Journal of Racial and Ethnic Health Disparities最新文献

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"Our Community Comes First": Investigating Recruitment Ads That Represent and Appeal to Black Women for Online, HIV-Related Research Studies. “我们的社区是第一位的”:调查代表和吸引黑人女性进行在线艾滋病相关研究的招聘广告。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-12-01 Epub Date: 2023-09-18 DOI: 10.1007/s40615-023-01800-5
Amber I Sophus, Jason W Mitchell, Jessica McDermott Sales, Kathryn Braun
{"title":"\"Our Community Comes First\": Investigating Recruitment Ads That Represent and Appeal to Black Women for Online, HIV-Related Research Studies.","authors":"Amber I Sophus, Jason W Mitchell, Jessica McDermott Sales, Kathryn Braun","doi":"10.1007/s40615-023-01800-5","DOIUrl":"10.1007/s40615-023-01800-5","url":null,"abstract":"<p><strong>Background: </strong>Black women are underrepresented in health-related research. Consulting Black women in the creation of recruitment materials may help increase their representation in research studies, but few of these recruitment materials have been evaluated. This manuscript reports on the impact of two ads (one featuring older women and one featuring younger women) created through multiple focus group sessions with Black women. The purpose of the ads were to recruit Black women to participate in an online research study about HIV prevention and pre-exposure prophylaxis, PrEP.</p><p><strong>Materials and methods: </strong>Questions about the ads were embedded in the eligibility screener for inclusion in the online parent research study. Respondents were asked which ad they saw, what they liked about it, and what about the ad piqued their interest in the study.</p><p><strong>Results: </strong>In total, 301 Black women completed the eligibility screener for the online study and answered questions pertaining to the two ads. Most participants reported seeing the ad with younger women (260/301, 86.4%). Representation of Black women (n = 70), ad design (n = 64), relevance to Black women and the Black community (n = 60), and comprehensiveness of ad content (n = 38) were the top 4 ad features respondents liked. Relevance to Black women and the Black community (n = 104) as well as ad content (n = 54) (i.e., study purpose, location, duration, images, incentive) were the top two reasons provided about ads that piqued respondent's interest in the online study.</p><p><strong>Conclusion: </strong>Findings showcase how recruitment ads informed by Black women could help increase their interest and participation in research.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":"3478-3488"},"PeriodicalIF":3.2,"publicationDate":"2024-12-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10309945","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gender and Racial/Ethnic Disparities in HIV Care and Viral Suppression at Jail Entry. 入狱时艾滋病毒护理和病毒抑制方面的性别和种族/族裔差异。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-27 DOI: 10.1007/s40615-024-02230-7
Jocelyn T Vaughn, Caryn E Peterson, Jana L Hirschtick, Lawrence J Ouellet, Ronald C Hershow, Sage J Kim
{"title":"Gender and Racial/Ethnic Disparities in HIV Care and Viral Suppression at Jail Entry.","authors":"Jocelyn T Vaughn, Caryn E Peterson, Jana L Hirschtick, Lawrence J Ouellet, Ronald C Hershow, Sage J Kim","doi":"10.1007/s40615-024-02230-7","DOIUrl":"https://doi.org/10.1007/s40615-024-02230-7","url":null,"abstract":"<p><p>Women and racial/ethnic minorities living with HIV are less likely than White men to be engaged in HIV treatment when entering US jails. Few studies have examined the intersection of gender and race/ethnicity among incarcerated populations. The \"Enhancing Linkages to HIV Primary Care and Services in Jail Settings Initiative\" (EnhanceLink) was a 10-site prospective cohort study of 1,270 people living with HIV in correctional facilities between 2008 and 2011. Using data from this study (N = 1,096), we assessed the likelihood of having a usual source of HIV care, utilizing ART, and viral suppression (HIV-1 RNA < 200 copies/ml) within 30 days of incarceration among the following groups, stratified by current gender and race/ethnicity, relative to non-Hispanic White men: Non-Hispanic Black women, non-Hispanic Black men, Hispanic/Latina (Hispanic) women, Hispanic men, and non-Hispanic White women. Compared to non-Hispanic White men, non-Hispanic Black women were 20% less likely to report that they had access to HIV care before incarceration after adjusting for age, sexual orientation, incarceration history, and medical comorbidities (prevalence ratio (PR) = 0.8, 95% CI: 0.7-0.9, p = 0.0002). Non-Hispanic Black, Hispanic, and Non-Hispanic White women were 30% less likely to utilize ART (respectively) than White men after adjusting for the same potential confounders (PR = 0.7, 95% CI: 0.6-0.9, p = 0.002; PR = 0.7, 95% CI: 0.5-0.9, p = 0.02; PR = 0.7, 95% CI: 0.5-1.0, p = 0.03). Our findings underscore the importance of culturally informed, community-based HIV interventions that promote equitable access to HIV care.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142729595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
