Chronic Illness最新文献_第2页

Chores and diabetes self-management in youth: Initial findings from a cross-sectional study. 青少年家务与糖尿病自我管理：一项横断面研究的初步发现。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-04-07 DOI: 10.1177/17423953261436466

Eniko Rak, Sydney Burford, Drew Wheat, Nina Jain

{"title":"Chores and diabetes self-management in youth: Initial findings from a cross-sectional study.","authors":"Eniko Rak, Sydney Burford, Drew Wheat, Nina Jain","doi":"10.1177/17423953261436466","DOIUrl":"https://doi.org/10.1177/17423953261436466","url":null,"abstract":"Background and ObjectivesDiabetes is a chronic condition that requires intensive management for optimal health. This study investigated the relationship between children's involvement in household chores, their independence in completing these tasks, and their diabetes self-management.MethodsData for this cross-sectional study was collected from a Pediatric Diabetes Clinic. Fifty-four children participated (average age 13.5 ± 2.53). The CHORES questionnaire was utilized to determine participation and independence in completing chores. For diabetes management, the SCI-R questionnaire was used to measure adherence to recommended blood sugar monitoring, exercise, nutrition, and medication regimens.ResultsThere were positive correlations between SCI-R scores and the participation CHORES scale (r = .462, p = <.00), assistance CHORES scale (r = .564, p = <.001). Chores participation predicted diabetes management (participation CHORES with β = .56, p = <.01, participation self-care CHORES with β = .38, p = <.05, assistance CHORES with β = .67, p = <.01, and assistance in family care CHORES with β = .35, p = <.05).ConclusionsOur findings suggest that children who not only participate in more chores but are also more independent in their completion report a greater ability of diabetes self-management. Implications for healthcare providers and parents are discussed.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953261436466"},"PeriodicalIF":1.8,"publicationDate":"2026-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147628867","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

What is the level of continuity of care (CoC) and its determinants in rheumatoid arthritis (RA) patients receiving anti-TNF treatment? 接受抗肿瘤坏死因子治疗的类风湿关节炎（RA）患者的护理连续性水平（CoC）及其决定因素是什么？

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-04-07 DOI: 10.1177/17423953261436460

Gülnur İlgün, Bayram Şahin

{"title":"What is the level of continuity of care (CoC) and its determinants in rheumatoid arthritis (RA) patients receiving anti-TNF treatment?","authors":"Gülnur İlgün, Bayram Şahin","doi":"10.1177/17423953261436460","DOIUrl":"https://doi.org/10.1177/17423953261436460","url":null,"abstract":"ObjectiveDetermining the factors affecting the continuity of care (CoC) levels of people with chronic conditions, is critical to enhancing the quality of health care and patient outcomes. The objective of this study is to identify CoC levels in patients with rheumatoid arthritis (RA) and the factors that influence CoC levels.MethodsThe study's sample consists of 440 RA patients. The survey was used to collect data for this study, which is a cross-sectional study. The CoC level of the patients was determined using the \"CoC Scale.\"ResultsThe mean total CoC score was 60.19, slightly above the midpoint of the 0-100 scale. Multivariate analysis showed that disease-related parameters including drug regimen complexity, comorbidity status, receipt of RA training, and disease duration were significantly associated with CoC (p < .05). Additionally, socio-demographic characteristics such as educational level, smoking status, place of residence, and age also showed statistically significant associations with CoC (p < .05).Discussion: The findings of the study are expected to provide significant data and information to physicians in order to raise the CoC level, which is anticipated to play a key role in enhancing treatment outcomes, lowering disease costs, and improving health-care quality.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17423953261436460"},"PeriodicalIF":1.8,"publicationDate":"2026-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147628836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Navigating type 1 diabetes as a young couple: A qualitative analysis. 年轻夫妇应对1型糖尿病：一项定性分析

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2026-02-09 DOI: 10.1177/17423953261417138

Michelle L Litchman, Nancy A Allen, Eunjin L Tracy, Ernest G Grigorian, MaryJane S Campbell, Vicki S Helgeson, Cynthia A Berg

