International journal of pediatric otorhinolaryngology最新文献

{"title":"Analyzing ankyloglossia information on TikTok: A cross- sectional study","authors":"Kathryn Mozzochi ,&nbsp;Gabrielle Martin ,&nbsp;Stephen R. Chorney ,&nbsp;Lindsay Sobin","doi":"10.1016/j.ijporl.2025.112351","DOIUrl":"10.1016/j.ijporl.2025.112351","url":null,"abstract":"<div><h3>Introduction</h3><div>The American Academy of Otolaryngology-Head and Neck Surgery Foundation (AAO-HNSF) developed a clinical consensus on ankyloglossia in children to improve understanding of controversies and increase family-centered care. The breadth of information on ankyloglossia available on social media and the consistency with AAO-HNSF consensus remains underexplored.</div></div><div><h3>Methods</h3><div>A cross-sectional analysis was performed on the top 100 publicly available TikTok videos using the search term “tongue tie.” Video metrics and stakeholders were determined and were classified as informational, anecdotal, promotional, advice-seeking, or entertainment. Informational content was compared to the AAO-HNSF consensus statements on ankyloglossia.</div></div><div><h3>Results</h3><div>The mean number of views for the top videos on ankyloglossia was 1.4 million (SD: 2.6 million) with a mean of 88,009 “likes” (SD: 250,136) and 781 comments (SD: 1805). Only 2% of videos were created by otolaryngologists but dentists, lactation consultants, and other physicians were frequently represented. Videos were classified as informational (41%) or anecdotal (41%) and the most frequent stakeholder was an adult impacted by ankyloglossia (37%). The top theme explored was frenotomy experience for both written (20%) and audio (15%) information. Among informational videos, only 12.5% were completely consistent with AAO-HNSF consensus while most videos (41%) presented information that was partially consistent with consensus statements.</div></div><div><h3>Conclusions</h3><div>Ankyloglossia is frequently discussed on social media and families often engage with information shared by non-otolaryngologists. Providers should recognize where themes may be inconsistent with the published consensus on ankyloglossia and develop strategic approaches to achieve the AAO-HNSF goal of family-centered care.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112351"},"PeriodicalIF":1.2,"publicationDate":"2025-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143825603","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Early cochlear implantation in children with complex medical needs: A multidisciplinary approach","authors":"Dani Stern ,&nbsp;Laura Greaver ,&nbsp;Steven Hamilton ,&nbsp;Samantha Bothwell","doi":"10.1016/j.ijporl.2025.112352","DOIUrl":"10.1016/j.ijporl.2025.112352","url":null,"abstract":"<div><h3>Objectives</h3><div>To determine if children with hearing loss and additional medical diagnoses are achieving early cochlear implantation when compared to their peers with hearing loss as their sole diagnosis.</div></div><div><h3>Study design</h3><div>Retrospective study.</div></div><div><h3>Setting</h3><div>Pediatric outpatient clinic.</div></div><div><h3>Patients</h3><div>43 infants diagnosed with bilateral hearing loss, at least severe to profound sensorineural hearing loss (SNHL) in one ear, by three months of age and received cochlear implant(s) between 2017 and 2022.</div></div><div><h3>Main outcome measure</h3><div>Difference in cochlear implant (CI) evaluation time between patients with additional medical diagnoses and patients with hearing loss only.</div></div><div><h3>Results</h3><div>20 patients had additional diagnoses and 23 had hearing loss without other diagnoses. On average, patients with additional diagnoses had a longer CI evaluation time than patients without an additional diagnosis (13.5 months evaluation period for patients with additional diagnosis vs 12 months for patients without additional diagnosis). Appointments prior to cochlear implantation were reviewed for both groups. There was no difference in the number of appointments with the core CI team between the two groups studied. Patients with additional diagnoses had significantly more appointments with specialties outside of the core CI team prior to cochlear implantation than their peers.