Research for All最新文献_第2页

Parkinson’s from inside out: emerging and unexpected benefits of a long-term partnership 由内而外的帕金森氏症:长期伙伴关系的新兴和意想不到的好处

Research for All Pub Date : 2023-01-26 DOI: 10.14324/rfa.07.1.01

Matthew Sullivan, E. Poliakoff

{"title":"Parkinson’s from inside out: emerging and unexpected benefits of a long-term partnership","authors":"Matthew Sullivan, E. Poliakoff","doi":"10.14324/rfa.07.1.01","DOIUrl":"https://doi.org/10.14324/rfa.07.1.01","url":null,"abstract":"\u0000This article is a personal reflection on a long-standing patient and public involvement (PPI) partnership between a person with Parkinson’s and a cognitive neuroscience researcher. They describe how the partnership arose, was established and evolved to produce unexpected benefits to the research and more broadly. Initially, working together helped to communicate the purpose of the research to a lay audience and to make lab-based testing sessions for people with Parkinson’s as comfortable as possible. They then worked together on the steering group for a research project about Parkinson’s and imitation, which led to co-designing interventions using imitation and imagination of movements to improve movements, including a dance class. Further benefits were realised through co-teaching undergraduate students about Parkinson’s, establishing a broader culture of PPI within the research lab and sharing their expertise of PPI more broadly. They consider key ingredients for successful collaboration, including shared curiosity, open-mindedness and trust, as well as the importance of informal discussion and space. Challenges are also considered, including authorship of research articles and anonymity. Their account demonstrates the value of the collaboration to research itself, but also the broader (often unexpected) benefits that can emerge when a collaboration has space and time to flourish.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"44 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-01-26","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114994704","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Recruiting and retaining community researchers for a historical research project 招募和留住社区研究人员进行历史研究项目

Research for All Pub Date : 2022-12-13 DOI: 10.14324/rfa.06.1.25

J. Barke, Tim Cole, Lorna W Henry, Jude Hutchen, J. McLellan

引用次数: 0

How can impact strategies be developed that better support universities to address twenty-first-century challenges? 如何制定影响战略，更好地支持大学应对21世纪的挑战?

Research for All Pub Date : 2022-11-22 DOI: 10.14324/rfa.06.1.24

M. S. Reed, S. Gent, F. Seballos, Jayne Glass, R. Hansda, M. Fischer-Møller

{"title":"How can impact strategies be developed that better support universities to address twenty-first-century challenges?","authors":"M. S. Reed, S. Gent, F. Seballos, Jayne Glass, R. Hansda, M. Fischer-Møller","doi":"10.14324/rfa.06.1.24","DOIUrl":"https://doi.org/10.14324/rfa.06.1.24","url":null,"abstract":"\u0000To better address twenty-first-century challenges, research institutions often develop and publish research impact strategies, but as a tool, impact strategies are poorly understood. This study provides the first formal analysis of impact strategies from the UK, Canada, Australia, Denmark, New Zealand and Hong Kong, China, and from independent research institutes. Two types of strategy emerged. First, ‘achieving impact’ strategies tended to be bottom-up and co-productive, with a strong emphasis on partnerships and engagement, but they were more likely to target specific beneficiaries with structured implementation plans, use boundary organisations to co-produce research and impact, and recognise impact with less reliance on extrinsic incentives. Second, ‘enabling impact’ strategies were more top-down and incentive-driven, developed to build impact capacity and culture across an institution, faculty or centre, with a strong focus on partnerships and engagement, and they invested in dedicated impact teams and academic impact roles, supported by extrinsic incentives including promotion criteria. This typology offers a new way to categorise, analyse and understand research impact strategies, alongside insights that may be used by practitioners to guide the design of future strategies, considering the limitations of top-down, incentive-driven approaches versus more bottom-up, co-productive approaches.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"79 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-11-22","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"125080348","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 2

Meaningful public engagement in the context of open science: reflections from early and mid-career academics 开放科学背景下有意义的公众参与:来自职业生涯早期和中期学者的反思

Research for All Pub Date : 2022-11-08 DOI: 10.14324/rfa.06.1.23

W. Boon, J. de Haan, Carien Duisterwinkel, L. Gould, W. Janssen, K. Jongsma, Megan Milota, M. Radstake, Saskia Stevens, M. Strick, Marij Swinkels, Marc H. W. van Mil, Erik van Sebille, N. Wanders, M. Yerkes

