Progress in Community Health Partnerships-Research Education and Action最新文献

{"title":"Lessons Learned from a Parkinson's Research Patient Advisory Board Model with Academic Centers.","authors":"Megan Dini, Karlin Schroeder, Jori E Fleisher, Martie Carnie, Benzi M Kluger, Sandhya Seshadri, Lance Wilson, Melissa J Armstrong, Christiana Evers, Casey Gallagher, Patricia Davies, Megan Feeney","doi":"10.1353/cpr.2025.a965357","DOIUrl":"10.1353/cpr.2025.a965357","url":null,"abstract":"<p><strong>Background: </strong>There is minimal comparative effectiveness research (CER) in Parkinson's disease (PD). Engaging people with PD in the research process through patient advisory boards (PAB) is one way to address this gap.</p><p><strong>Objectives: </strong>To describe the project model and lessons learned from a PAB pilot project in five Parkinson's Foundation Centers of Excellence in CER.</p><p><strong>Methods: </strong>A virtual training and toolkit on patient engagement, PABs and CER was created and used to implement PABs. Satisfaction and impact of the PAB training and pilot model was assessed via surveys.Results and Lessons Learned: PAB participants (n = 28) felt the training was comprehensive, their feedback was prioritized, and impacted the PAB goal of developing a CER question. Recommendations include giving clinic staff protected time for patient engagement and providing funding.</p><p><strong>Conclusions: </strong>The developed model led to an increase in participation in CER and effectively trained staff, people with PD and care partners in patient engagement.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"201-212"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733935","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Understanding Research Participation Experiences Among Persons Identifying as African, Caribbean, and Black in British Columbia.","authors":"Tsion Gebremedhen, Amber R Campbell, Patience Magagula, Rebecca Gormley, Charity V Mudhikwa, Evelyn J Maan, Hélène C F Côté, Melanie C M Murray, Angela Kaida","doi":"10.1353/cpr.2025.a965352","DOIUrl":"https://doi.org/10.1353/cpr.2025.a965352","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"e3-e4"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Utilizing the Community Health Club Model to Improve COVID-19 Vaccine Confidence Among Latina Women.","authors":"Allison Vasak, Garrett Kneese, Monica Martinez, Adriana Ibañez, Theresa Heines, Chintal Patel, Alexys DeGuzman, Robert Epstein, Esmeralda Ibarra, Jason Rosenfeld","doi":"10.1353/cpr.2025.a956592","DOIUrl":"10.1353/cpr.2025.a956592","url":null,"abstract":"<p><strong>Background: </strong>COVID-19 vaccine hesitancy is a widespread issue, especially among communities of color. Latino/a communities have faced higher rates of infection, hospitalization, and death from COVID-19, while eliciting higher vaccine hesitancy rates. Using Community Health Clubs established in the Lower Rio Grande Valley, community health workers (CHWs), along with a team of medical students and public health experts, developed and implemented a virtual club-based platform aimed at inspiring confidence in the COVID-19 vaccine.</p><p><strong>Objectives: </strong>Through a campus-community partnership, this project aimed to increase confidence in the COVID-19 vaccine among Latina women in the Lower Rio Grande Valley.</p><p><strong>Methods: </strong>A four-session vaccine education curriculum, informed by club member concerns and co-developed by medical students and community health workers, was implemented over 2 months. The program was evaluated using a quasi-experimental design comparing outcomes among 62 program participants and a matched control group.</p><p><strong>Results: </strong>Participants had 2.33 times the odds of receiving at least one dose of the vaccine compared with individuals in the control group. Furthermore, 97% of participants felt confident or very confident in their ability to share learned information and 90% of participants reporting sharing information with 3 or more peers.</p><p><strong>Conclusions: </strong>Collaboration among community health workers, medical students, and public health experts to develop an education curriculum aimed at addressing community identified needs has proven to be effective at improving trust in vaccinations and increasing self-reported vaccination rates among Latina women on the Texas-Mexico border. Adapting these clubs to additional vulnerable communities could be effective in aiding vaccination efforts and improving health literacy.