Higinio Fernandez-Sanchez, Emmanuel Akwasi Marfo, Diane Santa Maria, Mercy Mumba
{"title":"Language Matters: Exploring Preferred Terms for Diverse Populations.","authors":"Higinio Fernandez-Sanchez, Emmanuel Akwasi Marfo, Diane Santa Maria, Mercy Mumba","doi":"10.1177/23333936241275266","DOIUrl":"10.1177/23333936241275266","url":null,"abstract":"<p><p>This article explores the significance of employing preferred terms and inclusive language in research practices concerning diverse populations. It highlights how inappropriate terminology can lead to labeling, stereotyping, and stigma, particularly for equity-denied groups. The study aimed to identify and analyze terminology preferences for diverse communities by major international organizations. Through a systematic environmental scan methodology, data were collected from 12 prominent organizations. The results indicate a concerted effort toward adopting inclusive language, with organizations favoring respectful and accurate terminology. For instance, terms like \"people made vulnerable by systemic inequities\" and \"migrant workers\" were preferred over outdated or stigmatizing alternatives. The discussion emphasizes the importance of identifying conflicting terms and trends in terminology preferences over time. We recommend prioritizing the use of preferred terms to promote respectful and accurate discourse, with a focus on person-centered language. Ultimately, the findings underscore the critical role of language in shaping perceptions and attitudes toward diverse communities, and advocate for continued efforts to promote inclusivity and equity in research, policy, and practice.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241275266"},"PeriodicalIF":2.2,"publicationDate":"2024-09-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11372770/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142134143","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"The Walls Had Been Built\": A Qualitative Study of Canadian Adolescent Perspectives on Mental Health During the COVID-19 Pandemic.","authors":"Mischa Taylor, Gina Dimitropoulos, Shannon D Scott, Shelly Ben-David, Carla Hilario","doi":"10.1177/23333936241273270","DOIUrl":"10.1177/23333936241273270","url":null,"abstract":"<p><p>Public health measures (PHMs) implemented during the COVID-19 pandemic introduced sudden changes to adolescents' everyday routines and required adolescents to repeatedly adapt their routines at a critical developmental stage. While meant to protect physical health, the PHMs destabilized mental health. Using a youth-engaged approach and interpretive description, this study explored adolescents' perspectives on their mental health in relation to the COVID-19 pandemic-related PHMs in Canada from March 2020 to the time of data collection in March 2022. Four Youth Research Collaborators contributed an adolescent lens to informing study activities, and a total of 33 high-school aged adolescents ages 14 to 19 completed individual interviews. Findings suggest an overarching concept of a \"timeline\" through which adolescents described their experiences. Most adolescents described their mental health as worsening during the initial lockdown, although some adolescents experienced positive mental health outcomes. Several adolescents felt their mental health had not recovered after the PHMs were fully lifted. This study contributes young Canadians' unique voices to the literature on the pandemic-related PHMs and adolescent mental health. It is essential that the impacts of the pandemic on adolescent mental health continue to be a focus of research and programming to better understand and address its ongoing effects.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241273270"},"PeriodicalIF":2.2,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11369875/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142126972","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Melissa A Powell, Tolu O Oyesanya, Susan D Scott, Deborah H Allen, AnnMarie Walton
{"title":"Beyond Burnout: Nurses' Perspectives on Chronic Suffering During and After the COVID-19 Pandemic.","authors":"Melissa A Powell, Tolu O Oyesanya, Susan D Scott, Deborah H Allen, AnnMarie Walton","doi":"10.1177/23333936241271271","DOIUrl":"10.1177/23333936241271271","url":null,"abstract":"<p><p>Nurses around the globe have been impacted psychologically and emotionally during and after the COVID-19 pandemic. The purpose of this study was to describe nurses' perspectives on the concepts of compassion fatigue, second victimhood, burnout, and moral injury. Eight nurses were interviewed either individually or in groups of two. Data were analyzed using conventional content analysis. The following themes were identified: waves of compassion fatigue, traumatization within second victimhood, never the same after chronic burnout, moral injury: nurses couldn't do their best, and connections across concepts. Results showed nurses were most familiar with burnout and compassion fatigue, which remain chronic struggles. Second victimhood and moral injury were more distinct experiences related to traumatic or morally distressing events and likely contributed to experiencing burnout or compassion fatigue. Nurses' suffering heightened during the COVID-19 pandemic and remains prominent three years later. Future research and interventions are urgently needed globally to reduce workplace stressors and promote nurse well-being.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241271271"},"PeriodicalIF":2.2,"publicationDate":"2024-09-02","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11369874/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142126973","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ingrid Elisabeth Mathisen Haaland, Terese Elisabet Bondas
