Journal of pediatric rehabilitation medicine最新文献_第6页

Factors influencing caregiver buy-in to early intervention physical therapy. 影响护理人员接受早期干预物理治疗的因素。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230025

Andrea Fergus, Carlee Wyker, Nicole Heyl, Tayler Lewis, Katherine Hartsook

{"title":"Factors influencing caregiver buy-in to early intervention physical therapy.","authors":"Andrea Fergus, Carlee Wyker, Nicole Heyl, Tayler Lewis, Katherine Hartsook","doi":"10.3233/PRM-230025","DOIUrl":"10.3233/PRM-230025","url":null,"abstract":"Objective: The family-centered care framework of Early Intervention (EI) has shifted the focus toward caregiver engagement, but the underlying processes that build this are unknown. The aims of this study were 1) to describe the process of caregiver engagement in therapy and (2) to identify factors perceived to influence caregiver buy-in, confidence, and engagement in EI.Methods: This preliminary descriptive study utilized quantitative questionnaires and qualitative semi-structured interviews of EI participants (23 caregivers and four physical therapists). Interviews were transcribed and theme coded until saturation was achieved and a concept map was developed.Results: All caregivers believed that their children benefited from EI, that they were empowered and confident in caring for their children, and their quality of life improved based on the quantitative data. The qualitative data revealed that building a rapport and therapeutic relationship is the foundation to developing buy-in. Reciprocal communication is critical to the relationship and the buy-in. Caregiver knowledge and awareness of progress foster caregiver buy-in and confidence once the relationship is established.Conclusion: Improved understanding of the factors influencing the development of buy-in will provide a framework for the clinician to enhance caregiver buy-in. Enhanced buy-in may promote parental engagement and improved outcomes for the child and family.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"221-235"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307095/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139513090","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

JPRM vol. 17 issue 1 Opening Editorial. JPRM 第 17 卷第 1 期开幕社论。

IF 1.9

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-249002

Heakyung Kim, Christopher Raffi Najarian, Justin W Ramsey, Sruthi Pandipati Thomas

引用次数: 0

Treatment of oromandibular dystonia with botulinum toxin A improves apnea in a teenager with quadriplegic cerebral palsy: A case report. 用 A 型肉毒毒素治疗口颌肌张力障碍可改善一名四肢瘫痪脑瘫青少年的呼吸暂停症状：病例报告。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220105

Jeremy Roberts, Amy Tenaglia, Elisabeth Bellissimo, Heakyung Kim

引用次数: 0

Exploring the sexual experiences and challenges of individuals with cerebral palsy. 探索脑瘫患者的性经历和挑战。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240006

Amber Newell, Neal Liang, Jan Moskowitz, Nancy Lee, Xiaoyu Norman Pan, Heakyung Kim

{"title":"Exploring the sexual experiences and challenges of individuals with cerebral palsy.","authors":"Amber Newell, Neal Liang, Jan Moskowitz, Nancy Lee, Xiaoyu Norman Pan, Heakyung Kim","doi":"10.3233/PRM-240006","DOIUrl":"10.3233/PRM-240006","url":null,"abstract":"Purpose: Cerebral palsy (CP) is a prevalent motor disorder affecting children, with evolving demographics indicating an increasing survival into adulthood. This shift necessitates a broader perspective on CP care, particularly in addressing the often overlooked aspect of sexuality. The purpose of this study was to investigate experiences of, challenges with, and related factors of sexuality and intimacy that people with CP are facing.Methods: This was a descriptive and cross-sectional single institution survey among individuals with CP, ages 18 to 65, who had the ability to independently complete an online survey.Results: A total of 40 respondents participated in the survey (Gross Motor Function Classification System [GMFCS] level I/II, 32.5%; III, 35%; IV, 32.5%). Of those, 45% were partnered, 60% had past sexual experience, 47.5% were currently sexually active at the time of submitting the survey, 80% had masturbation experience, and 45.8% believed it had positive effect on their self-esteem. Only 10% received sex education tailored for people with disability, whereas school (72.5%) and internet (35%) were the most common sources of sex education. Muscle spasms, positioning difficulty, and pain/discomfort were the most common physical challenges experienced during intimate activity amongst all function stratifications. Stratification analysis showed that, compared to higher functioning respondents, a smaller proportion of lower functioning respondents were partnered (GMFCS IV, 23.1%; quadriplegic, 31.6%), had past or current sexual experience (GMFCS IV, 44.4%, 36.4%; quadriplegic, 42.1%, 26.3%, respectively), and had masturbation experience (GMFCS IV, 61.5%); Also, they had worse Quality of Life Scale scores on average (GMFCS IV, 88.4; quadriplegic, 88.3) and a higher rate of reported positive effects of sexual experiences on self-esteem than negative (GMFCS IV, 38.5%; quadriplegic, 35%).","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"35-45"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977348/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140189849","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