</div></div><div><h3>Conclusions</h3><div>Patients with additional diagnoses had a longer CI evaluation time than those with hearing loss alone. This may be attributed to the need for appointments with medical specialties outside of the core CI team. A medical diagnosis in addition to hearing loss should not preclude a child from progressing through the candidacy evaluation process. However, it may be helpful to manage expectations regarding the potential delays in cochlear implantation.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112352"},"PeriodicalIF":1.2,"publicationDate":"2025-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143843595","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Postoperative caregiver decision regret following velopharyngeal dysfunction surgery","authors":"Rohit Nallani ,&nbsp;Nathan Farrokhian ,&nbsp;Meghan Tracy ,&nbsp;Kevin J. Sykes ,&nbsp;Jill Arganbright","doi":"10.1016/j.ijporl.2025.112348","DOIUrl":"10.1016/j.ijporl.2025.112348","url":null,"abstract":"<div><h3>Background</h3><div>Decision regret (DR) is a powerful factor in medical decision-making, particularly for surgical decisions which carry multiple risks, impact quality of life (QOL), and have uncertain outcomes. While prior studies have investigated caregiver DR after tonsillectomy and otologic surgery, there is a paucity of data assessing DR following pediatric otolaryngology procedures. The aim of this study is to measure DR following velopharyngeal dysfunction (VPD) surgery.</div></div><div><h3>Methods</h3><div>A cross-sectional survey study with chart review was performed of caregivers of children who had VPD surgery performed by a single surgeon at a tertiary children's hospital. Demographic, medical, and surgical history were collected. Surveys assessed postoperative DR (scale 0–100), satisfaction with surgery (0-10), caregiver engagement in decision making, and QOL using the VPI Effects on Life Outcomes (VELO)-parent instrument (0–100).</div></div><div><h3>Results</h3><div>Of 59 caregivers who received the survey, 27 (45.8 %) completed the surveys. Caregivers felt involved in the decision for surgery (85 %). Postoperative caregiver-reported QOL (mean 81.5) and satisfaction (mean 9.4) were overall high. DR was low (mean 4.4), with 22 caregivers (78.6 %) reporting zero DR. Compared to those with no regret, those with DR &gt; 0 reported lower satisfaction (mean 9.7 vs 8.0, p = 0.002) and worse speech limitations (mean 81.2 vs 67.1, p = 0.015) or situational difficulty (mean 77.7 vs. 51.0, p &lt; 0.001) on VELO subscales.</div></div><div><h3>Conclusion</h3><div>While DR was overall low following VPD surgery, presence of DR was associated with worse speech-related QOL. Further prospective and multi-institutional study of DR is needed in pediatric otolaryngology to identify predictors of regret and understand treatment outcomes.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112348"},"PeriodicalIF":1.2,"publicationDate":"2025-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143833569","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Allergic rhinitis in children is associated with high serum levels of zonulin","authors":"Burcu Tahire Koksal ,&nbsp;Metin Aldemir ,&nbsp;Caner İncekaş","doi":"10.1016/j.ijporl.2025.112350","DOIUrl":"10.1016/j.ijporl.2025.112350","url":null,"abstract":"<div><h3>Background</h3><div>Allergic rhinitis (AR) is a common chronic disease characterised by nasal membrane inflammation. Inflammation and epithelial barrier dysfunction play significant roles in the pathogenesis of allergic diseases.</div></div><div><h3>Methods</h3><div>The study included 88 children with AR and 50 healthy controls. We measured serum zonulin and haptoglobin levels and compared the groups.</div></div><div><h3>Results</h3><div>Children with AR had a higher median value of zonulin than healthy children [(11 (4.21–35.95) vs. 8.81 (3.59–47.72) ng/mL, respectively] (p = 0.024). Median value of haptoglobin/zonulin ratio was lower in children with AR [7.91 (0.46–31.93)] compared to healthy controls [11.07 (0.77–74.37), p = 0.011)]. Serum zonulin, haptoglobin levels and the haptoglobin/zonulin ratio did not differ significantly between children with persistent and intermittent AR.</div></div><div><h3>Conclusion</h3><div>High serum zonulin levels and low haptoglobin/zonulin ratios in children show an increased association with AR. Our results may support that inflammation is increased, intestinal permeability and preventive mechanisms to decrease oxidative damage are disrupted in children with AR.