Progress in Community Health Partnerships-Research Education and Action最新文献

{"title":"An Integrated Regional Pediatric Asthma Program: Partnering With School Systems to Improve Child Health.","authors":"Sarah B Maness, Bailey Edwards, William Wooten, Candace Cahoon, Emily Wood, Malorie Whitaker, Jeanine Sharpe, Sue Anne Pilgreen","doi":"10.1353/cpr.2026.a993200","DOIUrl":"10.1353/cpr.2026.a993200","url":null,"abstract":"<p><p>Asthma is a leading cause of chronic illness and school absenteeism in the United States and asthma-related health inequities persist. Innovative cross-sector interventions are needed to address inequities in pediatric asthma, yet few exist. This article describes a regional pediatric asthma program that uses an integrated case management model of care. The program is innovative in that it provides cost effective outreach, integration across providers and systems, and access to care. We explore the unique history, successes, and experiences in addressing equity and a reduction of pediatric asthma hospitalizations and deaths in eastern North Carolina.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"303-307"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346874","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Promoting Community Co-ownership in Research Dissemination: The Healthy Engaged Lifestyle to Prevent Stroke Study.","authors":"Emily Gorzycki, Zachary Taylor, Clarence Jones, Niloufar Niakosari Hadidi","doi":"10.1353/cpr.2026.a987078","DOIUrl":"10.1353/cpr.2026.a987078","url":null,"abstract":"<p><strong>Background: </strong>Despite its importance, dissemination of community research to participants is often lacking. This paper describes the dissemination activities of the Healthy Engaged Lifestyle to Prevent Stroke (HELPS) study, which partnered with local African American communities to reduce stroke risk.</p><p><strong>Methods: </strong>Using a community-centered dissemination tool-kit, the HELPS team designed, implemented, and evaluated several methods for academic and community dissemination. This culminated in a community sharing forum to share HELPS study results with participants and their family and friends.</p><p><strong>Results: </strong>Within the community sharing forum, participants shared they found value in learning how to reduce stroke risk and sharing that information with their community. They also reported a desire to share this information beyond the study's conclusion.</p><p><strong>Conclusions: </strong>Dissemination is essential to sustainable community partnership and promoting trust through true co-ownership of the entire research process. Community-based dissemination strengthens engagement by reinforcing meaning for participants and providing valuable feedback for ongoing community health activities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"119-131"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624116","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Lessons Learned from Community Partners: Strengthening a Mini-grants Process to Advance Health Equity.","authors":"Karly Casanave-Phillips, Nancy O'Hara-Tompkins, Kerry Gabbert, Sam Zizzi","doi":"10.1353/cpr.2026.a987080","DOIUrl":"10.1353/cpr.2026.a987080","url":null,"abstract":"<p><strong>Background: </strong>The Be ActiveWV Grant Program aims to increase equitable access to physical activity throughout the state of West Virginia using mini-grants awarded to community-based organizations. Although health equity is a priority in this program, and questions have been added to the application to convey this focus, consideration for health equity is noticeably absent in mini-grant applications and evaluation reports. Thus, more research is needed to understand how to bolster the health equity initiatives in the Be ActiveWV Grant Program.</p><p><strong>Objectives: </strong>The purpose of this article is to overview lessons learned from community partners and to recommend specific strategies to enhance academic-community partnerships and the mini-grant process in service of health equity.</p><p><strong>Methods: </strong>Online surveys and semi-structured interviews were conducted with 20 former mini-grant applicants. The lessons learned presented in this article are a reflection of process notes, data analysis notes, thematic analysis, and conversations among WVU researchers.</p><p><strong>Lessons learned: </strong>The five lessons learned include 1) build capacity early, 2) facilitate connections, 3) collaborate with communities to develop and disseminate project-related resources, 4) support project promotion, and 5) interact with intention. Rationale is provided for each of the lessons presented, as well as suggestions for how researchers and practitioners might translate these lessons into actionable items.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"149-159"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13504549/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624082","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Harambee! 