Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica最新文献

{"title":"Impact of nursing interventions on quality of life and patient satisfaction in botulinum toxin treatment for headaches: A cross-sectional study","authors":"Emanuela Domenicone,&nbsp;Francesco Pastore","doi":"10.1016/j.sedene.2025.500191","DOIUrl":"10.1016/j.sedene.2025.500191","url":null,"abstract":"<div><h3>Background</h3><div><span>Chronic migraine is a debilitating </span>neurological disorder<span><span> that significantly impacts patients’ quality of life, affecting their physical, emotional, and social well-being. </span>Botulinum toxin<span> has emerged as an effective preventive treatment; however, the role of specialized nursing interventions in optimizing patient outcomes remains underexplored. High-quality nursing care, particularly in communication and patient-centered support, may enhance treatment satisfaction and mitigate the burden of migraines on daily life. This study aimed to evaluate the impact of specialized nursing interventions on patient satisfaction and quality of life in individuals with chronic migraine undergoing botulinum toxin treatment. It also sought to explore the association between nursing care quality and the psychological, emotional, and daily life impact of migraines.</span></span></div></div><div><h3>Methods</h3><div>A cross-sectional study was conducted from January 2024 to July 2024 across clinical centers in Italy, utilizing a structured questionnaires to assess patient satisfaction and migraine-specific quality of life during quarterly visits for botulinum toxin administration. The survey included sociodemographic and clinical data, satisfaction with nursing care, and the impact of migraines on quality of life. Statistical analyses explored relationships between sociodemographic factors, nursing interventions, and quality-of-life outcomes.</div></div><div><h3>Results</h3><div>One hundred fifteen patients were enrolled and reported high satisfaction with specialized nursing care, particularly in communication and attentiveness. Effective nursing interventions correlated with improved quality-of-life outcomes, reducing the psychological and social impact of migraines.</div></div><div><h3>Conclusions</h3><div>Specialized nursing care enhances patient satisfaction and supports a holistic approach to migraine management. Integrating tailored nursing interventions into chronic migraine treatment could improve both clinical and emotional patient outcomes.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500191"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531518","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Estrés emocional en cuidadores primarios de personas con diagnóstico de esclerosis lateral amiotrófica","authors":"Julián Mollá-Marinas,&nbsp;David Sancho-Cantus,&nbsp;Laura Cubero-Plazas,&nbsp;Elena Sanchis Sanchis,&nbsp;José Enrique de la Rubia Ortí","doi":"10.1016/j.sedene.2025.500188","DOIUrl":"10.1016/j.sedene.2025.500188","url":null,"abstract":"<div><h3>Theoretical framework</h3><div>Amyotrophic lateral sclerosis (ALS) is a progressive neurodegenerative disease that causes loss of motor function and is associated with cognitive and behavioral disturbances. ALS patients are dependent on primary caregivers, who face high levels of emotional stress, including anxiety, depression and burden.</div></div><div><h3>Objective</h3><div>To assess emotional stress in primary caregivers of ALS patients by measuring levels of anxiety, depression and burden.</div></div><div><h3>Method</h3><div>Descriptive, quantitative, cross-sectional study. A sample of 40 primary caregivers was included. The Zung Self-Rating Anxiety Scale (SAS-15), the Zung Self-Rating Depression Scale (SDS) and the Zarit Burden Interview (ZBI) were used.</div></div><div><h3>Results</h3><div>The caregivers presented mild to moderate levels of anxiety, with an average value of 1.61 on the SAS-15, indicating the presence of emotional stress. Depression levels were normal, and no significant burden was observed. No statistically significant differences were found between men and women, nor did age influence the results. Significant positive correlations were observed between levels of anxiety and depression (r<!--> <!-->=<!--> <!-->.64; <em>P</em> <!-->&lt;<!--> <!-->.05), anxiety and burden (r<!--> <!-->=<!--> <!-->.67; <em>P</em> <!-->&lt;<!--> <!-->.05) and between depression and burden (r<!--> <!-->=<!--> <!-->.67; <em>P</em> <!-->&lt;<!--> <!-->.05).</div></div><div><h3>Conclusions</h3><div>Emotional stress is prevalent among primary caregivers of ALS patients, with anxiety being the most affected aspect. The results highlight the need to address the psychological well-being of caregivers.