Chronic IllnessPub Date : 2024-12-01Epub Date: 2023-07-04DOI: 10.1177/17423953231185386
Kelsi Carolan
{"title":"\"It just makes you more vulnerable as an employee\": Understanding the effects of disability stigma on employment in Parkinson's disease.","authors":"Kelsi Carolan","doi":"10.1177/17423953231185386","DOIUrl":"10.1177/17423953231185386","url":null,"abstract":"<p><strong>Objective: </strong>Parkinson's disease (PD) is one of the most common neurodegenerative diseases in the United States, affecting approximately 1 million Americans. However, there is a dearth of research on the employment experiences of individuals with PD. This research article makes a crucial contribution to the literature by examining the role of disability stigma in shaping employment options in PD, with relevance to the experiences of adults with chronic and/or progressive diseases more broadly.</p><p><strong>Methods: </strong>The author conducted individual semi-structured interviews with 23 adults under the age of 65 with PD. Interviews were audio-recorded and transcribed. The author utilized an integrated approach to analysis, primarily employing a thematic analysis approach. Additionally, a narrative analysis strategy, the Listening Guide, was integrated into the broader thematic analysis to deepen analysis of discrimination and stigma.</p><p><strong>Results: </strong>Findings demonstrate how internalized, anticipated and/or experienced disability-related stigma profoundly affects employment experiences, influencing participants' work outcome expectations and acting as an employment barrier.</p><p><strong>Discussion: </strong>Findings have implications for health care practice and education, disability policy, early intervention strategies after the onset of PD and priorities for future research.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"655-668"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10110752","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Effects of the discharge plan on the caregiving load of people with chronic disease: Quasi-experimental study.","authors":"Gloria Carvajal Carrascal, Alejandra Fuentes Ramírez, Sandra Patricia Pulido Barragán, Maryory Guevara Lozano, Beatriz Sánchez-Herrera","doi":"10.1177/17423953231192131","DOIUrl":"10.1177/17423953231192131","url":null,"abstract":"<p><strong>Objective: </strong>To determine the effect of an anticipated care plan, structured around hospital discharge (PC-AH-US), regarding the caregiving load of people with NTCD residing in Colombia, 2019-2021.</p><p><strong>Method: </strong>This is a quasi-experimental study with pre- and post-intervention measurements. It includes 1170 participants who represented 585 chronic disease patient-caregiver pairs. We compared the PC-AH-US intervention, to the regular intervention.</p><p><strong>Results: </strong>The PC-AH-US intervention group showed better results in all dimensions when compared to the regular intervention group: Awareness 8.7 (SD: 0.7) and 6.8 (SD: 1.7); Acknowledgement of their unique conditions 11.3 (SD: 1.0) and 9.4 (SD: 1.8); Capacity to fulfill care tasks 8.8 (SD: 0.7) and 7.5 (SD: 1.5); Wellbeing 11.4 (SD: 0.90) and 8.87 (SD: 2.3); Anticipation 5.88 (SD: 0.4) and 4.7 (SD: 1.1) and Support Network 11.4 (SD: 0.8) and 9.9 (SD: 2.5).</p><p><strong>Conclusion: </strong>The PC-AH-US intervention group showed a statistically significant decrease in the caregiving load for people with NTCD (<i>p</i> < 00). There were no significant institutional differences in readmissions or deaths. The PC-AH-US intervention backs institutional policies meant to care for people with NTCD.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"712-723"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11622529/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10309324","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-12-01Epub Date: 2023-07-06DOI: 10.1177/17423953231187172
Kimberly A Muellers, Rachel O'Conor, Andrea M Russell, Guisselle Wismer, James W Griffith, Michael S Wolf, Juan P Wisnivesky, Alex D Federman
{"title":"Barriers and facilitators of self-management behaviors among patients with chronic obstructive pulmonary disease and chronic comorbidities: A mixed-methods investigation.","authors":"Kimberly A Muellers, Rachel O'Conor, Andrea M Russell, Guisselle Wismer, James W Griffith, Michael S Wolf, Juan P Wisnivesky, Alex D Federman","doi":"10.1177/17423953231187172","DOIUrl":"10.1177/17423953231187172","url":null,"abstract":"<p><strong>Objectives: </strong>We investigated how individuals with chronic obstructive pulmonary disease (COPD) and multi-morbidity (MM) navigate barriers and facilitators to their health management.</p><p><strong>Methods: </strong>We conducted a mixed-methods study using semi-structured interviews and survey assessments of adults with COPD, hypertension, and/or diabetes. We recruited 18 participants with an average age of 65, with 39% being male, 50% Black, and 22% Hispanic/Latino/a. Five investigators used an iterative, hybrid-coding process combining a priori and emergent codes to analyze transcripts and compare quantitative and qualitative data for themes.