Chronic Illness最新文献_第7页

Patient and caregiver satisfaction of a palliative care chronic diseases clinic during COVID lockdowns. 在 COVID 封锁期间，病人和护理人员对姑息关怀慢性病诊所的满意度。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-09-01 Epub Date: 2024-03-20 DOI: 10.1177/17423953241241757

Xiang Rong Sim, Jade Hudson, Catriona Parker, Fiona Runacres, Peter Poon

{"title":"Patient and caregiver satisfaction of a palliative care chronic diseases clinic during COVID lockdowns.","authors":"Xiang Rong Sim, Jade Hudson, Catriona Parker, Fiona Runacres, Peter Poon","doi":"10.1177/17423953241241757","DOIUrl":"10.1177/17423953241241757","url":null,"abstract":"Objectives: To assess the quality assurance of a specialist palliative care clinic focused on chronic diseases and explore the satisfaction and acceptability of the telemedicine model amongst patients and caregivers.Methods: A cross-sectional 23-item survey was developed by the clinical team, approved by ethics and distributed to patients and caregivers. Data collection ran between September 2021 and February 2022, and SPSS was used for data analysis. Demographics were collected from hospital records.Results: Thirty-five surveys were returned. The cohort had a median age of 82 years, and the most common primary diagnosis was renal failure. Participants rated telemedicine as easier to access than face-to-face appointments due to convenience. Telemedicine was rated highly for future utility, with video consultations being perceived as more useful than telephone consultations. Participants responded overwhelmingly well towards the clinic.Discussion: Findings demonstrated high levels of satisfaction with the Supportive Care Clinic model and for telemedicine. However, logistical challenges and the desire for face-to-face appointments were also identified. The study highlights the importance of offering a range of modalities for patient engagement in healthcare services and suggests that telemedicine should complement, rather than replace, face-to-face consultations. Future investigations should explore patient and caregiver sentiment towards telemedicine platforms alongside patient deterioration.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"545-548"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140177221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A comparison of chronic conditions and health characteristics between cancer survivors and non-cancer survivors. 癌症幸存者与非癌症幸存者的慢性病和健康特征比较。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-09-19 DOI: 10.1177/17423953231180191

Anjin Singh, Michael Shayne Gallaway, Addey Rascon

{"title":"A comparison of chronic conditions and health characteristics between cancer survivors and non-cancer survivors.","authors":"Anjin Singh, Michael Shayne Gallaway, Addey Rascon","doi":"10.1177/17423953231180191","DOIUrl":"10.1177/17423953231180191","url":null,"abstract":"Objective: Cancer survivors have unique healthcare needs. An important consideration for survivorship is chronic diseases and health risk factors. The purpose of this study is to describe demographics, risk factors, and comorbid health conditions in adult cancer survivors.Method: We analyzed 2019 Arizona Behavioral Risk Factor Surveillance System data to compare cancer survivors to non-cancer survivors (aged 18 or older) to assess differences between the two populations. Adjusted and unadjusted population-based estimates and 95% confidence intervals were calculated, and multivariable logistic regression models were performed.Results: Eight thousand nine-hundred and twenty (8920) respondents (1007 survivors; 7913 non-cancer survivors) were included. Compared to non-cancer survivors, cancer survivors were more likely to be female, 65 years and older, non-Hispanic white, veterans, and less likely to be employed. Survivors had higher rates of coronary heart disease, stroke, chronic obstructive pulmonary disease, kidney disease, hypertension, arthritis, multiple chronic conditions, being overweight, and being a former smoker. Survivors were more likely to report fair/poor health than non-cancer survivors.Discussion: These findings can be used by healthcare and public health practitioners to evaluate the programmatic efforts and resources, implement targeted interventions toward cancer survivors, and improve health and quality of life.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"349-359"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11046444/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10674619","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Strategizing early interventions to improve hemodialysis acceptance among chronic kidney disease patients. 制定早期干预策略，提高慢性肾病患者对血液透析的接受程度。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-11 DOI: 10.1177/17423953231174466

Nur Atikah Mohamed Hussin, Shariffah Suraya Syed Jamaludin

引用次数: 0

Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study. 慢性阻塞性肺病对患者及其亲属的影响：一项混合方法研究。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-16 DOI: 10.1177/17423953231175971

