Global Qualitative Nursing Research最新文献_第10页

"It's Just Always Eating": The Experiences of Young People Growing up Medium Chain Acyl-coA Dehydrogenase Deficiency. “只是一直在吃”:中链酰基辅酶a脱氢酶缺乏症青少年的成长经历。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-08-16 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211032203

Hilary Piercy, Charlotte Nutting, Sufin Yap

{"title":"\"It's Just Always Eating\": The Experiences of Young People Growing up Medium Chain Acyl-coA Dehydrogenase Deficiency.","authors":"Hilary Piercy, Charlotte Nutting, Sufin Yap","doi":"10.1177/23333936211032203","DOIUrl":"https://doi.org/10.1177/23333936211032203","url":null,"abstract":"Medium chain acyl-CoA dehydrogenase deficiency (MCADD) is a rare metabolic disorder, and commonly now part of newborn screening programs. Those diagnosed at birth are now progressing from childhood to adulthood. The study aim was to explore young people's experiences of living with MCADD and managing their condition. A descriptive qualitative study design involving semi-structured interviews with 12 participants aged 10 to 15 years, recruited from one regional pediatric metabolic disorder service in England. Data were analyzed using thematic analysis. The two major themes were \"Eating for energy\" and \"Growing into a self-management role.\" Self-monitoring and self-management skills had been nurtured from early childhood by parents and healthcare providers. Young people's anxieties concerned having to maintain adequate energy input to stay safe and the associated burden of responsibility. Growing up with MCADD presents specific challenges. Self-management and ongoing support are important for dealing with those challenges.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211032203"},"PeriodicalIF":1.7,"publicationDate":"2021-08-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8375334/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39337648","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

"Human Flourishing with Dignity": A Meta-Ethnography of the Meaning of Gardens for Elderly in Nursing Homes and Residential Care Settings. "人类尊严的繁荣"：养老院和寄宿护理环境中老年人花园意义的元人类学研究。

IF 2.2

Global Qualitative Nursing Research Pub Date : 2021-07-31 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211035743

Inger-Lise Magnussen, Johanne Alteren, Terese Bondas

{"title":"\"Human Flourishing with Dignity\": A Meta-Ethnography of the Meaning of Gardens for Elderly in Nursing Homes and Residential Care Settings.","authors":"Inger-Lise Magnussen, Johanne Alteren, Terese Bondas","doi":"10.1177/23333936211035743","DOIUrl":"10.1177/23333936211035743","url":null,"abstract":"This study aims to identify and synthesize qualitative research regarding residents' experiences of gardens while living in nursing homes and residential care facilities. To provide an optimal nursing environment inspired by nature, we need to derive knowledge from the residents' perspective. An interpretive meta-synthesis approach, a meta-ethnography, was chosen for this study. Altogether, six articles representing three continents and comprising 124 participants were included. The six articles that fulfilled the inclusion criteria were analyzed and synthesized according to Noblit & Hare's seven phases of meta-ethnography and the recent eMERGe guidelines. Four themes were identified: (1) The garden-a place to feel a connection with life, (2) the garden-a place to sense and find comfort, (3) the garden-a place to feel healthy and alive, and (4) the garden-a place to relate past and present. An overarching metaphor, \"human flourishing with dignity,\" offers a deeper understanding of the meaning of the garden for older people in nursing homes and residential care. This meta-ethnography provides a reflective, systematic, data-driven synthesis based on literature spanning ten years. Rather than simply relying on retelling, the narration of experiences according to the primary researcher's descriptions and interpretations results in new knowledge. The significance of gardens for older people's health and well-being needs to be given greater attention and space in nursing practice, education, and health policies.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211035743"},"PeriodicalIF":2.2,"publicationDate":"2021-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8327254/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39299943","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

A Constructivist Grounded Theory of Staff Experiences Relating to Early Mobilisation of Mechanically Ventilated Patients in Intensive Care 基于建构主义的重症监护机械通气患者早期动员工作经验理论

