Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica最新文献_第7页

«Compartir experiencias, estrategias y emociones». Expectativas de los pacientes respecto a la educación sanitaria con empoderamiento en epilepsia “分享经验、策略和情感”。患者对癫痫健康教育赋权的期望

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-07-01 DOI: 10.1016/j.sedene.2020.06.002

Francina Salord , Carolina Aguilera , María Lombraña , Ana Grau , Mireia López Poyato , Cindy Frías , Cecilia Cuzco , Adelaida Zabalegui , Mar Carreño , Estefanía Conde-Blanco , María Centeno , Antonio Donaire , Sonia Sevilla Guerra , Marian Khawaja , Isabel Manzanares

{"title":"«Compartir experiencias, estrategias y emociones». Expectativas de los pacientes respecto a la educación sanitaria con empoderamiento en epilepsia","authors":"Francina Salord , Carolina Aguilera , María Lombraña , Ana Grau , Mireia López Poyato , Cindy Frías , Cecilia Cuzco , Adelaida Zabalegui , Mar Carreño , Estefanía Conde-Blanco , María Centeno , Antonio Donaire , Sonia Sevilla Guerra , Marian Khawaja , Isabel Manzanares","doi":"10.1016/j.sedene.2020.06.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.06.002","url":null,"abstract":"<div><h3>Introduction</h3><p>Over the years, educational lines have focused on providing education and information to patients. The empowerment of the patient means involving him in his self-care and making it part of his disease process. Therefore, to improve our difficulties in education, it is necessary to identify the knowledge needs of patients in relation to their disease.</p></div><div><h3>Objective</h3><p>To explore the expectations of epilepsy patients regarding the health education received.</p></div><div><h3>Method Design</h3><p>descriptive qualitative study from a hermeneutical perspective. Subjects: Intentional sampling of 18 patients with epilepsy volunteers to participate in health education sessions between January and July 2019. Data collection and analysis: Documentary technique through analysis of the wording to the question about their expectations in education sessions.</p></div><div><h3>Results</h3><p>We obtained 10 codes that are codified in 3 subcategories of expectations in education: learning and disease management, problems with mood and interaction and sharing with other people with epilepsy. The latter merge into 2 broad categories: Self-management and internal growth.</p></div><div><h3>Conclusions</h3><p>Patients with epilepsy, when attending group health education sessions, not only hope knowledge and management of the disease and crisis, but also hope and share their experiences with other patients, professional emotional support and know the treatment options and social resources.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 11-19"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2020.06.002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 3

Necesidades de los cuidadores de pacientes con enfermedad lateral amiotrófica: estudio piloto sobre una intervención multidisciplinar 肌萎缩性侧索硬化症患者照顾者的需求:多学科干预的初步研究

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-07-01 DOI: 10.1016/j.sedene.2020.09.001

Delia González de la Cuesta , M.ª Carmen Expósito Sánchez , Beatriz Hernández Fregenal , Josep Oriol Casanovas Marsal