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112350"},"PeriodicalIF":1.2,"publicationDate":"2025-04-11","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143825602","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Treatment of imperforate submandibular duct: A systematic literature review and case report","authors":"Abdurrahman Abdurrob ,&nbsp;Bamdad Tayyari ,&nbsp;Madeline Goosmann ,&nbsp;Ilaaf Darrat","doi":"10.1016/j.ijporl.2025.112333","DOIUrl":"10.1016/j.ijporl.2025.112333","url":null,"abstract":"<div><h3>Background</h3><div>Imperforate submandibular ducts are rare with a broad differential including lymphatic malformation, congenital ranula, and thyroglossal duct cyst. Prompt evaluation is important as treatment differs based on the diagnosis. This systematic review aimed to characterize treatments and outcomes for management of imperforate submandibular ducts while describing 2 new cases.</div></div><div><h3>Methods</h3><div>The following systematic review was performed using PubMed and EMBASE: imperforate submandibular duct or congenital atresia submandibular duct. All associated papers were also included. Demographics, birth history, symptoms, treatment, and outcomes were collected.</div></div><div><h3>Results</h3><div>Sixteen articles were included with 22 patients presenting with imperforate submandibular ducts. Most patients were male (67 %), half of them were born at term (50 %), and 15 (62 %) had unilateral imperforate ducts. Eight patients had bilateral presentation. The mean age for initial treatment was 3.5 months. Treatment varied from 11 (48 %) patients undergoing simple incision only, 3 (13 %) underwent incision and ductoplasty, 4 (17 %) underwent marsupialization and ductoplasty, 3 (13 %) underwent marsupialization only, and 2 (9 %) underwent incision and marsupialization. Mean follow-up without recurrence was 20 months. One complication was reported, restenosis after incision only. Two patients presented to our health system a month apart, one male and one female, and both with unilateral cysts. One patient underwent incision and ductoplasty with no recurrence at the 1-week postoperative visit. The second patient is pending incision and ductoplasty.</div></div><div><h3>Conclusions</h3><div>Although an exceedingly rare condition, imperforate submandibular duct cysts more often present in males, unilaterally, and can be managed via multiple methods; however, marsupialization has shown no reported recurrences.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112333"},"PeriodicalIF":1.2,"publicationDate":"2025-04-10","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143821009","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"High-risk populations for developing mastoiditis: Consequences on antibiotic treatment for acute otitis media","authors":"Ayalon Hadar ,&nbsp;Jameel Ghantous ,&nbsp;Adiel Cohen ,&nbsp;Jean-Yves Sichel ,&nbsp;Chanan Shaul ,&nbsp;Pierre Attal","doi":"10.1016/j.ijporl.2025.112347","DOIUrl":"10.1016/j.ijporl.2025.112347","url":null,"abstract":"","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112347"},"PeriodicalIF":1.2,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143824500","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The complexity of acute mastoiditis in Swedish children","authors":"Julia Arebro ,&nbsp;Rutger Bennet ,&nbsp;Margareta Eriksson ,&nbsp;Anna Granath","doi":"10.1016/j.ijporl.2025.112346","DOIUrl":"10.1016/j.ijporl.2025.112346","url":null,"abstract":"<div><h3>Objectives</h3><div>Acute mastoiditis (AM) is a rare complication to acute otitis media (AOM) in children. Population-based studies are useful for establishing adequate treatment strategies and to evaluate the effects related to the introduction of the pneumococcal conjugate vaccine (PCV) in 2007. Previous reports however report on an overdiagnosis of AM, warranting the need for validity assessment. The aim of the present study was to assess the validity of ICD-10 diagnoses of AM and to address the differential diagnoses. Further, we aimed to map the incidence of AM over time and to specifically map the cases with delayed recovery.