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-07-31 DOI: 10.1177/23333936221074990

Catherine Clarissa, L. Salisbury, S. Rodgers, S. Kean

引用次数: 2

Uncovering Burdens, Examining Needs, and Shedding Assumptions of Evidence-Based Social Support Programs for Mothers: A Descriptive Qualitative Study in a Remote Community. 揭示负担，检查需求，摆脱基于证据的母亲社会支持计划的假设:一个偏远社区的描述性定性研究。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-07-31 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211035747

Johanna R Jahnke, Julee Waldrop, Alasia Ledford, Beatriz Martinez

{"title":"Uncovering Burdens, Examining Needs, and Shedding Assumptions of Evidence-Based Social Support Programs for Mothers: A Descriptive Qualitative Study in a Remote Community.","authors":"Johanna R Jahnke, Julee Waldrop, Alasia Ledford, Beatriz Martinez","doi":"10.1177/23333936211035747","DOIUrl":"https://doi.org/10.1177/23333936211035747","url":null,"abstract":"Many studies have demonstrated a significant burden of maternal stress and depression for women living on the Galápagos Islands. Here, we aim to uncover burdens and needs of women with young children on San Cristóbal Island and then explore options for implementing evidence-based programs of social support to meet these needs. We conducted 17 semi-structured qualitative interviews with mothers of young children, healthcare workers, and community stakeholders. We then used Summary Oral Reflective Analysis (SORA), an interactive methodology, for qualitative analysis. Despite initial reports of a low-stress environment, women described many sources of stress and concerns for their own and their children's health and well-being. We uncovered three broad areas of need for mothers of young children: (1) the need for information and services, (2) the need for trust, and (3) the need for space. In response to these concerns, mothers, healthcare workers, and community leaders overwhelmingly agreed that a social support program would be beneficial for the health of mothers and young children. Still, they expressed concern over the feasibility of such a program. To address these feasibility concerns, we propose that a web-based education and social support intervention led by nurses would best meet mothers' needs. Women could learn about child health and development, develop strong, trusting friendships with other mothers, and have their own space to speak freely among experts and peers.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211035747"},"PeriodicalIF":1.7,"publicationDate":"2021-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/23333936211035747","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39299945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Erratum to "Theory-driven, rapid formative research on quality improvement intervention for critical care of patients with COVID-19 in Argentina". 对“阿根廷COVID-19重症监护患者质量改进干预的理论驱动、快速形成性研究”的勘误。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-07-29 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211034634

引用次数: 0

The Role of African Nurse Diaspora in Addressing Public Health Priorities in Africa. 散居非洲护士在解决非洲公共卫生优先事项方面的作用。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-07-12 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211031501

Mabel Ezeonwu

引用次数: 1

Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities: A Thematic Analysis of Their Blogs. 探索荷兰父母照顾严重智力残疾和多重残疾儿童的经验:对他们博客的专题分析。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-06-30 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211028170

Liesbeth Geuze, Anne Goossensen

{"title":"Exploring the Experiences of Dutch Parents Caring for Children with Profound Intellectual and Multiple Disabilities: A Thematic Analysis of Their Blogs.","authors":"Liesbeth Geuze, Anne Goossensen","doi":"10.1177/23333936211028170","DOIUrl":"10.1177/23333936211028170","url":null,"abstract":"The current study analyzed blogs written by four Dutch parents of children with profound intellectual and multiple disabilities, with the aim of deepening the understanding of the parents' concerns. Thematic analysis was conducted and five main themes were identified: Dealing with uncertainties addressed the impact of unpredictability present in the everyday lives of parents, Love and loss described the complexity of concurrently cherishing the child and grieving various types of loss, Struggling with time, energy and finances detailed imbalances and struggles related to parents' personal resources, Feeling included in communities and society specified social consequences, and Relating to professional care services reflected on stress and support associated with professional care delivery. The study findings demonstrate how care professionals should acknowledge parents' vulnerabilities by being aware of their existential distress and empowering parents to exercise control of family thriving.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211028170"},"PeriodicalIF":1.7,"publicationDate":"2021-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/23333936211028170","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39185844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 7