Helena Johansson, Katarina Berg, Lise-Lotte Jonasson, Carina Berterö

{"title":"Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study.","authors":"Helena Johansson, Katarina Berg, Lise-Lotte Jonasson, Carina Berterö","doi":"10.1177/17423953231175971","DOIUrl":"10.1177/17423953231175971","url":null,"abstract":"Objectives: Severe chronic obstructive pulmonary disease affects and changes the lives of both affected persons and next of kin. There is a need for support and a sense of coherence to manage the life situation and minimize the symptom and caregiver burden. The aim of this study was to diverge or converge views of symptom burden, caregiver burden, the need for support, and sense of coherence in persons with chronic obstructive pulmonary disease and their next of kin to gain a deeper and broader knowledge and understanding.Methods: A mixed methods study with data from interviews and four validated questionnaires from persons affected by chronic obstructive pulmonary disease in GOLD stages III and IV and their next of kin.Results: Questionnaires from 112 persons affected by chronic obstructive pulmonary disease, and 71 next of kin, together with 25 and 21 interviews, show that; there is a difference between estimated symptoms and caregiver burden and experiences expressed in their own words. There is also a defect regarding meaningfulness, comprehensibility, and manageability affecting daily life. Symptoms and caregiver burden, together with the sense of coherence, strengthen the need for support.Discussion: The complexity of the life situation leads to a need for supportive interventions to strengthen internal and external resources.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"296-308"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11110465/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9477796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Remote delivery of self-management education workshops for adults with chronic pain, 2020-2021. 2020-2021 年，远程举办慢性疼痛成人自我管理教育讲习班。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-06-08 DOI: 10.1177/17423953231181408

Wendy M Brunner, Kristin Pullyblank, Melissa B Scribani, Nicole Krupa, Lynae Wyckoff

{"title":"Remote delivery of self-management education workshops for adults with chronic pain, 2020-2021.","authors":"Wendy M Brunner, Kristin Pullyblank, Melissa B Scribani, Nicole Krupa, Lynae Wyckoff","doi":"10.1177/17423953231181408","DOIUrl":"10.1177/17423953231181408","url":null,"abstract":"Objectives: We intended to assess changes in pain-related outcomes among rural adults who completed 6-week self-management programs offered remotely during the COVID-19 pandemic.Methods: We offered the Chronic Pain Self-Management Program and Chronic Disease Self-Management Program between May 2020 and December 2021. Delivery mode options included 2½-hour weekly videoconference, mailed toolkit plus 1-hour weekly conference call, and mailed toolkit alone. We conducted pre- and post-workshop surveys including questions on patient activation, self-efficacy, depression and pain disability. We used paired t-tests to compare pre-post differences in outcomes among participants completing 4 or more sessions.Results: Among 218 adults reporting chronic pain, mean age was 57; 83.6% were female; and 49.5% participated via videoconference, 23.4% by phone and 27.1% via mailed toolkit alone. Completion rates were higher among phone (88.2%) versus videoconference (60.2%) workshop participants. Among completers, patient activation (mean change = 3.61, p = 0.01) and self-efficacy (mean change = 3.72, p < 0.0001) increased while depression scores (mean change = -1.03, p = 0.01), pain disability (mean change = -0.93, p = 0.003) and pain symptoms (mean change = -0.61, p = 0.001) decreased over the 6-week period.Discussion: Self-management programs offered remotely during the pandemic were successful in improving patient activation, self-efficacy, depression, pain disability, and pain symptoms among rural adults experiencing chronic pain.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"360-368"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9593121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Service users' and parents/carers' experiences of a paediatric chronic fatigue service: A service evaluation. 服务使用者和家长/照护者对儿科慢性疲劳服务的体验：服务评估。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-25 DOI: 10.1177/17423953231178185

