Chronic Illness最新文献_第8页

A qualitative study with Italian patients exploring the spiritual dimension during a chronic disease. 一项针对意大利病人的定性研究，探索慢性病患者的精神层面。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-29 DOI: 10.1177/17423953231178236

Silvia Tanzi, Giovanna Artioli, Ludovica De Panfilis, Luca Ghirotto, Elisa Rabitti, Simona Sacchi

{"title":"A qualitative study with Italian patients exploring the spiritual dimension during a chronic disease.","authors":"Silvia Tanzi, Giovanna Artioli, Ludovica De Panfilis, Luca Ghirotto, Elisa Rabitti, Simona Sacchi","doi":"10.1177/17423953231178236","DOIUrl":"10.1177/17423953231178236","url":null,"abstract":"Background: Spirituality is a vast dimension influenced by cultural and personal differences. Little is known about the spirituality of patients suffering from a chronic disease in Italy from palliative care hospital settings.Aim: To investigate patients' perspectives about their spirituality during their illness.Method: The research question was: 'How does living with chronic disease inform/shape the spiritual dimension of patients?'. To address it, we conducted a qualitative interview study with thematic analysis.Results: We enrolled 21 participants among patients suffering from rheumatic, haematologic, neurodegenerative and respiratory chronic diseases. Participants generally had great difficulty answering the questions researchers posed and often could not define 'spirituality'. We found different topics grouped under four main themes: definition of spirituality, internal dialogue, expression of spirituality in everyday life and take stock. Religion is not reported as an answer to spiritual suffering, even in a country that is felt religious-driven like Italy.Discussion: Patients are generally not cognizant of this dimension even living with a chronic disease; consequently, they cannot express spiritual needs because they can't recognise them. Health professionals should identify this dimension and its characteristics to recognise potential spiritual suffering.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"335-348"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9593810","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Self-management for sickle cell disease among patients and parents: A qualitative study. 镰状细胞病患者和家长的自我管理：定性研究。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-07 DOI: 10.1177/17423953231172797

Andrews Adjei Druye, Katherine Nelson, Brian Robinson

{"title":"Self-management for sickle cell disease among patients and parents: A qualitative study.","authors":"Andrews Adjei Druye, Katherine Nelson, Brian Robinson","doi":"10.1177/17423953231172797","DOIUrl":"10.1177/17423953231172797","url":null,"abstract":"Objective: This study aimed to explore self-management practices among patients and parents of children with sickle cell disease (SCD).Methods: The qualitative descriptive design was employed. The study involved 19 participants comprising adult SCD patients ≥16 years, and nine parents of SCD children ≤ 15 years. Purposive sampling was conducted to select participants from a teaching hospital and SCD association. Data was collected using one-on-one interviews, transcribed verbatim, and analysed using qualitative content analysis.Results: Self-management was reported through four categories including preventive health, self-monitoring, self-diagnosis, and self-treatment. Hydration, nutrition, activity limitation, avoidance of cold temperatures, and supportive medications were the most common preventive health actions. Regarding self-monitoring and self-diagnosis, the parents emphasized objective indicators such as changes in urine and eye colour compared to the adults who utilize subjective indicators such as feeling unwell and easy fatigue. Pharmacological and non-pharmacological measures were reported by both groups for treating painful episodes, fever, leg ulcers, priapism, and unspecified symptoms.Discussion: The participants in this study practice several self-management actions with some differences in application between adults and children. Tailored self-management services may be helpful for adults and children when developing services for SCD patients.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"233-245"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9418174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Resilience-enhancing interventions for family caregivers: A systematic review. 增强家庭照顾者复原力的干预措施：系统综述。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-31 DOI: 10.1177/17423953231174928

Nai-Ching Chi, Soojeong Han, Shih-Yin Lin, Ying-Kai Fu, Zilin Zhu, Lynn Nakad, George Demiris

