Journal of Racial and Ethnic Health Disparities最新文献

{"title":"Patient-Perceived Physician Bias in Hidradenitis Suppurativa (HS).","authors":"Fatuma-Ayaan Rinderknecht, Haley Naik","doi":"10.1007/s40615-024-02252-1","DOIUrl":"https://doi.org/10.1007/s40615-024-02252-1","url":null,"abstract":"<p><p>Hidradenitis suppurativa (HS) is a debilitating and understudied inflammatory skin disease that disproportionately impacts Black Americans. The objective of this study was to explore the role that race and ethnicity may play in HS patients' perceptions of physician bias and their care quality. We administered a cross-sectional anonymous online survey to individuals with HS from June 13 to 30, 2021. Items from the Commonwealth Fund 2001 Health Care Quality Survey were employed to evaluate whether participants felt they were judged based on their race or ethnicity. Data was analyzed utilizing the test of equal or given proportions for assessing statistical significance with a threshold p-value < 0.05. The survey received a total of 1040 responses. The cohort was majority female and racially and ethnically diverse, with participants from six continents. Overall, 15.2% (136/894) of respondents reported feeling that they would receive better care if they were of a different race/ethnicity, and 13.6% (122/894) felt their primary HS provider treated them unfairly based on their race. Participants who belonged to minority groups more often reported feeling that they would receive better medical care if they were of a different race/ethnicity and felt that they were treated unfairly due to their race/ethnicity compared to White participants. These findings highlight the need to better understand the complex systemic and interpersonal factors at play in interactions between HS patients and healthcare providers to ensure that patients can receive much-needed care.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142800207","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"\"Our Voices Will Get Louder\": A Qualitative Exploration of Factors Influencing Arab/Middle Eastern North African (MENA) American Patient Participation in US-Based Health Care and Health Research.","authors":"Siwaar Abouhala, Aber Abdulle, Ghada Aziz, Asma Hussein, Noor Zanial, Itedal Shalabi, Matthew Jaber Stiffler, Roula Hawa, Madiha Tariq, Ghadeer Ady, Germine H Awad, Nadia N Abuelezam","doi":"10.1007/s40615-024-02255-y","DOIUrl":"https://doi.org/10.1007/s40615-024-02255-y","url":null,"abstract":"<p><strong>Background: </strong>Heightened anti-Arab/Middle Eastern and North African (MENA) xenophobia in the United States (US) coupled with the addition of a MENA category on the next US Census call into attention the health needs of this minoritized population. Targeted research is needed to better understand the factors that influence Arab/MENA American participation in US-based health research and health care.</p><p><strong>Methods: </strong>A novel qualitative interview guide was constructed to better understand the health research experiences, health care experiences and needs of Arab/MENA patients nationally. Patients were recruited through the Arab American Health Network Alliance (AAHNA) community connections. Semi-structured interviews were conducted virtually in English and Arabic, and qualitative data was interpreted through iterative thematic analysis using inductive reasoning.</p><p><strong>Results: </strong>A total of seventeen interviews (n = 17) were completed (14 in English, 3 in Arabic). Notably, the majority identified as female (82%) and have resided in the US for 18 years or longer (53%). Three main themes were identified (1) Individual-level Comfortability and Access to Research Participation, (2) Advancing Community Health Outcomes and Participation, and (3) Structural Barriers as Drivers of Health Disparities.</p><p><strong>Conclusion: </strong>The health research and health care experiences explored in this project have the potential of informing future inquiries on Arab/MENA American health. For instance, we suggest building community trust, providing equitable compensation and support, increasing health workforce diversity, and advocating for affordable health care, all to improve Arab/MENA patient participation in health research.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142801448","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pain-Related Injustice Appraisals, Sickle Cell Stigma, and Racialized Discrimination in the Youth with Sickle Cell Disease: A Preliminary Investigation.","authors":"Megan M Miller, Ama Kissi, Deanna D Rumble, Adam T Hirsh, Tine Vervoort, Lori E Crosby, Avi Madan-Swain, Jeffrey Lebensburger, Anna M Hood, Zina Trost","doi":"10.1007/s40615-024-02247-y","DOIUrl":"https://doi.org/10.1007/s40615-024-02247-y","url":null,"abstract":"<p><p>Despite the fact that perceptions of racialized discrimination, health-related stigma, and pain-related injustice have been associated with worse patient functioning, little is known about their unique relationships in Black youth living with sickle cell disease (SCD). In this study, we (1) examined the prevalence of perceptions of racialized discrimination, perceptions of health-related stigma, and pain-related injustice appraisals and (2) investigated how the aforementioned variables were uniquely