</div></div><div><h3>Methods</h3><div>A retrospective study of all hospitalized pediatric cases in Region Stockholm, Sweden, diagnosed as mastoiditis between 2003 and 2019. Case records were manually reviewed to verify the diagnosis of AM and schematically collect data.</div></div><div><h3>Results</h3><div>Out of 275 episodes with an ICD-10 diagnosis of AM, 193 were verified and 74 (26.9 %) had other diagnoses. The incidence of AM among children 0–1 years decreased since the introduction of PCV. Thirty-one cases displayed a delayed clinical recovery, including three cases with sigmoid sinus thrombosis. Children with a differential diagnosis, displayed mostly skin infections or otitis externa, and were significantly older than children with AM.</div></div><div><h3>Conclusion</h3><div>Chart validity assessment is needed in larger retrospective studies on AM where cases are identified using ICD-10 diagnosis code. The introduction of PCV has decreased the cases of AM in children &lt;2 years.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112346"},"PeriodicalIF":1.2,"publicationDate":"2025-04-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143814847","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Feeding development in healthy infants: A comparative framework for children with Spinal Muscular Atrophy – The DySMAnorm study","authors":"Charlotte Dumitrascu ,&nbsp;Christina Pflug ,&nbsp;Jun Oh ,&nbsp;Mary Sengutta ,&nbsp;Jonas Denecke ,&nbsp;Jana Zang","doi":"10.1016/j.ijporl.2025.112345","DOIUrl":"10.1016/j.ijporl.2025.112345","url":null,"abstract":"<div><h3>Objectives</h3><div>Normative data for swallowing parameters in non-dysphagic, healthy children for instrumental and clinical diagnostics are limited. In children with SMA, where due to the degenerative nature a deterioration in swallowing function in the first months of life is possible despite disease-modifying therapy, regular monitoring is required. The DySMA (Dysphagia in Spinal Muscular Atrophy) is a tool available to assess both physiological feeding development and specific abnormalities in children with SMA. We aimed to generate normative data for the DySMA in a sample of healthy infants to facilitate comparisons with children with SMA.</div></div><div><h3>Methods</h3><div>Healthy infants and toddlers aged zero to 24 months were recruited and divided into seven age groups. Two speech-language pathologists assessed the children according to the DySMA study protocol. The data were evaluated descriptively and the inter-rater reliability was calculated.</div></div><div><h3>Results</h3><div>A total of 92 healthy children were included. The DySMA total score ranged from 21 to 35 and showed excellent inter-rater reliability (ICC = .936; 95 % CI .752 to .984). The maximum score of 35 was first reached from 16 months onwards. Categories representing physiological development showed the most significant age-dependent changes, while no age-related development was observed in categories expressing pathology.</div></div><div><h3>Conclusion</h3><div>The DySMA effectively captures physiological feeding development. A higher total score reflects more comprehensive skills in children, while a lower score indicates a reduced range of abilities. By analyzing the normative sample, this tool makes it possible to represent a deviation from the norm for children with SMA.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112345"},"PeriodicalIF":1.2,"publicationDate":"2025-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143800350","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Designing a paediatric teleotology pilot in the UK: Outcomes from a scoping review of the literature, with insights from the Ear Portal pilot service in Perth, Western Australia","authors":"Babatunde Oremule ,&nbsp;James Dempsey ,&nbsp;Tamara Veselinović ,&nbsp;Ali A.H. Altamimi ,&nbsp;Eman M.A. Alenezi ,&nbsp;Tu Trang Tran ,&nbsp;Jafri Kuthubutheen ,&nbsp;Karolina Kluk ,&nbsp;Gabrielle H. Saunders ,&nbsp;Jaya Nichani ,&nbsp;Iain A. Bruce ,&nbsp;Christopher G. Brennan-Jones","doi":"10.1016/j.ijporl.2025.112343","DOIUrl":"10.1016/j.ijporl.2025.112343","url":null,"abstract":"<div><h3>Objective</h3><div>To inform the design of a United Kingdom (UK) paediatric teleotology pilot by analysing global teleotology initiatives and drawing on insights from a successful paediatric teleotology pilot service in Perth, Western Australia (Ear Portal).