Patient preference and adherence最新文献

{"title":"A Network Analysis of Social Integration and Subjective Well-Being in Young and Middle-Aged Lymphoma Patients.","authors":"Li Zhang, Yaru Wu, Yuting Zhang, Chunyan Xu, Wei Zhu","doi":"10.2147/PPA.S593724","DOIUrl":"https://doi.org/10.2147/PPA.S593724","url":null,"abstract":"<p><strong>Objective: </strong>To explore the network relationships between social integration and subjective well-being (SWB) and to identify key nodes within this network among young and middle-aged lymphoma patients.</p><p><strong>Methods: </strong>This study was conducted at a tertiary cancer hospital in Urumqi, Xinjiang, China. From February to November 2025, a total of 315 young and middle-aged lymphoma patients were recruited using convenience sampling. Data were collected via a general information questionnaire, the Social Cohesion Scale, and the General Well-Being Schedule. We used network analysis to identify core and bridge nodes in the social integration and SWB network. A network comparison test (NCT) was performed to examine potential gender differences.</p><p><strong>Results: </strong>The network analysis revealed that \"Daily integration\" demonstrated the strongest edge weight with \"Relaxed or tense\". In terms of node centrality, \"Depressed or happy mood\" and \"Daily integration\" emerged as the core nodes with the highest strength centrality, while \"Daily integration\" and \"Intimate integration\" were identified as the pivotal bridge nodes connecting different network clusters. No gender differences were observed in the association network between social integration and SWB.</p><p><strong>Conclusion: </strong>This study explores the network associations between social integration and SWB in young and middle-aged lymphoma patients. The findings suggest that intervention strategies may focus on improving emotional regulation, daily social interaction, and intimate relationships to enhance social integration and SWB in this population. Given the heterogeneity in clinical characteristics among lymphoma patients, future studies are warranted to validate the present findings across different subtypes and treatment backgrounds.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"593724"},"PeriodicalIF":2.0,"publicationDate":"2026-04-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13101817/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147778345","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Patient Priorities for Coverage of New Antihypertensive Drugs: A Discrete Choice Experiment in China.","authors":"Jiaran Chen, Chen Pan, Guohua Wang, Leilei Qian, Yiming Lu, Tongling Xie, Jianjun Gu, Jinsong Geng","doi":"10.2147/PPA.S588300","DOIUrl":"https://doi.org/10.2147/PPA.S588300","url":null,"abstract":"<p><strong>Objective: </strong>Hypertension is a chronic condition in which patient-centered decisions are crucial for long-term adherence and outcomes. We aimed to obtain patient priorities for health insurance coverage of new antihypertensive drugs, and translate these preferences into reimbursement proposals using a discrete choice experiment.</p><p><strong>Methods: </strong>A systematic literature review and semi-structured interviews were conducted to determine the attributes and levels. A Bayesian D-efficient design with blocking techniques was used to generate choice scenarios in the experiment. We conducted one-on-one, face-to-face interviews with patients with hypertension across four provinces in China. A mixed logit model was used to estimate patient preferences, marginal willingness-to-pay, and preference heterogeneity.</p><p><strong>Results: </strong>Data analysis included 802 patients. When prioritizing new antihypertensives for health insurance coverage, patients placed more importance on improvement in health-related quality of life (HRQoL), followed by lower out-of-pocket costs per year, systolic blood pressure (SBP) control, fewer common side effects, and decreased five-year mortality due to cardiovascular diseases. Patients were willing to pay CNY 4049 (95% CI 3418-4681) annually for significant improvements in HRQoL. Patients with higher untreated office SBP prioritized effective SBP control and the lowest five-year stroke risk.</p><p><strong>Conclusion: </strong>Hypertensive patients primarily prefer improved HRQoL, lower out-of-pocket costs, and favorable long-term health outcomes. Our findings support preference-responsive reimbursement mechanisms, such as tiered coverage based on patient-valued outcomes and risk-stratified subsidies for patients at high cardiovascular disease risk.