{"title":"The Rarest and Purest Form of Generosity: Simone Weil's Attention and Medical Practice.","authors":"Mark Kissler","doi":"10.1007/s10912-024-09885-7","DOIUrl":"10.1007/s10912-024-09885-7","url":null,"abstract":"<p><p>Attention is essential to the practice of medicine. It is required for expert and timely diagnoses and treatments, is implicated in the techniques and practices oriented toward healing, and enlivens the interpersonal dimensions of care. Attention enables witnessing, presence, compassion, and discernment. The French philosopher and activist Simone Weil (1909-1943) developed one of the most original and important descriptions of attention in the last century. For Weil, attention is not an attitude of strained focus but of perceptive waiting that leads to the acquisition and integration of knowledge. Contrary to activities often foregrounded in clinical medicine, it requires renunciation of the will, gentle directedness toward the origin of actions, and diminishment of the self. This paper critically examines Weil's concept of attention as it applies to health systems, technical/intellectual work, and interpersonal care, as well as its connection to theology, and considers whether attention might find a home within the contemporary clinic.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"391-402"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142298183","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"\"This Is What You Get When You Lead with the Arts\": Making the Case for Social Wellness.","authors":"Andrea Charise, Nicole Dufoe, Dirk J Rodricks","doi":"10.1007/s10912-024-09895-5","DOIUrl":"10.1007/s10912-024-09895-5","url":null,"abstract":"<p><p>Like other key terms in the medical and health humanities-empathy, creativity, and reflection, to name just a few-wellness has become a weasel word, rife the language of optimization, duty, and self-perception. While alternative vocabularies exist-well-being and quality of life among them-these options usually privilege the objectives of academic (often psychological) research, health institutions, and the economic state apparatus, rather than people themselves. In mind of these concerns, why attempt to make a case for wellness at all? We present a historically informed, theoretically driven, praxis-guided framework for a renewed vision of social wellness (a concept first defined in the late 1950s). While definitions since Bill Hettler's \"hexagonal\" model (1980) have included mutual respect for others and the assumption of cooperative behaviors, conspicuously absent from contemporary definitions and usage is any mention of the aesthetic realm, which we-alongside philosophers like Amartya Sen and Martha Nussbaum-take as a central human capability. How can the relational possibilities of arts engagement be understood as not just a means of promoting individual wellness, but also as a method and outcome of social wellness? We propose that social wellness is ultimately premised on the interplay between wellness of the collective and the strength of the relational encounters it engenders. We turn to a key practice paradigm-community arts engagement-as both a vehicle for and site of social wellness. With brief reference to a Canadian exemplar, we conclude with concrete recommendations for addressing critical opportunities for advancing arts-led social wellness initiatives involving academic and community partners.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"449-463"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11579135/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142394132","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Escape!","authors":"Jude Okonkwo","doi":"10.1007/s10912-024-09869-7","DOIUrl":"10.1007/s10912-024-09869-7","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"481-482"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141493906","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Maps of Our Spectacular Bodies, by Maddie Mortimer. London: Picador, 2022.","authors":"Arden Hegele","doi":"10.1007/s10912-023-09836-8","DOIUrl":"10.1007/s10912-023-09836-8","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"467-469"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139724425","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Using Comics as Data Collection and Training Tools to Understand and Prevent Provider-Enacted HIV Stigma.","authors":"J Blake Scott, Christa L Cook, Nathan Holic, Maeher Sukhija, Aislinn Woody","doi":"10.1007/s10912-024-09880-y","DOIUrl":"10.1007/s10912-024-09880-y","url":null,"abstract":"<p><p>Comic storyboards that participants co-create can function as generative data collection tools when integrated into interviews or focus groups in a qualitative-rhetorical study. As a preliminary stage of a study, user testing comic storyboards can help ensure that they are generative and participant-informed, the latter being especially important when researching issues related to participant vulnerability, such as stigma. This article discusses the exigency, user testing, adaptation, and affordances of comic storyboards as data collection or story elicitation tools in a study of provider-enacted HIV stigma. Our user testing of comics storyboards enabled us to implement more responsive, participant-centered, and participatory forms of data collection. Given that the goal of this study is to develop anti-stigma provider training materials in the form of comics, participants' contributions through user testing not only helped us improve our data collection in the main study, but also generated input that informed our conceptualization and drafting of provider training comics.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"369-389"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141749228","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jason Johnson-Peretz, Fredrick Atwine, Moses R Kamya, James Ayieko, Maya L Petersen, Diane V Havlir, Carol S Camlin
