Progress in Community Health Partnerships-Research Education and Action最新文献

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Assessing Queer, Trans, and Non-monogamous Youths' Experiences in a Community-based Research Project on Gender Equity. 基于社区的性别平等研究项目评估酷儿、跨性别和非一夫一妻制青年的经历。
IF 0.6 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a987065
Zoë Osborne, Colby Hangle, Sadie Stephenson, Tadiwa Nemutambwe, Gem Yelin Lee, Stevie Thompson, Anita Raj, Angela Kaida, Kalysha Closson
{"title":"Assessing Queer, Trans, and Non-monogamous Youths' Experiences in a Community-based Research Project on Gender Equity.","authors":"Zoë Osborne, Colby Hangle, Sadie Stephenson, Tadiwa Nemutambwe, Gem Yelin Lee, Stevie Thompson, Anita Raj, Angela Kaida, Kalysha Closson","doi":"10.1353/cpr.2026.a987065","DOIUrl":"https://doi.org/10.1353/cpr.2026.a987065","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"e7-e8"},"PeriodicalIF":0.6,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624124","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Indigenous Community Research Partnerships: The Development of an Open-access Training Resource to Promote Community-centered and -driven Research. 土著社区研究伙伴关系:开发开放获取的培训资源以促进以社区为中心和驱动的研究。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a993197
Janet Jull, Melody E Morton Ninomiya, Lindsay Marie Brant, Priscilla Ferrazzi, Jaime Flamenbaum, Moses Gordon, Ian D Graham, Darrel Manitowabi, Angela Mashford-Pringle, Penny Moody-Corbett, Patricia O'Campo, Rebecca Sweetman, Cassandra Wajuntah, Malcolm King, Alexandra King
{"title":"Indigenous Community Research Partnerships: The Development of an Open-access Training Resource to Promote Community-centered and -driven Research.","authors":"Janet Jull, Melody E Morton Ninomiya, Lindsay Marie Brant, Priscilla Ferrazzi, Jaime Flamenbaum, Moses Gordon, Ian D Graham, Darrel Manitowabi, Angela Mashford-Pringle, Penny Moody-Corbett, Patricia O'Campo, Rebecca Sweetman, Cassandra Wajuntah, Malcolm King, Alexandra King","doi":"10.1353/cpr.2026.a993197","DOIUrl":"10.1353/cpr.2026.a993197","url":null,"abstract":"<p><p>Indigenous Community Research Partnerships is an open-access online training resource. It supports researchers and others in academic and institutional research settings to engage in learning about ethical and equitable research partnerships that respect and honor Indigenous priorities and benefits in research. Our interdisciplinary team of Indigenous and non-Indigenous researchers, with the support and encouragement of community partners, have developed the training resource to promote community-centered and -driven research approaches through all aspects of the research lifecycle. A survey of learners who have used the training resource perceive it as a positive and helpful resource. We are working to obtain support to engage in a fulsome evaluation of the training resource by and with Indigenous partners. We propose the training resource has potential to complement initiatives that advance Indigenous self-determination and research sovereignty.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"277-284"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Evaluating an Academic Health Department During a Pandemic: Lessons Learned. 在大流行期间评估学术卫生部门:吸取的教训。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a993199
Pamela Xaverius, Darcell Scharff, Spring Schmidt, Jeanine Arrighi, Alex Morris, Caroline Merck, Shreya Jain, Jilliam Root, Meghan Weihmuller
{"title":"Evaluating an Academic Health Department During a Pandemic: Lessons Learned.","authors":"Pamela Xaverius, Darcell Scharff, Spring Schmidt, Jeanine Arrighi, Alex Morris, Caroline Merck, Shreya Jain, Jilliam Root, Meghan Weihmuller","doi":"10.1353/cpr.2026.a993199","DOIUrl":"10.1353/cpr.2026.a993199","url":null,"abstract":"<p><strong>Background: </strong>Academic Health Departments (AHDs) are the mutually beneficial relationship between the study and practice of public health. Few studies have evaluated both the necessary infrastructure and how to best implement an AHD.</p><p><strong>Objective: </strong>This study evaluated the St. Louis AHD in its first 3 years of development, using both the using the Coalition Effectiveness Inventory (CEI: infrastructure) and Collaboration Factors Inventory (CFI: implementation).</p><p><strong>Methods: </strong>This was a prospective cross-sectional study evaluating the formal initiation of an AHD between two local health departments and an accredited school of public health. Surveys were electronically distributed to staff, faculty and students at each of the three sites. The main outcome measures included Level of Engagement, CFI and CEI.