{"title":"Navigating type 1 diabetes as a young couple: A qualitative analysis.","authors":"Michelle L Litchman, Nancy A Allen, Eunjin L Tracy, Ernest G Grigorian, MaryJane S Campbell, Vicki S Helgeson, Cynthia A Berg","doi":"10.1177/17423953261417138","DOIUrl":"10.1177/17423953261417138","url":null,"abstract":"ObjectivesType 1 diabetes (T1D) is a complex and chronic disease that often requires management within an interpersonal context. Young couples may face unique challenges as they integrate and negotiate diabetes routines into their lives. The purpose of this study is to examine the experiences of young adult couples as they adjust and adapt to the management of T1D in their relationship.MethodsYoung adults (25-40 years) living with T1D and their romantic partners (77 couples, 154 individuals) were separately interviewed. A constant comparison approach was used to qualitatively analyze the data for similarities and differences in perceptions of diabetes management as a dyad. Themes were then identified.ResultsThree themes emerged from the data: learning to incorporate diabetes into the relationship, working together to manage diabetes, and parenting with T1D. Young adult couples are developing coping mechanisms to manage diabetes together. Partners must learn to balance being supportive without being over controlling.DiscussionYoung adults with T1D and partners adjust to diabetes as a couple. Diabetes education for the partner is important to the relationship. Interventions developed to support couples establish collaboration earlier in their relationship may be beneficial for clinical and relationship outcomes.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"51-63"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Living well with long-term conditions: A quantitative investigation into the influences of illness and healthcare experiences. 长期条件下的良好生活：疾病和医疗保健经历影响的定量调查。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2026-01-27 DOI: 10.1177/17423953261417134

Poppy Dilks, Isabelle Ball, Moitree Banerjee

{"title":"Living well with long-term conditions: A quantitative investigation into the influences of illness and healthcare experiences.","authors":"Poppy Dilks, Isabelle Ball, Moitree Banerjee","doi":"10.1177/17423953261417134","DOIUrl":"10.1177/17423953261417134","url":null,"abstract":"ObjectivesTo examine whether illness or healthcare experiences have a more significant influence on living well, and which factors in these experiences have the most influence.MethodsInformation collected included demographic data, illness and healthcare experience, and the LTCQ to measure living well. Data was collected via online survey platform Qualtrics. Two separate 2-stage hierarchical multiple regressions were run to investigate how much variance in living well with long-term conditions is accounted for by established and exploratory illness and healthcare experience factors.Results70 participants met the inclusion criteria of the study, with 54 included in the analysis. Results showed that illness experience had a significant influence on living well while healthcare experience did not. The factors of illness intrusiveness in illness experience and patient assessment of chronic illness care in healthcare experience significantly impacted living well.Discussion: This study examines the influences of illness and healthcare experiences on the ability to live well with LTCs. Future research could focus on specific LTCs and compare which factors they find significantly affect living well. The findings pave the way for future explorations into the factors influencing living well differ between LTCs and the best interventions to improve living well with LTCs.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"36-50"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13053871/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146067729","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Investigation and analysis on the current nursing dependence of patients with lower urinary tract symptoms in communities and nursing homes under the medical consortium model. 医疗联合体模式下社区与养老院下尿路症状患者护理依赖现状调查分析

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2025-12-22 DOI: 10.1177/17423953251404902

Chunxia Fan, Lihui Zhou, Weiguo Wang, Jian Chen, Shuangshuang Li, Chunli Deng, Caiyan Ding

{"title":"Investigation and analysis on the current nursing dependence of patients with lower urinary tract symptoms in communities and nursing homes under the medical consortium model.","authors":"Chunxia Fan, Lihui Zhou, Weiguo Wang, Jian Chen, Shuangshuang Li, Chunli Deng, Caiyan Ding","doi":"10.1177/17423953251404902","DOIUrl":"10.1177/17423953251404902","url":null,"abstract":"ObjectivesThis study aims to evaluate the nursing dependence of patients with lower urinary tract symptoms (LUTS) in communities and nursing homes under the medical consortium model. It also investigates the relationship between sociodemographic factors, LUTS, and nursing dependence.MethodsA cross-sectional survey was conducted from January 2023 to October 2024, involving 213 patients with LUTS from communities and nursing homes in xxx City, xxx Province. Participants completed questionnaires assessing demographic information, LUTS severity, and nursing dependence. Statistical analyses were performed using SPSS 29.0, employing t-tests, Kruskal-Wallis tests, and Pearson correlation tests.ResultsAmong male patients, 48.57% exhibited moderate prostate symptoms, while 65.72% had moderate nursing dependence. Female patients mainly experienced moderate urinary storage (49.07%) and voiding (43.52%) symptoms, with 60.19% showing nursing dependence. Pearson correlation analysis revealed significant positive correlations between the severity of LUTS and nursing dependence (P < 0.01).DiscussionIn communities and nursing homes under the medical consortium model, the severity of LUTS is moderate and strongly correlates with nursing dependence. This highlights the need for targeted interventions to address care needs and improve quality of life for these patients.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"88-100"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145811824","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Exploring associations and indirect effects between mindfulness, psychological flexibility and wellbeing in adults with cystic fibrosis: Informing future interventions. 探索正念、心理灵活性和囊性纤维化成人健康之间的关联和间接影响：为未来的干预提供信息。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2025-12-09 DOI: 10.1177/17423953251403206

