Chronic Illness最新文献_第10页

The experiences of caring for disabled older adults in long-term: A qualitative study from the perspective of spousal caregivers. 残障长者长期照护经验:配偶照护者视角之质性研究。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-03 DOI: 10.1177/17423953221148972

Lingli Yang, Wei Wei, Yanni Wu, Shunfang Zhu, Xiaoli Zeng, Run Wang, Mi Zhang, Xiaolu Lin, Chunlan Zhou

{"title":"The experiences of caring for disabled older adults in long-term: A qualitative study from the perspective of spousal caregivers.","authors":"Lingli Yang, Wei Wei, Yanni Wu, Shunfang Zhu, Xiaoli Zeng, Run Wang, Mi Zhang, Xiaolu Lin, Chunlan Zhou","doi":"10.1177/17423953221148972","DOIUrl":"10.1177/17423953221148972","url":null,"abstract":"Objective: To explore the care experiences of spouses as long-term and primary caregivers for disabled older adults in China.Methods: A descriptive phenomenological method was used in this study, as well as purposive and convenient sampling. Semi-structured interviews were conducted with 15 spousal caregivers in Guangdong, China, from March to December 2021. Interview audio-recordings were transcribed verbatim and data were analyzed using Colaizzi's phenomenological analysis method.Results: We identified four themes from the data: spousal care motivation; sacrifices in caregiving; obstacles in caregiving; spousal caregivers' positive experiences.Conclusions: Spouses took responsibility for providing care for their disabled partners regardless of their willingness. They had positive experiences while providing care, but negative experiences were dominant, especially for spouses of severely disabled older adults. Spouses are always perfect in caregiving roles, although they may also need medical assistance. To prevent a decline in spousal caregivers' quality of life and relieve their care burdens, health care providers should support them as soon as possible or offer formal care for disabled older adults. It is necessary to intervene considering disabled older adults and their spousal caregivers as a unit to empower their confidence in coping with life together.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"848-861"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10818493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mental health of hemodialysis patients in the Philippines amid COVID-19 crisis: A call for action. 2019冠状病毒病危机期间菲律宾血液透析患者的心理健康:行动呼吁

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-11 DOI: 10.1177/17423953231151231

John Jamir Benzon R Aruta

引用次数: 0

The Farsi version of meaning of life in Iranian patients with cancer: A psychometric study. 伊朗癌症患者波斯语版的生命意义:一项心理测量学研究。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-11 DOI: 10.1177/17423953221150686

Hamid Sharif Nia, Long She, Erika Sivarajan Froelicher, Sima Hejazi, Daniyal Kohestani, Sajad Hamidi

{"title":"The Farsi version of meaning of life in Iranian patients with cancer: A psychometric study.","authors":"Hamid Sharif Nia, Long She, Erika Sivarajan Froelicher, Sima Hejazi, Daniyal Kohestani, Sajad Hamidi","doi":"10.1177/17423953221150686","DOIUrl":"10.1177/17423953221150686","url":null,"abstract":"Background: Having meaning in life is a protective factor for psychological well-being. Accurate assessment of this construct needs a valid and reliable tool.Purpose: This study aims to evaluate the psychometric properties of the Farsi version of the meaning of life questionnaire in patients with cancer.Method: In this cross-sectional study, after translating the questionnaire to Farsi, in a sample of 212 patients with cancer, feasibility, content and convergent validity, exploratory and confirmatory factor analysis, internal consistency, stability, and responsiveness were evaluated.Results: The results show that the content validity ratio of all ten items was greater than 0.49. Also, the modified Kappa coefficient of each item was greater than 0.6. The maximum likelihood exploratory factor analysis extracted one factor, which explains 76.13% of the total variance of the sample. Item nine was removed. The confirmatory factor analysis results show that the one-factor model had good fit indices. The Cronbach's alpha, McDonald's omega, composite reliability, MaxR, and intraclass correlation coefficient were 0.96, 0.96, 0.96, 0.96, and 0.98, respectively. The questionnaires had responsiveness and its response time was 3 s.Conclusion and policy summary: The nine-item Farsi version of the meaning of life questionnaire has good validity and reliability and responsiveness.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"862-872"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10870357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Morbidity and utilisation of healthcare services among people with cardiometabolic disease in three diverse regions of rural India. 印度农村三个不同地区心脏代谢疾病患者的发病率和保健服务利用情况。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-02-06 DOI: 10.1177/17423953231153550