{"title":"Necesidades de los cuidadores de pacientes con enfermedad lateral amiotrófica: estudio piloto sobre una intervención multidisciplinar","authors":"Delia González de la Cuesta , M.ª Carmen Expósito Sánchez , Beatriz Hernández Fregenal , Josep Oriol Casanovas Marsal","doi":"10.1016/j.sedene.2020.09.001","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.09.001","url":null,"abstract":"<div><p>Amyotrophy lateral sclerosis is a disease that causes disability, chronicity and physical handicap. Moreover, the dependence of the patient will increase.</p></div><div><h3>Objectives</h3><p>To assess the efficacy of specific interventions designed to train non-professional caregivers of patients diagnosed with amyotrophic lateral disease.</p></div><div><h3>Method</h3><p>Descriptive cross-sectional study of an intervention designed for non-professional caregivers of patients with ALS. Pilot study. The target audience of this study are non-professional caregivers of patients with ALS. The level of dependence of the patients is measured with the Barthel index, the Revised Scale of Functional Assessment of Amyotrophic Lateral Sclerosis and Cognitive Behavioural Screening in ALS. The needs of these patients’ caregivers were evaluated according to the Kreutzer questionnaire. A multidisciplinary intervention designed to modify this situation was designed and reevaluated.</p></div><div><h3>Results</h3><p>Finally, seven caregivers were included in the pilot study. They were women, with an average age of 56 years, partners of the patients, with parallel economic activity and with an average level of education. The patients were men with a mean age of 63 years and 1-3 years of disease duration; they presented a moderate-mild Barthel, cognitive impairment, gross motility and respiratory function. The most demanded needs were for «medical/health information» and «involvement in treatment and care».</p></div><div><h3>Conclusion</h3><p>Specific interventions to meet the needs of non-professional caregivers are highly effective. Using tools that identify them contributes to improving caregivers’ care.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 38-45"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134678708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Grupo focal sobre la experiencia de pacientes y familiares en la unidad de esclerosis múltiple de un hospital terciario 重点小组讨论某三级医院多发性硬化症科患者及其家属的经验

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-07-01 DOI: 10.1016/j.sedene.2020.07.002

Haydee Goicochea Briceño , Yolanda Higueras Hernández , Mario Fontán Vela , Juliana Sierra Marticorena , Carmen Funes Molina , Ariana Meldaña Rivera , José Manuel García Domínguez , Juan Pablo Cuello , Alberto Lozano Ros , César Llorente Parrado , Mª Luisa Martínez Gines

{"title":"Grupo focal sobre la experiencia de pacientes y familiares en la unidad de esclerosis múltiple de un hospital terciario","authors":"Haydee Goicochea Briceño , Yolanda Higueras Hernández , Mario Fontán Vela , Juliana Sierra Marticorena , Carmen Funes Molina , Ariana Meldaña Rivera , José Manuel García Domínguez , Juan Pablo Cuello , Alberto Lozano Ros , César Llorente Parrado , Mª Luisa Martínez Gines","doi":"10.1016/j.sedene.2020.07.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.07.002","url":null,"abstract":"<div><h3>Introduction</h3><p>Multiple sclerosis (MS) is an immunological, degenerative and chronic neurological disease that is frequently diagnosed in young adults. Medical care might be challenging as MS symptoms are heterogenic and patientś needs can be different according to the phase of the disease. Ocassionally, medical-care team requirements might not meet MS patientsʹ needs.</p></div><div><h3>Objectives</h3><p>To learn the experience of patients and their caregivers of the medical care received in the Gregorio Marañón Hospital Demyelinating Unit.</p></div><div><h3>Method</h3><p>We designed a focus group with 26 participants incidentally recruited from the Gregorio Marañón Hospital Demyelinating Unit: 8 with low physical disability, 8 with high physical disability and 10 caregivers. Information was collected regarding 3 main topics: information, clinical care and medical team.</p></div><div><h3>Results</h3><p>High satisfaction was found among all participants with most of the medical care and with the professionals of the MS unit. They agreed with the interventions they were offered but they considered that physical rehabilitation and psychological support must be offered, not only to MS patients but also to their caregivers and family. They also asked to emphasize transdisciplinary care.</p></div><div><h3>Conclusions</h3><p>This information defined the aspects of medical care that participants perceived as quality-care and the goals the Unit needs to achieve in the future.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 20-29"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Translation of a Brazilian educational booklet concerning hydrocephalus into Spanish as spoken in Spain 将一本关于脑积水的巴西教育小册子翻译成西班牙语

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-07-01 DOI: 10.1016/j.sedene.2020.05.003

Marla Andréia Garcia de Avila , Raquel Rodríguez-González , Karen Negrão Moreira , Ilda de Godoy , Paloma de Aro Jorge Tavares , Carlos Cézar Sousa de Lira , Ana Silvia Sartori Barraviera Seabra Ferreira , Pedro Tadao Hamamoto Filho