{"title":"Resilience-enhancing interventions for family caregivers: A systematic review.","authors":"Nai-Ching Chi, Soojeong Han, Shih-Yin Lin, Ying-Kai Fu, Zilin Zhu, Lynn Nakad, George Demiris","doi":"10.1177/17423953231174928","DOIUrl":"10.1177/17423953231174928","url":null,"abstract":"Objectives: To synthesize interventions designed to enhance resilience in family caregivers (FCs).Methods: Electronic databases including PubMed, CINAHL, PsycINFO, and Scopus, were searched using index and keyword methods for articles published before January 2020. The review process followed the PRISMA review guidelines. Study quality was assessed using the Mixed Methods Appraisal Tool (MMAT).Results: Six studies (seven articles) were included in this review. Quantitative evidence supports the benefits of psychoeducation, mindfulness-based intervention, and cognitive behavioral therapy (CBT)-based intervention but not expressive writing in improving in FCs' resilience. Four of the six included studies were randomized controlled trials. All included studies only met 40% to 60% of the MMAT criteria, indicating low to moderate levels of study quality.Conclusion: This review showed emerging evidence that psychoeducation, mindfulness-based intervention, and CBT-based intervention may improve caregiver resilience. However, it remains unclear which intervention and what dosage is the most effective in promoting FCs' resilience. Due to the small number of relevant studies and a low-to-moderate level of overall study quality, more rigorous clinical trials are needed to strengthen the current limited evidence base for FC resilience interventions.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"199-220"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9545745","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Improving depression management with support from close others: A thematic analysis of individuals with depression and their partners in care. 在亲密他人的支持下改善抑郁症管理：对抑郁症患者及其护理伙伴的主题分析。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-10-30 DOI: 10.1177/17423953231175690

Sarah J Javier, Rashmi Risbud, Fernanda S Rossi, Cindie Slightam, James Aikens, Tim Guetterman, John D Piette, Ranak Trivedi

{"title":"Improving depression management with support from close others: A thematic analysis of individuals with depression and their partners in care.","authors":"Sarah J Javier, Rashmi Risbud, Fernanda S Rossi, Cindie Slightam, James Aikens, Tim Guetterman, John D Piette, Ranak Trivedi","doi":"10.1177/17423953231175690","DOIUrl":"10.1177/17423953231175690","url":null,"abstract":"Objectives: With support from others, individuals with depression can build skills and implement lifestyle changes that help them manage their illness. The objective of the current study was to understand how the CarePartners for Depression Program, a randomized clinical trial aimed at enhancing the role of caregivers in the management of depression, improved communication and shared understandings of depression among individuals with depression and their close others.Methods: We conducted in-depth, semi-structured interviews with individuals with depression and their caregivers who participated in the CarePartners program. Interviews were qualitatively coded using a thematic analytic framework.Results: We conducted individual interviews with 39 participants in the CarePartners program, including 18 individuals with depression, 14 out-of-home care partners, and 7 informal caregivers. Three central themes were derived from analyses: (a) The quality of interpersonal relationships influenced the management of depression; (2) having clearly defined roles for CarePartners improved communication between CarePartners and individuals with depression; and (3) shared understanding of depression improved management of depression.Discussion: Our findings established the conditions under which the management of depression was influenced in a dyadic intervention. Dyadic interventions may make it easier for individuals to support patients with depression by fostering communication and collaboration.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"283-295"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12120974/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71414841","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Filling the gap in service provision. Partners as family carers to people with Parkinson's disease: A Scandinavian perspective. 填补服务空白。作为帕金森病患者家庭照顾者的合作伙伴：斯堪的纳维亚视角。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-09 DOI: 10.1177/17423953231174470

Ellen Gabrielsen Hjelle, Helle Rønn-Smidt, Anita Haahr, Silje Bjørnsen Haavaag, Dorthe Sørensen, Maria Victoria Navarta-Sánchez, Mari Carmen Portillo, Line Kildal Bragstad

{"title":"Filling the gap in service provision. Partners as family carers to people with Parkinson's disease: A Scandinavian perspective.","authors":"Ellen Gabrielsen Hjelle, Helle Rønn-Smidt, Anita Haahr, Silje Bjørnsen Haavaag, Dorthe Sørensen, Maria Victoria Navarta-Sánchez, Mari Carmen Portillo, Line Kildal Bragstad","doi":"10.1177/17423953231174470","DOIUrl":"10.1177/17423953231174470","url":null,"abstract":"Objectives: The purpose of this study was to explore the expectations of and experiences with the public healthcare system of domestic partners of people with Parkinson`s disease (PD) in Denmark and Norway.Methods: A qualitative exploratory design was applied. The sample consisted of 14 people from Denmark (n = 9) and Norway (n = 5) living with a partner with PD. Semi-structured individual interviews were conducted between June and September 2020, digitally recorded, transcribed verbatim and analysed using a reflexive thematic analysis approach combining inductive and deductive approaches.Results: The main themes were 'negotiating systems of support' and 'balancing being both a partner and a family carer'. Partners take responsibility for the people with whom they live and attempt to fill gaps in the public healthcare system. The most frequently described needs were more information, service coordination as the illness progressed and acknowledgement of the complex role.Discussion: A recommendation for practice is recognition of the complex roles of partners to people with PD and reaching out to both regularly to determine needs. This may enhance the collaboration between partner carers, people with PD and healthcare providers, ensure sustainability of the system and optimise living with PD in the family.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"258-270"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9844995","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Perceptions of mindfulness practices as a support for individuals managing caregiving responsibilities and chronic disease: A qualitative study. 将正念练习视为对承担照顾责任和慢性病患者的支持：一项定性研究。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-04-19 DOI: 10.1177/17423953231170401