REhabilitation Approaches in CHildren with cerebellar mutism syndrome (REACH): An international cross-disciplinary survey study. 小脑缄默症儿童康复方法（REACH）：一项国际跨学科调查研究。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230006

Sharyl Samargia-Grivette, Helen Hartley, Karin Walsh, Jurgen Lemiere, Allison D Payne, Emma Litke, Ashley Knight

{"title":"REhabilitation Approaches in CHildren with cerebellar mutism syndrome (REACH): An international cross-disciplinary survey study.","authors":"Sharyl Samargia-Grivette, Helen Hartley, Karin Walsh, Jurgen Lemiere, Allison D Payne, Emma Litke, Ashley Knight","doi":"10.3233/PRM-230006","DOIUrl":"10.3233/PRM-230006","url":null,"abstract":"Objective: Pediatric cerebellar mutism syndrome (pCMS) can occur following resection of a posterior fossa tumor and, although some symptoms are transient, many result in long-lasting neurological deficits. A multi-disciplinary rehabilitation approach is often used in cases of pCMS; however, there have been no clinical trials to determine gold standards in rehabilitation practice in this population, which remains a research priority. The purpose of this study was to identify and compare intervention practices used in pCMS throughout the disciplines of occupational and physical therapy, speech-language pathology, and neuropsychology across geographic regions.Methods: A 55-question e-survey was created by an international multidisciplinary research group made up of members of the Posterior Fossa Society and sent to rehabilitation professionals in pediatric neuro-oncology centers in the US, Canada, and Europe.Results: Although some differences in the type of intervention used in pCMS were identified within each discipline, many of the targeted interventions including dose, frequency, and intensity were similar within disciplines across geographic regions. In addition, there were common themes identified across disciplines regarding challenges in the rehabilitation of this population.Conclusion: These results provide a foundation of current practices on which to build future intervention-based clinical trials.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"185-197"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307050/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139940127","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Opioid prescription patterns among commercially insured children with and without cerebral palsy. 患有和未患有脑瘫的商业保险儿童的阿片类药物处方模式。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-230009

Lubna Ayoubi, Jessica Pruente, Alecia K Daunter, Steven R Erickson, Daniel Whibley, Daniel G Whitney