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500188"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531524","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluación de la inmunoterapia con lecanemab para la enfermedad de Alzheimer: una revisión sistemática","authors":"Antía Villamediana-Pérez,&nbsp;Alejandro Ruiz-Riquelme","doi":"10.1016/j.sedene.2025.500190","DOIUrl":"10.1016/j.sedene.2025.500190","url":null,"abstract":"<div><h3>Objective</h3><div>To critically examine the use of lecanemab as an immunotherapy for Alzheimer's disease, specifically to assess the benefits of such therapy, identify current dosing and administration recommendations, and assess potential side effects and exclusion criteria.</div></div><div><h3>Methods</h3><div>Systematic review of articles whose object of study are positive and/or negative results of lecanemab immunotherapy and include possible complications of the treatment. Articles presenting results of lecanemab immunotherapy in non-human models are excluded. The databases used for the search are Web of Science, Cochrane, Pubmed (Medline) and Dialnet.</div></div><div><h3>Results</h3><div>Eight articles (clinical studies, meta-analyses, simulations, case reports) are selected. The use of lecanemab in the early stages of Alzheimer's reduces cerebral Aβ and delays cognitive impairment. The dose established as effective is 10<!--> <!-->mg/kg biweekly, using an IV infusion for 1<!--> <!-->hour, followed by monitoring periods after each administration. Side effects may appear during the treatment like hemorrhages and cerebral edema (ARIA).</div></div><div><h3>Conclusions</h3><div>The effectiveness of lecanemab is associated with its use in the early stages of the development of the disease. The proper management of the dose and the side effects are fundamental, therefore providing clear protocols and training for the sanitary personnel are key for its implementation. The paucity of clinical studies on lecanemab treatment is a limitation to the results, making it necessary to periodically update reviews such as this one.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500190"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531526","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Empoderamiento y adherencia al tratamiento en pacientes con epilepsia","authors":"Isabel Manzanares Téllez,&nbsp;Cecilia Cuzco Cabellos,&nbsp;Noelia López Ramón,&nbsp;Estefanía Conde Blanco,&nbsp;Mar Carreño Martínez","doi":"10.1016/j.sedene.2025.500187","DOIUrl":"10.1016/j.sedene.2025.500187","url":null,"abstract":"<div><h3>Introduction</h3><div>Epilepsy, as a chronic disease with a significant impact on quality of life, requires specialized care and health education for self-management. Patient empowerment can influence health outcomes such as treatment adherence.</div></div><div><h3>Objective</h3><div>to measure the level of empowerment in patients with epilepsy in relation to their treatment adherence and educational factors.</div></div><div><h3>Methods</h3><div>A descriptive, observational, and cross-sectional study with a gender perspective was conducted. The participants were patients followed at the Epilepsy Unit. Data collection included the empowerment questionnaire PELC-E, a treatment adherence questionnaire, and an <em>ad-hoc</em> survey with sociodemographic, clinical, and educational variables. Descriptive analyses were performed for categorical and quantitative variables, and a linear regression model was applied to identify variables associated with empowerment. The study was approved by the Ethics Committee.</div></div><div><h3>Results</h3><div>Two hundred responses were collected from participants, with a mean age of 44.7<!--> <!-->±<!--> <!-->14 years, and characteristics typical of drug-resistant patients. Empowerment was significantly associated with treatment adherence (p<!--> <!-->=<!--> <!-->0.02). High treatment adherence was also related to high satisfaction with the health education received (p<!--> <!-->&lt;<!--> <!-->0.01). Satisfaction regarding education on antiepileptic drugs correlated positively with empowerment and treatment adherence (p<!--> <!-->&lt;<!--> <!-->0,01). Educational factors such as participation in associations or health education sessions were correlated with empowerment (p<!--> <!-->=<!--> <!-->0.027 and p<!--> <!-->=<!--> <!-->0.011, respectively).</div></div><div><h3>Conclusion</h3><div>Educational factors play a key role in patient empowerment and treatment adherence in patients with epilepsy.