</p><p><strong>Results: </strong>Participants reported a generalized approach to their health rather than managing MMs separately. Individuals with good or mixed adherence found daily routines facilitated regular medication use, while those with poor adherence experienced complex prescriptions and life stressors as barriers. Walking was viewed as beneficial but challenging due to limited mobility. Most participants viewed diet as important to their MMs, but only two reported high diet quality and many held inaccurate beliefs about healthy diet choices.</p><p><strong>Discussion: </strong>Participants with MM were highly motivated to engage in self-management activities, but some individuals experienced barriers to maintaining them. Emphasizing an individualized clinical approach to assessing and solving patient barriers may improve self-management outcomes in this complex population.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"605-617"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10117549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Vitamin B12 deficiency in long-term metformin treated type 2 diabetic patients: Prevalence and risk factors in a Tunisian population.","authors":"Meriem Yazidi, Elyes Kamoun, Sameh Hadj Taieb, Ons Rejeb, Sonia Mahjoub, Sellami Maryam, Moncef Feki, Ibtissem Oueslati, Melika Chihaoui","doi":"10.1177/17423953231184220","DOIUrl":"10.1177/17423953231184220","url":null,"abstract":"<p><p><b>Objectives:</b> To determine the prevalence of vitamin B12 deficiency in a Tunisian population with type 2 diabetes (T2D) on metformin treatment for more than three years and to identify its risk factors. <b>Methods:</b> This is a cross-sectional study conducted on 257 patients with T2D treated with metformin for at least three years. Patients were divided into two groups according to their vitamin B12 status. Low vitamin B12 was defined as ≤ 203 pg/mL. <b>Results:</b> The mean age of the patients was 59.8 ± 7.9 years. The mean duration of metformin use was 10.2 ± 5.2 years. The mean vitamin B12 level was 294.9 ± 156.4 pg/mL. The prevalence of vitamin B12 deficiency was 28.4%. Male gender, HbA1c < 7% and hyperhomocysteinemia were significantly associated with vitamin B12 deficiency (respectively <i>p</i> = 0.02, <i>p</i> < 0.001, <i>p</i> < 0.001). Homocysteine level was negatively correlated with vitamin B12 level (<i>r</i> = -0.2, <i>p</i> = 0.001). Dose and duration of metformin treatment, peripheral neuropathy and anemia were not associated with vitamin B12 deficiency. On multivariate analysis, HbA1c < 7% and hyperhomocysteinemia were independently associated with vitamin B12 deficiency (respectively OR = 3.2, 95%CI = [1.6-6.3] and OR = 2.3, 95%CI = [1.2-4.2]). Discussion: The prevalence of vitamin B12 deficiency in patients with T2D on metformin treatment was high. Hyperhomocysteinemia is associated with vitamin B12 deficiency suggesting that the deficit occurs at the tissue level.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"631-639"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10037572","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-12-01Epub Date: 2023-06-13DOI: 10.1177/17423953231181410
M van der Gaag, M Heijmans, C Valli, C Orrego, M Ballester, J Rademakers
{"title":"Self-management interventions for chronically ill patients with limited health literacy: A descriptive analysis.","authors":"M van der Gaag, M Heijmans, C Valli, C Orrego, M Ballester, J Rademakers","doi":"10.1177/17423953231181410","DOIUrl":"10.1177/17423953231181410","url":null,"abstract":"<p><strong>Objectives: </strong>To support patients with limited health literacy with the challenges they face in the day-to-day management of their disease(s), numerous self-management interventions (SMIs) have been developed. To date, it is unclear to what extent SMIs have been developed for chronically ill patients with limited health literacy. This study aims to provide a description of these SMIs and to provide insight in their methodological components.</p><p><strong>Methods: </strong>A secondary analysis of the COMPAR-EU database, consisting of SMIs addressing patients with diabetes, chronic obstructive pulmonary disease, obesity and heart failure, was conducted. The database was searched for SMIs addressing health literacy, including cognitive aspects and the capacity to act.</p><p><strong>Results: </strong>Of the 1681 SMIs in the COMPAR-EU database, 35 studies addressed health literacy, describing 39 SMIs. The overview yields a high variety in interventions given, with overlapping information, but also lacking of specific details.</p><p><strong>Discussion: </strong>This descriptive analysis shows that there was a large variety in the extensiveness of the description of intervention characteristics and their justification or explanation. A focus on the broad concept of health literacy, including functional skills, cognitive skills and the capacity to act could improve the effectiveness. This should be taken into account in the future development of SMIs.