Journal of Medical Humanities最新文献

The Making of a Good Carer: Dementia and Family Caregiving in an Era of Refamilization and Responsibilization in the Nordic Context.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-04-03 DOI: 10.1007/s10912-025-09944-7

Åsa Alftberg

{"title":"The Making of a Good Carer: Dementia and Family Caregiving in an Era of Refamilization and Responsibilization in the Nordic Context.","authors":"Åsa Alftberg","doi":"10.1007/s10912-025-09944-7","DOIUrl":"https://doi.org/10.1007/s10912-025-09944-7","url":null,"abstract":"A growing number of older people with dementia are continuing to live in their own homes for prolonged periods, leading to a growing number of family carers. An aging population and neoliberal austerity politics are contributing to increased family-provided care instead of formal care services. This is particularly noticeable in the Nordic context, where the welfare state has traditionally been based on universalizing policies designed to mitigate inequalities. The aim of this article is to explore societal expectations of family caregivers and the rhetoric surrounding family caregiving through analyzing a Swedish handbook entitled Dementia for Family Carers: A Handbook from the Swedish Dementia Centre. The textual analysis identifies the various responsibilities expected of family caregivers and illustrates how this responsibility can best be designed. The responsibility of family carers is perceived as natural and self-evident, especially in the context of spouses or partners. In such relationships, when caring for someone with dementia, the expectation is that the carer will transition into a caregiving role rather than continuing to be a life partner. Family caregivers are also expected to be central coordinators of formal and informal care. Furthermore, the responsibility includes the carers' own self-care and ensuring they have the necessary knowledge and support. In tandem with the refamilization process, in which more family carers are providing care for relatives, idealizing and norm-making processes of family caregiving are emerging. This responsibilization process is crafting conceptions of the good carer, one who is responsible for relatives and formal care, while also prioritizing their own well-being.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2025-04-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143774560","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Midwifery as an Occupation and Identity in Jennifer Worth's Call the Midwife.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-04-03 DOI: 10.1007/s10912-025-09938-5

Zlatina Nikolova

引用次数: 0

The Mirage of Medical Miracles.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-26 DOI: 10.1007/s10912-025-09942-9

Yamac Akgun

引用次数: 0

Products of Conception: Imaging and Imagining Maternal-Fetal Relationships.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-26 DOI: 10.1007/s10912-025-09940-x

Sabina Dosani

引用次数: 0

Sex in Limbo: Noninvasive Prenatal Testing and the (Un)Making of Sex Chromosome Variations.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-21 DOI: 10.1007/s10912-025-09939-4

Shana Riethof

{"title":"Sex in Limbo: Noninvasive Prenatal Testing and the (Un)Making of Sex Chromosome Variations.","authors":"Shana Riethof","doi":"10.1007/s10912-025-09939-4","DOIUrl":"https://doi.org/10.1007/s10912-025-09939-4","url":null,"abstract":"In 2017, Belgium became the first European country to offer full access to noninvasive prenatal testing (NIPT) for all pregnant individuals. NIPT is commonly used to screen for aneuploidies like Down syndrome and assess fetal sex. One consequence of genome-wide NIPT is the potential to detect sex chromosome variations (SCVs), whose inclusion in the NIPT panel remains debated. This paper examines the moral ambivalence surrounding the prenatal detection of SCVs in light of the ongoing medicalization of intersex bodies. Combining humanities and ethnography, I explore how two techniques have made SCVs visible to the scientific community. I contrast NIPT with the Barr body, a sex testing method developed in the 1950s. I ask, what are the social and material consequences of each mode of making sex visible? In turn, how does it inform the debate on including SCVs in prenatal screening? First, I show how SCVs have been historically framed as medical conditions, disconnected from intersex concerns. Drawing on fieldwork on NIPT in Belgium, I highlight how the framing of SCVs as pathological categories is underpinned by epistemic uncertainties related to the role of vision in scientific practice. I argue that contemporary genetics' approach to SCVs reflects a continuation of the gender binary framework, wherein SCVs are treated as medical conditions rather than as evidence that sex, like gender, is socially mediated. Ultimately, I suggest that integrating an intersex perspective into the conversation about SCVs could offer an alternative to the medicalization of sex differences.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2025-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143674734","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Magazines, Meat, and Animal Encounters: Gender and Domestic Medicine in Sarah Grand's The Beth Book (1897).

