{"title":"Difficulties in Care and Unmet Needs from the Perspective of Patients with Lung Cancer and Stroke - A Qualitative Study in Germany.","authors":"Hella Fügemann, Kathrin Gödde, Ute Goerling, Jacqueline Müller-Nordhorn, Verena Mauckisch, Bob Siegerink, Nina Rieckmann, Christine Holmberg","doi":"10.2147/PPA.S493568","DOIUrl":"10.2147/PPA.S493568","url":null,"abstract":"<p><strong>Background: </strong>Organizing healthcare becomes ever more complex for people with chronic conditions. Additionally, a distinct separation of inpatient and outpatient care makes it even more difficult to provide coordinated and continuous care across sectors in Germany. Our interview study aimed to identify difficulties and unmet needs along the care continuum of patients with lung cancer and stroke in Germany.</p><p><strong>Methods: </strong>Data were collected by qualitative interviews. A total of 40 participants with lung cancer (n=20) and stroke (n=20) were interviewed in the metropolitan region of Berlin, Germany. Data were interpreted through thematic analysis.</p><p><strong>Results: </strong>We identified five main categories of difficulties and unmet needs: 1. Bureaucracy, 2. Unmet information needs, 3. Feeling left alone, 4. Difficulties and unmet needs in healthcare institution settings, and 5. Psychological and emotional stress. Results of our study show a high overlap between the experienced difficulties of both groups of patients. These include, in particular, bureaucratic obstacles, the lack of detailed information, poor coordination of care, and the feeling of being alone with the disease and its consequences.</p><p><strong>Conclusion: </strong>Patients with complex care trajectories seem to have great need for coordinative, social, bureaucratic, and emotional support and these support topics are largely independent of the index disease. Hence, our research suggests that support offers focusing on social and coordination needs do not have to be disease-specific but can rather cover general needs of people with complex care situations.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"791-804"},"PeriodicalIF":2.0,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11956712/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143753792","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Health Literacy and Behaviors of Patients and Caregivers Related to Glycemic Control Among Individuals With Type 2 Diabetes in Chiang Mai Province, Thailand.","authors":"Siranee Chaimongkon, Wannita Sakulwattana, Parichat Ong-Artborirak, Esther Liyanage, Katekaew Seangpraw","doi":"10.2147/PPA.S501095","DOIUrl":"10.2147/PPA.S501095","url":null,"abstract":"<p><strong>Background: </strong>The impact of caregivers' health literacy (HL) and patient care behaviors on glycemic control in type 2 diabetes mellitus (T2DM) is not well known.</p><p><strong>Purpose: </strong>This study examined the HL and behaviors of both patients and caregivers in relation to glycemic control among T2DM patients.</p><p><strong>Methods: </strong>A cross-sectional study in Fang district, Chiang Mai Province, involved 305 T2DM patients aged over 45 and their caregivers, selected through simple random sampling. Data were collected via questionnaires, and blood samples were analyzed for fasting blood sugar (FBS) and glycated hemoglobin (HbA1c).</p><p><strong>Results: </strong>The findings revealed that most patients and caregivers had diabetes HL scores at the functional literacy level (53.77% and 37.05%, respectively). The majority of patients scored moderately in self-care behaviors (SCB) at 76.10%, while caregivers' patient care behaviors also scored moderately at 68.20%. Mean FBS and HbA1c levels were 129.81 mg/dl and 7.3%, respectively. Linear regression analysis showed that, after adjusting for sex, age, education level, financial status, duration of diabetes, smoking, and alcohol consumption, FBS was significantly associated with patients' HL (Beta = -0.161), SCB (Beta = -0.197), caregivers' HL (Beta = -0.217), and caregivers' patient care behaviors (Beta = -0.181). Similarly, HbA1c was significantly correlated with patients' HL (Beta = -0.265), SCB (Beta = -0.233), caregivers' HL (Beta = -0.255), and caregivers' patient care behaviors (Beta = -0.200).</p><p><strong>Conclusion: </strong>These results highlight the importance of enhancing health literacy (HL) and behaviors in both patients and caregivers to achieve optimal glycemic control, underscoring the need for caregivers to develop strong HL skills and improve their competencies in effectively managing T2DM.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"753-765"},"PeriodicalIF":2.0,"publicationDate":"2025-03-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11956731/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143753801","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Feelings and Thoughts of Patients Regarding Activities Conducted by Nurses in a Psychiatry Clinic.","authors":"Serpil Yılmaz, Nurdan Yüksel, Arzu Senem, Neslihan Demir, Fulya Yıldırım, Münevver Boğahan, Zeliha Yaman, Hilal Altundal Duru, Mualla Yılmaz","doi":"10.2147/PPA.S511122","DOIUrl":"10.2147/PPA.S511122","url":null,"abstract":"<p><strong>Purpose: </strong>The aim of this study was to determine patients' feelings and thoughts about the activities carried out by nurses in the psychiatry clinic.