Sari Luthfiyah, Triwiyanto Triwiyanto, Mohammed Ismath
{"title":"Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials [Letter].","authors":"Sari Luthfiyah, Triwiyanto Triwiyanto, Mohammed Ismath","doi":"10.2147/PPA.S520244","DOIUrl":"10.2147/PPA.S520244","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"361-362"},"PeriodicalIF":2.0,"publicationDate":"2025-02-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11844262/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143483879","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Overcoming Barriers for Breast Cancer Detection in Women with High Breast Density [Letter].","authors":"Xiaopeng Wu, Yanping Miao","doi":"10.2147/PPA.S518898","DOIUrl":"10.2147/PPA.S518898","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"359-360"},"PeriodicalIF":2.0,"publicationDate":"2025-02-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11837740/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143458950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Adherence Definitions, Measurement Modalities, and Psychometric Properties in HIV, Diabetes, and Nutritional Supplementation Studies: A Scoping Review.","authors":"Julia Burleson, Daryl E Stephens, Rajiv N Rimal","doi":"10.2147/PPA.S498537","DOIUrl":"10.2147/PPA.S498537","url":null,"abstract":"<p><p>Measuring adherence has been a priority for researchers to help inform effective care for patients regularly consuming medications for chronic conditions. As a widely accepted \"gold standard\" adherence measure or operational definition does not exist, studies measure adherence using different modalities, which may lead to different conclusions about adherence patterns. The purpose of the scoping review was to identify modalities used to measure adherence to HIV medication, diabetes medication, and nutritional supplementation and explore the variation in adherence definitions, measurement modalities, and psychometric properties being reported across studies. Comprehensive searches were performed in PubMed, Scopus, and PsycINFO from January 2012 to January 2022. We included studies reporting psychometric properties of adherence/compliance to HIV medication, diabetes medication, or nutritional supplements. In total, we included 88 studies in the review. The 8-item Morisky Medication Adherence Scale (MMAS-8) was the most frequently used self-reported measure. We found almost no relationship between country income level and triangulation levels. The operational definition of adherence fell into four categories: numerical, dichotomous, ranked ordinal, and undefined. The amount of variation in an adherence definition category within a modality depended on whether the measures within the modality could be assessed numerically and whether widely accepted cutoffs existed for the measure. Across studies, 46 (52%) reported both validity and reliability, 28 (31%) reported validity only, and 14 (16%) reported reliability only. Fourteen types of validity and six types of reliability were identified across the studies. Measuring adherence accurately and reliably continues to be a challenge for research in HIV, diabetes, and nutritional supplementations. When reporting adherence measurements, we suggest including adherence results from multiple measures and modalities, presenting adherence results numerically, and reporting multiple types of validity and reliability.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"319-344"},"PeriodicalIF":2.0,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11829600/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143433621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Implementing a Care Model for Bedridden Stroke Survivors: A Qualitative Study in Northeastern Thailand.","authors":"Ladawan Panpanit, Darunee Jongudomkarn, Aurawan Doungmungkorn, Kwansuda Boontoch, Somsakhool Neelasmith, Monrudee Manorat, Thirakorn Maneerat","doi":"10.2147/PPA.S494046","DOIUrl":"10.2147/PPA.S494046","url":null,"abstract":"<p><strong>Background: </strong>Stroke remains a significant global health concern, including in Thailand, with high mortality rates. Despite investments in stroke prevention, inadequate support exists for severely disabled stroke survivors (SSs) and their caregivers, particularly in enhancing their quality of life.</p><p><strong>Purpose: </strong>This research aimed to explore the experiences of SSs receiving home care, develop and implement a care model to enhance community volunteer caregivers' (CVCGs) capabilities, and evaluate the outcomes of this model for bedridden stroke survivors in Northeastern Thailand.</p><p><strong>Methods: </strong>A research and development study was conducted in low-income, semi-urban communities in Northeastern Thailand, comprising three phases: 1) situation analysis, 2) development of a community care model, and 3) implementation and evaluation. Forty participants were purposively selected, including SSs, family caregivers (FCGs), CVCGs, and relevant community leaders (RCLs). Data collection involved focus group discussions, in-depth interviews, and participant observations, with content analysis used for data interpretation.</p><p><strong>Results: </strong>Key themes emerged: SSs experienced \"Feeling Isolation & Powerlessness\" and \"Hopelessness & Being Burden to Family\", FCGs expressed \"Sorrow & Gratitude\", and CVCGs identified \"Inadequate Capacity & Need for Training\". These findings underscored the lack of sufficient support for all groups. The study proposed the KKU Bedridden Care Model, derived from the KKU Family Health Nursing Model, to strengthen families' and communities' caregiving capacities. After five months, the themes \"Heartwarming\" (SSs, FCGs) and \"Being Proud of Capability\" (CVCGs) highlighted improved outcomes.</p><p><strong>Conclusion: </strong>The KKU Bedridden Care Model shows promise for long-term care in resource-limited settings. Its adoption by local administrative organizations could provide ongoing support, offering a scalable solution for improving the care of bedridden individuals both in Thailand and globally.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"345-358"},"PeriodicalIF":2.0,"publicationDate":"2025-02-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11829710/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143433622","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Ahmed Al Musawi, Malin Axelsson, Tommy Eriksson, Margareta Rämgård