</p><p><strong>Results: </strong>There was significantly more collaboration after implementation of the AHD (30% vs. 16%; P = 0.01). The 63 participants who completed the CEI Time 1 (M = 2.01) were compared to the 53 participants who completed the CEI Time 2 (M = 2.15) and there was no significant difference in composite CEI scores, t (113.988) = -1.10, p = 0.28. One CEI subscale, broad-based-involvement, was found to be significantly higher in Time 2, t(113.654) = -2.22, p = 0.05. The 63 participants who completed the CFI Time 1 (M = 3.57) were compared to the 53 participants who completed the CFI Time 2 (M = 3.27). There was a significant decrease in the composite CFI score, t (113.766) = 2.79, p = 0.05.</p><p><strong>Conclusions: </strong>AHD development is strengthened through leadership and formalized organizational infrastructure.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"293-302"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346901","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Inviting Participants to the Table: Application of the Data Placemats for Disseminating Research Results. 邀请与会者:数据垫在传播研究成果中的应用。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a993195
Sarah Yeo, Abby M Lohr, Irene G Sia, Mark L Wieland, Joan M Griffin
{"title":"Inviting Participants to the Table: Application of the Data Placemats for Disseminating Research Results.","authors":"Sarah Yeo, Abby M Lohr, Irene G Sia, Mark L Wieland, Joan M Griffin","doi":"10.1353/cpr.2026.a993195","DOIUrl":"10.1353/cpr.2026.a993195","url":null,"abstract":"<p><p>This report examines the application of the data placemat method for disseminating research results, drawing on insights from two case studies working with immigrant and refugee groups. Additionally, it provides practical recommendations for researchers considering adopting this approach. This method can help researchers organize data in a coherent and accessible manner, providing participants with a succinct summary of results. It provides a means to validate research findings by incorporating perspectives from study participants and addressing potential ambiguities that may arise during initial data analysis. Most important, it could foster robust, lasting relationships with immigrant and minority groups.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"263-270"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Innovative Pathways to Oral Health Workforce Resilience: Introducing the CHC-MIF for Mentorship-Driven Strategies in Underserved Settings. 口腔卫生人力弹性的创新途径:在服务不足的环境中引入CHC-MIF的指导驱动策略。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a1001927
Kalyana Ponangi
{"title":"Innovative Pathways to Oral Health Workforce Resilience: Introducing the CHC-MIF for Mentorship-Driven Strategies in Underserved Settings.","authors":"Kalyana Ponangi","doi":"10.1353/cpr.2026.a1001927","DOIUrl":"https://doi.org/10.1353/cpr.2026.a1001927","url":null,"abstract":"<p><strong>Objectives: </strong>To reflect on personal experiences in community health centers (CHCs) and federally qualified health centers to highlight mentorship as an underutilized tool for addressing oral health workforce shortages, recruitment, and retention.</p><p><strong>Methods: </strong>Narrative reflection based on the author's lived experiences as a dentist in CHCs since graduation and as an adjunct faculty mentor, synthesized with literature from 2020 to 2025.</p><p><strong>Results: </strong>Financial incentives dominate CHC strategies, but mentorship fosters confidence and retention for new graduates. The proposed CHC Mentorship Integration Framework offers a structured approach to bridge post-graduation gaps. The CHC Mentorship Integration Framework comprises three interconnected components: formal on-site one-on-one clinical mentorship, structured professional development training over 6 to 12 months, and peer/network-based support.</p><p><strong>Conclusions: </strong>Prioritizing mentorship over monetary benefits can transform CHCs into appealing career destinations, advancing equitable oral health access through resilient, mission-aligned teams.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 3","pages":"447-450"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070218","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Community-Driven Toolkit to Improve Rural Emergency Department Accessibility for Autistic Children and Their Families. 一个社区驱动的工具包,以改善农村急诊科的无障碍自闭症儿童及其家庭。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a1001926
Sabrina Kabakov, Alyssa Smith, Allison Caudill, Jessica Veltus, Rose Cutting, Alana Woolley, Karla Ausderau