Sojib Bin Zaman, Roger G Evans, Clara K Chow, Rohina Joshi, Kavumpurathu R Thankappan, Brian Oldenburg, Ajay S Mahal, Kartik Kalyanram, Kamakshi Kartik, Michaela A Riddell, Oduru Suresh, Nihal Thomas, Gomathyamma K Mini, Pallab K Maulik, Velandai K Srikanth, Amanda G Thrift

{"title":"Morbidity and utilisation of healthcare services among people with cardiometabolic disease in three diverse regions of rural India.","authors":"Sojib Bin Zaman, Roger G Evans, Clara K Chow, Rohina Joshi, Kavumpurathu R Thankappan, Brian Oldenburg, Ajay S Mahal, Kartik Kalyanram, Kamakshi Kartik, Michaela A Riddell, Oduru Suresh, Nihal Thomas, Gomathyamma K Mini, Pallab K Maulik, Velandai K Srikanth, Amanda G Thrift","doi":"10.1177/17423953231153550","DOIUrl":"10.1177/17423953231153550","url":null,"abstract":"Objectives: To assess the prevalence and determinants of cardiometabolic disease (CMD), and the factors associated with healthcare utilisation, among people with CMD.Methods: Using a cross-sectional design, 11,657 participants were recruited from randomly selected villages in 3 regions located in Kerala and Andhra Pradesh from 2014 to 2016. Multivariable logistic regression was used to identify factors independently associated with CMD and healthcare utilisation (public or private).Results: Thirty-four per cent (n = 3629) of participants reported having ≥1 CMD, including hypertension (21.6%), diabetes (11.6%), heart disease (5.0%) or chronic kidney disease (CKD) (1.6%). The prevalence of CMD was progressively greater in regions of greater socio-economic position (SEP), ranging from 19.1% to 40.9%. Among those with CMD 41% had sought any medical advice in the last month, with only 19% utilising public health facilities. Among people with CMD, those with health insurance utilised more healthcare (age-gender adjusted odds ratio (AOR) (95% confidence interval (CI)): 1.31 (1.13, 1.51)) as did those who reported accessing private rather than public health services (1.43 (1.23, 1.66)).Discussion: The prevalence of CMD is high in these regions of rural India and is positively associated with indices of SEP. The utilisation of outpatient health services, particularly public services, among those with CMD is low.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"873-888"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655594/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10708181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Beyond dyadic communication: Network of communication in inflammatory arthritis teams. 超越二元沟通：炎症性关节炎团队的沟通网络。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2022-05-29 DOI: 10.1177/17423953221102629

Parisa Ghanouni, Kristy Inouye, Chelsey Gowan, Wendy Hartford, Annette McKinnon, Shanon McQuitty, Catherine L Backman, Linda C Li, Laura Nimmon

{"title":"Beyond dyadic communication: Network of communication in inflammatory arthritis teams.","authors":"Parisa Ghanouni, Kristy Inouye, Chelsey Gowan, Wendy Hartford, Annette McKinnon, Shanon McQuitty, Catherine L Backman, Linda C Li, Laura Nimmon","doi":"10.1177/17423953221102629","DOIUrl":"https://doi.org/10.1177/17423953221102629","url":null,"abstract":"Objective: To explore how communication is perceived and care is negotiated amongst IA healthcare teams by drawing on the perspectives of each team member.Method: This analysis drew on data from an ongoing three-year study exploring team-based IA care. We interviewed 11 participants including two men with IA and their family care providers and healthcare providers. We used a three-staged analytic process and integrated broad tenets of social network theory to understand the relational dimensions of team members experiences.Result: Analysis revealed three themes regarding communication and care: (1) seeking/sharing information, (2) striving to coordinate unified care, and (3) providing patients a voice.Discussion: This study emphasizes the importance of understanding team dynamics beyond the dyad of patient and care provider. Negotiating power and decision-making in IA care is a dynamic process involving shifting levels of responsibility amongst a care team. Communication-based strategies that extend dyadic interactions may enhance teamwork and health outcomes in chronic conditions.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"591-604"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41154021","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Post-cholecystectomy bile reflux gastritis: Prevalence, risk factors, and clinical characteristics. 胆囊切除术后胆汁反流性胃炎：患病率、危险因素和临床特征。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2022-04-25 DOI: 10.1177/17423953221097440

Amira Aa Othman, Amal Az Dwedar, Hany M ElSadek, Hesham R AbdElAziz, Abeer Af Abdelrahman