Exploring the Impact of Technology-Facilitated Abuse and Its Relationship with Domestic Violence: A Qualitative Study on Experts' Perceptions. 探讨技术促进虐待的影响及其与家庭暴力的关系:一项专家认知的定性研究。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-06-29 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211028176

Renee Fiolet, Cynthia Brown, Molly Wellington, Karen Bentley, Kelsey Hegarty

{"title":"Exploring the Impact of Technology-Facilitated Abuse and Its Relationship with Domestic Violence: A Qualitative Study on Experts' Perceptions.","authors":"Renee Fiolet, Cynthia Brown, Molly Wellington, Karen Bentley, Kelsey Hegarty","doi":"10.1177/23333936211028176","DOIUrl":"https://doi.org/10.1177/23333936211028176","url":null,"abstract":"Technology-facilitated abuse can be a serious form of domestic violence. Little is known about the relationship between technology-facilitated abuse and other types of domestic violence, or the impact technology-facilitated abuse has on survivors. The aim of this interpretative descriptive study is to understand domestic violence specialist service providers' perspectives on the impact of technology-facilitated abuse, and the link between technology-facilitated abuse and other forms of domestic violence. A qualitative approach using 15 semi-structured interviews were undertaken with Australian domestic violence specialist practitioners, and three themes were identified through data coding using inductive thematic analysis. Another form of control describes technology-facilitated abuse behaviors as enacting controlling behaviors using new mediums. Amplifies level of fear characterizes the impact of technology-facilitated abuse. A powerful tool to engage others describes opportunities technology offers perpetrators to abuse through engaging others. Findings highlight technology-facilitated abuse's complexity and integral role in domestic violence and can assist clinicians to understand the impact and harm that can result from technology-facilitated abuse.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211028176"},"PeriodicalIF":1.7,"publicationDate":"2021-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1177/23333936211028176","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39185845","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 9

Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities. 照顾发育障碍儿童和青少年的父母的家庭适应策略和战略。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-06-29 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211028184

Elise J Matthews, Vivian Puplampu, Jan M Gelech

{"title":"Tactics and Strategies of Family Adaptation among Parents Caring for Children and Youth with Developmental Disabilities.","authors":"Elise J Matthews, Vivian Puplampu, Jan M Gelech","doi":"10.1177/23333936211028184","DOIUrl":"10.1177/23333936211028184","url":null,"abstract":"The stressors experienced by families caring for children and youth with developmental disabilities (DD) impact quality of life for all family members. Families employ creative practices to cope and thrive in the midst of such challenges. This study sought to understand the adaptive practices, tactics, and strategies engaged in by parents. We interviewed 39 parents of 46 children and youth with DD in Canada. Thematic analysis elucidated three categories of adaptations and twelve tactics and strategic actions at three ecological levels: within the system-adapting with everyday tactics and strategies; within our family-constructing spaces of care; within myself-adjusting perceptions of adversity. Our critical interpretation highlights an ecology of parental labor across varying psychosocial and health care service contexts in which parents strive to make a good life for their children and families. Nurses can empower and enhance their well-being by conducting holistic assessments and targeted family nursing interventions.","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"8 ","pages":"23333936211028184"},"PeriodicalIF":1.7,"publicationDate":"2021-06-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/da/40/10.1177_23333936211028184.PMC8246494.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"39185847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The Use of Ethnography in Maternity Care. 民族志在产妇护理中的应用。

IF 1.7

Global Qualitative Nursing Research Pub Date : 2021-06-28 eCollection Date: 2021-01-01 DOI: 10.1177/23333936211028187

Dominiek Coates, Christine Catling

引用次数: 3