Sophia Kauser, Michail Mantzios, Rebecca Keyte, Helen Egan

{"title":"Exploring associations and indirect effects between mindfulness, psychological flexibility and wellbeing in adults with cystic fibrosis: Informing future interventions.","authors":"Sophia Kauser, Michail Mantzios, Rebecca Keyte, Helen Egan","doi":"10.1177/17423953251403206","DOIUrl":"10.1177/17423953251403206","url":null,"abstract":"ObjectivesIncreased psychological support is required to assist the long-term well-being of the adult Cystic Fibrosis (CF) population. This research aimed to identify relationships between mindfulness, psychological flexibility, and wellbeing, as well as potential mediating effects of mindfulness to increase wellbeing in adults with CF.MethodsIn a cross-sectional study, 114 (56 female, 58 male) adults with CF completed and returned a series of validated questionnaires that assessed mindfulness, psychological flexibility, and wellbeing.ResultsParticipants who demonstrated better psychological flexibility also had higher levels of mindfulness and wellbeing, and similarly, those who reported higher levels of mindfulness had better wellbeing. Mindfulness subscale scores indicated additional associations. Mindfulness partially mediated the relationship between psychological flexibility and wellbeing. A second mediation model suggested that specifically 'acting with awareness' (i.e., a mindfulness subscale) also partially mediated the relationship between psychological flexibility and wellbeing, highlighting the significance of mindfulness within promoting wellbeing through psychological flexibility.DiscussionThis research demonstrates the importance of mindfulness in the relationship between psychological flexibility and wellbeing. The findings provide promising preliminary evidence to suggest that Acceptance and Commitment Therapy (ACT), a therapy enhancing psychological flexibility through mindfulness, to be beneficial for enhancing the wellbeing of adults with CF.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"77-87"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13053876/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145710106","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The resurgence of Tuberculosis in the United States: Health implications, pathophysiological and clinical insights, emerging trends, strategic responses, and post-COVID-19 challenges. 美国结核病的死灰复燃：健康影响、病理生理和临床见解、新趋势、战略应对措施以及covid -19后的挑战。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2026-02-09 DOI: 10.1177/17423953261417345

Akanksha Sirohi, Yash Vardhan Trivedi, Tavishi Katoch, Benjamin Walters, Vasu Bansal, Saurav Pahal, Rohit Jain

{"title":"The resurgence of Tuberculosis in the United States: Health implications, pathophysiological and clinical insights, emerging trends, strategic responses, and post-COVID-19 challenges.","authors":"Akanksha Sirohi, Yash Vardhan Trivedi, Tavishi Katoch, Benjamin Walters, Vasu Bansal, Saurav Pahal, Rohit Jain","doi":"10.1177/17423953261417345","DOIUrl":"10.1177/17423953261417345","url":null,"abstract":"ObjectivesTo address the challenges of tuberculosis (TB) control in the United States post-COVID-19, focusing on high-risk populations, current diagnostic and treatment strategies, and the importance of addressing clinical and social determinants of health to achieve TB elimination goals.MethodsA review of the latest evidence-based guidelines and literature on TB diagnostics, treatment regimens, and latent TB infection (LTBI) management was conducted. Key public health challenges and interventions targeting socioeconomic disparities, stigma, and healthcare access among high-risk populations were analyzed.ResultsHigh-risk groups, including immigrants and ethnic minorities, continue to bear a disproportionate burden of TB due to socioeconomic disparities and comorbidities. Advancements in diagnostic modalities and treatment regimens offer promising outcomes, but gaps remain in LTBI screening and management. Addressing social determinants, such as healthcare access and stigma, is essential for enhancing TB control efforts.DiscussionEffective TB elimination requires collaborative efforts among healthcare professionals, policymakers, and communities to implement evidence-based strategies. Prioritizing both clinical precision and social interventions is critical for overcoming barriers and achieving national TB control and elimination goals.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"17-35"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146151089","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

HIV in Iraq: Key populations, sociodemographics, transmission modes, present realities, and urgent next steps: A systematic review. 伊拉克的艾滋病毒：关键人群、社会人口统计学、传播方式、现状和紧迫的后续步骤：系统审查。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2026-02-04 DOI: 10.1177/17423953261417151

Bootan Ahmed, Joachim G Voss, Stephanie Griggs, Ahmed A Naif, Suebsarn Ruksakulpiwat, Heba M Aldossary, Sineenat Waraphok, Faye Gary