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"588300"},"PeriodicalIF":2.0,"publicationDate":"2026-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13096017/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147778272","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Perceived Barriers and Supports to Medication Adherence in Type 2 Diabetes: A Qualitative Study of Patients with and without a Zero-Dollar Copay Health Plan Benefit.","authors":"Debra Winberg, Sarita V Panchang, Elizabeth Nauman, Brice L Mohundro, Tiange Tang, Eboni G Price-Haywood, Stephen Onufrak, Lizheng Shi, Alessandra N Bazzano","doi":"10.2147/PPA.S596366","DOIUrl":"https://doi.org/10.2147/PPA.S596366","url":null,"abstract":"<p><strong>Introduction: </strong>Medication adherence among individuals with type 2 diabetes (T2D) remains a critical determinant of disease management and health outcomes. While cost-sharing reductions such as a $0 copay (ZDC) for drugs are used to improve adherence, less is known about how patients with and without such benefits perceive barriers to adherence and what strategies may further support consistent medication use. This study explored barriers and facilitators to medication adherence among health plan members with T2D, including perceived barriers and potential strategies to enhance medication adherence.</p><p><strong>Methods: </strong>This qualitative study was conducted as part of a larger mixed-methods investigation examining medication adherence among individuals with T2D. The research team conducted semi-structured interviews with health plan members diagnosed with T2D. An interview guide was co-developed by a multidisciplinary team that included health services researchers, patients, health plan leaders, and clinicians, ensuring relevance and clarity across stakeholder groups. Interviews were conducted between June and December 2024, audio-recorded with participant consent, and transcribed verbatim. A descriptive qualitative analysis was conducted using both inductive and deductive approaches. Three members of the research team independently applied open coding techniques to the transcripts, iteratively refining themes through discussion and consensus. NVivo software was used to facilitate data organization and analysis.</p><p><strong>Results: </strong>In total, we interviewed 21 Louisiana Blue, a reginal health insurance plan, beneficiaries (11 with the ZDC benefit and 10 without the ZDC benefit). We identified four themes from the interviews - themes were the same across the two groups - 1) Costly medication copays were described as a key barrier to taking medications as prescribed; 2) memory aids, family support, and routines were identified as strategies to maintain adherence; 3) health care providers were crucial in educating members about their medication, including responding to concerns such as side effects; and 4) members' perceptions of pharmaceutical companies were coupled with concerns about medication costs. Barriers and facilitators were largely similar among participants with and without the zero-dollar copay benefit.</p><p><strong>Conclusion: </strong>Findings suggest that eliminating copayments alone does not resolve the multifaceted barriers to adherence, and that limited awareness of benefit status may further constrain the impact of such programs; introduction.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"596366"},"PeriodicalIF":2.0,"publicationDate":"2026-04-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13094576/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147778278","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evidence-Based Contraceptive Guidance for Young Women Following Induced Abortion: A Systematic Summary.","authors":"Lewei Tu, Huijie Wu, Shuwen Chen, Yiqian Wu, Huiqi Yan, Binbin Mei, Ying Xiao","doi":"10.2147/PPA.S598266","DOIUrl":"https://doi.org/10.2147/PPA.S598266","url":null,"abstract":"<p><strong>Objective: </strong>To summarize the best available evidence on post-abortion contraceptive counseling for young women (aged 15-24 years) and provide an evidence-based basis for clinical practice.</p><p><strong>Methods: </strong>Following the \"6S\" model, we systematically searched international and Chinese guide websites, professional association websites, and databases in both Chinese and English, from inception to June 2025. The types of literature included clinical decisions, evidence summaries, guidelines, and expert consensus. Two researchers independently performed literature screening, data extraction, and quality assessment. Guidelines were assessed by AGREE II, systematic reviews by AMSTAR 2.0, and RCTs and expert consensus by JBI critical appraisal tools. Evidence was graded using the JBI Evidence Grading System (2014) and synthesized by topic.</p><p><strong>Results: </strong>Fifteen articles were included the following: 3 clinical decision aids, 7 guidelines, 2 expert consensus statements, 2 systematic reviews, and 1 RCT. Thirty-three pieces of evidence were summarized across seven categories: provision of contraceptive services, timing of initiation, assessment and counseling, values clarification, complications and management, follow-up, and support.</p><p><strong>Conclusion: </strong>This summary provides contraceptive guidance for young women after induced abortion. Healthcare providers should integrate local policies and personal preferences, follow patient-centered principles, and translate this evidence into practice to increase uptake of efficient contraceptive methods and reduce unintended pregnancies among young women.