Chronic Illness最新文献_第9页

Chronic critical illness in critically ill COVID-19 patients. COVID-19 重症患者的慢性危重症。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-03-07 DOI: 10.1177/17423953231161333

Burcin Halacli, Mehmet Yildirim, Esat Kivanc Kaya, Ege Ulusoydan, Ebru Ortac Ersoy, Arzu Topeli

{"title":"Chronic critical illness in critically ill COVID-19 patients.","authors":"Burcin Halacli, Mehmet Yildirim, Esat Kivanc Kaya, Ege Ulusoydan, Ebru Ortac Ersoy, Arzu Topeli","doi":"10.1177/17423953231161333","DOIUrl":"10.1177/17423953231161333","url":null,"abstract":"Objectives: To evaluate the presence of chronic critical illness (CCI) in COVID-19 patients and compare clinical characteristics and prognosis of patients with and without CCI admitted to intensive care unit (ICU).Methods: It was a retrospective, observational study at a university hospital ICU. Patients were accepted as CCI if they had prolonged ICU stay (≥14 days) and got ≥1 score for cardiovascular sequential organ failure assessment (SOFA) score and ≥2 score in other parameters on day 14 of ICU admission which was described as persistent organ dysfunction.Results: 131 of 397 (33%) patients met CCI criteria. CCI patients were older (p = 0.003) and frailer (p < 0.001). Their Acute Physiology and Chronic Health Evaluation (APACHE) II and SOFA scores were higher, PaO2/FiO2 ratio was lower (p < 0.001). Requirement of invasive mechanical ventilation (IMV), steroid use, and septic shock on admission were higher in the CCI group (p < 0.001). CCI patients had higher ICU and hospital mortality than other patients (54.2% vs. 19.9% and 55.7% vs. 22.6%, p < 0.001, respectively). Regression analysis revealed that IMV (OR: 8.40, [5.10-13.83], p < 0.001) and PaO2/FiO2 < 150 on admission (OR: 2.25, [1.36-3.71], p = 0.002) were independent predictors for CCI.Discussion: One-third of the COVID-19 patients admitted to the ICU were considered as CCI with significantly higher ICU and hospital mortality.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"86-95"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9996170/pdf/10.1177_17423953231161333.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9080868","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The predictive role of intimate partner violence in treatment adherence among women with chronic illness: A cross-sectional study. 亲密伴侣暴力对慢性病妇女坚持治疗的预测作用：一项横断面研究。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-27 DOI: 10.1177/17423953231158731

Razieh Bagherzadeh, Azemat Sayad Nik, Tayebeh Gharibi, Hakimeh Vahedparast

{"title":"The predictive role of intimate partner violence in treatment adherence among women with chronic illness: A cross-sectional study.","authors":"Razieh Bagherzadeh, Azemat Sayad Nik, Tayebeh Gharibi, Hakimeh Vahedparast","doi":"10.1177/17423953231158731","DOIUrl":"10.1177/17423953231158731","url":null,"abstract":"Objective: This study was an attempt to shed light on the predictive role of intimate partner violence in adhering to treatment regimens in women with chronic illnesses.Method: In a descriptive-analytical study, 400women with chronic illnesses in Bushehr were selected through convenience sampling. The data were collected by distributing a demographic information form and two questionnaires, including the intimate partner violence (IPV) questionnaire and the treatment adherence scale.Results: According to the results, the 40 to 59 years age group (P = 0.046, β = 0.104), the 60 to 79 years age group (P = 0.019, β = 0.122), and the group receiving education about chronic illness (P = 0.031, β = 0.106) showed a direct relationship with treatment adherence, while IPV (P < 0.001, β = 0.284) had a significant inverse relationship with treatment adherence.Conclusion: The results of the study showed that predictors of treatment adherence are IPV in women aged 40 and older with chronic illnesses, and receiving education about chronic illnesses. It is necessary for healthcare providers to consider barriers such as intimate partner violence when providing education in order to increase treatment adherence. To avoid nonadherence, managers and health planners should implement policies to increase the level of awareness of healthcare staff on how to manage care of women with chronic illnesses who are abused by an intimate partner and refer them to counselors and family helpers.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"76-85"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10837958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"My body is a cage": A qualitative investigation into the self-discrepancy experiences of young women with metastatic cancer. "我的身体是个牢笼"：对患有转移性癌症的年轻女性自我怀疑经历的定性调查。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-04-10 DOI: 10.1177/17423953231168014

