Journal of pediatric rehabilitation medicine最新文献

{"title":"JPRM cerebral palsy special issue 2023.","authors":"Heakyung Kim, Rachel Byrne, Michael Green","doi":"10.3233/PRM-239002","DOIUrl":"10.3233/PRM-239002","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 1","pages":"1-2"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/24/ed/prm-16-prm239002.PMC10116136.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9703486","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reliability of the Wii Balance Board for measurement of steady state balance in children aged 6-9 years.","authors":"Hemant Juneja,&nbsp;Christian Frandsen,&nbsp;Nina Odgaard Nielsen,&nbsp;Kim Larsen,&nbsp;Jeanette Praestegaard","doi":"10.3233/PRM-210106","DOIUrl":"https://doi.org/10.3233/PRM-210106","url":null,"abstract":"<p><strong>Purpose: </strong>The Wii Balance Board (WBB) can be used for assessment of steady state balance (SSB), but its reliability has not been studied in children aged 6-9 years. This study aimed to determine the test-retest reliability of the WBB for measuring SSB in this population. A secondary aim was to determine the minimum detectable change (MDC) and standard error of measurement (SEM) of the WBB in children aged 6-9 years.</p><p><strong>Methods: </strong>52 children between 6-9 years of age participated. \"One leg stand balance\" was used to assess center of pressure velocity (COPV) and center of pressure area (COPA) on three occasions by the same tester. Two tests were conducted on the same day (Day 1) and the third test was performed on another day (Day 2), with a period of 5-13 days between the two test days. Intraclass correlation coefficient (ICC 3,1), SEMs, and MDC were calculated.</p><p><strong>Results: </strong>Intra-day test-retest reliability of COPA was found to be good (ICC3,1 =0.86; 95% confidence interval [CI]: 0.75, 0.92) and that of COPV was also found to be good (ICC3,1 =0.87; 95% CI: 0.77, 0.92). Inter-day test-retest reliability was found to be good for COPA (ICC3,1 = 0.87; 95% CI: 0.75, 0.93) and COPV (ICC3,1 = 0.89; 95% CI: 0.81, 0.94). SEM for COPA in intra-day testing was 18.90 mm2 (15.78%), and in inter-day testing it was 16.44 mm2 (13.61%). SEM for COPV in intra-day testing was 1.12 mm/s (7.6%), and in inter-day testing it was 1.01 mm/s (6.9%). MDC for COPA in intra-day testing was 52.41mm2 (42.75%), and in inter-day testing was 45.58 mm2 (35.75%). MDC for COPV in intra-day testing was 3.11 mm/s (21.2%), and in inter-day testing it was 2.80 mm/s (18.9%).</p><p><strong>Conclusion: </strong>The WBB has good test-retest reliability for assessing SSB of children between 6-9 years. COPA measurements appear to be less sensitive to clinical changes in SSB when compared to COPV. Assessment of validity of the WBB in this age group is recommended before it can be considered as a potential balance assessment tool in children.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 2","pages":"369-380"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9975433","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Frequency, facilitators, and barriers for range of motion to prevent shoulder contracture in brachial plexus birth injury: A pilot study.","authors":"Jennifer Wingrat, Matthew J Elrick","doi":"10.3233/PRM-220090","DOIUrl":"10.3233/PRM-220090","url":null,"abstract":"<p><strong>Purpose: </strong>This pilot study investigated the efficacy of passive range of motion (PROM) during the first year of life to prevent development of shoulder contractures in children with brachial plexus birth injury (BPBI) and identified facilitators and barriers to caregiver adherence with daily PROM.</p><p><strong>Methods: </strong>Five caregivers of children with upper trunk BPBI participated in retrospective interviews about the frequency with which they performed PROM during their child's first year of life including facilitators and barriers to daily adherence. Medical records were reviewed for documentation of caregiver-reported adherence and documented evidence of shoulder contracture by age one.</p><p><strong>Results: </strong>Three of the five children had documented shoulder contractures; all three had delayed initiation or inconsistent PROM in the first year of life. Two without shoulder contractures received consistent PROM throughout the first year of life. Making PROM part of the daily routine was a facilitator to adherence while family contextual factors were barriers.</p><p><strong>Conclusion: </strong>Absence of shoulder contracture may be related to consistent PROM throughout the first year of life; decreased frequency of PROM after the first month of life did not increase the risk of shoulder contracture. Consideration of family routines and context may facilitate adherence with PROM.