A Closer Look at the Family Planning Challenges for the Black LGBTQ+ Community via the Black Rainbow Justice Initiative. 通过 "黑人彩虹正义行动 "深入了解黑人 LGBTQ+ 群体面临的计划生育挑战。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-27 DOI: 10.1007/s40615-024-02235-2
Vanessa Nicholson-Robinson, Mercy Oladipo
{"title":"A Closer Look at the Family Planning Challenges for the Black LGBTQ+ Community via the Black Rainbow Justice Initiative.","authors":"Vanessa Nicholson-Robinson, Mercy Oladipo","doi":"10.1007/s40615-024-02235-2","DOIUrl":"https://doi.org/10.1007/s40615-024-02235-2","url":null,"abstract":"<p><p>Many parts of the USA continue to move towards tremendous societal progression of supporting LGBTQ + marriage and family planning. However, there are other areas, including many states within the southern region of the USA, which tend to be less progressive and more resistant towards this subject matter. As of now, information is limited on understanding the experiences and challenges faced by Black LGBTQ + individuals in regard to how they navigate the healthcare system for family planning purposes. Findings from this study highlight Black LGBTQ + individuals and couples' unique experiences of undergoing fear and discomfort with racial and gender bias in their pursuit of expanding their families. Highlighted findings revealed that many experienced challenges with access due to cost of health care, cost with adoption, lack of Black sperm donors, and negative experiences with their provider. It is our belief that highlighting such experiences will provide a direction for how we may work to improve the well-being of Black LGBTQ + individuals, couples, and their families for the future.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142729594","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Direct and Vicarious Experiences of COVID-19-Related Racism Across Racial and Ethnic Groups in the United States. 美国不同种族和族裔群体对 COVID-19 相关种族主义的直接和模仿经历。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-20 DOI: 10.1007/s40615-024-02159-x
Yong Ju Cho, Juliana S Sherchan, Jessica R Fernandez, Sydney A Barlow, Paula D Strassle, Allana T Forde
{"title":"Direct and Vicarious Experiences of COVID-19-Related Racism Across Racial and Ethnic Groups in the United States.","authors":"Yong Ju Cho, Juliana S Sherchan, Jessica R Fernandez, Sydney A Barlow, Paula D Strassle, Allana T Forde","doi":"10.1007/s40615-024-02159-x","DOIUrl":"https://doi.org/10.1007/s40615-024-02159-x","url":null,"abstract":"<p><strong>Objectives: </strong>Due to stigmatization associated with the COVID-19 pandemic, certain groups were believed to be the cause of COVID-19 and thus experienced COVID-19-related racism through direct interpersonal and vicarious experiences. This study used quantitative and qualitative responses to examine whether the prevalence of experiencing these types of racism varied across racial and ethnic groups.</p><p><strong>Study design: </strong>This cross-sectional study included 5,480 participants in the REACH-US (Race-Related Experiences Associated with COVID-19 and Health in the United States) study, which is a nationally representative survey administered to 5,500 U.S. adults from January 26, 2021-March 3, 2021.</p><p><strong>Methods: </strong>COVID-19-related racism was measured using single items about whether participants: 1.) experienced racism because they were thought to belong to a group more likely to get COVID-19 (direct); 2.) witnessed racism against others who were thought to belong to a group more likely to get COVID-19 (vicarious). Logistic regression examined differences in experiencing COVID-19-related racism across racial and ethnic groups, adjusting for sociodemographic characteristics. Themes emerged from open-ended descriptions of racism experiences coded in a thematic analysis and were reported across racial and ethnic groups.</p><p><strong>Results: </strong>Overall, 6.4% and 15.9% of adults experienced direct and vicarious COVID-19-related racism, respectively. All racial and ethnic groups (except Hispanic/Latino English Language Preference) were significantly more likely than White adults to experience direct (AORs: 2.06-4.92) and vicarious (AORs: 1.63-3.02) COVID-19-related racism. Racial and ethnic differences were observed across thematic domains of type of mistreatment and settings where racism occurred.