{"title":"Telling Ecopoetic Stories: Wax Worms, Care, and the Cultivation of Other Sensibilities.","authors":"Martin Grünfeld","doi":"10.1007/s10912-024-09878-6","DOIUrl":"https://doi.org/10.1007/s10912-024-09878-6","url":null,"abstract":"<p><p>Recently, a beekeeper discovered the metabolic wizardry of wax worms, their ability to decompose polyethylene. While this organism has usually been perceived as a model organism in science or a pest to beekeepers, it acquired a new mode of being as potentially probiotic, inviting us to dream of a future without plastic waste. In this paper, I explore how wax worms are entangled with material practices of care and narratives that give meaning to these practices. These stories, however, are marked by manipulation, exploitation, and extermination, and call for a questioning of our modes of caring. Consequently, I offer a counter-narrative that questions our anthropocentric practices of caring and the stories we attach to them. Borrowing Puig de la Bellacasa's notion of ecopoetics, I tell another story based on my participation in the making of an art installation hosting wax worms. The installation creates an opening of a world of curiosity and cultivates a sensibility for wax worms expanding their modes of being and our capabilities of appreciation. In the end, I argue that by mattering and storying differently, we have the opportunity to challenge anthropocentric interests and make a different world of caring and co-existence possible.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-08-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141983515","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Who Counts? Care, Disability, and the Questionnaire in Jesse Ball's Census.","authors":"Emily Hall","doi":"10.1007/s10912-024-09879-5","DOIUrl":"https://doi.org/10.1007/s10912-024-09879-5","url":null,"abstract":"<p><p>In the Biopolitics of Disability, David Mitchell and Sharon Snyder (2015) assert that disabled people are subjected to endless health and government questionnaires that harvest their data in exchange for better care. As disability advocates such as the National Disability Rights Network (2021) have demonstrated, these questionnaires-like the 2020 census-are highly flawed because disabled populations are not asked to shape the questions that will determine government funding and access to medical care. Although data collection is a source of contemporary literary and scholarly interest, few works explore this in the context of disability. However, Jesse Ball's 2018 novel Census examines questionnaires, specifically the census, and illuminates how narratives of disability are warped by the faulty data these objects collect. I argue that the protagonist, a dying father whose son has Down syndrome and requires full-time care, uses what Jack Halberstam calls \"queer failure\" to create a more equitable census that will make possible the kinds of care disabled populations deserve. Rather than create a perfect, objective questionnaire, the father skews the questions and data to center disability in the story of America, as he moves away from recording everyone's experiences and instead highlights the lives of disabled people, their caretakers, and their systems of care (doctors, neighbors, etc.). I suggest that this \"failed\" census reveals those networks and systems of interdependency that scholars like Judith Butler (2020) and advocates such as Leah Lakshmi Piepzna-Samarasinha (2018) posit would radically change how care is approached, thus rendering the census as an object of care.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141856783","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hannah May, Leslie Williams, Mark Fryburg, Cathryn Hankla, Jaimee Hills, Phoebe Reeves, Sarah N Cross
{"title":"Coming Apart/Becoming Whole: A Collection of Poems.","authors":"Hannah May, Leslie Williams, Mark Fryburg, Cathryn Hankla, Jaimee Hills, Phoebe Reeves, Sarah N Cross","doi":"10.1007/s10912-024-09876-8","DOIUrl":"https://doi.org/10.1007/s10912-024-09876-8","url":null,"abstract":"","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141789432","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Migration and Mental Health in Two Contemporary Memoirs.","authors":"Lena Englund","doi":"10.1007/s10912-024-09874-w","DOIUrl":"https://doi.org/10.1007/s10912-024-09874-w","url":null,"abstract":"<p><p>This article examines two autobiographical texts that address the relationship between migration and struggles with mental health: Karla Cornejo Villavicencio's The Undocumented Americans (2021) and Dina Nayeri's The Ungrateful Refugee: What Immigrants Never Tell You (2020). Both memoirs help bring mental health issues to light in situations of precarity, and the texts indicate that it is not just the experience of physical dislocation that may cause or exacerbate struggles with mental health, but the disconnect from other people, from citizenship, and the nation itself. Nayeri and Cornejo Villavicencio do not focus on narratives of recovery or healing but provide space for the experiences of other undocumented migrants trying to navigate the European asylum system or difficulties in obtaining American citizenship. The article argues that the two authors use their experiences of migration and mental illness for greater advocacy purposes with regard to human rights. The struggles with mental health present in the two memoirs intertwine with the treatment of undocumented migrants as described by the two authors, going beyond the personal experience of mental health, or illness, connecting it with migration practices and policies in the United States and Europe.