Journal of Medical Humanities最新文献_第4页

Self-Testing for Dementia: A Phenomenological Analysis of Fear. 痴呆症自我测试：对恐惧的现象学分析。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-09-01 Epub Date: 2024-06-12 DOI: 10.1007/s10912-024-09849-x

Alexandra Kapeller, Marjolein de Boer

{"title":"Self-Testing for Dementia: A Phenomenological Analysis of Fear.","authors":"Alexandra Kapeller, Marjolein de Boer","doi":"10.1007/s10912-024-09849-x","DOIUrl":"10.1007/s10912-024-09849-x","url":null,"abstract":"Following the growing economic relevance of mobile health (mHealth) and the increasing global prevalence of dementia, self-testing apps for dementia and mild neurocognitive disorder (MCD) have been developed and advertised. The apps' promise of a quick and easy tool has been criticized in the literature from a variety of angles, but as we argue in this article, the celebratory characterization of self-testing also stands in disbalance to the various kinds of fears that may be connected to taking the test. By drawing on Sara Ahmed's phenomenological theory on emotions and by referring to illustrative experiences from two users with a particular dementia self-testing app, we explore four dimensions of fear derived from phenomenology: performative, ontological, embodied, and temporal dimensions. We argue that fear (1) motivates one to take the self-test and to try to take control over one's health; (2) is shaped by and shapes the ways in which we make sense of ourselves and others as cognitively deficient; (3) constructs and is constructed by our differently embodied presence in the world; and that (4) testing makes a fearful future self as cognitively deficient more tangible. In outlining these different dimensions of fear, this article expands the understanding of the meaning of experiencing self-testing in comparison to the mostly quantitative literature on this topic.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-09-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11329528/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141307075","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Service Call. 服务电话。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-09-01 Epub Date: 2024-05-14 DOI: 10.1007/s10912-024-09852-2

Sylvia Sullivan Villarreal

引用次数: 0

Silent Speech in Phaswane Mpe's HIV/AIDS Writing. Phaswane Mpe 的艾滋病写作中的无声言语。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-31 DOI: 10.1007/s10912-024-09871-z

Sheila Giffen

{"title":"Silent Speech in Phaswane Mpe's HIV/AIDS Writing.","authors":"Sheila Giffen","doi":"10.1007/s10912-024-09871-z","DOIUrl":"https://doi.org/10.1007/s10912-024-09871-z","url":null,"abstract":"South African writer Phaswane Mpe (1970-2004) is often canonized and memorialized as a brave truth-teller who broke the silence on HIV/AIDS in the context of government silence and denial. And yet Mpe's writings-including poetry, short stories, a novel, and scholarly criticism-contemplate illness as a problem for truth and representation in works that linger in silence and ambiguity. This article analyses the tension between silence and speech in Mpe's creative writing in response to HIV/AIDS. Using Mpe's works as an illustrative example, I trouble the desire to read illness narratives as forms of truth-telling and silence-breaking. The desire for the transparency of speech in a global archive of illness narratives also informs a colonial politics of representation that instrumentalizes literature as ethnographic evidence. Mpe's writing on HIV/AIDS refuses a demand for authenticity by holding the embodied experience of disease at a slight remove from the reader in order to register the forms of spiritual and epistemological crisis that epidemic and social loss produce. My contention is that the political stakes of this writing lie not in Mpe's ability to render a public health crisis with verisimilitude, but in the capacity for writing to provide solace and sublimity faced with death. Through an analysis of Mpe's fiction and poetry, this article proposes a methodology for reading the politics of illness narratives across globalized space which attends to the world-building potential of creative expression as a radical practice that resists incorporative models of aesthetic intelligibility.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142113241","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ode to Insulin. 胰岛素颂

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-27 DOI: 10.1007/s10912-024-09882-w

Rachel Morgan

引用次数: 0

Clean Up Before Tomorrow! : A Call to Action Against Aedes. 在明天之前清理干净！防治伊蚊行动呼吁书》。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-27 DOI: 10.1007/s10912-024-09890-w

Srikanth Srirama

引用次数: 0

Bite Marks. 咬痕

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-22 DOI: 10.1007/s10912-024-09889-3

