{"title":"Stakeholder-engaged research: a multidisciplinary historical analysis","authors":"Jah Ying Chung","doi":"10.14324/rfa.08.1.06","DOIUrl":"https://doi.org/10.14324/rfa.08.1.06","url":null,"abstract":"\u0000The involvement of stakeholders in research – from design, production and communication to use – is recognised as essential to producing impactful research. However, approaches to involving stakeholders in research vary greatly between different fields. This article conducts a multidisciplinary historical analysis of stakeholder-engaged research to offer an integrated perspective on engagement practices across disciplines. It identifies common influences, objectives, trends and challenges, proposing frameworks to support interdisciplinary analysis and understanding. The analysis identifies interconnected approaches that could benefit from mutual learning and exchange. Approaches emerging from sociopolitical movements orient around objectives of empowerment and emancipation, those responding to complexity tend to focus on producing better research that solves societal problems, while accountability-driven approaches centre on research use and impact. This article broadens the diversity of approaches and epistemologies discussed in the literature by including disciplines neglected in previous reviews. Building on the widely cited three-generations model, it proposes a configuration- and complexity-based framework for comparing stakeholder-engaged research approaches, moving beyond the chronological conception of stakeholder-engaged research development. This multidisciplinary historical analysis provides a valuable resource for scholars and practitioners to understand the range of possible approaches to stakeholder engagement, facilitating approach selection for specific use cases and contexts, as well as opportunities for interdisciplinary learning and collaboration.\u0000","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"16 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-07-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141659896","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Tina Gingell, K. Murray, Ignacio Correa-Velez, Danielle Gallegos
{"title":"A co-design exemplar: how to align with community goals when developing data collection methods with communities from refugee backgrounds","authors":"Tina Gingell, K. Murray, Ignacio Correa-Velez, Danielle Gallegos","doi":"10.14324/rfa.08.1.05","DOIUrl":"https://doi.org/10.14324/rfa.08.1.05","url":null,"abstract":"\u0000Co-design in a research context is an approach that involves participants reflecting on their lived experience of a phenomenon to tailor research outcomes to their needs. It is empowering because it provides greater equity in the research process. However, minimal literature is available on ways to encompass co-design into research planning. This article aims to provide an exemplar of co-design research by describing how data collection methods and tools were developed in a participatory action research project through collaboration with community members with a lived refugee experience in Greater Brisbane, Australia. Eight people (aged 18 to 65) were recruited using convenience and purposive sampling, with four workshops held between January and April 2022. Workshops utilised co-design methods, including journey mapping, personas, brainstorming and experiential learning to capture the lived experience of accessing food, to collaboratively co-design data collection methods and tools, and to train community members as community researchers. Co-designing data collection methods ensured that community members with no research experience could contribute towards the design of culturally appropriate data collection tools. Future research in public health should embed co-design into research/intervention planning, execution and outcomes, and align research goals with community goals by drawing on lived experience.\u0000","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"76 5","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-06-12","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141353062","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Delivering citizen science online and hybrid: impact of the Covid-19 pandemic on recruitment and engagement","authors":"Ana Margarida Sardo, Sophie Laggan","doi":"10.14324/rfa.08.1.04","DOIUrl":"https://doi.org/10.14324/rfa.08.1.04","url":null,"abstract":"\u0000This small-scale study explores the impacts of the Covid-19 pandemic on running and delivering a large-scale, international participatory citizen science project. In doing so, it seeks to identify the challenges posed by the pandemic for the research and practitioner community, as well as suggesting useful strategies, tools and helpful approaches for meeting similar challenges in the future. WeCount was a citizen science project aimed at empowering citizens to take a leading role in the production of data, evidence and knowledge around mobility in their own neighbourhoods. The project was originally designed around in-person engagement and interaction with citizens in five European case studies, but it was disrupted by the Covid-19 pandemic. In this pilot study, we conducted seven email interviews with internal project members. Data were analysed using content analysis, and five main themes emerged from the interviews: Recruitment (overall and of specific groups); Uncertainty; Logistics; Digital skills; and Blended approach. We report on the lessons learnt about online citizen recruitment and engagement to support future citizen science and other participatory research projects, not only during times of crisis, but also in deciding when it is and is not a good time to use online methods of recruitment and engagement.