Chronic IllnessPub Date : 2025-09-01Epub Date: 2025-04-21DOI: 10.1177/17423953251334123
Norfaezah Khalid, Asbah Razali, Nurul Salwa Sajali Zaidi, Norsafatul Aznin A Razak, Ahmad Shamsuri Muhamad, Norazani Ahmad, Dharatunnisa Puad Mohd Kari
{"title":"Family-based interventions in improving caregivers' psychological-related outcomes: A systematic literature review.","authors":"Norfaezah Khalid, Asbah Razali, Nurul Salwa Sajali Zaidi, Norsafatul Aznin A Razak, Ahmad Shamsuri Muhamad, Norazani Ahmad, Dharatunnisa Puad Mohd Kari","doi":"10.1177/17423953251334123","DOIUrl":"10.1177/17423953251334123","url":null,"abstract":"<p><p>ObjectivesThis review aims to identify the content of family-based interventions that are commonly used for primary caregivers of people diagnosed with chronic illness. In addition, the psychological-related outcome measures of the FAMIs will be examined.MethodsPRISMA was adopted for the review process. We searched CINAHL, Scopus, and Web of Science databases for studies that implemented a family-based intervention for family caregivers of patients with chronic illness. We reviewed articles published between January 2000 and January 2021. Two independent reviewers, multiple researcher triangulation, and peer review were employed to ensure the validity and reliability of the data.ResultsWe included 11 studies in this systematic literature review. In total, seven themes emerged under the content of family-based intervention consisting of family elements, skills, information, activities, positive psychology, recovery, and roles and responsibility. The psychological related outcome measures of the intervention include recovery, patient care management, skills improvement, emotional management, family relationships, and self-functioning.DiscussionThe aspect of family functioning may help the family caregivers to empower themselves and build up their inner strength to face unexpected situations. The results highlighted the importance of the involvement of the experts in family therapy in helping family caregivers. Cultural implications were also highlighted.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"337-360"},"PeriodicalIF":1.8,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144004793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-09-01Epub Date: 2025-02-03DOI: 10.1177/17423953251318614
Javier Roberti, María Belizán, Natali Ini, Juan P Alonso, Agustina Mazzoni, Marina Guglielmino, Yanina Mazzaresi, Andrea Falaschi, Juan Manuel Gómez-Portillo, Gabriela Masier, Federico Baigorria, Ana María Nadal, Ezequiel García-Elorrio
{"title":"Exploring the burden of treatment in patients' experiences of chronic condition management: A mixed-method study in Mendoza, Argentina.","authors":"Javier Roberti, María Belizán, Natali Ini, Juan P Alonso, Agustina Mazzoni, Marina Guglielmino, Yanina Mazzaresi, Andrea Falaschi, Juan Manuel Gómez-Portillo, Gabriela Masier, Federico Baigorria, Ana María Nadal, Ezequiel García-Elorrio","doi":"10.1177/17423953251318614","DOIUrl":"10.1177/17423953251318614","url":null,"abstract":"<p><p>ObjectiveThis study investigated how patients managed their chronic diseases, focusing on burden of treatment, within the primary care level in Mendoza Province, Argentina.MethodThe study used a mixed-methods approach, including a qualitative component with a purposive sampling of patients with diabetes, hypertension, or depression using primary care services, and a quantitative component with secondary analysis of databases from public and social security. Ten focus group sessions were conducted at primary healthcare centers in urban and rural areas. The Burden of Treatment theory was used to frame the analysis.ResultsThe study found that accessing care was difficult due to appointment difficulties and long waiting times, and obtaining medication and laboratory tests at secondary centers was also problematic. Non-emergency hospital care required primary care referrals, and users in rural areas faced access problems. Financial constraints were significant, with co-payments in social security sector, transportation costs, and lost work revenue. Strategies employed included networking, emergency service use, careful planning, and taking loans.ConclusionThis study underscores the complex implications of chronic disease management in a subnational healthcare system and provides insights for policymakers and healthcare providers.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"375-389"},"PeriodicalIF":1.8,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123761","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-09-01Epub Date: 2025-01-07DOI: 10.1177/17423953241309796
Bootan Hasan Ahmed, Joachim G Voss, Stephanie Griggs, Ahmed A Naif, Sugandha Aggarwal, Suebsarn Ruksakulpiwat, Nicholas K Schiltz
