Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica最新文献

{"title":"Nursing perioperative management of type I Chiari malformation in adult: A case study using Roy's adaptation model","authors":"Amelia Ganefianty ,&nbsp;I Made Kariasa ,&nbsp;Ratna Sitorus ,&nbsp;Kartini","doi":"10.1016/j.sedene.2021.03.003","DOIUrl":"https://doi.org/10.1016/j.sedene.2021.03.003","url":null,"abstract":"<div><h3>Introduction</h3><p>Chiari malformation is a structural defect in the skull that causes part of the brain to push into the spinal canal. Chiari malformations are almost always present at birth, though symptoms may not develop until later in childhood. In adult years, problems can include persistent headaches, neck pain, and weakness and/or numbness and tingling in the arms and legs, which makes it a disease of interest to present as a clinical case with a nursing model care plan.</p></div><div><h3>Case</h3><p>This is a 43-year-old female patient with type I Chiari malformation. She has neck and shoulder pain, stiffness in the hands, as well as hypotonus and hypotrophy in the upper limb. The patient underwent foramen magnum decompression surgery.</p></div><div><h3>Care plans</h3><p>We used Roy's adaptation model for the nursing care plan. The main needs we find are respiration (risk for ineffective breathing pattern), mobility (impaired physical mobility), sensation (acute pain), protection (risk for infection, and risk for bleeding), fluid and electrolyte (risk of fluid and electrolyte imbalance), and self-concept (anxiety).</p></div><div><h3>Conclusion</h3><p>The Roy's adaptation model approach was useful in this case as it focuses on the patient's adaptability and is suitable for use in perioperative nursing management of type I Chiari malformation in adults. A collaborative approach is essential for planning and carrying out care.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"55 ","pages":"Pages 39-45"},"PeriodicalIF":0.0,"publicationDate":"2022-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"137330282","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"El papel de la alimentación en la sintomatología de pacientes con enfermedad de Parkinson: una revisión sistemática","authors":"Núria Martínez-Boo","doi":"10.1016/j.sedene.2020.07.003","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.07.003","url":null,"abstract":"<div><h3>Introduction</h3><p>Parkinson's disease (PD) is a neurodegenerative disease that is characterized by the loss of dopaminergic neurons and a dopamine deficit. The symptomatology associated with PD is diverse. The clinical manifestations of patients include motor and non-motor symptoms. One of the non-motor symptoms is weight loss and a high risk of malnutrition. It is important to consult neurology regarding the diagnosis and follow-up of patients with PD.</p></div><div><h3>Objective</h3><p>To show the relationship between dietary habits and signs and symptoms in Parkinson disease.</p></div><div><h3>Method</h3><p>The methodology used consisted of a systematic review of narrative analysis on the relationship between food and the symptoms associated with PD. The databases consulted through the critical reading programme (critical appraisal skills programme, Spanish) were: MedLine, Web of Science, Scopus and PubMed. Among the inclusion criteria: studies in Spanish and English were accepted. The time range was from 2014 to 2019. The search terms used were: “Parkinson's Disease”, “Healthy Diet”, “Feeding Behaviour” and “Signs and Symptoms”.</p></div><div><h3>Results</h3><p>A total of 85 published study documents were identified, of which 8 met the inclusion criteria. Three documents were included from the literature review of grey literature and 11 selected documents were analysed.</p><p>Approximately 60% of patients with PD suffer from constipation. A high fibre diet and proper hydration are essential. Modified texture diets are the first strategic line in the management of dysphagia and will have to be considered in the treatment of PD. Vitamin D intake was found to be decreased and supplementation should be considered. Other non-motor symptoms in early stages, such as depression and hyposmia, may affect dietary choices and be responsible for the observed nutritional status decline.</p></div><div><h3>Conclusions</h3><p>Nutritional care should be considered as an integral part of the treatment of patients with PD, because the nutritional status of patients with PD is a relevant component of their quality of life. In addition, malnourished patients with PD suffer more pronounced motor symptoms and a more advanced status of PD.