</p><p><strong>Patients and methods: </strong>This was a retrospective, cross-sectional and qualitative study was used with the phenomenological method. The sample of study consisted of the feedback documents (n=142) written by the patients who were hospitalized for treatment the psychiatric clinic of a university hospital. Psychiatric patients who took part in the activities carried out by nurses by using the purposive sampling method was selected. The data were obtained by reviewing the entire written documents of the patients and were analyzed using the content analysis. The COREQ checklist was used in research reporting.</p><p><strong>Results: </strong>Based on the content analysis of the data, three main themes and 7 sub-themes were emerged. The activities conducted by nurses improved communication between patients and nurses, made patients feel that nurses are on their side, enabled them have good time with other patients, and made them feel relaxed and happy.</p><p><strong>Conclusion: </strong>The entire feelings and thoughts expressed by patients were positive. Nurses should conduct the nursing activities that were conducted in line with the therapeutic setting principles for patients in the psychiatry clinic.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"767-775"},"PeriodicalIF":2.0,"publicationDate":"2025-03-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11955171/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143753796","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Zhenzhu Qian, Yanyan Yang, Jianfeng Tan, You Li, Jin Zhou, Jiewen Huang, Sawitri Assanangkornchai, Jialong Chen
{"title":"Psychometric Evaluation of the Chinese Version of the Mental Health System Responsiveness Questionnaire for Psychiatric Outpatients: Classical Test Theory and Item Response Theory Approaches.","authors":"Zhenzhu Qian, Yanyan Yang, Jianfeng Tan, You Li, Jin Zhou, Jiewen Huang, Sawitri Assanangkornchai, Jialong Chen","doi":"10.2147/PPA.S503016","DOIUrl":"10.2147/PPA.S503016","url":null,"abstract":"<p><strong>Background: </strong>The Health System Responsiveness Questionnaire has been an important tool for evaluating the quality of health services from non-clinical perspectives. However, there is a lack of reliable and valid tools to assess the responsiveness of the mental health system in China, despite the increasing attention to the quality of mental health services.</p><p><strong>Purpose: </strong>This study aimed to adapt a Chinese version of the Mental Health System Responsiveness Questionnaire based on the WHO Health System Responsiveness Questionnaire and assess its psychometric properties among psychiatric outpatients.</p><p><strong>Patients and methods: </strong>We adapted the Health System Responsiveness Questionnaire into Chinese and used it on psychiatric outpatients through face-to-face interviews, resulting in 1067 valid responses. We conducted a reliability and validity analysis based on classical test theory (CTT) and applied the graded response model based on item response theory (IRT) to examine the performance of each item.</p><p><strong>Results: </strong>From the CTT analysis, values of Cronbach's alpha, test-retest reliability, and split-half reliability of the questionnaire were all greater than 0.8. Confirmatory factor analysis exhibited a good fit; convergent and discriminant validity were achieved with average variance extracted > 0.5 and heterotrait-monotrait ratio < 0.9. Results from the IRT analysis showed that all items demonstrated acceptable discrimination (discrimination parameters ≥ 0.65) and appropriate difficulty parameters (ranging from -4 to 4). Additionally, all items provided sufficient information, except for two items in the prompt attention domain.</p><p><strong>Conclusion: </strong>Our adapted Mental Health System Responsiveness Questionnaire possessed strong psychometric properties and could serve as an effective tool for assessing the responsiveness of mental health systems in China. However, improving two items in the domain of prompt attention may contribute to more optimal psychometric properties of the questionnaire.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"729-740"},"PeriodicalIF":2.0,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11951920/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143753804","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Requirements of Patients Undergoing Unicompartmental Knee Arthroplasty in Preparation for Discharge from the Hospital -A Qualitative Study.","authors":"Nuo Chen, Qingsong Zou, Chunhong Gu, Qian Cheng","doi":"10.2147/PPA.S498119","DOIUrl":"10.2147/PPA.S498119","url":null,"abstract":"<p><strong>Objective: </strong>To enhance the understanding of the challenges and needs faced by patients undergoing unicompartmental knee arthroplasty (UKA) in preparation for discharge, this study seeks to provide a practical framework for devising effective discharge plans tailored to this demographic.