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500187"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Efectos del confinamiento por COVID-19 en los pacientes de la Asociación Balear de Esclerosis Múltiple","authors":"Noelia López Ramón,&nbsp;Joana Ripoll Amengual,&nbsp;M. Clara Vidal-Thomàs,&nbsp;Isabel Gayá Gomila,&nbsp;Isabel Manzanares Tellez","doi":"10.1016/j.sedene.2025.500189","DOIUrl":"10.1016/j.sedene.2025.500189","url":null,"abstract":"<div><h3>Introduction</h3><div>Multiple Sclerosis is a neurodegenerative and inflammatory illness diagnosed in young adults. Domiciliary confinement for the Sars-Cov-2 pandemic was a situation that generated isolation, lack of activity and an alteration of sanity and associative services. This diminution of activity could generate an alteration on this health and quality of life.</div></div><div><h3>Objectives</h3><div>The aim of this study is to know changes in physical, cognitive, emotional and social states in patients from the Balearic Association of Multiple Sclerosis during confinement of Sars-Cov-2 pandemic. In addition to describe the adaptations of health and associative resources during this period.</div></div><div><h3>Methodology</h3><div>Cross-sectional descriptive study. All ABDEM patients diagnosed with MS were included. An ad-hoc questionnaire with Likert-type response options was administered.</div></div><div><h3>Results</h3><div>A total of 102 surveys were obtained. 69.6% of the participants were women, 49% aged 35-44 years, mean age 41.3 (10.9). 48% were in active employment and 47.1% had been diagnosed with the disease for between 3 and 10 years, mean 11.2 (8.3). 23.3% showed worsening fatigue, 13.4% greater mobility disturbances and 14.8% more pain. 21.1% had increased concentration problems. 11.3% had symptoms of anxiety. Hospital service adaptations were evaluated with 94.9% satisfaction, primary care with 88% and ABDEM with 97.9%.</div></div><div><h3>Conclusion</h3><div>This study described an alteration in physical, cognitive, emotional and occupational symptoms during the confinement phase of COVID. MS patients require cross-cutting care plans that can meet their needs despite crisis situations such as those experienced during the pandemic.</div><div>The different adaptations made by health services and associations working with people with MS were also presented. These services responded satisfactorily to the needs shown by patients in confinement. Nevertheless, it is important to analyse these situations so that health organisations can respond to the needs of patients in times of crisis.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500189"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531525","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Defining the role of nurses in headache care: From practice-based recognition to consensus-based recommendations","authors":"Annette Vangaa Rasmussen","doi":"10.1016/j.sedene.2026.500210","DOIUrl":"10.1016/j.sedene.2026.500210","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"64 ","pages":"Article 500210"},"PeriodicalIF":0.0,"publicationDate":"2026-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"148531527","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Nursing perioperative management of atypical meningioma WHO grade II: A case study using the Roy Adaptation Model","authors":"I. Made Kariasa ,&nbsp;Rumiati Rumiati ,&nbsp;Liya Arista ,&nbsp;Enny Mulyatsih ,&nbsp;Ruth Berlian Sihotang ,&nbsp;I. Gede Juanamasta","doi":"10.1016/j.sedene.2024.500170","DOIUrl":"10.1016/j.sedene.2024.500170","url":null,"abstract":"<div><h3>Introduction</h3><div>Meningioma is the most common primary intracranial tumor, originating from the protective membranes known as the meninges. Specifically, it arises from arachnoid cells attached to the dura mater, making it extra-axial. Meningiomas are characterized by their potential to grow large, cause hyperostosis, and infiltrate or erode bone. They account for about 36% of all brain tumors, with a prevalence ratio of 2:1 between women and men. The problems associated with meningiomas depend on their location, size, and involvement with surrounding tissue structures.</div></div><div><h3>Objective</h3><div>To develop a perioperative nursing care plan for a patient with WHO grade II atypical meningioma.</div></div><div><h3>Methods</h3><div>This study used a case study design and included a review of the literature on WHO grade II atypical meningioma. We used the NANDA, NIC, and NOC maintenance guidelines to complement the Roy Adaptation Model. This approach provided specific diagnoses for developing interventions and publishing results in clinical maintenance practice.