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"1-12"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144033333","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Spirituality and Well-Being: Community Perspectives from The Flint Women's Study.","authors":"Tatiana E Bustos, Jennifer E Johnson, Kent Key, Raven Miller, Fallon Richie, Bryan Spencer, Monicia Summers, Constance Currier, Maji Hailemariam","doi":"10.1353/cpr.2025.a970146","DOIUrl":"https://doi.org/10.1353/cpr.2025.a970146","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 3","pages":"e1"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Best Practices for CEnR Partnerships for Health Equity.","authors":"Patrice Forrester, Abdou Simon Senghor, C Daniel Mullins, Michelle Medeiros, Claudia Baquet, Donald L Wright, T Joseph Mattingly","doi":"10.1353/cpr.2025.a956591","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956591","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"e7-e8"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144034115","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Engagement Quality, Partnership Processes, and Network Characteristics of a Community-Academic Collaboration to Advance Health Equity.","authors":"Lisa A Cooper, Katherine B Dietz, Christina T Yuan, Kathryn A Carson, Benjamin P L Meza, Christina Vincent, Chioma Onuoha, Hsin-Chieh Yeh, Deidra C Crews, Chidinma A Ibe, Jill A Marsteller, Michelle Simmons, Debra Hickman, Lee R Bone","doi":"10.1353/cpr.2025.a956593","DOIUrl":"https://doi.org/10.1353/cpr.2025.a956593","url":null,"abstract":"<p><strong>Objective: </strong>To assess engagement quality, partnership processes, and network characteristics of a community-academic research collaboration.</p><p><strong>Methods: </strong>We surveyed community and academic members of a community advisory board (CAB) in Baltimore, Maryland (December 2019 to August 2020) to assess demographics, health equity work experiences, quality of community engagement and partnership, and collaborative networks among members.</p><p><strong>Results: </strong>Fifty-four members completed the survey (77% response rate). Members reported a median of 10 years of health equity work experience and 2 years serving on the CAB. Community (non-academic) members rated the quality of community engagement and most domains of partnership, except quality of decision-making, as high (~4/5). CAB members reported collaborative ties, on average, with 16 to 17 other members. Academic members had nearly twice the ties of community members. Community members' number of ties and engagement ratings were not associated.</p><p><strong>Conclusions: </strong>In this CAB, collaborative ties were numerous. Although community members rated the CAB's engagement and partnership quality favorably on several dimensions, additional efforts to enhance decision-making processes and members' influence and outreach within the network could further promote achievement of the CAB's goals.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 1","pages":"13-23"},"PeriodicalIF":0.8,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144017578","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Utilization of the RADx-UP Image Bank: A Digital Photography Repository.","authors":"Emily D Finley, Helena Pike Welch, Mary Lindsley, Hailey Leiva, Rosa Gonzalez-Guarda","doi":"10.1353/cpr.2025.a965364","DOIUrl":"10.1353/cpr.2025.a965364","url":null,"abstract":"<p><p>The use of recruitment materials that reflect individuals and their communities increases the likelihood of those individuals participating in research, particularly among underrepresented populations. The Rapid Acceleration of Diagnostics-Underserved Populations (RADx-UP) Image Bank is a digital repository of photographs from diverse communities participating in the National Institutes of Health's RADx-UP initiative, which aims to increase access to COVID-19 testing in communities across the United States. The Image Bank was created to provide representative and accessible imagery to the RADx-UP consortium for use in promotional, educational, and dissemination materials. Photographs have been incorporated into various research dissemination channels including e-newsletters, webpages, and social media graphics. The Image Bank could serve as a model for other consortiums, researchers, or programs who seek to create communications and materials that reflect and are inclusive of the focused population(s).</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"255-260"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733933","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"… Work Really Is Being Done and It's Very Worthwhile …\": Reflections from Community Advisory Board Members.","authors":"Deborah Chassler, Craig McClay, Madeline D'Onfro, Tracy Battaglia, Andrea Macone, Jennifer Kimball, Derek Reynolds, Jess Tilley, Linda Sprague Martinez","doi":"10.1353/cpr.2025.a965359","DOIUrl":"10.1353/cpr.2025.a965359","url":null,"abstract":"<p><strong>Background: </strong>The federally-funded four-state HEALing Communities Study (HCS) aims to reduce fatal opioid overdoses. Each state was required to establish a Community Advisory Board (CAB). CABs have the potential to shape research priorities, ensuring relevance to affected communities.