</p><p><strong>Conclusions: </strong>Direct and vicarious COVID-19-related racism were more prevalent among marginalized racial and ethnic groups, comprised various types of mistreatment, and occurred across multiple settings, thus highlighting the need for integrated efforts to reduce and prevent racism.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142675968","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Worse Clinical and Survival Outcomes in Breast Cancer Patients Living in Puerto Rico Compared to Hispanics, Non-Hispanic Blacks, and Non-Hispanic Whites from Florida. 与佛罗里达州的西班牙裔、非西班牙裔黑人和非西班牙裔白人相比,生活在波多黎各的乳腺癌患者的临床和生存结果更差。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-14 DOI: 10.1007/s40615-024-02232-5
Abigail E Lantz, Ryan Gebert, Jiannong Li, Jose A Oliveras, Edna R Gordián, Jaileene Perez-Morales, Steven Eschrich, Dung-Tsa Chen, Marilin Rosa, Julie Dutil, Harold I Saavedra, Teresita Muñoz-Antonia, Idhaliz Flores, William D Cress
{"title":"Worse Clinical and Survival Outcomes in Breast Cancer Patients Living in Puerto Rico Compared to Hispanics, Non-Hispanic Blacks, and Non-Hispanic Whites from Florida.","authors":"Abigail E Lantz, Ryan Gebert, Jiannong Li, Jose A Oliveras, Edna R Gordián, Jaileene Perez-Morales, Steven Eschrich, Dung-Tsa Chen, Marilin Rosa, Julie Dutil, Harold I Saavedra, Teresita Muñoz-Antonia, Idhaliz Flores, William D Cress","doi":"10.1007/s40615-024-02232-5","DOIUrl":"https://doi.org/10.1007/s40615-024-02232-5","url":null,"abstract":"<p><strong>Background: </strong>Herein, we report the characterization of four cohorts of breast cancer patients including (1) non-Hispanic Whites in Florida, (2) non-Hispanic Blacks in Florida, (3) Hispanics in Florida, and (4) Hispanics in Puerto Rico.</p><p><strong>Methods: </strong>Data from female breast cancer patients were collected from cancer registry (n = 9361) and self-reported patient questionnaires (n = 4324). Several statistical tests were applied to identify significant group differences.</p><p><strong>Results: </strong>Breast cancer patients from Puerto Rico were least frequently employed and had the lowest rates of college education among the groups. They also reported more live births and less breastfeeding. Both Hispanic groups reported a higher fraction experiencing menstruation at age 11 or younger (Floridian Hispanics [38%] and Puerto Ricans [36%]) compared to non-Hispanic Whites (20%) and non-Hispanic Blacks (22%). Non-Hispanic Black and Puerto Rican women were significantly older at breast cancer diagnosis than their non-Hispanic White and Floridian Hispanic counterparts. The Puerto Rican and non-Hispanic Black groups more frequently had pathology stage T2 or higher primary breast tumors at diagnosis (non-Hispanic Whites [29%], non-Hispanic Blacks [39%], Floridian Hispanics [33%], Puerto Ricans [46%]). The Puerto Rican (73%, 95% CI [66, 82]) and non-Hispanic Black (79%, 95% CI [75, 84]) groups demonstrate reduced 5-year survival compared to non-Hispanic Whites (89%, 95% CI [86, 92]) and Floridian Hispanics (89%, 95% CI [86, 90]).</p><p><strong>Conclusions: </strong>These findings demonstrate that Puerto Rican breast cancer patients suffer significant breast cancer health disparities relative to non-Hispanic Whites and Hispanics from Florida similar to the disparities observed for non-Hispanic Blacks. Future work must seek to better understand and address these disparities.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-14","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142622040","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Community Member Perceptions of Dollar Stores in Baltimore City, Maryland: "They are Not Progressive for the Communities". 马里兰州巴尔的摩市社区成员对一元店的看法:"它们对社区没有进步"。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-11 DOI: 10.1007/s40615-024-02227-2
Samantha M Sundermeir, Sydney R Santos, Emma C Lewis, Sara John, Julia A Wolfson, Lisa Poirier, Shuxian Hua, Joel Gittelsohn
{"title":"Community Member Perceptions of Dollar Stores in Baltimore City, Maryland: \"They are Not Progressive for the Communities\".","authors":"Samantha M Sundermeir, Sydney R Santos, Emma C Lewis, Sara John, Julia A Wolfson, Lisa Poirier, Shuxian Hua, Joel Gittelsohn","doi":"10.1007/s40615-024-02227-2","DOIUrl":"https://doi.org/10.1007/s40615-024-02227-2","url":null,"abstract":"<p><p>Dollar stores are the fastest-growing type of food retailer in the United States, prompting policy action across the country related to their perceived negative impact on the communities they serve. However, there is little existing research that explores community member perceptions of dollar stores, which is critical to inform new, equitable policies. To address