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The paradox of awareness of death in parenthood transition-A qualitative study. 父母身份转变过程中死亡意识的悖论--定性研究。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-06-04 DOI: 10.1080/07481187.2024.2361744
Marie Sejrsgaard, Dorte Hvidtjørn, Christina Prinds
{"title":"The paradox of awareness of death in parenthood transition-A qualitative study.","authors":"Marie Sejrsgaard, Dorte Hvidtjørn, Christina Prinds","doi":"10.1080/07481187.2024.2361744","DOIUrl":"10.1080/07481187.2024.2361744","url":null,"abstract":"<p><p>In the high-income countries of Scandinavia, there is a low statistical risk of death during childbirth. However, awareness of the possibility of death seems to have prevailed. In existential psychology and philosophy, awareness of death is a universal condition in life, and facing the anxiety this awareness might invoke has the potential of being life-invigorating. In a hermeneutic analysis of Qualitative data, generated in a study on new parents' existential meaning-making, this study aimed to explore awareness of death as experienced in parenthood transition. The results found two overarching themes: <i>Awareness of my own Finitude</i> and <i>Fragility of our loved ones</i>. These were interpreted in existential philosophical and psychological theories, and concludes that awareness of death might signify an existential integration of 'self' in the new role of parenthood. Acknowledging these thoughts as healthcare professionals could support the meaning-making of parenthood transition, by normalizing their universal nature.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"807-815"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141237521","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The first casualty of COVID-19 for patients nearing death was human dignity: Understanding the experience of palliative care patients during the COVID-19 pandemic. 对于濒临死亡的病人来说，COVID-19首先损害的是人的尊严：了解 COVID-19 大流行期间姑息关怀病人的经历。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-07-01 DOI: 10.1080/07481187.2024.2353974
Salina Pirzada, Kelsey Papineau, Lily Pankratz, Gagan Gill, Jennifer Hensel, Kristin Reynolds, James M Bolton, Tim Hiebert, Kendiss Olafson, Renée El-Gabalawy, Christian La Rivière, Maia S Kredentser, Harvey Max Chochinov
{"title":"The first casualty of COVID-19 for patients nearing death was human dignity: Understanding the experience of palliative care patients during the COVID-19 pandemic.","authors":"Salina Pirzada, Kelsey Papineau, Lily Pankratz, Gagan Gill, Jennifer Hensel, Kristin Reynolds, James M Bolton, Tim Hiebert, Kendiss Olafson, Renée El-Gabalawy, Christian La Rivière, Maia S Kredentser, Harvey Max Chochinov","doi":"10.1080/07481187.2024.2353974","DOIUrl":"10.1080/07481187.2024.2353974","url":null,"abstract":"<p><p>The COVID-19 pandemic changed the way people lived, but also the way they died. It accentuated the physical, psychological, social, and spiritual vulnerabilities of patients approaching death. This study explored the lived experience of palliative inpatients during the pandemic. We conducted interviews with 22 palliative inpatients registered in a Canadian urban palliative care program, aimed to uncover how the pandemic impacted participants' experiences of approaching end-of-life. The reflexive thematic analysis revealed 6 themes: putting off going into hospital, the influence of the pandemic on hospital experience, maintaining dignity in care, emotional impact of nearing death, making sense of end-of-life circumstances and coping with end-of-life. Findings highlight the vulnerability of patients approaching death, and how that was accentuated during the pandemic. Findings reveal how the pandemic strained, threatened, and undermined human connectedness. These lived experiences of palliative inpatients offer guidance for future pandemic planning and strategies for providing optimal palliative care.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"699-713"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141476156","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Misrepresentation: A final response to Bruce and Beuthin on Medical Assistance in Dying. 误传：对Bruce和Beuthin关于死亡医疗援助的最后回应。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2025-01-03 DOI: 10.1080/07481187.2024.2375831
Christopher Lyon
{"title":"Misrepresentation: A final response to Bruce and Beuthin on Medical Assistance in Dying.","authors":"Christopher Lyon","doi":"10.1080/07481187.2024.2375831","DOIUrl":"10.1080/07481187.2024.2375831","url":null,"abstract":"<p><p>A final comment in this four-part exchange with A Bruce and R Beuthin addresses several inaccuracies and problematic omissions in their 'Response to Lyon: Oranges, apples and polarizing polemic.' I point out that court rulings mean that it is likely some form of assisted suicide or euthanasia (Medical Assistance in Dying or MAID) remains lawful in Canada, and I argue from this view. I further suggest that scholars writing about MAID clinicians' lived experiences must be transparent about their involvement in the practice to conform to methodological and ethical standards. Finally, I stress that the intense emotional rewards obtained by providers from ending lives may be horrifying to observers and those potentially eligible for MAID, and must be open to critical scrutiny.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"517-520"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142921043","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
The Inventory of Social Expectations in Bereavement: Development and psychometric validation of a new instrument. 丧亲社会期望量表》：新工具的开发和心理测量验证。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-02-29 DOI: 10.1080/07481187.2024.2318592
Caroline Wanza, Winfried Rief, Bettina K Doering
