Sara Raquel Machado Lemos, Luísa Maria Costa Andrade, Lígia Maria Monteiro Lima, Isabel Maria Fernández-Medina, Maria Do Céu Aguiar Barbieri-Figueiredo
{"title":"Lived Experience of Parents with Technology-Dependent Children: A Phenomenological Study.","authors":"Sara Raquel Machado Lemos, Luísa Maria Costa Andrade, Lígia Maria Monteiro Lima, Isabel Maria Fernández-Medina, Maria Do Céu Aguiar Barbieri-Figueiredo","doi":"10.1177/23333936241288858","DOIUrl":"10.1177/23333936241288858","url":null,"abstract":"<p><p>Caring for technology-dependent children significantly impacts the family unit, a topic that has not been researched in Portugal. Understanding this impact can help nurses to improve their interventions. This study aimed to describe the lived experiences of parents with technology-dependent children using a qualitative descriptive design. We applied Giorgi's approach to analyze 10 individual semi-structured interviews with parents recruited through a children's hospital in Portugal. Our analysis identified two major themes: (1) Discovering a new parenthood: parent and caregiver, comprising two subthemes: Family reorganization and Learning to use a medical device; (2) Reconciling daily life with the needs of the technology-dependent children, comprising two subthemes: Importance of support systems and Experiencing difficulties. These results indicate that parents experience a wide range of concerns and challenges in managing medical devices, starting from the moment the need for a device is communicated and continuing through the process of learning and providing care. This journey involves significant changes in family dynamics and is marked by sacrifice and adaptation, supported by family, formal support systems, and healthcare professionals. Our findings provide valuable insights into the vulnerabilities faced by these parents and highlight how nursing care can enhance the quality of care for these families.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241288858"},"PeriodicalIF":2.2,"publicationDate":"2024-11-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11565618/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142648093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jackson M C Montgomery, Alida Bouris, Kimberly A Stanford
{"title":"Assessing Barriers and Facilitators to Participation in a Nurse-Driven, Opt-Out HIV Screening Program in the Emergency Department.","authors":"Jackson M C Montgomery, Alida Bouris, Kimberly A Stanford","doi":"10.1177/23333936241292735","DOIUrl":"10.1177/23333936241292735","url":null,"abstract":"<p><p>Emergency department (ED) HIV screening is a key component of the strategy to end the HIV epidemic, reaching populations with limited access to care for screening and early diagnosis. Many screening programs rely primarily on participation from ED nurses; however, little is known about the factors affecting nurse participation in screening. Guided by the Consolidated Framework for Implementation Research, 20 semi-structured interviews were conducted with ED nurses to explore perceptions of HIV screening, barriers and facilitators to participation, and implementation insights. Nurses were categorized as either high adopters or low adopters based on the number of HIV tests ordered 3 months prior to interviews. The Stanford Lightning Report Method, a rapid qualitative analysis approach, was used to analyze field notes. All participants generally agreed that the ED was an appropriate location for screening and that frequent, multimodal education about screening was needed. Integration of screening into standard workflows, education about the public health impact of screening, and the use of peer champions and mentors were identified as important strategies to increase participation. By incorporating these findings into implementation strategies, EDs may be able to increase nurse participation in screening, addressing important health equity issues in HIV diagnosis.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241292735"},"PeriodicalIF":2.2,"publicationDate":"2024-11-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11531000/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142569579","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Liying Wang, Jane M Simoni, Wenzhe Hua, Lingxiao Chen, Huang Zheng, Zhen Ning, Weichao Yuwen
{"title":"Navigating Turbulent Waves of Emotions: Multi-Level Stress and Coping Among Chinese Men Who Have Sex with Men Living with HIV.","authors":"Liying Wang, Jane M Simoni, Wenzhe Hua, Lingxiao Chen, Huang Zheng, Zhen Ning, Weichao Yuwen","doi":"10.1177/23333936241292739","DOIUrl":"10.1177/23333936241292739","url":null,"abstract":"<p><p>Men who have sex with men (MSM) bear a disproportionate burden of HIV in China and are particularly vulnerable to mental health challenges. This study is phase one of a multi-phase project that aimed to identify unmet needs of MSM living with HIV to inform the development of a multi-level intervention. We interviewed 24 stakeholders through videoconferencing, including 15 MSM living with HIV, five staff from a community-based organization serving gender and sexual minority individuals, and four staff from the Centers for Disease Control and Prevention in Shanghai, China. We conducted content analysis using inductive and deductive coding and identified the following themes: 1) Navigating Turbulent Waters: multi-level stress currents; 2) Mapping Anchors: multifaceted support network; 3) Staying Afloat: Daily strategies and functioning; and 4) Charting New Courses: paths for intervention. Examining the stress and coping process among MSM living with HIV from a socio-ecological lens is especially important in the collective cultural context. The interactive nature of the stress from multiple socio-ecological levels, lack of individual coping skills, and scarcity of psychosocial services highlighted the importance of community-based, multi-level interventions to meet the needs of MSM living with HIV in China.