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"578-604"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9999678","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Impacts of the COVID-19 pandemic on patients with chronic conditions in Vietnam: A cross-sectional study.","authors":"Thi Ha Vo, Thanh Huyen Nguyen, Huy Chuong Nguyen, Thanh Hiep Nguyen","doi":"10.1177/17423953231188755","DOIUrl":"10.1177/17423953231188755","url":null,"abstract":"<p><strong>Objectives: </strong>We assess the impact of the COVID-19 pandemic on health, treatment adherence and expectations of patients with chronic diseases in Vietnam.</p><p><strong>Methods: </strong>We conducted a national cross-sectional study using a questionnaire survey, distributed through social networks and presented on Google Forms. The survey was performed during two months of the most stringent social distancing in Vietnam (between 21 July and 21 September 2021).</p><p><strong>Results: </strong>Most of the participants said that the COVID-19 epidemic had affected their daily activities (91.9%), health (53.6%), sleep behavior (52.3%), and mental health (79.8%). During social distancing in Vietnam, three-quarter could not go to hospitals for periodic health examination; nearly half of respondents did not do daily physical activity; a quarter of respondents did not adhere to recommended diet plan. Factors associated with the effect of the COVID-19 epidemic on patient's health included those living in Ho Chi Minh City (<i>p </i>= 0.015), lived alone (<i>p </i>= 0.027), uncontrolled chronic conditions (<i>p </i>< 0.001), treatment dissatisfaction or experienced anxiety/stress (<i>p </i>< 0.001). Factors associated with medication adherence included the elderly (<i>p </i>= 0.015), having periodic health examination (<i>p </i>= 0.012), direct consultation (<i>p </i>= 0.003), and telemedicine (<i>p </i>= 0.007).</p><p><strong>Conclusion: </strong>This study highlights the urgent need for better chronic management strategies for the new post-COVID era in the future.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"618-630"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10345823/pdf/10.1177_17423953231188755.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9783861","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-12-01Epub Date: 2023-07-13DOI: 10.1177/17423953231187169
Xiaohan Zhang, Fei Fei
{"title":"Effects of long-term oxygen therapy on the mental state of patients with chronic obstructive pulmonary disease: A systematic review.","authors":"Xiaohan Zhang, Fei Fei","doi":"10.1177/17423953231187169","DOIUrl":"10.1177/17423953231187169","url":null,"abstract":"<p><strong>Objectives: </strong>This systematic review aimed to examine the effects of long-term oxygen therapy on the mental state of patients with chronic obstructive pulmonary disease.</p><p><strong>Methods: </strong>Web of Science, Medline, CINAHL, EMBASE, ProQuest, and Cochrane Library were selected to search for relevant studies. We followed the Cochrane Handbook for Systematic Reviews of Interventions, adopted the Cochrane risk-of-bias tool and Risk Of Bias In Non-randomized Studies of Interventions tool, and synthesized the outcomes narratively with Grading of Recommendations, Assessment, Development and Evaluations evidence profile.</p><p><strong>Results: </strong>Six studies were included. Moderate quality of evidence supported no effects of long-term oxygen therapy on the mental state in patients with severe resting hypoxemia and moderate resting hypoxemia (or exertional desaturation) at follow-up of 6 to 12 months; however, adverse effects on mental state among patients with moderate resting or exertional desaturation were reported at the follow-up of 36 to 48 months.</p><p><strong>Discussion: </strong>Nurses should focus on the mental state of patients treated with long-term oxygen therapy, especially those who use it for a prolonged time. Due to ethical constraints in this study, a quasi-experimental study with faithful consideration of internal validity can be commenced in the future.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"559-577"},"PeriodicalIF":1.8,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9766916","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2023-12-27DOI: 10.1177/17423953231221837
Fatih Enzin, İbrahim Caner Dikici, Derya Tülüce
{"title":"The relationship between kinesiophobia and adaptation to illness in different chronic illnesses.","authors":"Fatih Enzin, İbrahim Caner Dikici, Derya Tülüce","doi":"10.1177/17423953231221837","DOIUrl":"10.1177/17423953231221837","url":null,"abstract":"<p><strong>Objectives: </strong>The aim of this study was to determine the relationship between kinesiophobia and adaptation to chronic illness.</p><p><strong>Methods: </strong>The study was conducted with descriptive design. The questionnaire consists of three parts: a form including questions about socio-demographic characteristics and chronic diseases-related characteristics of the participants, Tampa Scale for Kinesiophobia, and Adaptation to Chronic Illness Scale.