{"title":"Assessing Queer, Trans, and Non-monogamous Youths' Experiences in a Community-based Research Project on Gender Equity.","authors":"Zoë Osborne, Colby Hangle, Sadie Stephenson, Tadiwa Nemutambwe, Gem Yelin Lee, Stevie Thompson, Anita Raj, Angela Kaida, Kalysha Closson","doi":"10.1353/cpr.2026.a987065","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987065","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"e7-e8"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brittany D Taylor, Stephanie L Albert, Heather K Marti, Sarah E Donohue, Leah Castro-Baucom, Gelise Thomas, Jasmine Briscoe, Alicia Chung, H Shonna Yin, Nasser Sharareh, Janelle Linton, Jacqueline Lindsay, Felicia D Blakely, Zanthia Wiley, Carol R Horowitz, Paul J Thuluvath, Hassan Brim, Hassan Ashktorab, Adeyinka O Laiyemo, Zaki A Sherif, Kim F Rhoads, Recover Initiative Natasha J Williams
{"title":"A Roadmap for Development of Community Engagement: Early Lessons Learned From the RECOVER Initiative.","authors":"Brittany D Taylor, Stephanie L Albert, Heather K Marti, Sarah E Donohue, Leah Castro-Baucom, Gelise Thomas, Jasmine Briscoe, Alicia Chung, H Shonna Yin, Nasser Sharareh, Janelle Linton, Jacqueline Lindsay, Felicia D Blakely, Zanthia Wiley, Carol R Horowitz, Paul J Thuluvath, Hassan Brim, Hassan Ashktorab, Adeyinka O Laiyemo, Zaki A Sherif, Kim F Rhoads, Recover Initiative Natasha J Williams","doi":"10.1353/cpr.2026.a987081","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987081","url":null,"abstract":"<p><strong>Background: </strong>Best practices for engaging patients and the community in biomedical research evolved significantly in recent years. However, few focus on patient engagement in the design and implementation of a national study.</p><p><strong>Objectives: </strong>To describe the initial engagement development and implementation; present findings from data collected during the first year; and discuss lessons learned.</p><p><strong>Methods: </strong>Data were collected as part of continuous quality improvement efforts to assess and refine the engagement strategy. Fifty-two patient, caregiver, and community representatives were invited to complete a brief online survey about their experience participating in a national initiative.</p><p><strong>Results: </strong>A framework for engagement was created and 35 representatives completed the survey (67% response rate). Representatives demonstrated awareness related to their roles and responsibilities. Seventy-six percent indicated that they felt comfortable expressing opinions and the decision-making process.</p><p><strong>Conclusions: </strong>The RECOVER initiative's approach promoted greater transparency and trust between researchers and the community, leading to more impactful engagement.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"161-170"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Assessing Queer, Trans, and Non-monogamous Youths' Experiences in a Community-based Research Project on Gender Equity.","authors":"Zoë Osborne, Colby Hangle, Sadie Stephenson, Tadiwa Nemutambwe, Gem Yelin Lee, Stevie Thompson, Anita Raj, Angela Kaida, Kalysha Closson","doi":"10.1353/cpr.2026.a987072","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987072","url":null,"abstract":"<p><strong>Background: </strong>Youth participatory action research (YPAR) centers the living experiences of youth, integrating them into health research processes to produce actionable findings. Our study has built a YPAR project that engages queer, trans, and non-monogamous young women and non-binary youth aged 19 to 29 years in British Columbia, Canada to explore perceptions of measures of gender equity in relationships.</p><p><strong>Objectives: </strong>We share an assessment of how our YPAR approach impacted youth study members.</p><p><strong>Methods: </strong>Youth were engaged through May 2022 and March 2023. Three youth research associates (core members of the research team) completed a qualitative reflection on their participation. Ten youth advisory committee (YAC) members (advisors on study processes/analysis during bi-monthly meetings) completed a mixed-methods questionnaire following five committee meetings assessing whether they felt heard, valued, and prepared to participate.</p><p><strong>Results: </strong>Youth research associates reported feeling valued and supported through training, data collection, and analysis. They identified the importance of ongoing training as their roles evolved. YAC members felt well prepared for their role and described meetings as a safe and productive place for dialogue. Meetings were considered too short and infrequent, highlighting the limits budget and pace of data collection placed on engagement. YAC members' reasons for participating included gaining research experience, honoraria, curiosity about the research topic, and community building.</p><p><strong>Conclusions: </strong>This assessment offers insight into successful implementation of a YPAR approach with queer, trans, and/or non-monogamous young women and non-binary youth, providing a roadmap for health researchers to build projects wherein a diversity of youth feel valued and supported.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"49-63"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624095","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lydia F Bierce, Daniel Valerio Montero, Cheryl Finch, Ariella D Herman, Jessica K Jeffrey, Deanna Pepper-Blanta, Katie Quigley, Madelyn H Labella