Ozlem Kahraman-Erkus, Yagmur Ar-Karci, Tülin Gençöz

{"title":"\"My body is a cage\": A qualitative investigation into the self-discrepancy experiences of young women with metastatic cancer.","authors":"Ozlem Kahraman-Erkus, Yagmur Ar-Karci, Tülin Gençöz","doi":"10.1177/17423953231168014","DOIUrl":"10.1177/17423953231168014","url":null,"abstract":"Objectives: The current study investigated self-discrepancy experiences of young women with metastatic cancer.Methods: Semistructured interviews were conducted. Data were analyzed through interpretative phenomenological analysis.Findings: Eight female patients with metastatic cancer aged between 27 and 38 years formed the sample. Three superordinate themes emerged: (1) compulsory changes in self-concept with ambivalent evaluations; (2) new ideals not on the agenda of a healthy young woman; and (3) so-called 'minimalist' expectations from others.Discussion: Findings indicated that diagnosis and treatment of metastatic cancer impose unique developmental challenges for young adult women. Advanced cancer disrupted the tasks and responsibilities of young adulthood, resulting in frustration, grief, isolation, and overcompensation. These findings suggest that a developmental perspective is crucial when working with self-discrepancy experiences of young women with metastatic cancer.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"117-134"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10865759/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9639845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Health discussion network characteristics among a sample of people with inflammatory bowel disease. 炎症性肠病患者样本的健康讨论网络特征。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-03-22 DOI: 10.1177/17423953231164794

Jacob A Rohde, Adam J Saffer, Xinyan Zhao

{"title":"Health discussion network characteristics among a sample of people with inflammatory bowel disease.","authors":"Jacob A Rohde, Adam J Saffer, Xinyan Zhao","doi":"10.1177/17423953231164794","DOIUrl":"10.1177/17423953231164794","url":null,"abstract":"Objectives: This study examined the health discussion networks (HDNs) of people with inflammatory bowel disease (IBD). We sought to test if HDN characteristics were associated with IBD management self-efficacy outcomes.Methods: We recruited a sample of adults with IBD (N = 112) in December 2020 to take an online survey. Participants listed up to five people (alters) who they discussed their health with, and we used those data to construct individual HDNs. Participants provided demographic information about alters, and characterized alter by relationship, closeness, and support provided. We used multivariable regression to examine associations of HDN characteristics with IBD symptoms, remission, and emotions management self-efficacy outcomes.Results: Participants reported data for 412 alters (mean HDN size: 3.68). Alters were mostly friends (40%) or family members (36%); few were healthcare workers (6%). In multivariable analyses, HDN size was associated with remission and emotions management self-efficacy (ps < .05), and the amount of support offered by alters was associated with emotions management self-efficacy (p < .05).Discussion: HDN size and alter support variables were associated with some IBD management self-efficacy outcomes among our study sample. These findings provide empirical evidence about HDNs among people with IBD and support the notion that disease management is a collective effort.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"105-116"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9513938","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Management of psychiatric treatments of patients diagnosed with bipolar disorder in the COVID-19 pandemic: A one-year evaluation in the pandemic. 在 COVID-19 大流行中被诊断为躁狂症患者的精神治疗管理：大流行中的一年评估。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-12 DOI: 10.1177/17423953231156783

Hasan Kaya, Aybeniz Civan Kahve, Yagmur Darben Azarsız, Nagihan Ayaz Naycı, Turceun İleri Akdoğan, Erol Goka

