Patient preference and adherence最新文献

{"title":"Anticipations and Requirements of Individuals with Long-Term Health Conditions Regarding Self-Management and Digital Health Support Tools.","authors":"Tourkiah Alessa","doi":"10.2147/PPA.S545496","DOIUrl":"10.2147/PPA.S545496","url":null,"abstract":"<p><strong>Background and objectives: </strong>This research examines the individuals with chronic health conditions who desire self-management support, exploring their views towards digital health for self-management purposes.</p><p><strong>Materials and methods: </strong>The researchers conducted an exploratory qualitative investigation through eight focus groups, allocating two groups to each condition: diabetes (groups of seven and six participants), hypertension (groups of six and six), chronic obstructive pulmonary disease (COPD) (groups of six and five), and cardiovascular conditions (groups of five and five). The discussion focused on three areas: 1) how chronic illness affects everyday living; 2) viewpoints and requirements regarding self-management; and 3) expectations, needs, and readiness to use digital health (eHealth) for self-management. The research employed a content-based analytical approach.</p><p><strong>Results: </strong>The patient groups showed different expectations and needs regarding eHealth and self-management. The diabetes and hypertension groups reported the most needs and perceived benefits, while COPD came next in terms of willingness to use eHealth for self-management. In contrast, cardiovascular patients indicated fewer requirements for self-management support as their condition had a minimal effect on their daily activities. Across all groups, patients favored having the choice to utilize eHealth tools rather than healthcare professionals mandating their use despite the Saudi healthcare system's directive nature. Some participants also saw potential for AI to support self-management, particularly through features like early warnings. Participants believed that eHealth should be enhanced rather than substituted for personal health care, with numerous individuals expressing anxiety about conducting self-measurements and uncertainty regarding appropriate responses to abnormal readings.</p><p><strong>Conclusion: </strong>This study revealed differences in requirements and expectations among patient groups regarding self-management and indicates that aspects of eHealth and its implementation should be tailored to individual patients. The anticipated benefits of eHealth to support self-management and perceived disease controllability appeared to significantly influence patients' willingness to adopt eHealth for self-management purposes.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2901-2918"},"PeriodicalIF":2.0,"publicationDate":"2025-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12442896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145086672","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a Health Education Checklist for Healthcare Professionals to Ensure Treatment Adherence of Newly Diagnosed Young People Living with HIV: A Delphi Study.","authors":"Meishan Chen, Yi Wang, Liwen Jiang, Tingting Chen, Xiaoyu Song, Min Tian, Yanhua Chen, Jian Tang","doi":"10.2147/PPA.S543312","DOIUrl":"10.2147/PPA.S543312","url":null,"abstract":"<p><strong>Background: </strong>Young people living with HIV (YLWH) are a key population in global HIV prevention and control. YLWH often shows poor adherence to antiretroviral therapy (ART), with poor medication adherence, delayed initiation and frequent treatment interruption. This study aimed to develop a theory-based health education checklist to support ART adherence among newly diagnosed YLWH.</p><p><strong>Methods: </strong>An initial pool of 41 items was generated through a literature review and the Protection Motivation Theory (PMT) framework, covering ART knowledge, coping strategies, psychosocial support, and behavioral skills. A structured health education checklist was then designed and refined through expert panel discussions and the Delphi method. Between November 2024 and January 2025, 17 experts from seven provinces in China participated in a two-round Delphi consultation. Experts assessed and revised the scientific rigor, importance, and feasibility of the proposed checklist. The expert authority coefficient and Kendall's coefficient of concordance were calculated to evaluate the consistency of expert opinions, leading to the development of a standardized checklist.</p><p><strong>Results: </strong>The final checklist comprises 5 primary indicators, 10 secondary indicators, and 32 tertiary indicators. The expert authority coefficients for the two Delphi rounds were 0.867 and 0.905, respectively, the Kendall's coefficients of concordance were 0.621 and 0.716 (<i>P</i> < 0.001). The expert participation rates were 100% in the first round and 94.12% in the second round.