{"title":"A New Normality Illuminated by Past and Present! A Qualitative Study: Experiences and Challenges of Everyday Life in Patients With Advanced Heart or Lung Failure.","authors":"Jytte Graarup, Ida Elisabeth Højskov","doi":"10.1177/23333936221140374","DOIUrl":"https://doi.org/10.1177/23333936221140374","url":null,"abstract":"<p><p>The aim of this study was to gain insight into the phenomena of everyday life as experienced and coped with by patients living with advanced heart or lung failure. We employed a qualitative design using a phenomenological hermeneutic approach. Data derived from 10 nursing consultations in a holistic setting. Ricoeur's theory of interpretation inspired the text analysis. The study emphasizes time (past, present, and future) as an overall everyday life theme, playing an essential role associated with improvements or poor outcomes related to physical, mental, and intersubjective challenges. Patients accepted and lived with the challenges, experiencing changes, as transition, but also coped with their new normal, which involved improvements or poor outcomes, some invisible to the community. Assumptions about everyday life changed significantly, the changes possibly essential for intersubjective relations. A reflective approach, can help patients to evolve, using knowledge from the past and present to cope with the future.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-11-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/46/5b/10.1177_23333936221140374.PMC9716626.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"35344735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Paula Kelly, Maggie Quance, Nicole Snow, Caroline Porr
{"title":"Using Institutional Ethnography to Explicate the Everyday Realities of Nurses' Work in Labor and Delivery.","authors":"Paula Kelly, Maggie Quance, Nicole Snow, Caroline Porr","doi":"10.1177/23333936221137576","DOIUrl":"10.1177/23333936221137576","url":null,"abstract":"<p><p>Fetal health surveillance is a significant everyday work responsibility for labor and delivery nurses. Here, nursing care is increasingly focused on technological interventions, particularly with the use of continuous electronic fetal monitoring. Using Institutional Ethnography, we explored how nurses conduct this work and uncovered the ruling relations coordinating how nurses \"do\" fetal health surveillance. Analysis revealed how these powerful ruling relations associated with the biomedical and medical-legal discourses coordinated nurses' fetal monitoring work. Forms requiring documentation of biophysical data caused nurses to focus on technological interventions with much less attention given to holistic and supportive care measures. In doing so, nurses inadvertently activated and participated in these powerful ruling discourses. The practice of ensuring the safe birth of the baby through advances in technological surveillance and medical interventions took priority over well-established approaches to holistic nursing care.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2022-11-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/a3/9d/10.1177_23333936221137576.PMC9703482.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40518232","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lillian Akorfa Ohene, Angela Kwartemaa Acheampong, Gladys Dzansi, Josephine Kyei, Charles Ampong Adjei, Samuel Adjorlolo, Isabella Naana Akyaa Asante, Philomena Woolley, Felix Nyante, Lydia Aziato
{"title":"The Image of Nurses and Midwives in Ghana: Patient and Family Perspectives.","authors":"Lillian Akorfa Ohene, Angela Kwartemaa Acheampong, Gladys Dzansi, Josephine Kyei, Charles Ampong Adjei, Samuel Adjorlolo, Isabella Naana Akyaa Asante, Philomena Woolley, Felix Nyante, Lydia Aziato","doi":"10.1177/23333936221137584","DOIUrl":"https://doi.org/10.1177/23333936221137584","url":null,"abstract":"<p><p>This study aims to explore the perceptions of patients and family caregivers on the image of nurses and midwives in Ghana. The study adopted a qualitative exploratory descriptive approach. A total of 25 participants were interviewed during data collection. Content and thematic analysis were applied in the data analysis to develop themes. The findings are captured under two major themes that describe the primary influences on participant images of nurses: Thus, (1) <i>nurses' and midwives' attributes</i> with four subthemes; <i>staff appearance, communication strategies and behaviors, work attitudes, and professional competence</i> and (2) <i>patients' status</i> and subthemes were; <i>uneducated poor and educated rich.</i> We conclude that patients and families in Ghana recognize the professional attributes of the nurse and midwife, which reflect in their personality, grooming, communication, competencies, and attitudes. However, low publicity of the professional roles of nurses and midwives may have negative repercussions for their professional image. A policy to perform a regular public audit on the image of the Nurse/Midwife is important for professional advancement.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/2c/22/10.1177_23333936221137584.PMC9685108.