{"title":"Narrative futures of pregnancy sickness: reproduction, disability, animality.","authors":"Sophie A Jones","doi":"10.1136/medhum-2024-013032","DOIUrl":"10.1136/medhum-2024-013032","url":null,"abstract":"<p><p>In Sarah Hall's short story 'Mrs Fox', a man wakes to find his wife, Sophia, vomiting. When Sophia's nausea continues, he imagines her wasting from a rare cancer; instead, she mutates into a fox and, after a brief captivity at their home, leaves him for the woods, only to reappear months later with a litter he claims as his progeny. Sophia's sickness is belatedly revealed as nausea and vomiting of pregnancy (NVP), and her metamorphosis from human into fox seems to have been triggered by conception. NVP, or 'morning sickness' as it is colloquially known, tends to appear in culture as plot reveal or punchline but rarely as experience. This narrative marginalisation parallels the condition's medical status. In its most severe form, <i>hyperemesis gravidarum</i>, NVP can lead to malnutrition and other serious health complications. However, the condition often goes untreated, a situation that has been linked to cultural fears of congenital disability in the wake of thalidomide. Long assumed to derive from the pregnancy hormone human chorionic gonadotropin, NVP is the subject of new genetic research that may hold the potential for new therapeutic interventions. Yet this research may also reinforce the theory that NVP is an evolutionary mechanism designed to isolate pregnant people from pathogens during the first trimester. In this article, I draw on this context to read 'Mrs Fox' as an ironic allegory of the 'evolutionary safety net' explanation for NVP. Drawing on work at the intersection of disability justice and reproductive justice, I argue that the therapeutic futures opened up by new research into NVP spotlight the need for closer attention to narratives of gestational sickness.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"670-677"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142755538","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Towards a transformative health humanities approach in teaching the Sustainable Development Goals (SDGs).","authors":"Eivind Engebretsen","doi":"10.1136/medhum-2023-012855","DOIUrl":"10.1136/medhum-2023-012855","url":null,"abstract":"<p><p>The adoption of the United Nations' Sustainable Development Goals (SDGs) marks a significant shift in global political agendas, emphasising sustainability in various fields, including health. To engage meaningfully with sustainability, a transformative educational approach is essential. Lange's concept of transformative learning encompasses three levels: personal and cognitive change (micro level), changes in our interactions with others and the environment (meso level) and societal changes (macro level). This paper posits that applying health humanities approaches, particularly narrative medicine, can enhance transformative education at these three levels, leading to a powerful, transformative health humanities framework for teaching sustainability and the SDGs. This interdisciplinary method, which includes reflective self-assessment, exploration of different relational perspectives and social reality comprehension, facilitates transformative learning. However, implementing this transformative strategy requires a critical reassessment of some core principles and methods within the existing health humanities paradigm.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"740-747"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877093/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141421381","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Towards a critical posthumanist perspective on participatory design.","authors":"Tony Prescott, Julie M Robillard, Stuart Murray","doi":"10.1136/medhum-2024-013078","DOIUrl":"10.1136/medhum-2024-013078","url":null,"abstract":"<p><p>Participatory design places a strong emphasis on human agency, user perspectives and democratic ideals of inclusivity and empowerment, and is therefore often associated with humanist principles and values. In contrast, critical posthumanism questions key humanist assumptions about the centred and singular nature of the 'human condition'. Instead, posthumanism points to the evolving and diverse lived experiences of people and how these are transformed by (and are transforming of) culture, environment and technology. In this commentary, we explore how participatory design could benefit from a posthumanist perspective that more explicitly acknowledges the entangled and interconnected nature of our technologised lives.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":"50 4","pages":"715-716"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877099/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142923481","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Instrumentalising the imagination: science fiction prototyping as posthumanist methodology.","authors":"Michael Szollosy","doi":"10.1136/medhum-2024-013057","DOIUrl":"https://doi.org/10.1136/medhum-2024-013057","url":null,"abstract":"<p><p>Imagination and narrative are of vital importance in understanding how we conceive of our potential (disability) futures, and the role technology has in shaping our realities. The concept of 'science fiction prototyping' (SFP) is not only useful for articulating how narrative can be used to foster imaginations about potential future worlds, but also for creating a methodology