Catalina Tang Yan, Yichen Jin, Emily Chalfin, Linda Sprague Martinez
{"title":"Interrogation, Negotiation, and Subversion of Power Differentials in Community-Based Participatory Research: A Scoping Review.","authors":"Catalina Tang Yan, Yichen Jin, Emily Chalfin, Linda Sprague Martinez","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sarah Vaughen, Monica Kowalczyk, Tarrah DeClemente, Stacy Ignoffo, Kenneth Fox, Jeannine Cheatham, Anna Volerman
{"title":"A Model of Community Health Worker Integration into Schools: Community-based Participatory Research in Action.","authors":"Sarah Vaughen, Monica Kowalczyk, Tarrah DeClemente, Stacy Ignoffo, Kenneth Fox, Jeannine Cheatham, Anna Volerman","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Schools are rich sites for collaborations between health and educational sectors.</p><p><strong>Objectives: </strong>To identify lessons learned from formation of a community-academic partnership and application of community-based participatory research (CBPR) to develop a model that integrates community health workers into schools.</p><p><strong>Methods: </strong>Individuals from an academic medical center, a large public school district, and a community-based research institute applied CBPR principles to reimagine schools as a place for improving the health of children.</p><p><strong>Lessons learned: </strong>Three lessons emerged. Leveraging each team member's expertise centered the partnership on community strengths, co-learning, and stakeholder engagement. Adherence to CBPR's principles of power sharing and equity helped navigate the challenges of collaboration between large institutions. Early focus on sustainability helped address unexpected issues, build capacity, and boost advocacy.</p><p><strong>Conclusions: </strong>This partnership demonstrates how CBPR fosters conditions in which equitable partnerships between research institutions and public schools can thrive to promote childhood health.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140870464","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Allison R Casola, Joely A Mass, Olivia K Rea, Chelsea Hammell, Mary M Stephens
{"title":"Evaluating a Novel Disability Education and Awareness Event for Health Professions Trainees.","authors":"Allison R Casola, Joely A Mass, Olivia K Rea, Chelsea Hammell, Mary M Stephens","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>People with intellectual and developmental disabilities (IDD) are at high risk for unmet health care needs and face barriers to equitable care, yet few health professions students receive adequate training to meet these needs.</p><p><strong>Objectives: </strong>An interactive panel discussion with Special Olympics Pennsylvania (SOPA) athletes and staff was planned and implemented so that health professions students/trainees would gain knowledge of IDD, health barriers, SOPA resources, and volunteer opportunities.</p><p><strong>Methods: </strong>Panelists included two SOPA athletes and their mentors; questions solicited responses about personal health care experiences (Fall 2019). Attendees completed a mixed-methods post-event survey capturing event satisfaction, reflections, and interest in learning more about patients with IDD.</p><p><strong>Results: </strong>Sixty individuals attended, and 43 (72%) completed post-event evaluation. Attendees reported high satisfaction (88%), desire for future trainings (100%), and interest in learning about communicating (88%), providing care (88%), and addressing IDD health barriers (91%).</p><p><strong>Conclusions: </strong>Collaborative community panels could be effective in engaging health care students in discussion about caring for patients with IDD.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Felica Jones, Angela Young-Brinn, Juanita Booker-Vaughns, Clarence Williams, Olga Solomon, Madeline Washington, Hafifa Siddiq Shabaik, Adrian Oliva, Kenneth B Wells
{"title":"Community Leadership Institute for Equity: Planning Processes and Procedures to Develop Partnered Conferences.","authors":"Felica Jones, Angela Young-Brinn, Juanita Booker-Vaughns, Clarence Williams, Olga Solomon, Madeline Washington, Hafifa Siddiq Shabaik, Adrian Oliva, Kenneth B Wells","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Community-partnered participatory research (CPPR) is a research approach that supports equitable collaboration of community and academic co-leaders in research and policy. Despite CPPR's 25-year history, infrastructure supporting community members in bidirectional learning has not been formalized.</p><p><strong>Objective: </strong>This paper describes processes and procedures using CPPR to plan conferences to develop community leadership training infrastructure.</p><p><strong>Methods: </strong>We utilized rapid ethnographic analysis to examine conference planning processes for community leadership in CPPR. Community and academic leaders in Los Angeles, New Orleans, and Chicago met weekly over two months to plan, given COVID-19, three Zoom conferences on a leadership training institute for CPPR, with planning for (1) community co-leadership in research and policy; (2) local and national CPPR programs; and (3) models for bidirectional training.</p><p><strong>Results: </strong>The planning process emphasized bidirectional learning for community and academic members for research and services/policy to benefit communities, within a Community Leadership Institute for Equity (C-LIFE) to promote equity and power sharing for community leaders. The planning process identified major themes of framing of C-LIFE conference planning goals, developing the conference structure, promoting equity and diversity, envisioning the future of CPPR, challenges, collaborations, future curriculum ideas for C-LIFE, evaluation and next-steps for Zoom conferences in November 2020.