Nathan T West, Brook E Harmon, Kristen E Rawlett, Sarah J Short, Adam J Spanier, Shifali Mathews, Katrina Kimble, Chad McGehee, Macy L Ratliff, Robin C Puett

{"title":"Perceptions of mindfulness practices as a support for individuals managing caregiving responsibilities and chronic disease: A qualitative study.","authors":"Nathan T West, Brook E Harmon, Kristen E Rawlett, Sarah J Short, Adam J Spanier, Shifali Mathews, Katrina Kimble, Chad McGehee, Macy L Ratliff, Robin C Puett","doi":"10.1177/17423953231170401","DOIUrl":"10.1177/17423953231170401","url":null,"abstract":"Objectives: Explore the lived experience of individuals managing and/or caregiving for someone with a chronic disease and their perceptions of developing a mindfulness program for stress reduction.Methods: Sixteen participants with chronic disease and/or caregivers participated. Participants completed eligibility screening, demographic questionnaires, and semi-structured interviews (30-60 min each) online or by phone. Interviews (n = 16) were audio recorded, transcribed, and analyzed using thematic analysis and NVivo® 12. Survey data were analyzed using SPSS® 28.Results: Four themes emerged: (a) Chronic disease management and stress-perspectives on life's stressors; (b) Stress reduction techniques/perceptions of mindfulness-knowledge and implementation of stress reduction practices and familiarity with mindfulness; (c) Mindfulness program acceptability, barriers, and facilitators-interest, barriers, and facilitators to attending; (d) Mindfulness program structure-logistics to increase access and appeal to diverse audiences.Discussion: Mindfulness has the potential for addressing the complexities of stress associated with disease management. Targeting mindfulness programs for populations with chronic disease management and caregiving responsibilities should include: Consideration of group formats with participation limited to this population, structuring programs to overcome barriers (i.e., culturally appropriate location), and equipping members of the community being served as instructors to ensure culturally relevant instruction.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"159-172"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9440760","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Treatment of last resort? Psychological therapy seeking in chronic pain patients. 最后的治疗？慢性疼痛患者寻求心理治疗

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-05-04 DOI: 10.1177/17423953231172796

Dominika Farley, Joanna Kłosowska, Justyna Brączyk, Ewa Buglewicz, Przemysław Bąbel

{"title":"Treatment of last resort? Psychological therapy seeking in chronic pain patients.","authors":"Dominika Farley, Joanna Kłosowska, Justyna Brączyk, Ewa Buglewicz, Przemysław Bąbel","doi":"10.1177/17423953231172796","DOIUrl":"10.1177/17423953231172796","url":null,"abstract":"Objective: Our goal was to assess how many chronic pain patients seek psychological treatment for their condition and what psychological and demographic characteristics are associated with that decision.Methods: The association between pain intensity, quality of life and psychological treatment seeking was tested in two hypothetical models which differed according to beliefs about either external or internal control over pain.Results: A minority of patients had experience with psychological treatment of chronic pain. Patients who had that experience were younger, suffered from more intense pain, and applied many more coping strategies than patients who never tried this kind of treatment. Intense pain and low quality of life motivated chronic pain patients to seek psychological treatment only if they believed that doctors could control their pain.Discussion: The study results stress the importance of diversifying the methods used to treat chronic pain and educating patients about the benefits of psychological treatment. Low numbers of chronic pain patients who take advantage of psychological treatment indicate that encouragement from medical professionals might be necessary.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"184-196"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9780318","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

People with diabetes who read their clinicians' visit notes: Behaviors and attitudes. 阅读临床医生出诊记录的糖尿病患者：行为和态度。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-05-07 DOI: 10.1177/17423953231171890