{"title":"A Community-Driven Toolkit to Improve Rural Emergency Department Accessibility for Autistic Children and Their Families.","authors":"Sabrina Kabakov, Alyssa Smith, Allison Caudill, Jessica Veltus, Rose Cutting, Alana Woolley, Karla Ausderau","doi":"10.1353/cpr.2026.a1001926","DOIUrl":"https://doi.org/10.1353/cpr.2026.a1001926","url":null,"abstract":"<p><p>Autism core characteristics and sensory processing differences can create significant barriers to families accessing and children receiving emergency health care in the heightened sensory and fast-paced environment of emergency departments (EDs), particularly in rural communities. This project aimed to use a community-collaborative approach to develop and disseminate educational materials, recommend ED environmental modifications, and implement sensory regulation supports to enhance the capacity of health care providers and staff in supporting autistic children within rural ED settings. An interdisciplinary community-academic partnership team including researchers, graduate students, parents, an autistic focused organization, health care providers, and hospital staff used an iterative process to co-create materials. The collaboration yielded a multifaceted toolkit with high acceptability from health care team members. The toolkit products included educational materials, environmental adaptations, and sensory-friendly tools. Future research should explore toolkit modifications to allow for implementation across unique ED contexts and assess health care related outcomes to measure toolkit effectiveness.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 3","pages":"437-446"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070422","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
An Indigenous Community-Based Approach to Tuberculosis Control in Rural East Sumba, East Nusa Tenggara, Indonesia. 印度尼西亚东努沙登加拉东松巴农村地区土著社区结核病控制方法。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a1001919
Yunita Fitrianti, Ardi Bastian, Wahyu Dwi Astuti, Santi Dwiningsih, Sri Handayani, Diyan Ermawan Effendi, Arief Priyo Nugroho
{"title":"An Indigenous Community-Based Approach to Tuberculosis Control in Rural East Sumba, East Nusa Tenggara, Indonesia.","authors":"Yunita Fitrianti, Ardi Bastian, Wahyu Dwi Astuti, Santi Dwiningsih, Sri Handayani, Diyan Ermawan Effendi, Arief Priyo Nugroho","doi":"10.1353/cpr.2026.a1001919","DOIUrl":"https://doi.org/10.1353/cpr.2026.a1001919","url":null,"abstract":"<p><strong>Background: </strong>Indonesia ranks second globally in tuberculosis (TB) burden, including East Sumba and East Nusa Tenggara. Due to structural barriers and cultural beliefs, case detection is persistently challenging.</p><p><strong>Objective: </strong>This study aimed to explore structural and cultural barriers to TB case detection in rural East Sumba and to develop and implement culturally grounded, community-driven strategies to strengthen local TB control efforts.</p><p><strong>Methods: </strong>A participatory action research approach was conducted from 2017 to 2018 in six rural villages of the Umalulu District, engaging traditional leaders (wunang, ratu), shamans, health cadres, and government stakeholders. Data were collected through focus group discussions, indepth interviews, participant observations, and document reviews, and were analyzed thematically.</p><p><strong>Results: </strong>The study was conducted in three phases between 2017 and 2018 in the Umalulu Sub-district of East Sumba, Indonesia. The first phase identified local understandings of TB and barriers to sputum collection through collaboration with indigenous leaders (wunang, ratu, and shamans) and health workers. The second phase implemented training and community empowerment to engage these leaders as agents of change in TB education, referral, and sputum collection. The third phase reflected on the implementation through interviews, document reviews, and field observations. The findings show that involving indigenous leaders helped bridge biomedical and local health beliefs, increased community awareness of TB symptoms, and strengthened collaboration between health services and communities. However, public spitting and reliance on traditional healing remain barriers to TB prevention.</p><p><strong>Conclusion: </strong>This study highlights the importance of culturally grounded, community-driven strategies for strengthening TB control efforts in culturally diverse settings.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 3","pages":"363-372"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070513","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Indigenous SIPin: Proof of Concept of a Sugar-Sweetened Beverage Reduction Intervention for Native American Men. 土著SIPin:美国土著男性减少含糖饮料干预的概念证明。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a1001925
Karen Hye-Cheon Kim Yeary, Jamie Zoellner, Han Yu, Robert L Newton, Elizabeth DiCarlo, Corinne Porter, William Maybee, Hugh Burnam, Josie Raphaelito, Isaac White, Ranatanonwes Francis, Ahasanul Fahim, Laticia McNaughton, Rodney Haring
