Patient preference and adherence最新文献

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Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials [Response to Letter]. 临床试验中对数字通信和症状报告方法的偏好和态度[回复来信]。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-19 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S522982
Bryan McDowell, Kelly M Dumais, Sarah Tressel Gary, Ingeborg de Gooijer, Tomás Ward
{"title":"Preferences and Attitudes Towards Digital Communication and Symptom Reporting Methods in Clinical Trials [Response to Letter].","authors":"Bryan McDowell, Kelly M Dumais, Sarah Tressel Gary, Ingeborg de Gooijer, Tomás Ward","doi":"10.2147/PPA.S522982","DOIUrl":"https://doi.org/10.2147/PPA.S522982","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"659-660"},"PeriodicalIF":2.0,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11930284/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143692621","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient-Reported Burden of Illness and Unmet Needs in Demodex blepharitis. 睑缘炎患者自述的疾病负担和未满足的需求。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-18 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S501764
Preeya K Gupta, Vance Thompson, Leslie O'Dell, Anh N Ho, Arthur Chan, Bhagyashree Oak, Amod Athavale, Elizabeth Yeu
{"title":"Patient-Reported Burden of Illness and Unmet Needs in <i>Demodex</i> blepharitis.","authors":"Preeya K Gupta, Vance Thompson, Leslie O'Dell, Anh N Ho, Arthur Chan, Bhagyashree Oak, Amod Athavale, Elizabeth Yeu","doi":"10.2147/PPA.S501764","DOIUrl":"10.2147/PPA.S501764","url":null,"abstract":"<p><strong>Background: </strong><i>Demodex</i> blepharitis is an ocular disorder caused by the infestation of <i>Demodex</i> mites that reside on the eyelash follicles.</p><p><strong>Objective: </strong>This study assessed the clinical, humanistic, and economic burden of <i>Demodex</i> blepharitis from a patient perspective.</p><p><strong>Methods: </strong>This cross-sectional, observational study used a web-enabled survey to collect data from US adults with <i>Demodex</i> blepharitis in 2022. Patients with unique burdens, including those receiving dry eye disease medications, wearing contact lenses, or experiencing cataracts or glaucoma were also examined.</p><p><strong>Results: </strong>Among 113 patients, mean age was 48.5 years (standard deviation [SD] ± 13.6). Half had private/commercial insurance, and 55% had Medicare and/or Medicaid. Patients had <i>Demodex</i> blepharitis for an average of 4.3 years (SD ± 6.7 years) before the study, and 1.2 years (SD ± 3.0 years) elapsed between the appearance of symptoms and diagnosis. Common symptoms, including redness, dryness, itchiness of the eyelids, and itchiness of the eyes, persisted or returned shortly after diagnosis and disease management in most patients, and they were associated with a negative impact on quality of life. Patients visited their healthcare practitioner for <i>Demodex</i> blepharitis a mean of 3.9 times (SD ± 4.8) in the preceding year. Patients were often managed with off-label prescription medications, such as medications indicated for dry eye disease, in-office procedures, or over-the-counter management options.</p><p><strong>Discussion: </strong>Patients with <i>Demodex</i> blepharitis reported symptoms impacting their quality of life and activities of daily living, which persisted after diagnosis and disease management. This suggested that the effectiveness of the reported symptom management options was temporary and highlighted an unmet need in treating the root cause of the disease.</p><p><strong>Conclusion: </strong>Patients with <i>Demodex</i> blepharitis were symptomatic, and the commonly used management options for <i>Demodex</i> blepharitis lacked long-term symptom relief or mite eradication, demonstrating a high unmet need in treating patients with <i>Demodex</i> blepharitis.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"647-658"},"PeriodicalIF":2.0,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11929423/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143692611","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implementation of Guideline-Based Use of Proton Pump Inhibitors for Perioperative Stress Ulcer Prophylaxis: A Pre-Post Study Guided by CFIR-ERIC. 基于指南的质子泵抑制剂用于围手术期应激性溃疡预防的实施:一项由cfr - eric指导的前后研究。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-18 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S496310
Xinrui Wang, Ying Liu, Yi Zhang, Zhuo Ma, Zhuoling An