{"title":"Reducing Stress and Promoting Wellness Among Parents and Service Providers: A University-Community Collaboration.","authors":"Lydia F Bierce, Daniel Valerio Montero, Cheryl Finch, Ariella D Herman, Jessica K Jeffrey, Deanna Pepper-Blanta, Katie Quigley, Madelyn H Labella","doi":"10.1353/cpr.2026.a987076","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987076","url":null,"abstract":"<p><strong>Background: </strong>Chronic stress is linked to worse parenting outcomes, with potential downstream effects on child development. Existing interventions targeting stress among low-income parents struggle with engagement and retention, and family service providers often report high stress themselves.</p><p><strong>Objectives: </strong>This study evaluated the feasibility, acceptability, and preliminary efficacy of a stress reduction and wellness program, adapted and disseminated to parents and service providers through a novel university-community collaboration.</p><p><strong>Methods: </strong>The program was delivered in multiple formats to parents and staff from three community-based programs serving families with young children. A mixed-methods approach was used to assess engagement, retention, satisfaction, and well-being outcomes.</p><p><strong>Results: </strong>Results revealed high program satisfaction and pre-post improvements in parents' coping and mental health. Strengths, barriers, and avenues for improvement were identified.</p><p><strong>Conclusions: </strong>This program shows promise for reducing stress among low-income parents and service providers. Ongoing collaboration to address barriers may improve accessibility and effectiveness of future iterations.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"95-106"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624144","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Chioma Nnaji, Michelle Abraczinskas, Karen Calhoun, Karen D'Alonzo, Karen Mancera Cuevas, Nancy R Glassman, Kent Key, Charles R Senteio, Hal Strelnick
{"title":"Beyond Acknowledgments: Community Authorship as a Necessary Shift Toward Equity in Scholarly Writing and Publishing.","authors":"Chioma Nnaji, Michelle Abraczinskas, Karen Calhoun, Karen D'Alonzo, Karen Mancera Cuevas, Nancy R Glassman, Kent Key, Charles R Senteio, Hal Strelnick","doi":"10.1353/cpr.2026.a987067","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987067","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"1-5"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Natasha R Kumar, Imani Davis, Sneha Kamarajugadda, Lisa Levine, Aasta Mehta
{"title":"Developing an Interdisciplinary Community Action Team for Reduction in Maternal Mortality Related to Cardiovascular Disease.","authors":"Natasha R Kumar, Imani Davis, Sneha Kamarajugadda, Lisa Levine, Aasta Mehta","doi":"10.1353/cpr.2026.a987074","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987074","url":null,"abstract":"<p><strong>Background: </strong>Pregnancy-associated deaths involving cardiovascular disease (CVD) often occur beyond six weeks postpartum and are associated with delayed recognition.</p><p><strong>Objectives: </strong>We report on a community-informed approach to create an issue-specific community action team (CAT), which selected and tailored an intervention for CVD in pregnancy and postpartum.</p><p><strong>Methods: </strong>City-based maternal mortality review committee data on pregnancy-associated deaths involving CVD was leveraged to build an issue-specific CAT.</p><p><strong>Results: </strong>Maternal mortality review committee data highlighted the high frequency of cardiac-related symptoms as well as hospital-based evaluations among individuals during the year before death. The CAT identified and optimized a quality improvement intervention for CVD screening in pregnancy and postpartum. This process integrated feedback from stakeholders from multiple care settings across the city and created a foundation for rapid citywide dissemination of the revised algorithm and supplementary materials.</p><p><strong>Conclusions: </strong>CATs may be an effective organizational strategy to center community perspectives and build partnerships for intervention development to address pregnancy-associated mortality.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"77-84"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Perla Chebli, Elizabeth Spurrell-Huss, Victoria Foster, Kimberly Charles, Sonia Sifuentes, Julie Kranick, Madison N LeCroy, Lauren K Jones, Rita Ravichandar, Kadiatou Diaby, Smeily Rodriguez, Damara Gutnick, Simona C Kwon, Kody Gerkin, Camesha Grant, Bruce D Rapkin, Chau Trinh-Shevrin