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 30-37"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134678707","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Fisioterapia y danza española en la reeducación de las alteraciones de la marcha en esclerosis múltiple: a propósito de un caso","authors":"Isabel Ares-Benítez ,&nbsp;Carlos Luque-Moreno ,&nbsp;Laura Alonso-Enríquez ,&nbsp;Jose A. Moral-Munoz ,&nbsp;David Lucena-Anton ,&nbsp;Guillermo Izquierdo-Ayuso ,&nbsp;Anabel Granja-Domínguez","doi":"10.1016/j.sedene.2020.03.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.03.002","url":null,"abstract":"<div><h3>Background</h3><p>Gait disturbance is one of the most common impairments in multiple sclerosis (MS). Combined with conventional physiotherapy (CP), dance as a therapeutic intervention has shown its functional benefits in other neurological diseases, such as Parkinson disease.</p></div><div><h3>Goals</h3><p>To determine gait dysfunction in a patient, to implement and carry out a physiotherapy and dance intervention programme and assess the results with a gait analysis platform.</p></div><div><h3>Subject and methods</h3><p>Evaluation pre and post intervention of the following variables: range of motion (goniometry), muscle strength (Daniel's scale), spasticity (Modified Ashworth scale), balance (Berg balance scale (BBS)) and spatio-temporal gait patterns (GaitRite®); intervention of 15 one-hour sessions (3 weeks) combining CP and Spanish Dance (SD) in a 49-year-old woman with a relapsing-remitting MS diagnosis.</p></div><div><h3>Goals</h3><p>To determine gait dysfunctions in this patient, to implement and carry out a physiotherapy and dance intervention programme and assess the results with a gait analysis platform.</p></div><div><h3>Results</h3><p>The spasticity decreased and the strength of the ankle in flexors and extensors increased. The balance and impaired spatio-temporal parameters of gait improved significantly (an increase of gait velocity, step length and monopodal support phase and increase of 25 points on the BBS).</p></div><div><h3>Conclusion</h3><p>Gait disturbance consistent with data from previous research was found and significant improvements have been achieved thanks to the intervention performed. SD has proved to have the necessary tools to achieve the benefits obtained with other dance modalities in neurodegenerative diseases and it may be compatible with CP treatment.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 46-50"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2020.03.002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134678709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nuevos horizontes en los cuidados de enfermería en la demencia","authors":"Tania Herrera Barcia","doi":"10.1016/j.sedene.2021.01.001","DOIUrl":"https://doi.org/10.1016/j.sedene.2021.01.001","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 1-2"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134652967","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Necesidades de los cuidadores de pacientes con enfermedad lateral amiotrófica: estudio piloto sobre una intervención multidisciplinar","authors":"Delia González de la Cuesta ,&nbsp;M.ª Carmen Expósito Sánchez ,&nbsp;Beatriz Hernández Fregenal ,&nbsp;Josep Oriol Casanovas Marsal","doi":"10.1016/j.sedene.2020.09.001","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.09.001","url":null,"abstract":"<div><p>Amyotrophy lateral sclerosis is a disease that causes disability, chronicity and physical handicap. Moreover, the dependence of the patient will increase.</p></div><div><h3>Objectives</h3><p>To assess the efficacy of specific interventions designed to train non-professional caregivers of patients diagnosed with amyotrophic lateral disease.</p></div><div><h3>Method</h3><p>Descriptive cross-sectional study of an intervention designed for non-professional caregivers of patients with ALS. Pilot study. The target audience of this study are non-professional caregivers of patients with ALS. The level of dependence of the patients is measured with the Barthel index, the Revised Scale of Functional Assessment of Amyotrophic Lateral Sclerosis and Cognitive Behavioural Screening in ALS. The needs of these patients’ caregivers were evaluated according to the Kreutzer questionnaire. A multidisciplinary intervention designed to modify this situation was designed and reevaluated.