Health Care Transitions最新文献

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Evaluating the transition of adolescents and young adults with palliative care needs from pediatric to adult care 评估有姑息关怀需求的青少年从儿科护理向成人护理的过渡情况
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100072
Emma W. Healy , Natasha Z. Piracha
{"title":"Evaluating the transition of adolescents and young adults with palliative care needs from pediatric to adult care","authors":"Emma W. Healy ,&nbsp;Natasha Z. Piracha","doi":"10.1016/j.hctj.2024.100072","DOIUrl":"10.1016/j.hctj.2024.100072","url":null,"abstract":"<div><h3>Background</h3><p>The transition from pediatric to adult healthcare poses significant challenges for adolescents and young adults (AYA), especially those with chronic conditions, yet most children receive inadequate transition preparation. Research on the transition for patients receiving palliative care services is particularly limited. We sought to address this gap in the literature.</p></div><div><h3>Methods</h3><p>Young adults aged 18 to 35 years who transitioned from the pediatric setting and received adult palliative care services at an urban academic medical center between the dates of February 1st<sub>,</sub> 2020 and July 1st, 2022 were identified retrospectively via electronic medical record. Chart review was used to investigate outcomes of interest, including use of pediatric palliative care services and timing of care conversations.</p></div><div><h3>Results</h3><p>Only 23 % of patients interfaced with pediatric palliative care, despite all having childhood diagnoses. Pediatric palliative care exposure was associated with a significantly earlier median age of first adult palliative care encounter (19.63 versus 25.06, p = &lt;0.001). Goals of care discussions, code status conversations, and healthcare proxy documentation occurred earlier if pediatric palliative care was involved (18.9 years versus 25.7 years, p &lt; 0.001; 20.9 years versus 30.0 years, p &lt; 0.001; 20.7 versus 28.9, p &lt; 0.001).</p></div><div><h3>Conclusions</h3><p>Pediatric palliative care services were underutilized in AYA patients, but when used, were associated with earlier adult palliative care encounters, goals of care discussions, code status decisions, and health care proxy identification.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100072"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000321/pdfft?md5=3220ceff60f54c5dbfb393cdaefa750a&pid=1-s2.0-S2949923224000321-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142232176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Transition services in mental health — A suitable solution for young patients? A qualitative study of the opinions of adolescent and adult psychiatrists in Portugal 心理健康过渡服务--适合年轻患者的解决方案?对葡萄牙青少年和成人精神科医生意见的定性研究
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100076
José António da Costa Salgado
{"title":"Transition services in mental health — A suitable solution for young patients? A qualitative study of the opinions of adolescent and adult psychiatrists in Portugal","authors":"José António da Costa Salgado","doi":"10.1016/j.hctj.2024.100076","DOIUrl":"10.1016/j.hctj.2024.100076","url":null,"abstract":"<div><h3>Objectives</h3><div>Transition from pediatric to adult health services is a difficult and common problem in many medical specialties, particularly in mental health, fraught with pitfalls that threaten its success and disrupt the continuity of care. However, there is a lack of research on this topic. The aim of this study was to characterize the perceptions of Portuguese physicians who are responsible for direct intervention in this process—child and adolescent psychiatrists (CAP) and adult psychiatrists (AP)—and to explore the possibilities for improvement.</div></div><div><h3>Methods</h3><div>A qualitative methodology was adopted, using thematic analysis to evaluate results, participants were selected using a convenience sampling of CAPs and APs in Lisbon area, 28 APs and 18 CAPs expressed interest in participating.</div><div>Saturation point was reached after interviewing eight CAPs and 13 APs, and the interviews were first listened to and transcribed, then NVivo software was used to facilitate coding of data.</div></div><div><h3>Results</h3><div>Many young people transition informally to adult services. Relying on the commitment of doctors, families, and patients is common in clinical discharge to general practitioners, who then make psychiatric referrals. A formal and standardized transition process was not found. Two-thirds of the respondents thought that transition services were useful, while others thought that such services were not needed and had no positive effect on the quality of care. However, all agreed that in the absence of transition protocols, informal transfers provided the best results.</div></div><div><h3>Conclusions</h3><div>All participants agreed on the importance of a seamless transition to ensure the continuity of care and that developing transition strategies to improve communication between pediatric and adult services would be beneficial. Some participants considered this issue for the first time. This suggests that the situation in Portugal is similar to that in other countries, highlighting a lack of awareness of the importance of transition process for patient outcomes.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100076"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142539152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Topical review: The role of psychologists in healthcare transition 专题回顾:心理学家在医疗转型中的作用