{"title":"Implementation of Guideline-Based Use of Proton Pump Inhibitors for Perioperative Stress Ulcer Prophylaxis: A Pre-Post Study Guided by CFIR-ERIC.","authors":"Xinrui Wang, Ying Liu, Yi Zhang, Zhuo Ma, Zhuoling An","doi":"10.2147/PPA.S496310","DOIUrl":"10.2147/PPA.S496310","url":null,"abstract":"<p><strong>Background: </strong>The overuse and misuse of proton pump inhibitors (PPIs) in perioperative patients for stress ulcers prophylactic (SUP) is crucial. This study evaluated the impact of a Consolidated Framework for Implementation Research Expert Recommendations for Implementing Change (CFIR-ERIC)-guided intervention on the rational use of PPIs in a perioperative setting.</p><p><strong>Methods: </strong>A single-center pre-post study was conducted at Beijing Chaoyang Hospital between April and November 2023. All hospitalized patients who used perioperative PPIs for SUP were included. Cases post-intervention were defined as the intervention group and were propensity score-matched with pre-intervention cases, which was defined as the control group. The intervention strategies were developed by following the updated CFIR framework and employing CFIR-ERIC strategies. Outcomes included rational use of PPIs, reasons for irrational use, total hospitalization and drug costs, PPI duration, costs, and average defined daily dose.</p><p><strong>Results: </strong>1122 cases were included in the intervention group and control group after propensity score matching, respectively. The intervention group showed significant improved rate of rational PPI use (81.7% vs 42.0%, p<0.001). Rates of non-indication use, inappropriate dosage and administration, drug selection, and administration route were significantly reduced (all p<0.05). Coagulation disorders or anticoagulant/antiplatelet treatment, severe trauma or multiple injuries, severe infection or sepsis were the three most prevalent severe risk factors among patients, with 46.7% and 29.5% of the two groups, respectively. We found no significant differences between the two groups in total hospitalization costs (¥55,672.84 vs ¥57,021.73, p=0.621) and total drug costs (¥3005.38 vs ¥3260.98, p=0.206). Additionally, PPI costs (¥7.44 vs ¥93.70, p<0.001) and defined daily dose (7.00 vs 8.00, p<0.001) were significantly lower in the intervention group. We also observed a downward trend in PPI duration (6.00 days vs 5.00 days, p=0.075).</p><p><strong>Conclusion: </strong>The CFIR-ERIC-guided intervention effectively improved the rational use of PPIs for perioperative SUP, resulting in significant reductions in both the PPI duration and costs.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"635-645"},"PeriodicalIF":2.0,"publicationDate":"2025-03-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11929411/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143691827","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Bladder Emptying Strategies, Active Follow-up Adherence and Barriers in Post-Discharge Spinal Cord Injury individuals: A Multiple Center Cross-Sectional Study. 脊髓损伤患者出院后膀胱排空策略、积极随访依从性和障碍:一项多中心横断面研究。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-17 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S509537
Hongxia Pan, Liang Zhu, Jingfei Xu, Mingfu Ding, Haidan Lin, Yang Chen, Xin Sun, Chengqi He, Quan Wei
{"title":"Bladder Emptying Strategies, Active Follow-up Adherence and Barriers in Post-Discharge Spinal Cord Injury individuals: A Multiple Center Cross-Sectional Study.","authors":"Hongxia Pan, Liang Zhu, Jingfei Xu, Mingfu Ding, Haidan Lin, Yang Chen, Xin Sun, Chengqi He, Quan Wei","doi":"10.2147/PPA.S509537","DOIUrl":"10.2147/PPA.S509537","url":null,"abstract":"<p><strong>Background: </strong>Adherence plays a crucial role in the long-term management of chronic conditions, including neurogenic lower urinary tract dysfunction (NLUTD) in individuals with spinal cord injury (SCI). Poor adherence can lead to complications, reduced quality of life, and increased healthcare costs.</p><p><strong>Purpose: </strong>This study aimed to evaluate the post-discharge bladder-emptying practices and adherence to follow-up in SCI individuals with NLUTD, identifying key factors influencing adherence to improve long-term care strategies.</p><p><strong>Methods: </strong>A cross-sectional survey was conducted in Southwest China from May 1 to September 30, 2023. Online questionnaires were employed to collect data on sociodemographic characteristics, bladder emptying methods, active follow-up adherence and related barriers.