</div></div><div><h3>Methods</h3><div>A scoping review (January 2014–December 2024) was conducted following PRISMA-ScR guidelines (MEDLINE, Embase) to identify paediatric teleotology service designs, outcomes, and operational frameworks. Eleven studies were included, informing core criteria for a UK pilot. Additionally, a retrospective review of Ear Portal at Perth Children's Hospital (a service for children aged 6–18 years referred with ear disease) examined qualitative data from 149 participants to explore the nature of presenting complaints.</div></div><div><h3>Results</h3><div>The scoping review identified both asynchronous and synchronous service models, reporting high user satisfaction, cost-efficiency and streamlined clinical pathways. Key criteria for a UK teleotology pilot include Ear, Nose and Throat (ENT) specialist-led triage, video-otoscopy, trained facilitators, and alignment with current National Health Service (NHS) pathways. Non-otological symptoms, such as snoring (59 %) and speech issues (50 %), were frequently reported by Ear Portal participants, reinforcing the need for efficient ENT-led triage and targeted referrals.</div></div><div><h3>Conclusions</h3><div>Global evidence and Ear Portal data demonstrate that teleotology can improve access, efficiency, and satisfaction for paediatric ear care. Successful NHS adoption depends on robust diagnostic tools, adequately trained staff, and clear evidence of its cost-effectiveness. We propose recommendations for a UK paediatric teleotology pilot, leveraging both international evidence and real-world data.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112343"},"PeriodicalIF":1.2,"publicationDate":"2025-04-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143806958","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Vascular Anomalies Patient Database Practices: American Society of Pediatric Otolaryngology Vascular Anomalies Task Force Survey","authors":"Adam Karkoutli ,&nbsp;Juliana Bonilla-Velez ,&nbsp;Tara Rosenberg ,&nbsp;Robert Chun ,&nbsp;Gresham Richter ,&nbsp;Reema Padia","doi":"10.1016/j.ijporl.2025.112344","DOIUrl":"10.1016/j.ijporl.2025.112344","url":null,"abstract":"<div><h3>Introduction</h3><div>Vascular anomalies, encompassing a wide array of developmental abnormalities in vessels, require robust data management due to their rarity and low prevalence to improve diagnosis, treatment, and research outcomes.</div></div><div><h3>Methods</h3><div>Members of the American Society of Pediatric Otolaryngology (ASPO) Vascular Anomalies Task Force (VATF) were surveyed to evaluate current practices in managing vascular anomalies databases. The survey collected information on the types of diagnoses and patient data recorded, database management roles, EMR systems in use, and interest in participating in collaborative registries.</div></div><div><h3>Results</h3><div>Out of 51 ASPO-VATF members, 13 institutions responded to the survey. Of those, 61.5 % (8/13) reported maintaining a vascular anomalies database. Among those with databases, the year of inception ranged from 2000 to 2023, with an average start year of 2010. The number of patients tracked in these databases also varied widely, with 6 institutions reporting over 200 patients, while others had fewer than 50. Most institutions tracked a wide array of vascular anomalies diagnoses, while collecting key patient identifiers and clinical details, such as surgical details and medical therapies. Interestingly, 87.5 % (7/8) of institutions with databases expressed interest in participating in a collaborative study to build a head and neck vascular anomalies registry, underscoring the potential for multi-institutional collaboration to streamline research and improve patient care.</div></div><div><h3>Conclusions</h3><div>The findings underscore the importance of institution-specific databases and cooperative efforts to address existing challenges. Overcoming barriers to database development and fostering inter-institutional collaboration are critical steps toward more effective management of these rare conditions.</div></div>","PeriodicalId":14388,"journal":{"name":"International journal of pediatric otorhinolaryngology","volume":"193 ","pages":"Article 112344"},"PeriodicalIF":1.2,"publicationDate":"2025-04-05","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143800351","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}