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241292739"},"PeriodicalIF":2.2,"publicationDate":"2024-10-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11503825/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142510149","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Undignified Maternity Care During Childbirth: An Ethnographic Study on Midwives' Perspectives in a Community Healthcare Centre in South Africa.","authors":"Thandazile Adjunia Mayisela, Esther Lydie Wanko Keutchafo, Olivia Baorapetse Baloyi","doi":"10.1177/23333936241273096","DOIUrl":"https://doi.org/10.1177/23333936241273096","url":null,"abstract":"<p><p>Undignified care of women during labor has been associated with increased preventable maternal morbidity and mortality. The purpose of this study was to explore midwives' perspectives on undignified care of women in a midwife's obstetric unit within a rural community healthcare center in South Africa. Using ethnographic methods, seven midwives were recruited to participate in individual interviews and participant observations were conducted in the unit. Three main themes describing undignified care were identified based on an inductive analysis of observations and interview data. These included a lack of respect for women's bodily autonomy during labor, structural challenges in the provision of quality maternity care, and the lack of confidential care for women in labor and delivery. The study findings show that obstetric violence remains a serious crisis in the well-being of women during childbirth. Policy development by stakeholders in maternity care, including operational healthcare practitioners, should prioritize training, monitoring, and peer support on dignified care and curbing disrespect and abuse of women during childbirth, which seemed to be deeply rooted in the routine unorthodox treatment of childbirth.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273096"},"PeriodicalIF":2.2,"publicationDate":"2024-10-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11483786/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477332","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
María Atiénzar-Prieto, Shannon Dhollande, Silke Meyer, Diksha Sapkota, Karen-Ann Clarke
{"title":"Conceptualizing Domestic Violence Within Clinical Documentation.","authors":"María Atiénzar-Prieto, Shannon Dhollande, Silke Meyer, Diksha Sapkota, Karen-Ann Clarke","doi":"10.1177/23333936241271165","DOIUrl":"10.1177/23333936241271165","url":null,"abstract":"<p><p>Domestic and family violence (DFV) is a global issue with significant impacts on victim-survivors. The emergency department (ED) serves as the initial point of contact for victim-survivors. Given the significant role that clinical notes play in the management of patients and the communication between healthcare professionals, understanding how healthcare practitioners describe and document abuse reported in emergency settings is crucial. Yet, there remains a gap in understanding how health professional document DFV in the medical records of women presenting to the ED. Therefore, this qualitative descriptive study explored how DFV is documented in patient records of women presenting to the ED. Clinical notes from healthcare workers, including medical practitioners, nurses, social workers, mental health clinicians and ambulance officers, were qualitatively analyzed. Overall, the study included 43 presentations from 32 women (aged 18-56 years old) who visited a regional ED, during which instances of DFV were noted. An inductive content analysis resulted in the identification of four categories, including (a) DFV articulated in direct speech, (b) Unambiguous DFV, (c) Unconfirmed DFV, and (d) Problematic relationship. Although most references to DFV in the clinical notes included direct quotations from the patient's descriptions of abuse or were documented unambiguously by healthcare professionals, a notable number of clinical notes exhibited a degree of caution or reluctance to acknowledge DFV dynamics when describing these events. These findings support the need for sustained and consistent professional training among healthcare professionals concerning the identification, documentation, and response to disclosures, suspicions, and allegations of DFV to better support victim-survivors presenting to the ED and other hospital settings.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241271165"},"PeriodicalIF":2.2,"publicationDate":"2024-10-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11526218/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142559096","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ezra Bridgwater, Gagan Gill, Jennifer Ducharme, Jennifer Hensel
{"title":"Experiences and Perspectives of Transgender Individuals Accessing Gender-Affirming Care in Manitoba, Canada.","authors":"Ezra Bridgwater, Gagan Gill, Jennifer Ducharme, Jennifer Hensel","doi":"10.1177/23333936241273226","DOIUrl":"10.1177/23333936241273226","url":null,"abstract":"<p><p>As the number of trans people seeking gender-affirming care (GAC) continues to increase globally, it is increasingly important to understand the experiences of this patient population to improve healthcare delivery and ensure identified needs are being met. This qualitative descriptive study describes the experiences and perspectives of trans people (age 18-34) accessing GAC in Manitoba, Canada based on data obtained from semi-structured focus groups and individual interviews (<i>N</i> = 10). Three major themes were identified to capture key elements of seeking GAC: (1) the transition decision, (2) the transition process, and (3) barriers to receiving desired care. In each major theme, subthemes were described. In addition to providing insight into critical aspects of this journey, this study also highlights the importance of including a diverse variety of perspectives when considering the design of healthcare services for the trans community.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273226"},"PeriodicalIF":2.2,"publicationDate":"2024-10-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11465302/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142401589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Roger Larsson, Gudbjörg Erlingsdóttir, Johanna Persson, Christofer Rydenfält
