea for achieving more patient-centred approaches; tailored strategies based on practice subtypes are needed.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 2","pages":"418-433"},"PeriodicalIF":1.3,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/59/86/10.1177_17423953221088629.PMC9999270.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9766240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An individualised psychosocial intervention program for persons with MND/ALS and their families in low resource settings.","authors":"Priya Treesa Thomas, Manjusha G Warrier, S Arun, B Bhuvaneshwari, Seena Vengalil, Saraswati Nashi, Veeramani Preethish-Kumar, Kiran Polavarapu, Prakashi Rajaram, Atchayaram Nalini","doi":"10.1177/17423953221097076","DOIUrl":"10.1177/17423953221097076","url":null,"abstract":"<p><strong>Objective: </strong>To develop individualised psychosocial intervention program for people with MND and their families in India.</p><p><strong>Methods: </strong>People with MND and healthcare staff were constructively involved in co-designing the intervention program in four phases adapted from the MRC framework: 1. A detailed need assessment phase where 30 participants shared their perceptions of psychosocial needs 2. Developing the intervention module (synthesis of narrative review, identified needs); 3. Feasibility testing of the intervention program among seven participants; 4. Feedback from participants on the feasibility (acceptance, practicality adaptation). The study adopted an exploratory research design.</p><p><strong>Results: </strong>Intervention program of nine sessions, addressing psychosocial challenges through the different stages of progression of the illness and ways to handle the challenges, specific to the low resource settings, was developed and was found to be feasible. People with MND and families who participated in the feasibility study shared the perceived benefit through feedback interviews.</p><p><strong>Conclusion: </strong>MND has changing needs and challenges. Intervention programme was found to be feasible to be implemented among larger group to establish efficacy.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 2","pages":"458-471"},"PeriodicalIF":1.3,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9469408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The effects of gender and country of origin on acculturation, psychological factors, lifestyle factors, and diabetes-related physiological outcomes among Mexican Americans: The Starr County diabetes prevention initiative.","authors":"Sharon A Brown,&nbsp;Heather A Becker,&nbsp;Alexandra A García,&nbsp;Mary M Velasquez,&nbsp;Hirofumi Tanaka,&nbsp;Mary A Winter,&nbsp;William B Perkison,&nbsp;Eric L Brown,&nbsp;David Aguilar,&nbsp;Craig L Hanis","doi":"10.1177/17423953221089315","DOIUrl":"https://doi.org/10.1177/17423953221089315","url":null,"abstract":"<p><strong>Objectives: </strong>Examine acculturation and psychological, lifestyle, and physiological factors based on gender and country of origin (U.S. vs. Mexico).</p><p><strong>Methods: </strong>Baseline data from the Starr County diabetes prevention study (<i>N</i> = 300) were analyzed - acculturation (<i>language</i>), psychological factors (<i>depression</i>), lifestyle factors (<i>sedentary behaviors</i>), and diabetes-related physiological outcomes (<i>insulin resistance</i>). MANOVA and linear regression were used to examine variable relationships based on gender and country of origin and identify predictors of depression and insulin resistance.</p><p><strong>Results: </strong>Participants were: predominantly female (73%); 51 years of age, on average; born in Mexico (71%); and Spanish-speaking. Individuals spent 11 of their waking hours (range = 0-18 h) in sedentary activities. Compared to females, more males spoke English and reported fewer hours in sedentary activities. Compared to participants born in Mexico, those born in the U.S. were more likely to: speak English; report depressive symptoms; and exhibit elevated BMI and insulin resistance rates. Two distinct models significantly predicted <i>depression</i> (R² = 14.5%) and <i>insulin resistance</i> (R² = 26.8%), with acculturation-language entering into both models.</p><p><strong>Discussion: </strong>Significant gender and country-of-origin differences were found. Future research on diabetes prevention should examine other Hispanic subgroups and strategies for addressing individual differences, while employing cost-effective group interventions that incorporate these differences and reach more at-risk individuals.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 2","pages":"444-457"},"PeriodicalIF":1.3,"publicationDate":"2023-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9508285/pdf/nihms-1794227.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9747357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}