{"title":"Opioid prescription patterns among commercially insured children with and without cerebral palsy.","authors":"Lubna Ayoubi, Jessica Pruente, Alecia K Daunter, Steven R Erickson, Daniel Whibley, Daniel G Whitney","doi":"10.3233/PRM-230009","DOIUrl":"10.3233/PRM-230009","url":null,"abstract":"Purpose: This study aimed to describe opioid prescription patterns for children with vs. without cerebral palsy (CP).Methods: This cohort study used commercial claims from 01/01/2015-12/31/2016 and included children aged 2-18 years old with and without CP. Opioid prescription patterns (proportion exposed, number of days supplied) were described. A zero-inflated generalized linear model compared the proportion exposed to opioids in the follow-up year (2016) and, among those exposed, the number of days supplied opioids between cohorts before and after adjusting for age, gender, race, U.S. region of residence, and the number of co-occurring neurological/neurodevelopmental disabilities (NDDs).Results: A higher proportion of children with (n = 1,966) vs. without (n = 1,219,399) CP were exposed to opioids (12.1% vs. 5.3%), even among the youngest age group (2-4 years: 9.6% vs. 1.8%), and had a greater number of days supplied (median [interquartile range], 8 [5-13] vs. 6 [4-9] days; P < 0.05). Comparing children with opioid exposure with vs. without CP, a greater number of days supplied was identified for older age, Asian race/ethnicity, and without co-occurring NDDs, and a lower number of days supplied was observed for Black race/ethnicity and with ≥1 co-occurring NDDs.Conclusion: Children with CP are more likely to be exposed to opioids and have a higher number of days supplied.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"47-56"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977359/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140136887","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Analysis of a model for pediatric physical therapy and clinical education via telehealth. 通过远程医疗进行儿科物理治疗和临床教育的模式分析。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220112

Courtney McKenzie, Melanie Titzer, Alyssa Hutchinson, Camaran Dodge, Andrea Fergus

{"title":"Analysis of a model for pediatric physical therapy and clinical education via telehealth.","authors":"Courtney McKenzie, Melanie Titzer, Alyssa Hutchinson, Camaran Dodge, Andrea Fergus","doi":"10.3233/PRM-220112","DOIUrl":"10.3233/PRM-220112","url":null,"abstract":"A novel entry-level collaborative clinical learning experience (CLE) in pediatric physical therapy (PT) delivered via telehealth was implemented involving 12 families, 54 DPT students, and 12 clinical instructors (CIs). Children of various ages, a wide range of home environments, and diagnoses received individualized PT via telehealth during a four-week CLE. Retrospective quantitative and qualitative analyses of student documentation, video recordings of sessions, and CI, student, and caregiver survey responses were performed. All children demonstrated qualitative improvements and 73% demonstrated quantitative improvements. CIs, students, and caregivers believed the children benefited from the experience and 98% believed the children were able to work toward their goals. Most students (95%) and CIs (100%) felt that it was a valuable and effective learning experience. Most (>71%) CIs and students believed students were able to learn in all relevant domains of the clinical performance instrument. This model provides a unique CLE for students in both pediatric PT and telehealth.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"271-288"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307064/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140059666","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

The critical need to accelerate cerebral palsy research with consumer engagement, global networks, and adaptive designs. 迫切需要通过消费者参与、全球网络和适应性设计来加快脑瘫研究。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-240014

Sruthi P Thomas, Iona Novak, Anina Ritterband-Rosenbaum, Karin Lind, Annabel Webb, Paul Gross, Maria McNamara

{"title":"The critical need to accelerate cerebral palsy research with consumer engagement, global networks, and adaptive designs.","authors":"Sruthi P Thomas, Iona Novak, Anina Ritterband-Rosenbaum, Karin Lind, Annabel Webb, Paul Gross, Maria McNamara","doi":"10.3233/PRM-240014","DOIUrl":"10.3233/PRM-240014","url":null,"abstract":"The prevalence of cerebral palsy (CP) varies globally, with higher rates and burden of disease in low- and middle-income countries. CP is a lifelong condition with no cure, presenting diverse challenges such as motor impairment, epilepsy, and mental health disorders. Research progress has been made but more is needed, especially given consumer demands for faster advancements and improvements in the scientific evidence base for interventions. This paper explores three strategies to accelerate CP research: consumer engagement, global clinical trial networks, and adaptive designs. Consumer engagement involving individuals with lived experience enhances research outcomes. Global clinical trial networks provide efficiency through larger and more diverse participant pools. Adaptive designs, unlike traditional randomized controlled trials, allow real-time modifications based on interim analyses, potentially answering complex questions more efficiently. The establishment of a CP Global Clinical Trials Network, integrating consumer engagement, global collaboration, and adaptive designs, marks a paradigm shift. The Network aims to address consumer-set research priorities. While challenges like ethical considerations and capacity building exist, the potential benefits for consumers, clinicians, researchers, and funding bodies are substantial. This paper underscores the urgency of transforming CP research methodologies for quicker translation of novel treatments into clinical practice to improve quality of life for those with CP.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":"17 1","pages":"9-17"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977364/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140326721","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Oculomotor screening and neuro-visual rehabilitation following pediatric brain tumor resection. 儿童脑肿瘤切除术后的眼动筛查和神经视觉康复。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220127