</p><p><strong>Conclusion: </strong>The health education checklist developed in this study demonstrates high scientific rigor and feasibility. It provides healthcare professionals with a structured tool to guide health education, which may support both short-term and long-term ART adherence among YLWH.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2873-2885"},"PeriodicalIF":2.0,"publicationDate":"2025-09-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12439823/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145081042","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Coronary Heart Disease Patients' Knowledge, Attitudes, and Practices Regarding Coronary Artery Bypass Grafting.","authors":"Wentong Dong, Bin Yang, Xianjie Li, Runsheng Zhang, Qiankun Chen, Wenhao Peng, Zhengyu Li, Feilong Zeng, Tinghua Li, Siming Zhu","doi":"10.2147/PPA.S548589","DOIUrl":"10.2147/PPA.S548589","url":null,"abstract":"<p><strong>Background: </strong>Coronary heart disease (CHD) is a leading cause of mortality worldwide. Coronary artery bypass grafting (CABG) is a recognized effective treatment, particularly for patients with complex multivessel disease. However, there is limited research on the knowledge, attitudes, and practices (KAP) of CHD patients toward this surgery.</p><p><strong>Aim: </strong>This study aimed to investigate the KAP of CHD patients regarding CABG.</p><p><strong>Methods: </strong>A cross-sectional study was conducted from September 13, 2023 to January 25, 2024 at the Cardiology and Cardiothoracic Surgery Departments of Zhengzhou Seventh People's Hospital through the dissemination of a self-designed KAP questionnaire, which demonstrated good internal consistency with a Cronbach's α coefficient of 0.921 in the pilot test.</p><p><strong>Results: </strong>A total of 427 participants (mean age 58.05 ± 13.2 years; 62.53% male) were enrolled. Among them, 151 (35.36%) had undergone or are scheduled for CABG. The mean knowledge, attitude, and practice scores were 6.03±2.16, 43.03±6.61, and 37.7±5.51, respectively. Participants with CABG experience or plans exhibited significantly higher attitude and knowledge scores compared to those without. Correlation analyses showed that there were significant positive correlations between knowledge and attitude (r = 0.128, P = 0.008) as well as practice (r = 0.202, P < 0.001). Also, there was a correlation between attitude and practice (r = 0.654, P < 0.001). Multivariate analyses showed that attitude score (OR = 1.294, 95% CI: [1.226-1.367], P < 0.001), marital status other than married (OR = 2.32, 95% CI: [1.048-5.136], P = 0.038) were independently associated with proactive practice.</p><p><strong>Conclusion: </strong>CHD patients exhibited insufficient knowledge, positive attitudes and proactive practices regarding CABG. Healthcare professionals should prioritize patient education initiatives aimed at enhancing knowledge regarding CABG, while also reinforcing and leveraging positive attitudes and proactive behaviors to optimize patient outcomes and treatment adherence.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2861-2871"},"PeriodicalIF":2.0,"publicationDate":"2025-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433663/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145070162","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Constrained by Instruments: How Quantitative Screening May Limit Exploration of Diabetic Patients' Lived Fear Experiences of Complications [Letter].","authors":"Fei-Yi Zhao, Qiang-Qiang Fu, Chin Moi Chow","doi":"10.2147/PPA.S563702","DOIUrl":"10.2147/PPA.S563702","url":null,"abstract":"","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2817-2820"},"PeriodicalIF":2.0,"publicationDate":"2025-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433659/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145070190","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Validation Of The Asthma Self-Management Questionnaire For The Brazilian Population.","authors":"Lenice Daiane da Costa Lopes, Maria Luíza de Araújo Teixeira, Layane Priscila Costa da Silva, Jose Alexandre Barbosa Almeida, Lucien Peroni Gualdi","doi":"10.2147/PPA.S502613","DOIUrl":"10.2147/PPA.S502613","url":null,"abstract":"<p><strong>Introduction: </strong>The lack of instruments to assess asthma self-management in Brazil highlights the need to develop specific tools to help patients manage their own health condition.</p><p><strong>Objective: </strong>The study aimed to translate, cross-culturally adapt, and evaluate the psychometric properties of the Asthma Self-Management Questionnaire (ASMQ) for the Brazilian adult population diagnosed with asthma.