</div></div><div><h3>Results</h3><div>The patient was treated for seven days. Postoperatively, the patient reported decreased headache and eye redness, reduced proptosis, controlled infection, and a clean surgical wound with no drainage seepage. By the third day, the Barovac drain was set to 1/2 vacuum, and the lumbar drain was removed by the fifth day. The patient gradually mobilized, reducing the risk of falls.</div></div><div><h3>Conclusion</h3><div>The Roy Adaptation Model can be effectively used in the nursing care of patients with meningioma. Roy views humans as open and adaptive systems capable of responding to internal and external stimuli throughout their lives.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"63 ","pages":"Article 500170"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146135709","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Resumen del XXXII Congreso Nacional y VIII Congreso Internacional de la Sociedad Española de Enfermería Neurológica","authors":"Paloma Muñoz Pedrazuela ,&nbsp;Henar Garzón López ,&nbsp;Ana Sofía Fernandes Ribeiro ,&nbsp;Alejandro Lendínez Mesa ,&nbsp;Maria Palanca Cámara ,&nbsp;Tania Herrera Barcia ,&nbsp;Eulàlia Giné-Ciprés ,&nbsp;Raquel Vallejo de la Paz ,&nbsp;Lourdes Bermelló López ,&nbsp;Silvia Morel ,&nbsp;Ana María Duro Martínez ,&nbsp;Sergio González-Román Montalbán ,&nbsp;Verónica Hidalgo Benítez ,&nbsp;Fidel López Espuela ,&nbsp;David Iglesias Villanueva","doi":"10.1016/j.sedene.2026.500206","DOIUrl":"10.1016/j.sedene.2026.500206","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"63 ","pages":"Article 500206"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146135707","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"El desafío del Alzheimer: una prioridad inaplazable","authors":"Eva Nebot","doi":"10.1016/j.sedene.2025.500194","DOIUrl":"10.1016/j.sedene.2025.500194","url":null,"abstract":"","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"63 ","pages":"Article 500194"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146135708","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Leucoencefalopatía multifocal progresiva causada por el virus John Cunningham en un paciente con esclerosis múltiple remitente-recurrente. A propósito de un caso","authors":"Emilio Rubén Pego Pérez ,&nbsp;Eva Gómez Fernández ,&nbsp;María del Rosario Marín Arnés ,&nbsp;Mercedes Fernández Vázquez ,&nbsp;María Irene Núñez Hernández ,&nbsp;Isidoro Rodríguez Pérez","doi":"10.1016/j.sedene.2025.500186","DOIUrl":"10.1016/j.sedene.2025.500186","url":null,"abstract":"<div><h3>Background</h3><div>Progressive multifocal leukoencephalopathy is a demyelinating disease of the central nervous system caused by the John Cunningham virus, primarily affecting immunocompromised individuals and representing a severe complication in multiple sclerosis patients treated with natalizumab.</div></div><div><h3>Objectives</h3><div>To evaluate the functional, cognitive, and nutritional status, quality of life, and caregiver burden in a patient with progressive multifocal leukoencephalopathy, as well as their correlations.</div></div><div><h3>Methods</h3><div>A single, longitudinal, and descriptive case study was conducted, evaluating a 63-year-old patient. The adjusted quality of life coefficient was calculated using the EQ-5D model, which employs three severity levels per dimension. Data were analyzed using Pearson's correlation.</div></div><div><h3>Results</h3><div>Functional status showed severe dependency in all consultations, with slight improvement in the last one. The baseline evaluation revealed possible signs of cognitive impairment, absent in subsequent consultations. Nutritional status improved from a risk of malnutrition in the initial consultations to normal in the last one. Quality of life progressively improved: low in the baseline and first assessments (≈<!--> <!-->0.3323), low/moderate in the second (0.3902), and good in the third consultation (0.6038). Caregiver burden was intense in the baseline evaluation, decreasing to levels without overload in subsequent consultations.</div></div><div><h3>Conclusion</h3><div>Correlations were identified between improved functional, cognitive, and nutritional status with higher quality of life and lower caregiver burden. These findings highlight the importance of a multidimensional approach to managing progressive multifocal leukoencephalopathy.</div></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"63 ","pages":"Article 500186"},"PeriodicalIF":0.0,"publicationDate":"2026-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"146135711","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}