{"title":"Post-cholecystectomy bile reflux gastritis: Prevalence, risk factors, and clinical characteristics.","authors":"Amira Aa Othman, Amal Az Dwedar, Hany M ElSadek, Hesham R AbdElAziz, Abeer Af Abdelrahman","doi":"10.1177/17423953221097440","DOIUrl":"https://doi.org/10.1177/17423953221097440","url":null,"abstract":"Objective: Bile reflux gastritis is caused by the backward flow of duodenal fluid into the stomach. A retrospective cohort study was performed to estimate the prevalence and risk factors of bile reflux gastritis postcholecystectomy, and to evaluate the endoscopic and histopathologic changes in gastric mucosa.Methods: Patients with refractory upper abdominal pain right below the ribs with symptoms of bloating, burping, nausea, vomiting, and bile regurgitation during the period from January 2018 to December 2020, submitted to Zagazig University Hospitals were enrolled in this study. The studied 64 patients were divided into two groups; the control group (CG): 30 subjects who had never undergone any biliary interventions, and the post-cholecystectomy group (PCG): 34 patients who had undergone cholecystectomy.Results: The prevalence of bile reflux gastritis was (16.7%) and (61.8%) in CG and PCG, respectively. Diabetes, obesity, elevated gastric bilirubin, and elevated stomach pH were all risk factors for bile reflux gastritis in both groups (r = .28,.48,.78,.57 respectively). Age, sex, epigastric pain, heartburn, vomiting, and the existence of bile reflux gastritis, on the other hand, had no correlation.Discussion: After a cholecystectomy, bile reflux gastritis is prevalent, especially among obese and diabetic patients.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"529-538"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41137946","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Association between excessive alcohol consumption and hypertension control in hypertensive patients. 高血压患者过度饮酒与高血压控制之间的关系。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2022-05-20 DOI: 10.1177/17423953221102626

Sinwoo Hwang, Jae Woo Choi

{"title":"Association between excessive alcohol consumption and hypertension control in hypertensive patients.","authors":"Sinwoo Hwang, Jae Woo Choi","doi":"10.1177/17423953221102626","DOIUrl":"https://doi.org/10.1177/17423953221102626","url":null,"abstract":"Objectives: The purposes of this study were to investigate the association between excessive alcohol consumption and control of hypertension and the associations stratified by sex, age, and duration of hypertension among Korean adults who were diagnosed with hypertension under medication.Methods: This study was cross-sectional design with a secondary data analysis using national data from the Korea National Health and Nutrition Evaluation Survey (KNHANES) collected from 2013 to 2018, including 4278 participants who were diagnosed with hypertension under medication. A multiple logistic regression analysis was conducted to evaluate the associations between excessive alcohol consumption and hypertension control while controlling for potential confounding variables.Results: The hypertensive patients who consumed excessive alcohol were more associated with uncontrolled hypertension (OR, 1.31; 95% CI, 1.04-1.65) than those who do not consumed excessive alcohol. Specially, Excessive consumption of alcohol in men and young adults (<65 years) and short duration of hypertension (<5 years) were significantly more associated with uncontrolled hypertension compared to their counterparts.Discussion: To improve blood pressure (BP) control in hypertensive patients, healthcare plan should be focused to modifiable risk factors and the intervention for unhealthy alcohol consumption should be part of comprehensive treatment for hypertension.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"625-634"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41154020","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The impact of smoking status on anticipated stigma and experience of care among smokers and ex-smokers with chronic illness in general practice. 吸烟状况对吸烟者和患有慢性病的戒烟者在全科医学中的预期耻辱感和护理体验的影响。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2022-05-15 DOI: 10.1177/17423953221101337

Sanduni Madawala, Joanne Enticott, Elizabeth Sturgiss, Melis Selamoglu, Chris Barton

{"title":"The impact of smoking status on anticipated stigma and experience of care among smokers and ex-smokers with chronic illness in general practice.","authors":"Sanduni Madawala, Joanne Enticott, Elizabeth Sturgiss, Melis Selamoglu, Chris Barton","doi":"10.1177/17423953221101337","DOIUrl":"https://doi.org/10.1177/17423953221101337","url":null,"abstract":"Objectives: To compare self-reported levels of 'anticipated' stigma and experience of care in general practice between current and ex-smokers living with COPD, other chronic illnesses, or those with no chronic conditions.Methods: Participants completed an online survey, advertised through social media, about their experience of care from general practitioners (GPs) in the past 12 months. Respondents self-reported doctor-diagnosed chronic illnesses. Experience of care and anticipated stigma was assessed using validated questions. Multi-nominal regressions were used to determine independent effect of smoking status on anticipated stigma and other indicators of patient experience in primary care.Results: Patients with COPD (n = 161) reported significantly higher anticipated stigma scores compared to those with other chronic conditions (n = 225) and this was strongly related to delayed or avoidance in seeking help from a GP when needed. This relationship remained irrespective of current smoking status. There was no difference between groups for relational components of experience of care.Discussion: Primary care patients living with COPD reported worse experience of care across several domains and were more likely to anticipate experiencing stigma in the GP setting irrespective of their current smoking status compared to those with other chronic illnesses or no chronic illnesses.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"557-570"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41148137","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 5