{"title":"Public Health Nurses in an Internal Negotiation Process When There Is Concern About the Child's Care.","authors":"Ingrid Elisabeth Mathisen Haaland, Terese Elisabet Bondas","doi":"10.1177/23333936241267003","DOIUrl":"10.1177/23333936241267003","url":null,"abstract":"<p><p>The aim of the study was to explore and describe how public health nurses at child health clinics experience and perceive the follow-up of children and families when there is concern about the child's care. The goal was to contribute to knowledge development to guide health-promoting nursing care for children and their families. Theoretical perspectives included health promotion, child-centered and family-centered care, in addition to nursing care. An exploratory qualitative design informed by a hermeneutic approach was used. Data were collected in 3 focus groups with 16 public health nurses and analyzed using latent content analysis. The findings detail public health nurses' internal negotiation processes in the follow-up of children and the family, and the ways these negotiation processes were influenced by various prerequisites, the approaches for follow-up, dilemmas that affected public health nurses' approaches, and prolonged dwellings on past responses to children and families of concern. The lack of routines and goals for follow-up, a dominant parental perspective, and ambiguity related to health promotion and disease prevention, all created challenges for the public health nurses. Based on these findings, a model of public health nurse's follow-up when there is concern about the child's care was developed for future research.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241267003"},"PeriodicalIF":2.2,"publicationDate":"2024-08-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11344900/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142056879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charlotte Handberg, Helle Munkholm, Ann-Lisbeth Højberg
{"title":"Perspectives of Young People with Neuromuscular Diseases Regarding Their Choice of Educational Programs and Possibilities to Complete Program Requirements.","authors":"Charlotte Handberg, Helle Munkholm, Ann-Lisbeth Højberg","doi":"10.1177/23333936241271126","DOIUrl":"10.1177/23333936241271126","url":null,"abstract":"<p><p>Young people with impaired functioning and/or disability do not receive as much education or as high an education as fully functioning young people, thus limiting their job opportunities. Therefore, the aim of this study was to investigate perspectives of young people with neuromuscular diseases regarding their choice of educational programs and possibilities to complete program requirements to gain knowledge for use in future counselling and the development of a national questionnaire survey. The design for this study was qualitative using the interpretive description methodology and Anthony Giddens' theory on modernity and self-identity. Data were generated through two focus group interviews with seven people between 18 and 30 years of age. Beginning and completing an education was influenced by the creation of identity: the importance of experiencing demands and expectations, the meaning of social relations when learning, and the consequences of accessibility for educational opportunities. The participants' sense of self-identity was built by testing boundaries and developing images through social relations with peers, parents, and teachers. How they acted and behaved in the social arena of school and education influenced their choices and chances of completing educational programs.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241271126"},"PeriodicalIF":2.2,"publicationDate":"2024-08-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11344248/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142056878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"A meta-Ethnography on Parents' Experiences of the Internet As a Source of Health Information.","authors":"Thale Strand, Thomas Westergren","doi":"10.1177/23333936241259246","DOIUrl":"10.1177/23333936241259246","url":null,"abstract":"<p><p>The Internet is increasingly being used as a health information resource. This meta-ethnography aimed to synthesize the literature on how parents of children aged below 5 years' experienced using the Internet for health information purposes. We employed an interpretive meta-synthesis approach-meta-ethnography-according to Noblit & Hare's seven phases. A total of 22 articles met the inclusion criteria, representing four continents and with 650 participants, mainly mothers. We analysed and synthesized the primary studies into the following lines-of-argument synthesis representing a novel conceptual understanding of the phenomenon: Parents experience the Internet as \"A cyber partner for child caring\" being a 24/7 available \"go-to\" among other confined sources. Parents find ways of \"patching together\" trustworthy information in solicitude for their child's health while navigating between trust and anxiety. They relate online and share their experiences and secrets without being rejected. Clinicians and parents may benefit from \"partnering\" with this resource.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241259246"},"PeriodicalIF":2.2,"publicationDate":"2024-07-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11287733/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141856788","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Abosede C Ojerinde, Sally E Thorne, A Fuchsia Howard, Arminee Kazanjian