{"title":"Meaningful public engagement in the context of open science: reflections from early and mid-career academics","authors":"W. Boon, J. de Haan, Carien Duisterwinkel, L. Gould, W. Janssen, K. Jongsma, Megan Milota, M. Radstake, Saskia Stevens, M. Strick, Marij Swinkels, Marc H. W. van Mil, Erik van Sebille, N. Wanders, M. Yerkes","doi":"10.14324/rfa.06.1.23","DOIUrl":"https://doi.org/10.14324/rfa.06.1.23","url":null,"abstract":"\u0000How is public engagement perceived to contribute to open science? This commentary highlights common reflections on this question from interviews with 12 public engagement fellows in Utrecht University’s Open Science Programme in the Netherlands. We identify four reasons why public engagement is an essential enabler of open science. Interaction between academics and society can: (1) better align science with the needs of society; (2) secure a relationship of trust between science and society; (3) increase the quality and impact of science; and (4) support the impact of open access and FAIR data practices (data which meet principles of findability, accessibility, interoperability and reusability). To be successful and sustainable, such public engagement requires support in skills training and a form of institutionalisation in a university-wide system, but, most of all, the fellows express the importance of a formal and informal recognition and rewards system. Our findings suggest that in order to make public engagement an integral part of open science, universities should invest in institutional support, create awareness, and stimulate dialogue among staff members on how to ‘do’ good public engagement.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-11-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"126460820","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Participatory co-design of science communication strategies for public engagement in the US and Ecuador around health behaviour change 美国和厄瓜多尔公众参与卫生行为改变的科学传播战略的参与式共同设计

Research for All Pub Date : 2022-10-18 DOI: 10.14324/rfa.06.1.22

D. Vasquez-Guevara, David Weiss, Judith McIntosh White

{"title":"Participatory co-design of science communication strategies for public engagement in the US and Ecuador around health behaviour change","authors":"D. Vasquez-Guevara, David Weiss, Judith McIntosh White","doi":"10.14324/rfa.06.1.22","DOIUrl":"https://doi.org/10.14324/rfa.06.1.22","url":null,"abstract":"\u0000Science communication research and practice currently promote strategies oriented towards creating audience engagement around scientific content. Consequently, science communication needs to continually explore new methodologies that enable audiences’ participation in order to meet their interests and needs. The present study combines qualitative and participatory action research (PAR) methods guided by decolonial epistemologies to develop a co-designed project with public health, nutrition and sports science researchers to recruit young audiences from Albuquerque, New Mexico, USA, and from Cuenca, Ecuador. The main goal of this study was to create strategies to motivate young audiences’ engagement and interest in adopting healthy habits. This article focuses on the study’s research design in order to provide guidelines and procedural recommendations for facilitating a co-design approach for developing science communication initiatives targeting children and teenagers in Ecuador and the United States. As we demonstrate, the PAR approach for co-design leads to useful outcomes: (1) the incorporation of decolonial theory guidelines in participatory research; and (2) the development of science communication strategies that combine online and offline activities to put in dialogue scientists and their audiences, ultimately resulting in mutual learning, thus allowing scholars and practitioners to explore in practical terms how to co-design improved strategies.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"1 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-10-18","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"130014950","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bringing adult learning principles to university–policy engagement training involving students and policy professionals 将成人学习原则引入大学政策参与培训，包括学生和政策专业人员

Research for All Pub Date : 2022-10-11 DOI: 10.14324/rfa.06.1.21

Reuben Williamson, O. Stevenson

{"title":"Bringing adult learning principles to university–policy engagement training involving students and policy professionals","authors":"Reuben Williamson, O. Stevenson","doi":"10.14324/rfa.06.1.21","DOIUrl":"https://doi.org/10.14324/rfa.06.1.21","url":null,"abstract":"\u0000Within the knowledge exchange literature, there is growing recognition of the role that students have in contributing to knowledge exchange through university-based programmes. To add to this growing, but embryonic, knowledge base, this paper brings together reflections of policy engagement facilitators delivering an optional, online policy training course at UCL (University College London) and the University of Manchester, UK. Known as the Policy Boot Camp, it involved fifty policy professionals, from the civil service, think tanks, local government and the third sector, and three hundred students from undergraduate and master’s degree courses. We reflect on how we drew on the principles of andragogy to create our knowledge exchange programme, so that it was problem-focused, student-led, and interactive and collaborative in nature. We discuss if an intervention such as this can be a route to support more collaborative and fluid policymaking processes. Although our conclusions from this small-scale programme are tentative, we sketch out directions for future research that could contribute to evidencing the potential benefits of courses such as this.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"71 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-10-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"132988340","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Bringing research alive through stories: reflecting on research storytelling as a public engagement method 通过故事使研究生动起来:反思研究讲故事作为一种公众参与方法