</p><p><strong>Results: </strong>A total of 217 patients participated in the study, consisting of 99 patients with diabetes, 74 with heart failure (HF), and 44 with chronic obstructive pulmonary disease (COPD). The general mean age of the patients participating in the study was 61.03 ± 11.99 years, and the mean duration of disease diagnosis was 9.83 ± 7.16 years. While age, physical adaptation, and psychological adaptation affected the level of kinesiophobia of the patients with COPD and HF by 44.3% and 47.7%, respectively, physical adaptation and psychological adaptation affected the level of kinesiophobia of the patients with DM by 29.6%.</p><p><strong>Discussion: </strong>While the level of kinesiophobia was found to be high in all disease groups, it was determined that the level of adaptation to the disease was limited. Psychological and physical adaptation to illness was correlated with kinesiophobia.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"504-514"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139049609","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Enhanced adherence counselling outcomes among people living with HIV with virological failure: Single-centre experience in Pune, India.","authors":"Prajakta Kadale, Pallavi Shidhaye, Shraddha Gurav, Pournami Ap, Manisha Ghate","doi":"10.1177/17423953241253869","DOIUrl":"10.1177/17423953241253869","url":null,"abstract":"<p><strong>Objectives: </strong>World Health Organization has recommended enhanced adherence counselling (EAC) for people living with HIV (PLHIV) with virological failure. This study aimed to assess the outcomes of EAC and its associated factors among PLHIV with virological failure.</p><p><strong>Methods: </strong>Data collected between March 2020 and February 2022 on viral load (VL) testing at antiretroviral therapy (ART) centre in Pune, India were reviewed. PLHIV with viral load ≥1000 copies/ml followed by three EAC sessions and a repeat viral load test were included. Multivariate logistic regression analysis was used to assess the factors associated with virological suppression (<1000 copies/ml).</p><p><strong>Results: </strong>Of 170 PLHIV, 81 (47.6%) showed virological suppression. Being literate (<i>p</i> = 0.027), females (<i>p</i> = 0.021), on second-line ART regimen (<i>p</i> = 0.020), and with EAC initiation within a month (<i>p</i> = 0.016) were significantly associated with virological suppression. No association was found between reported barriers to treatment adherence and virological suppression.</p><p><strong>Discussion: </strong>Early initiation of EAC is crucial for virological suppression among PLHIV with high viral load. It is important to highlight the significance of treatment adherence among individuals on first-line ART regimen. The use of effective visual tools during EAC sessions may help in achieving virological suppression among those with low literacy.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"405-412"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140923567","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chronic IllnessPub Date : 2024-09-01Epub Date: 2024-03-25DOI: 10.1177/17423953241241758
Kebir Yasmina, Saint-Dizier de Almeida Valérie
{"title":"The content of patients' emotional expressions during follow-up consultations for chronic diseases.","authors":"Kebir Yasmina, Saint-Dizier de Almeida Valérie","doi":"10.1177/17423953241241758","DOIUrl":"10.1177/17423953241241758","url":null,"abstract":"<p><strong>Objectives: </strong>In this article, we seek to extract the themes that patients share when they express negative emotions in the context of follow-up consultation of chronic illness. We are mainly interested in patients with chronic illnesses, as these pathologies have a significant emotional overload leading to a significant deterioration of the patient's quality of life.</p><p><strong>Methods: </strong>Our corpus included audio recordings of 12 chronic disease follow-up consultations conducted by physicians practicing in neurology, nutrition, internal medicine and infectiology. The 12 patients participating suffer from various chronic diseases: Parkinson's, HIV, diabetes, etc. We performed thematic content analyses on the emotional sequences in order to extract the themes underlying these emotional expressions.</p><p><strong>Results: </strong>The 10 themes we have extracted are related to physical aspects, psychological aspects, the healthcare system and/or the healthcare provider, prognostic elements, social life, family life, aspects of professional life, issues of daily life, treatments and finally, aspects related to objectives and disease progress.</p><p><strong>Discussion/conclusion: </strong>Our results show that follow-up consultations for chronic illnesses are consultations during which patients express emotions for different purposes. These emotional expressions concern particular themes that are not found in other forms of medical consultations. We will compare these results in the discussion part of this article.</p>","PeriodicalId":48530,"journal":{"name":"Chronic Illness","volume":" ","pages":"424-433"},"PeriodicalIF":1.8,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140289316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}