</p><p><strong>Results: </strong>Out of 412 fully completed questionnaires, as for bladder-emptying method, 70.15% of respondents opted for clean intermittent catheterization (CIC) as their primary or preferred mode. CIC usage was more prevalent among participants with thoracic and lumbar SCI, while those with cervical SCI demonstrated a higher reliance on indwelling catheterization (IDC) and cystostomy. A significant 63.55% did not engage in regular hospital follow-ups participants with thoracic SCI had the lowest adherence rate (49.79%), followed by lumbar (72.62%) and cervical (77.59%) groups. Preferences for medical consultation were highest for rehabilitation physicians at 65.68%, with neurourologists following at 33.83%. Key barriers to follow-up adherence were identified as the more severity of SCI, lack of disease knowledge, increasing age, and reliance on adult children for care. In contrast, positive predictors of follow-up adherence were ample financial support and previous medical consultation experiences.</p><p><strong>Conclusion: </strong>This study revealed insufficient follow-up adherence among SCI individuals with NLUTD, with CIC emerging as the preferred method for bladder emptying strategy. Age and injury level significantly influenced adherence. To improve long-term management of NLUTD, future initiatives should focus on enhancing health education accessibility, optimizing healthcare services, and providing comprehensive financial support to high-risk groups.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"623-633"},"PeriodicalIF":2.0,"publicationDate":"2025-03-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11927570/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143691756","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Assessing the Needs of Patients with Cancer and Healthcare Professionals for a Digital Pain Management System: A Qualitative Study. 评估癌症患者和医疗保健专业人员对数字疼痛管理系统的需求:一项定性研究。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-15 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S506756
Xiaotong Xie, Xue Gao, Hui Wang, Binghua Li, Yan Wang, Xiaodong Jiao, Xiaowan Xv, Lingjun Zhou
{"title":"Assessing the Needs of Patients with Cancer and Healthcare Professionals for a Digital Pain Management System: A Qualitative Study.","authors":"Xiaotong Xie, Xue Gao, Hui Wang, Binghua Li, Yan Wang, Xiaodong Jiao, Xiaowan Xv, Lingjun Zhou","doi":"10.2147/PPA.S506756","DOIUrl":"10.2147/PPA.S506756","url":null,"abstract":"<p><strong>Objective: </strong>To understand the willingness of patients and healthcare workers to use, as well as their needs for, an intelligent cancer pain management platform. The findings will serve as a reference for developing cancer pain management tools in China.</p><p><strong>Methods: </strong>A Purposive sampling was used to conduct semi-structured interviews from March to June 2024 with patients experiencing chronic cancer pain, their family members, and healthcare workers in the oncology departments of two tertiary grade A hospitals in Shanghai, China. Data were analyzed using the Colaizzi's seven-step analysis.</p><p><strong>Results: </strong>The needs of patients and healthcare workers for a cancer pain management app were categorized into five themes, namely, recording of pain status, medication reminders, health education, social support, and artificial intelligence assistance.</p><p><strong>Conclusion: </strong>Future development of an advanced cancer pain management platform must address the multiple challenges currently faced in out-of-hospital cancer pain management, while also considering the needs and preferences of patients and healthcare workers. The platform should integrate features such as visualization of patients' pain trends, online medical education, peer support, real-time counseling, artificial intelligence assistance, and guidance for at-home self-management and supervision.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"605-614"},"PeriodicalIF":2.0,"publicationDate":"2025-03-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11921792/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143664235","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Patient Preferences for Faster Home-Based Subcutaneous Immunoglobulin Infusion Therapy and the Effect on Adverse Events. 患者对快速家庭皮下免疫球蛋白输注治疗的偏好及其对不良事件的影响。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-14 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S502444