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40499682","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"Machine-Dependent\": The Lived Experiences of Patients Receiving Hemodialysis in Pakistan.","authors":"Haseeba Shouket, Eyal Gringart, Dierdre Drake, Ulrich Steinwandel","doi":"10.1177/23333936221128240","DOIUrl":"https://doi.org/10.1177/23333936221128240","url":null,"abstract":"<p><p>This study aimed to explore the lived experiences of patients receiving maintenance hemodialysis in Pakistan. Purposive sampling was used to recruit 24 patients and six healthcare professionals, each participated in a semi-structured interview. Interpretive Phenomenological Analysis was used to analyze interviews' data. Two superordinate themes, \"The experience of hemodialysis\" and \"The conceptualizations of hemodialysis\" as well as six sub-themes were identified. The experience of hemodialysis was related to, the implications of HD procedure on everyday life, social, cognitive, emotional, financial, and occupational influences. While all participants recognized the importance of hemodialysis for their survival, their conceptualizations of the treatment varied. Despite facing multiple challenges, optimism and independence were observed among participants. Stigma related to hemodialysis, and role adaptation, which appear unique to the Pakistani context, highlight a need for tailored interventions designed to enhance and maintain the mental health of patients receiving hemodialysis in Pakistan.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/e5/9d/10.1177_23333936221128240.PMC9669685.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40697735","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Untenable Expectations: Nurses' Work in the Context of Medication Administration, Error, and the Organization.","authors":"Sara F Hawkins, Janice M Morse","doi":"10.1177/23333936221131779","DOIUrl":"https://doi.org/10.1177/23333936221131779","url":null,"abstract":"<p><p>We explored nurses' work in the context of medication administration, errors, and the organization. Secondary analysis of ethnographic data included 92 hours of non-participant observation, and 37 unstructured interviews with nurses, administrators, and pharmacists. Think-aloud observations and analysis of institutional documents supplemented these data. Findings revealed the nature of nurses' work was characterized by <i>chasing a standard of care</i>, <i>prioritizing practice</i>, and <i>renegotiating routines</i>. The rich description identified characteristics of nurses' work as cyclical, chaotic and complex shattering studies that explained nurses' work as linear. A new theoretical model was developed, illustrating the inseparability of nurses' work from contextual contingencies and enhancing our understanding of the cascading components of work that result in days that spin out of the nurses' control. These results deepen our understanding why present efforts targeting the reduction of medication errors may be ineffective and places administration accountable for the context in which medication errors occur.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-11-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/b8/e7/10.1177_23333936221131779.PMC9663611.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40479468","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Research Partnerships with Patients Living with Type 2 Diabetes: Practices and Challenges in Quebec Among People New to Canada.","authors":"Séraphin Balla, Maman Joyce Dogba, Monika Kastner","doi":"10.1177/23333936221129836","DOIUrl":"https://doi.org/10.1177/23333936221129836","url":null,"abstract":"<p><p>Patients are increasingly encouraged to participate in health research programs as partners, with the aim to ensure that studies address their priorities. In response, the Strategy for Patient-Oriented Research (SPOR) has been created in Canada to transform the patient's role in research from a passive beneficiary to a more proactive partner of change within the healthcare system. This research investigates what people new to Canada living with type 2 diabetes think about participating in research partnerships. Using an ethnographic approach, 31 people new to Canada with a diagnosis of type 2 diabetes were interviewed. Findings indicated that few people new to Canada were represented among the Diabetes Action Canada (DAC) Network's Circles of Patient Partners in Quebec. Barriers to engagement in research were: lack of information; competing priorities; language barrier and privacy concerns; preconceptions about being a patient partner; prejudices on research engagement as something demanding and binding; and the matter of religious and gender differences. Some participants questioned the extent to which involvement in research can really meet their expectations considering institutional control over research, funding requirements that often dictate priorities and the biomedical approach which still, in many respects, dominates health research. Implications for achieving equity, diversity, and inclusion of patient partners in research are discussed.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-10-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/94/26/10.1177_23333936221129836.PMC9629550.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40685691","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Indigenous Sami Family Caregivers' Experiences With Accessing and Collaborating With Municipal Health and Care Services.","authors":"Bodil H Blix, Mai-Camilla Munkejord","doi":"10.1177/23333936221123333","DOIUrl":"10.1177/23333936221123333","url":null,"abstract":"<p><p>Previous research has indicated that Indigenous Sami families in Norway use public home-based care services less often than their non-Sami peers. Based on qualitative interviews with Sami family caregivers, we explore what they experience as barriers to accessing public care services for older adults living with dementia, and how they experience collaborating with care services providers. Through a reflexive thematic approach, we identified that rather than a cultural norm of \"taking care of one's own,\" the underuse of public care services among Sami families were related to several intertwined circumstances. The Sami family caregivers reported barriers to accessing public care, such as lack of familiarity with the services and cultural and language concerns and the legacy of history, and drivers for continuing family care, such as blurred distribution of responsibility, lack of continuity of care, and culturally unsafe caring environments and marginalizing practices.