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735343","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"On Wor(l)ds and Pandemics.","authors":"Jorge J Locane","doi":"10.1007/s10912-024-09873-x","DOIUrl":"https://doi.org/10.1007/s10912-024-09873-x","url":null,"abstract":"<p><p>The spread of the coronavirus SARS-CoV-2 has stimulated eschatological speculation. To the environmentalist and liberal diagnostician that had already been warning about the Anthropocene and the breakdown of post-Cold War global harmony, an alarm has now been added that in its worst prognosis estimates that, in 2020, we only started witnessing the beginning of a staggered health debacle. The idea of the world, as conceptual support for an imaginary community with global reach, has become a crisis. The world, an object often invoked by theoretical speculation over the last 30 years, has been now decreed finished. However, infectious diseases, in their epidemic and pandemic form, have devastated different societies at different times. This paper parallels two historical scenarios and a series of texts dealing with contagious diseases to shed light on the idea of (the end of) the world. The analysis centres on documents that bear witness to the importation of smallpox and other diseases into America and its spread during the European invasion and colonization. By recovering the concept of Pachakuti, a radical turnaround that can be understood as \"end of one world\", this paper shows that the chronicles reporting on the outbreaks of smallpox in America document a material end of the world for subjects who were not protagonists of history. The current end of the world is, on the contrary, that which would correspond to the protagonist of our phase of globalization and, eventually, to his world-which makes it more resonant and absolute.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141735344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Daryl Martin, Dara Ivanova, Thorben Peter Høj Simonsen
{"title":"Moving Beyond Clinical Imaginaries: Technogeographies of the Everyday Urban.","authors":"Daryl Martin, Dara Ivanova, Thorben Peter Høj Simonsen","doi":"10.1007/s10912-024-09872-y","DOIUrl":"https://doi.org/10.1007/s10912-024-09872-y","url":null,"abstract":"<p><p>In this paper, we analyse the intersections between care and place in mundane spaces not explicitly designed for the provision of care, and where digital technologies are used to mediate ecologies of distress in the city. We locate our analysis alongside studies of how digital technologies impact the experience of care within non-clinical spaces, whilst noting that much research on the use of technologies for care remains haunted by clinical imaginaries. Bringing together ideas of multi-sited therapeutic assemblages, technogeographies of care, and how places-by-proxy can act as conduits for care, we explore an example of an online app being used in public space to manage experiences of anxiety in an everyday urban environment. We reflect on this illustrative example to trace the movement of care as it is mediated through digital technologies-out of the clinic, beyond the home, and into the ordinary spaces of the city. We conclude that the entanglements of digital technologies and ordinary urban places prompt us to entirely reconsider questions of the where of care.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141604340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Regulated Pandemic Spaces: Spatial Crises in COVID Comics.","authors":"Ishani Anwesha Joshi, Sathyaraj Venkatesan","doi":"10.1007/s10912-024-09864-y","DOIUrl":"https://doi.org/10.1007/s10912-024-09864-y","url":null,"abstract":"<p><p>Close-reading sequential comics and cartoons such as He Zhu's \"Lockdown,\" Rivi Handler-Spitz's \"Morning Commute,\" Yang Ji's \"Quarantine,\" and Thi Bui, Will Evans, Sarah Mirk, Amanda Pike, and Esther Kaplan's \"In/Vulnerable,\" this article investigates the networked spatial crises that have emerged during COVID-19. As the global pandemic reshaped social, economic, and cultural landscapes, it is crucial to understand the spatial implications of these transformations. By analyzing graphic medical texts, which serve as visual narratives that capture the lived experiences and perceptions of individuals within these crises, the present essay offers a nuanced exploration of the intricate relationships between space, society, and the effects of the pandemic. The article identifies and examines the various spatial crises that have emerged in the COVID era, such as disrupted urban environments, altered social dynamics, spaces of contamination, contraction of space, and the reconfiguration of workspaces. Drawing on theorists like Michael Foucault and Henri Lefebvre, this essay illustrates how these crisis-induced spatial transformations are represented, experienced, and contested. Ultimately, the article not only contributes to a deeper understanding of the complex interplay between the pandemic and space but also addresses the challenges of our evolving world.