Brent Rutland, Carleton Southworth, Jasmin Bosshard
{"title":"Patient Preferences for Faster Home-Based Subcutaneous Immunoglobulin Infusion Therapy and the Effect on Adverse Events.","authors":"Brent Rutland, Carleton Southworth, Jasmin Bosshard","doi":"10.2147/PPA.S502444","DOIUrl":"10.2147/PPA.S502444","url":null,"abstract":"<p><p>Patients have expressed a preference for home-based subcutaneous immunoglobulin infusion therapy, often citing the time savings from not having to commute, as well as the flexible scheduling that home-based treatment provides. In this review of evidence, the opportunity to decrease time spent during infusions is explored, as well as the contrast between subcutaneous and intravenous infusion therapy. How decisions are made is also explored. Stakeholders include patients, their caregivers, and medical professionals supervising their care. Costs associated with various treatment options have been explored in the literature, in some depth. One element of cost that is often omitted, however, is the cost of time to patients and caregivers. A conclusion that there is a substantial opportunity to save patient and caregiver time is warranted. There is an opportunity to improve infusion protocols using existing devices. Evidence suggests that the mean savings per infusion is 38.94 minutes with optimized infusion protocols, saving more than one and one-half days of waking hours over the course of a year. More research in this domain is warranted.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"615-621"},"PeriodicalIF":2.0,"publicationDate":"2025-03-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11917435/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143658187","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Readiness for Discharge, Quality of Discharge Teaching, Anxiety and Depression in Surgical Patients With Cervical Cancer: A Cross-Sectional Survey. 宫颈癌手术患者的出院准备、出院教学质量、焦虑和抑郁:一项横断面调查
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-06 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S495260
Jing Yuan, Jia Zhang, XiuYun Cui, YuTing Zhang, Yaru Wu, ChunYan Xu
{"title":"Readiness for Discharge, Quality of Discharge Teaching, Anxiety and Depression in Surgical Patients With Cervical Cancer: A Cross-Sectional Survey.","authors":"Jing Yuan, Jia Zhang, XiuYun Cui, YuTing Zhang, Yaru Wu, ChunYan Xu","doi":"10.2147/PPA.S495260","DOIUrl":"10.2147/PPA.S495260","url":null,"abstract":"<p><strong>Purpose: </strong>This quantitative study aimed to determine whether the quality of discharge teaching, anxiety, depression, and various demographic and disease-related factors predict discharge readiness among cervical cancer surgical patients in Western Region of China.</p><p><strong>Methods: </strong>From November 2023 to May 2024, a convenience sampling method was employed to administer a questionnaire to cervical cancer surgery patients at a tertiary Grade A specialized hospital in Xinjiang. The survey included a patient general information questionnaire, the Quality of Discharge Teaching Scale (QDTS), the Generalized Anxiety Disorder 7-item Scale (GAD-7), a questionnaire assessing the readiness for discharge of gynecological malignant tumor surgery patients under the enhanced recovery after surgery (ERAS) model, and the Patient Health Questionnaire-9 (PHQ-9). Multivariate linear regression analysis was used to identify factors influencing discharge readiness.</p><p><strong>Results: </strong>A total of 180 cervical cancer surgery patients participated, yielding an average score of 190.46±25.36 on the gynecological malignant tumor discharge readiness questionnaire under the ERAS model. Multiple linear regression analysis indicated that education level, chronic diseases, medication use, quality of discharge teaching, and depressive mood were significant predictors of discharge readiness of cervical cancer surgery patients.</p><p><strong>Conclusion: </strong>The overall discharge readiness of cervical cancer surgery patients was found to be at a moderate. Nurses should prioritize patients with lower education levels, chronic conditions, depression, and those requiring medication post-discharge. Personalized health guidance and targeted interventions should be developed to enhance the quality of discharge teaching, thereby improving patients' readiness for discharge.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"593-604"},"PeriodicalIF":2.0,"publicationDate":"2025-03-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11892361/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143597549","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prevalence and Associated Factors of Treatment Regimen Fatigue Among People Living with HIV/AIDS in China: A Cross-Sectional Survey. 中国HIV/AIDS感染者治疗方案疲劳的患病率及相关因素:一项横断面调查