</p><p><strong>Methods: </strong>Using purposeful sampling, 15 patients who underwent UKA at a tertiary hospital in China between March and May 2023 were selected for face-to-face interviews, aiming to explore their experiences and needs during the discharge preparation phase. The interview contents were transcribed verbatim, and thematic analysis was conducted to identify and refine themes and sub-themes.</p><p><strong>Results: </strong>After analyzing the interview data, we identified four themes and eleven sub-themes that encapsulate the discharge readiness needs of patients undergoing UKA and nearing discharge, as follows: (1) Demand for guidance on rehabilitative functional exercises, which includes rehabilitation functional exercise knowledge, diversified teaching methods, demand for promoting adherence to rehabilitative functional exercises; (2) Demands for knowledge and skills related to disease management, encompassing knowledge of wound care, Pain management and medication safety guidance, daily life guidance, caregiver caregiving knowledge; (3) Psychological support needs, including anxiety and lack of confidence in rehabilitation, need for establishing an emotional support system; (4) Continuity of care needs, including featuring tele-information support and advisory services and home rehabilitation plan.</p><p><strong>Conclusion: </strong>Patients undergoing UKA face various issues and needs during the discharge preparation process. It is imperative for medical staff to carefully assess these needs and tailor individualized discharge plans for each patient based on their specific circumstances, in order to facilitate postoperative rehabilitation for UKA patients.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"741-752"},"PeriodicalIF":2.0,"publicationDate":"2025-03-24","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11951918/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143753786","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Francisco Javier Barrero Hernández, Ángel José Morales Lahoz, Cristina Serrano Gutiérrez, Elena López Fandila, Carolina Asenjo Martín, Maria Dolores González Ramírez, Raquel Piñar-Morales
{"title":"Clinical Practice Evidence of Treatment Satisfaction with Moderate and High-Efficacy Drugs in Multiple Sclerosis.","authors":"Francisco Javier Barrero Hernández, Ángel José Morales Lahoz, Cristina Serrano Gutiérrez, Elena López Fandila, Carolina Asenjo Martín, Maria Dolores González Ramírez, Raquel Piñar-Morales","doi":"10.2147/PPA.S509525","DOIUrl":"10.2147/PPA.S509525","url":null,"abstract":"<p><strong>Introduction: </strong>Generally, the choice of disease-modifying treatment (DMT) for people with multiple sclerosis (PwMS) is based on aspects of efficacy and safety. However, due to the diversity of drugs and the different routes of administration, it is essential to know the experience and satisfaction of PwMS. Patient- reported outcomes (PROs) help us to optimize and improve adherence.</p><p><strong>Methods: </strong>Our objective with this cross-sectional, non-interventional study is to analyze satisfaction outcomes using the treatment satisfaction questionnaire for medication (TSQM) according to moderate or high efficacy of DMTs and the relationship with demographic, clinical and quality of life (QoL) aspects.</p><p><strong>Results: </strong>PwMS receiving high-efficacy DMTs show greater overall satisfaction, but not in the other TSQM subscales. The route of administration did not show differences in treatment satisfaction. The best QoL scores were observed in patients treated with oral DMTs compared to injectables or infusions.</p><p><strong>Discussion: </strong>The efficacy of DMT is a significant predictor of overall satisfaction. Quality of life has a minimal impact on overall satisfaction. EDSS, treatment duration and fatigue (MFIS) were not significant predictors of satisfaction outcomes. The knowledge provided by the PROs allows healthcare professionals to better understand the preferences and needs of PwMS, adjusting therapeutic strategies, improving patient experience and treatment effectiveness.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"715-727"},"PeriodicalIF":2.0,"publicationDate":"2025-03-21","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11934880/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143710821","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The Relationship Between Intolerance of Uncertainty and Treatment Adherence: The Moderating Effect of Self-Compassion on the Chain Mediation Model.","authors":"Xinping Shi, Yuexia Wang, Qisen Jia, Shengwei Peng, Xing Liu, Yongju Pei","doi":"10.2147/PPA.S507872","DOIUrl":"10.2147/PPA.S507872","url":null,"abstract":"<p><strong>Purpose: </strong>The low follow-up compliance of young and middle-aged patients with newly diagnosed pulmonary nodules warrants attention, primarily due to a series of factors such as occupational, familial, and social pressures. Enhancing follow-up adherence is essential for preventing pulmonary nodule progression and reducing lung cancer mortality. Existing research indicates that intolerance of uncertainty is closely associated with patients' follow-up compliance; however, further in-depth investigation into its influencing mechanisms and potential improvement strategies is required.