</p><p><strong>Systematic review registration: </strong>Fudan University Center for Evidence-Based Nursing (Registration No. ES20257666).</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"598266"},"PeriodicalIF":2.0,"publicationDate":"2026-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13097610/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147778316","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Factors Influencing Dietary Supplement Selection Among Older Adults in Iran: A Discrete Choice Experiment.","authors":"Faezeh Valaei Sharif, Farimah Rahimi, Mohammad Zeraat, Yalda Fathi, Zahra Sharif","doi":"10.2147/PPA.S571555","DOIUrl":"https://doi.org/10.2147/PPA.S571555","url":null,"abstract":"<p><strong>Introduction: </strong>Understanding factors that shape dietary supplement choices among older adults is important for guiding healthcare, industry, and policy. This study aimed to identify key factors influencing supplement choices among older adults using a discrete choice experiment (DCE).</p><p><strong>Methods: </strong>This study recruited 384 participants aged ≥65 years (mean age 73.7, 52% women) from pharmacies in Tehran and Karaj. Attributes were developed through literature review and expert consultation and analyzed using a DCE with multinomial logit model.</p><p><strong>Results: </strong>Participants had a mean age of 73.67 years; 52% were women. Physician recommendation emerged as the most influential factor, followed by supplement form, monthly cost, ingredient composition, and country of manufacture. Higher costs significantly reduced selection likelihood, vitamin-mineral products were preferred over herbal-only supplements, and foreign-licensed products were favored over domestic ones. Socioeconomic and demographic variables showed no significant effects.</p><p><strong>Discussion: </strong>These findings highlight the dominant role of healthcare provider influence and cost sensitivity, along with perceptions of formulation quality and origin. Results can support professionals, manufacturers, and policymakers in developing supplement strategies tailored to older adults' needs and expectations.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"571555"},"PeriodicalIF":2.0,"publicationDate":"2026-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13092437/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147778266","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Validation of a Multidimensional Scale to Assess Cancer Health Education Outcomes in Patients.","authors":"Ping Yong, Tianyun Wang","doi":"10.2147/PPA.S590382","DOIUrl":"https://doi.org/10.2147/PPA.S590382","url":null,"abstract":"<p><strong>Background: </strong>Effective cancer health education enhances patients' understanding, emotional regulation, and treatment compliance. However, validated instruments specific to educational outcomes remain limited. These items reflect the proximal effects of education and are not meant to represent generic mental health states.</p><p><strong>Objective: </strong>To develop and validate a multidimensional scale to assess the effects of cancer health education, including a clear distinction of the outcomes as proximal educational results.</p><p><strong>Methods: </strong>Following ethical approval, a cross-sectional study was conducted among 236 adult cancer patients recruited at the Third Affiliated Hospital of Chongqing Medical University, Chongqing, China, from 06 January 2025 to 21 March 2025. Item generation was informed by the Health Belief Model, patient interviews, and expert review. The 13-item scale was administered via self-report questionnaire. Internal consistency was evaluated using Cronbach's alpha, and construct validity was assessed through exploratory factor analysis (EFA).</p><p><strong>Results: </strong>EFA revealed a three-factor structure-Health Knowledge Comprehension, Emotional-Attitudinal Support, and Health Behavior Implementation-that explained 60.07% of the total variance. This suggests the multidimensional nature of cancer health education outcomes. The scale demonstrated excellent internal consistency (α =0.902), with all subscale alphas exceeding 0.80. Factor loadings ranged from 0.72 to 0.89, indicating strong item-factor relationships.</p><p><strong>Conclusion: </strong>The Cancer Health Education Scale is a multidimensional instrument with preliminary psychometric support for evaluating educational outcomes in cancer care. Further validation in diverse populations is required. The scale may provide a useful foundation for tailoring patient education programs and supporting future cross-cultural validation studies.