Chronic Illness最新文献

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Patient attitudes, experiences, and satisfaction with healthcare and office visit utilization among Medicare beneficiaries with type 2 diabetes. 2 型糖尿病医疗保险受益人对医疗保健和门诊使用的态度、体验和满意度。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-20 DOI: 10.1177/17423953231158139
Qing He, Georgianne Tiu Hawkins, Chanhyun Park, Sola Han, Jacqueline B LaManna, Boon Peng Ng
{"title":"Patient attitudes, experiences, and satisfaction with healthcare and office visit utilization among Medicare beneficiaries with type 2 diabetes.","authors":"Qing He, Georgianne Tiu Hawkins, Chanhyun Park, Sola Han, Jacqueline B LaManna, Boon Peng Ng","doi":"10.1177/17423953231158139","DOIUrl":"10.1177/17423953231158139","url":null,"abstract":"<p><strong>Objectives: </strong>To examine patient attitudes, experiences, and satisfaction with healthcare associated with office visit utilization among Medicare beneficiaries with type 2 diabetes.</p><p><strong>Methods: </strong>We analyzed the 2019 Medicare Current Beneficiary Survey Public Use File of beneficiaries aged ≥65 years with type 2 diabetes (<i>n</i> = 1092). The ordinal dependent variable was defined as 0, 1 to 5, and ≥6 office visits. An ordinal partial proportional odds model was conducted to examine associations of beneficiaries' attitudes, experiences, and satisfaction with healthcare and office visit utilization.</p><p><strong>Results: </strong>Among the beneficiaries, approximately 17.7%, 22.8%, and 59.5% reported having 0, 1 to 5, and ≥6 office visits, respectively. Being male (OR = 0.67, <i>p</i> = 0.004), Hispanic (OR = 0.53, <i>p</i> = 0.006), divorced/separated (OR = 0.62, <i>p</i> = 0.038) and living in a non-metro area (OR = 0.53, <i>p</i> < 0.001) were associated with a lower likelihood of attending more office visits. Trying to keep sickness to themselves (OR = 0.66, <i>p</i> = 0.002) and dissatisfaction with the ease and convenience of getting to providers from home (OR = 0.45, <i>p</i> = 0.010) were associated with a lower likelihood of having more office visits.</p><p><strong>Discussion: </strong>The proportion of beneficiaries foregoing office visits is concerning. Attitudes concerning healthcare and transportation challenges can be barriers to office visits. Efforts to ensure timely and appropriate access to care should be prioritized for Medicare beneficiaries with diabetes.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"64-75"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9300729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Trying to be like everybody else: A qualitative study revealing the importance of social contexts and illness representations among adolescents with type 1 diabetes and their parents. 尝试与其他人一样:一项定性研究揭示了 1 型糖尿病青少年及其父母的社会环境和疾病表征的重要性。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2024-03-01 Epub Date: 2023-02-09 DOI: 10.1177/17423953231155287
Sana Hussein, Louise Norman Jespersen, Marianne Vie Ingersgaard, Pernille Skovby, Dan Grabowski
{"title":"Trying to be like everybody else: A qualitative study revealing the importance of social contexts and illness representations among adolescents with type 1 diabetes and their parents.","authors":"Sana Hussein, Louise Norman Jespersen, Marianne Vie Ingersgaard, Pernille Skovby, Dan Grabowski","doi":"10.1177/17423953231155287","DOIUrl":"10.1177/17423953231155287","url":null,"abstract":"<p><strong>Objective: </strong>Type 1 diabetes is one of the most common chronic conditions in young children and adolescents. During the period of adolescence, young people with diabetes often struggle with self-management and have compromised health-related quality of life. This often leads to familial conflicts affecting all family members negatively. The aim of this study is to provide qualitative insight into the everyday life of families with adolescents with type 1 diabetes.</p><p><strong>Methods: </strong>The data consisted of participatory family workshops conducted using interactive dialogue tools. The total number of participants was 33 (adolescents <i>n</i> = 13, parents <i>n</i> = 20). The adolescents were between 15 and 17 years. The data were analyzed using systematic text condensation.</p><p><strong>Results: </strong>The results showed two main themes. The first theme, Diabetes-friendly and unfriendly social contexts, highlighted how the (dis)comfortability of disclosing diabetes was a significant factor in achieving optimal metabolic control. For parents, it affected their perception of social support. The second theme, incongruent illness representations among family members, dealt with the extended family conflict during the period of adolescence.