this gap in Baltimore City, Maryland, where dollar store density is high, we aimed to describe community member perceptions of dollar stores in terms of their role in the broader community. We used thematic analysis to construct themes from community member in-depth interviews (n = 16) and one community member workshop (n = 21) to understand how dollar stores are viewed in the context of the broader Baltimore City community. Six key themes were generated: (1) dollar stores contribute to neighborhood \"blight,\" (2) better retail is needed, (3) dollar stores meet certain community needs, (4) dollar stores do not invest enough in the community, (5) dollar stores vary in location and stock depending on race-based neighborhood qualities, and (6) product quality is low. Overall, participants acknowledged that dollar stores meet certain needs in communities in which there are few alternative retail options, but many did not view them as a benefit and desired to have other retailers instead. Participants also discussed the lack of dollar store investment in the communities they serve, and the low quality of food and non-food products offered. Future policy development should include community member perspectives to understand local context and align policies with community priorities.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621700","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Personal Networks and Cervical Cancer Screening among Black Immigrant Women. 黑人移民妇女的人际网络与宫颈癌筛查。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-11 DOI: 10.1007/s40615-024-02231-6
Leslie E Cofie, Olivia Whitt, Nikhil Bhagat
{"title":"Personal Networks and Cervical Cancer Screening among Black Immigrant Women.","authors":"Leslie E Cofie, Olivia Whitt, Nikhil Bhagat","doi":"10.1007/s40615-024-02231-6","DOIUrl":"https://doi.org/10.1007/s40615-024-02231-6","url":null,"abstract":"<p><strong>Background: </strong>Prior research has linked personal network characteristics with cancer screening uptake including Papanicolaou (Pap) screening, but less is known about the experiences of Black immigrant women (BIW) in the USA. We examined the relationship between network characteristics and Pap screening among BIW and explored how their network members influence their cancer related knowledge and prevention behaviors.</p><p><strong>Methods: </strong>A mixed methods study of BIW, aged 21-65 years, in southeastern US included a cross-sectional survey (N = 204) and in-depth individual interviews (N = 13). We examined whether high-social connectedness, contact frequency, and social support were associated with Pap screening, using multivariable logistic regression models. Thematic analysis further assessed the roles of personal network factors on BIW's cancer preventive behaviors.</p><p><strong>Results: </strong>Pap screening was more likely among BIW with high- versus low-social connectedness (OR: 2.68, CI: 1.12, 6.46). However, the impact of high-social connectedness was attenuated, after adjusting for demographic factors and health insurance. Our qualitative findings revealed that both BIW and their personal networks had limited knowledge on cancer and related prevention measures. Close network members, particularly mother-figures, provided support for BIW's care seeking efforts, including cancer screening, although some participants mentioned a lack of screening support.</p><p><strong>Conclusion: </strong>These findings suggest that Black immigrant communities may benefit from tailored cancer prevention interventions among close network members, to improve knowledge and support for cancer control behaviors.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621722","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Racial and Ethnic Disparities in Regional Anesthesia: A Brief Review. 区域麻醉中的种族和民族差异:简要回顾。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-08 DOI: 10.1007/s40615-024-02174-y
Alva Powell, Elizabeth Khusid, Briana Lui, Adesuwa Carlton, Rohan Jotwani, Robert S White
{"title":"Racial and Ethnic Disparities in Regional Anesthesia: A Brief Review.","authors":"Alva Powell, Elizabeth Khusid, Briana Lui, Adesuwa Carlton, Rohan Jotwani, Robert S White","doi":"10.1007/s40615-024-02174-y","DOIUrl":"https://doi.org/10.1007/s40615-024-02174-y","url":null,"abstract":"<p><p>Disparities in regional anesthesia may limit patients' access to appropriate care. We reviewed literature from 2013 to 2023 regarding health disparities in regional anesthesia. While there were some exceptions, patients belonging to racial/ethnic minority groups and those with lower socioeconomic status did not receive regional anesthesia as frequently as their White or higher-income peers. As regional anesthesia continues to emerge as a preferred method of managing chronic pain conditions and providing surgical anesthesia, it is essential to ensure that it is provided equitably across the patient population.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142621939","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Indian Council of Medical Research (ICMR)-Sickle Cell Disease (SCD) Stigma Scale for India (ISSSI): A Protocol for Scale Development. 印度医学研究理事会(ICMR)--印度镰状细胞病(SCD)耻辱感量表(ISSSI):量表开发协议》。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-06 DOI: 10.1007/s40615-024-02228-1