3.0: Addressing HIV-Stigma and Increasing HIV-Testing in Three African Immigrant Communities in King County.","authors":"Jessica S Chao, Rahel Behailu, Nahom Daniel, Tewodros Ayele, Jean-Jacques Kayembe Kashondo, Lydia Bukonde, Noelly Makuma, Jeff Kalombo, Zalema Kuedituka, Yikealo Beyene, Delina Seyoum, Sophia Benalfew, Saba Girmay, Shukri A Hassan, Roxanne P Kerani, Rena C Patel","doi":"10.1353/cpr.2026.a987070","DOIUrl":"10.1353/cpr.2026.a987070","url":null,"abstract":"<p><strong>Background: </strong>In King County, Washington, the new HIV diagnosis rate is 10 times higher among African immigrants than the general population. Many African immigrants report never testing for HIV due to various reasons, including inaccessible testing, stigma around HIV and testing, and concerns over jeopardizing their immigration status.</p><p><strong>Objectives: </strong>We partnered with the Ethiopian Community in Seattle, the Eritrean Health Board, and the Congolese United Foundation to deliver community-based HIV testing via health fairs at faith-based organizations in King County. We also worked to address community-level HIV-related stigma HIV through pilot implementation of an existing workshop intervention.</p><p><strong>Methods: </strong>We held four health fairs from September 2023 to April 2024 at three faith-based organizations, including free point-of-care HIV and other health screenings. Participants completed questionnaires related to sociodemographics and HIV testing history and stigma. Additionally, we adapted and piloted a faith-based HIV stigma reduction intervention called Project FAITHH.</p><p><strong>Results: </strong>There were 105 health fair attendees and 11 Project FAITHH workshop participants across the three communities. Sixty (52%) were women, 62 (54%) were from Ethiopia and Eritrea, and 85 (74%) had health insurance at the time. Seventy-two (69%) participants underwent HIV testing at the health fairs. Commonly perceived barriers to accessing HIV testing include fear of discovering their results, concerns about privacy and confidentiality, and anxiety about HIV-related stigma.</p><p><strong>Conclusions: </strong>Building relationships between academic researchers, community organizations, and faith-based organizations can improve the acceptability of and access to HIV testing among African immigrant communities by addressing perceived barriers to HIV testing.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"23-35"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624122","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Integration of Quality Improvement and Evaluation Into a Community Engagement Model.","authors":"Jennifer L Holcomb, Anna Forte, Lacourdaire Camargo, Cindy San Miguel, Jacquelyn E Jacobs","doi":"10.1353/cpr.2026.a1001915","DOIUrl":"https://doi.org/10.1353/cpr.2026.a1001915","url":null,"abstract":"<p><strong>Background: </strong>Involving individuals with lived experience in the evaluation process is essential. Little research or evaluation to date has assessed member perceptions of their participation in this process over time, and how those findings were used to adjust community engagement activities. In July 2020, a philanthropic funder collaborative funded the implementation of a racial equity and COVID-19 initiative in Chicago. A community engagement model was implemented to incorporate community voice and assist in guiding the evaluation of the initiative. The model included a community advisory council composed of members living and working in Black and Brown communities experiencing the highest rates of COVID-19 mortality in Chicago.</p><p><strong>Objectives: </strong>A longitudinal mixed-methods evaluation was conducted to understand implementation of the community engagement model.</p><p><strong>Methods: </strong>Data were collected from community advisory council members in a biannual online survey and quality improvement and evaluation interviews from December 2020 to July 2023.</p><p><strong>Results: </strong>Evaluation interviews revealed that members felt a sense of connectivity with others, but also noted a need for more inclusion of community voice in dissemination efforts and opportunities to engage with initiative funders.</p><p><strong>Conclusions: </strong>This evaluation of a community advisory council highlights the importance of monitoring individual community members' experiences for short-term quality improvements and multiple evaluation approaches to build a long-term, sustainable community engagement model.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 3","pages":"311-323"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070305","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engaging Youth Expertise: Evaluation of a Youth-Led Substance Use Prevention Model Centering Lived Experience.","authors":"Erin Harris, Abigail Steiner, Sedona Allen Moreno, Judith C Shlay, Sarah Belstock","doi":"10.1353/cpr.2026.a987073","DOIUrl":"10.1353/cpr.2026.a987073","url":null,"abstract":"<p><strong>Background: </strong>Young people with lived experience of substance use are not consistently engaged in shaping local prevention efforts. The Engaging Youth Expertise for Prevention Model was created to involve youth aged 13 to 25 with lived experience to identify and address gaps in prevention infrastructure.</p><p><strong>Objective: </strong>This paper describes the evaluation of a model for engaging youth with lived experience to identify key drivers of substance use and to help shape programming aimed at prevention.