Progress in Community Health Partnerships-Research Education and Action最新文献

{"title":"Community Input for Addressing Dementia Health Disparities: Richmond Brain Health Initiative.","authors":"Faika Zanjani, Annie Rhodes, Kennedy O'Donnell, Cate Hawks, Peter Boling, Patricia W Slattum, Elvin Price, Pamela Parsons, Kathie Falls, Natalie Mansion, Ana Diallo, Kimberely Battle, Sarah Hobgood, Leland Waters, Tracey Gendron, Emily Atkinson, Matthew Jones, Katie McDonoug, George Worthington, Julie Blaskewicz Boron, Christine Jensen, Brian D Berman, Lana Sargent","doi":"10.1353/cpr.2025.a956599","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956599","url":null,"abstract":"<p><strong>Background: </strong>The development of the Richmond Brain Health Initiative (RBHI) was guided by the need to address local brain health service gaps to improve Alzheimer's/Dementia health disparities in racially diverse communities. This paper describes the establishment of RBHI through 1) community and provider stakeholder input and 2) community brain health screening/intake development and testing.</p><p><strong>Methods: </strong>Phase 1 involved provider and community stakeholder questionnaires to gather feedback as part of the Plan-Do-Study-Act cycle. Subsequently, stakeholder findings directed the RBHI structure and screening/intake registration testing in the community.</p><p><strong>Results: </strong>Based on the stakeholder responses from fifteen providers and twenty community members, there was strong consensus in the need for local brain health services. The most highly recommended screening needs were for caregiving, cognitive status, and lifestyle risks. Thereafter the RBHI screening/intake was developed and completed by 45 community participants. Participants showed hypertension (62%) as the most prevalent brain health risk factor, followed by depression/anxiety (56%), and loneliness (44%). The intake also indicated cognitive and functional deficits, with the Montreal Cognitive mean equaling 18.4 and the Functional Activities mean equaling 14.9. Additionally, 73% of participants reported experiencing subjective cognitive decline.</p><p><strong>Conclusions: </strong>This study showcases a model for promoting brain health in racially diverse communities to improve access to Alzheimer's disease and related dementia resources and services.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"71-83"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144050972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Partner Perspectives of Tailoring Technology-Assisted CBT Depression Treatment for Perinatal People Served by Head Start.","authors":"Marni J Rubyan, Addie Weaver, Rana Kanafani, Grace Halliwill, Greta Kaempf, Sierra Gorton, Caroline Landry, Joseph A Himle","doi":"10.1353/cpr.2025.a965353","DOIUrl":"10.1353/cpr.2025.a965353","url":null,"abstract":"<p><strong>Background: </strong>Ten percent to 15% of pregnant and postpartum people experience perinatal depression (PND). Despite high PND prevalence, limited access to treatment remains. Barriers to care are exacerbated in under-resourced, rural communities. Technology-assisted PND treatments can increase access to care; however, treatment tailoring is critical to enhance engagement and improve outcomes.</p><p><strong>Objectives: </strong>Explore partner perspectives of a technology-assisted cognitive behavioral therapy-based PND treatment to identify tailoring needs and increase treatment acceptability among perinatal clients served by a rural Michigan Head Start program.</p><p><strong>Methods: </strong>Through a community-university partnership, partners were invited to participate in six focus group sessions. Partners reviewed the technology-assisted treatment and were asked to (1) share perspectives and reactions, (2) identify gaps in content, and (3) provide suggestions for modifications of visual and text-based elements. Research team members facilitated focus groups and took detailed field notes during each session. Thematic analysis of field notes was conducted by two independent coders.</p><p><strong>Results: </strong>Two core themes were identified: (1) connection between treatment and lived experience and (2) the power of positive affirmations and motivational statements. Partners identified the need for the intervention to reflect and incorporate content related to these core themes to be relevant and acceptable for perinatal clients in this community.</p><p><strong>Conclusions: </strong>Findings are consistent with existing research suggesting treatment tailoring is essential to enhancing engagement. Community-engaged research is critical for meaningful treatment tailoring that maximizes relevance and acceptability for underserved perinatal people. Study implications suggest the importance of designing technology-assisted treatments that allow for low-cost, efficient tailoring while retaining core, evidence-based content.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"159-168"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733937","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A Pilot Program of a Peer Support Group by and for Formerly Incarcerated Women.","authors":"Lauren Nguyen, Will Boles, Kenyatta Anderson, Dolfinette Martin, Anjali Niyogi, Ashley Wennerstrom","doi":"10.1353/cpr.2025.a956597","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956597","url":null,"abstract":"<p><strong>Background: </strong>Women leaving incarceration face numerous barriers to reentry, including lack of social support, mental health conditions, and trauma.</p><p><strong>Objective: </strong>To evaluate the feasibility of developing and implementing a peer-support group by and for formerly incarcerated women (FIW).</p><p><strong>Methods: </strong>A draft peer support curriculum was developed and refined based on a focus group with FIW. The program was implemented and participants engaged in a follow-up focus group to provide feedback.