{"title":"Management of psychiatric treatments of patients diagnosed with bipolar disorder in the COVID-19 pandemic: A one-year evaluation in the pandemic.","authors":"Hasan Kaya, Aybeniz Civan Kahve, Yagmur Darben Azarsız, Nagihan Ayaz Naycı, Turceun İleri Akdoğan, Erol Goka","doi":"10.1177/17423953231156783","DOIUrl":"10.1177/17423953231156783","url":null,"abstract":"Objective: The course of bipolar disorder (BD) is sensitive to factors that may disrupt biological and social rhythms. It is important for patients diagnosed with BD to continue their follow-up and treatment during the pandemic due to personal and social effects. This study aimed to evaluate the disease course and treatment compliance of individuals diagnosed with BD during the pandemic.Methods: A total of 267 patients with BD were included in the study. The scales were applied by phone calls. A sociodemographic data form was filled out during the phone interviews. Diagnostic criteria for hypomanic, manic, and depressive episodes in DSM-5 were questioned and recorded through the created form.Results: During the first of the pandemic, a total of 72 (27.0%) patients had a mood episode, of which 56 (21.0%) were manic/hypomanic episodes and 16 (6.0%) depressive episodes. Also, 54.7% of the patients were able to obtain their medications thanks to the extended medication reports. Being unable to use their medications regularly, having a seasonal pattern of disease, and using an increased number of psychotropics were significant predictors of a new episode. While 74.5% of the patients wanted to talk to their psychiatrists online, only 1.1% could reach the psychiatrist online.Discussion: The effects of the COVID-19 pandemic are particularly evident in patients with a seasonal pattern. Telepsychiatry practices should be actively included in clinical practice, and government policies developed for treatment compliance seem important.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"49-63"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9925865/pdf/10.1177_17423953231156783.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10705024","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Acceptability of a peer-led self-management program for people living with chronic obstructive pulmonary disease in regional Southern Tasmania in Australia: A qualitative study. 澳大利亚南塔斯马尼亚地区慢性阻塞性肺病患者对同伴引导的自我管理计划的接受程度：定性研究。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-03-09 DOI: 10.1177/17423953231163450

Innocent Tawanda Mudzingwa, Jennifer E Ayton

{"title":"Acceptability of a peer-led self-management program for people living with chronic obstructive pulmonary disease in regional Southern Tasmania in Australia: A qualitative study.","authors":"Innocent Tawanda Mudzingwa, Jennifer E Ayton","doi":"10.1177/17423953231163450","DOIUrl":"10.1177/17423953231163450","url":null,"abstract":"Objectives: People living with chronic obstructive pulmonary disease (COPD) in regional communities experience a higher disease burden and have poorer access to support services. This study sought to investigate the acceptability of a peer-led self-management program (SMP) in regional Tasmania, Australia.Methods: This descriptive qualitative study, underpinned by interpretivism used semi-structured one-to-one interviews to gather data to explore COPD patients' views of peer-led SMPs. Purposeful sampling recruited a sample of 8 women and 2 men. Data was analysed using a thematic approach.Results: The three final themes, 'Normality and Living with the disease', a 'Platform for sharing' and 'Communication mismatch' suggest that peer-led SMPs could offer an opportunity to share experiences. The themes also suggest that COPD often manifested as a deviation from 'normal life'. Communication was often felt to be ambiguous leading to tension between the health experts and people living with the condition.Discussion: Peer-led SMP has the potential to provide the much-needed support for people living with COPD in regional communities. This will ensure that they are empowered to live with the condition with dignity and respect. Benefits of exchanging ideas and socialisation should not be ignored and may enhance sustainability of SMPs.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"96-104"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10865749/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9090497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Assessing knowledge of end-stage kidney disease and treatment options in hospitalized African American patients undergoing hemodialysis. 评估接受血液透析的住院非裔美国人对终末期肾病和治疗方案的了解程度。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-04-27 DOI: 10.1177/17423953231168803