{"title":"Illness Narratives Without the Illness: Biomedical HIV Prevention Narratives from East Africa.","authors":"Jason Johnson-Peretz, Fredrick Atwine, Moses R Kamya, James Ayieko, Maya L Petersen, Diane V Havlir, Carol S Camlin","doi":"10.1007/s10912-024-09862-0","DOIUrl":"10.1007/s10912-024-09862-0","url":null,"abstract":"<p><p>Illness narratives invite practitioners to understand how biomedical and traditional health information is incorporated, integrated, or otherwise internalized into a patient's own sense of self and social identity. Such narratives also reveal cultural values, underlying patterns in society, and the overall life context of the narrator. Most illness narratives have been examined from the perspective of European-derived genres and literary theory, even though theorists from other parts of the globe have developed locally relevant literary theories. Further, illness narratives typically examine only the experience of illness through acute or chronic suffering (and potential recovery). The advent of biomedical disease prevention methods like post- and pre-exposure prophylaxis (PEP and PrEP) for HIV, which require daily pill consumption or regular injections, complicates the notion of an illness narrative by including illness prevention in narrative accounts. This paper has two aims. First, we aim to rectify the Eurocentrism of existing illness narrative theory by incorporating insights from African literary theorists; second, we complicate the category by examining prevention narratives as a subset of illness narratives. We do this by investigating several narratives of HIV prevention from informants enrolled in an HIV prevention trial in Kenya and Uganda in 2022.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"345-368"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11578797/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141451844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Bringing Traditional Medicine into the Health Humanities Classroom with Kali Fajardo-Anstine's \"Remedies\".","authors":"Jess Libow, Lindsey Grubbs","doi":"10.1007/s10912-024-09906-5","DOIUrl":"10.1007/s10912-024-09906-5","url":null,"abstract":"<p><p>In this essay, we recommend Kali Fajardo-Anstine's short story \"Remedies\" (2019) for inclusion on health humanities syllabi based on our experiences teaching it at two undergraduate institutions. The story is drawn from Sabrina & Corina, Fajardo-Anstine's award-winning book of short stories about Chicana and Indigenous women in Colorado, but is available for free online, making it highly accessible for students. \"Remedies\" is narrated by Clarisa, who turns to her great-grandmother Estrella for the traditional knowledge that ultimately cures her family's recurrent outbreaks of lice. As a health narrative that centers familial and cultural healing practices, \"Remedies\" offers a much needed counterpart to the biomedical frameworks that tend to dominate health humanities syllabi and curricula. At the same time that it illuminates the physical and emotional efficacy of such practices, \"Remedies\" rejects a binary that pits them against biomedicine, offering a complex portrait of how various members of a family integrate traditional and biomedical approaches to health. We discuss how themes related to familial and cultural healing practices are developed in the story and introduce our approach to initiating productive conversations about the relationship between traditional healing and biomedicine in our classrooms.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"443-448"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11579102/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142477252","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Pathophysiology.","authors":"Liz Irvin","doi":"10.1007/s10912-024-09868-8","DOIUrl":"10.1007/s10912-024-09868-8","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"483-484"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141493908","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Greek Lessons: A Novel, by Han Kang. Translated by Deborah Smith and Emily Yae Won. London and New York: Hogarth, an imprint of Random House, 2023.","authors":"Kain Kim","doi":"10.1007/s10912-023-09825-x","DOIUrl":"10.1007/s10912-023-09825-x","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"475-477"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"71427675","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Rhetoric of Healthcare and the Moral Debate About Theatre-Funded Hospitals in Early Modern Spain.","authors":"Ted L L Bergman","doi":"10.1007/s10912-024-09892-8","DOIUrl":"10.1007/s10912-024-09892-8","url":null,"abstract":"<p><p>While early modern Spain may seem a world away, it is an extremely rich and relevant context for gaining a better understanding of the Rhetoric of Health, specifically the power of metaphor, in the related spheres of policy-making and public debate. It was a time and place in which the urban populace's physical well-being depended upon the fortunes of theatrical performances due to a system of alms for hospitals driven by ticket receipts. Anti-theatricalists argued that the immoral nature of theatrical performances made them spiritually and medically detrimental to society. Pro-theatricalists argued that plays were always a public good on balance because they raised much-needed funds for hospitals. Instead of producing a conflict between morality and public health, each side reinforced their connection until the two topics became nearly inseparable in the sphere of public debate. While pro-theatricalists mainly stayed with their arguments about funding hospitals, anti-theatricalists developed a new strategy of literalising the metaphor of theatre as a \"plague of the republic\" and arguing that immoral entertainment brought literal disease to the populace as a punishment from God. This exemplifies Stephen Pender's observation of how, in an early modern medical context, \"Rhetoric as a way of perceiving probabilities and adjusting one's argument to the audience and circumstance offers a model of ethical action and interaction\". This article is organised chronologically to track specific adjustments to a specific public-health debate that rely upon moral metaphors of medicine. Each side wrangled over these metaphors in an effort to break a deadlock in a public-health policy debate with entertainment, finance, and morality at its centre. By the end of the seventeenth century, anti-theatricalists finally found their best rhetorical weapon in the literalisation of the \"plague of the republic\" metaphor, but it only offered a short-term solution to banning theatre contingent upon the ebb and flow of epidemics. Simultaneously, the finance structure of funding hospitals began to erase the role of hospitals from the longstanding debate about the morality of public theatre. The case of early modern Spain provides valuable lessons about the power of metaphor in the Rhetoric of Healthcare that are still applicable today.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":"421-441"},"PeriodicalIF":1.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11579164/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142356000","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}