</p><p><strong>Discussion: </strong>Insights from our study could help healthcare professionals apply a family-centered approach minimizing family conflict and supporting metabolic control when consulting families with adolescents with type 1 diabetes.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"37-48"},"PeriodicalIF":1.3,"publicationDate":"2024-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10675489","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The experiences of caring for disabled older adults in long-term: A qualitative study from the perspective of spousal caregivers. 残障长者长期照护经验:配偶照护者视角之质性研究。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-03 DOI: 10.1177/17423953221148972
Lingli Yang, Wei Wei, Yanni Wu, Shunfang Zhu, Xiaoli Zeng, Run Wang, Mi Zhang, Xiaolu Lin, Chunlan Zhou
{"title":"The experiences of caring for disabled older adults in long-term: A qualitative study from the perspective of spousal caregivers.","authors":"Lingli Yang, Wei Wei, Yanni Wu, Shunfang Zhu, Xiaoli Zeng, Run Wang, Mi Zhang, Xiaolu Lin, Chunlan Zhou","doi":"10.1177/17423953221148972","DOIUrl":"10.1177/17423953221148972","url":null,"abstract":"<p><strong>Objective: </strong>To explore the care experiences of spouses as long-term and primary caregivers for disabled older adults in China.</p><p><strong>Methods: </strong>A descriptive phenomenological method was used in this study, as well as purposive and convenient sampling. Semi-structured interviews were conducted with 15 spousal caregivers in Guangdong, China, from March to December 2021. Interview audio-recordings were transcribed verbatim and data were analyzed using Colaizzi's phenomenological analysis method.</p><p><strong>Results: </strong>We identified four themes from the data: spousal care motivation; sacrifices in caregiving; obstacles in caregiving; spousal caregivers' positive experiences.</p><p><strong>Conclusions: </strong>Spouses took responsibility for providing care for their disabled partners regardless of their willingness. They had positive experiences while providing care, but negative experiences were dominant, especially for spouses of severely disabled older adults. Spouses are always perfect in caregiving roles, although they may also need medical assistance. To prevent a decline in spousal caregivers' quality of life and relieve their care burdens, health care providers should support them as soon as possible or offer formal care for disabled older adults. It is necessary to intervene considering disabled older adults and their spousal caregivers as a unit to empower their confidence in coping with life together.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"848-861"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10818493","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Mental health of hemodialysis patients in the Philippines amid COVID-19 crisis: A call for action. 2019冠状病毒病危机期间菲律宾血液透析患者的心理健康:行动呼吁
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-11 DOI: 10.1177/17423953231151231
John Jamir Benzon R Aruta
{"title":"Mental health of hemodialysis patients in the Philippines amid COVID-19 crisis: A call for action.","authors":"John Jamir Benzon R Aruta","doi":"10.1177/17423953231151231","DOIUrl":"10.1177/17423953231151231","url":null,"abstract":"","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"689-691"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9843140/pdf/10.1177_17423953231151231.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10595175","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Farsi version of meaning of life in Iranian patients with cancer: A psychometric study. 伊朗癌症患者波斯语版的生命意义:一项心理测量学研究。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-01-11 DOI: 10.1177/17423953221150686
Hamid Sharif Nia, Long She, Erika Sivarajan Froelicher, Sima Hejazi, Daniyal Kohestani, Sajad Hamidi
