Medical Humanities最新文献

{"title":"'Finally making sense': graphic medicine and ADHD diagnosis in adulthood.","authors":"Sathyaraj Venkatesan, Prerna Tolani","doi":"10.1136/medhum-2024-012991","DOIUrl":"10.1136/medhum-2024-012991","url":null,"abstract":"<p><p>This article aims to examine the lived experiences of attention-deficit/hyperactivity disorder (ADHD) diagnosis in adulthood, emphasising its revelatory nature and diverse emotional responses it provokes. The diagnosis serves as a pivotal moment of self-discovery, often evoking feelings of validation and identity affirmation. However, it also triggers a complex array of emotions, including grieving for the childhood self, frustration with society's failure to recognise the legitimate challenges and evolving self-concept post diagnosis. Through a close reading of digitally published comics by Laura Balcerek, Amber Lewis and Juliette Yu-Ming Lizeray, this article studies how the graphic medium conveys these nuanced experiences. By dissecting narrative and visual elements inherent in the comics, the article studies the affordances of the comic medium to capture the lived experiences of ADHD diagnosis in adulthood. Ultimately, this article intends to deepen understanding of the diverse lived realities and underscores the expressive potential of graphic narratives of neurodivergence.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"172-179"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142899130","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patients as knowledge partners in the context of complex chronic conditions.","authors":"Vox Jo Hsu, Megan Moodie, Abigail A Dumes, Emily Lim Rogers, Chelsey Carter, Emma Broder, Daisy Couture, Ilana Löwy, Emily Mendenhall","doi":"10.1136/medhum-2024-012957","DOIUrl":"10.1136/medhum-2024-012957","url":null,"abstract":"<p><p>This article conveys how taking patient knowledge seriously can improve patient experience and further medical science. In clinical contexts related to infection-associated chronic conditions and other complex chronic illnesses, patient knowledge is often undervalued, even when clinicians have limited training in diagnosing and treating a particular condition. Despite growing acknowledgement of the importance of patients as 'stakeholders', clinicians and medical researchers have yet to fully develop ways to evaluate and, when appropriate, meaningfully incorporate patient knowledge-experiential, scientific, social scientific, historical or otherwise-into clinical practice and research. We argue that there are opportunities for clinicians and researchers to collaborate with patients and colleagues from the social sciences and humanities. We use two examples to demonstrate why patient knowledge should inform medical engagement with chronic and complex conditions. The first comes from a disability studies scholar who describes the social biases that can sideline patient expertise, and the second is from an anthropologist whose reading in medical humanities led to an effective treatment for her recovery. Rather than merely acknowledging 'lived experience', clinical and research teams should include patients with complex chronic conditions as 'knowledge partners'. These patients occupy unique and valuable epistemological positions, and their knowledge should be considered with as much openness and rigour as other forms of medical knowledge. As more medical schools, residency programmes and hospitals emphasise the need for 'deep listening' and patient input, we encourage meaningful engagement with patients whose insights can provide crucial knowledge for clinical and scientific advancement.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"34-38"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877039/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141724717","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Expectation, emotion and the built environment: experiences of occupying hospital spaces as a loved one nears the end of life.","authors":"Rebecca Mclaughlan","doi":"10.1136/medhum-2024-012989","DOIUrl":"10.1136/medhum-2024-012989","url":null,"abstract":"<p><p>Following a 3-year long research project that gathered 146 views, including those of palliative care patients, family members, medical staff, administrators, architects and government representatives, this paper explores the hypothesis that motivated this work; a hunch that the built environment affects us most during times of intense vulnerability. Of these 146 people, only a small handful could provide insight relative to the experience of occupying hospital spaces as a loved one nears the end of life. This article honours these stories and discusses them in relation to my own observations and experiences. The article is thus part observation, part participant interview, part autoethnography. Findings already published from the broader study have spoken to the importance of fresh air, access to nature, spaces for spending time with family, as well as alone, and ensuring people feel comfortable to enact rituals of home within the hospital. Yet the accounts discussed here are different. They speak to the subtle ways that hospital environments communicate when emotions are raw, and people are at their most exhausted. They speak to the ways that aesthetics are <i>felt</i>; and make evident that notions of homeliness must encompass far more at the end of life. A sense of welcome is not a nicety but a need, as is comfort, and what might be termed 'imaginative respite'-the idea that the built environment might somehow alleviate the focus on an unbearable reality. These accounts speak to the difficulty of navigating grief, and a hopeful expectation that the built environment might somehow soften the edges of this experience. In focusing on these stories, this article contributes a deeper understanding of what is really at stake when we design for palliative care.