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-04 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S495212
Baohua Liu, Yisi Yang, Hongguo Zhou, Huan Liu, Zhenzhen Xu
{"title":"Prevalence and Associated Factors of Treatment Regimen Fatigue Among People Living with HIV/AIDS in China: A Cross-Sectional Survey.","authors":"Baohua Liu, Yisi Yang, Hongguo Zhou, Huan Liu, Zhenzhen Xu","doi":"10.2147/PPA.S495212","DOIUrl":"10.2147/PPA.S495212","url":null,"abstract":"<p><strong>Introduction: </strong>Treatment regimen fatigue (TRF) is universal among people living with HIV/AIDS. Long-term adherence to treatment regimens is crucial to maintaining the health and life span of such individuals.</p><p><strong>Objective: </strong>This study aimed to examine treatment regimen fatigue among people living with HIV/AIDS and the relevant factors.</p><p><strong>Methods: </strong>This cross-sectional study was conducted between January and December 2019 at two designated AIDS medical institutions in Harbin, China. A total of 717 valid samples were included in the study. The Treatment Regimen Fatigue Scale was used to measure treatment regimen fatigue. The participants responded to several questions regarding their demographic characteristics, clinical characteristics, and social psychological characteristics. Multivariate logistic regression assessed the relationship between TRF and associated factors. Odds ratios (OR) and 95% confidence intervals (CI) for OR were calculated.</p><p><strong>Results: </strong>The self-reported mean global score for the TRFS was -15.59 ± 22.90. After adjusted location, education background and, monthly income, the logistic regression model indicated that depression (OR=3.177, 95% CI=2.180-4.629), other chronic diseases (OR=1.786, 95% CI=1.057-3.019), >3 years of treatment (OR=1.767, 95% CI=1.203-2.594), having an intimate confidant (OR=0.514, 95% CI=0.347-0.760), life satisfaction (OR=0.564, 95% CI=0.365-0.870), living area (OR=0.491, 95% CI=0.295-0.817), and an undergraduate or above education level (OR = 0.568, 95% CI=0.335-0.965) were associated factors for TRF.</p><p><strong>Conclusion: </strong>The prevalence of TRF among PLWHA in China is relatively high and is influenced by multiple factors including psychosocial, clinical, and demographic characteristics. Social support, especially psychological support, for PLWHA should be strengthened. This study's findings highlight the need to develop multilevel interventions to reduce TRF, addressing the complex needs of PLWHA and mitigating the adverse impact of TRF on HIV treatment outcomes. Further longitudinal research on factors of TRF should be conducted to strengthen and broaden the current findings.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"583-591"},"PeriodicalIF":2.0,"publicationDate":"2025-03-04","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11890124/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143586645","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Correlation Between the Quality of Life of Stroke Caregivers and the Readiness of Patients and Caregivers for Hospital Discharge. 脑卒中护理人员生活质量与患者及护理人员出院准备程度的相关性
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-03 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S497604
Jun Zhou, Qiao-Lin Chen, Qian-Qian Li, Le-Mei Liu, Yu Lei, Xue Yang, Wen-Xuan Mou, Chun-Yu He, Fan-Min Li
{"title":"Correlation Between the Quality of Life of Stroke Caregivers and the Readiness of Patients and Caregivers for Hospital Discharge.","authors":"Jun Zhou, Qiao-Lin Chen, Qian-Qian Li, Le-Mei Liu, Yu Lei, Xue Yang, Wen-Xuan Mou, Chun-Yu He, Fan-Min Li","doi":"10.2147/PPA.S497604","DOIUrl":"10.2147/PPA.S497604","url":null,"abstract":"<p><strong>Objective: </strong>This study aimed to evaluate the quality of life of stroke caregivers and analyze its association with the discharge readiness of both caregivers and patients.</p><p><strong>Methods: </strong>A total of 302 stroke patients and their primary caregivers were recruited from the neurology departments of three hospitals affiliated with Chengdu Medical College using a convenience sampling method. Sociodemographic data, the WHO Quality of Life Scale (WHOQOL-BREF), the Caregiver Preparedness Scale (CPS), and the Readiness for Hospital Discharge Scale (RHDS) were used. Statistical analyses included <i>t</i>-tests, analysis of variance (ANOVA), Pearson's correlation analysis, and multiple linear regression.