{"title":"Indigenous SIPin: Proof of Concept of a Sugar-Sweetened Beverage Reduction Intervention for Native American Men.","authors":"Karen Hye-Cheon Kim Yeary, Jamie Zoellner, Han Yu, Robert L Newton, Elizabeth DiCarlo, Corinne Porter, William Maybee, Hugh Burnam, Josie Raphaelito, Isaac White, Ranatanonwes Francis, Ahasanul Fahim, Laticia McNaughton, Rodney Haring","doi":"10.1353/cpr.2026.a1001925","DOIUrl":"10.1353/cpr.2026.a1001925","url":null,"abstract":"<p><strong>Background: </strong>Sugar-sweetened beverages (SSBs) (e.g., soda/pop, juices, sports drinks, energy drinks) is the largest single food source of calories in the United States, and intake is disproportionately high among Native American (NA) men. Yet SSB interventions for this population are not available.</p><p><strong>Objectives: </strong>We conducted a proof-of-concept study of an SSB intervention (Indigenous SIPin) in 30 NA men who play lacrosse. Co-developed with NA communities using participatory approaches and guided by an Indigenous-informed theoretical framework, the intervention included group classes, recap videos, and text messages.</p><p><strong>Methods: </strong>Mixed methods were used to collect data at baseline and post intervention (6-month follow-up) to assess feasibility of recruitment, assessment, and intervention delivery; participant intervention satisfaction; and the intervention's impact on SSB intake.</p><p><strong>Lessons learned: </strong>Lessons learned included intervention expansion to engage sports teams other than lacrosse, recruiting pre-established teams, shortening intervention duration, and delivering fewer text messages.</p><p><strong>Conclusions: </strong>Using participatory approaches to conduct a proof-of-concept study was an efficient strategy that we recommend to others who work with Indigenous populations.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 3","pages":"425-435"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"149070270","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
In Memoriam: Honoring Barbara Israel, Pioneering Champion of Community-Based Participatory Research. 纪念芭芭拉·伊斯雷尔,社区参与性研究的先驱。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a993183
{"title":"<i>In Memoriam</i>: Honoring Barbara Israel, Pioneering Champion of Community-Based Participatory Research.","authors":"","doi":"10.1353/cpr.2026.a993183","DOIUrl":"https://doi.org/10.1353/cpr.2026.a993183","url":null,"abstract":"","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 2","pages":"171-172"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148346783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Roadmap for Development of Community Engagement: Early Lessons Learned From the RECOVER Initiative. 社区参与发展路线图:从“恢复倡议”中吸取的早期经验教训。
IF 0.9 4区 医学
Progress in Community Health Partnerships-Research Education and Action Pub Date : 2026-01-01 DOI: 10.1353/cpr.2026.a987081
Brittany D Taylor, Stephanie L Albert, Heather K Marti, Sarah E Donohue, Leah Castro-Baucom, Gelise Thomas, Jasmine Briscoe, Alicia Chung, H Shonna Yin, Nasser Sharareh, Janelle Linton, Jacqueline Lindsay, Felicia D Blakely, Zanthia Wiley, Carol R Horowitz, Paul J Thuluvath, Hassan Brim, Hassan Ashktorab, Adeyinka O Laiyemo, Zaki A Sherif, Kim F Rhoads, Recover Initiative Natasha J Williams
{"title":"A Roadmap for Development of Community Engagement: Early Lessons Learned From the RECOVER Initiative.","authors":"Brittany D Taylor, Stephanie L Albert, Heather K Marti, Sarah E Donohue, Leah Castro-Baucom, Gelise Thomas, Jasmine Briscoe, Alicia Chung, H Shonna Yin, Nasser Sharareh, Janelle Linton, Jacqueline Lindsay, Felicia D Blakely, Zanthia Wiley, Carol R Horowitz, Paul J Thuluvath, Hassan Brim, Hassan Ashktorab, Adeyinka O Laiyemo, Zaki A Sherif, Kim F Rhoads, Recover Initiative Natasha J Williams","doi":"10.1353/cpr.2026.a987081","DOIUrl":"10.1353/cpr.2026.a987081","url":null,"abstract":"<p><strong>Background: </strong>Best practices for engaging patients and the community in biomedical research evolved significantly in recent years. However, few focus on patient engagement in the design and implementation of a national study.</p><p><strong>Objectives: </strong>To describe the initial engagement development and implementation; present findings from data collected during the first year; and discuss lessons learned.</p><p><strong>Methods: </strong>Data were collected as part of continuous quality improvement efforts to assess and refine the engagement strategy. Fifty-two patient, caregiver, and community representatives were invited to complete a brief online survey about their experience participating in a national initiative.</p><p><strong>Results: </strong>A framework for engagement was created and 35 representatives completed the survey (67% response rate). Representatives demonstrated awareness related to their roles and responsibilities. Seventy-six percent indicated that they felt comfortable expressing opinions and the decision-making process.</p><p><strong>Conclusions: </strong>The RECOVER initiative's approach promoted greater transparency and trust between researchers and the community, leading to more impactful engagement.</p>","PeriodicalId":46970,"journal":{"name":"Progress in Community Health Partnerships-Research Education and Action","volume":"20 1","pages":"161-170"},"PeriodicalIF":0.9,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147624141","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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