</p><p><strong>Patients and methods: </strong>This study conducted a questionnaire survey among 319 young and middle-aged patients newly diagnosed with pulmonary nodules, examining the moderating effect of self-compassion on follow-up compliance and investigating the chain intermediary role of negative interpretation bias and trust in linking intolerance of uncertainty to follow-up compliance.</p><p><strong>Results: </strong>The study found that women, urban residents, and patients over 50 years old demonstrated relatively higher follow-up compliance. Intolerance of uncertainty was found to negatively predict follow-up compliance and indirectly influenced patients' follow-up behavior through the mediating effects of negative interpretation bias and trust. Furthermore, self-compassion significantly moderated the relationship between trust and follow-up compliance.</p><p><strong>Conclusion: </strong>The findings provide a solid theoretical foundation for developing multidimensional interventions targeting both protective and risk factors. Specifically, mitigating the impact of intolerance of uncertainty on follow-up compliance can improve long-term patient health outcomes. The novel application of the chain mediation model provides valuable insights for future research and clinical practice, particularly in enhancing patient engagement and adherence to follow-up care. Future longitudinal studies are needed to explore additional influencing factors and validate these findings.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"699-714"},"PeriodicalIF":2.0,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11932037/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701140","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Lonneke Fruytier, Irina Bianca Serban, Danny A J P Van de Sande, Sara Colombo, Steven Houben, Aarnout Brombacher, Hareld Kemps
{"title":"Exploring the Needs and Preferences of Athletes in Cardiac (Tele)Rehabilitation to Enhance Rehabilitation Outcome: A Qualitative Study.","authors":"Lonneke Fruytier, Irina Bianca Serban, Danny A J P Van de Sande, Sara Colombo, Steven Houben, Aarnout Brombacher, Hareld Kemps","doi":"10.2147/PPA.S498408","DOIUrl":"10.2147/PPA.S498408","url":null,"abstract":"<p><strong>Purpose: </strong>To define the user needs and preferences of the athletic population in cardiac (tele)rehabilitation (CTR).</p><p><strong>Patients and methods: </strong>In this qualitative study, we included athletes with established coronary artery disease (CAD) who participated in a cardiac rehabilitation (CR) program and health care professionals involved in CR. All athletes engaged in sports for at least four hours per week. Fourteen male and one female athlete (mean age 63 ± 10.6 years) participated in CR after an acute coronary syndrome, percutaneous coronary intervention and/or coronary bypass surgery. The twelve healthcare professionals invited included cardiac nurse practitioners, cardiologists, sports physicians, physiotherapists, and a clinical psychologist. This study consists of four phases: a stakeholder identification session, twenty-five semi-structured individual interviews, six card-sorting focus groups and a data analysis phase with thematic analysis.</p><p><strong>Results: </strong>User needs for athletes in CR encompass personalized exercise plans featuring clear and quantifiable exercise recommendations and limitations. Additionally, there is a need for monitoring health and exercise data; measuring progression and performance longitudinally; easy-to-use, and reliable healthcare information systems with accurate sensors and data; as well as clinical supervision and validation of information and data. Social support from both peers and family is also identified as a crucial need. The preferred technological features for a CTR system tailored for athletes include periodic digital consultations with clinicians, home-based training specific to one's sport, utilization of technology to monitor workouts, data sharing and remote feedback, personalized exercise recommendations and online educational materials.</p><p><strong>Conclusion: </strong>This research explored the user needs and preferences of athlete patients in CR. The findings indicated that enhancing CR for athletes necessitates a personalized and sport-specific methodology. The integration of various technological features within a CTR program can play a pivotal role in assisting athletes with CAD to maintain an active lifestyle and regain their previous athletic performance levels.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"685-698"},"PeriodicalIF":2.0,"publicationDate":"2025-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11932033/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701131","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Heterogeneity in Health-Related Quality of Life of Patients with Aplastic Anemia: A Latent Profile Analysis.","authors":"Guibin Wu, Xiao Li, Xiang Ren, Jinbo Huang, Xiaoxiao Zhang, Taimei Liang, Lina Sun, Mengmeng Hao, Zhexiang Kuang, Xinli Li, Qianqian Zhang, Li Xu, Yizhou Zheng, Wenjun Xie","doi":"10.2147/PPA.S505521","DOIUrl":"10.2147/PPA.S505521","url":null,"abstract":"<p><strong>Purpose: </strong>Concerns over health-related quality of life (HRQOL) in patients with aplastic anemia (AA) have been increasing worldwide. However, most researches on HRQOL in AA patients have ignored individual-level variability. Thus, our study was designed to explore practical classification of HRQOL and related variables among AA patients.