Per Ertzgaard, Per Nyman, Maria Jakobsson, Jan Johansson

{"title":"Oculomotor screening and neuro-visual rehabilitation following pediatric brain tumor resection.","authors":"Per Ertzgaard, Per Nyman, Maria Jakobsson, Jan Johansson","doi":"10.3233/PRM-220127","DOIUrl":"10.3233/PRM-220127","url":null,"abstract":"Visual difficulties are common after brain tumors, despite a lack of visual complaints at diagnosis. These include difficulties with eye movements, visual coordination, vergence, accommodation, and photophobia, in addition to more obvious problems such as visual field defects. This case report presents the results of a thorough neuro-visual evaluation in a boy with sequelae after a brain tumor including intermittent double vision that was not explained by routine visual examination. Subjective complaints included poor reading perseverance, intermittent blurred and double vision, headache around the eyes when performing near activities, less efficient eye movement behavior in reading tasks, and increased sensitivity to visual motion. The patient participated in a multidisciplinary visual rehabilitation program that included reading glasses with prism compensation and tinted glasses, as well as training with the aim of improving eye teaming, near vision functions, and perseverance in eye movements. The patient responded quickly to the vision therapy program, with positive changes after just four weeks. Repeated neuro-visual evaluations over eight months showed remarkable improvements that were stable over time. This encouraging case report supports the notion that neuro-visual evaluation and rehabilitation should be included in the follow-up of patients after brain tumors.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"253-260"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11307090/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"41148446","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Ankle proprioception in children with cerebral palsy. 脑瘫患儿的踝关节本体感觉。

IF 0.8

Journal of pediatric rehabilitation medicine Pub Date : 2024-01-01 DOI: 10.3233/PRM-220140

Elizabeth Boyer, Qiyin Huang, Stacy Ngwesse, Jennifer Nelson, Jinseok Oh, Jürgen Konczak

{"title":"Ankle proprioception in children with cerebral palsy.","authors":"Elizabeth Boyer, Qiyin Huang, Stacy Ngwesse, Jennifer Nelson, Jinseok Oh, Jürgen Konczak","doi":"10.3233/PRM-220140","DOIUrl":"10.3233/PRM-220140","url":null,"abstract":"Purpose: There is no established clinical standard to evaluate ankle proprioception in children with cerebral palsy (CP). This study compared ankle position sense of children with CP to age-matched children who are typically developing (TD).Methods: Children aged 6-17 years participated (15 CP, 58 TD). Using a custom-built device, the ankle was passively rotated to two positions for 25 trials. Using a psychophysical forced-choice paradigm, participants indicated which position was more plantarflexed. A psychometric function was fitted to the response data to determine the just noticeable difference (JND) threshold and the associated uncertainty (random error) for ankle position sense.Results: Median JND thresholds for the CP group were elevated (CP: 4.3°, TD: 3.0°). Three children with CP exceeded the 95th percentile of TD. No differences in random error were found.Conclusion: This method assessed ankle proprioception relative to norm data and identified position sense impairments in children with CP. Using this method can provide data on proprioceptive status in CP, augmenting the assessment of motor impairment.","PeriodicalId":16692,"journal":{"name":"Journal of pediatric rehabilitation medicine","volume":" ","pages":"75-83"},"PeriodicalIF":0.8,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10977350/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"138440881","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0