\u0000","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"17 2","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-05-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140969551","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Virtual Maths Circles: helping young people to think like researchers","authors":"Francesca Iezzi, B. D. Goddard, Mary O’Brien","doi":"10.14324/rfa.08.1.02","DOIUrl":"https://doi.org/10.14324/rfa.08.1.02","url":null,"abstract":"\u0000The Edinburgh Maths Circles are free sessions for families, run by staff and students from the University of Edinburgh, UK. Their main aim is encouraging children to think and behave like mathematics researchers, as they explore open-ended questions, make their own conjectures, and explain their reasoning to others. Maths Circles started in 2016 as in-person events, with an online version created in response to the outbreak of Covid-19. To spread the initiative as widely as possible across Scotland, we have been running development workshops for over four hundred teachers and educators, and we have visited local schools and libraries. The ideas and methods of Maths Circles have moved beyond our disciplinary boundaries, as other departments at the university are planning activities based on this model. In this practice case study, we illustrate the aims and philosophy of Maths Circles, the challenges we faced, and how the initiative grew over time. We describe our work with local schools/communities, and how we adapted to Covid-19 restrictions. We also share personal experiences from researchers, university students and educators who contributed to the project. We aim to encourage colleagues to adopt a similar approach in other contexts and disciplines, and we are open to cross-disciplinary collaboration.\u0000","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"29 9","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139800037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Virtual Maths Circles: helping young people to think like researchers","authors":"Francesca Iezzi, B. D. Goddard, Mary O’Brien","doi":"10.14324/rfa.08.1.02","DOIUrl":"https://doi.org/10.14324/rfa.08.1.02","url":null,"abstract":"\u0000The Edinburgh Maths Circles are free sessions for families, run by staff and students from the University of Edinburgh, UK. Their main aim is encouraging children to think and behave like mathematics researchers, as they explore open-ended questions, make their own conjectures, and explain their reasoning to others. Maths Circles started in 2016 as in-person events, with an online version created in response to the outbreak of Covid-19. To spread the initiative as widely as possible across Scotland, we have been running development workshops for over four hundred teachers and educators, and we have visited local schools and libraries. The ideas and methods of Maths Circles have moved beyond our disciplinary boundaries, as other departments at the university are planning activities based on this model. In this practice case study, we illustrate the aims and philosophy of Maths Circles, the challenges we faced, and how the initiative grew over time. We describe our work with local schools/communities, and how we adapted to Covid-19 restrictions. We also share personal experiences from researchers, university students and educators who contributed to the project. We aim to encourage colleagues to adopt a similar approach in other contexts and disciplines, and we are open to cross-disciplinary collaboration.\u0000","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"57 1","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-06","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139860056","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sigrún Eyrúnardóttir Clark, M. Kimber, Lucy Downes, G. Feder, E. Fulton, Emma Howarth, Kate Johns, Ursula Lindenberg, A. d’Oliveira, A. Shaheen, C. Vindrola‐Padros, C. Powell
{"title":"Engaging domestic abuse practitioners and survivors in a review of outcome tools – reflections on differing priorities","authors":"Sigrún Eyrúnardóttir Clark, M. Kimber, Lucy Downes, G. Feder, E. Fulton, Emma Howarth, Kate Johns, Ursula Lindenberg, A. d’Oliveira, A. Shaheen, C. Vindrola‐Padros, C. Powell","doi":"10.14324/rfa.07.1.06","DOIUrl":"https://doi.org/10.14324/rfa.07.1.06","url":null,"abstract":"\u0000\u0000Researchers often develop and decide upon the measurement tools for assessing outcomes related to domestic abuse interventions. However, it is known that clients, service providers and researchers have different ideas about the outcomes that should be measured as markers of success. Evidence from non-domestic abuse sectors indicates that engagement of service providers, clients and researchers contributes to more robust research, policy and practice. We reflect on what we have learnt from the engagement of practitioners and domestic abuse survivors in a review of domestic abuse measurement tools where there were clear differences in priorities between survivors, practitioners and researchers about the ideal measurement tools. The purpose of this reflective article is to support the improvement of future outcome measurement from domestic abuse interventions, while ensuring that domestic abuse survivors do not relive trauma because of measurement.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"75 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"116350071","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
A. Fraaije, Marjoleine G. van der Meij, A. Vermeeren, F. Kupper, J. Broerse
{"title":"Creating room for citizen perspectives in ‘smart city’ Amsterdam through interactive theatre","authors":"A. Fraaije, Marjoleine G. van der Meij, A. Vermeeren, F. Kupper, J. Broerse","doi":"10.14324/rfa.07.1.05","DOIUrl":"https://doi.org/10.14324/rfa.07.1.05","url":null,"abstract":"\u0000The ‘smart city’ vision is popular, but it lacks citizen perspectives. The aim of this study was to gain insight into whether and how art-based citizen engagement can create more room for citizen perspectives in smart cities by developing and testing an art-based citizen engagement project in Amsterdam, the Netherlands. To that end, a combination of interactive theatre, interaction design and social research methods was used to bring together diverse publics and innovation professionals for joint exploration of increased dataveillance in cities. The events were studied through observations, and through interviews with participants and organisers. Data analysis was guided by the outcomes, processes and challenges of the responsible innovation dimensions: inclusion, reflexivity, anticipation and responsiveness (Stilgoe et al., 2013). The most important achievements of art-based citizen engagement were: engaging people who would not have engaged with the topic otherwise, encouraging participants to question common phrases and assumptions, exploring future social implications of technologies, and staging meaningful interactions between citizens and professionals. The most significant challenge was to involve citizens in a way that could influence innovation trajectories.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"52 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-05-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"115177296","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