{"title":"Experiences and Perspectives of Medication Information and Use Among Arabic-Speaking Migrant Women in Sweden: A Multistage Focus Group Study.","authors":"Ahmed Al Musawi, Malin Axelsson, Tommy Eriksson, Margareta Rämgård","doi":"10.2147/PPA.S498953","DOIUrl":"10.2147/PPA.S498953","url":null,"abstract":"<p><strong>Purpose: </strong>Medication non-adherence is a global public health issue influenced by various factors, including the quality and comprehensiveness of medication information provided to patients. Migrants, particularly women, face unique healthcare and societal challenges in their new home countries. This study aims to explore Arabic-speaking migrant women's experiences and perspectives on medication information and use.</p><p><strong>Methods: </strong>This study was part of the Equal Health program, a health promotion initiative established in socially vulnerable areas to address health inequities. Arabic-speaking women aged 40-80 years with chronic illnesses participated in multistage focus group sessions exploring their experiences with medication information from healthcare, medication use, and perspectives on necessary improvements in medication information at hospital discharge. The sessions were conducted in Arabic, audio-recorded, transcribed verbatim, and translated into Swedish for analysis. Data were analyzed using Braun and Clark's six-phase reflexive thematic analysis.</p><p><strong>Results: </strong>Four multistage focus group sessions with 15 participants were conducted. The analysis generated three themes: <i>receiving or not receiving professional medication information, medication adherence patterns</i>, and <i>needs and suggestions for improved medication information-a call for action</i>. Participants reported inadequate medication information from physicians, particularly at the time of discharge from the hospital, and described instances of intentional and unintentional non-adherence. Suggestions for improvement included providing written medication information at discharge in their native language, using interpreters, and including a current medication list detailing overall medication information and potential drug interactions.</p><p><strong>Conclusion: </strong>This study highlights inadequate medication information provision to Arabic-speaking migrant women, which may impact medication use and pose patient safety risks. Although the adherence patterns of the study subjects resembled those of the general population, unique barriers require additional healthcare support. This study can inform healthcare practices and establish a foundation for further research on medication information and use in this group, including comparisons with native-born individuals.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"305-318"},"PeriodicalIF":2.0,"publicationDate":"2025-02-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11818829/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143410008","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Khalid M Alhomayani, Hashem A Bukhary, Fahd I Aljuaid, Turki A Alotaibi, Faisal S Alqurashi, Khaled N Althobaiti, Nawaf S Althobaiti, Osama Y Althomali, Abdullah A Althobaiti, Muhanad M Aljuaid, Abdullah M Muhyei
{"title":"Gender Preferences in Healthcare: A Study of Saudi Patients' Physician Preferences.","authors":"Khalid M Alhomayani, Hashem A Bukhary, Fahd I Aljuaid, Turki A Alotaibi, Faisal S Alqurashi, Khaled N Althobaiti, Nawaf S Althobaiti, Osama Y Althomali, Abdullah A Althobaiti, Muhanad M Aljuaid, Abdullah M Muhyei","doi":"10.2147/PPA.S494766","DOIUrl":"10.2147/PPA.S494766","url":null,"abstract":"<p><strong>Background and objective: </strong>Cultural and social factors, including physician gender, shape patient-provider relationships in Saudi Arabia. Preferences extend beyond clinical competence to include characteristics like gender and perceived traits, potentially introducing biases. This study examines Saudi patients' gender preferences when selecting physicians.</p><p><strong>Method: </strong>A descriptive, cross-sectional study was conducted using a survey distributed via social media from February 11 to March 23, 2024. 1. The study was conducted across various regions of Saudi Arabia, with participants recruited via social media platforms using convenience sampling aged 18 years and older who were actively pursuing medical care. A total of 3949 participants (37.9% males and 62.1% females) with a mean age of 33.43 years and a standard deviation of 19.08 were included. The response rate was 99.1%. Data analysis, including descriptive statistics and subgroup comparisons, was performed using JMP version 14 Pro.</p><p><strong>Results: </strong>The sample showed a predominance of females (62.1%) and younger participants (18-25 years). Female participants preferred female doctors for general exams (67.9%), while males preferred male doctors (63.3%). Gender preferences were strongest for intimate examinations, with 90.8% of females and 72.3% of males favoring same-gender physicians. Similar patterns emerged in specialties like urology, where 71% of males preferred male physicians, while 64.4% of females preferred female physicians.