The effect of patient empowerment on patient activation level: A review of individuals with cardiovascular diseases. 患者赋权对患者激活水平的影响：心血管疾病患者综述。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2023-04-16 DOI: 10.1177/17423953231170400

Barış Düzel, Meltem Saygili, Özlem Özer, Melek Zubaroğlu Yanardağ

{"title":"The effect of patient empowerment on patient activation level: A review of individuals with cardiovascular diseases.","authors":"Barış Düzel, Meltem Saygili, Özlem Özer, Melek Zubaroğlu Yanardağ","doi":"10.1177/17423953231170400","DOIUrl":"10.1177/17423953231170400","url":null,"abstract":"Objectives: The aim of this study is to examine the effect of patient empowerment on patient activation level in individuals with cardiovascular diseases.Methods: The population of the study is adult individuals receiving inpatient treatment in the Cardiology clinic of a city hospital operating in Turkey. In the study, convenience sampling method was applied, and a questionnaire was conducted from 543 patients.Results: As a result of the analyses made in the study, positive and low correlations were detected between the patient empowerment scale sub-dimensions and the patient activation level. According to regression analysis results, it was identified that the patient empowerment sub-dimensions together accounted for 6.4% of the total variance on the patient activation level, and the increase in the 'knowledge and understanding' levels of the patients statistically increased their perceptions of the patient activation level.Discussion: The results show that by providing patient empowerment in individuals with chronic diseases, their active participation can be increased in the treatment processes and consequently in the chronic disease management.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"665-674"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9665474","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Linguistic adaptation and psychometric properties of the health literacy questionnaire in serbian language among people with chronic diseases. 慢性病患者塞尔维亚语健康素养问卷的语言适应和心理测量特性。

IF 1.3 4区医学

Chronic Illness Pub Date : 2023-09-01 Epub Date: 2022-05-17 DOI: 10.1177/17423953221102630

Sladjana Arsenović, Olufemi Oyewole, Goran Trajković, Richard H Osborne, Megan Wiltshire-Fletcher, Teodora Gazibara, Darija Kisić Tepavčević, Tatjana Pekmezović, Tatjana Gazibara

{"title":"Linguistic adaptation and psychometric properties of the health literacy questionnaire in serbian language among people with chronic diseases.","authors":"Sladjana Arsenović, Olufemi Oyewole, Goran Trajković, Richard H Osborne, Megan Wiltshire-Fletcher, Teodora Gazibara, Darija Kisić Tepavčević, Tatjana Pekmezović, Tatjana Gazibara","doi":"10.1177/17423953221102630","DOIUrl":"https://doi.org/10.1177/17423953221102630","url":null,"abstract":"Objective: To translate the Health Literacy Questionnaire (HLQ) to Serbian language and examine its psychometric characteristics.Methods: This cross-sectional study was conducted among 295 people with chronic diseases from the Foča region (Republic of Srpska, Bosnia and Herzegovina). The HLQ was translated according to the translation integrity procedure. Construct validity was tested using confirmatory factor analysis (CFA) using the maximum likelihood estimator and reliability was estimated using the α and ω coefficients.Results: Minor linguistic differences in 17 items were observed between the original and the initial forward translation and were corrected. The parameters of one-factor CFA on domains 3 and 8 fitted well. The parameters of the CFA for domains 1, 2, 4, 5, 6, 7 and 9 were acceptable after modification using residuals' correlation. The α and ω coefficients for all domains were good to excellent (>0.80).Conclusion: Each domain of the HLQ in Serbian has acceptable construct validity and overall good reliability. This study adds to the growing evidence that the HLQ is a useful tool to provide in-depth multidimensional information on health literacy to improve researchers and policymakers understanding of the health literacy strengths, needs and preferences across cultures and languages.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"19 3","pages":"605-624"},"PeriodicalIF":1.3,"publicationDate":"2023-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41148501","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3