{"title":"The Inventory of Social Expectations in Bereavement: Development and psychometric validation of a new instrument.","authors":"Caroline Wanza, Winfried Rief, Bettina K Doering","doi":"10.1080/07481187.2024.2318592","DOIUrl":"10.1080/07481187.2024.2318592","url":null,"abstract":"<p><p>Negative expectations concerning social interactions contribute to feelings of loneliness. Since loneliness is one of the most pronounced challenges for bereaved individuals, we investigated grief-specific social expectations and its association with loneliness and grief severity. Initially, we developed an Inventory of Social Expectations in Bereavement (ISEB). Its factorial and psychometric validity was then tested in a bereaved sample (<i>N</i> = 344; 28.3 ± 11.1 years; 74.4% female). A two-factor solution for the scale fit the data best (factor 1: \"relationship to others,\" factor 2: \"relationship to the deceased\") and demonstrated good psychometric validity. Higher ISEB-levels were associated with higher levels in grief severity and loneliness. The results suggest that individual social expectations affect the experience of loneliness after the loss of a significant other. The ISEB assesses these expectations time-efficiently and provides a basis for therapeutic interventions. Expressing expectations as probabilistic beliefs about the future renders them amenable for corrective experiences in clinical practice.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"238-248"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139995890","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Family members' experiences of bereavement in the emergency department: A meta-synthesis of qualitative studies. 家庭成员在急诊科的丧亲经历：定性研究的元综合。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-03-09 DOI: 10.1080/07481187.2024.2324907
Yingxin Peng, Haoming Wu, Min Zhang, Ping Huang
{"title":"Family members' experiences of bereavement in the emergency department: A meta-synthesis of qualitative studies.","authors":"Yingxin Peng, Haoming Wu, Min Zhang, Ping Huang","doi":"10.1080/07481187.2024.2324907","DOIUrl":"10.1080/07481187.2024.2324907","url":null,"abstract":"<p><p>The emergency department (ED) is one of the places where patient deaths frequently occur. Understanding family members' experiences of bereavement would help provide individualized bereavement care. We conducted a meta-synthesis to synthesize family members' experiences of bereavement in the ED and assess the impact of bereavement on their lives. We searched seven international electronic databases. Five studies were selected and critically appraised. Thematic analysis was employed. Five themes (with 13 subthemes) were derived: suffering sudden changes and are severely impacted, multiple feelings and needs of waiting, final farewell, personal and family difficulties after leaving the ED, and journey through grief. Family members endured agonizing waits to see and learn more about their family members' condition. Family members reported the need for effective follow-up resources. Findings revealed that it would be helpful if the EDs could provide sensitive and respectful care to family members.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"300-311"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140068220","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Prenatal twin-less twins: The congenital loss experience of individuals who lost a twin sibling in utero. 产前无双胞胎：在子宫内失去双胞胎兄弟姐妹的人的先天损失经历。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-02-19 DOI: 10.1080/07481187.2024.2318591
Michal Mahat-Shamir
{"title":"Prenatal twin-less twins: The congenital loss experience of individuals who lost a twin sibling in utero.","authors":"Michal Mahat-Shamir","doi":"10.1080/07481187.2024.2318591","DOIUrl":"10.1080/07481187.2024.2318591","url":null,"abstract":"<p><p>Congenital loss involves the loss of an immediate family member, specifically a parent or sibling, either during or prior to birth, and bears unique bereavement-related challenges. The current study investigated the unique congenital loss experiences of those who lost a twin sibling in utero. Through analysis of interviews with 18 Jewish Israeli participants who encountered this type of twin loss, a more comprehensive understanding of their experiences was attempted. The research employed a hybrid methodology, combining two qualitative thematic analysis methods: deductive and data-driven inductive approaches. The analysis revealed four themes: incoherency and uncertainty, ownership over a limited story, continuing an unborn bond, and the identity of a \"twin-less\" twin. The findings underscore the unique nature of twin loss in utero.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"228-237"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139899454","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Child loss and depressive symptoms among Chinese older adults: The moderating role of community care service. 失独与中国老年人的抑郁症状：社区照顾服务的调节作用
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-01-30 DOI: 10.1080/07481187.2024.2309482
Hao Song, Zhibin Li
{"title":"Child loss and depressive symptoms among Chinese older adults: The moderating role of community care service.","authors":"Hao Song, Zhibin Li","doi":"10.1080/07481187.2024.2309482","DOIUrl":"10.1080/07481187.2024.2309482","url":null,"abstract":"<p><p>Child loss is recognized as a risk factor for Chinese older adults' mental health, yet the differential impact and protective factors related to this association are not fully understood. This study examines potential differences in the effects of the deceased child's gender and only-child status, as well as the moderating role of community care service. Data is collected from a sample of 9686 Chinese older adults through the 2018 China Longitudinal Aging Social Survey. The results indicate that the loss of a son has a more significant impact on depressive symptoms among Chinese older adults than the loss of a daughter. The effect of child loss on depressive symptoms is not related to being an only child. Furthermore, community care service can buffer the negative impact of child loss on depressive symptoms. This study holds significant practical implications for enhancing the mental health of bereaved older adults.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"177-187"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139574807","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Death walks into a bar: Humor and profanity in advance care planning messages. 死亡走进酒吧预先护理计划信息中的幽默和亵渎。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-05-02 DOI: 10.1080/07481187.2024.2341873