</p><p><strong>Results: </strong>Participants reported several benefits of participation, positive experiences regarding program logistics and content, and they valued having an FIW as the facilitator.</p><p><strong>Conclusions: </strong>A peer support intervention by and for FIW was well-received. Additional research is needed to assess whether such an intervention can improve mental health among FIW.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"55-62"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144002502","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engagement Quality, Partnership Processes, and Network Characteristics of a Community-Academic Collaboration to Advance Health Equity.","authors":"Lisa A Cooper, Katherine B Dietz, Christina T Yuan, Kathryn A Carson, Benjamin P L Meza, Christina Vincent, Chioma Onuoha, Hsin-Chieh Yeh, Deidra C Crews, Chidinma A Ibe, Jill A Marsteller, Michelle Simmons, Debra Hickman, Lee R Bone","doi":"10.1353/cpr.2025.a956589","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956589","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"e3"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144040908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Chicago Cancer Health Equity Collaborative: Adaptations in collaboration with our community partners during COVID-19.","authors":"Jeanine Ntihirageza, Joanne Glenn, Aida Giachello, Lidia Filus, Melissa Martinez, Alicia Kholamian, Araceli Estrada, Marian Fitzgibbon, Masahito Jimbo","doi":"10.1353/cpr.2025.a956601","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956601","url":null,"abstract":"<p><strong>Background: </strong>The Chicago Cancer Health Equity Collaborative partners community, professional, and academic institutions to address cancer health inequity in Chicago. Its Outreach Core focuses on the development and sustainability of the community partnerships.</p><p><strong>Objectives: </strong>A key annual event is the Community Forum. This paper describes the processes, challenges, opportunities, and strategies used to transition from an in-person to a virtual format in 2020 and 2021 and a hybrid model in 2022.</p><p><strong>Methods: </strong>Community-driven participatory and capacity-building approaches were used in planning and executing the forums. Post-forum survey data were used to assess audiences' perceived experiences.</p><p><strong>Results: </strong>The inclusive, detailed planning led to high levels of engagement. Although the majority preferred in-person, a third preferred virtual or either.</p><p><strong>Conclusions: </strong>Strong partnership is key to success in the complex planning and implementing of community activities regardless of delivery format. The hybrid model worked well, but overall the attendees preferred in-person speakers.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"95-105"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144040932","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Utilizing the Community Health Club Model to Improve COVID-19 Vaccine Confidence Among Latina Women.","authors":"Allison Vasak, Garrett Kneese, Monica Martinez, Adriana Ibañez, Theresa Heines, Chintal Patel, Alexys DeGuzman, Robert Epstein, Esmeralda Ibarra, Jason Rosenfeld","doi":"10.1353/cpr.2025.a956588","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956588","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"e1-e2"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144054374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the Health Research Priorities of the South Asian Community in British Columbia.","authors":"Aven Sidhu, Sonia Singh, Lupin Battersby, Nitasha Puri, Christopher Condin, Magdalena Newman, Rableen Nagra, Deljit Bains, Arun Garg, Swapnil Shah, Lovejot Bajwa, Sukhdeep Jassar, Yvonne Lamers","doi":"10.1353/cpr.2025.a956596","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956596","url":null,"abstract":"<p><strong>Background: </strong>South Asian Canadians are not proportionally represented as participants in health research studies and can be attributed to participant-related and researcher-related factors.</p><p><strong>Objectives: </strong>The South Asian Health Research Collaborative aimed to determine the top 10 health research priorities for the South Asian community by building engagement in health research.</p><p><strong>Methods: </strong>South Asian Health Research Collaborative convened researchers, health-care providers, decision makers, and members of the South Asian community to build engagement in health research and identify the health research priorities of the South Asian community.</p><p><strong>Results: </strong>The top three research questions related to reducing barriers to mental health services, improving access to diabetes-related dietary information, and exploring the use of complementary and alternative medicine alongside Western medicine.</p><p><strong>Conclusions: </strong>The identified priorities serve as a foundation for a collaborative research agenda between researchers and the South Asian community, emphasizing the importance of meaningful partnerships to address barriers to participation in health research studies.