Journal of pediatric rehabilitation medicine最新文献

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Safety of cardiorespiratory and muscle fitness assessment in two children with leukemia during early chemotherapy. 两例白血病患儿早期化疗期间心肺和肌肉健康评估的安全性。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-08-01 Epub Date: 2025-06-27 DOI: 10.1177/18758894251347128
Virginie Aspirot-Buron, Charles Sèbiyo Batcho, Michèle Bisson, Bruno Michon, Marc-André Dugas, Isabelle Marc, Philippe Corbeil
{"title":"Safety of cardiorespiratory and muscle fitness assessment in two children with leukemia during early chemotherapy.","authors":"Virginie Aspirot-Buron, Charles Sèbiyo Batcho, Michèle Bisson, Bruno Michon, Marc-André Dugas, Isabelle Marc, Philippe Corbeil","doi":"10.1177/18758894251347128","DOIUrl":"10.1177/18758894251347128","url":null,"abstract":"<p><p>PurposeLimited data are available on the cardiorespiratory and muscle fitness of children with acute lymphoblastic leukemia (ALL) during chemotherapy. This pilot study evaluated the safety of testing the cardiorespiratory and muscle fitness of two children with ALL at different risk levels in early chem treatment.MethodsTwo girls with low- and high-risk B-cell ALL (DFCI-16-001) took part in two test sessions: T1 (induction, consolidation 1A/C) and T2 (consolidation 2). Each testing session included a maximal oxygen uptake (<math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O<sub>2</sub>max) exercise test, muscular strength tests, physical activity and quality of life questionnaires, and a semi-structured interview. The parents agreed to these assessments at the start of chemotherapy treatment.ResultsThe participants experienced no significant adverse effects from undertaking the cardiorespiratory and muscular tests, and there was no impact on their chemotherapy treatment schedule. At their post-test interview, both participants reported that thigh pain and fatigue were the most difficult part of the <math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O<sub>2</sub>max exercise test. Regarding physical performance outcomes, both participants exhibited low scores compared to their gender, weight- and age-predicted <math><mrow><mover><mi>V</mi><mo>˙</mo></mover></mrow></math>O<sub>2</sub>max and on most strength test values.ConclusionThe physical tests were safely and successfully conducted with these two participants during early chemotherapy.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"189-200"},"PeriodicalIF":1.0,"publicationDate":"2025-08-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292722/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144506027","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting. 脊髓脊膜膨出的母胎手术纵向随访模型:通过护理协调和结果报告缓解护理碎片化
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-04-13 DOI: 10.1177/18758894251331335
Jonathan Castillo, Mary M Locastro, Romain Corroenne, Anjali Malhotra, Alexander Van Speybroeck, Grace Lai, Michael A Belfort, Magdalena Sanz Cortes, Heidi Castillo
{"title":"Maternal-fetal surgery for myelomeningocele longitudinal follow-up model: Mitigation of care fragmentation through care coordination and outcomes reporting.","authors":"Jonathan Castillo, Mary M Locastro, Romain Corroenne, Anjali Malhotra, Alexander Van Speybroeck, Grace Lai, Michael A Belfort, Magdalena Sanz Cortes, Heidi Castillo","doi":"10.1177/18758894251331335","DOIUrl":"10.1177/18758894251331335","url":null,"abstract":"<p><p>PurposeFollowing the Global Health Symposium at the Spina Bifida World Congress in 2023, the purpose of this work is to provide a historical overview and a state-of-the-art update on the current global practice of myelomeningocele (MMC) closure and to highlight the importance of care coordination and outcomes reporting to mitigate care fragmentation through a multidisciplinary approach.MethodsPanelists from the Spina Bifida World Congress Global Health Symposium reviewed their institutions' history and experience with risk for fragmentation of care following prenatal repair and proposed solutions to address fragmentation of care.ResultsNew and rapidly evolving in-utero approaches to MMC repair are increasingly accessible for patients worldwide but bring more complexity to follow-up care. There is a consensus that unifying multidisciplinary practices and evaluations across institutions and countries will help make care coordination more comprehensive and longitudinal, and that meeting these standards may decrease care fragmentation.ConclusionRegardless of the open spina bifida repair technique, longitudinal follow-up must be established after fetal surgery, not only for the optimal care of individual patients but also to mitigate care fragmentation, transparently evaluate and compare techniques (for example, through the North American Fetal Therapy Network, the National Spina Bifida Patient Registry, etc.), engage health care professionals, and provide evidence-based multidisciplinary care.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"146-154"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292713/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144000887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transitioning from pediatric to adult multiple sclerosis care: Challenges, strategies and therapy. 从儿童到成人多发性硬化症治疗的转变:挑战、策略和治疗。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-05-30 DOI: 10.1177/18758894251329690