through which we can understand how the imagination can work as a tool for co-designing better futures. Johnson's conception of SFP (2011) serves as a useful starting place, but we need to more critically examine this (and related) conceptions. As Johnson himself admits, his is more of a 'how-to book' than a scholarly framework for research, and the key ideas that underpin his concept of SFP (eg, imagination, narrative) are underdeveloped. Most importantly, for all the claims as SFP being part of an exercise in 'future casting', the assumptions that are the foundations of Johnson's book are resolutely and obsoletely humanist, despite co-design methodologies inherently reaching for something beyond the old humanist categories. By closely recontextualising SFP and examining its ideological origins, we will find important new directions to exploit and use in our work. Specifically, we explore how a more thoroughly conceived and developed SFP methodology is a posthumanist approach to co-design that better builds on a self-reflexive understanding of how cultural imaginations and our futures both shape and are shaped by our interactions with technology. This allows us to create a better methodology for a co-design practice that is more explicitly aware of how we use narratives and talk about our futures, and helps us to bridge co-design practice with more critical ways of thinking about how posthuman imaginations (personal, social, cultural, political) are constructed and instrumentalised.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":"50 4","pages":"717-719"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142923457","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Beyond wrinkles: ageing, graphic medicine, and Zidrou and Aimée de Jongh's <i>Blossoms in Autumn</i>.","authors":"Livine Ancy A, Sathyaraj Venkatesan","doi":"10.1136/medhum-2024-012898","DOIUrl":"10.1136/medhum-2024-012898","url":null,"abstract":"<p><p>Ageing, an inevitable biological process, is often oversimplified, subjecting elderly individuals to both positive and negative sociocultural stereotypes. Elderly individuals are stigmatised as passive, suffering and asexual, while simultaneously being expected to embody an active, successful and productive approach towards ageing. Departing from these narrow perceptions, this article draws examples from Zidrou and Aimée de Jongh's graphic narrative <i>Blossoms in Autumn</i> to provide a nuanced perspective on the ageing process. Using the affordances of comics, this essay examines how <i>Blossoms in Autumn</i> addresses unarticulated aspects of ageing, including changing bodily features, sexuality and intimacy, among others. In so doing, this essay challenges the unilateral perceptions of ageing.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"748-754"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914255","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Hidden in plain sight: the covering of patients' eyes and a microethics of medical photography.","authors":"Christine Slobogin","doi":"10.1136/medhum-2024-012894","DOIUrl":"10.1136/medhum-2024-012894","url":null,"abstract":"<p><p>This article uses the author's experience of researching historical photographs of facial injury and surgical reconstruction to think through the ethics of writing about and publishing images of patients anonymised by excising or covering their eyes. This article specifically highlights tensions between the <i>British Medical Journal</i>'s guidelines for patient anonymity in imagery and those of the archives of the British Association of Plastic, Reconstructive and Aesthetic Surgeons. The rules for reproducing these sensitive images are not standardised across disciplines nor across journals and medical archives. But by using lived academic experience, visual analysis and philosophical enquiry, a flexible personal directive (or microethics) for working with these images can be reached.In order to more fully understand where the present-day suggestion of and debates around blocking out patients' eyes for anonymity come from, this ethical analysis is tied back to the historical precedent of Harold Gillies' 1920 publication <i>Plastic Surgery of the Face</i>, in which civilians' eyes are covered. Theories of looking and of photography unpick some of the complex ideas that these images raise regarding patient agency in medical imagery. This article will have direct application for any researcher grappling with similarly difficult material wondering how to frame their own microethics or ethics in practice for discussing, showing or publishing these types of images.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"770-778"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914234","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Black bodies in phenomenological bioethics: cultural othering, 'Corporeal Uncanny' and ethical quandaries of black nurses in <i>Take My Hand</i> and <i>Small Great Things</i>.","authors":"Adhitya Balasubramanian, Padmanabhan Balasubramanian","doi":"10.1136/medhum-2024-012906","DOIUrl":"10.1136/medhum-2024-012906","url":null,"abstract":"<p><p>The aims of the present article are twofold. First, it attempts to theorise the thematic and ontological intersection between phenomenological and black bioethics and proposes 'Ontic-Black Bioethics', a neologism to evince how the corporeal misconceptions (such as race construct, bodily othering and colourism) become the cultural impediment for black women healthcare