Chronic obstructive pulmonary diseasés impact on the affected person and next of kin: A mixed methods study.

IF 1.8 4区医学 Q3 HEALTH CARE SCIENCES & SERVICES

Chronic Illness Pub Date : 2024-06-01 Epub Date: 2023-05-16 DOI:10.1177/17423953231175971

Helena Johansson, Katarina Berg, Lise-Lotte Jonasson, Carina Berterö

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引用次数: 0

Abstract

Objectives: Severe chronic obstructive pulmonary disease affects and changes the lives of both affected persons and next of kin. There is a need for support and a sense of coherence to manage the life situation and minimize the symptom and caregiver burden. The aim of this study was to diverge or converge views of symptom burden, caregiver burden, the need for support, and sense of coherence in persons with chronic obstructive pulmonary disease and their next of kin to gain a deeper and broader knowledge and understanding.

Methods: A mixed methods study with data from interviews and four validated questionnaires from persons affected by chronic obstructive pulmonary disease in GOLD stages III and IV and their next of kin.

Results: Questionnaires from 112 persons affected by chronic obstructive pulmonary disease, and 71 next of kin, together with 25 and 21 interviews, show that; there is a difference between estimated symptoms and caregiver burden and experiences expressed in their own words. There is also a defect regarding meaningfulness, comprehensibility, and manageability affecting daily life. Symptoms and caregiver burden, together with the sense of coherence, strengthen the need for support.

Discussion: The complexity of the life situation leads to a need for supportive interventions to strengthen internal and external resources.

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慢性阻塞性肺病对患者及其亲属的影响：一项混合方法研究。

目的：严重慢性阻塞性肺病影响并改变受影响者和近亲的生活。需要支持和一致感来管理生活状况，最大限度地减少症状和护理负担。本研究的目的是对慢性阻塞性肺病患者及其近亲的症状负担、照顾者负担、支持需求和一致感的观点进行分歧或趋同，以获得更深入、更广泛的知识和理解。方法：采用访谈数据和四份经验证的GOLD III期和IV期慢性阻塞性肺病患者及其近亲的问卷进行混合方法研究。结果：112名慢性阻塞性肺疾病患者和71名近亲的问卷，以及25次和21次访谈显示；估计的症状与用他们自己的话表达的照顾者负担和经历之间存在差异。在影响日常生活的意义、可理解性和可管理性方面也存在缺陷。症状和照顾者的负担，加上连贯感，加强了对支持的需求。讨论：生活情况的复杂性导致需要支持性干预措施来加强内部和外部资源。

本文章由计算机程序翻译，如有差异，请以英文原文为准。

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来源期刊

Chronic Illness Multiple-

CiteScore

3.80

自引率

0.00%

发文量

期刊介绍： Chronic illnesses are prolonged, do not resolve spontaneously, and are rarely completely cured. The most common are cardiovascular diseases (hypertension, coronary artery disease, stroke and heart failure), the arthritides, asthma and chronic obstructive pulmonary disease, diabetes and epilepsy. There is increasing evidence that mental illnesses such as depression are best understood as chronic health problems. HIV/AIDS has become a chronic condition in those countries where effective medication is available.