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"86-95"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877016/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113287","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transformational healing: the phenomenology of fulfilment in the face of adversity.","authors":"Drew Leder, Kevin Aho","doi":"10.1136/medhum-2024-012993","DOIUrl":"10.1136/medhum-2024-012993","url":null,"abstract":"<p><p>In the last two decades, there has been an explosion of scholarship in the phenomenology of health and illness of great practical significance for clinicians and the allied health professions. 'Healing' has been distinguished from medical 'cure' insofar as it involves a process of existential re-integration even in the face of ongoing illness and incapacity. This article goes further than much existing literature in the field: it examines ways in which illness can trigger for some '<i>transformational</i> healing'-that is, not simply a return to previous functioning, but positive alterations that open one's life to enhanced fulfilment, authenticity and/or connection. Using philosophical resources and 'pathographies', first-person accounts of illness and healing, we examine six forms, often interconnected, of transformational healing. These involve, in turn: <i>vulnerability, intimacy, resilience, presence, gratitude and transcendence</i> In placing a spotlight on ways in which serious illness, injury and disability can inform positive transformations, we are not minimising the suffering often associated with such conditions. Nonetheless, many individuals experience life-enhancements despite, or even because of, the effects of suffering which can reveal personal strengths, deepened intimacy with others and heightened appreciation of life. The possibility of transformational healing, while far from a universal experience, has personal, philosophical and clinical significance not to be overlooked.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"59-66"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141914235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An Editor's farewell.","authors":"Brandy Schillace","doi":"10.1136/medhum-2025-013259","DOIUrl":"https://doi.org/10.1136/medhum-2025-013259","url":null,"abstract":"","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":"51 1","pages":"1"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143494196","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring the GP-patient relationship: a historical narration.","authors":"Emma Ladds","doi":"10.1136/medhum-2024-012916","DOIUrl":"10.1136/medhum-2024-012916","url":null,"abstract":"<p><p>The relationship between patients and their doctor is a fundamental concept-particularly within general practice. Many patients and general practitioners (GPs) have a 'common-sense' recognition of the interpersonal connection, usually over time, that makes a relationship meaningful. GPs have consistently striven to emphasise the importance of this connection. While much research has explored the components and influences affecting intersubjective connections, less attention has focused on how the historical, professional, sociopolitical and philosophical contexts have influenced their experience and portrayal. However, recent claims of a crisis in UK general practice resulting from declining relational encounters suggest these are important considerations. In this paper, episodic narration (chronicling) is used to explore five different ages of UK general practice: the emergent period (1815-1948); the expansion of coverage (1949-1965); the professionalisation of general practice (1966-1988); the age of marketisation and neoliberalisation (1989-2004); and the age of technology and fragmentation (2004-present day). A range of sources illustrate micro and macro viewpoints within each period-personal reflections, professional publications, political directives or policies, and representations from the fields of art and literature. This allows for a deeper exploration of contextual influences on the codification and enactment of GP-patient relationships over time and their interpretation and perception. Significant epidemiological and biomedical realities and their respective social interpretation(s), the socioprofessional nature of the GP, that is, their role, societal position and framework of practice, and broader sociopolitical and philosophical factors are explored. Ideological frameworks (from socialism to free market policies and neoliberalism) were particularly important. These determine approaches to funding, service/provider structures, and regulation and governance, which incentivise, enable, or inhibit choices and behaviours among individuals and society, thus impacting the enactment of the GP-patient relationship. If meaningful GP-patient connections are valuable and desirable-as GPs consistently claim they are-we require an honest discussion about the contexts necessary to enable and retain them.