Older People's Voices Matter!: Possibilities and Limitations for Providing Dignified Palliative Care with Wearable Devices.

IF 2.1 Q1 NURSING
Global Qualitative Nursing Research Pub Date : 2025-09-27 eCollection Date: 2025-01-01 DOI:10.1177/23333936251375182
Rada Sandic Spaho, Lisbeth Uhrenfeldt, Theofanis Fotis, Jorunn Bjerkan, Ingjerd Gåre Kymre
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Abstract

This study aimed to gain insight into the phenomenon of how wearable devices affect the sense of dignity of older patients (above 65 years of age) in palliative care settings using remote monitoring health services. Five interviews were carried out using reflective lifeworld research approach. A phenomenological analysis showed that the essence of older adults' sense of dignity in palliative care is vulnerable and, therefore, at stake when using wearable devices for remote monitoring. This essence is reflected in the following constituents: a simultaneous sense of regained and diminished quality of life; mixed feelings ranging from strengthened self-identity and independence to vulnerability and dependence; shifting care responsibilities within the context of life's finitude; and uncertainty about being valued, seen, and empowered while navigating relational expectations. The phenomenon was illuminated through the lens of various forms of dignity, offering insight into how it is experienced and challenged. These findings underscore the importance of recognising and addressing threats to dignity as digital health technologies continue to evolve in palliative care settings. Interprofessional collaboration among various stakeholders, including patients as active informants and participants, is necessary for designing future dignified remote care using wearable devices.

老年人的声音很重要!:使用可穿戴设备提供有尊严的姑息治疗的可能性和局限性。
本研究旨在通过远程监测医疗服务,深入了解可穿戴设备如何影响姑息治疗环境中老年患者(65岁以上)的尊严感。使用反思性生活世界研究方法进行了五次访谈。一项现象学分析表明,老年人在姑息治疗中的尊严本质是脆弱的,因此,在使用可穿戴设备进行远程监控时,这种尊严受到威胁。这一本质反映在以下组成部分:生活质量的恢复和下降;从强化的自我认同和独立到脆弱和依赖的复杂情感;在生命有限的背景下转移照顾责任;以及在关系期望中被重视、被关注和被授权的不确定性。这一现象通过各种形式的尊严的镜头被照亮,提供了如何经历和挑战的见解。这些调查结果强调了随着数字卫生技术在姑息治疗环境中不断发展,认识和解决尊严威胁的重要性。各种利益相关者之间的跨专业合作,包括患者作为积极的信息提供者和参与者,对于设计未来使用可穿戴设备的有尊严的远程护理是必要的。
本文章由计算机程序翻译,如有差异,请以英文原文为准。
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来源期刊
CiteScore
2.90
自引率
5.90%
发文量
41
审稿时长
12 weeks
期刊介绍: Global Qualitative Nursing Research (GQNR) is a ground breaking, international, peer-reviewed, open-access journal focusing on qualitative research in fields relevant to nursing and other health professionals world-wide. The journal specializes in topics related to nursing practice, responses to health and illness, health promotion, and health care delivery. GQNR will publish research articles using qualitative methods and qualitatively-driven mixed-method designs as well as meta-syntheses and articles focused on methodological development. Special sections include Ethics, Methodological Development, Advancing Theory/Metasynthesis, Establishing Evidence, and Application to Practice.
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