{"title":"HIV in Iraq: Key populations, sociodemographics, transmission modes, present realities, and urgent next steps: A systematic review.","authors":"Bootan Ahmed, Joachim G Voss, Stephanie Griggs, Ahmed A Naif, Suebsarn Ruksakulpiwat, Heba M Aldossary, Sineenat Waraphok, Faye Gary","doi":"10.1177/17423953261417151","DOIUrl":"10.1177/17423953261417151","url":null,"abstract":"Background and PurposeWhile empirical studies in Iraq have examined sociodemographic characteristics and modes of human immunodeficiency virus (HIV) transmission, including but not limited to those involving key populations, there remains a critical lack of synthesizing these studies. Therefore, the purpose of this syetematic review is to comprehensively synthesis the available empirical evidence to understand the sociodemographic characteristics and modes of HIV transmission in Iraq, with the goal of informing future strategies for prevention, treatment, and care.MethodThe Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) guideline was used. Seven electronic databases (PubMed, CINAHL with Full text, PsychINFO, Google Scholar, Web of Science, Scopus, MEDLINE with FULL Text (EBSCO)) were searched between 1986 and December 2024. Inclusion criteria were original studies that reported sociodemographic factors and modes of HIV transmission among people living with HIV. A total of 854325 records were identified, but 6 studies met the inclusion criteria. We synthesized data using a convergent integrated approach to identify key themes.FindingsHIV prevalence was high in urban areas, single, low educational levels, employed, and low economic status people. The most common modes of HIV transmission were heterosexual, followed by blood transfusion, man who have sex with man, bisexual, and mother to infant, and surgery.ConclusionThe HIV is steady increasing. Therefore, enhancing HIV prevention, early detection, and treatment access are required.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"3-16"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146120836","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Examination of the effect of health literacy on patient participation and patient activation in individuals with chronic diseases. 检查健康素养对慢性疾病患者参与和患者激活的影响。

IF 1.8 4区医学

Chronic Illness Pub Date : 2026-03-01 Epub Date: 2026-01-27 DOI: 10.1177/17423953261417147

Servet Alp, Özlem Özer, Mahmut Kan

{"title":"Examination of the effect of health literacy on patient participation and patient activation in individuals with chronic diseases.","authors":"Servet Alp, Özlem Özer, Mahmut Kan","doi":"10.1177/17423953261417147","DOIUrl":"10.1177/17423953261417147","url":null,"abstract":"ObjectivesThis study aims to examine the relationships between health literacy, patient participation and patient activation variables, and to investigate whether patient activation has a mediating effect on the impact of health literacy on patient participation.MethodsThe population of the study consists of individuals with chronic diseases who applied to different outpatient clinics of a city hospital in Türkiye. Data was collected from 671 individuals using the convenience sampling method in the study.ResultsAccording to the results of the correlation analysis conducted in the study, statistically significant, positive relationships were found between health literacy and patient activation, health literacy and patient participation, patient activation and patient participation. The results of the regression analysis showed that health literacy explained 10% of the total variance in patient participation and 8% of the total variance in patient activation, while patient activation explained 11% of the total variance in patient participation. Additionally, the study determined that patient activation plays a statistically significant and positive mediating role in the relationship between health literacy and patient participation.DiscussionThe results show that as the level of health literacy increases in individuals with chronic diseases, patient participation and patient activation may also increase.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"64-76"},"PeriodicalIF":1.8,"publicationDate":"2026-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146054724","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

"It's the worst pain I think you could ever have in the world": The experience of living with trigeminal neuralgia. “我认为这是世界上最痛苦的痛苦”：三叉神经痛的生活经历。

IF 1.8 4区医学

Chronic Illness Pub Date : 2025-12-01 Epub Date: 2025-08-11 DOI: 10.1177/17423953251350470

Cameron Werner, Marian Peacock, Julia Lawton

{"title":"\"It's the worst pain I think you could ever have in the world\": The experience of living with trigeminal neuralgia.","authors":"Cameron Werner, Marian Peacock, Julia Lawton","doi":"10.1177/17423953251350470","DOIUrl":"10.1177/17423953251350470","url":null,"abstract":"ObjectivesTo understand individuals' experiences of living with, and attempting to manage, trigeminal neuralgia (TN), a rare neurological disorder characterised by sudden episodes of intense, incapacitating unilateral facial pain.MethodsWe undertook in-depth interviews with (n = 25) individuals living with TN in the United Kingdom recruited via online forums. Data were analysed thematically.ResultsParticipants described the far-reaching impact of TN on their everyday lives, with their experiences broadly fitting into three overarching themes: \"enduring pain\", \"avoiding pain\" and \"treatment burdens\". Taken together, these three overlapping experiences comprise what we term the \"triple burden\" of TN: namely, the burden and assault to self, arising from being in intense and intractable pain; the burden and loss of self-identity resulting from avoiding pain triggers; and the additional burden resulting from having to balance pain relief with severe medication side effects.DiscussionLiving with TN can be a highly disruptive and distressing experience because TN pain and the strategies people employ to try to avoid triggering it can assault and undermine their self-identities and sense of self-worth. We argue that applying sociological concepts, such as Bury's work on biographical disruption, may help to shed light on people's lived experiences of TN and inform the care and support provided to them.","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"457-466"},"PeriodicalIF":1.8,"publicationDate":"2025-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12647370/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144817989","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0