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"590382"},"PeriodicalIF":2.0,"publicationDate":"2026-04-15","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13092239/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147729657","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Preliminary Validation of a Dyadic Psychoeducational Intervention for Hemodialysis Patients and Caregivers Based on the Double ABC-X Model.","authors":"LiYuan Zhang, XiaoHong Zhang, Wen Tang, Li Zou, Yan Chen, LiJuan Zhou","doi":"10.2147/PPA.S598462","DOIUrl":"10.2147/PPA.S598462","url":null,"abstract":"<p><strong>Objective: </strong>To develop and preliminarily validate a dyadic psychoeducational intervention program for maintenance hemodialysis (MHD) patients and their caregivers based on the Double ABC-X Model.</p><p><strong>Methods: </strong>The intervention was constructed by integrating evidence from systematic reviews, cross-sectional survey data (200 MHD patient-caregiver dyads), and a two-round Delphi expert consultation (20 experts). The program, grounded in the Double ABC-X Model, comprised four core modules: (1) disease information provision, (2) social support enhancement, (3) coping strategy training, and (4) relaxation techniques. A pilot trial with three dyads was conducted to assess feasibility and refine the program. Effectiveness was not evaluated in this developmental study.</p><p><strong>Results: </strong>The intervention was designed as a 4-week program with one 30-40 minute session per week, delivered in face-to-face small groups during pre- or post-dialysis periods. It comprises 4 first-level, 22 second-level, and 10 third-level indicators, organized into four themes: \"First Acquaintance\", \"Deep Understanding\", \"Co - Solution\" and \"Co - Experience\". Delphi results showed high expert authority (Cr=0.85-0.86), significant Kendall's concordance coefficient (P<0.001), importance scores ≥4.35 (5-point scale), and low variation coefficients (≤0.12), indicating strong consensus.</p><p><strong>Conclusion: </strong>This study developed a theory-driven, content-validated dyadic psychoeducational intervention for MHD patient-caregiver dyads. Future multicenter randomized controlled trials are needed to validate long-term efficacy.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"598462"},"PeriodicalIF":2.0,"publicationDate":"2026-04-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13091623/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147723615","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development and Preliminary Psychometric Evaluation of the Glycogen Storage Disease Type Ia Functional Assessment Diary (GSD FAD).","authors":"Diane M Turner-Bowker, Shayna Egan, Jessica Butler, Adrian Jewett, Deepali Mitragotri, Brandon Foster, Alison Skrinar, Christina Theodore-Oklota","doi":"10.2147/PPA.S581830","DOIUrl":"10.2147/PPA.S581830","url":null,"abstract":"<p><strong>Purpose: </strong>Glycogen storage disease type Ia (GSDIa) is a rare, inherited, autosomal recessive condition with deficiency of glucose-6-phosphatase (G6Pase) characterized by fasting hypoglycemia due to an inability to release glucose from hepatic glycogen stores and other metabolic pathways, requiring frequent consumption of exogenous glucose for survival. Patient-reported outcome (PRO) measures are important to assess GSDIa burden, though no disease-specific PRO for GSDIa exists. This research describes the Glycogen Storage Disease Functional Assessment Diary (GSD FAD), a 31-item PRO developed to assess the signs/symptoms and impacts of GSDIa in individuals ages 8 and older.</p><p><strong>Patients and methods: </strong>Mixed methods research including a literature review, online survey, and concept elicitation (CE) interviews informed the construction of the GSD FAD. Cognitive debriefing (CD) interviews evaluated concept relevance and understanding of the questionnaire. Psychometric properties were evaluated using Phase 3 trial screening/baseline data to assess item variability, structure/scaling potential, scoring, reliability, validity, and minimum detectable change.</p><p><strong>Results: </strong>The literature review, online survey (N=26), and CE interviews (N=7) identified hypoglycemia and cornstarch regimen impacts as most burdensome and most important to treat from the patient perspective. The initial draft GSD FAD included 36 items. Most items were interpreted as intended in CD interviews (N=16); revisions to the GSD FAD addressed interpretation issues. Three domain scores (Symptoms Total Score, Sleep Impacts Total Score, and Daily Impacts Total Score) showed acceptable reliability and validity but had notable ceiling effects that may limit responsiveness in some settings.</p><p><strong>Conclusion: </strong>The GSD FAD is a novel, content-valid PRO that measures the humanistic burden of GSDIa and cornstarch treatment regimen, including the signs/symptoms of hypoglycemia and their impact on health-related quality of life (HRQoL) in individuals ≥ 8 years with GSDIa, that yields reliable and valid scores. While developed in a trial setting, the GSD FAD has potential for use in nutritional, behavioral, and/or educational applications.