</p><p><strong>Materials and methods: </strong>This is a methodological, exploratory, and descriptive study approved by the Research Ethics Committee (CEP) of the Federal University of Rio Grande do Norte (UFRN) under opinion number 6.062.022. The study followed international guidelines to design and execute six stages: translation, synthesis of translations, back-translation, synthesis of back-translations, Multidisciplinary Committee of Experts, and pre-testing. For the translation phase, five judges participated using the Delphi Technique through the Multidisciplinary Committee of Experts. For the cross-cultural adaptation, a pre-test phase was conducted using a questionnaire applied to individuals who met the eligibility criteria. Data analysis was performed using SPSS statistical software, version 22.0, with a significance level of 5%.</p><p><strong>Results: </strong>The translation and cross-cultural adaptation of the ASMQ-Brazil to Brazilian Portuguese were completed. The results of this study demonstrated a Content Validity Index (CVI) greater than 0.80 for all items in the instrument. The ASMQ-Brazil is presented as a valid and reliable health measurement instrument for assessing asthma self-management in the Brazilian adult population.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2847-2859"},"PeriodicalIF":2.0,"publicationDate":"2025-09-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433639/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145070182","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medication Adherence in Parkinson's Disease: Longitudinal Changes and the Influence of Depressive Symptoms.","authors":"Konstantin G Heimrich, Aline Schönenberg, Gabriele Helga Franke, Tino Prell","doi":"10.2147/PPA.S529538","DOIUrl":"10.2147/PPA.S529538","url":null,"abstract":"<p><strong>Purpose: </strong>Parkinson's disease (PD) is a progressive neurodegenerative disease. As the disease progresses, medication regimens become increasingly complex. The long-term success of PD pharmacotherapy is highly dependent on patient adherence to the prescribed medication regimen. The aim of this study is to investigate how intentional and unintentional non-adherence evolves over time and to identify PD-related factors that influence these longitudinal changes. These findings may be crucial in developing targeted interventions to improve adherence, particularly in patients who have difficulties with intentional or unintentional non-adherence.</p><p><strong>Patients and methods: </strong>The sample consisted of 91 people with PD who were initially treated as part of the PD multimodal complex treatment at the Department of Neurology, Jena University Hospital, Germany. They were followed up three and six months after discharge. Medication adherence was assessed using the Stendal Adherence to Medication Score (SAMS) and its three subscores for forgetfulness, knowledge, and modification. Statistical analyses included Wilcoxon signed rank test, Friedman test, and generalized estimating equations to determine longitudinal changes in non-adherence and the influence of PD-related variables.</p><p><strong>Results: </strong>Analysis of SAMS subscores showed improvement over time in modification and knowledge, whereas forgetfulness did not show significant change. Modification was significantly associated with depressive symptoms.</p><p><strong>Conclusion: </strong>Medication adherence in PD is a dynamic process and changes over time. The findings suggest that while educational interventions are effective in improving knowledge and reducing intentional non-adherence, addressing depressive symptoms and cognitive impairment is critical to improving overall adherence. Future research should continue to explore the factors that influence adherence behaviors and develop targeted strategies to help people with PD maintain adherence throughout the course of their disease.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2835-2845"},"PeriodicalIF":2.0,"publicationDate":"2025-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433264/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145065330","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quantifying the Tolerability of Antipsychotic Treatment-Related Side Effects in Schizophrenia: A Survey Study of Patients and Caregiver Proxies.","authors":"Melissa Culhane Maravic, Kelly Birch, Anh Thy H Nguyen, Alicia Subasinghe, Elizabeth Stafford, Christopher Zacker","doi":"10.2147/PPA.S466742","DOIUrl":"10.2147/PPA.S466742","url":null,"abstract":"<p><strong>Background: </strong>Antipsychotic medications are considered the mainstay of treatment for schizophrenia. However, these medications are associated with a wide range of side effects, which may be tolerated differently by patients, and may impact initiation and continuation of treatment.</p><p><strong>Purpose: </strong>This study aimed to assess the tolerability of antipsychotic medication side effects for patients with schizophrenia and understand how side effects may impact decisions to initiate and remain in treatment.