{"title":"Evaluating a Community-partnered Approach to Address Locally Relevant Determinants of Cancer Screening in New York City.","authors":"Perla Chebli, Elizabeth Spurrell-Huss, Victoria Foster, Kimberly Charles, Sonia Sifuentes, Julie Kranick, Madison N LeCroy, Lauren K Jones, Rita Ravichandar, Kadiatou Diaby, Smeily Rodriguez, Damara Gutnick, Simona C Kwon, Kody Gerkin, Camesha Grant, Bruce D Rapkin, Chau Trinh-Shevrin","doi":"10.1353/cpr.2026.a987075","DOIUrl":"10.1353/cpr.2026.a987075","url":null,"abstract":"<p><strong>Background: </strong>New York City (NYC) Cancer Outreach Network in Neighborhoods for Equity and Community Translation (CONNECT) aims to address determinants of cancer screening and access disparities in low-income NYC neighborhoods with high cancer burden.</p><p><strong>Objectives: </strong>NYC CONNECT community partners formed neighborhood action councils (NACs) and engaged in mixed-method formative research and an iterative consensus-building process to co-identify structural and social determinants of cancer screening. The NACs co-developed with health and academic partners community-level strategies to address structural determinants of health. The objective of this manuscript is to describe participatory processes to engage and support community partners in low-income and high poverty communities and the evaluation of their functioning within the context of a community-academic research partnership.</p><p><strong>Methods: </strong>NYC CONNECT partnership development is informed by trauma-informed community building and community-based participatory research principles. Our mixed-methods partnership evaluation included surveys, qualitative interviews, and speaking time in meetings as a proxy for engagement.</p><p><strong>Lessons learned: </strong>Trauma-informed community building and community-based participatory research informed co-learning and consensus-building activities among the NACs. Identifying and prioritizing structural and social determinants of health strategies was a non-linear, iterative process that required multiple interactive activities (e.g., asset mapping, impact to effort matrix, and voting).</p><p><strong>Conclusion: </strong>Community engagement is a dynamic process that requires adapting to community partners' goals and sharing decision-making power.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"85-93"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13112820/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624155","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Aaron Samuel Breslow, Ellora Vilkin, Bria Brown-King, Elizabeth Cavic, Ginette Sims, Marla Renee Fisher, Kimberly Zieselman, Alesdair Ittelson
{"title":"\"I'm Always a Little Bit Skeptical\": Intersex Young Adults' Recommendations for Community-partnered Health Research.","authors":"Aaron Samuel Breslow, Ellora Vilkin, Bria Brown-King, Elizabeth Cavic, Ginette Sims, Marla Renee Fisher, Kimberly Zieselman, Alesdair Ittelson","doi":"10.1353/cpr.2026.a987064","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987064","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"e5"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jessica S Chao, Rahel Behailu, Nahom Daniel, Tewodros Ayele, Jean-Jacques Kayembe Kashondo, Lydia Bukonde, Noelly Makuma, Jeff Kalombo, Zalema Kuedituka, Yikealo Beyene, Delina Seyoum, Sophia Benalfew, Saba Girmay, Shukri A Hassan, Roxanne P Kerani, Rena C Patel
{"title":"Harambee! 3.0: Addressing HIV-Stigma and Increasing HIV-Testing in Three African Immigrant Communities in King County.","authors":"Jessica S Chao, Rahel Behailu, Nahom Daniel, Tewodros Ayele, Jean-Jacques Kayembe Kashondo, Lydia Bukonde, Noelly Makuma, Jeff Kalombo, Zalema Kuedituka, Yikealo Beyene, Delina Seyoum, Sophia Benalfew, Saba Girmay, Shukri A Hassan, Roxanne P Kerani, Rena C Patel","doi":"10.1353/cpr.2026.a987063","DOIUrl":"10.1353/cpr.2026.a987063","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"e3"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13055735/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624114","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Karly Casanave-Phillips, Nancy O'Hara-Tompkins, Kerry Gabbert, Sam Zizzi
{"title":"Lessons Learned from Community Partners: Strengthening a Mini-grants Process to Advance Health Equity.","authors":"Karly Casanave-Phillips, Nancy O'Hara-Tompkins, Kerry Gabbert, Sam Zizzi","doi":"10.1353/cpr.2026.a987080","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987080","url":null,"abstract":"<p><strong>Background: </strong>The Be ActiveWV Grant Program aims to increase equitable access to physical activity throughout the state of West Virginia using mini-grants awarded to community-based organizations. Although health equity is a priority in this program, and questions have been added to the application to convey this focus, consideration for health equity is noticeably absent in mini-grant applications and evaluation reports. Thus, more research is needed to understand how to bolster the health equity initiatives in the Be ActiveWV Grant Program.</p><p><strong>Objectives: </strong>The purpose of this article is to overview lessons learned from community partners and to recommend specific strategies to enhance academic-community partnerships and the mini-grant process in service of health equity.</p><p><strong>Methods: </strong>Online surveys and semi-structured interviews were conducted with 20 former mini-grant applicants. The lessons learned presented in this article are a reflection of process notes, data analysis notes, thematic analysis, and conversations among WVU researchers.</p><p><strong>Lessons learned: </strong>The five lessons learned include 1) build capacity early, 2) facilitate connections, 3) collaborate with communities to develop and disseminate project-related resources, 4) support project promotion, and 5) interact with intention. Rationale is provided for each of the lessons presented, as well as suggestions for how researchers and practitioners might translate these lessons into actionable items.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"149-159"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624082","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}