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100064
Shreela Palit , MaryJane S. Campbell , Jessica Pierce
{"title":"Topical review: The role of psychologists in healthcare transition","authors":"Shreela Palit ,&nbsp;MaryJane S. Campbell ,&nbsp;Jessica Pierce","doi":"10.1016/j.hctj.2024.100064","DOIUrl":"10.1016/j.hctj.2024.100064","url":null,"abstract":"<div><h3>Objective</h3><p>Adolescents and young adults (AYAs) with chronic medical conditions often face significant challenges while transitioning from pediatric to adult healthcare (healthcare transition, HCT). Although some guidelines exist on how to facilitate this process, the specific role of psychologists in promoting successful HCT is not clearly defined. In this topical review, we propose a conceptual framework integrating the role of psychology within HCT. We also provide an agenda for behavioral health researchers investigating ways to improve transition services/care for emerging adults.</p></div><div><h3>Method</h3><p>We first review existing standards of care and HCT guidelines. Using existing literature and the Got Transition model as a theoretical foundation, we developed a conceptual framework to outline the specific roles and recommendations for integrating psychologists in the HCT process, including recommendations for future research in this area.</p></div><div><h3>Results</h3><p>Limited research has systematically examined the efficacy and effectiveness of HCT services, which vary widely across institutions and populations. Further, existing HCT guidelines/recommendations largely exclude the role of psychologists during this process. There are many opportunities for psychologists to provide essential services as part of an interdisciplinary HCT team and to better understand how to improve these models of care.</p></div><div><h3>Conclusions</h3><p>Psychologists offer a unique and specialized element essential to fostering effective HCT. These professionals can take a more active role in promoting successful HCT from both clinical and research perspectives.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100064"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000242/pdfft?md5=8388ed3d3750c593af98bde0deec62a2&pid=1-s2.0-S2949923224000242-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141637878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Adolescent transition preparation around the COVID-19 pandemic: A cross-sectional study 围绕 COVID-19 大流行的青少年过渡准备:横断面研究
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100066
Sarah P. Cohen , Andrew H. Tran , Robin Alexander , Laura C. Hart
{"title":"Adolescent transition preparation around the COVID-19 pandemic: A cross-sectional study","authors":"Sarah P. Cohen ,&nbsp;Andrew H. Tran ,&nbsp;Robin Alexander ,&nbsp;Laura C. Hart","doi":"10.1016/j.hctj.2024.100066","DOIUrl":"10.1016/j.hctj.2024.100066","url":null,"abstract":"<div><h3>Objective</h3><p>To compare preparation for transition in adolescents in the United States prior to and during the COVID-19 pandemic.</p></div><div><h3>Study Design</h3><p>We used data from the 2019 and 2021 National Survey of Children’s Health to compare transition preparation before and after the COVID-19 pandemic among adolescents who had a medical care visit within the preceding year, controlled for relevant potential confounders. The association of demographic factors and survey year with a composite measure of adequate transition preparation was evaluated using univariable analysis and multivariable logistic regression.</p></div><div><h3>Results</h3><p>The difference in transition preparation was not significant when comparing 2019 to 2021 (9.25 % in 2019 vs. 8.67 % in 2021, p = .556), despite changes in potential confounders, such as worse caregiver mental or emotional health and fewer adolescents having insurance or a usual source of preventive care. Older adolescents (odds ratio for each year 1.321, 95 % confidence interval 1.196 – 1.459), females (odds ratio 1.153, 95 % confidence interval 1.02 – 1.304) were more likely to have received adequate transition preparation. Adolescents from Spanish-speaking homes were less likely than adolescents from English-speaking homes to have received adequate transition preparation (odds ratio 0.529, 95 % confidence interval 0.329 – 0.849).</p></div><div><h3>Conclusions</h3><p>The proportion of adolescents in the United States who received adequate preparation to transition to adult care did not change during the COVID-19 pandemic. However, in both years studied, only a small minority of adolescents in the United States were adequately prepared.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100066"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000266/pdfft?md5=2194eaf2e649ac18bbe9cf87110bd368&pid=1-s2.0-S2949923224000266-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141963713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care 青壮年炎症性肠病患者的医疗创伤:创伤知情护理的作用