Deepa Bhat, Yogita Sharma, Parikipandla Sridevi, Shaily B Surti, Jatin Sarmah, Manoranjan Ranjit, Madhusmita Bal, Bontha V Babu
{"title":"Indian Council of Medical Research (ICMR)-Sickle Cell Disease (SCD) Stigma Scale for India (ISSSI): A Protocol for Scale Development.","authors":"Deepa Bhat, Yogita Sharma, Parikipandla Sridevi, Shaily B Surti, Jatin Sarmah, Manoranjan Ranjit, Madhusmita Bal, Bontha V Babu","doi":"10.1007/s40615-024-02228-1","DOIUrl":"https://doi.org/10.1007/s40615-024-02228-1","url":null,"abstract":"<p><p>Sickle cell disease (SCD) is a genetic blood disorder presenting a substantial public health challenge. India, holding the second-highest prevalence globally, exhibits diverse clinical manifestations. The recently launched National SCD Elimination Mission (NSEM) in India has contributed to an increased identification of cases. The national program should extend its services beyond screening and clinical management. The outcome of the disease is influenced by a multitude of factors impacting healthcare utilization, with stigma emerging as a major influencer. Addressing stigma at the right time is crucial to comprehensive disease care. Understanding and quantifying the type and level of stigma in the ecosystem are fundamental steps toward tackling this pressing issue, necessitating the development of a scale. The existing three scales developed and utilized in African and American contexts may not be suitable for the Indian SCD community due to phenotypic, socio-cultural, and contextual variations. Therefore, developing, modifying, and creating a locally applicable scale is imperative. This protocol paper outlines the process of developing, refining, and evaluating the Indian Council of Medical Research (ICMR)-SCD Stigma Scale for India (ISSSI), which will be developed by Indian researchers led by the ICMR.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142582854","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Fortifying Physical and Psychological Wellbeing: Leveraging Capital for Resilience Against Racism and Adversity Across Racial Groups. 巩固身心健康:利用资本增强种族群体抵御种族主义和逆境的能力。
IF 3.2 3区 医学
Journal of Racial and Ethnic Health Disparities Pub Date : 2024-11-06 DOI: 10.1007/s40615-024-02215-6
Victor J St John, Donya Nemati
{"title":"Fortifying Physical and Psychological Wellbeing: Leveraging Capital for Resilience Against Racism and Adversity Across Racial Groups.","authors":"Victor J St John, Donya Nemati","doi":"10.1007/s40615-024-02215-6","DOIUrl":"https://doi.org/10.1007/s40615-024-02215-6","url":null,"abstract":"<p><p>This study examines the impact of various adversities-including racism, indirect adversity, loss of a loved one, and adverse police contact-on psychological and physical health outcomes such as sleep quality, depressive symptoms, serious illness, and self-reported health. Additionally, it investigates how economic, educational, social, and spiritual capital moderate these effects, with attention to racial differences. Leveraging a sample of 1139 participants from the 1995 Detroit Area Study, analyses reveal nuanced effects of adversity, with the impact being neutralized, attenuated, or amplified by coping capacities. Economic and educational supports generally provide protective health benefits, while social and religious supports reveal complex, sometimes divergent effects. Subgroup analyses reveal racial differences: for instance, Black individuals face a higher likelihood of developing a serious illness in connection with adverse police encounters, and White individuals benefit from liquid assets in buffering depressive symptoms. These findings underscore the need for multifaceted, context-sensitive health interventions and policies that enhance economic stability, educational opportunities, and mental health services, while strengthening social and spiritual support systems to build resilience and mitigate the adverse health effects of these adversities.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-11-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142582793","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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