</p><p><strong>Methods: </strong>A cross-sectional study was conducted from May 2022 to March 2023, utilizing convenience sampling to enroll AA patients. Data of HRQOL, sociodemographic characteristics, and clinical variables were collected. Latent profile analysis (LPA) was used to analyze the latent categories of HRQOL in AA patients, utilizing scores from eight subscales of the Medical Outcomes Study 36-Item Short Form Health Survey version 2.0.</p><p><strong>Results: </strong>A total of 229 patients completed the survey and were included in the analysis. The LPA results showed significantly individual differences and identified three subgroups of HRQOL: Group 1, poor HRQOL with role emotional limitation (n=54, 23.58%); Group 2, moderate HRQOL with role physical limitation (n=56, 24.45%), and Group 3, good HRQOL (n=119, 51.97%), respectively among AA patients. Childless, no comorbidities, transfusion independence, no AA-related symptoms, and higher annual household income were associated with Group 3, whereas higher Eastern Cooperative Oncology Group performance status (ECOG-PS) scores were associated with Group 1.</p><p><strong>Conclusion: </strong>The findings of our study revealed significant heterogeneity in HRQOL among AA patients, providing valuable information for tailoring interventions to meet individual needs, especially for those in the poor HRQOL with role emotional limitation group. To improve their quality of life, healthcare professionals should fully take into account how the HRQOL subgroups are affected by AA-related symptoms, household annual income, ECOG-PS score, children, comorbidities, and transfusion-dependence.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"673-684"},"PeriodicalIF":2.0,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11930844/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143701136","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Nursing Future Horizon: Simultaneous Continual Nursing Model and Homemade Dialogue Tool for Controlling Cardiac Function and Blood Pressure in Hypertensive Heart Diseases.","authors":"Hai Ou Yang, Aiping Wang, Haihua Hu, Yue Li","doi":"10.2147/PPA.S489964","DOIUrl":"10.2147/PPA.S489964","url":null,"abstract":"<p><strong>Background: </strong>Hypertension (HTN) is a chronic condition that requires ongoing management to maintain health and prevent organ damage. Skilled nurses are essential in promoting lifestyle changes and personalizing medications, especially for patients in cardiac rehabilitation, which can lead to better cardiac function and manageable blood pressure.</p><p><strong>Purpose: </strong>To examine the effects of a continuous nursing model merged with homemade dialogue tools on cardiac function and blood pressure control in patients with HTN and heart disease.</p><p><strong>Methodology: </strong>From March 2019 to June 2021, a compelling study involved 82 patients randomly assigned to either a control or experiment group. The control group received routine health education and follow-up calls as standard care. However, the experiment group benefited from an innovative pictorial dialogue tool designed under the Cardiac Rehabilitation and Secondary Prevention Chinese guidelines to enhance understanding and adherence to crucial health practices, potentially leading to better cardiac function and boosting blood pressure control in patients.</p><p><strong>Results: </strong>Considering the designed nursing model, satisfaction with care increased from 48 to 63%. The systolic and diastolic blood pressures were also reduced from 144.45 ± 3.27 to 129.63 ± 3.06 mmHg and 89.46 ± 4.57 to 79.51 ± 3.53 mmHg, respectively. Furthermore, an appropriate cardiac function was approached in the research category by inclining the left ventricular ejection fraction and cardiac index up to 77.43 ± 4.17% and 19.25 ± 1.56 L/min/m<sup>2</sup>, respectively.</p><p><strong>Conclusion: </strong>The simultaneous nursing model combined with a self-developed picture-viewing tool effectively improved cardiac rehabilitation, blood pressure control, patient satisfaction, care coordination, treatment compliance, and quality of life in patients with hypertension and heart disease.</p><p><strong>Implications: </strong>The combined continuous nursing model and homemade dialogue tools led to higher patient satisfaction and lower blood pressure compared to standard nursing care after three months. This approach improved cardiac rehabilitation and overall patient satisfaction.</p>","PeriodicalId":19972,"journal":{"name":"Patient preference and adherence","volume":"19 ","pages":"661-672"},"PeriodicalIF":2.0,"publicationDate":"2025-03-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11930020/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143692450","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}