Christian R Seiter, Zac D Johnson
{"title":"Death walks into a bar: Humor and profanity in advance care planning messages.","authors":"Christian R Seiter, Zac D Johnson","doi":"10.1080/07481187.2024.2341873","DOIUrl":"10.1080/07481187.2024.2341873","url":null,"abstract":"<p><p>Although scholars note advantages and disadvantages to using humor and profanity, influential leaders in the Death Positive Movement (DPM) use both message features to motivate end-of-life (EOL) advance care planning (ACP). Through the lens of expectancy violations theory (EVT), this study examined relationships between perceived humor, profanity in messages, trait profanity use in receivers, perceived offensiveness, perceived speaker effectiveness, and perceived message effectiveness. Participants (<i>N</i> = 604) were randomly exposed to a podcast about ACP containing clean humor, profane humor, or no humor. Results indicated that profanity and perceived humor were positively related to offensiveness, and offensiveness was negatively related to perceived speaker and message effectiveness. When perceived as non-offensive, perceived humor was positively related to perceived speaker and message effectiveness. Surprisingly, profane messages offended profane receivers more than they offended less-profane receivers. These results suggest that to be maximally effective, ACP motivators should use humor cautiously and avoid profanity.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"557-565"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140852003","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Implicit or explicit self-associations with life and death? Predicting short-term self-injurious thoughts and behaviors among adolescents. 生与死的自我联想是内隐的还是外显的？预测青少年的短期自伤想法和行为。
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2024-02-23 DOI: 10.1080/07481187.2024.2318601
N Toukhy, Y Gvion, S Barzilay, A Apter, L Haruvi-Catalan, M Lavidor, N Benaroya-Milshtein, S Fennig, S Hamdan
{"title":"Implicit or explicit self-associations with life and death? Predicting short-term self-injurious thoughts and behaviors among adolescents.","authors":"N Toukhy, Y Gvion, S Barzilay, A Apter, L Haruvi-Catalan, M Lavidor, N Benaroya-Milshtein, S Fennig, S Hamdan","doi":"10.1080/07481187.2024.2318601","DOIUrl":"10.1080/07481187.2024.2318601","url":null,"abstract":"<p><p>Implicit self-association with death, measured by the Death/Suicide-Implicit Association Test (D/S-IAT), predicts short-term Self-Injurious Thoughts and Behaviors (SITBs) among adolescents. However, comparing the predictive utility of the D/S-IAT with explicit (i.e. self-report) self-association with life and death was not examined previously. The current study sought to examine whether the D/S-IAT and explicit self-association with life and death predict current and prospective SITBs, and to examine the association between the two measures. One-hundred and thirty-one Jewish Israeli adolescents with SITBs, aged 10-18 years (74.8% female) were assessed at clinic intake. Participants completed D/S-IAT, depression, attitudes toward life and death and suicide risk assessment at intake and one-month follow-up. Implicit, rather than explicit, attitudes toward life and death predicted SITBs at one-month follow-up, beyond depression and past SITBs. The implicit and explicit measures were not significantly related at intake, indicating that they might capture different aspects of SITBs.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"249-260"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139930463","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Digital storytelling: Narrating meaning in bereavement. 数字故事：讲述丧亲之痛的意义
IF 2.1 4区 医学
Death Studies Pub Date : 2025-01-01 Epub Date: 2021-03-18 DOI: 10.1080/07481187.2021.1900452
Abigail J Rolbiecki, Karla Washington, Katina Bitsicas, Michelle Teti, Dianna Temple, Christi Lero
{"title":"Digital storytelling: Narrating meaning in bereavement.","authors":"Abigail J Rolbiecki, Karla Washington, Katina Bitsicas, Michelle Teti, Dianna Temple, Christi Lero","doi":"10.1080/07481187.2021.1900452","DOIUrl":"10.1080/07481187.2021.1900452","url":null,"abstract":"<p><p>Individuals who cannot make sense of a significant death are more likely to experience bereavement complications than those who are able to reconcile their loss with existing or newly-developed ways of understanding the world. Digital Storytelling, a multi-media narrative technique, has been identified as a potential facilitator of meaning-making processes. In this secondary qualitative analysis, researchers described the meaning-making processes evident in bereaved individuals' (<i>N</i> = 14) personally-created digital stories, identifying sense making, benefit finding, continuing bonds, shifting identity, and addressing unfinished business. Findings support prior research and enrich emerging understandings of arts-based interventions as tools to facilitate and communicate meaning-making processes.</p>","PeriodicalId":11041,"journal":{"name":"Death Studies","volume":" ","pages":"68-76"},"PeriodicalIF":2.1,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"25487685","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":4,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
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