Shreya Singh Beniwal, Neetika Sharma, Mohammed Sulaiman Khan, Krithi Pichiah John, Kopila Gyawali, Daniela Castro Calderón, Prashasti Dahiya, Meenakshi Reddy Yathindra, Muhammad Saeed, Akash Rawat, Muaaz Ather, Ayush Dwivedi
{"title":"Transitioning from pediatric to adult multiple sclerosis care: Challenges, strategies and therapy.","authors":"Shreya Singh Beniwal, Neetika Sharma, Mohammed Sulaiman Khan, Krithi Pichiah John, Kopila Gyawali, Daniela Castro Calderón, Prashasti Dahiya, Meenakshi Reddy Yathindra, Muhammad Saeed, Akash Rawat, Muaaz Ather, Ayush Dwivedi","doi":"10.1177/18758894251329690","DOIUrl":"10.1177/18758894251329690","url":null,"abstract":"<p><p>Multiple sclerosis (MS) is a chronic autoimmune condition causing damage to the protective covering of nerves in the central nervous system. Pediatric multiple sclerosis is a rare form of the disease that affects 3-5% of individuals with multiple sclerosis. Pediatric Onset Multiple Sclerosis (POMS) has a rather different clinical profile from the more prevalent adult multiple sclerosis. Alongside the classic symptoms of multiple sclerosis, children tend to present with various atypical symptoms that can impact motor milestones, speech development, and cognitive functions. This review aims to explore the pathogenesis, clinical features, diagnosis and progression of Pediatric Onset Multiple Sclerosis into adulthood, address the challenges accompanying this transition and identify strategies and therapies to overcome them. Pediatric multiple sclerosis patients transitioning into adulthood face many challenges, such as difficulty in school and social life, and dealing with uncertainties especially due to changes in healthcare providers from pediatric to adult settings. These challenges can be overcome by an emphasis on a well-structured transition plan, early planning, personalized care, proper counselling of the patient as well as the family and caretakers, a multidisciplinary approach with good communication and coordination between all healthcare personnel a robust support network with a gradual transition rather than an abrupt one. Proper care during the transition period is crucial to enhance patient adherence and deepen the understanding of the disease for both patients and their families. This will empower them to seek timely assistance when needed, reduce loss to follow-up, and ultimately improve overall quality of life.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"158-169"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292709/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144187206","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Towards a successful teledance program for youth with cerebral palsy: A mixed-method study with the instructor's perspective. 迈向成功的青少年脑瘫进修计划:以讲师的观点进行混合方法研究。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-04-10 DOI: 10.1177/18758894251324317
Annie Pouliot-Laforte, Claire Cherrière, Margaux Hebinck, Jessica Tallet, Catherine Donskoff, Louis-Nicolas Veilleux, Martin Lemay, Maxime T Robert
{"title":"Towards a successful teledance program for youth with cerebral palsy: A mixed-method study with the instructor's perspective.","authors":"Annie Pouliot-Laforte, Claire Cherrière, Margaux Hebinck, Jessica Tallet, Catherine Donskoff, Louis-Nicolas Veilleux, Martin Lemay, Maxime T Robert","doi":"10.1177/18758894251324317","DOIUrl":"10.1177/18758894251324317","url":null,"abstract":"<p><p>PurposeDance is a leisure time physical activity (LTPA) known to improve motor, cognitive, and psychosocial functions in youth with cerebral palsy (CP). Online exercise or tele-programs are promising in overcoming the environmental barriers of accessibility to LTPA. To ensure successful implementation, it is necessary to identify limitations specific to dance in a pediatric population. The aim was to explore the perspectives of the main stakeholders, i.e., dance instructors and youth, to implement such a program.MethodsIn a mixed-method design, feasibility indicators were assessed by participation and retention rates, the Physical