Patient preference and adherence最新文献

{"title":"Implementing a Care Model for Bedridden Stroke Survivors: A Qualitative Study in Northeastern Thailand [Letter].","authors":"Haihang Zhang, Jiayang Liu","doi":"10.2147/PPA.S523409","DOIUrl":"https://doi.org/10.2147/PPA.S523409","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"431-432"},"PeriodicalIF":2.0,"publicationDate":"2025-02-25","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11871943/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143542926","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Experiences and Preferences Regarding Medication Cost Discussions Among Heart Failure Patients in Singapore: A Qualitative Survey.","authors":"Qianyu Shen, Dennis Chin Wee Chua, Po Fun Chan, Sean Wei Jun Chan, Hwee-Lin Wee","doi":"10.2147/PPA.S502235","DOIUrl":"10.2147/PPA.S502235","url":null,"abstract":"<p><strong>Purpose: </strong>Cost of novel medications has increased worldwide, causing financial toxicity to heart failure patients. Patients can discuss medication costs with clinicians to manage financial burden, but such discussion can be uncommon. This study seeked to investigate the experiences and preferences of heart failure patients in Singapore regarding medication cost discussions to develop effective strategies to encourage such conversations.</p><p><strong>Patients and methods: </strong>Participants were recruited from a hospital outpatient heart failure clinic in 2022 to participate in a qualitative survey containing open-ended questions. Inclusion criteria were patients aged 21 years and above, diagnosed with heart failure, and capable of comprehending English. There were no exclusion criteria. Conventional content analysis was performed on collected responses.</p><p><strong>Results: </strong>Among forty-eight heart failure patients (median age: 63.5 years, 43.8% male, 72.9% Chinese) who participated, most (93.8%) wanted to discuss medication costs with clinicians for reasons such as concern over affordability, taking ownership of health, making informed decisions, minimizing inconvenience, and obtaining tailored cost information. Affordability of medications was a concern for patients but only 8.3% of patients actually had regular cost discussions with clinicians in the past year. Patients mentioned a lack of initiative from the clinicians, limited cost awareness, and time constraints as reasons why cost conversations did not happen.</p><p><strong>Conclusion: </strong>Outpatient heart failure patients in Singapore desire to discuss medication costs with clinicians but few participants reported having such conversations. Barriers hindering cost discussions have to be addressed to ensure patients make an informed medication decision with minimal financial burden.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"407-418"},"PeriodicalIF":2.0,"publicationDate":"2025-02-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11863787/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143516291","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Living with Elevated Lipoprotein(a) Levels: The Experiences of Patients and Caregivers.","authors":"Elisabeth Steinhagen-Thiessen, Magdalena Daccord, Emma C Print, Yujiao Wang, Janine Shipton, India Rijken, Michael Shipton, Flavia Perna, Matthias Schoenberger","doi":"10.2147/PPA.S478623","DOIUrl":"10.2147/PPA.S478623","url":null,"abstract":"<p><strong>Background: </strong>Elevated lipoprotein(a) (Lp[a]) is an inherited condition that increases cardiovascular disease (CVD) risk, independent of other factors, such as low-density lipoprotein C. Few attempts have been made to explore the life experiences of people with elevated Lp(a).</p><p><strong>Objective: </strong>To explore the experiences of people living with or caring for a relative with elevated Lp(a).</p><p><strong>Methods: </strong>Two multinational, virtual, interactive, moderated discussions of specific questions between people with elevated Lp(a) and relatives (caregivers), with experienced clinicians attending.</p><p><strong>Results: </strong>Fifteen individuals with elevated Lp(a) and nine relatives took part in the virtual discussions. The most frequent reasons to measure Lp(a) levels were prior CVD events, eg, heart attacks, stroke, aortic valve diseases, or a family history of CVD events. Clinicians were often reluctant to measure Lp(a) levels as no effective treatment is available to people with elevated values. The most common interventions after confirmed elevated Lp(a) levels were lifestyle modifications and cholesterol-lowering medications to reduce overall CVD risk. A healthy lifestyle with diet and exercise was perceived as unsuccessful in managing overall CVD risk by 25% of people with elevated Lp(a) and 38% of relatives. Lifestyle advice was considered conflicting, unclear and inconsistent. Participants experienced elevated Lp(a) as an \"invisible\" disorder with very low awareness in the general population. Physicians' advice was often too superficial to meet patients' needs, putting insufficient emphasis on prevention and focusing on interventions after a CVD event.</p><p><strong>Conclusion: </strong>Elevated Lp(a) was considered an \"invisible\" disorder with limited understanding among physicians and the general public. This reduces access to tests and shifts physician focus away from prevention towards reactive intervention.