{"title":"A concept analysis of the recurrence-related to diabetic foot ulcers.","authors":"Bootan Hasan Ahmed, Joachim G Voss, Stephanie Griggs, Ahmed A Naif, Sugandha Aggarwal, Suebsarn Ruksakulpiwat, Nicholas K Schiltz","doi":"10.1177/17423953241309796","DOIUrl":"10.1177/17423953241309796","url":null,"abstract":"<p><p>Background and PurposeThere is inconsistency and lack of conceptual clarity regarding the concept of \"recurrence\" in diabetes-related foot ulcers. Therefore, the purpose of this concept analysis is to analyze the concept of recurrence-related to diabetes-related foot ulcer after the healing of a previous foot ulcer.MethodThe Rodger's evolutionary concept analysis method was employed to analyze the concept of recurrence in diabetes-related foot ulcers. Eight databases, including PubMed, EMBASE, CINAHL Plus with Full Text, MEDLINE with Full Text (EBSCO), Web of Science, Cochrane Library, PsychoINFO, and Scopus, were searched. Additionally, Google Scholar, bibliographies, and hand searching were conducted. The search spanned from inception through August 13, 2023, yielding 3290 studies. Among these, 3242 did not meet the inclusion criteria, leaving 46 articles that fulfilled the criteria.FindingsIn a majority of the studies (n = 20, 43%), diabetes-related foot ulcer recurrence occurred at the same site after the healing of previous foot ulcers. In contrast, in fourteen (20%) studies, the diabetes-related foot ulcer recurrence was described as not at the same site as the previous foot ulcer. In the other twelve (26%) studies, the attribute of recurrence was not identified.ConclusionsThe concept of recurrence-related to diabetes-related foot ulcer should be reserved for diabetes-related foot ulcers at the same site after the healing of previous foot ulcers.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":"21 3","pages":"317-336"},"PeriodicalIF":1.8,"publicationDate":"2025-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144930102","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-09DOI: 10.1177/17423953241282664
Prema Naittee George, Ganesh Mp
{"title":"Beyond the battle: A cross-sectional study on cancer-related fatigue and predictors of quality of life in female adolescent and young adult survivors.","authors":"Prema Naittee George, Ganesh Mp","doi":"10.1177/17423953241282664","DOIUrl":"10.1177/17423953241282664","url":null,"abstract":"<p><p>ObjectivesThe study delves into the intricacies of cancer-related fatigue (CRF), the quality of life (QoL), and other demographic variables of female adolescent and young adult cancer survivors (AYACS) in the landscape of Kerala, India.MethodsThe cross-sectional study included 288 female AYACS who were selected through purposive sampling and completed self-reported questionnaires on CRF, QoL, and demographic and clinical data. Statistical analyses were applied, including correlation, one-way ANOVA, and regression.Resultsand discussion: The temporal dimension is particularly interesting, as individuals three to five years post-treatment report heightened CRF and QoL scores. Furthermore, the research unveils the pivotal role played by predictors such as marital status, educational attainment, and employment status in shaping QoL. Marital status and education emerge as positive predictors of well-being. The study unveils compelling insights into AYA cancer survivorship, revealing a profound impact of CRF on the quality of life dimensions. The role of spirituality, sometimes affecting social connectedness, adds intrigue.ConclusionThe findings provide insights into the complex world of female AYACS, compelling researchers to ponder the significance of addressing CRF and tailoring rehabilitation systems during the critical post-treatment phase, with recognition of gender-specific challenges.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"291-301"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-10-26DOI: 10.1177/17423953231210121
Abigail Kukay, Cliff McKinney
{"title":"Chronic illness and psychological problems in emerging adults: Moderation by perceived parental distress.","authors":"Abigail Kukay, Cliff McKinney","doi":"10.1177/17423953231210121","DOIUrl":"10.1177/17423953231210121","url":null,"abstract":"<p><p>ObjectiveThe aim of the current study was to better understand if perceived parental distress moderates the effects of having a chronic illness and poor physical quality of life on psychological problems reported by emerging adults.MethodsParticipants consisted of 538 college-attending emerging adults (53.5% women; 46.5% men). Participants completed an online study that was composed of questions regarding chronic illness, the World Health Organization Quality of Life - Brief, the Adult Self-Report scale, and the Adult Behavior Checklist.ResultsIn both emerging adult women and men, endorsing a chronic illness is significantly associated with psychological problems. Psychological problems in both emerging adult women and men were significantly predicted by the three-way interaction between endorsing a chronic illness, physical quality of life, and perceived maternal distress. Specifically, increased perceived maternal distress was associated with higher psychological problems in both emerging adult women and men with chronic illnesses and low physical quality of life.DiscussionFor emerging adult women and men with a chronic illness, higher perceived maternal distress was associated with poorer psychological adjustment, while lower perceived maternal distress was associated with better psychological adjustment.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"229-241"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"54231601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-11-08DOI: 10.1177/17423953231213853