</p></div><div><h3>Results</h3><p>Finally, seven caregivers were included in the pilot study. They were women, with an average age of 56 years, partners of the patients, with parallel economic activity and with an average level of education. The patients were men with a mean age of 63 years and 1-3 years of disease duration; they presented a moderate-mild Barthel, cognitive impairment, gross motility and respiratory function. The most demanded needs were for «medical/health information» and «involvement in treatment and care».</p></div><div><h3>Conclusion</h3><p>Specific interventions to meet the needs of non-professional caregivers are highly effective. Using tools that identify them contributes to improving caregivers’ care.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 38-45"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134678708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"«Compartir experiencias, estrategias y emociones». Expectativas de los pacientes respecto a la educación sanitaria con empoderamiento en epilepsia","authors":"Francina Salord ,&nbsp;Carolina Aguilera ,&nbsp;María Lombraña ,&nbsp;Ana Grau ,&nbsp;Mireia López Poyato ,&nbsp;Cindy Frías ,&nbsp;Cecilia Cuzco ,&nbsp;Adelaida Zabalegui ,&nbsp;Mar Carreño ,&nbsp;Estefanía Conde-Blanco ,&nbsp;María Centeno ,&nbsp;Antonio Donaire ,&nbsp;Sonia Sevilla Guerra ,&nbsp;Marian Khawaja ,&nbsp;Isabel Manzanares","doi":"10.1016/j.sedene.2020.06.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.06.002","url":null,"abstract":"<div><h3>Introduction</h3><p>Over the years, educational lines have focused on providing education and information to patients. The empowerment of the patient means involving him in his self-care and making it part of his disease process. Therefore, to improve our difficulties in education, it is necessary to identify the knowledge needs of patients in relation to their disease.</p></div><div><h3>Objective</h3><p>To explore the expectations of epilepsy patients regarding the health education received.</p></div><div><h3>Method Design</h3><p>descriptive qualitative study from a hermeneutical perspective. Subjects: Intentional sampling of 18 patients with epilepsy volunteers to participate in health education sessions between January and July 2019. Data collection and analysis: Documentary technique through analysis of the wording to the question about their expectations in education sessions.</p></div><div><h3>Results</h3><p>We obtained 10 codes that are codified in 3 subcategories of expectations in education: learning and disease management, problems with mood and interaction and sharing with other people with epilepsy. The latter merge into 2 broad categories: Self-management and internal growth.</p></div><div><h3>Conclusions</h3><p>Patients with epilepsy, when attending group health education sessions, not only hope knowledge and management of the disease and crisis, but also hope and share their experiences with other patients, professional emotional support and know the treatment options and social resources.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 11-19"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2020.06.002","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679028","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Grupo focal sobre la experiencia de pacientes y familiares en la unidad de esclerosis múltiple de un hospital terciario","authors":"Haydee Goicochea Briceño ,&nbsp;Yolanda Higueras Hernández ,&nbsp;Mario Fontán Vela ,&nbsp;Juliana Sierra Marticorena ,&nbsp;Carmen Funes Molina ,&nbsp;Ariana Meldaña Rivera ,&nbsp;José Manuel García Domínguez ,&nbsp;Juan Pablo Cuello ,&nbsp;Alberto Lozano Ros ,&nbsp;César Llorente Parrado ,&nbsp;Mª Luisa Martínez Gines","doi":"10.1016/j.sedene.2020.07.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.07.002","url":null,"abstract":"<div><h3>Introduction</h3><p>Multiple sclerosis (MS) is an immunological, degenerative and chronic neurological disease that is frequently diagnosed in young adults. Medical care might be challenging as MS symptoms are heterogenic and patientś needs can be different according to the phase of the disease. Ocassionally, medical-care team requirements might not meet MS patientsʹ needs.