Zhiyong Dong, Suzanne Leveille, Dana Lewis, Jan Walker

{"title":"People with diabetes who read their clinicians' visit notes: Behaviors and attitudes.","authors":"Zhiyong Dong, Suzanne Leveille, Dana Lewis, Jan Walker","doi":"10.1177/17423953231171890","DOIUrl":"10.1177/17423953231171890","url":null,"abstract":"Objectives: To understand behaviors and attitudes of adults with diabetes who read their clinicians' visit notes.Methods: By linking a large 2017 patient survey involving three institutions with administrative and portal use data, we identified patients with diabetes mellitus from outpatient records and examined reading behaviors related to eligible notes-initial, follow-up, history and physical, and progress notes. We analyzed patients' perceived benefits of reading notes.Results: 2104 respondents had diagnoses of diabetes mellitus and had read ≥1 note in the 12-month period. Patients had an average of 8.7 eligible notes available and read 59% of them. The strongest predictor of reading more notes was having more notes available; the specialties of the authoring clinicians were not correlated with note reading rates. Patients reported understanding notes by primary care clinicians and specialists equally well; more than 90% of patients reported understanding everything or almost everything in a self-selected note. Across visit types, 73-80% of patients reported that note reading was extremely important for taking care of their health.Discussion: People with diabetes want to read their clinicians' notes, are accessing them at high rates, and report understanding the notes and benefiting from reading them.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"173-183"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9793738","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Contextual factors for the successful implementation of self-management interventions for chronic diseases: A qualitative review of reviews. 成功实施慢性病自我管理干预的背景因素：定性综述。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-06 DOI: 10.1177/17423953231153337

Janneke Noordman, Maaike Meurs, Rune Poortvliet, Tamara Rusman, Carola Orrego-Villagran, Marta Ballester, Lyudmil Ninov, Ena Niño de Guzmán, Pablo Alonso-Coello, Oliver Groene, Rosa Suñol, Monique Heijmans, Cordula Wagner

{"title":"Contextual factors for the successful implementation of self-management interventions for chronic diseases: A qualitative review of reviews.","authors":"Janneke Noordman, Maaike Meurs, Rune Poortvliet, Tamara Rusman, Carola Orrego-Villagran, Marta Ballester, Lyudmil Ninov, Ena Niño de Guzmán, Pablo Alonso-Coello, Oliver Groene, Rosa Suñol, Monique Heijmans, Cordula Wagner","doi":"10.1177/17423953231153337","DOIUrl":"10.1177/17423953231153337","url":null,"abstract":"Objectives: To identify and describe the most relevant contextual factors (CFs) from the literature that influence the successful implementation of self-management interventions (SMIs) for patients living with type 2 diabetes mellitus, obesity, COPD and/or heart failure.Methods: We conducted a qualitative review of reviews. Four databases were searched, 929 reviews were identified, 460 screened and 61 reviews met the inclusion criteria. CFs in this paper are categorized according to the Tailored Implementation for Chronic Diseases framework.Results: A great variety of CFs was identified on several levels, across all four chronic diseases. Most CFs were on the level of the patient, the professional and the interaction level, while less CFs were obtained on the level of the intervention, organization, setting and national level. No differences in main themes of CFs across all four diseases were found.Discussion: For the successful implementation of SMIs, it is crucial to take CFs on several levels into account simultaneously. Person-centered care, by tailoring SMIs to patients' needs and circumstances, may increase the successful uptake, application and implementation of SMIs in real-life practice. The next step will be to identify the most important CFs according to various stakeholders through a group consensus process.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"3-22"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10653241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

How family physicians introduce palliative care to patients with chronic illnesses. 家庭医生如何向慢性病患者介绍姑息关怀。

IF 1.3 4区医学

Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-04-04 DOI: 10.1177/17423953231168298

Vanessa Slobogian, Chandra Vig, Lisa Shirt, Chelsey Shuman, Margot Sondermann, Monique Vanderveen, Shelley Raffin Bouchal

{"title":"How family physicians introduce palliative care to patients with chronic illnesses.","authors":"Vanessa Slobogian, Chandra Vig, Lisa Shirt, Chelsey Shuman, Margot Sondermann, Monique Vanderveen, Shelley Raffin Bouchal","doi":"10.1177/17423953231168298","DOIUrl":"10.1177/17423953231168298","url":null,"abstract":"Objective: Increasing numbers of Canadians living with complex, life-limiting conditions demand high-quality palliative care. Timely access to palliative care can help to reduce stress, improve quality of life, and provide relief for patients and their families. The purpose of this study is to explore the experiences of family physicians (FPs) regarding the decision and process of introducing palliative care to patients with chronic diseases.Methods: Interpretive description methodology was used to guide the investigation of the research question. Thirteen Calgary Zone FPs participated in individual interviews. Data was collected iteratively and analyzed using constant comparative analysis.Results: Analysis of interviews identified the overarching themes of dignity and empowerment, which describe the experience of FPs introducing palliative care to chronically ill patients. Four subthemes were woven throughout, including the art of conversation, therapeutic relationships, timing, and preparation of the patient and family.Discussion: While the benefits of palliative conversations are widely accepted, a deeper understanding of how FPs can be supported in developing this aspect of their practice is needed. Understanding their experience provides knowledge that can serve as a framework for future education, mentorship, and competency development.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"135-144"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9247707","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0