Wenxue Lin
{"title":"Knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses: A cross-sectional analysis of 2019 HINT Survey.","authors":"Wenxue Lin","doi":"10.1177/17423953231213853","DOIUrl":"10.1177/17423953231213853","url":null,"abstract":"<p><p>ObjectiveThe aim of this study was to assess and compare knowledge of the health consequences of heavy alcohol consumption among individuals with different substance use statuses.MethodsWe used a cross-sectional study design to analyze the Health Information National Trends Survey (HINTS) 5, Cycle 3 (2019). Participants were classified into four categories based on their substance use status: (a) nonsmoker and nondrinkers; (b) nonsmokers but drinkers; (c) smokers but nondrinkers; and (d) smokers and drinkers. Weighted logistic regression models were utilized to evaluate the association between knowledge of heavy alcohol consumption and health conditions by participants' substance use status.ResultsMore than 79% of participants were aware that drinking too much alcohol causes liver disease. However, less than 40% of them realized that heavy alcohol consumption also contributes to cancer. The odds of correctly identifying heavy alcohol consumption as a risk factor for diabetes were 3.00 times (95% confidence interval (CI): 1.29,7.00) higher among smokers but nondrinkers than smokers and alcohol drinkers. Education level was significantly associated with participants' awareness of risk factor (p < 0.01).DiscussionThere is an urgent need for targeted educational campaigns and interventions to increase understanding of the impact of heavy alcohol consumption on cancer risk.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"253-262"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71523033","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-09DOI: 10.1177/17423953241282665
Summer C Martin
{"title":"Social support within couples coping with Parkinson's disease.","authors":"Summer C Martin","doi":"10.1177/17423953241282665","DOIUrl":"10.1177/17423953241282665","url":null,"abstract":"<p><p>ObjectivesTo contribute to a better understanding of the complexities of social support exchanged within couples coping with Parkinson's disease (PD), the present study aimed to identify costs and complications of support between persons with PD (PWPs) and their partners, as well as how to effectively manage such challenges.MethodsIn-depth interviews were conducted with 63 participants, including 31 PWPs and 32 partners. Interviews were transcribed and analyzed using constant comparative techniques.ResultsParticipants reported the following complications and costs of social support: <i>partners' differing approaches to coping can make support difficult, support can be perceived as identity-threatening and controlling, support can lead to dependency,</i> and <i>support can be draining.</i> In addition, participants discussed effectively managing challenges of support by <i>seeking/providing support subtly, taking the other's perspective,</i> and <i>relinquishing control.</i>DiscussionIn health care and interventions, it is important for PWPs and partners to be educated about social support so that couples can anticipate these costs and complications of support and consider which management strategies are likely to be effective for them in various circumstances.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"302-314"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142156420","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2023-10-23DOI: 10.1177/17423953231209462
Nizar B Said, Mohammed Hayek, Aseel E Alsayed
{"title":"The perceived social support, life events, and depressive features among patients with diabetes mellitus.","authors":"Nizar B Said, Mohammed Hayek, Aseel E Alsayed","doi":"10.1177/17423953231209462","DOIUrl":"10.1177/17423953231209462","url":null,"abstract":"<p><p>ObjectiveThis study evaluated the relationship between life events, perceived social support, and depressive features among people with diabetes.MethodsThis study was a cross-sectional design using convenience sampling. Questionnaires were distributed to targeted patients in primary health care services in the Nablus district.Questionnaires used wereThe Holmes-Rahe Stress Inventory Scale, The Beck Depression Inventory, and The Multidimensional Scale of Perceived Social Support.ResultsAbout 120 diabetic patients participated in this study. Findings revealed that higher diabetes mellitus prevalence was among older ages (39.2% are 60 years or older). More than half of the participants were smokers. Regarding life events, 53.3% of the patients have a 50% chance of developing major breakdowns in the next two years. Depression was found to be normal among 32.5% of participants, while 22.5% were moderately depressed. More patients had a disagreement that they could find social support from their friends than their family members.DiscussionPeople with diabetes are affected significantly by life events, depressive features, and perceived social support, hence, further attention is needed accompanied by frequent assessment for such factors for effective diabetes management.