{"title":"Translation of a Brazilian educational booklet concerning hydrocephalus into Spanish as spoken in Spain","authors":"Marla Andréia Garcia de Avila , Raquel Rodríguez-González , Karen Negrão Moreira , Ilda de Godoy , Paloma de Aro Jorge Tavares , Carlos Cézar Sousa de Lira , Ana Silvia Sartori Barraviera Seabra Ferreira , Pedro Tadao Hamamoto Filho","doi":"10.1016/j.sedene.2020.05.003","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.05.003","url":null,"abstract":"<div><h3>Purpose</h3><p>A booklet for children with hydrocephalus and their parents was presented. This study translated the Brazilian version of the booklet “Laura's diary: knowing hydrocephalus and its treatment” into Spanish as spoken in Spain.</p></div><div><h3>Methodology</h3><p>This methodological study conducted in Spain (Universidad de Santiago de Compostela) and Brazil (Botucatu Medical School) undertook the following translation steps: translation, using two Brazilian translators fluent in Spanish; synthesis, involving a Spanish nurse with experience in education; and back-translation, using a Brazilian translator and nurse fluent in Spanish.</p></div><div><h3>Findings</h3><p>The two versions of the initial translation were similar, with few amendments necessary during the consensus meeting between the researchers to achieve synthesis of the translations. The two versions of the back-translation were very similar to the original.</p></div><div><h3>Conclusion</h3><p>A free Spanish booklet was presented to minimize the negative effects of surgery, empower families, and aid future research between Brazil and Spain. Mismanagement of a disease can affect a child's quality of life. Communication is essential for health education to help ensure greater participation of patients and families in care plans.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 3-10"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Resumen del XXVII Congreso Anual y III Congreso Internacional de la Sociedad Española de Enfermería Neurológica 西班牙神经护理学会第二十七届年会和第三届国际大会总结

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2021.02.002

Paloma Muñoz Pedrazuela , Rosa Güell Baró , Ana Sofia Fernandes Ribeiro , Carmen Funes Molina , Alejandro Lendínez Mesa , Maria Palanca Cámara , Mercè Salvat Plana , Noelia López Ramón , Tania Herrera Barcia , Lourdes Bermelló López , Fidel López Espuela

引用次数: 0

Comunicación en salud y redes sociales: necesitamos más enfermeras 健康交流和社交网络:我们需要更多的护士

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2021.03.001

Ivan Herrera-Peco

引用次数: 5

Beneficios de la terapia acuática en niños con discapacidad 水疗法对残疾儿童的好处

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2020.07.001

Rocío Blanco Barrero , Ana Navarro Meléndez

引用次数: 0

¿Influyen los trastornos del ánimo en el control de crisis de pacientes con epilepsia? 情绪障碍对癫痫患者的危机管理有影响吗?

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2020.03.001

Alejandra Fumanal Doménech, Laia Grau López, Joaquín Broto, Marta Jiménez, Eva Chies Pérez, Olga Fagundez Garzón, Rosa M. López Castilla, Juan Luis Becerra Cuñat