</p><p><strong>Results: </strong>The overall mean quality of life of primary caregivers is 60.80±6.06, indicating a relatively low level. The mean readiness for discharge scores are as follows: caregivers: 17.66±2.67, indicating a moderate level; stroke patients: 78.17±8.16, indicating a relatively low level. A positive correlation was found between caregivers' quality of life and their own as well as the patients' readiness for discharge (<i>P</i> < 0.01). Multiple linear regression indicated four significant factors associated with caregiver quality of life: Patient's disease severity, Patient's readiness for discharge, Caregiver's readiness for discharge, and the Daily hours spent caregiving (<i>R²</i>= 0.589, <i>P</i> < 0.001).</p><p><strong>Conclusion: </strong>Caregivers' quality of life is generally low but can be improved by enhancing discharge readiness for both caregivers and patients.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"569-582"},"PeriodicalIF":2.0,"publicationDate":"2025-03-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11887660/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143586643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Validating Patient Perspectives: A Study on the Reliability of Satisfaction Survey Tools. 验证患者的观点:满意度调查工具的可靠性研究。
IF 2 3区 医学
Patient preference and adherence Pub Date : 2025-03-01 eCollection Date: 2025-01-01 DOI: 10.2147/PPA.S490871
Lorena Charrier, Andrea Ricotti, Fabiana Marnetto, Rosanna Irene Comoretto, Paola Berchialla, Elena Cristina Carratello, Mariacristina Favero Fra, Graziella Costamagna, Paola Dalmasso, Maria Carmen Azzolina
{"title":"Validating Patient Perspectives: A Study on the Reliability of Satisfaction Survey Tools.","authors":"Lorena Charrier, Andrea Ricotti, Fabiana Marnetto, Rosanna Irene Comoretto, Paola Berchialla, Elena Cristina Carratello, Mariacristina Favero Fra, Graziella Costamagna, Paola Dalmasso, Maria Carmen Azzolina","doi":"10.2147/PPA.S490871","DOIUrl":"10.2147/PPA.S490871","url":null,"abstract":"<p><strong>Purpose: </strong>Patient perceptions of care quality can guide targeted improvements. Valid and reliable measures are essential for meaningful patient satisfaction assessment, but no validated questionnaires were found among those used in most Italian hospitals. This study aimed to assess the internal reliability and construct validity of two patient satisfaction questionnaires (one for outpatient care and one for inpatient care) developed at Ordine Mauriziano Hospital in Torino, Italy.</p><p><strong>Patients and methods: </strong>The questionnaires underwent face and content validation based on literature, brainstorming, and expert input. After Ethics Committee approval, patients admitted to or accessing the Ordine Mauriziano Hospital for outpatient visits completed the inpatient and outpatient care questionnaires, respectively. Responses were analyzed for internal reliability (Cronbach's ɑ) and construct validity using confirmatory factor analysis (CFA).</p><p><strong>Results: </strong>Between February and May 2024, 371 outpatient and 374 inpatient questionnaires were fully completed (78%). Both questionnaires' specific subscales showed high internal reliability (Cronbach's ɑ ≥0.80) and a significant positive correlation with overall satisfaction, confirming construct validity. CFA fit indices met recommended thresholds: CFI>0.9, RMSEA, and SRMR<0.08.</p><p><strong>Conclusion: </strong>The results suggest that both questionnaires are valid and reliable for assessing patient satisfaction. They offer valuable insights for healthcare personnel and managers to improve care by focusing efforts and investments on areas needing enhancement and strengthening successful dimensions. Moreover, the widespread use of these tools at the regional level will provide decision-makers with more robust and comparable data over time and across care facilities.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"463-472"},"PeriodicalIF":2.0,"publicationDate":"2025-03-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11881768/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143567914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
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