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141564801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Global Political Logics and Mainstream Discourses on Illness in the Declarations of the State of Exception in the Context of the Covid-19 Pandemic: The Case of the USA, France, and Spain.","authors":"Mar Rosàs Tosas","doi":"10.1007/s10912-024-09856-y","DOIUrl":"https://doi.org/10.1007/s10912-024-09856-y","url":null,"abstract":"<p><p>At the outbreak of the Covid-19 pandemic, several countries declared \"states of exception,\" that is, authorized legal devices that, in the face of circumstances deemed catastrophic, permit the implementation of extraordinary measures and the temporary suspension of some rights in order to restore the previous state of affairs as soon as possible. This paper offers a comparative textual analysis of the different states of exception declared in the USA, France, and Spain. I argue that these texts constitute a privileged site to explore how prevalent global political logics and mainstream discourses on illness are interwoven. Regarding the global political logics in play, I hold that these declarations constitute an instantiation of democracy's autoimmune character; it attacks itself in order to protect itself. Regarding mainstream discourses on illness, I explore how illness is regarded as a threat to one's self (by something seemingly other) and the notion that therapy must consist of securing the self's triumph over anything seemingly other. This twofold analysis reveals that an aporetic dialectic between self and other-as regards politics and illness-operates in these declarations, most likely because it is, in fact, one and the same dialectic, upon which Western epistemology rests. Furthermore, I suggest that these texts reflect and promote these dominant logics, contributing to shape human relationships around the globe in a certain dangerous way.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-06-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141451843","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Value of Researcher Reflexivity in the Coproduction of Public Policy: A Practical Perspective.","authors":"Yamini Cinamon Nair, Mark Fabian","doi":"10.1007/s10912-024-09853-1","DOIUrl":"10.1007/s10912-024-09853-1","url":null,"abstract":"<p><p>Coproduction of public policy involves bringing together technical experts, practitioners, and people with lived experience of that policy to collaboratively and deliberatively codesign it. Coproduction can leverage different ways of knowing and evaluative perspectives on a policy area to enhance the legitimacy and efficaciousness of policymaking. This article argues that researcher reflexivity is crucial for getting the most out of coproduction ethically and epistemically. By reflecting on our positionality, habitus, and biases, we can gain new insights into how we affect the research design, production and analysis of data, and communication of findings. This reflexivity helps to disrupt power dynamics that underly research and policymaking, helping to realise the radical potential of coproduction to democratise practice, empower citizens, and make research more relational. We demonstrate the value of reflexivity through an analysis of our work coproducing a theory of thriving in financial hardship in partnership with the UK national anti-poverty charity Turn2us. We contextualise our advocacy for reflexivity within the practical realities of advancing coproduction in the UK today.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141443512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Use of Hand Gestures (Hastas) in Bharatanatyam for Creative Aging.","authors":"Sloka Iyengar","doi":"10.1007/s10912-024-09861-1","DOIUrl":"https://doi.org/10.1007/s10912-024-09861-1","url":null,"abstract":"<p><p>Bharatanatyam is a traditional Indian dance form that involves the use of facial expressions and body movements to tell stories. A key aspect of Bharatanatyam is the use of hand gestures, also known as hastas, which are used to communicate with specificity and precision. Hastas are symbols, and along with facial expressions and body movements that are contextually relevant, they help to communicate narratives. I am a neuroscientist and have been immersed in Bharatanatyam for 25 years; true to the tradition of the form that emphasizes lifelong scholarship and immersion, I continue to learn from my gurus and supplement my dance training with the study of Carnatic music and Sanskrit. My journey in creative aging started after losing my mother and witnessing the lack of access to expressive movement that was available to her; for fear of falls, my previously-dynamic mother spent the last three months of her life without leaving the bed or feeling the sunshine on her skin. By using hastas in the context of creative aging, I describe how we can promote the acquisition of new skills, the physical benefits even in the face of arthritis and limited mobility, the ability to ascribe meaning to the gestures, and the capability to form new meanings and new gestures that are contemporary and relevant to the lives of older adults. Above all, we can engage older adults actively in the creation and appreciation of art.</p>","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2024-06-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141443511","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}