</p></div><div><h3>Objectives</h3><p>To learn the experience of patients and their caregivers of the medical care received in the Gregorio Marañón Hospital Demyelinating Unit.</p></div><div><h3>Method</h3><p>We designed a focus group with 26 participants incidentally recruited from the Gregorio Marañón Hospital Demyelinating Unit: 8 with low physical disability, 8 with high physical disability and 10 caregivers. Information was collected regarding 3 main topics: information, clinical care and medical team.</p></div><div><h3>Results</h3><p>High satisfaction was found among all participants with most of the medical care and with the professionals of the MS unit. They agreed with the interventions they were offered but they considered that physical rehabilitation and psychological support must be offered, not only to MS patients but also to their caregivers and family. They also asked to emphasize transdisciplinary care.</p></div><div><h3>Conclusions</h3><p>This information defined the aspects of medical care that participants perceived as quality-care and the goals the Unit needs to achieve in the future.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 20-29"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679029","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Translation of a Brazilian educational booklet concerning hydrocephalus into Spanish as spoken in Spain","authors":"Marla Andréia Garcia de Avila ,&nbsp;Raquel Rodríguez-González ,&nbsp;Karen Negrão Moreira ,&nbsp;Ilda de Godoy ,&nbsp;Paloma de Aro Jorge Tavares ,&nbsp;Carlos Cézar Sousa de Lira ,&nbsp;Ana Silvia Sartori Barraviera Seabra Ferreira ,&nbsp;Pedro Tadao Hamamoto Filho","doi":"10.1016/j.sedene.2020.05.003","DOIUrl":"https://doi.org/10.1016/j.sedene.2020.05.003","url":null,"abstract":"<div><h3>Purpose</h3><p>A booklet for children with hydrocephalus and their parents was presented. This study translated the Brazilian version of the booklet “Laura's diary: knowing hydrocephalus and its treatment” into Spanish as spoken in Spain.</p></div><div><h3>Methodology</h3><p>This methodological study conducted in Spain (Universidad de Santiago de Compostela) and Brazil (Botucatu Medical School) undertook the following translation steps: translation, using two Brazilian translators fluent in Spanish; synthesis, involving a Spanish nurse with experience in education; and back-translation, using a Brazilian translator and nurse fluent in Spanish.</p></div><div><h3>Findings</h3><p>The two versions of the initial translation were similar, with few amendments necessary during the consensus meeting between the researchers to achieve synthesis of the translations. The two versions of the back-translation were very similar to the original.</p></div><div><h3>Conclusion</h3><p>A free Spanish booklet was presented to minimize the negative effects of surgery, empower families, and aid future research between Brazil and Spain. Mismanagement of a disease can affect a child's quality of life. Communication is essential for health education to help ensure greater participation of patients and families in care plans.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 3-10"},"PeriodicalIF":0.0,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134679027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Resumen del XXVII Congreso Anual y III Congreso Internacional de la Sociedad Española de Enfermería Neurológica","authors":"Paloma Muñoz Pedrazuela ,&nbsp;Rosa Güell Baró ,&nbsp;Ana Sofia Fernandes Ribeiro ,&nbsp;Carmen Funes Molina ,&nbsp;Alejandro Lendínez Mesa ,&nbsp;Maria Palanca Cámara ,&nbsp;Mercè Salvat Plana ,&nbsp;Noelia López Ramón ,&nbsp;Tania Herrera Barcia ,&nbsp;Lourdes Bermelló López ,&nbsp;Fidel López Espuela","doi":"10.1016/j.sedene.2021.02.002","DOIUrl":"https://doi.org/10.1016/j.sedene.2021.02.002","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"53 ","pages":"Pages 5-7"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"137386942","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Comunicación en salud y redes sociales: necesitamos más enfermeras","authors":"Ivan Herrera-Peco","doi":"10.1016/j.sedene.2021.03.001","DOIUrl":"10.1016/j.sedene.2021.03.001","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"53 ","pages":"Pages 1-4"},"PeriodicalIF":0.0,"publicationDate":"2021-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2021.03.001","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"122501208","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}