{"title":"The Farsi version of meaning of life in Iranian patients with cancer: A psychometric study.","authors":"Hamid Sharif Nia, Long She, Erika Sivarajan Froelicher, Sima Hejazi, Daniyal Kohestani, Sajad Hamidi","doi":"10.1177/17423953221150686","DOIUrl":"10.1177/17423953221150686","url":null,"abstract":"<p><strong>Background: </strong>Having meaning in life is a protective factor for psychological well-being. Accurate assessment of this construct needs a valid and reliable tool.</p><p><strong>Purpose: </strong>This study aims to evaluate the psychometric properties of the Farsi version of the meaning of life questionnaire in patients with cancer.</p><p><strong>Method: </strong>In this cross-sectional study, after translating the questionnaire to Farsi, in a sample of 212 patients with cancer, feasibility, content and convergent validity, exploratory and confirmatory factor analysis, internal consistency, stability, and responsiveness were evaluated.</p><p><strong>Results: </strong>The results show that the content validity ratio of all ten items was greater than 0.49. Also, the modified Kappa coefficient of each item was greater than 0.6. The maximum likelihood exploratory factor analysis extracted one factor, which explains 76.13% of the total variance of the sample. Item nine was removed. The confirmatory factor analysis results show that the one-factor model had good fit indices. The Cronbach's alpha, McDonald's omega, composite reliability, MaxR, and intraclass correlation coefficient were 0.96, 0.96, 0.96, 0.96, and 0.98, respectively. The questionnaires had responsiveness and its response time was 3 s.</p><p><strong>Conclusion and policy summary: </strong>The nine-item Farsi version of the meaning of life questionnaire has good validity and reliability and responsiveness.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"862-872"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10870357","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Morbidity and utilisation of healthcare services among people with cardiometabolic disease in three diverse regions of rural India. 印度农村三个不同地区心脏代谢疾病患者的发病率和保健服务利用情况。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-12-01 Epub Date: 2023-02-06 DOI: 10.1177/17423953231153550
Sojib Bin Zaman, Roger G Evans, Clara K Chow, Rohina Joshi, Kavumpurathu R Thankappan, Brian Oldenburg, Ajay S Mahal, Kartik Kalyanram, Kamakshi Kartik, Michaela A Riddell, Oduru Suresh, Nihal Thomas, Gomathyamma K Mini, Pallab K Maulik, Velandai K Srikanth, Amanda G Thrift
{"title":"Morbidity and utilisation of healthcare services among people with cardiometabolic disease in three diverse regions of rural India.","authors":"Sojib Bin Zaman, Roger G Evans, Clara K Chow, Rohina Joshi, Kavumpurathu R Thankappan, Brian Oldenburg, Ajay S Mahal, Kartik Kalyanram, Kamakshi Kartik, Michaela A Riddell, Oduru Suresh, Nihal Thomas, Gomathyamma K Mini, Pallab K Maulik, Velandai K Srikanth, Amanda G Thrift","doi":"10.1177/17423953231153550","DOIUrl":"10.1177/17423953231153550","url":null,"abstract":"<p><strong>Objectives: </strong>To assess the prevalence and determinants of cardiometabolic disease (CMD), and the factors associated with healthcare utilisation, among people with CMD.</p><p><strong>Methods: </strong>Using a cross-sectional design, 11,657 participants were recruited from randomly selected villages in 3 regions located in Kerala and Andhra Pradesh from 2014 to 2016. Multivariable logistic regression was used to identify factors independently associated with CMD and healthcare utilisation (public or private).</p><p><strong>Results: </strong>Thirty-four per cent (n = 3629) of participants reported having ≥1 CMD, including hypertension (21.6%), diabetes (11.6%), heart disease (5.0%) or chronic kidney disease (CKD) (1.6%). The prevalence of CMD was progressively greater in regions of greater socio-economic position (SEP), ranging from 19.1% to 40.9%. Among those with CMD 41% had sought any medical advice in the last month, with only 19% utilising public health facilities. Among people with CMD, those with health insurance utilised more healthcare (age-gender adjusted odds ratio (AOR) (95% confidence interval (CI)): 1.31 (1.13, 1.51)) as did those who reported accessing private rather than public health services (1.43 (1.23, 1.66)).</p><p><strong>Discussion: </strong>The prevalence of CMD is high in these regions of rural India and is positively associated with indices of SEP. The utilisation of outpatient health services, particularly public services, among those with CMD is low.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"873-888"},"PeriodicalIF":1.3,"publicationDate":"2023-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10655594/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10708181","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Insights into the epidemiology and clinical aspects of post-COVID-19 conditions in adult. 成人covid -19后疾病的流行病学和临床方面的见解。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-11-13 DOI: 10.1177/17423953231209377
Dieu Hien T Huynh, Dat T Nguyen, Thu Suong T Nguyen, Bao An H Nguyen, Anh T T Huynh, Vy N N Nguyen, Dat Q Tran, Thi N N Hoang, Huy Dung Tran, Dao Thanh Liem, Giau V Vo, Minh Nam Nguyen