Activity Enjoyment Scale (PACES), and the Children's Effort Rating Table (CERT). Semi-structured interviews were conducted before and after the intervention with youth with CP [n = 15] and dance instructors [n = 3]. Interviews were analyzed with an inductive approach.ResultsParticipation and retention rates were 86.7% ± 10.7 and 100%, and the PACES and CERT average scores were 91% ± 11 and 3.7 ± 1.3, respectively. Four themes emerged from the interviews: 1) Technology; 2) Pedagogical Approach; 3) Participant's Environment; and 4) Social Relations.ConclusionThe teledance program is feasible and enjoyable, requiring minimal equipment and travel. However, there is a need to consider and provoke social interaction, to enhance the social and relational dimension of dance.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"120-131"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292708/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144015497","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Gait abnormalities in children with FOXP1 syndrome: A case series. FOXP1综合征患儿步态异常:一个病例系列。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-02-25 DOI: 10.1177/18758894251323784
Laura M Breij, Eveline B Boeker, Bregje Jaeger, Annemieke I Buizer
{"title":"Gait abnormalities in children with FOXP1 syndrome: A case series.","authors":"Laura M Breij, Eveline B Boeker, Bregje Jaeger, Annemieke I Buizer","doi":"10.1177/18758894251323784","DOIUrl":"10.1177/18758894251323784","url":null,"abstract":"<p><p>FOXP1 syndrome is a neurodevelopmental disorder caused by mutations or deletions in the Forkhead Box Protein 1 (FOXP1) gene. It is characterized by intellectual disabilities, language difficulties, autism spectrum disorder, congenital anomalies and motor impairments.Walking difficulties have been reported, but specific gait impairments have not previously been described. In this case series, specific gait abnormalities, and how they were managed, are reported in three children with FOXP1 syndrome. The most prominent clinical abnormalities in their gait and gait analysis were toe walking with increased plantar flexion, and knee and hip flexion in midstance. All children had premature activation of the calf muscles. In two of the three children, spasticity in the calf muscles and contractures of ankles and knees were found, which could explain these abnormalities in their gait.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 2","pages":"155-157"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292706/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144302409","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Rehabilitation in a child with Chiari II malformation, lumbosacral meningomyelocele, achondroplasia and impaired respiratory regulation - a case report and literature review. 小儿Chiari II型畸形、腰骶部脊膜膨出、软骨发育不全和呼吸调节功能受损的康复一例报告及文献复习。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-03-02 DOI: 10.1177/18758894241313094
Riekje Neißkenwirth, Christian Mathys, Marc-Phillip Hitz, Tobias Linden, Martin Groß
{"title":"Rehabilitation in a child with Chiari II malformation, lumbosacral meningomyelocele, achondroplasia and impaired respiratory regulation - a case report and literature review.","authors":"Riekje Neißkenwirth, Christian Mathys, Marc-Phillip Hitz, Tobias Linden, Martin Groß","doi":"10.1177/18758894241313094","DOIUrl":"10.1177/18758894241313094","url":null,"abstract":"<p><p>BackgroundChiari II malformation occurs in one of 1000 live births and causes posterior fossa malformation. In Chiari II malformation, a lumbosacral meningomyelocele is nearly always present. Achondroplasia is the most common cause of dwarfism, occurring in one of 26,000 live births. Both Chiari II malformation and achondroplasia can cause compression at the craniocervical junction and consecutive hydrocephalus.Case presentationThe case of a three-year-old male with Chiari II malformation, lumbosacral meningomyelocele, and achondroplasia is presented. To the authors' knowledge, this is the second such case that has been reported so far. A surgical therapy of a lumbosacral meningomyelocele and an implantation of a ventriculoperitoneal shunt was performed in the first month after birth. At the age of two years, occipitoatlantoaxial stenosis required spinal decompression and laminectomy. The child presented in the outpatient department with life-threatening respiratory dysregulation, comprising prolonged expiratory apnoea with cyanosis (PEAC), acquired central hypoventilation syndrome, central sleep apnoea and obstructive sleep apnoea. He also presented with delayed language development, paraplegia, a neurogenic bladder, and dwarfism. The patient received non-invasive ventilation and had an