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"395-405"},"PeriodicalIF":2.0,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11853138/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143503319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Validation of Facial Line Distress Scale-Glabellar Lines (FINE-GL).","authors":"Danbee Kang, Eunjee Kang, Kyeongrok Choi, Sooyeon Kim, Woo Shun Lee, Juhee Cho","doi":"10.2147/PPA.S497415","DOIUrl":"10.2147/PPA.S497415","url":null,"abstract":"<p><strong>Purpose: </strong>We developed and validated facial line distress scale-glabellar lines (FINE-GL) to evaluate the severity and psychosocial distress associated with GL.</p><p><strong>Patients and methods: </strong>In Phase I, a preliminary item pool for the FINE-GL was developed through a literature review and expert consultation. This was followed by cognitive interviews to ensure comprehensibility of the items. In Phase II, we conducted a cross-sectional survey at a tertiary hospital and two local clinics in Korea. Exploratory factor analysis (EFA) was conducted to identify the underlying factor structure of the FINE-GL, and internal consistency and test-retest reliability were also examined.</p><p><strong>Results: </strong>We yielded 20 items in four domains. The model fit was good. Coefficient alphas ranged from 0.92 to 0.95 for sub-domains and 0.97 for the total. The FINE-GL was moderately correlated with the appearance appraisal score and body image. In the test-retest, the range of ICC was 0.77-0.90.</p><p><strong>Conclusion: </strong>FINE-GL is a reliable, valid, and comprehensive patient-reported outcome measure for assessing GL severity and distress. This will be helpful to determine a patient's eligibility for inclusion of study and to measure primary or secondary effectiveness endpoints for glabellar line treatment.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"419-429"},"PeriodicalIF":2.0,"publicationDate":"2025-02-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11853867/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143503316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Enhancing Patient Satisfaction in Primary Health Care Services in Mogadishu, Somalia [Letter].","authors":"Prima Soultoni Akbar, Heni Elmiani Sari, Yeni Tri Utami","doi":"10.2147/PPA.S521760","DOIUrl":"10.2147/PPA.S521760","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"393-394"},"PeriodicalIF":2.0,"publicationDate":"2025-02-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11847441/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483823","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Implementation of Pathway-Based Care for Patients Undergoing Daytime Cholecystectomy.","authors":"Yu-Quan Tian, Xiu-Fang Lv, Min Zhang, Meng Gao, Lei Zhao","doi":"10.2147/PPA.S492763","DOIUrl":"10.2147/PPA.S492763","url":null,"abstract":"<p><strong>Objective: </strong>To investigate the impact of pathway-based care on patients with cholelithiasis undergoing daytime cholecystectomy.</p><p><strong>Methods: </strong>Two hundred fifty-eight patients scheduled for daytime cholecystectomy were randomly assigned to a pathway care group and a control group (129 each). The control group received standard care, while the pathway care group received additional pathway-based care to assess its effectiveness.</p><p><strong>Results: </strong>Before surgery (T₀), there were no significant differences between the groups in stress response indicators, including body temperature (T), heart rate (HR), blood oxygen saturation (SpO₂), and blood glucose levels (<i>P</i> > 0.05). Ten minutes after the onset of intraoperative pneumoperitoneum (T₁), the pathway care group did not exhibit significant changes in T, HR, or blood glucose levels compared to pre-surgery values (<i>P</i> > 0.05), but SpO₂ significantly improved (<i>P</i> < 0.05). In contrast, all stress response indicators in the control group worsened at T₁ compared to baseline (<i>P</i> < 0.05). At the end of surgery (T₂), the pathway care group maintained stable stress response indicators relative to baseline (<i>P</i> > 0.05), while the control group showed significant increases (<i>P</i> < 0.05). Additionally, hospitalization time in the pathway care group was significantly lower compared to the control group (<i>P</i> < 0.05). Comparisons of postoperative complication rates in the pathway care group revealed that the pathway care group had significantly lower incidences of abdominal pain, incisional infection, and venous thrombosis compared to the control group (<i>P</i> < 0.05). When comparing the postoperative quality of life (SF-36) scores, the pathway care group had higher quality of life scores than the control group (<i>P</i> < 0.05), as well as in scores across all dimensions (<i>P</i> < 0.05).</p><p><strong>Conclusion: </strong>Pathway-based care for cholecystectomy patients enhances operating room nursing quality and efficiency. It minimizes intraoperative stress response, reduces complications, and improves patient quality of life.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"383-392"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846526/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483830","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Knowledge, Attitudes, and Practices of Patients from the Anesthesia Clinic in Jinshan District, Shanghai, Regarding Visiting the Anesthesia Clinic.","authors":"Guang Min Yin, Jia Hui Chen, Wei Xu","doi":"10.2147/PPA.S496835","DOIUrl":"10.2147/PPA.S496835","url":null,"abstract":"<p><strong>Background: </strong>Anesthesia assessment outpatient clinics (AAOCs) can help personalize the anesthesia experience, alleviate anesthesia-related anxiety, and offer health management advice. This study investigated the knowledge, attitude, and practice (KAP) of patients from the anesthesia clinic in Jinshan District, Shanghai, China, regarding AAOCs.