{"title":"Insights into the epidemiology and clinical aspects of post-COVID-19 conditions in adult.","authors":"Dieu Hien T Huynh, Dat T Nguyen, Thu Suong T Nguyen, Bao An H Nguyen, Anh T T Huynh, Vy N N Nguyen, Dat Q Tran, Thi N N Hoang, Huy Dung Tran, Dao Thanh Liem, Giau V Vo, Minh Nam Nguyen","doi":"10.1177/17423953231209377","DOIUrl":"https://doi.org/10.1177/17423953231209377","url":null,"abstract":"<p><strong>Objectives: </strong>While most individuals infected with COVID-19 recover completely within a few weeks, some continue to experience lingering symptoms. This study was conducted to identify and describe the clinical and subclinical manifestations of adult patients from the long-term effects of COVID-19.</p><p><strong>Methods: </strong>The study analyzed 205 medical records of inpatients (age ≥ 16 years, ≥ 4 weeks post-COVID-19 recovery, and a negative SARS-CoV-2 status at enrollment) at Thong Nhat Hospital, Vietnam, from 6 September 2021 to 26 August 2022, using R language software.</p><p><strong>Results: </strong>The majority of patients hospitalized with long COVID-19 symptoms (92.68%) had normal consciousness. The most common symptoms on admission were fatigue (59.02%), dyspnea (52.68%), and cough (42.93%). In total, 80% of patients observed respiratory symptoms, primarily dyspnea, while 42.44% reported neurological symptoms, with sleep disturbance being the most common. Noticeably, 42.93% of patients experienced respiratory failure in the post-COVID-19 period, resembling acute respiratory distress syndrome.</p><p><strong>Discussion: </strong>These findings provide crucial insights into the epidemiology, clinical, and subclinical aspects of post-COVID-19 conditions, shedding light on the prevalence of common symptoms and the demographic distribution of affected patients. Understanding these manifestations is vital for patient well-being, improved clinical practice, and targeted healthcare planning, potentially leading to better patient care, management, and future interventions.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953231209377"},"PeriodicalIF":1.3,"publicationDate":"2023-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"92157047","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses: A cross-sectional analysis of 2019 HINT Survey. 不同物质使用状态的人对酗酒对健康影响的了解:2019年HINT调查的横断面分析。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-11-08 DOI: 10.1177/17423953231213853
Wenxue Lin
{"title":"Knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses: A cross-sectional analysis of 2019 HINT Survey.","authors":"Wenxue Lin","doi":"10.1177/17423953231213853","DOIUrl":"https://doi.org/10.1177/17423953231213853","url":null,"abstract":"<p><strong>Objective: </strong>The aim of this study was to assess and compare knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses.</p><p><strong>Methods: </strong>We used a cross-sectional study design to analyze the Health Information National Trends Survey (HINTS) 5, Cycle 3 (2019). Participants were classified into four categories based on their substance use status: (a) nonsmoker and nondrinkers; (b) nonsmokers but drinkers; (c) smokers but nondrinkers; and (d) smokers and drinkers. Weighted logistic regression models were utilized to evaluate the association between knowledge of heavy alcohol consumption and health conditions by participants' substance use status.</p><p><strong>Results: </strong>More than 79% of participants were aware that drinking too much alcohol causes liver disease. However, less than 40% of them realized that heavy alcohol consumption also contributes to cancer. The odds of correctly identifying heavy alcohol consumption as a risk factor for diabetes were 3.00 times (95% confidence interval (CI): 1.29,7.00) higher among smokers but nondrinkers than smokers and alcohol drinkers. Education level was significantly associated with participants' awareness of risk factor (p < 0.01).</p><p><strong>Discussion: </strong>There is an urgent need for targeted educational campaigns and interventions to increase understanding of the impact of heavy alcohol consumption on cancer risk.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953231213853"},"PeriodicalIF":1.3,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Investigating the role of treatment adherence in predicting marital satisfaction among women with coronary artery disease: A cross-sectional study from Iran. 调查冠状动脉疾病女性治疗依从性在预测婚姻满意度中的作用:一项来自伊朗的横断面研究。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-11-08 DOI: 10.1177/17423953231213850
Parvin Zandi Rad, Tayebeh Gharibi, Hakimeh Vahedparast, Razieh Bagherzadeh