related to functioning (i.e., functional disability, depressive, and anxiety symptoms) in Black youth living with SCD. The study sample included 30 non-Hispanic Black or African American youth living with SCD (17 male, 13 female youths). The average age of the sample was approximately 11.3 years (SD = 2.73). Zero-order correlations and hierarchical regressions were used to examine and compare the multivariate relationships between perceived racialized discrimination, perceived health-related stigma, and perceived pain-related injustice and outcome variables (functional disability, anxiety symptoms, and depressive symptoms). For functional disability, perceived racialized discrimination and perceived pain-related injustice were significant predictors in the final model (F(3,26) = 11.00, p < .01). For depressive symptoms, health-related stigma trended toward significance (p = .09) as a predictor in the final model (F(2,26) = 6.69, p < .01). For anxiety symptoms, perceived pain-related injustice was the only significant predictor in the final model (F(3,26) = 10.25, p < .001). Results suggest that the youth living with SCD experience and perceive racialized discrimination, health-related stigma, and injustice surrounding their pain experience and these factors are associated with worse outcomes.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-09","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142801453","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of the COVID-19 Lockdown on HbA1c Levels of Ethnic Minorities and Low-income Groups with Type 2 Diabetes in Israel.","authors":"Galia Riklin, Michael Friger, Ilana Shoham-Vardi, Rachel Golan, Tamar Wainstock","doi":"10.1007/s40615-024-02238-z","DOIUrl":"https://doi.org/10.1007/s40615-024-02238-z","url":null,"abstract":"<p><strong>Aims: </strong>To investigate the impact of low socioeconomic status (SES) and/or membership in ethnic minority has on HbA1c before and during the COVID-19 lockdown.</p><p><strong>Methods: </strong>A retrospective cohort study was conducted between March 2019 and March 2021, based on data from electronic medical records of 17,072 patients with type-2 diabetes, collected by Clalit (Israel's largest health maintenance organization). Low SES was compared to high and ethnic minorities (Arabs and ultra-Orthodox Jews) were compared to the general Israeli population of mostly Jewish, but not ultra-Orthodox, Israeli citizens. Quantile regressions were used to examine the impact of SES and ethnic minority membership on HbA1c levels in the 0.10, 0.25, 0.50, 0.75, 0.90 quantiles before and during the lockdown.</p><p><strong>Results: </strong>In the pre-lockdown period, patients with type-2 diabetes of low versus high SES, and Arabs versus the general population, had higher HbA1c. During the lockdown HbA1c levels of low versus high SES rose significantly in the 0.10 and 0.90 quantiles, and among Arabs HbA1c levels rose significantly across all quantiles, with a remarkable increment in the 0.90 quantile (from 0.316% in the pre-lockdown period to 0.730% in the lockdown period). Ultra-Orthodox Jewish diabetic patients had a marginally higher mean HbA1C level regardless of the period. Quantile regressions did not reveal a significant difference between the ultra-Orthodox Jewish and the general population.</p><p><strong>Conclusion: </strong>The lockdown exacerbated disparities in glycemic control between low and high SES individuals and between Arab minority and the general population.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792034","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Voting Restrictions and Increased Odds of Adverse Birth Outcomes in the US.","authors":"Sze Yan Liu, Erin Grinshteyn, Daniel Cook, Roman Pabayo","doi":"10.1007/s40615-024-02253-0","DOIUrl":"https://doi.org/10.1007/s40615-024-02253-0","url":null,"abstract":"<p><strong>Background: </strong>Disparities persist in adverse birth outcomes - preterm birth and small-for-gestational age (SGA) among racialized populations. Previous studies have indicated that voting restrictions are associated with health outcomes, such as access to health insurance and teenage birth rates. This paper examines whether the association between voting restrictions and adverse birth outcomes varies according to birthing individuals' race/ethnicity.</p><p><strong>Methods: </strong>These analyses merged individual-level 2019-2020 Pregnancy Risk Assessment Monitoring System (PRAMS, 8th edition) data with state-level exposure information. The exposure, the Cost of Voting Index (COVI), is a 2020 state-level measure of voting restrictions, and the outcomes were preterm birth and SGA. Multilevel logistic regression, survey-weighted models adjusted for sociodemographic and geographically-based characteristics. Subanalyses examined if the association differed by race (non-Hispanic White, non-Hispanic Black, Hispanic, API, Other).</p><p><strong>Results: </strong>In the unadjusted model, a standard deviation increase in COVI was associated with increased odds of preterm birth (OR = 1.11, 95% CI = 0.98, 1.25) and SGA (OR = 1.12, 95% CI = 1.02, 1.22). The association for SGA was still significant in the fully adjusted models. Results differed by race/ethnicity with the largest effects among API (OR = 1.20, 95% CI = 0.95, 1.52) for preterm birth and OR = 1.27, 95% CI = 1.01, 1.59) for SGA respectively).