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 2","pages":"331-336"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10895927/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9977494","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Editorial.","authors":"","doi":"10.3233/PRM-230026","DOIUrl":"https://doi.org/10.3233/PRM-230026","url":null,"abstract":"This issue of JPRM contains “Guidance to best tools and practices for systematic reviews”. This paper is being published simultaneously in multiple journals. It aims to provide a reference point for review authors, peer reviewers, and editors to improve their understanding of the rationale behind current methodological expectations of a systematic review, with or without meta-analysis. Systematic reviews are important across biomedicine but very often they are subpar and not trustworthy; this has been documented across diverse medical subspecialties including pediatric rehabilitation. An example is a recent study that found low or very low confidence in almost all recent systematic reviews reporting on interventions for children with cerebral palsy [1]. As editors and peer reviewers of various journals, we find the ongoing poor compliance of authors and journal editors with review expectations discouraging. We sought to identify practical solutions but discovered that, while guidelines for sound conduct and reporting of systematic reviews are available from many sources, they do not appear to be routinely and/or widely applied. The more we searched for comprehensive guidance in a single place, the more we realized we might have to create it. In our Guidance, multiple tables and figures summarize key concepts and wherever possible link to additional resources. The extensive references allow interested readers to locate and parse the original work on which our guidance is based. The Concise Guide is a quick reference to the multiple tools currently recommended for development, reporting, and critical appraisal of a systematic review. We emphasize the difference between a reporting guideline (PRISMA 2020) [2] and a methodology which will guide the requirements for specific types of reviews. We provide recommendations for specific tools for risk of bias evaluation for specific types of literature. We emphasize that tools that evaluate systematic reviews such as AMSTAR 2 [3] and ROBIS [4] are also not methodologies, but instead inform authors on ways their final work might be reviewed or judged by others. One of the six sections of the Guidance focuses on assessment of the overall certainty of evidence of a body of literature. This is a relatively new requirement of systematic reviews per PRISMA 2020; it involves a number of core concepts and processes for which we recommend the GRADE approach [5]. Authors and peer reviewers may take advantage of extensive references on GRADE along with their online resources and workshops. In the GRADE framework, the overall certainty of the evidence rating is the culmination of a systematic review. We caution authors, however, that systematic reviews should not superficially provide facile recommendations for or against interventions, but instead summarize the evidence available to answer the research questions posed. This Guidance is intended to improve common systematic review problems, but we also hope it provide","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 2","pages":"239"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/82/d5/prm-16-prm230026.PMC10258875.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9623646","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Attitudes and practices of specialty physicians regarding the return to school process after pediatric acquired brain injury.","authors":"Bethany L Johnson-Kerner,&nbsp;Kathleen Colao,&nbsp;Nathan K Evanson,&nbsp;J Michael Taylor","doi":"10.3233/PRM-210130","DOIUrl":"10.3233/PRM-210130","url":null,"abstract":"<p><strong>Purpose: </strong>More than 50,000 children are hospitalized yearly in the U.S. for acquired brain injury (ABI) with no established standards or protocols for school re-entry and limited resources for hospital-school communication. While ultimately the school has autonomy over curricula and services, specialty physicians were asked about their participation and perception of barriers in the school re-entry process.</p><p><strong>Methods: </strong>Approximately 545 specialty physicians were sent an electronic survey.</p><p><strong>Results: </strong>84 responses (43% neurologists and 37% physiatrists) were obtained with a response rate of ∼15%. Thirty-five percent reported that specialty clinicians currently make the plan for school re-entry. The biggest challenge for school re-entry noted by physicians was cognitive difficulties (63%). The biggest gaps perceived by physicians were a lack of hospital-school liaisons to help design and implement a school re-entry plan (27%), schools' inability to implement a school re-entry plan (26%), and an evidence-based cognitive rehab curriculum (26%). Forty-seven percent of physicians reported that they did not have adequate medical personnel to support school re-entry. The most commonly used outcome measure was family satisfaction. Ideal outcome measures included satisfaction (33%) and formal assessment of quality of life (26%).</p><p><strong>Conclusion: </strong>These data suggest that specialty physicians identify a lack of school liaisons in the medical setting as an important gap in hospital-school communication. Satisfaction and formal assessment of quality of life are meaningful outcomes for this provider group.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"497-505"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10776731","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medicine shouldn't be this hard: The intersection of physician moral injury and patient healthcare experience in pediatric complex care.","authors":"Erika Erlandson,&nbsp;Carrie Ramirez,&nbsp;Wendy Dean","doi":"10.3233/PRM-230027","DOIUrl":"10.3233/PRM-230027","url":null,"abstract":"<p><p>Dr. Jay Neufeld's story in If I Betray These Words is a detailed account of one physician's catastrophic journey through moral injury when caring for pediatric patients with complex medical conditions [1]. Many clinicians may recognize Jay's journey in their own experiences, but what deserves parallel consideration are the journeys of patients and families when they are accompanied by physicians at risk of moral injury. This case study illustrates the tight link between drivers of physician moral injury and patients' negative healthcare experiences. These include (1) decisions directed by health insurance regulations and prior authorizations; (2) the electronic medical record (EMR); and (3) healthcare systems focused on revenue generation.