Gemma Hartley, Jack Purrington

{"title":"Service users' and parents/carers' experiences of a paediatric chronic fatigue service: A service evaluation.","authors":"Gemma Hartley, Jack Purrington","doi":"10.1177/17423953231178185","DOIUrl":"10.1177/17423953231178185","url":null,"abstract":"Objectives: This service evaluation explored the experiences of families receiving care in a paediatric chronic fatigue service. The evaluation aimed to improve service provision across paediatric chronic fatigue services more widely.Methods: Children and young people aged 7-18 years (n = 25) and parents/carers (n = 25) completed a postal survey exploring experiences of a paediatric chronic fatigue service. Quantitative data were analysed descriptively, and qualitative data were analysed using thematic analysis.Results: Most service usersand parents/carers (88%) agreed that the service met their needs, that they felt supported by staff, and most notably, a large portion (74%) reported the team increased their activity levels. A small number disagreed (7%) with statements relating to positive links with other services, ease of talking to staff and suitability of appointment type. The thematic analysis revealed three themes: help managing chronic fatigue syndrome, experience of professional support and accessibility of service. Families reported benefiting from increased understanding of chronic fatigue syndrome, learning new strategies, the team linking with schools, feeling validated and mental health support. Accessibility was a particular problem including the service location, setup of appointments and difficulty contacting the team.Discussion: The evaluation presents recommendations for paediatric Chronic Fatigue services to improve service user experiences.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"320-334"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9527220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A descriptive analysis of hospitalized adolescents facing chronic illnesses with different durations of disease. 对面临不同病程的慢性病住院青少年进行描述性分析。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-06-12 DOI: 10.1177/17423953231181409

Giovana Ribeiro de Souza Favaretto, Regina Celia Bueno Machado, Mariana Ragassi Urbano, Júlia Dutra Balsanelli, Sarah Conchon Costa, Sandra Odebrecht Vargas Nunes

{"title":"A descriptive analysis of hospitalized adolescents facing chronic illnesses with different durations of disease.","authors":"Giovana Ribeiro de Souza Favaretto, Regina Celia Bueno Machado, Mariana Ragassi Urbano, Júlia Dutra Balsanelli, Sarah Conchon Costa, Sandra Odebrecht Vargas Nunes","doi":"10.1177/17423953231181409","DOIUrl":"10.1177/17423953231181409","url":null,"abstract":"Objectives: To assess characteristics of hospitalized adolescents facing chronic diseases, correlating the perceptions of their illness, quality of life and the prevalence of risk behaviors, considering gender and the diseases' durations.Methods: The sample consisted of 61 adolescents, aged between 10 and 19 years, with chronic diseases, hospitalized at the University Hospital of the State University of Londrina. They answered a questionnaire and the scales World Health Organization Quality of Life (WHOQOL-BREF) and Illness Perception Questionnaire (IPQ). They were divided in groups, according to the durations of the disease: group 1 (up to 4 years) and group 2 (5 years or more).Results: Group 2 demonstrated higher leisure activity (p = 0.02) and more painful symptoms (p = 0.02). In WHOQOL-BREF, group 2 had a higher quality of life in the domain on environment (p = 0.02) and a higher total score (p = 0.04). Lower scores on the IPQ were associated with higher scores on the WHOQOL-BREF. Positive correlation was found between WHOQOL-BREF total score and years of disease, in which male presented higher scores.Conclusions: These findings may alert to the need for more knowledge about the diseases and the importance of encouraging ways to improve quality of life and care to reduce risky behaviors.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"369-379"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9987196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The effect of COVID-19 on utilization of chronic diseases services. COVID-19 对利用慢性病服务的影响。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-07-24 DOI: 10.1177/17423953231178168

Ghobad Moradi, Bakhtiar Piroozi, Fariba Khayyati, Farhad Moradpour, Hossein Safari, Amjad Mohamadi Bolbanabad, Hamed Fattahi, Fatemeh Younesi, Ali Ebrazeh, Azad Shokri

{"title":"The effect of COVID-19 on utilization of chronic diseases services.","authors":"Ghobad Moradi, Bakhtiar Piroozi, Fariba Khayyati, Farhad Moradpour, Hossein Safari, Amjad Mohamadi Bolbanabad, Hamed Fattahi, Fatemeh Younesi, Ali Ebrazeh, Azad Shokri","doi":"10.1177/17423953231178168","DOIUrl":"10.1177/17423953231178168","url":null,"abstract":"Objectives: The aim of the present study is to evaluate the impact of Covid-19 on utilization of chronic diseases services.Methods: Interrupted time-series design was used to examine the utilization of chronic diseases services before and during the Covid-19 pandemic among hospitals in Iran. Chronic obstructive pulmonary disease (COPD), asthma, type 2 diabetes, heart failure, and chemotherapy were selected as a proxy to indicate the impact of Covid-19 on utilization of chronic diseases services. Data were collected in 24 sites from 12 months before the onset of Covid-19 (from March 2019 to February 2020) to 12 months during the Covid-19 pandemic (February 2020 to March 2021).Results: A total of 7,039,378 services were provided, of which 51.92% were provided for women and 62.73% for >65 age group. A sudden decrease was observed in monthly utilization of services during the Covid-19 pandemic; ranging from 13.91 (95% CI = -21.73, 6.10, P = 0.001) for chemotherapy to 606.39 (95% CI = -1040.72, 172.06, P = 0.009) for heart failure services per 100 thousand population. A decrease was observed in COPD services; 15.28 services compared with the period before Covid-19. Subsequently, the monthly utilization trends of asthma, type 2 diabetes, and chemotherapy services increased significantly (P < 0.05).Discussion: Although chronic diseases are a factor in more severe form of Covid-19, their failure to seek diagnostic, prevention and treatment services has somewhat complicated the issue.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"309-319"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10372501/pdf/10.1177_17423953231178168.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10257818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Do labels matter? Implications of ongoing symptomatic chronic illnesses labeled as conventional diagnoses vs. functional somatic syndromes. 标签重要吗？被贴上传统诊断与功能性躯体综合征标签的持续症状性慢性病的影响。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-22 DOI: 10.1177/17423953231174926