Akilah King, Jacob Tanumihardjo, Daniel Ahn, Lindsay Zasadzinski, Eric Robinson, Michael Quinn, Monica Peek, Milda Saunders

{"title":"Assessing knowledge of end-stage kidney disease and treatment options in hospitalized African American patients undergoing hemodialysis.","authors":"Akilah King, Jacob Tanumihardjo, Daniel Ahn, Lindsay Zasadzinski, Eric Robinson, Michael Quinn, Monica Peek, Milda Saunders","doi":"10.1177/17423953231168803","DOIUrl":"10.1177/17423953231168803","url":null,"abstract":"Objective: African Americans are more likely to develop end-stage kidney disease (ESKD) than whites and face multiple inequities regarding ESKD treatment, renal replacement therapy (RRT), and overall care. This study focused on determining gaps in participants' knowledge of their chronic kidney disease and barriers to RRT selection in an effort to identify how we can improve health care interventions and health outcomes among this population.Methods: African American participants undergoing hemodialysis were recruited from an ongoing research study of hospitalized patients at an urban Midwest academic medical center. Thirty-three patients were interviewed, and the transcribed interviews were entered into a software program. The qualitative data were coded using template analysis to analyze text and determine key themes. Medical records were used to obtain demographic and additional medical information.Results: Three major themes emerged from the analysis: patients have limited information on ESKD causes and treatments, patients did not feel they played an active role in selecting their initial dialysis unit, and interpersonal interactions with the dialysis staff play a large role in overall unit satisfaction.Discussion: Although more research is needed, this study provides information and suggestions to improve future interventions and care quality, specifically for this population.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"145-158"},"PeriodicalIF":1.8,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12476901/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9414288","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Knowledge of arteriovenous fistula care in patients with end-stage kidney disease in south Asian countries: A systematic review and meta-analysis. 南亚国家终末期肾病患者动静脉瘘护理知识：系统回顾和荟萃分析。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-04-04 DOI: 10.1177/17423953231167378

Veena Natti Krishna, Bhaskar Tiwary, Megha Nagaraj Nayak, Nikita Patel, Priyaj Gandhi, Piyusha Majumdar

{"title":"Knowledge of arteriovenous fistula care in patients with end-stage kidney disease in south Asian countries: A systematic review and meta-analysis.","authors":"Veena Natti Krishna, Bhaskar Tiwary, Megha Nagaraj Nayak, Nikita Patel, Priyaj Gandhi, Piyusha Majumdar","doi":"10.1177/17423953231167378","DOIUrl":"10.1177/17423953231167378","url":null,"abstract":"Objectives: To find the prevalence of knowledge of arteriovenous fistula (AVF) self-care, its characteristics, and associated factors among hemodialysis patients and summarize the findings of various domains of AVF self-care in south Asian countries.Methods: The systematic literature search was performed on online databases and additional sources to retrieve published articles on AVF self-care. We estimated the pooled prevalence using a random effects model in meta-analysis. Additionally, thematic knowledge regarding various aspects of AVF self-care was narratively summarized.Results: Among the articles retrieved seven studies met our inclusion and exclusion criteria. The prevalence of AVF self-care in individual studies ranged from 59% to 99%, with an overall random pooled prevalence of 81% (95% CI, 68% to 94%). Major factors associated with self-care of AVF knowledge included patients' educational status, age, vintage of hemodialysis, and healthcare personnel's advice.Discussion: Knowledge scarcity regarding potential measures of AVF self-care obligates the need for continuous education in hemodialysis patients. A multidisciplinary approach is vital to enhance self-care from pre- to post-creation of AVF in hemodialysis patients as well as their caregivers in order to prolong the patency rates and decrease the subsequent morbidity and mortality due to failure of AVF.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"23-36"},"PeriodicalIF":1.8,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9281856","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Patient attitudes, experiences, and satisfaction with healthcare and office visit utilization among Medicare beneficiaries with type 2 diabetes. 2 型糖尿病医疗保险受益人对医疗保健和门诊使用的态度、体验和满意度。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-20 DOI: 10.1177/17423953231158139