{"title":"¿Influyen los trastornos del ánimo en el control de crisis de pacientes con epilepsia?","authors":"Alejandra Fumanal Doménech, Laia Grau López, Joaquín Broto, Marta Jiménez, Eva Chies Pérez, Olga Fagundez Garzón, Rosa M. López Castilla, Juan Luis Becerra Cuñat","doi":"10.1016/j.sedene.2020.03.001","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.03.001","url":null,"abstract":"<div><h3>Objectives</h3><p>To study the prevalence of mood disorders in patients with epilepsy and their relationship with seizure control.</p></div><div><h3>Methods</h3><p>We conducted an observational and cross-sectional study of epileptic patients treated in our centre from January-2017 to June-2019. We classify patients into 2groups according to crisis control: good control (≤1 crisis / month) and poor control (> 1 crisis / month) and we compare the demographic variables (age, sex, employment status and civil status), clinics (epilepsy type, crisis type, years of evolution of epilepsy), therapeutic (antiepileptic, antidepressant and anxiolytic drugs), presence of depression (NDDI-E scale), anxiety (GAD7 scale) and quality of life (QOLIE10). The data was collected by doctors and nurses after informed consent was signed.</p></div><div><h3>Results</h3><p>152 patients participated, 53% were men with a mean age of 44 ± 11 years. Sixty-eight percent (n = 103) had good crisis control and 32% (n = 49) poor control. Thirty-six point 6percent had depression (NDDI-E> 15) and 42% anxiety (GAD> 10). Sixty percent of patients with depression and 54% with anxiety did not receive antidepressant and / or anxiolytic treatment. The factors associated with poor crisis control were the presence of depression (OR 2.3, <em>P</em>=.02) and a worse quality of life (OR 1.8, <em>P=</em>.01).</p></div><div><h3>Conclusions</h3><p>The presence of altered mood in patients with epilepsy is frequent. In our series, depression and a worse quality of life were related to worse crisis control.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"53 ","pages":"Pages 34-40"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2020.03.001","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"137386927","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Adamantanos para la prevención de la COVID-19 金刚烷用于预防COVID-19

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2020.11.001

Albert Cortés-Borra

引用次数: 0

Efectividad del feedback visual y tratamiento del equilibrio postural en el síndrome del empujador postictus. Revisión sistemática 视觉反馈的有效性和姿势平衡治疗后推综合征。系统综述

Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica Pub Date : 2021-01-01 DOI: 10.1016/j.sedene.2019.12.001

Carlos Luque-Moreno , Aránzazu Jiménez-Blanco , Fátima Cano-Bravo , Mercedes Paniagua-Monrobel , Eduardo Zambrano-García , Jose A. Moral-Munoz

{"title":"Efectividad del feedback visual y tratamiento del equilibrio postural en el síndrome del empujador postictus. Revisión sistemática","authors":"Carlos Luque-Moreno , Aránzazu Jiménez-Blanco , Fátima Cano-Bravo , Mercedes Paniagua-Monrobel , Eduardo Zambrano-García , Jose A. Moral-Munoz","doi":"10.1016/j.sedene.2019.12.001","DOIUrl":"https://doi.org/10.1016/j.sedene.2019.12.001","url":null,"abstract":"<div><h3>Introduction</h3><p>Pusher syndrome is characterized by the patient pushing towards the hemiparetic side with the contralateral side, in a sitting position, standing and during movement, surpassing the gravitational mean line, which produces inappropriate adjustment and postural control.</p></div><div><h3>Objective</h3><p>To determine the effectiveness of physiotherapy treatment in post-stroke pusher syndrome and to extract guidelines for its correct identification and interdisciplinary approach.</p></div><div><h3>Method</h3><p>A systematic review was carried out (2000-2019), using the specialized databases MEDLINE, Scopus, PEDro and Web of Science. The descriptors used in the search strategies were “pusher syndrome”, “pushing behaviour”, “controversial pushing”, treatment, “physical therapy”, physiotherapy.</p></div><div><h3>Results</h3><p>Although the evidence is still limited, the intensive intervention of Physiotherapy in the patient with pusher syndrome post-stroke seems to improve the clinical symptoms in terms of severity and postural control. Among the different forms of treatment, training through visual feedback seems to be effective, especially using the Nintendo Wii balance platform.</p></div><div><h3>Conclusion</h3><p>An individualized physiotherapeutic intervention with each patient is necessary to facilitate and guide the most effective motor strategies, work synergies between the members of the interdisciplinary team are essential (with specific guidelines on transfers and functional activities between sessions) to ensure continuity of care that guarantees achievements are maintained.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"53 ","pages":"Pages 16-24"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"137386941","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0