Research for All Pub Date : 2022-09-20 DOI: 10.14324/rfa.06.1.20

Judith E. Krauss, Suma Mani, Jonas Cromwell, Itzel San Roman Pineda, F. Cleaver

{"title":"Bringing research alive through stories: reflecting on research storytelling as a public engagement method","authors":"Judith E. Krauss, Suma Mani, Jonas Cromwell, Itzel San Roman Pineda, F. Cleaver","doi":"10.14324/rfa.06.1.20","DOIUrl":"https://doi.org/10.14324/rfa.06.1.20","url":null,"abstract":"\u0000Stories are vital in making sense of our lives – and research. Consequently, 12 researchers from the University of Sheffield underwent a three-month training process from September to November 2019 to learn how to shape their research experiences into accessible, ten-minute, spoken stories. This culminated in a storytelling evening as part of the Economic and Social Research Council’s Festival of Social Science, at which researchers from different disciplines discussed various nature–society dynamics in diverse field sites in the Global South. By reflecting on the training process and the performance through qualitative interviews with storytellers and audience members, our study answers the research question: What lessons emerge from an interdisciplinary group of researchers engaging with research storytelling for public engagement? Our study addresses gaps in the literature by focusing on interdisciplinary research storytelling, spoken ten-minute stories, bringing together storytellers’ and audience’s viewpoints, and providing practical recommendations for researchers and practitioners. We argue that research storytelling can have diverse benefits for both researchers and listeners by promoting learning in an accessible format, boosting self-confidence and helping (un/re)learn scholarly communication. However, professional guidance and peer support, as well as ethical sensitivity, are crucial.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"9 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121958044","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 1

Tea, Technology and Me: a World Café approach to engage people with dementia and their carers about research priorities and policy development in digital technology and artificial intelligence 茶、技术和我:世界咖啡基金会让痴呆症患者及其护理人员参与数字技术和人工智能领域的研究重点和政策制定的方法

Research for All Pub Date : 2022-09-13 DOI: 10.14324/rfa.06.1.19

Amanda Bates, James A Hadlow, Christopher Farmer

{"title":"Tea, Technology and Me: a World Café approach to engage people with dementia and their carers about research priorities and policy development in digital technology and artificial intelligence","authors":"Amanda Bates, James A Hadlow, Christopher Farmer","doi":"10.14324/rfa.06.1.19","DOIUrl":"https://doi.org/10.14324/rfa.06.1.19","url":null,"abstract":"\u0000Digital technology and artificial intelligence (AI) use in health care is increasing, and it potentially offers significant patient benefit, such as independence, improved care and health care at home. Workforce benefits are apparent, for example, releasing time to see patients. However, are ethical and moral dilemmas of such technologies sufficiently unpacked by patients and understood by clinicians? A person living with dementia, and carers of people with dementia, alongside academics and clinicians, designed a public engagement World Café event for 20 people living with dementia and their carers. This process is described, as are reflections on a World Café approach to generate knowledge on a lesser explored topic. Working with a graphic recorder at the event proved a dynamic and engaging way of visually displaying feedback, served as an aide memoire and generated further discussion. Three feedback themes are highlighted: (1) trust; (2) continuity of care; and (3) support and independence. The event’s subsequent evaluation and impact, including a presentation to the House of Lords All-Party Parliamentary Group on Artificial Intelligence, are described. In conclusion, a suitable World Café approach enables people with dementia and their carers to voice exceptionally useful insights into a topic that already affects, or is very likely to, affect them.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"281 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-09-13","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115601519","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Our Health: exploring interdisciplinarity and community-based participatory research in a higher education science shop 我们的健康:在高等教育科学商店探索跨学科和基于社区的参与性研究

Research for All Pub Date : 2022-08-31 DOI: 10.14324/rfa.06.1.18

Liam Gilchrist, Alette Willis, Helen Szoor-McElhinney

{"title":"Our Health: exploring interdisciplinarity and community-based participatory research in a higher education science shop","authors":"Liam Gilchrist, Alette Willis, Helen Szoor-McElhinney","doi":"10.14324/rfa.06.1.18","DOIUrl":"https://doi.org/10.14324/rfa.06.1.18","url":null,"abstract":"\u0000This paper presents a qualitative case study of the experiences of student and community partners involved in collaborative health research in the context of an extra-curricular higher education science shop: Our Health. Our Health community partners set research questions around health and well-being, and conduct research with interdisciplinary groups of students using a community-based participatory research model. Our case study explores the benefits and challenges that this approach raises for students and community partners as they navigate the complexities of stepping beyond disciplinary boundaries and relationships to develop new research insights and methodologies. This qualitative case study draws on: grounded theory to analyse online focus groups with participating undergraduate students and community partners; semi-structured interviews with graduate students and key university staff members; and online project meetings. For the latter, we used non-participant observation to observe community members and students at work in online meetings, co-creating evolving knowledge around the lived experiences of health issues. Through these methods, we developed a deeper understanding of the relational modes of community–student collaboration in community-based participatory research. Our findings demonstrate the key role played by interdisciplinarity in the context of a community-based participatory research approach in enabling students and community partners to develop their intrapersonal skills, health research skills and knowledge integration skills, while strengthening connections between the academy and wider communities.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"35 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2022-08-31","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"114108248","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

引用次数: 0

Co-creation workshops for developing local community networks during a pandemic 共同创建讲习班，在大流行期间发展当地社区网络

Research for All Pub Date : 2022-08-02 DOI: 10.14324/rfa.06.1.17

Friederike Fröbel, C. Lange, Jeanne Mandaroux, Nora Ajavon, Anna Wirth, Victoire Tsamedi, Séti Afanou, Ousia Foli-Bebe, Gesche Joost

引用次数: 0