Qing He, Georgianne Tiu Hawkins, Chanhyun Park, Sola Han, Jacqueline B LaManna, Boon Peng Ng

{"title":"Patient attitudes, experiences, and satisfaction with healthcare and office visit utilization among Medicare beneficiaries with type 2 diabetes.","authors":"Qing He, Georgianne Tiu Hawkins, Chanhyun Park, Sola Han, Jacqueline B LaManna, Boon Peng Ng","doi":"10.1177/17423953231158139","DOIUrl":"10.1177/17423953231158139","url":null,"abstract":"Objectives: To examine patient attitudes, experiences, and satisfaction with healthcare associated with office visit utilization among Medicare beneficiaries with type 2 diabetes.Methods: We analyzed the 2019 Medicare Current Beneficiary Survey Public Use File of beneficiaries aged ≥65 years with type 2 diabetes (n = 1092). The ordinal dependent variable was defined as 0, 1 to 5, and ≥6 office visits. An ordinal partial proportional odds model was conducted to examine associations of beneficiaries' attitudes, experiences, and satisfaction with healthcare and office visit utilization.Results: Among the beneficiaries, approximately 17.7%, 22.8%, and 59.5% reported having 0, 1 to 5, and ≥6 office visits, respectively. Being male (OR = 0.67, p = 0.004), Hispanic (OR = 0.53, p = 0.006), divorced/separated (OR = 0.62, p = 0.038) and living in a non-metro area (OR = 0.53, p < 0.001) were associated with a lower likelihood of attending more office visits. Trying to keep sickness to themselves (OR = 0.66, p = 0.002) and dissatisfaction with the ease and convenience of getting to providers from home (OR = 0.45, p = 0.010) were associated with a lower likelihood of having more office visits.Discussion: The proportion of beneficiaries foregoing office visits is concerning. Attitudes concerning healthcare and transportation challenges can be barriers to office visits. Efforts to ensure timely and appropriate access to care should be prioritized for Medicare beneficiaries with diabetes.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"64-75"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9300729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Trying to be like everybody else: A qualitative study revealing the importance of social contexts and illness representations among adolescents with type 1 diabetes and their parents. 尝试与其他人一样：一项定性研究揭示了 1 型糖尿病青少年及其父母的社会环境和疾病表征的重要性。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-09 DOI: 10.1177/17423953231155287

Sana Hussein, Louise Norman Jespersen, Marianne Vie Ingersgaard, Pernille Skovby, Dan Grabowski

{"title":"Trying to be like everybody else: A qualitative study revealing the importance of social contexts and illness representations among adolescents with type 1 diabetes and their parents.","authors":"Sana Hussein, Louise Norman Jespersen, Marianne Vie Ingersgaard, Pernille Skovby, Dan Grabowski","doi":"10.1177/17423953231155287","DOIUrl":"10.1177/17423953231155287","url":null,"abstract":"Objective: Type 1 diabetes is one of the most common chronic conditions in young children and adolescents. During the period of adolescence, young people with diabetes often struggle with self-management and have compromised health-related quality of life. This often leads to familial conflicts affecting all family members negatively. The aim of this study is to provide qualitative insight into the everyday life of families with adolescents with type 1 diabetes.Methods: The data consisted of participatory family workshops conducted using interactive dialogue tools. The total number of participants was 33 (adolescents n = 13, parents n = 20). The adolescents were between 15 and 17 years. The data were analyzed using systematic text condensation.Results: The results showed two main themes. The first theme, Diabetes-friendly and unfriendly social contexts, highlighted how the (dis)comfortability of disclosing diabetes was a significant factor in achieving optimal metabolic control. For parents, it affected their perception of social support. The second theme, incongruent illness representations among family members, dealt with the extended family conflict during the period of adolescence.Discussion: Insights from our study could help healthcare professionals apply a family-centered approach minimizing family conflict and supporting metabolic control when consulting families with adolescents with type 1 diabetes.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"37-48"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10675489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0