{"title":"Investigating the role of treatment adherence in predicting marital satisfaction among women with coronary artery disease: A cross-sectional study from Iran.","authors":"Parvin Zandi Rad, Tayebeh Gharibi, Hakimeh Vahedparast, Razieh Bagherzadeh","doi":"10.1177/17423953231213850","DOIUrl":"https://doi.org/10.1177/17423953231213850","url":null,"abstract":"<p><strong>Introduction: </strong>Despite the effect of coronary artery disease on sexual function and the relation between sexual function and marital satisfaction, few studies have investigated the effect of treatment adherence on marital satisfaction. The present study aims to investigate the role of treatment adherence in predicting marital satisfaction among women with coronary artery disease.</p><p><strong>Methodology: </strong>In this cross-sectional study, 385 women with coronary artery disease in Bushehr-Iran, 2021, were selected using a convenient sampling method. The data were collected using the demographic form, Seyed Fatemi medication adherence scale, female sexual function index, and evaluation and nurturing relationship issues, communication, and happiness marital satisfaction scale. The data was analyzed using univariate and multivariate logistic regression tests.</p><p><strong>Results: </strong>The mean (± standard deviation) age of the participants was 52.19 ± 12.15 years old. Considering the effect of demographic variables, treatment adherence (<i>β</i> = 0.164, <i>P</i> = 0.001) and sexual function (<i>β</i> = 0.156, <i>P </i>= 0.001) were positive predictors of marital satisfaction.</p><p><strong>Conclusion: </strong>Treatment adherence was a positive predictor of marital satisfaction. Healthcare providers should pay attention to the family consequences of non-adherence to treatment. Moreover, when counseling patients to adhere to the treatment, they should mention the physical benefits as well as psychological and family outcomes in order to motivate patients to follow their treatment.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953231213850"},"PeriodicalIF":1.3,"publicationDate":"2023-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523032","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable. 福利、意识和理解方面的差距使长期新冠肺炎患者易受感染。
IF 1.3 4区 医学
Chronic Illness Pub Date : 2023-10-30 DOI: 10.1177/17423953231210117
Jane A Evered, Alessandra LaJeunesse, Madison Wynn, Emily Mrig, Mark Schlesinger, Rachel Grob
{"title":"Gaps in benefits, awareness, and comprehension that leave those with long COVID vulnerable.","authors":"Jane A Evered, Alessandra LaJeunesse, Madison Wynn, Emily Mrig, Mark Schlesinger, Rachel Grob","doi":"10.1177/17423953231210117","DOIUrl":"10.1177/17423953231210117","url":null,"abstract":"<p><strong>Objectives: </strong>The COVID-19 pandemic has left many suffering from long COVID, an episodic and debilitating chronic condition affecting people's ability to work and manage medical expenses. Though the Biden Administration has committed to conducting research and building support programs to alleviate the strain on those affected, in practice, static eligibility criteria for unemployment and disability benefits, patchy insurance coverage, and insufficient paid leave programs have left many people vulnerable. Given the magnitude of long COVID and the dearth to date of large-scale studies about its financial consequences, a focused qualitative analysis of lived experiences is warranted to understand and highlight gaps in the policy landscape.</p><p><strong>Methods: </strong>We conducted in-depth semi-structured interviews from 2020 to 2022 with 25 people with experience of long COVID living predominately in the Midwest.</p><p><strong>Results: </strong>Our inductive analysis revealed ways people became financially exhausted by uncertain medical care costs and precarious employment that left them trying, often alone, to access benefits. People described both experiences with workplace benefits and attempts to access federal benefits to address unstable employment situations created by protracted and uncertain functional impairments.</p><p><strong>Discussion: </strong>We explore pre- and post-pandemic era unemployment, disability, and insurance policies and offer recommendations for better supporting people with long COVID.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953231210117"},"PeriodicalIF":1.3,"publicationDate":"2023-10-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11058107/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71414840","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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