professionals. The article draws specific insights from the philosophical anthropology of race, ranging from Richard Polt to Sarah Ahmed, to understand the epistemic structures of scientific racism. Second, it investigates how the racial attitudes of white healthcare professionals and supremacist patients towards black nurses can be potential triggers of cultural othering, corporeal burden and ethical quandaries by closely reading <i>Take My Hand</i> by Dolen Perkins-Valdez (2022) and <i>Small Great Things</i> by Jodi Picoult (2016). For this, the article relies on the theoretical frameworks of cultural phenomenology and somatic attention postulated by Thomas Csordas, Philipa Rothfield and other theoreticians of varying importance. While the corporeality of black nurses is replete with the images of biological misconception and racial-cultural constructs, the epistemic perspectives and literary representations underscoring their bodily and experiential agony have been scarcely examined through the lenses of bioethics. Thus, the article construes the corporeality of black nurses as the confluence of biological and cultural discourses under phenomenological bioethics.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"720-727"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141499327","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"From othering to belonging: a framework for DEI history-telling and strategising.","authors":"April Edwell, Jennifer Edwell","doi":"10.1136/medhum-2023-012656","DOIUrl":"10.1136/medhum-2023-012656","url":null,"abstract":"<p><p>The medical profession in the USA is-and has long been-a segregated workforce. Currently, just 5.0% of all US physicians are black. Understanding the origins and mechanisms of this disparity is essential to creating a future where black healing and healers are supported by our medical system. In pursuit of this future, this article offers 'othering' and 'belonging' as frames of analysis and intervention for diversity and equity initiatives.Building on previous historical studies of racism in medicine, this project reveals how the figure of the 'American physician' was created through exclusionary/othering tactics. In part 1, we analyse antebellum historical sources to demonstrate the role of medicine in creating and promulgating racial categories and hierarchies. Next, in part 2, we explore the historical conditions that produced the American physician as a significant professional identity by analysing texts by the American Medical Association and affiliated state medical societies. Then, we turn towards solutions in part 3. To redress inequities produced by othering, particularly the continued exclusion of black people from the medical profession, we argue that medical leaders should cultivate a professional culture of belonging. As we will explain, belonging goes beyond tolerating and respecting difference; it entails shared culture, equal rights and inclusive structures.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"755-763"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914256","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jamie Preece, Emma Sullivan, Fin Tams-Gray, Graham Pullin
{"title":"Making my voice and owning its future.","authors":"Jamie Preece, Emma Sullivan, Fin Tams-Gray, Graham Pullin","doi":"10.1136/medhum-2024-013021","DOIUrl":"10.1136/medhum-2024-013021","url":null,"abstract":"<p><p>This article explores disabled experience and the future of technologies relating to augmentative and alternative communication (AAC). This field includes people's use of AAC devices, typically in combination with other modes of communication, including vocalising, revoicing and body language. Such devices have speech technology and digital voices built into them and we will consider who could be said to have ownership of these technologies. We will also explore the role that people who use AAC have in making their AAC-and how this also contributes to shaping its future. The meanings of 'voice', 'making' and 'ownership' in the context of AAC are many. Yet too often the relationship between these is presented as if it is singular and straightforward. This paper will start by considering the most prevalent, obvious interpretations and build alternative and more complex directions from there. One of the authors uses AAC and is constantly personalising his software, editing and remaking it to reflect his needs and current thinking, representing his voice in ways that he feels ownership of; another is a life partner and can also be thought of as being part of his AAC. Two authors are researchers in an art school, where the act of making things in studios and workshops is inseparable from creative authorship and ownership. Together, all four authors are exploring the meaning and making of speech technology, experimenting with and appropriating it in ways not anticipated by its developers. This paper is a hybrid of voices: disabled and non-disabled; academic and non-academic coresearchers; designers and codesigners. Its unconventional format is intended to reflect the unconventional relationship between the researchers and to represent the conversation between these different voices.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"624-634"},"PeriodicalIF":1.2,"publicationDate":"2025-01-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877047/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142630294","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}