</p><p><strong>Methods: </strong>This cross-sectional study was conducted from July 10, 2023, to October 15, 2023, at Jinshan Hospital affiliated to Fudan University. The final version of the questionnaire included four dimensions: demographic information, knowledge dimension (seven items, scores 0-7), attitude dimension (six items, scores 6-30), and practice dimension (six items, scores 6-30). The Cronbach's α was 0.935. The risk factors for the practice dimension were examined through univariable and multivariable logistic regression. The relationships among the KAP dimensions were explored using a structural equation model (SEM).</p><p><strong>Results: </strong>A total of 531 questionnaires were included for analysis. The mean knowledge score was 5.5±1.9 (/7 points, 79.0%). The mean attitude score was 26.3±3.7 (/30, 87.8%). The mean practice score was 25.5±3.4 (/30, 85.0%). However, still over 10% of participants did not recognize AAOCs' ability to alleviate anesthesia-related fears and did not believe AAOCs affect future health management. The knowledge scores correlated to the attitude (r=0.401, P<0.001) and practice (r=0.379, P<0.001) scores, while the attitude scores correlated to the practice scores (r=0.742, P<0.001). The SEM showed that knowledge influenced attitude (β=2.409, P<0.001), while attitude influenced practice (β=0.721, P<0.001). The attitude scores (OR=2.055, 95% CI: 1.756-2.404, P<0.001) and personal/relative/friend experience with AAOCs (OR=2.771, 95% CI: 1.002-7.664, P=0.050) were independently associated with the practice scores.</p><p><strong>Conclusion: </strong>Patients in Jinshan District had a good KAP toward AAOCs. Improving knowledge of AAOCs should improve attitudes and the use of AAOCs to improve the patient experience and outcomes of anesthesia.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"363-372"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846519/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Association of the Driving Distance, Driving Time, and Public Transit Time to the Hospital with the Persistence of Tumor Necrosis Factor Inhibitors in Patients With Ankylosing Spondylitis: A Retrospective Cohort Study.","authors":"Aran Kim, Min Wook So, Seung-Geun Lee","doi":"10.2147/PPA.S504479","DOIUrl":"10.2147/PPA.S504479","url":null,"abstract":"<p><strong>Purpose: </strong>Research on the impact of geographical distance from or travel time to healthcare facilities on treatment adherence among patients with rheumatic diseases is lacking. Therefore, we investigated the association of the driving distance, driving time, and public transit time to the hospital with the persistence of tumor necrosis factor-alpha (TNF-α) inhibitors in patients with ankylosing spondylitis (AS).</p><p><strong>Patients and methods: </strong>This 19-year retrospective cohort study was performed in the rheumatology department of a tertiary hospital in Korea and analyzed 313 adult patients with AS who were newly initiated on TNF-α inhibitors. The driving distance, driving time, and public transit time to the hospital were calculated using the Naver Map application. Drug persistence of TNF-α inhibitors was defined as the time duration between the index date and the date of discontinuation without exceeding a treatment gap of 90 days.</p><p><strong>Results: </strong>The most commonly prescribed TNF-α inhibitor in patients with AS was adalimumab (69.3%), followed by etanercept (21.4%) and infliximab (9.3%). The median driving distance, driving time, and public transit time to the hospital were 16 kilometers (km), 0.6 hours, and 0.8 hours, respectively. In total, 120 (38.3%) patients with AS stopped TNF-α inhibitors over a median follow-up period of 67.1 months. After adjusting confounding factors, the driving distance to the hospital per 10-km increase (hazard ratio [HR]=1.09, p=0.017) and the driving distance to hospital ≧16 km (HR=1.9, p=0.001) were significantly associated with a higher risk of TNF-α inhibitor discontinuation. Neither the driving time nor the public transit time to the hospital was significantly associated with TNF-α inhibitor persistence.</p><p><strong>Conclusion: </strong>Longer driving distances significantly increased the risk of treatment discontinuation, highlighting the need for healthcare systems to address these barriers.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"373-382"},"PeriodicalIF":2.0,"publicationDate":"2025-02-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11846483/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483818","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials [Letter].","authors":"Sari Luthfiyah, Triwiyanto Triwiyanto, Mohammed Ismath","doi":"10.2147/PPA.S520244","DOIUrl":"10.2147/PPA.S520244","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"361-362"},"PeriodicalIF":2.0,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11844262/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Overcoming Barriers for Breast Cancer Detection in Women with High Breast Density [Letter].","authors":"Xiaopeng Wu, Yanping Miao","doi":"10.2147/PPA.S518898","DOIUrl":"10.2147/PPA.S518898","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"359-360"},"PeriodicalIF":2.0,"publicationDate":"2025-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11837740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143458950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}