</p><p><strong>Objectives: </strong>Describe personal and professional benefits of Massachusetts HCS CAB participation. Discuss strategies that promote HCS-MA CAB member benefits.</p><p><strong>Methods: </strong>Nineteen of 20 HCS-MA CAB members responded to prompts: How has your involvement in the CAB impacted you as an individual, in your work in the community, and on the study? Consider the personal and professional benefits. Responses were analyzed using Thematic Analysis.</p><p><strong>Lessons learned: </strong>Benefits of serving on the HCS-MA CAB included mutual learning in an \"honest and open space,\" forming new relationships, and pride and gratitude in working together on a shared goal.</p><p><strong>Conclusions: </strong>The results of this case study suggest how valuable community engagement and sharing multiple ways of knowing can be for CAB members.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"219-226"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Addressing Sexual Consent: Youth Participatory Action Research with the New York City Department of Health.","authors":"Vivian Cortes, Molly Berman, Clariza Yvette Acevedo, Erica D Perez, Estelle Raboni, Jane Bedell","doi":"10.1353/cpr.2025.a970157","DOIUrl":"https://doi.org/10.1353/cpr.2025.a970157","url":null,"abstract":"<p><strong>Background: </strong>The adolescent sexual health program of the New York City Department of Health conducted a Youth Participatory Action Research project.</p><p><strong>Objectives: </strong>To partner with youth and community leaders in the design of a public awareness campaign on sexual consent communication.</p><p><strong>Methods: </strong>In the research phase, youth served as co-researchers for twelve focus groups with 113 New York City youth. Youth-centered thematic analysis of transcripts was conducted. In the action phase, youth participated in concept development, scripting, and filming to produce three videos.</p><p><strong>Results: </strong>Youth-partnered research identified how \"awkward\" it can be for youth to communicate sexual consent verbally or non-verbally while navigating factors like relationship dynamics, substance use, technology, and social media. The action phase leveraged findings to design videos which garnered more than 100,000 views.</p><p><strong>Conclusions: </strong>This paper provides an overview of a Youth Participatory Action Research project conducted with a health department, highlighting some lessons learned and recommendations.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 3","pages":"355-363"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145187179","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Academic Institutional Barriers and Facilitators to Community-Based Participatory Research.","authors":"Nolan Kline, Stacey Griner, Malinee Neelamegam, Nathaniel Webb, Srivennela Veeramachaneni, Deborah Morris-Harris, John Carlo, Jonathan Guadian, Barbara Dunlap","doi":"10.1353/cpr.2025.a965358","DOIUrl":"10.1353/cpr.2025.a965358","url":null,"abstract":"<p><strong>Background: </strong>Collaborative research between researchers and community members can meaningfully address public health concerns. Collaboration can be complicated, however, due to unanticipated challenges stemming from academic institutions. This article describes how academic institutions can hinder and facilitate community-based research.</p><p><strong>Objectives: </strong>We evaluated a research partnership focused on structural determinants of COVID-19 vaccine hesitancy among Latinx people who (1) have a precarious immigration status; (2) are sexual and gender minorities; and (3) can become pregnant.</p><p><strong>Methods: </strong>We completed a process evaluation with community organization partners who collaborated on the study. We asked community partners to describe benefits and challenges of collaborating with academic institutions.</p><p><strong>Lessons learned: </strong>Our evaluation revealed institutional challenges to successful community-based partnerships, including institutional review board delays and institutional expectations that failed to understand grassroots community organizations. Using the concept of bureaucratic violence, we describe how academic institutions can constrain community-based research and provide suggestions for how academic partners might overcome institutional hurdles.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"19 2","pages":"213-218"},"PeriodicalIF":0.6,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144733929","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}