{"title":"Cervical Cancer Screening Uptake and Experiences of Black African Immigrant Women in Canada.","authors":"Abosede C Ojerinde, Sally E Thorne, A Fuchsia Howard, Arminee Kazanjian","doi":"10.1177/23333936241266997","DOIUrl":"10.1177/23333936241266997","url":null,"abstract":"<p><p>Cervical cancer is one of the leading causes of cancer-related death among African women. Unfortunately, in most sub-Saharan African nations, women are vulnerable if they are unaware that cervical cancer is preventable with frequent screening and early treatment. The aim of this study was to examine Black African immigrant women's perceptions and experiences of cervical screening in British Columbia, Canada. Twenty Black African immigrant women were interviewed using the qualitative research method Interpretive Description. Data collection approaches included indepth interviews and analytic memos. Data were analyzed using a constant comparative technique guided by a socioecologic framework to capture subjective experiences and perceptions. Four key themes were identified, including confusing conceptualizations about cancer and cancer screening, competing priorities, concerns for modesty, and commitment to culture. The study findings point to the need for more active approaches to promoting cervical screening for this population.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241266997"},"PeriodicalIF":2.2,"publicationDate":"2024-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11283654/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Charlotte Handberg, Bente Kristensen, Bente Thoft Jensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, Ulla Werlauff
{"title":"Challenges Faced by Women With Neuromuscular Diseases When Having to Urinate Away From Home.","authors":"Charlotte Handberg, Bente Kristensen, Bente Thoft Jensen, Sarah Glerup, Antoniett Vebel Pharao, Jeanette Strøm, Ulla Werlauff","doi":"10.1177/23333936241262445","DOIUrl":"10.1177/23333936241262445","url":null,"abstract":"<p><p>The aim of this study was to investigate the challenges women with neuromuscular disease face when having to urinate when away from home. The design for this study was qualitative using the interpretive description methodology and the Sense of Coherence theory. The method was three semi-structured focus group interviews with 12 women (3 ambulant and 9 non-ambulant) with neuromuscular diseases at a specialized rehabilitation hospital. We found that physical and functional barriers hampered the opportunity to urinate when away from home due to lack of accessibility and impaired physical functioning. Psychosocial impacts were related to inconvenience and dependency on relatives, fear of stigmatization and impacted dignity, and the constant social sacrifices. The challenge of access to adequate and equitable sanitation for women with neuromuscular diseases is not at always met in society, and these women consequently often must resort to repressing the fundamental need to urinate.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241262445"},"PeriodicalIF":2.2,"publicationDate":"2024-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11265239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141753088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Anggri Noorana Zahra, Agung Waluyo, Sri Yona, Trevino Aristarkus Pakasi
{"title":"Resilience in Relation to Adherence to Antiretroviral Therapy in People Living With HIV: A Qualitative Study.","authors":"Anggri Noorana Zahra, Agung Waluyo, Sri Yona, Trevino Aristarkus Pakasi","doi":"10.1177/23333936241233449","DOIUrl":"https://doi.org/10.1177/23333936241233449","url":null,"abstract":"<p><p>Antiretroviral therapy (ART) adherence significantly impacts the survival and quality of life of people living with HIV (PLWH). Despite the challenges faced by PLWH, adherence remains crucial. Thus, cultivating resilience in ART is essential for optimal treatment outcomes. This qualitative study explored the experience of resilience in relation to ART adherence among PLWH. Semi-structured interviews with 10 participants were conducted and inductively analyzed. Participants' resilience in ART adherence was reflected in their achievements related to cultivating the habit of taking medication and in their convictions that the medication was a daily necessity. PLWH developed resilience through strategies encompassing finding purpose through faith and motivation, fostering wellness by obtaining adequate information, enjoying life, managing disease therapy, and adopting a healthy lifestyle, and building connections by finding adequate support and involving in the community. Nurses are crucial in HIV management, fostering resilience for successful ART adherence and ensuring effective treatment outcomes.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241233449"},"PeriodicalIF":1.7,"publicationDate":"2024-04-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11044794/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140852374","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Rita Carvalho, João Tavares, Tatiana Casado, Liliana Sousa, Sara Guerra
{"title":"\"There's Still Time to be Happy\": The Life Trajectories of Portuguese Transgender Women Who Transitioned at 50+ Years.","authors":"Rita Carvalho, João Tavares, Tatiana Casado, Liliana Sousa, Sara Guerra","doi":"10.1177/23333936241236292","DOIUrl":"https://doi.org/10.1177/23333936241236292","url":null,"abstract":"<p><p>The process of transitioning involves making changes to align one's life with their authentic gender identity. This study explores the life trajectories of three Portuguese transgender women who transitioned later in life (50+ years old) by identifying key chapters in their life courses. Through inductive thematic analysis, six chapters were identified from the participants' interviews: (1) awareness of \"something different in me,\" (2) locked into suffering, (3) finding comfort in something that is socially recognized, (4) \"it is enough\": it is time to recognize and embrace the woman I am, (5) living my life as a woman, and (6) building and leaving a legacy. Aging and the process of self-discovery played pivotal roles in participants' process of transitioning. The perception of finitude and the limitations associated with the time of life led them to realize that there was no time to waste and a sense of urgency to live authentically.</p>","PeriodicalId":45940,"journal":{"name":"Global Qualitative Nursing Research","volume":"11 ","pages":"23333936241236292"},"PeriodicalIF":1.7,"publicationDate":"2024-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11027450/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140866898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}