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"205-215"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"49693221","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2024-09-05DOI: 10.1177/17423953241282246
Olga Doris, Eimear C Morrissey
{"title":"Experiences of students with chronic illness in university education in Ireland.","authors":"Olga Doris, Eimear C Morrissey","doi":"10.1177/17423953241282246","DOIUrl":"10.1177/17423953241282246","url":null,"abstract":"<p><p>ObjectiveThe aim of this study was to explore the experiences of university students with a chronic illness in Ireland. The study also aimed to gain insight into students' experiences with Disability Support Services (DSS) and identify gaps where additional supports and resources are needed.DesignCross-sectional qualitative study.MethodsFourteen students from three Irish universities participated in semi-structured interviews. The interviews were audio-recorded, transcribed, and analysed through the six-step process of reflexive thematic analysis.ResultsFour themes were developed: (1) The burden of managing a chronic illness alongside university education; (2) Interruptions, disruptions and alterations to college life; (3) Flexible supports for fluctuating conditions; (4) Achieving in educating while living with a chronic illness.ConclusionsParticipants reported a physical and emotional burden. Despite engaging in rigorous management strategies, many participants missed lectures and socialising with peers. Some found the supports from DSS to be useful, however many were unsure if they qualified for support, or found the supports available to be generic and inadequate for their needs. There is significant scope for the delivery of both teaching and DSS to be improved for this cohort, ensuring that all students, regardless of their health status, have equal opportunities for success.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"277-290"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12171034/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142134233","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2025-06-01Epub Date: 2025-02-27DOI: 10.1177/17423953241306275
Mansueto Gomes Neto, William Suzart Coutinho de Araujo, Ana Carolina Pereira Nunes Pinto, Micheli Bernardone Saquetto, Bruno Prata Martinez, Vinicius Afonso Gomes, Carlos Brites, Vitor Oliveira Carvalho
{"title":"Effects of physical rehabilitation interventions on exercise performance, dyspnea, and health-related quality of life in acute and post-acute COVID-19 patients: Systematic review and meta-analysis.","authors":"Mansueto Gomes Neto, William Suzart Coutinho de Araujo, Ana Carolina Pereira Nunes Pinto, Micheli Bernardone Saquetto, Bruno Prata Martinez, Vinicius Afonso Gomes, Carlos Brites, Vitor Oliveira Carvalho","doi":"10.1177/17423953241306275","DOIUrl":"10.1177/17423953241306275","url":null,"abstract":"<p><p>ObjectiveTo analyze the published randomized controlled trials (RCTs) that investigated the effects of physical rehabilitation interventions provided directly (face to face) and by telerehabilitation on exercise performance, dyspnea, and health-related quality of life (HRQoL) in acute and post-acute COVID-19 patients.MethodsFor this systematic review and meta-analysis, different electronic databases were searched up to January 2023. Mean difference (MD), (standardized mean difference (SMD) were calculated.Results34 studies (2214 patients) met the study criteria. Physical interventions may improve aerobic capacity in acute COVID-19 (SMD 1.7; 95% CI 0.37, 2.8) and in post-acute COVID-19 participants (MD 0.4; 95% CI 0.1, 07) compared to usual care for acute and pos-acute COVID-19 patients, respectively. Physical interventions may also improve dyspnea in acute (SMD -1.4; 95% CI -0.8, -0.01) and in post-acute COVID-19 participants (MD -0.4; 95% CI -0.7, -0.2) compared to usual care. Physical interventions may result in an improvement in HRQoL (physical domain) (SMD 0.6; 95% CI 0.3) in post-acute COVID-19 participants compared to usual care in pos-acute COVID-19 patients.DiscussionThe results support that physical rehabilitation interventions improve aerobic capacity and dyspnea in acute and post-COVID-19 patients. Moreover, physical interventions improve physical domain in HRQoL.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"183-204"},"PeriodicalIF":1.8,"publicationDate":"2025-06-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143524905","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}