</p><p><strong>Conclusion: </strong>Our results suggest structural voting barriers disproportionately increase the odds of adverse birth outcomes, especially for API-birthing individuals. Increasing voting restrictions may amplify existing birth inequities.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142792035","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Assessing Barriers to Breast Cancer Screening Among BIPOC Populations in the Twin Cities.","authors":"Mehnaz Parvez, Donna DeGracia, Kate Larson, Elizabeth Sager","doi":"10.1007/s40615-024-02245-0","DOIUrl":"https://doi.org/10.1007/s40615-024-02245-0","url":null,"abstract":"<p><strong>Purpose: </strong>To identify barriers to breast cancer screening in BIPOC/immigrant populations in the Twin Cities metropolitan area and to hear women's voices in these communities regarding interventions that may improve participation in breast cancer screening.</p><p><strong>Methods: </strong>The study had two components: surveys and focus group discussions. Participants were women by birth, over 30 years of age, and from Black, Indigenous, and People of Color (BIPOC) communities living or working in Minnesota.</p><p><strong>Results: </strong>Forty-one participants from BIPOC communities participated. Common themes of barriers to breast cancer screening across all communities were: psychosocial, finances, lack of knowledge, healthcare system, community and culture, and logistics.</p><p><strong>Conclusion: </strong>Addressing barriers to breast cancer screening in Twin Cities BIPOC populations requires a multipronged approach that addresses knowledge gaps, psychosocial barriers, and logistical and financial barriers, delivered in a culturally acceptable format and in convenient locations.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142785512","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Exploring Physical Activity Among Mexican American Immigrants in New York City Before and During the COVID-19 Pandemic: A Two-Wave Panel, Mixed-Method Analysis.","authors":"Kathryn P Derose, Neil Hwang, Sandra Verdaguer, María Hernández, Alyshia Gálvez, Aisha King, Ivonne Quiroz, Karen R Flórez","doi":"10.1007/s40615-024-02244-1","DOIUrl":"https://doi.org/10.1007/s40615-024-02244-1","url":null,"abstract":"<p><p>The COVID-19 pandemic was associated with decreases in moderate-to-vigorous physical activity and increases in sedentary time for children and adults, and there is some evidence that Latino populations were particularly affected. This article leverages a two-wave panel, mixed-method social network dataset collected before and during the pandemic with Mexican American immigrants living in New York City to examine social networks and other factors associated with physical activity and explore participants' perceptions about how the pandemic affected their physical activity. Participants (n = 49) completed in-person, egocentric social network interviews between January and June 2019 and virtual follow-up egocentric social network interviews between May and November 2021. Qualitative data collection with a subsample (n = 25) occurred between October and December 2022. Social network quantitative analyses found that age and female sex were negatively associated with participants' baseline physical activity level, but the proportion of alters (important persons identified by the participant) with whom the participant did physical activity at baseline was positively associated. Baseline physical activity level was inversely related to the change in physical activity, and the change in the proportion of alters who were close to the participant was negatively associated with physical activity change at follow-up. Qualitative results supported the quantitative findings, providing rich narratives regarding the importance of social support for physical activity during the pandemic. Social networks among Mexican American immigrants in New York City provided motivation and support for physical activity but became harder to sustain during a pandemic. The findings can inform strategies to create environments that are conducive to physical activity while also protecting public health.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142785588","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Black Girls' Emotional Regulation: Investigating the Roles of Parent and Peer Relationships and Neighborhood Safety.","authors":"Camille R Quinn","doi":"10.1007/s40615-024-02169-9","DOIUrl":"https://doi.org/10.1007/s40615-024-02169-9","url":null,"abstract":"<p><p>The current study investigates the role of parent and peer relationships and neighborhood safety on Black adolescent girls' emotional regulation (ER). Guided by an intersectional ecodevelopmental framework, the data derived from 188 youth punishment system-involved girls ages 12 to 17 in a short-term detention facility. Data from the 2014 Imara study-a randomized control trial of a sexual reproductive health intervention-was analyzed using multivariate path analysis. Imara comprises a local convenience sample of Black girls in a southern US short-term detention facility. Path analysis results noted the impact of social domain variables: parents, peers, and neighborhood safety on ER, revealing primarily negative direct and indirect effects. However, of note were nuanced findings, which showed that having negative peers was indirectly and positively associated with girls' ER. It was also noted that there was a negative relationship between negative peers and neighborhood safety. This study has implications for intervention programs that should be tailored and culturally responsive. Detention, legal system, and other professionals should consider the unique circumstances and coping mechanisms of Black girls and designing interventions that reflect their lived experiences and unique social environments.