</p><p><strong>Conclusions: </strong>It was feasible to use CPPR to plan Zoom conferences to promote community leadership training across multiple sites. Key planning themes included promoting equity, addressing structural racism, bidirectional learning and integrating community, academic, and policy priorities with community co-leaders as change agents.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471540","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Challenges and Lessons from Conducting a Community-Engaged Evaluation of a Community Advisory Board-A Case Study from Flint.","authors":"Stephanie Solomon Cargill, Bryan Spencer, Briah Spencer","doi":"","DOIUrl":"","url":null,"abstract":"<p><p>Community-engaged research often poses challenges due to exactly those qualities that make it desirable: it provides a new model of research that differs in many ways from top-down, university-led, prospectively designed approaches. While many have discussed the challenges to conducting community-engaged research, few have provided precise and generalizable lessons for how to surmount these challenges. Here we discuss the challenges experienced in a project that was community-engaged at three levels: 1) a research team consisting of an academic and a community partner as well as a community and academic research assistant, 2) the research team engaged with a Community Advisory Board called the CBOP-CERB (Community Based Organization Partners-Community Ethics Research Board) throughout the project, and 3) the research involved recruiting community participants from an area with a historical distrust of researchers and research: Flint Michigan. We also discuss administrative challenges that this multilevel community-engagement posed. Most important, we provide practical lessons in order for future community-engaged research to avoid or mitigate many of these challenges.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140867716","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Monica Guerrero Vazquez, Jin Hui Joo, Suzanne M Dolwick Grieb, Marzena Maksym, Katherine Phillips, Rheanna Platt, Rohanit Singh, Cecilia Suarez, Veronica Torres, SangEun Yeom, Sarah Polk
{"title":"Community Health Workers Deliver Mental Health Intervention to Uninsured Latinx in Baltimore: Evaluation and Lessons Learned in a Pilot Program.","authors":"Monica Guerrero Vazquez, Jin Hui Joo, Suzanne M Dolwick Grieb, Marzena Maksym, Katherine Phillips, Rheanna Platt, Rohanit Singh, Cecilia Suarez, Veronica Torres, SangEun Yeom, Sarah Polk","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Implementation of evidence-based interventions to reduce depression among uninsured Latinx patients who are at high risk of depression are rare.</p><p><strong>Objectives: </strong>Our goal was to evaluate Strong Minds, a language and culturally tailored, evidence-based intervention adapted from cognitive behavioral therapy (CBT) for mild-moderate depression and anxiety, delivered by community health workers (CHWs) in Spanish to uninsured Latinx immigrants.</p><p><strong>Methods: </strong>As part of the pilot, 35 participants, recruited from a free community primary care clinic, completed Strong Minds. Assessments and poststudy interviews were conducted. Paired t-tests were used to assess change of depressive symptoms at 3 and 6 months.</p><p><strong>Lessons learned: </strong>CHW delivery of depression care to this population was feasible and among those who completed the program, preliminary evidence of depression outcomes suggests potential benefit. CHWs had specific training and support needs related to mental health care delivery.</p><p><strong>Conclusions: </strong>Further implementation studies of depression care interventions using CHWs for underserved Latinx is needed.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140871812","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Will Boles, Lauren Nguyen, Thad Tatum, Jarrod Wall, Alexandria Van Dall, Anjali Niyogi, Anna Sacks, Bruce Reilly, Claire Mulhollem, Ashley Wennerstrom
{"title":"A Qualitative Program Evaluation of a Digital Peer Support Group for Formerly Incarcerated People.","authors":"Will Boles, Lauren Nguyen, Thad Tatum, Jarrod Wall, Alexandria Van Dall, Anjali Niyogi, Anna Sacks, Bruce Reilly, Claire Mulhollem, Ashley Wennerstrom","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471419","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Catalina Tang Yan, Yichen Jin, Emily Chalfin, Linda Sprague Martinez
{"title":"Interrogation, Negotiation, and Subversion of Power Differentials in Community-Based Participatory Research: A Scoping Review.","authors":"Catalina Tang Yan, Yichen Jin, Emily Chalfin, Linda Sprague Martinez","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Objectives: </strong>To review empirical and peer-reviewed scholarly articles incorporating community-based participatory research approaches and examining discourses of how power differentials are interrogated, negotiated, and redressed within the partnerships using scoping review methodology following The Joanna Briggs Institute framework and Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA).</p><p><strong>Data sources: </strong>Articles were identified across five online databases: Embase, ERIC, PsycINFO, PubMed, and Web of Science.</p><p><strong>Review methods: </strong>Keywords used in the search strategy were (\"Community-Based Participatory Research\" OR \"Participa-tory Action Research\"). Peer-reviewed scholarly articles discussing in-depth power differentials within the partnership published in English between 2010 and 2020 were included.