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":2.2,"publicationDate":"2022-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/8c/28/10.1177_23333936221123333.PMC9479542.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40366449","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Challenging Behaviors as a Relational Phenomenon: Findings From a Qualitative Study in a Nursing Home in Norway.","authors":"Mai Camilla Munkejord, Laila Tingvold","doi":"10.1177/23333936221123331","DOIUrl":"https://doi.org/10.1177/23333936221123331","url":null,"abstract":"<p><p>Challenging behaviors are common in nursing homes. Drawing on rich qualitative data from fieldwork and in-depth interviews with staff in a nursing home in Norway, we will explore (a) how challenging behaviors unfolded, and (b) how such incidents were handled and talked about among staff. Our data is presented firstly through Anna's story as an introduction to discussing: (1) the problem of contrasting approaches to avoid challenging behaviors and (2) the importance of knowing the resident. Christopher's story then works as an introduction to discuss (3) the importance of understanding how to prioritize, (4) the importance of caring with connection and concern, and (5) the importance of sharing success stories among staff. In conclusion we argue that we should develop a more flexible organizational culture and a staffing practice in which care workers are empowered to use their discretion and thus to care for the residents with more connection and sensitivity than is currently the case.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-09-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/22/d3/10.1177_23333936221123331.PMC9479538.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40366448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"An Interpretive Description of Sociocultural Influences on Diabetes Self-Management Support in Nigeria.","authors":"Sandra Chinwe Iregbu, Wendy Duggleby, Jude Spiers, Bukola Salami","doi":"10.1177/23333936221121337","DOIUrl":"https://doi.org/10.1177/23333936221121337","url":null,"abstract":"<p><p>The purpose of this study is to explore how Nigeria's social and cultural environment influences professional diabetes self-management support practices. This interpretive descriptive study is based on two diabetes clinics in southeastern Nigeria. Nineteen healthcare providers, including nurses, were purposely selected and engaged in participant observation and interviews. Concurrent data generation and analysis facilitated iterative constant comparative analysis. Findings show significant factors influencing diabetes self-management support include belief in the supernatural origin of diabetes, individual-family interdependence, myths and limited understanding of diabetes, lack of health insurance, poverty, and the rigidity of a hierarchical acute care model of diabetes services. Thus, there is an urgent need to adapt diabetes self-management support strategies to fit people's contexts. By doing so, specific challenges in the healthcare system can directly be addressed while capitalizing on identified strengths and adapting select strategies that constructively foster person-centered and culturally appropriate care.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/67/a0/10.1177_23333936221121337.PMC9465563.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40358917","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Impact of COVID-19 on Women Who Are Refugees and Mothering: A Critical Ethnographic Study.","authors":"Shela Akbar Ali Hirani, Joan Wagner","doi":"10.1177/23333936221121335","DOIUrl":"https://doi.org/10.1177/23333936221121335","url":null,"abstract":"<p><p>Refugee women often experience trauma and social disconnection in a new country and are at risk of experiencing reduced physical, mental, and emotional well-being. Globally, COVID-19 has affected the health and well-being of the population at large. This critical ethnographic study aimed to explore the effects of COVID-19 on women who are refugees and mothering in Saskatchewan, Canada. In-depth interviews were undertaken with 27 women who are refugees and mothering young children aged 2 years and under. This study suggests that during COVID-19, refugee women are at high risk of experiencing add-on stressors due to isolation, difficulty in accessing health care, COVID-19-related restrictions in hospitals, limited follow-up care, limited social support, financial difficulties, and compromised nutrition. During COVID-19, collaborative efforts by nurses, other health-care professionals, and governmental and non-governmental organizations are essential to provide need-based mental health support, skills-building programs, nutritional counseling, and follow-up care to this vulnerable group.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":null,"pages":null},"PeriodicalIF":1.7,"publicationDate":"2022-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/a7/d1/10.1177_23333936221121335.PMC9465568.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"40358915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}