</p><p><strong>Methods: </strong>Youth leaders completed a baseline and ongoing 6-month experience evaluation assessing knowledge, skills, abilities and youth-adult interaction domains. A focus group was held in October 2023 to gather additional insights. Exiting leaders completed an optional survey to reflect on their experience and suggest improvements. Quantitative data were analyzed using paired t-tests (α &lt; 0.05). Qualitative data were analyzed using inductive thematic analysis.</p><p><strong>Results: </strong>Eighteen youth leaders participated from 10 to 29 months (median, 16 months; interquartile range, 12 months). Improvements were seen in socio-political skills, participa-tory behavior, and youth decision-making from baseline to final timepoint evaluations. Qualitative findings from evaluations, exit surveys, and the focus group emphasized gains in social emotional skills, mental health, reduced intent/desire to use substances, and stronger peer/community connections. Youth also reported engaging in broader community prevention efforts.</p><p><strong>Conclusions: </strong>The Engaging Youth Expertise for Prevention Model is an effective, adaptable approach for engaging youth with lived experience. This evaluation highlights key components others can tailor to amplify youth voices and equip them to drive positive change in their communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"65-75"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624072","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Community Engaged Approach to the Development of the Social Determinants of Health Solutions Lab.","authors":"Kent D Key, Heatherlun Uphold, Artina Carter, Traci Kim, Nichole Smith-Anderson, Sarah B Bailey, Jennifer Carrera, Jennifer E Johnson","doi":"10.1353/cpr.2026.a987077","DOIUrl":"10.1353/cpr.2026.a987077","url":null,"abstract":"<p><strong>Background: </strong>For the past decade, the concept of the Social Determinants of Health has become popularized in the Social and Health sciences. The ways that communities may need to internalize and adapt the concept of the SDOH specifically to inform local governmental decision making is understudied. We describe efforts to engage Flint/Genesee County residents utilizing a community engaged approach for the advancement of the SDOH.</p><p><strong>Objective: </strong>To describe the creation, organizing, and evolution of a multidisciplinary group of residents with a goal to create and advance an SDOH agenda in Flint/Genesee County, Michigan.</p><p><strong>Methods: </strong>A collaborative approach utilizing the Continuum of Community Engagement as a conceptual model and the Community Coalition Action Theory guided the formation and evolution of the SDOH Solutions Lab and the launch of its first community-wide Summit.Results/Lessons Learned: Five key lessons contributing to the success of the SDOH Solutions Lab included: 1) Community Engagement must be Demonstrative and not Performative. 2) Incorporate a Consensus Decision-Making Model. 3) Leverage Social Capital to utilize a Social Network approach. 4) Connect the SDOH domains to Systems. 5)Underscore the emphasis on Solutions in the SDOH-SL.</p><p><strong>Conclusion: </strong>SDOH are critical to the reduction and ultimate eradication of health disparities. Creating SDOH focused groups, initiatives, and events utilizing a community engaged approach is critical to building the governance, leadership and direction needed to establish a SDOH community agenda. Cross-disciplinary partnerships are essential to this work.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"107-117"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Community-engaged Qualitative Study of Police Response to 911 Calls for Behavioral Health Crises.","authors":"Jennifer L Hefner, Pejmon Noghrehchi, Steve David, Shinjini Pandey, Leah Em Bevis","doi":"10.1353/cpr.2026.a987069","DOIUrl":"10.1353/cpr.2026.a987069","url":null,"abstract":"<p><strong>Background: </strong>Americans in a mental health or substance abuse crisis who call 911 for assistance are at increased risk for police violence. With the growing recognition that police are not trained behavioral health (BH) workers, cities across the country are searching for alternatives models of response to these 911 calls.</p><p><strong>Objectives: </strong>To 1) describe community perceptions of 911 response to BH crisis calls, 2) explore community preferences for non-police models of response, and 3) engage a community advisory board in all study activities.</p><p><strong>Methods: </strong>Using a community-based participatory research approach, during 2023 in Columbus, Ohio we conducted 30 semi-structured interviews that were audio recorded, transcribed, and analyzed via qualitative methods.</p><p><strong>Results: </strong>Four key themes emerged: 1) variation in responding officer demeanor across calls within the same neighborhood and even to the same address: \"a different cop can make all the difference\"; 2) a pervasive reluctance to call the police during BH crises; 3) need for increased training in BH disorders and de-escalation; and 4) strong support for a non-police response program-\"medics for mental health.