</p><p><strong>Results: </strong>Findings indicate scholars use critical reflexive qualitative methodologies to recognize and raise relevant questions of power issues between researchers and community stakeholders. Examination of individual biases, assumptions, and exertion of hierarchical top-down power is identified extensively. There is limited analysis on institutional and interdependent power. As a result of raising questions regarding power issues, individual actions to address emerging tensions and conflicts were reported. However, discussions on researchers' efforts to effect institutional and structural changes to redress power imbalances were limited.</p><p><strong>Conclusions: </strong>Building strong and equitable participatory action research collaborations between researchers and community stakeholders remains an arena of continuous struggle. This review offers some insights and relevant implications to better address power issues within participatory action research partnerships and inform the work of professionals engaged in the development, implementation, and evaluation of health promotion initiatives and policies.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471545","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Kyle J Moon, Lauren N Bauman, Meghanne E Tighe, J Mike Coman, Kathy Schuth, Cheryl Walsh, Heidi A Beidinger-Burnett, Matthew L Sisk, Marya Lieberman
{"title":"Mulch Madness: A Community-Academic Partnership for Lead Poisoning Prevention.","authors":"Kyle J Moon, Lauren N Bauman, Meghanne E Tighe, J Mike Coman, Kathy Schuth, Cheryl Walsh, Heidi A Beidinger-Burnett, Matthew L Sisk, Marya Lieberman","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Soil constitutes a major source of childhood lead exposure, disproportionately affecting communities of color. Mulching offers a low-cost interim control.</p><p><strong>Objectives: </strong>A community-academic partnership was established for lead poisoning prevention, with a three-fold aim: (1) control soil lead hazards by applying mulch, (2) identify home lead hazards with screening kits, and (3) connect residents to resources to address lead hazards.</p><p><strong>Methods: </strong>Student volunteers canvassed neighborhoods one month prior to the annual event. They requested consent for mulching, distributed lead screening kits, and screened residents for grant eligibility. Soil samples were collected from each home before mulching. According to principles of community-based participatory research, materials and plans were iterative, guided and adjusted by neighborhood association feedback, and detailed reports about home lead results were shared with each participating resident. Composite neighborhood data and survey results were shared with volunteers and community partners.</p><p><strong>Results: </strong>The project was evaluated in the third (41 homes) and fourth (48 homes) years of implementation. Before mulching, the median soil lead level was over 400 ppm, and after mulching, it was less than 20 ppm. Lead screening kits identified widespread lead hazards in paint, soil, and dust, but not water. Challenges remain in (a) increasing child blood lead testing and (b) increasing submissions for city grant funding for lead abatement. Evaluation surveys indicate a sense of ownership in the project among community partners and high levels of engagement among students.</p><p><strong>Conclusions: </strong>Community-academic partnerships are an effective tool for lead poisoning prevention, generating evidence for public health action.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141471548","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jennifer Coury, Gloria D Coronado, Emily Myers, Mary Patzel, Jamie Thompson, Courtney Whidden-Rivera, Melinda M Davis
{"title":"Engaging with Rural Communities for Colorectal Cancer Screening Outreach Using Modified Boot Camp Translation.","authors":"Jennifer Coury, Gloria D Coronado, Emily Myers, Mary Patzel, Jamie Thompson, Courtney Whidden-Rivera, Melinda M Davis","doi":"","DOIUrl":"","url":null,"abstract":"<p><strong>Background: </strong>Colorectal cancer (CRC) incidence and mortality are disproportionately high among rural residents and Medicaid enrollees.</p><p><strong>Objectives: </strong>To address disparities, we used a modified community engagement approach, Boot Camp Translation (BCT). Research partners, an advisory board, and the rural community informed messaging about CRC outreach and a mailed fecal immunochemical test program.</p><p><strong>Methods: </strong>Eligible rural patients (English-speaking and ages 50-74) and clinic staff involved in patient outreach participated in a BCT conducted virtually over two months. We applied qualitative analysis to BCT transcripts and field notes.</p><p><strong>Results: </strong>Key themes included: the importance of directly communicating about the seriousness of cancer, leveraging close clinic-patient relationships, and communicating the test safety, ease, and low cost.</p><p><strong>Conclusions: </strong>Using a modified version of BCT delivered in a virtual format, we were able to successfully capture community input to adapt a CRC outreach program for use in rural settings. Program materials will be tested during a pragmatic trial to address rural CRC screening disparities.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":null,"pages":null},"PeriodicalIF":1.1,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11047025/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140858750","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}