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142785465","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"COVID-19 Vaccine Effectiveness and Barriers to Vaccination: Comparing Perceptions Based on Vaccination Status.","authors":"Saskia Shuman, Timnit Berhane, Devin Madden, Rita Larson, Ariel Jacobs, Jacqueline Chiofalo, Nita Vangeepuram","doi":"10.1007/s40615-024-02243-2","DOIUrl":"https://doi.org/10.1007/s40615-024-02243-2","url":null,"abstract":"<p><p>New York City (NYC) was the first epicenter of the COVID-19 pandemic in the USA. Despite the availability of COVID-19 vaccines by 2021, vaccination rates varied among racial and ethnic groups, further exacerbating COVID-19-related health disparities. This study explores the relationship between vaccination status and perspectives on COVID-19-related topics among racially and ethnically diverse NYC residents. The New York Community Engagement Alliance Against COVID-19 Disparities (NYCEAL) conducted focus groups with NYC residents to explore their perceptions about vaccine effectiveness and barriers to vaccination that may impact vaccine decision-making. We conducted seven focus groups between December 2021 and April 2022 in English and Spanish with individuals grouped based on vaccination status: (1) those vaccinated when vaccines first became available, (2) those vaccinated after mandates were announced, and (3) those who remained unvaccinated. Transcripts were initially analyzed using a priori and in vivo codes, and the team utilized framework analysis to examine similarities and differences across groups. Emerging themes centered on trust in science, perceived vaccine effectiveness, and the evolution of people's COVID-19-related perspectives, experiences, and behaviors over time. Although there were distinctions between groups on concepts like trust in science and perceived vaccine effectiveness, people's cognitive biases seemed to affect their perceptions but not necessarily their (vaccine-related) behaviors. Findings from this study may help public health professionals understand vaccine decision-making from the perspective of a diverse set of New Yorkers for use during future epidemics.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142785441","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Social Determinants of Health of Racialized Male Sex Workers: Scoping Literature Review.","authors":"Sheila Báez-Martínez, Santiago Gallur-Santorum, Pedro Luís Castellanos","doi":"10.1007/s40615-024-02236-1","DOIUrl":"https://doi.org/10.1007/s40615-024-02236-1","url":null,"abstract":"<p><strong>Background: </strong>This study is a scoping review that maps existing scientific literature on the health needs of racialized men in sex work, framed within the Social Determinants of Health model.</p><p><strong>Objectives: </strong>The review aims to identify and analyze health vulnerabilities among this population, focusing on how various social determinants impact their health.</p><p><strong>Eligibility criteria: </strong>Studies published in the last 5 years, in English or Spanish, open-access, focused on male sex workers, without specific geographic limitations.</p><p><strong>Sources of evidence: </strong>Systematic searches were conducted in Scopus, Redalyc, Google Scholar, and PubMed.</p><p><strong>Charting methods: </strong>Using search queries \"male sex work\" AND health; \"male sex work\" AND race AND health; \"male prostitution\" AND race AND health, a total of 2,643 records were retrieved and screened. After applying inclusion and exclusion criteria, 32 studies were selected for review.</p><p><strong>Results: </strong>Analysis based on the Dahlgren-Whitehead Social Determinants of Health model reveals that racialized male sex workers experience health vulnerabilities primarily influenced by individual and proximal determinants, with less emphasis on intermediate and distal factors such as social networks and community support.</p><p><strong>Conclusions: </strong>These findings highlight significant health disparities affecting racialized MSWs, underscoring the need for a structural and comprehensive approach to address these disparities. This study advocates moving beyond a blame-oriented, moralistic view of individual behaviors in traditional epidemiology, focusing instead on social and structural interventions to improve sexual health outcomes for this marginalized group.</p>","PeriodicalId":16921,"journal":{"name":"Journal of Racial and Ethnic Health Disparities","volume":" ","pages":""},"PeriodicalIF":3.2,"publicationDate":"2024-12-03","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142769864","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}