individually adapted set of assistive and therapeutic devices. Cough insufficiency necessitated the adaption of mechanical insufflation-exsufflation. Speech and language therapy, physiotherapy, and occupational therapy were performed regularly. The patient started attending kindergarten just before his fourth birthday. At his one year follow-up, the patient's language capacities substantially improved and PEAC was not reported anymore.ConclusionWhen osseous, cerebral, and spinal disease are accompanied by life-threatening respiratory impairment, the following factors can reduce the impact of disability and can foster participation: treatment by an interdisciplinary team, the availability of assistive and rehabilitative technologies, living in a barrier-free home, a developmentally appropriate environment, and the continuous presence of trained caregivers.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 2","pages":"137-145"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292704/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144302410","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Burden of pediatric neural tube defects at a referral medical center in Tanzania. 坦桑尼亚转诊医疗中心儿童神经管缺陷的负担。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-02-24 DOI: 10.1177/18758894251317839
Gerald D Mayaya, Friedemann Schad, Shiao Li Oei, Walter H Miya, Janet Manoni, Jennifer Mekere, Fabian A Massaga
{"title":"Burden of pediatric neural tube defects at a referral medical center in Tanzania.","authors":"Gerald D Mayaya, Friedemann Schad, Shiao Li Oei, Walter H Miya, Janet Manoni, Jennifer Mekere, Fabian A Massaga","doi":"10.1177/18758894251317839","DOIUrl":"10.1177/18758894251317839","url":null,"abstract":"<p><p>PurposeThis project aimed to describe the current status and future needs for the management of pediatric neural tube defects (NTDs) at a referral center in Mwanza, Tanzania, and thus can offer a model for other affected areas in sub-Saharan Africa.MethodsA descriptive study design was used to collect and describe data from pediatric patients with NTDs admitted to and treated at Bugando Medical Center in collaboration with Mwanangu Development Tanzania in Mwanza, Tanzania.ResultsBetween January 2018 and August 2022, a total number of 3160 children with NTDs presented to a referral medical center. Thirty-one percent of the patients were from Mwanza, 13% from Geita, 11% from Tabora, 10% from Simiyu, and the rest came from more distant regions of Tanzania. Hydrocephalus and spina bifida were the most common NTD diagnoses recorded that required ventriculoperitoneal shunt interventions in the neurosurgical services.ConclusionEarly neural development disorders are common in sub-Saharan Africa, with spina bifida and hydrocephalus being the most prominent NTDs. The treatment and special education of affected children and adolescents are major public health challenges. As the development of protocols and guidelines for neurosurgical procedures is needed to improve the burden of pediatric hydrocephalus in sub-Saharan Africa, a report on how this is done simply, practically, and effectively here at a referral medical center in Tanzania may benefit countries with similar health issues.This study was approved by the Regional Ethic Review Board in Mwanza Tanzania (Certificate No. CREC/682b/2023).</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"18 2","pages":"132-136"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292705/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144302408","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Satisfactory long-term functional and radiological outcomes following hip reconstructive surgery in children with cerebral palsy. 脑瘫儿童髋关节重建手术后的长期功能和放射学结果令人满意。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-03-20 DOI: 10.1177/18758894251316072
Kathleen Montpetit, Souad Rhalmi, Mathieu Lalumiere, Noémi Dahan-Oliel, Doron Keshet, Dan Epstein, Reggie Hamdy
{"title":"Satisfactory long-term functional and radiological outcomes following hip reconstructive surgery in children with cerebral palsy.","authors":"Kathleen Montpetit, Souad Rhalmi, Mathieu Lalumiere, Noémi Dahan-Oliel, Doron Keshet, Dan Epstein, Reggie Hamdy","doi":"10.1177/18758894251316072","DOIUrl":"10.1177/18758894251316072","url":null,"abstract":"<p><p>PurposeThis study aimed to evaluate long-term functional and radiological outcomes as well as parents' perception of change and overall satisfaction following hip reconstructive surgery in children with cerebral palsy (CP).MethodsMedical charts of children between three and 18 years of age with CP who had surgery between 1993 and 2014 by the same surgeon were reviewed. The study sample consisted of 44 children (Gross Motor Function