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-18 DOI: 10.1007/s10912-025-09935-8

Louise Benson James

{"title":"Magazines, Meat, and Animal Encounters: Gender and Domestic Medicine in Sarah Grand's The Beth Book (1897).","authors":"Louise Benson James","doi":"10.1007/s10912-025-09935-8","DOIUrl":"https://doi.org/10.1007/s10912-025-09935-8","url":null,"abstract":"In an early scene of Sarah Grand's novel The Beth Book, the child protagonist attempts to create a cure for rheumatism. Having read about the curative properties of snails in a \"story of French life\", she corks up garden snails in a blacking bottle and places them in the oven to render into \"snail oil\", envisaging rubbing patients with her product. This misguided attempt to create a cure explodes, and \"boiling animal matter\" bespatters the kitchen. This vignette indicates three previously overlooked topics that run through the novel. First is that Beth produces medical treatments and home remedies from a young age and continues to do so into adulthood. Second is the influence of the Family Herald magazine, which, I demonstrate, is fundamental in forming Beth's early medical interests. Finally, it foreshadows numerous other instances in which animal bodies function as material in the pursuit of healing and care. The Beth Book is a text of New Woman fiction, significant for its political and moral agendas in relation to the women's rights movement. In scholarship, this context tends to overshadow the medical culture, objects, and encounters which evidence day-to-day life in the novel. This article examines how ephemeral reading material and animals, both living and dead, function in acts of care and the pursuit of healing.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143651204","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Forget It: Reading with an IUD.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-14 DOI: 10.1007/s10912-024-09909-2

Lilith Todd

引用次数: 0

Viral Storytelling: COVID-19 Comes to Albany, Georgia.

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-12 DOI: 10.1007/s10912-025-09936-7

Daniel A Pollock

{"title":"Viral Storytelling: COVID-19 Comes to Albany, Georgia.","authors":"Daniel A Pollock","doi":"10.1007/s10912-025-09936-7","DOIUrl":"https://doi.org/10.1007/s10912-025-09936-7","url":null,"abstract":"Early in the COVID-19 pandemic, when the novel coronavirus SARS-CoV-2 spilled into the United States and spawned devastating outbreaks in Albany, Georgia, and multiple other cities, news media organizations served an important public health function. Journalists gathered and reported information about a new infectious disease peril, and they used increasing tolls of cases, hospitalizations, and deaths as a shorthand form of risk communication. However, there were ample reasons from the start to question the completeness, accuracy, and fairness of the information that local news sources provided, and reporters repeated in numerous accounts of the Albany hotspot from March to July 2020. The story that went viral adhered to and supported a standard but strikingly deficient explanation of how novel infectious diseases wreak widespread havoc. The conventional outbreak narrative, exemplified by the Albany news coverage, frames causality, spread, and repercussions in ways that implicate personal behaviors while diminishing or disregarding population-level drivers of epidemics and the contribution of institutional lapses in healthcare safety. A second, closely related ramification of this responsibility framing is stigmatization of specific individuals or groups when they are singled out on the basis of an attribute, such as their race/ethnicity, religion, or sexual orientation, and identified as bearers and spreaders of a communicable disease. As the COVID-19 pandemic once again demonstrated, and the Albany story epitomizes, the conventional outbreak narrative sends strong stigma cues while leaving large gaps in the information needed to contend more equitably and effectively with emerging infectious diseases.","PeriodicalId":45518,"journal":{"name":"Journal of Medical Humanities","volume":" ","pages":""},"PeriodicalIF":1.2,"publicationDate":"2025-03-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143605534","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Mary Unknown. 未知玛丽

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-01 Epub Date: 2024-06-21 DOI: 10.1007/s10912-024-09867-9

Lisa Philip

引用次数: 0

The Occasional Human Sacrifice: Medical Experimentation and the Price of Saying No, by Carl Elliott. New York: W.W. Norton & Company, 2024. 偶尔的人类牺牲：医学实验与说不的代价》，卡尔-埃利奥特著。纽约，W.W. Norton & Company，2024 年：W.W. Norton & Company，2024 年。

IF 1.2

Journal of Medical Humanities Pub Date : 2025-03-01 Epub Date: 2024-06-21 DOI: 10.1007/s10912-024-09863-z

Carolyn Riley Chapman

引用次数: 0