</p><p><strong>Conclusion: </strong>Saudi patients exhibit gender preferences influenced by expertise, communication skills, and cultural norms. Gender significantly impacts comfort and satisfaction, especially in sensitive contexts like intimate exams and childbirth. These findings underscore the importance of gender-sensitive workforce planning to align physician assignments with patient preferences, enhancing satisfaction and trust. Future research should explore psychological and systemic factors driving these preferences to optimize patient-centered care and healthcare delivery systems.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"295-303"},"PeriodicalIF":2.0,"publicationDate":"2025-02-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11806673/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143383153","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Hamdan Almutairi, Ahmad Aboshaiqah, Mohsen Alzahrani, Adel F Almutairi, Mahmoud Salam
{"title":"The Lived Experience of Adult Cancer Survivors After Hematopoietic Stem Cell Transplantation: A Qualitative Study From Saudi Arabia.","authors":"Hamdan Almutairi, Ahmad Aboshaiqah, Mohsen Alzahrani, Adel F Almutairi, Mahmoud Salam","doi":"10.2147/PPA.S500554","DOIUrl":"10.2147/PPA.S500554","url":null,"abstract":"<p><strong>Background: </strong>Hematopoietic stem cell transplantation (HSCT) is a high-intensity treatment with the potential to extend the life expectancy of some patients with cancer. The aim of this study is to explore the lived experience of cancer survivors who underwent HSCT from Saudi Arabia.</p><p><strong>Material and methods: </strong>This study adopted a qualitative descriptive research design using semi-structured in-depth face-to-face interviews. A purposive sampling method was used to recruit eleven patients with cancer who underwent HSCT at an adult oncology center in Saudi Arabia. The interview guide was developed by the authors based on the multi-dimensional health-related QOL model. Participants were asked about their daily activities, problems with coping, quality of life, and personal stress/worries about the future. Data collection was ceased when thematic saturation was reached. Inductive thematic analysis was conducted by two research team members.</p><p><strong>Results: </strong>Seven male and four female participants were interviewed (range of age 18 to 51 years). Interviews lasted between 60 and 75 minutes. Five major themes emerged in this study. The first was Physical Well-Being based on four sub-themes: independence, self-efficacy, health outlook (health perception), and pain. The second theme was Psychosocial Impact based on the subthemes: stigmatization, depression, and social strains. The third and fourth themes were Social Support and Coping with the Disease, with the subthemes: avoidant coping, meditation and faith. The fifth theme included psychosocial/physical stability and optimism.</p><p><strong>Conclusion: </strong>Exploring the lived experiences of cancer survivors can inform supportive health care management. Patients who underwent HSCT reported a series of challenges at the physical, psychosocial, and social levels. Further quantitative research studies are recommended to confirm the impact of HSCT on the QOL of cancer survivors in the Saudi Arabian context.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"279-293"},"PeriodicalIF":2.0,"publicationDate":"2025-01-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11794379/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143255978","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Yijun Liu, Rou Yu, Yifan Fu, Yunxia Zuo, Yanhua Qiu, Jin Liu
{"title":"Developing and Validating a Novel Generic Patient-Reported Outcome Measure - Postoperative Recovery Scale for Adult (PRSA): A Prospective Observational Study.","authors":"Yijun Liu, Rou Yu, Yifan Fu, Yunxia Zuo, Yanhua Qiu, Jin Liu","doi":"10.2147/PPA.S485263","DOIUrl":"10.2147/PPA.S485263","url":null,"abstract":"<p><strong>Background: </strong>Quality of postoperative recovery is an important perioperative patient-reported outcome. However, there are limitations in the development process and content of existing scales.</p><p><strong>Purpose: </strong>To develop and validate a universal patient-reported outcome measure, the postoperative recovery scale for adult (PRSA), to assess early and long-term postoperative recovery.</p><p><strong>Patients and methods: </strong>The PRSA was developed through a new conceptual framework, systematic literature review, patient interview, and Delphi consultation. Then, the PRSA and the 15-item quality of recovery scale (QoR-15) were employed to evaluate the measurement properties of PRSA in 180 adult patients undergoing abdominal surgery.</p><p><strong>Results: </strong>A 10-item PRSA scale was developed through a systematic review of 1602 literature, interviews with 138 patients, and two rounds of Delphi consultation. The correlation coefficient between the PRSA and QoR-15 ranged from 0.780 to 0.904 (<i>P</i> < 0.001), and the PRSA indicated great validity in distinguishing patients with complications. The internal consistency and test-retest reliability of the PRSA were satisfactory. Besides, the time to complete the PRSA was 27.5s (95% CI: 24.5-30.0 s) shorter than QoR-15, and more patients thought that completing the PRSA was easy compared to QoR-15 (65.7% vs 57.2%, <i>P</i> < 0.001).</p><p><strong>Conclusion: </strong>The PRSA scale is a universal patient-reported outcome measure that can be utilized for evaluating postoperative recovery. It shows great measurement properties in patients undergoing abdominal surgery.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"243-253"},"PeriodicalIF":2.0,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789672/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123401","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Brittany E Levy, Jennifer T Castle, Roshmita Bardhan, Mark Dignan, Avinash Bhakta