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"443-447"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://ftp.ncbi.nlm.nih.gov/pub/pmc/oa_pdf/95/89/prm-16-prm230027.PMC10578270.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"10200310","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Open Topic.","authors":"","doi":"","DOIUrl":"","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 3","pages":"471"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41130471","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feasibility of temperature monitoring smart socks in adolescents and young adults with spina bifida.","authors":"Melissa A Bent, Abigail N Padilla, Sam P Wimmer, Kelleen Lopez, Veronica Beltran, Tishya A L Wren","doi":"10.3233/PRM-230030","DOIUrl":"10.3233/PRM-230030","url":null,"abstract":"<p><strong>Purpose: </strong>The purpose of the study was to determine if the use of continuous temperature monitoring smart socks is feasible in adolescents with spina bifida (SB) by obtaining user feedback on comfort.</p><p><strong>Methods: </strong>Participants were provided temperature monitoring socks and a 4 G hub. Follow-up phone calls were performed to answer questions or discuss barriers. Sock temperatures were monitored throughout four weeks. Following sock wear, participants were asked to complete a satisfaction survey.</p><p><strong>Results: </strong>Seventeen of the 33 participants enrolled (eight males, nine females) with a mean age of 14.8 years completed the study. Average sock wear was 8.0 hours per day for four weeks. The mean temperature was 83.4°F with a mean temperature differential between feet of -0.74°F (left-right). The duration of sock wear varied from 14.6 to 595.9 hours over the four-week period. Lastly, eleven participants (84.6%) reported that the socks were comfortable and very easy to put on.</p><p><strong>Conclusion: </strong>Continuous temperature monitoring smart socks are an option for monitoring risk for developing pressure injuries in adolescents with SB. Future directions would include increasing sample size, obtaining normative data for temperature ranges in this population, and correlating to clinical outcomes.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"649-655"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10789320/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139032347","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Abstracts of the 2023 World Congress on Spina Bifi da Research & Care - Urology.","authors":"","doi":"10.3233/PRM-239015","DOIUrl":"https://doi.org/10.3233/PRM-239015","url":null,"abstract":"","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 s1","pages":"S113-S134"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9684222","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Psychosocial and medical factors associated with intrathecal baclofen pump explants: A case series.","authors":"Fabiola Reyes,&nbsp;Whitney M Herge,&nbsp;Shelby L Cerza,&nbsp;Allen Savedra,&nbsp;Catherine E Thompson","doi":"10.3233/PRM-210097","DOIUrl":"https://doi.org/10.3233/PRM-210097","url":null,"abstract":"<p><strong>Purpose: </strong>The goal of this retrospective chart review study was to explore factors that contributed to consideration of or actual pump explantation in pediatric patients with intrathecal baclofen (ITB) pumps.</p><p><strong>Methods: </strong>Medical records of 30 patients with ITB pumps were reviewed. Quantitative data, including demographic, clinical, psychosocial, and service utilization variables were culled from the records. Qualitative data were collected from clinic visit notes, pump-related follow-up phone calls, and any pump-related emergency room visits.</p><p><strong>Results: </strong>Of those reviewed, six underwent ITB pump explantation, and two considered explantation. Factors contributing to pump explantation or consideration of explantation included the following: postoperative infection, pump malfunction, non-adherence, anxiety/behavioral factors impacting the patient's tolerance of the pump, distance to the medical provider, frequency of required pump refill appointments, lack or perceived lack of intrathecal baclofen effect, and difficulty transitioning to adult care providers.</p><p><strong>Conclusion: </strong>Due to the complex care regimen associated with ITB pumps and various psychosocial and logistical factors that impact treatment success, a standardized multidisciplinary pre-implantation education, screening, and assessment process should be developed. Such a process would ensure that patients/families receive appropriate education, including proactively identifying treatment barriers and potential complications, possibly minimizing dissatisfaction with treatment and the need for explantation.</p>","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"16 1","pages":"99-108"},"PeriodicalIF":1.9,"publicationDate":"2023-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"9684516","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}