I. Marschalek, E. Unterfrauner, L. Seebacher, Margit Hofer, Katharina Handler
{"title":"Social labs as good practice for transdisciplinary engagement processes in research and innovation","authors":"I. Marschalek, E. Unterfrauner, L. Seebacher, Margit Hofer, Katharina Handler","doi":"10.14324/rfa.07.1.04","DOIUrl":"https://doi.org/10.14324/rfa.07.1.04","url":null,"abstract":"\u0000This article discusses a ‘Social Lab process’ applied in the field of research and innovation as good practice for transdisciplinary processes, and elaborates upon the structure and dynamics of these processes. It sheds light on how engagement processes could be set up for a more inclusive and participant-friendly atmosphere, allowing for meaningful and sustainable outcomes. Supported by data from a qualitative analysis of 19 Social Lab experiences according to the thematic programmes of the European Commission Horizon 2020 research framework programme, this article outlines requirements that need to be taken into account when implementing a transdisciplinary process in a Social Lab. Based on the concept of transdisciplinary research and the experience of this one-and-a-half-year process, the elements of participatory approaches required for successful implementation of a Social Lab, starting with inviting participants to develop small implementation projects (pilot activities) are described. The qualitative analysis of the process documentations highlights the importance of a clear definition of the framework and purpose of the process. Concrete assignments of the lab teams and roles, and the implementation of pilot activities, further proved crucial for successful and sustainable results. On this basis, recommendations for a fruitful participatory process are formulated.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"6 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-04-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"134058630","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Amy Lewins, T. Hughes, Emma Dalrymple, R. Shafran, P. Fonagy, H. Cross, T. Ford, I. Heyman, T. Stephenson, S. Bennett
{"title":"The benefits of continuing patient and public involvement as part of a randomised controlled trial during the Covid-19 global pandemic","authors":"Amy Lewins, T. Hughes, Emma Dalrymple, R. Shafran, P. Fonagy, H. Cross, T. Ford, I. Heyman, T. Stephenson, S. Bennett","doi":"10.14324/rfa.07.1.03","DOIUrl":"https://doi.org/10.14324/rfa.07.1.03","url":null,"abstract":"\u0000Patient and public involvement (PPI) in clinical research strengthens the quality and relevance of research, and has been crucial to ensure that researchers continue to investigate relevant and important topics during the global Covid-19 pandemic. The MICE (Mental Health Intervention for Children with Epilepsy) randomised controlled trial relies upon PPI to steer the direction and delivery of the trial, and the PPI Research Advisory Group (RAG) adapted to remote online meetings during the pandemic. This article first describes how the PPI RAG supported the research trial during the course of the pandemic, particularly with key trial stages of recruitment, retention and follow-up. It considers how the PPI tasks were adapted to ensure that they remained meaningful throughout this period, particularly for children and young people. Second, the article explores the acceptability of PPI in research using teleconferencing methods, via a co-produced survey of the PPI group members. Survey results indicated that, while participants valued face-to-face meetings, having remote PPI meetings was preferable to having nothing. There was some suggestion that teleconferencing platforms make it challenging for reserved members of the group, and for children, to contribute. Our findings emphasise the importance of continuing PPI even when circumstances are sub-optimal. We hope that our findings will contribute to the wider conversation about what makes PPI effective, particularly in a digital world.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"114 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-03-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"121957904","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
H. Howlett, M. Catterick, F. Onukwugha, Helen Roberts, J. Dyson, Lesley Smith, Charlotte, Cheyenne Karen, Lesley Smith. This
{"title":"Reflections of experts by experience and research team members on research and development about a sensitive issue that attracts stigma","authors":"H. Howlett, M. Catterick, F. Onukwugha, Helen Roberts, J. Dyson, Lesley Smith, Charlotte, Cheyenne Karen, Lesley Smith. This","doi":"10.14324/rfa.07.1.02","DOIUrl":"https://doi.org/10.14324/rfa.07.1.02","url":null,"abstract":"\u0000To reduce the number of alcohol-exposed pregnancies in antenatal care in the UK, the CHAMPION study objective was to design appropriate training and resources to develop the midwifery skills and confidence required to have an effective conversation about alcohol with pregnant women. Women with lived experience of drinking during pregnancy and ‘birth mums’ of a child with fetal alcohol spectrum disorders (FASD) were central to the co-creation process of the CHAMPION study. Some remarkable unintended positive outcomes resulted from this collaboration process for the women involved. They include increased confidence levels from newfound friendships with other mothers of children with FASD, and an acceptance that societal influences had a significant role to play in their personal situations. Reflecting on this authentic co-creation process has elicited important learning outcomes to inform future research design. The significance of excellent communication channels, robust support networks and genuinely valuing and respecting experts by experience as equal partners should not be underestimated.","PeriodicalId":165758,"journal":{"name":"Research for All","volume":"60 1","pages":"0"},"PeriodicalIF":0.0,"publicationDate":"2023-02-16","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"128555897","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}