{"title":"Barriers to Adherence to Standard of Care in Appalachia: A Qualitative Assessment in Gastrointestinal Cancers.","authors":"Brittany E Levy, Jennifer T Castle, Roshmita Bardhan, Mark Dignan, Avinash Bhakta","doi":"10.2147/PPA.S470613","DOIUrl":"10.2147/PPA.S470613","url":null,"abstract":"<p><strong>Purpose: </strong>Appalachian Kentucky, a 32-county region in the eastern part of the state, has elevated colon cancer mortality rates. While recommended as the standard of care, access to adjuvant chemotherapy treatment is limited in this region due to scarce health services and significant social and geographical barriers. The purpose of this investigation was to improve understanding of barriers that cancer patients residing in rural areas not served directly by tertiary medical systems must overcome in completing adjuvant therapy.</p><p><strong>Methods: </strong>Participants were recruited from two medical centers: A tertiary care NCI designated Cancer Center and a regional hospital. Participants underwent a 15-20 minute interview to assess factors associated with adherence to adjuvant treatment recommendations. Grounded theory identified themes related to patient behaviors and non-adherence to standard of care recommendations.</p><p><strong>Results: </strong>Data were collected in 45 telephone and in-person patient interviews, 26 from an NCI-designated cancer center and 19 from a rural hospital. Statistically the two groups were equivalent in terms of age, subjective health status, and medical comorbidities. Six themes were identified from analysis of the transcribed interviews including: confidence in my care provider, communication, treatment issues, distrust, faith, and barriers to obtaining healthcare. Participants completing adjuvant therapy were more likely to express trust in their provider and describe fewer barriers to obtaining healthcare than those not completing adjuvant therapy.</p><p><strong>Conclusion: </strong>Barriers to completing adjuvant therapy may differ between rural and urban healthcare systems which may yield opportunities for targeted interventions to improve rates of completion of colon cancer adjuvant chemotherapy.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"235-241"},"PeriodicalIF":2.0,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789501/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123400","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Bryan McDowell, Kelly M Dumais, Sarah Tressel Gary, Ingeborg de Gooijer, Tomás Ward
{"title":"Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials.","authors":"Bryan McDowell, Kelly M Dumais, Sarah Tressel Gary, Ingeborg de Gooijer, Tomás Ward","doi":"10.2147/PPA.S474535","DOIUrl":"10.2147/PPA.S474535","url":null,"abstract":"<p><strong>Purpose: </strong>With the growing use of digital health technologies (DHT) in clinical trials, the opportunity to use technology to promote greater patient centricity and inclusivity has emerged. Current technology provides various mechanisms for communication, eg, through voice or text, however, participant familiarity and preference for them is poorly understood. The purpose of this study was to understand participants' communication preferences, their comfort with and use of messaging methods and their attitudes towards different communication and technology-driven symptom reporting methods in clinical trials.</p><p><strong>Participants and methods: </strong>Fifty-five participants, with any form of chronic health condition or recent intervention causing daily pain or discomfort were recruited by way of convenience sample for a single-centre, non-interventional, single-visit study, conducted in Ireland. Participants completed a questionnaire on communications preferences via an app on the participants' own electronic device.</p><p><strong>Results: </strong>In communication with friends and family, 69.6% of participants most preferred to use a messaging service. In communication with their healthcare provider, 72.7% preferred phone calls. Respondents preferred to communicate with friends/family via text messages (80.4%) over other methods. In clinical trial settings, participants are willing to use messaging methods to communicate with their physician. When reporting symptoms, most preferred a phone/video call to physicians (50.9%) and touch screen on device/smartphone (47.3%). 72.7% preferred to report symptoms using their own phone. Some respondents were interested in having the device read the questions/answers aloud (36.4%) and answer questions verbally (41.8%).</p><p><strong>Conclusion: </strong>Participants were familiar with various communication methods but showed different preferences to communicate with friends and family versus healthcare professionals. For reporting symptoms in a clinical trial while at home, split results suggested a preference for independent reporting as well as live communication with physician, perhaps reflecting the rising use of telehealth. Further exploration is needed for the use of questions read aloud or answered verbally when reporting symptoms in a clinical trial.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"255-263"},"PeriodicalIF":2.0,"publicationDate":"2025-01-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11789515/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143123402","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}