</p><p><strong>Methods: </strong>A cross-sectional survey was conducted with 200 people living with schizophrenia and 100 caregiver proxies for those with severe disease presentation. The survey utilized the Maximum Difference Scaling (MaxDiff) approach to quantify preferences and a direct elicitation survey to rank specific side effects. Descriptive analysis and statistical analyses were conducted to address the study objectives.</p><p><strong>Results: </strong>Results indicated that extrapyramidal side effects such as pseudoparkinsonism and tardive dyskinesia, as well as feeling detached and memory and cognitive issues were ranked as the least tolerable. In contrast, side effects such as reduced interest in/enjoyment of sex, feeling tired or drowsy, and dry mouth were perceived as more tolerable. Caregivers' perspectives closely aligned with the care recipients' rankings, with an additional particular concern for high blood sugar that may lead to diabetes. Side effects such as pseudoparkinsonism, memory and cognitive problems, and weight gain were associated with unwillingness to initiate or continue an effective antipsychotic medication.</p><p><strong>Conclusion: </strong>These findings highlight the importance of considering side effect profiles when selecting and discussing treatment options with patients. Side effects can potentially impact patients' willingness to start or switch medications, therefore, prescribing decisions should take into consideration patients' tolerance for potential adverse effects. Engaging patients and caregivers in treatment decisions can enhance shared decision-making and treatment satisfaction. Healthcare providers should consider these findings when prescribing antipsychotic medications to people living with schizophrenia.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2821-2834"},"PeriodicalIF":2.0,"publicationDate":"2025-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433224/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145065299","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Self-Management Task Performance and Its Association with Biomarkers in Elderly Patients with Chronic Heart Failure: A Cross-Sectional Analysis.","authors":"Haixiang Zhu, Xiaoxue Han, Jinxuan Chen, Jiaen Ding, Ruiting Wang, Yuan Wu","doi":"10.2147/PPA.S529356","DOIUrl":"10.2147/PPA.S529356","url":null,"abstract":"<p><strong>Purpose: </strong>This study aimed to investigate the relationship between self-management task performance and key heart failure biomarkers (NT-proBNP and uric acid) in elderly patients with chronic heart failure (CHF), and to explore the mediating role of disease severity in this relationship.</p><p><strong>Design patients and methods: </strong>A total of 103 elderly CHF patients were recruited. And cross-sectional study conducted at two tertiary hospitals. Self-management task performance was assessed using a validated six-task evaluation scale. Clinical data, including NT-proBNP, uric acid, and other laboratory markers, were collected. Participants were stratified into low and high task performance groups based on the median score. Data were analyzed using partial correlation analysis, logistic regression, and restricted cubic spline analysis.</p><p><strong>Results: </strong>Patients with higher task performance were significantly younger (p < 0.001). Task performance was negatively correlated with NT-proBNP (r = -0.337, p < 0.001) and uric acid (r = -0.279, p = 0.005), indicating that lower performance was associated with higher biomarker levels, reflecting more severe disease progression. A non-linear decreasing trend in both NT-proBNP and uric acid levels was observed as task performance increased. Among the self-management tasks, medication-related tasks had the lowest success rates, while tasks related to oedema and dietary management showed higher performance rates.</p><p><strong>Conclusion: </strong>Lower self-management task performance is significantly associated with elevated NT-proBNP and uric acid levels in elderly CHF patients, suggesting that poorer performance may indicate more advanced disease progression. These findings highlight the importance of targeted interventions to enhance self-management skills, particularly in medication adherence and disease monitoring, to improve patient outcomes. Future research should investigate the long-term clinical impact of improving task performance in CHF patients.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2797-2806"},"PeriodicalIF":2.0,"publicationDate":"2025-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433211/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145065319","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Content Validity of the Hemophilia Device Handling and Preference Assessment Questionnaire - A Cognitive Debrief Study in Patients with Hemophilia and Their Caregivers.","authors":"Niklas Kahr Rasmussen, Sanket Shah, Jui-Hua Tsai, Kelly P McCarrier, Emily A Hildebrand, Maya Gonczi, Gitte Ter-Borch, Birgitte Berg, Jesper Skov Neergaard","doi":"10.2147/PPA.S529134","DOIUrl":"10.2147/PPA.S529134","url":null,"abstract":"<p><strong>Introduction: </strong>As new treatment options using different modes of administration become available for patients with hemophilia, it is important to assess how patients and caregivers perceive the use of different injection systems.