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"45-53"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144056166","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Spotlighting Community Organizations' Pandemic Pivots: How Cleveland Continued to Serve its Vulnerable Populations During COVID-19.","authors":"Jacqueline Dolata, Cyleste C Collins, Elodie Nonguierma, Joshua Beltran, Morgan Whaley, Marquisha Marbury, Erika Hood, Kevin Hawk, Julie A Pencak, Ashwini Sehgal, J Daryl Thornton","doi":"10.1353/cpr.2025.a956606","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956606","url":null,"abstract":"<p><p>The shutdowns associated with the COVID-19 pandemic had immediate effects on nonprofit organizations, disrupting their abilities to provide resources to the vulnerable populations they serve, and leaving many residents without supports they needed. In Cleveland, Ohio, a community-based research network developed a series of publicly available podcast interview spotlights with local nonprofits during the shutdown to describe how they had shifted to continue to meet their communities' needs. The organizations shared experiences of adaptation and innovation, collaborative efforts, and community engagement strategies tailored to community members' emotional responses to the pandemic and needs. The organizations' abilities to stay resilient at a difficult time highlight the importance of staying connected to the populations served and could inform nonprofits' strategies and perspectives in navigating unprecedented challenges. The experiences documented in this research may be a useful resource for nonprofit leaders, policymakers, and researchers seeking effective strategies to enhance organizational resilience when serving the community in times of crisis.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"149-157"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144024720","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Systemic Inequities in Health Care: Lessons Learned From Black People With IDD and Their Care Partners.","authors":"Khalilah Robinson Johnson, Seth Mitchell, Rebecca Parkin, Kierra Peak, Courtney Chavis, Shea Cleveland, Kylah Comer, Charley Cross, Tracey Hawkins, Chinno Ingram, Tajze Johnson, Alicia Jones","doi":"10.1353/cpr.2025.a970151","DOIUrl":"https://doi.org/10.1353/cpr.2025.a970151","url":null,"abstract":"<p><strong>Background: </strong>Black people with intellectual and developmental disabilities (IDD) are disproportionately impacted by health disparities and endure distinctive systemic challenges as a result of their intersecting identities.</p><p><strong>Objectives: </strong>This manuscript describes a collaborative project between university researchers, people with IDD and their care partners, and providers to understand contextual and individual characteristics that influence equitable health services access and use.</p><p><strong>Methods: </strong>The project follows a critical participatory action research approach to address issues of power and equity at the intersections of race, gender, and disability. Data collection strategies included individual semi-structured interviews and focus groups, as well as interactive activities to facilitate deeper discussion.</p><p><strong>Lessons learned: </strong>We describe strategies to manage challenges of delayed recruitment, power sharing, equitable and inclusive engagement, and dissemination.</p><p><strong>Conclusions: </strong>Lessons learned underscore the diverse experiential expertise of Black people with IDD, their care partners, and providers in the co-creation of knowledge, the importance of opportunities for partners from different stakeholder groups to cultivate relationships as part of the research process, co-reflexivity as instrumental to assessing and reassessing engagement processes in real time, and implementation of inclusive strategies for participation in dissemination activities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 3","pages":"297-306"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187139","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Best Practices for CEnR Partnerships for Health Equity.","authors":"Patrice Forrester, Abdou Simon Senghor, C Daniel Mullins, Michelle Medeiros, Claudia Baquet, Donald L Wright, T Joseph Mattingly","doi":"10.1353/cpr.2025.a956595","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956595","url":null,"abstract":"<p><strong>Background: </strong>Best practices for community-engaged research (CEnR) partnerships to promote health equity can mitigate barriers to health care, especially during public health crises. They also establish value congruence specific to the promotion of health equity for underserved communities.</p><p><strong>Objectives: </strong>Our goal was to co-develop best practices for CEnR partnerships promoting health equity.</p><p><strong>Methods: </strong>A purposeful sample of 9 researchers and 13 community members with experience in CEnR participated in the study. A first version of the best practices document was developed based on feedback from community members during pre-engagement activities that sought to co-design a sustainable model for trustworthy CEnR partnerships. The best practices document was further developed from compilation and categorization of comments from study participants in virtual meetings.</p><p><strong>Results: </strong>The best practices document included general guiding principles for CEnR partnerships promoting health equity and specific guidelines for partnerships relevant to COVID-19 testing. Foundational practices for all CEnR partnerships include the development of shared goals, accountability, and transparency. Guidelines specific to the social, ethical, and behavioral implications (SEBI) of COVID-19 testing include identifying community resources and challenges, identifying and communicating the value and risks associated with COVID-19 and COVID-19 testing, and minimizing risks and hardships relevant to COVID-19 testing.</p><p><strong>Conclusions: </strong>Best practices for CEnR partnerships promoting health equity should be tailored to the specific CEnR partnership. Future research could explore how community members and researchers implement CEnR partnership best practices to promote health equity for underserved communities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"35-43"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144050970","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}