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100044
Amy K. Bugwadia , Sydney Reed , Mara Shapiro , Sneha Dave , Nikhil Jayswal , David Kohler , Laurie Keefer
{"title":"Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care","authors":"Amy K. Bugwadia ,&nbsp;Sydney Reed ,&nbsp;Mara Shapiro ,&nbsp;Sneha Dave ,&nbsp;Nikhil Jayswal ,&nbsp;David Kohler ,&nbsp;Laurie Keefer","doi":"10.1016/j.hctj.2024.100044","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100044","url":null,"abstract":"<div><p>Medical trauma is a profound concern for those with chronic conditions like inflammatory bowel disease (IBD), especially young adults. This trauma, arising from both the disease itself and necessary medical interventions, manifests as an accumulation of traumatic experiences impacting a patient’s physical and psychological well-being. The <u>Crohn’s and Colitis Young Adults Network</u> (CCYAN) conducted a roundtable discussion involving young adult IBD patients and healthcare professionals focused on medical trauma and its implications in the treatment of young adults with IBD. This article summarizes the key insights from this discussion, including medical trauma in IBD as an accumulation of ‘micro-traumas,’ the impacts of such trauma and disruptions in care regardless of post-traumatic stress diagnosis, the role of adverse childhood experiences and trauma-informed care, practical strategies to cultivate trust during individual patient encounters, and recommendations for providing trauma-informed care within the clinical setting.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100044"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000047/pdfft?md5=fe77bfe64233cef4d7cba7204e0e06c4&pid=1-s2.0-S2949923224000047-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139653285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease 培训年轻成人,使其成为社区保健工作者,专门从事儿科向成人保健的过渡,以支持新出现的镰状细胞病成人患者
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100050
Tanisha D. Belton , Katherine Wu , Caren M. Steinway , Symme W. Trachtenberg , Trudy Tchume-Johnson , Steffi Shilly , Tahirah Austin , Samantha Luma , Kyle Smith , Kim Smith-Whitley , David Rubin , Sophia Jan
{"title":"Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease","authors":"Tanisha D. Belton ,&nbsp;Katherine Wu ,&nbsp;Caren M. Steinway ,&nbsp;Symme W. Trachtenberg ,&nbsp;Trudy Tchume-Johnson ,&nbsp;Steffi Shilly ,&nbsp;Tahirah Austin ,&nbsp;Samantha Luma ,&nbsp;Kyle Smith ,&nbsp;Kim Smith-Whitley ,&nbsp;David Rubin ,&nbsp;Sophia Jan","doi":"10.1016/j.hctj.2024.100050","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100050","url":null,"abstract":"<div><h3>Background</h3><p>Transition to adulthood is a vulnerable time for emerging adults (16–25 years of age) with sickle cell disease (SCD), as there is a seven-fold increase in mortality rates during the transition period. Emerging adults with SCD also have the highest rates of hospitalizations, emergency room visits, and hospital readmissions compared to other age groups. Community health worker (CHW) programs have been developed to address outcomes such as patient activation which includes an individual’s knowledge, skill, and confidence for managing one’s health and healthcare, quality of life, and healthcare utilization for patients with chronic illnesses. However, few programs specifically target transition-age patients with SCD.</p></div><div><h3>Methods</h3><p>The aims of this study were to (1) create and adapt the existing Penn Center for Community Health Workers IMPaCT model trainings and materials to specifically support CHWs working with transition-age patients with SCD and (2) evaluate the feasibility of this adapted model to improve job readiness of the CHWs and perceived value of the CHWs by patients with SCD. A multidisciplinary workgroup defined specific goal-setting categories and developed a targeted CHW training curriculum. Additionally, the workgroup wrote a job manual including step-by-step guidelines with example talking points and defined an ongoing supervision of CHWs. Measures of implementation and impact on CHW job readiness included CHW training completion, job retention, knowledge evaluation, and patient reported CHW engagement.</p></div><div><h3>Results</h3><p>15 individuals completed CHW training with an average employment length of 1 year and 4 months. 7 (47%) CHWs had research experience, 8 (53%) had clinical experience, and 11 (73%) reported SCD experience. On post-training knowledge evaluations, CHWs successfully identified key aspects of SCD, role scope, and research ethics. Patients frequently reported that they reached their goals while working with trained CHWs.</p></div><div><h3>Conclusion</h3><p>This CHW training program provides a novel adaptation to the evidence-based IMPaCT CHW model to support the needs of youth with SCD during the vulnerable time of transition from pediatric-focused to adulthood-focused healthcare.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100050"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000102/pdfft?md5=657033b65f5d185f5efecd32f7afca16&pid=1-s2.0-S2949923224000102-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139908101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Initial outcomes in a sickle cell disease transition clinic 镰状细胞病过渡诊所的初步成果