</p><p><strong>Aim: </strong>This study aimed to evaluate patient comprehension, relevance, and comprehensiveness of the <i>Hemophilia Device Handling and Preference Assessment</i> (HDHPA) instrument among the hemophilia population. Specifically, cognitive interviews were to be conducted to establish evidence of the content validity for the instrument's use in a handling and preference study.</p><p><strong>Methods: </strong>This cross-sectional interview study included participants randomly selected from a pen-injector handling and preference study in the USA who had self-administered a ten-item HDHPA questionnaire. Subsequently, semi-structured cognitive interviews were conducted examining HDHPA instrument instructions, items, and response options.</p><p><strong>Results: </strong>The study sample consisted of 20 participants (50% adult patients, 25% adolescents, and 25% caregivers; 75% male). Most participants (89-100%) demonstrated comprehension of the instructions given. Nearly all participants (94-100%) demonstrated clear comprehension of the ten HDHPA items. All 20 participants stated that the questionnaire was relevant and comprehensive in assessing the pen-injector and comparing it to their current device.</p><p><strong>Conclusion: </strong>The results of this study showed that the HDHPA items are comprehensible, relevant, and comprehensive, thereby confirming the content validity of this instrument.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2807-2816"},"PeriodicalIF":2.0,"publicationDate":"2025-09-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12433217/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145065354","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Home-Based Self-Management After Permanent Pacemaker Implantation: What Should Patients Know.","authors":"Han Yan, Yu Shuang Chen, Yi Li, Guan-Xing Wei, Fang Ma, Qiu Lan Hu, Lan Ding, Wei Wei, Yan Li, Yang-Juan Bai","doi":"10.2147/PPA.S535177","DOIUrl":"10.2147/PPA.S535177","url":null,"abstract":"<p><strong>Objective: </strong>The purpose of this study is to systematically explore and summarize the best evidence of home-based self-management in patients with permanent pacemaker implantation, providing comprehensive references and guidance for improving the self-management ability of such patients.</p><p><strong>Methods: </strong>Using the \"6S\" model, a systematic literature search was conducted on home-based self-management in patients with permanent pacemaker implantation. The types of literature included best practice, clinical decision-making, guidelines, expert consensus, systematic review and evidence summary. According to the inclusion and exclusion criteria, two researchers screened the literature, evaluated the quality, extracted the data, synthesized the evidence.</p><p><strong>Data sources: </strong>BMJ Best Practice, Up To Date, Joanna Briggs Institute (JBI), the World Health Organization (WHO), the Guidelines International Network (GIN), the National Institute for Health and Care Excellence (NICE), the Registered Nurses Association of Ontario (RNAO), the Scottish Intercollegiate Guidelines Network (SIGN), the American Heart Association (AHA), the Cochrane Library, PubMed, CINAHL, Web of Science, Medlive, CNKI Database, SinoMed (China Biomedical Literature Database), Wanfang Database and VIP Database. The retrieval period spanned from the establishment of these databases until January 31, 2025.</p><p><strong>Results: </strong>A total of 21 articles were included, 1 best practice, 9 clinical decision-making, 5 guidelines, 3 expert consensus, 1 systematic review, and 2 evidence summaries. Thirty-five pieces of the best evidence from 7 aspects were summarized, including complication management, electromagnetic interference management, sports rehabilitation management, operative limb management, postoperative follow-up management, role management, and emotional management.</p><p><strong>Conclusion: </strong>This review comprehensively summarized the best evidence home-based self-management in patients with permanent pacemaker implantation. These findings are scientific and referential, and provide evidence-based support for nursing and management of patients during home-based rehabilitation.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"2771-2786"},"PeriodicalIF":2.0,"publicationDate":"2025-09-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC12430239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145065344","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}