\"</p><p><strong>Conclusions: </strong>As one of the first studies to explore community member perspectives on this issue, interviewees shared a preference for a non-police response program and made specific recommendations for its structure. Although non-police response models have proliferated across the country, there is a need to engage the community in model development and impact studies using the methods of community-based participatory research.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"13-22"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624103","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"I'm Always a Little Bit Skeptical\": Intersex Young Adults' Recommendations for Community-partnered Health Research.","authors":"Aaron Samuel Breslow, Ellora Vilkin, Bria Brown-King, Elizabeth Cavic, Ginette Sims, Marla Renee Fisher, Kimberly Zieselman, Alesdair Ittelson","doi":"10.1353/cpr.2026.a987071","DOIUrl":"10.1353/cpr.2026.a987071","url":null,"abstract":"<p><strong>Background: </strong>An estimated 1.7% to 4% of people in the United States are born intersex, or with congenital variations that transcend binary sex. Historically, Western medical protocols have advocated for the 'correction' of intersex variations through early surgical intervention, a practice opposed by the majority of intersex-led organizations. Stakeholder voices remain under-represented in research.</p><p><strong>Objectives: </strong>This study aimed to explore the experiences of intersex young adults participating in health research, with the goal of gathering recommendations to improve intersex-affirming research practices.</p><p><strong>Methods: </strong>In collaboration with interACT: Advocates for Intersex Youth, a leading intersex rights organization, we conducted four focus groups between January and May 2022 with 11 intersex young adults. Participants were recruited via convenience sampling through interACT's mail listservs and purposively sampled for diversity in age, geographic location, race and ethnicity, and gender identity. Thematic analysis was used to analyze focus group transcripts.</p><p><strong>Results: </strong>Three central subthemes emerged regarding participants' problems with intersex health research: dehumanization and objectification, stigmatizing language, and under-representation in research. Four subthemes emerged in terms of recommendations for intersex-affirming research: using community-based research approaches; focusing on strengths rather than pathology; conducting translational research that improves health care services; and prioritizing respondent experiences in study design.</p><p><strong>Conclusions: </strong>This study emphasizes the negative experiences of intersex individuals with non-affirming research practices and underscores the need for more ethical, participatory, and humanizing research approaches. By centering intersex stakeholders, future research can better support the autonomy, wellbeing, and health equity of intersex communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"37-48"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Collaborative Design Process to Develop a Health Education Intervention: The Ööqalat' Qa'tsit Yesni Curriculum.","authors":"Kellen Polingyumptewa, Ricky Camplain, Charles Wiggins, Jani Ingram, Nicolette Teufel-Shone","doi":"10.1353/cpr.2026.a993198","DOIUrl":"10.1353/cpr.2026.a993198","url":null,"abstract":"<p><strong>Background: </strong>The growing body of evidence showing type 2 diabetes (T2D) as a potential risk factor for certain cancers supports the need to make cancer education a component of diabetes care efforts. This need is especially important for Indigenous populations who experience disproportionate high rates of T2D.</p><p><strong>Purpose and objective: </strong>The purpose of this article is to describe the development process of the health education curriculum and methods used to pilot the curriculum. The primary objective of the Ööqalat' Qa'tsit Yesni (Living a Strong Life) Curriculum is to increase participant knowledge of cancer and T2D, including recommended prevention, management, and early- detection practices.</p><p><strong>Methods: </strong>Guided by community-based participatory research principles and the Community Health Workers Praxis and Patient Health Behavior Framework, a tribal-university workgroup steered each stage of the project, including curriculum development, recruitment, evaluation strategies and dissemination plans. A purposeful sampling strategy will be used to recruit participants. Inclusion criteria include: having diagnosed T2D or pre-diabetes, and males and females between the ages of 18 to 75 years. A traditional pretest-post-test design will be used to assess participant knowledge. Results will be described in a future publication.</p><p><strong>Conclusions: </strong>The Ööqalat' Qa'tsit Yesni project is driven by a community-based participatory research tribal-university partnership. This collaborative design process resulted in a health education curriculum, which could contribute to community-engaged health promotion efforts in Indigenous communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"285-291"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346839","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}