Lorna Sankey

引用次数: 0

Book Review of Music and Mind: Harnessing the Arts for Health and Wellness, edited by Renée Fleming. New York: Viking, 2024. Renée Fleming 编辑的《音乐与心灵：利用艺术促进健康》书评。纽约：维京出版社，2024 年。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-20 DOI: 10.1007/s10912-024-09883-9

Eric Persaud

引用次数: 0

Telling Ecopoetic Stories: Wax Worms, Care, and the Cultivation of Other Sensibilities. 讲述生态诗学的故事：蜡虫、关怀和其他情感的培养。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-08-15 DOI: 10.1007/s10912-024-09878-6

Martin Grünfeld

{"title":"Telling Ecopoetic Stories: Wax Worms, Care, and the Cultivation of Other Sensibilities.","authors":"Martin Grünfeld","doi":"10.1007/s10912-024-09878-6","DOIUrl":"https://doi.org/10.1007/s10912-024-09878-6","url":null,"abstract":"Recently, a beekeeper discovered the metabolic wizardry of wax worms, their ability to decompose polyethylene. While this organism has usually been perceived as a model organism in science or a pest to beekeepers, it acquired a new mode of being as potentially probiotic, inviting us to dream of a future without plastic waste. In this paper, I explore how wax worms are entangled with material practices of care and narratives that give meaning to these practices. These stories, however, are marked by manipulation, exploitation, and extermination, and call for a questioning of our modes of caring. Consequently, I offer a counter-narrative that questions our anthropocentric practices of caring and the stories we attach to them. Borrowing Puig de la Bellacasa's notion of ecopoetics, I tell another story based on my participation in the making of an art installation hosting wax worms. The installation creates an opening of a world of curiosity and cultivates a sensibility for wax worms expanding their modes of being and our capabilities of appreciation. In the end, I argue that by mattering and storying differently, we have the opportunity to challenge anthropocentric interests and make a different world of caring and co-existence possible.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141983515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Who Counts? Care, Disability, and the Questionnaire in Jesse Ball's Census. 谁算数？杰西-波尔《人口普查》中的护理、残疾和问卷调查。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-07-31 DOI: 10.1007/s10912-024-09879-5

Emily Hall

{"title":"Who Counts? Care, Disability, and the Questionnaire in Jesse Ball's Census.","authors":"Emily Hall","doi":"10.1007/s10912-024-09879-5","DOIUrl":"https://doi.org/10.1007/s10912-024-09879-5","url":null,"abstract":"In the Biopolitics of Disability, David Mitchell and Sharon Snyder (2015) assert that disabled people are subjected to endless health and government questionnaires that harvest their data in exchange for better care. As disability advocates such as the National Disability Rights Network (2021) have demonstrated, these questionnaires-like the 2020 census-are highly flawed because disabled populations are not asked to shape the questions that will determine government funding and access to medical care. Although data collection is a source of contemporary literary and scholarly interest, few works explore this in the context of disability. However, Jesse Ball's 2018 novel Census examines questionnaires, specifically the census, and illuminates how narratives of disability are warped by the faulty data these objects collect. I argue that the protagonist, a dying father whose son has Down syndrome and requires full-time care, uses what Jack Halberstam calls \"queer failure\" to create a more equitable census that will make possible the kinds of care disabled populations deserve. Rather than create a perfect, objective questionnaire, the father skews the questions and data to center disability in the story of America, as he moves away from recording everyone's experiences and instead highlights the lives of disabled people, their caretakers, and their systems of care (doctors, neighbors, etc.). I suggest that this \"failed\" census reveals those networks and systems of interdependency that scholars like Judith Butler (2020) and advocates such as Leah Lakshmi Piepzna-Samarasinha (2018) posit would radically change how care is approached, thus rendering the census as an object of care.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":null,"pages":null},"PeriodicalIF":1.2,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141856783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Coming Apart/Becoming Whole: A Collection of Poems. 分离/完整：诗集。

IF 1.2

Journal of Medical Humanities Pub Date : 2024-07-27 DOI: 10.1007/s10912-024-09876-8

Hannah May, Leslie Williams, Mark Fryburg, Cathryn Hankla, Jaimee Hills, Phoebe Reeves, Sarah N Cross

引用次数: 0