Classification System levels I-V) aged 2-18 years representing 60 hips. Mean follow-up was 8.4 years [1.8-17.5]. A final follow-up evaluation was held to obtain post-operative anteroposterior pelvic radiographs and administer patient-reported outcomes to the caregivers.ResultsCare and Comfort Hypertonicity Questionnaire scores showed that 74-79% of caregivers reported no difficulty post-surgery in terms of child's pain or discomfort during position changes, when participating in general activities, or during sleep. The Lower Extremity Parent-Rated Change Form showed that 58-76% of caregivers reported a better status in their child's overall health, leg function, activity level, and pain post-surgery. Seventy-six percent of the caregivers indicated satisfaction with the overall changes since the surgery. For the 45 hips with both pre-operative and follow-up radiological outcomes, migration percentage improved significantly (p < 0.001) by 36.7%, and there was a 62.2% increase in the number of hips that were located post-operatively compared to pre-operatively. Acetabular coverage improved significantly (p < 0.001) from non-covered to covered in 46.7% of the hips and Shenton's line improved significantly (p < 0.001) from non-intact to intact in 66.7% of the hips.ConclusionHip reconstructive surgery improved long-term functional and radiological outcomes, as well as quality of life for children and caregivers, while changes were perceived as satisfactory to the families. Evaluating pain, function, and satisfaction is important to measure the impact of hip reconstructive surgery on daily life.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"110-119"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292707/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143669805","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Global burden of chronic non-communicable diseases: Prenatal care and beyond, numerous challenges besiege investigation across the care continuum. 慢性非传染性疾病的全球负担:产前护理及以后,许多挑战使整个护理连续体的调查陷入困境。
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-03-28 DOI: 10.1177/18758894251331737
Jonathan Castillo, Judy K Thibadeau, Andrea Park, Tim Brei, Heidi Castillo
{"title":"Global burden of chronic non-communicable diseases: Prenatal care and beyond, numerous challenges besiege investigation across the care continuum.","authors":"Jonathan Castillo, Judy K Thibadeau, Andrea Park, Tim Brei, Heidi Castillo","doi":"10.1177/18758894251331737","DOIUrl":"10.1177/18758894251331737","url":null,"abstract":"<p><p>Recently, the National Institutes of Health (NIH) announced possible restructuring of indirect and administrative costs for funded research. Many entities have raised concern about the impacts that such funding restructuring may have on the future progress of biomedical investigation. The NIH has historically played a key role in research on relevant chronic conditions, including spina bifida and cerebral palsy. Such research funds have not only provided occasion for basic science investigational opportunities but also have allowed for enquiry into clinical, social, and environmental factors that impact disability-specific health outcomes, including those present in some of the world's most vulnerable communities. However, the journal's editorial board is nonetheless encouraged to see the growth and change of <i>Journal of Pediatric Rehabilitation Medicine</i> (JPRM), as the journal evolves from a special issue format to a collections format. The collections will serve as ever-growing \"homes\" for the latest research on childhood-onset physical disabilities and complex care needs, with the added benefit of greater accessibility and improved user interface. Furthermore, as reflected in this issue, <i>JPRM</i> will continue to offer a platform for research in multidisciplinary care of childhood disability throughout the lifespan as we weather the changes of time together as a committed global community of clinicians and investigators.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"97-98"},"PeriodicalIF":1.0,"publicationDate":"2025-05-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC13292711/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143730537","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Reliability and validity of the Mini-Eating and Drinking Ability Classification System (Mini-EDACS) among Dutch preschoolers with cerebral palsy. 荷兰脑瘫学龄前儿童迷你饮食能力分类系统(Mini-EDACS)的信度和效度
IF 1
Journal of pediatric rehabilitation medicine Pub Date : 2025-05-01 Epub Date: 2025-04-01 DOI: 10.1177/18758894251330469
Floor van der Klift, Lynn B Orriëns, Bea Spek, Diane Sellers, Corrie E Erasmus, Karen van Hulst
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