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"112-122"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510174","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Through the door: reimagining care and medical humanities.","authors":"Sabina Dosani","doi":"10.1136/medhum-2025-013258","DOIUrl":"https://doi.org/10.1136/medhum-2025-013258","url":null,"abstract":"","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":"51 1","pages":"2-3"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143494199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Stories of chronic illness: exploring qualitative data through poetic transcriptions.","authors":"Margaret Simmons, Gabriela Carolus, Mahima Kalla","doi":"10.1136/medhum-2024-012918","DOIUrl":"10.1136/medhum-2024-012918","url":null,"abstract":"<p><p>As a research technique, poetic transcription transforms people's stories and enables deeper analysis and engagement between participants, readers and researchers. Chronic illness is often characterised as a 'biographical disruption', which may threaten a patient's self-identity and equanimity. Such disruptions often influence patients' perceptions of imminent life changes, social relationships and cognitive and material resources. Thus, poetic transcription offers a valuable tool for making sense of complex illnesses and lived experiences. This paper demonstrates how raw interview data can be reconstructed into a poetic format to highlight the nuances of people's lived illness experiences, which may remain elusive to them and others. A qualitative survey was conducted with a small group of patient participants, eliciting chronic illness narratives analysed through poetic transcription. Poetic transcription becomes a rigorous and legitimate qualitative research method through multiple iterations and extensive data engagement. Our main themes are focused on biographical disruption, temporality, humour, voice and ableism.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"96-101"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Migration and mental health care in South Africa: the question of language in context.","authors":"Christine Anthonissen, Rowan Madzamba, Asithandile Nozewu, Warona Mateane, Leslie Swartz, Sanna Higgen, Brian Hall, Mike Moesko","doi":"10.1136/medhum-2024-012908","DOIUrl":"10.1136/medhum-2024-012908","url":null,"abstract":"<p><p>Access to mental healthcare for migrants is a global problem, with many challenges and barriers, including the issue of language discordance. Most research on this topic comes from well-resourced countries such as those in Europe, Northern America, and Australasia despite the fact that most migration occurs from poorer contexts, such as many in Africa, into more closely situated countries. As an introductory part of a broader international study, we started out investigating the views of key stakeholders in South Africa on language barriers to accessing mental healthcare for migrants and suggestions for how to address these. Two senior researchers interviewed a total of 10 key stakeholders (mental health and primary healthcare providers, some also users of mental healthcare, policymakers in mental healthcare, and refugee centre coordinators) virtually, using semistructured interviews. Interview recordings were transcribed and the content was analysed. The following key themes emerged from our data: general barriers to mental healthcare; linguistic barriers to mental healthcare; proposed solutions to overcoming language discordance and alternatives suggested by professionals and mental health service users. Issues of language were intertwined with a range of other service delivery and political problems. The issue of lack of language concordance is a major concern in providing mental healthcare for migrants in South Africa. This is, however, by no means the only concern, as access to care in general is poor. Innovative, cost-effective local solutions are needed to bridge the enormous gap between needs and service provision.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"147-153"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142773601","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"'You come as a human being…': exploring sense of equality in arts interventions through an ethnographic study of Shared Reading.","authors":"Mette Marie Kristensen, Morten Hulvej Rod, Peter Simonsen, Anna Paldam Folker","doi":"10.1136/medhum-2024-012963","DOIUrl":"10.1136/medhum-2024-012963","url":null,"abstract":"<p><p>Research shows that the arts hold a particular potential for promoting health, well-being and social inclusion for vulnerable people. However, the use and consumption of the arts tend to be socially skewed in favour of people with high cultural, social and economic capital. While extensive research has been conducted on how to create equal access to arts activities for vulnerable groups, little research has investigated how to ensure meaningful engagement with the arts by this group. Shared Reading (SR) has had considerable success in engaging vulnerable groups in collective literary practices, and research suggests that this may partly be due to the unique forms of social and literary engagement that the concept fosters. These forms of engagement, we suggest, lay the foundation for a sense of equality among participants that may promote social connectedness and well-being. On this basis, the present study aims to investigate whether and how a sense of equality may play a role in SR practices. The study found that SR promotes a sense of equality by creating a space where social interaction and relatedness does not hinge on social roles, but rather on lived experiences-and vulnerabilities inherent to these-conveyed through literary texts and shared among participants. However, to promote a sense of equality in SR, meaningful engagement for all participants must be ensured, making facilitation an essential element of SR practices and an important focus in arts interventions in general. We conclude that SR, and arts interventions more generally, may be a promising way to promote a sense of equality, but further research is needed on the specific qualities of and potential contexts for the promotion of a sense of equality.</p>","PeriodicalId":46435,"journal":{"name":"Medical Humanities","volume":" ","pages":"4-12"},"PeriodicalIF":1.2,"publicationDate":"2025-02-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11877066/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141560042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"社会学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}