Ashley Smith, Lori J Lange

{"title":"Do labels matter? Implications of ongoing symptomatic chronic illnesses labeled as conventional diagnoses vs. functional somatic syndromes.","authors":"Ashley Smith, Lori J Lange","doi":"10.1177/17423953231174926","DOIUrl":"10.1177/17423953231174926","url":null,"abstract":"Objective: A consideration of chronic illness according to illness labels that are medically understood as opposed to being outside of medical understanding may reveal unique differences in how individuals understand their illness and how such lay understandings relate to health-related quality of life. Study aims are framed according to the commonsense model of self-regulation with a focus on characterizing illness representations according to chronic illness diagnosis type.Methods: Individuals suffering from symptomatic chronic illnesses (n = 192) completed measures of illness representations, coping, and general health. Participants were categorized into one of two groups based on reported diagnosis/symptoms: (a) conventional diagnosis (CD) or (b) functional somatic syndrome (FSS).Results: FSS participants reported lower illness coherence and greater illness identity than CD participants. Overall, illness coherence predicted negative coping which mediated the relationship between illness coherence and general health.Conclusions: Minimal differences were found in illness representations across FSS and CD groups with distinctions found only for illness coherence and identity. Illness coherence stands out as particularly important for coping and health-related quality of life for individuals with ongoing symptoms. Healthcare professionals should work carefully with chronically ill populations to address potential impacts of illness coherence, especially among FSS patients.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"271-282"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9507087","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The treatment effects and cardiovascular events of high-dose intravenous iron for hemodialysis patients with renal anemia: A systematic review and meta-analysis. 大剂量静脉注射铁剂对肾性贫血血液透析患者的治疗效果和心血管事件：系统回顾和荟萃分析。

IF 1.8 4区医学

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-06-07 DOI: 10.1177/17423953231180453

Shanbao Zhang, Meng Ouyang, Lei Liu

{"title":"The treatment effects and cardiovascular events of high-dose intravenous iron for hemodialysis patients with renal anemia: A systematic review and meta-analysis.","authors":"Shanbao Zhang, Meng Ouyang, Lei Liu","doi":"10.1177/17423953231180453","DOIUrl":"10.1177/17423953231180453","url":null,"abstract":"Background: Hemodialysis patients are common to have renal anemia in the nephrology practice. For the renal anemia, the high-dose iron from the intravenous route is an important treatment option. We can understand the treatment effects and cardiovascular events of high-dose intravenous iron reviewing the randomized clinical trials.Methods: We compared the high-dose and low-dose iron treatments to find if the high-dose intravenous iron can influence the hematological parameters more significantly than the low-dose iron. The cardiovascular events were also analyzed for the high-dose iron treatment. Six studies with a total of 2422 renal anemia patients under hemodialysis were enrolled. We focused the outcomes of hemoglobin, transferrin saturation percentage, ferritin, erythropoietin dose, and cardiovascular events.Results: The high-dose intravenous iron might be associated with a greater number of ferritin, transferrin saturation percentage, and hemoglobin. In addition, the erythropoietin dose was less needed to maintain the ideal hemoglobin range in the high-dose intravenous iron group.Conclusions: In current meta-analysis, the high-dose intravenous iron might show the superior effects on the ferritin, transferrin saturation percentage, and hemoglobin levels and needed dose of erythropoietin when compared to low-dose iron treatment.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"221-232"},"PeriodicalIF":1.8,"publicationDate":"2024-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9586268","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0