Francina Salord , Carolina Aguilera , María Lombraña , Ana Grau , Mireia López Poyato , Cindy Frías , Cecilia Cuzco , Adelaida Zabalegui , Mar Carreño , Estefanía Conde-Blanco , María Centeno , Antonio Donaire , Sonia Sevilla Guerra , Marian Khawaja , Isabel Manzanares
{"title":"“分享经验、策略和情感”。患者对癫痫健康教育赋权的期望","authors":"Francina Salord , Carolina Aguilera , María Lombraña , Ana Grau , Mireia López Poyato , Cindy Frías , Cecilia Cuzco , Adelaida Zabalegui , Mar Carreño , Estefanía Conde-Blanco , María Centeno , Antonio Donaire , Sonia Sevilla Guerra , Marian Khawaja , Isabel Manzanares","doi":"10.1016/j.sedene.2020.06.002","DOIUrl":null,"url":null,"abstract":"<div><h3>Introduction</h3><p>Over the years, educational lines have focused on providing education and information to patients. The empowerment of the patient means involving him in his self-care and making it part of his disease process. Therefore, to improve our difficulties in education, it is necessary to identify the knowledge needs of patients in relation to their disease.</p></div><div><h3>Objective</h3><p>To explore the expectations of epilepsy patients regarding the health education received.</p></div><div><h3>Method Design</h3><p>descriptive qualitative study from a hermeneutical perspective. Subjects: Intentional sampling of 18 patients with epilepsy volunteers to participate in health education sessions between January and July 2019. Data collection and analysis: Documentary technique through analysis of the wording to the question about their expectations in education sessions.</p></div><div><h3>Results</h3><p>We obtained 10 codes that are codified in 3 subcategories of expectations in education: learning and disease management, problems with mood and interaction and sharing with other people with epilepsy. The latter merge into 2 broad categories: Self-management and internal growth.</p></div><div><h3>Conclusions</h3><p>Patients with epilepsy, when attending group health education sessions, not only hope knowledge and management of the disease and crisis, but also hope and share their experiences with other patients, professional emotional support and know the treatment options and social resources.</p></div>","PeriodicalId":38763,"journal":{"name":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","volume":"54 ","pages":"Pages 11-19"},"PeriodicalIF":0.0000,"publicationDate":"2021-07-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://sci-hub-pdf.com/10.1016/j.sedene.2020.06.002","citationCount":"3","resultStr":"{\"title\":\"«Compartir experiencias, estrategias y emociones». Expectativas de los pacientes respecto a la educación sanitaria con empoderamiento en epilepsia\",\"authors\":\"Francina Salord , Carolina Aguilera , María Lombraña , Ana Grau , Mireia López Poyato , Cindy Frías , Cecilia Cuzco , Adelaida Zabalegui , Mar Carreño , Estefanía Conde-Blanco , María Centeno , Antonio Donaire , Sonia Sevilla Guerra , Marian Khawaja , Isabel Manzanares\",\"doi\":\"10.1016/j.sedene.2020.06.002\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><h3>Introduction</h3><p>Over the years, educational lines have focused on providing education and information to patients. The empowerment of the patient means involving him in his self-care and making it part of his disease process. Therefore, to improve our difficulties in education, it is necessary to identify the knowledge needs of patients in relation to their disease.</p></div><div><h3>Objective</h3><p>To explore the expectations of epilepsy patients regarding the health education received.</p></div><div><h3>Method Design</h3><p>descriptive qualitative study from a hermeneutical perspective. Subjects: Intentional sampling of 18 patients with epilepsy volunteers to participate in health education sessions between January and July 2019. Data collection and analysis: Documentary technique through analysis of the wording to the question about their expectations in education sessions.</p></div><div><h3>Results</h3><p>We obtained 10 codes that are codified in 3 subcategories of expectations in education: learning and disease management, problems with mood and interaction and sharing with other people with epilepsy. The latter merge into 2 broad categories: Self-management and internal growth.</p></div><div><h3>Conclusions</h3><p>Patients with epilepsy, when attending group health education sessions, not only hope knowledge and management of the disease and crisis, but also hope and share their experiences with other patients, professional emotional support and know the treatment options and social resources.</p></div>\",\"PeriodicalId\":38763,\"journal\":{\"name\":\"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica\",\"volume\":\"54 \",\"pages\":\"Pages 11-19\"},\"PeriodicalIF\":0.0000,\"publicationDate\":\"2021-07-01\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://sci-hub-pdf.com/10.1016/j.sedene.2020.06.002\",\"citationCount\":\"3\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica\",\"FirstCategoryId\":\"1085\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2013524620300222\",\"RegionNum\":0,\"RegionCategory\":null,\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q3\",\"JCRName\":\"Nursing\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Revista Cientifica de la Sociedad Espanola de Enfermeria Neurologica","FirstCategoryId":"1085","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2013524620300222","RegionNum":0,"RegionCategory":null,"ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q3","JCRName":"Nursing","Score":null,"Total":0}
«Compartir experiencias, estrategias y emociones». Expectativas de los pacientes respecto a la educación sanitaria con empoderamiento en epilepsia
Introduction
Over the years, educational lines have focused on providing education and information to patients. The empowerment of the patient means involving him in his self-care and making it part of his disease process. Therefore, to improve our difficulties in education, it is necessary to identify the knowledge needs of patients in relation to their disease.
Objective
To explore the expectations of epilepsy patients regarding the health education received.
Method Design
descriptive qualitative study from a hermeneutical perspective. Subjects: Intentional sampling of 18 patients with epilepsy volunteers to participate in health education sessions between January and July 2019. Data collection and analysis: Documentary technique through analysis of the wording to the question about their expectations in education sessions.
Results
We obtained 10 codes that are codified in 3 subcategories of expectations in education: learning and disease management, problems with mood and interaction and sharing with other people with epilepsy. The latter merge into 2 broad categories: Self-management and internal growth.
Conclusions
Patients with epilepsy, when attending group health education sessions, not only hope knowledge and management of the disease and crisis, but also hope and share their experiences with other patients, professional emotional support and know the treatment options and social resources.