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"581830"},"PeriodicalIF":2.0,"publicationDate":"2026-04-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13089465/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147723643","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bidirectional Longitudinal Associations Among Health-Related Quality of Life, Emotional Expressivity, and Readiness to Return to Work in Patients with Non-Muscle-Invasive Bladder Cancer Receiving Intravesical Therapy: A Three-Wave Cohort Study.","authors":"Mingming Zhang, Yi Zhou","doi":"10.2147/PPA.S594081","DOIUrl":"https://doi.org/10.2147/PPA.S594081","url":null,"abstract":"<p><strong>Purpose: </strong>We aimed to elucidate the temporal relationship among health-related quality of life(HRQoL), emotional expressivity, and readiness for return to work(RRTW) in patients with non-muscle-invasive bladder cancer receiving intravesical therapy.</p><p><strong>Design: </strong>A three-wave cohort study.</p><p><strong>Methods: </strong>In this prospective observational study, we recruited 425 patients from two tertiary hospitals between August 2022 and January 2024. Three waves of self-reported questionnaires were administered at the start of at the start of intravesical therapy (T1, N=412), at six months (T2, N=309), and at twelve months (T3, N=227). The main analysis was based on data from patients who completed all three waves of the assessment. We constructed cross-lagged panel models to examine the temporal associations among HRQoL, emotional expressivity, and RRTW.</p><p><strong>Results: </strong>A total of 227 patients completed all three waves of assessment. Controlling for covariates such as intravesical therapy medication, age, gender, economic income, and marital status, the results indicated a longitudinal relationship between HRQoL at T1 and T2 and emotional expressivity and RRTW at T2 and T3. Emotional expressivity at T1 and T2 was positively associated with HRQoL and RRTW at T2 and T3. HRQoL and emotional expressivity were mutually reinforcing relationships. RRTW at T1 and T2 was positively associated with HRQoL at T2 and T3; however, this positive association disappeared after emotional expressivity was added. Mediation analyses revealed that HRQoL at T1 was positively associated with RRTW at T3 through emotional expressivity at T2 (standardized indirect effect=0.020, 95% bootstrap CI [0.005, 0.035]).</p><p><strong>Conclusion: </strong>These results demonstrated that HRQoL and emotional expressivity mutually reinforced effect relationships, and both could facilitate RRTW among non-muscle-invasive bladder cancer receiving intravesical therapy. As an observational study, these findings identify potential targets for intervention but require confirmation in experimental designs.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"594081"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13075500/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147691676","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Qualitative Assessment of Experiences and Challenges Faced by Mothers of Children Using an Insulin Pump in the United Arab Emirates.","authors":"Lean Abdul Fattah, Nour Mostafa Eldeeb, Alaa Farajallah, Pathiyil Ravi Shankar, Subish Palaian","doi":"10.2147/PPA.S574827","DOIUrl":"https://doi.org/10.2147/PPA.S574827","url":null,"abstract":"<p><strong>Background: </strong>Various benefits and challenges influence insulin pump use by diabetic patients, especially children. Mothers, as the primary caregivers, can provide valuable feedback on their children's health-related issues. This study aimed to explore the experiences and challenges faced by mothers of children using an insulin pump.</p><p><strong>Methods: </strong>This qualitative exploratory research involved in-depth interviews of eight mothers in the United Arab Emirates selected purposively during March 2025, whose children had type 1 diabetes and used an insulin pump up to the age of 12 years old. A validated interview guide was used.</p><p><strong>Results: </strong>The use of an insulin pump positively impacted the mothers' and children's quality of life. The main identified themes were mothers' knowledge and perception of insulin pump use, the impact of insulin pump use clinically, psychologically, and socially, the challenges faced, and recommendations. All participants preferred the use of an insulin pump due to its positive properties. Yet, mothers mentioned some concerns, including sudden device malfunction, wrong placement of the cannula, financial burden and the lack of awareness of the needs of insulin pump users.</p><p><strong>Conclusion: </strong>Insulin pump therapy has significant advantages and disadvantages, but in the opinion of the mothers interviewed, the advantages outweigh the drawbacks.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"20 ","pages":"574827"},"PeriodicalIF":2.0,"publicationDate":"2026-04-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13075426/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"147691713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}