{"title":"Home Care Nurses at the Heart of the Communication Web: Communication Synchronicity and Effects on the Psychosocial Work Environment.","authors":"Roger Larsson, Gudbjörg Erlingsdóttir, Johanna Persson, Christofer Rydenfält","doi":"10.1177/23333936241273145","DOIUrl":"https://doi.org/10.1177/23333936241273145","url":null,"abstract":"<p><p>This qualitative study explores how communication practice affects Swedish home care nurses' psychosocial work environment. Data consisted of interviews and field observations, analyzed from the perspective of Media Synchronicity Theory and the Job-Demand-Control-Support model. Individual home care nurses were found to manage an interorganizational communication web. The results indicated that this web could have a protective function for the nurses. Synchronous communication was found important to control the work situation. Nevertheless, asynchronous communication was enforced when communicating with other health care organizations. This reduced the level of control for the nurses. However, when possible, the nurses also arranged their communication practice to gain control. Thus, local optimization for one group could result in suboptimization for others. We conclude that communication practice should be designed holistically and promote synchronous communication to foster well-functioning interprofessional teamwork and to create a healthy psychosocial work environment for both home care nurses and their collaborators.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273145"},"PeriodicalIF":2.2,"publicationDate":"2024-09-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11437562/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142356099","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"Sometimes I Get So Extremely Tired\": Sámi Healthcare Staff Experiences of Cultural Load in Practice.","authors":"Tove Mentsen Ness, Grete Mehus","doi":"10.1177/23333936241273256","DOIUrl":"10.1177/23333936241273256","url":null,"abstract":"<p><p>The study aim was to explore how Sámi healthcare staff experience working as an ethnic minority in the Norwegian healthcare system. This was a qualitative focus group and individual interview study inspired by interpretive description, with 14 participants. The results indicate that Sámi healthcare staff experience various degrees of cultural load in their jobs. This was shown through the two themes: \"Feeling responsible for Sámi patients and non-Sámi colleagues\" and \"Feeling exhausted as a Sámi healthcare worker.\" To provide culturally safe care for all Sámi patients and their families, it is vital to ensure the well-being of the small number of Sámi healthcare personnel. Therefore, we emphasize the need for training programs for non-Sámi healthcare staff to provide them with the knowledge needed to support their encounters with Sámi patients in culturally safe ways. Sámi healthcare staff cannot take all responsibility for teaching their non-Sámi colleagues and acting as cultural mediators in all situations that non-Sámi staff find challenging. The risk of cultural load and burnout is very present. Nursing departments in universities and leaders in primary and secondary healthcare need to address these issues in order to ensure culturally safe care to all patients and support Sámi healthcare staff.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273256"},"PeriodicalIF":2.2,"publicationDate":"2024-09-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11440554/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142356098","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Perceived Facilitators and Barriers in Implementing Hospice Care: A Qualitative Study Among Health Care Providers in Binzhou, China.","authors":"Heshuo Yu, Kate de Medeiros","doi":"10.1177/23333936241273199","DOIUrl":"https://doi.org/10.1177/23333936241273199","url":null,"abstract":"<p><p>Although many large Chinese cities have begun to implement hospice services, hospice care is still a relatively new concept in many parts of the country, especially in smaller cities. The purpose of this study was to gain a better understanding of health care providers' (physicians and nurses) perceptions of the facilitators and barriers to hospice care implementation in a fourth-tier city. Using a qualitative descriptive approach, semi-structured, open-ended interviews were conducted with 15 health care providers. Two major categories for developing hospice care were identified: (a) prospective facilitators and (b) perceived barriers. In addition, there is currently much ambiguity regarding what agency should oversee hospice services if implemented, who should be responsible for payment, the importance of developing interdisciplinary care teams and concerns about worker shortages. Future research is encouraged to investigate attitudes towards hospice care across various local healthcare systems and to promote the development of local hospice care support.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273199"},"PeriodicalIF":2.2,"publicationDate":"2024-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11384529/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298240","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Healthcare Professionals' Perspectives on Dignity in Dementia: A Qualitative Analysis.","authors":"Frederik Schou-Juul, Rebecca Amalie Struwe Kjeldsen, Lucca-Mathilde Thorup Ferm, Sigurd Lauridsen","doi":"10.1177/23333936241278074","DOIUrl":"10.1177/23333936241278074","url":null,"abstract":"<p><p>In dementia care, the concept of dignity has garnered substantial attention from both researchers and policymakers. However, the concept often remains vague and open to interpretation, potentially leading to misunderstandings and suboptimal care for people with dementia. As healthcare professionals occupy a critical role in upholding dignity, exploring their viewpoints on this complex concept is paramount. In this study, we explore Danish healthcare professionals' views on the dignity of people with dementia and discuss these perspectives against existing theoretical accounts. We employed thematic analysis of data collected during facilitated discussions with a total of 99 healthcare professionals, including nurses and healthcare workers, during which we posed the question, \"What is dignity to you?\" and documented their perspectives. Through a systematic process of data coding and interpretation, we identified recurring patterns in their responses. This approach allowed us to uncover the depth and complexity of their viewpoints, providing valuable insights into the multifaceted nature of dignity as perceived by healthcare professionals. Our findings revealed that healthcare professionals possessed a nuanced understanding of dignity, recognizing both a subjective element and a universal aspect applicable to all individuals, aligning with theoretical interpretations. However, conceptual ambiguity remained a challenge.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241278074"},"PeriodicalIF":2.2,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11372769/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142135092","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}