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100056
Katheryne Madrazo-Aguirre , Jean-Antoine Ribeil , Amy E. Sobota
{"title":"Initial outcomes in a sickle cell disease transition clinic","authors":"Katheryne Madrazo-Aguirre ,&nbsp;Jean-Antoine Ribeil ,&nbsp;Amy E. Sobota","doi":"10.1016/j.hctj.2024.100056","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100056","url":null,"abstract":"<div><h3>Background</h3><p>Transition in sickle cell disease (SCD) is associated with an alarming increase in acute care utilization, cost, and risk of early mortality. Effective transition preparation is crucial to address these issues. We established a multidisciplinary transition clinic at our urban SCD center in the fall of 2021. At each visit patients were introduced to the transition process and met with a pediatric and adult SCD provider.</p></div><div><h3>Methods</h3><p>We reviewed charts of patients attending the clinic from September 2021 to May 2023. Data were collected on the number of visits in the transition and adult SCD clinics. Clinic notes were reviewed, identifying the main topics of discussion, and examining patient attitudes and feelings towards transition.</p></div><div><h3>Results</h3><p>Twenty-two patients aged 20–27 years with 35 total visits were included in the analysis. Eighteen (82%) patients had at least 1 visit to transition clinic. Out of 10 scheduled patients, 8 attended their first adult care visit within 2.4 months of their last transition visit. Medical topics brought up by patients included difficulty remembering to take hydroxyurea, questions about reproductive and menstrual health, and support pursing higher education with a chronic disease. Patients expressed a variety of feelings about transition from “no concerns” to “nervousness” and questioning “what to expect”. Concerns were alleviated by learning about the process. One patient reported feeling “much better\" after being introduced to the adult provider.</p></div><div><h3>Conclusion</h3><p>We demonstrated that a collaborative transition clinic prepares young adults with SCD for transition to adult care. Meeting with their adult SCD provider prior to transfer helped alleviate patients’ concerns. Future work will involve tracking patients as they integrate into adult clinic.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100056"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000163/pdfft?md5=65e780273027c9fb7cf3313536187098&pid=1-s2.0-S2949923224000163-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140138669","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Framework for developing self-actualization skills in young adults with autism 培养自闭症青少年自我实现技能的框架
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2023.100038
Megumi J. Okumura , Sarah Kate Selling , Allison Uba , Susanne P. Martin-Herz , Heidi H. Seretan , Lisa Rosene , Jacy Cohen , Kathleen P. Tebb , Roberta S. Rehm
{"title":"Framework for developing self-actualization skills in young adults with autism","authors":"Megumi J. Okumura ,&nbsp;Sarah Kate Selling ,&nbsp;Allison Uba ,&nbsp;Susanne P. Martin-Herz ,&nbsp;Heidi H. Seretan ,&nbsp;Lisa Rosene ,&nbsp;Jacy Cohen ,&nbsp;Kathleen P. Tebb ,&nbsp;Roberta S. Rehm","doi":"10.1016/j.hctj.2023.100038","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100038","url":null,"abstract":"<div><h3>Purpose</h3><p>Young adults with autism spectrum disorder (YAASD) often lack the skills needed for successful adult living and subsequently develop lower quality of life and health in adulthood. Therefore, we developed a framework to support resilience and improve quality of life in YAASD, which will be used to develop a life-skills curriculum for YAASD.</p></div><div><h3>Methods</h3><p>We conducted a qualitative study of YAASD, parents of YAASD and service providers recruited from agencies that serve YAASD using Grounded Theory. We focused our interviews on supports and skills needed to enhance quality of life in adulthood.</p></div><div><h3>Results</h3><p>A total of 23 individuals were interviewed. We developed the major theoretical code; “Self-actualization skills in young adults with autism to improve quality of life”. This code recognized the neurodiversity of YAASD as well as comorbid intellectual disability and mental health needs, which often were additional barriers to achieving life goals. We identified the need for developing skills to facilitate both independence and greater insight, including self-care, self-advocacy, and social integration. YAASD struggled in developing skills to adapt to the constantly changing environment that neurotypical adults deal with daily. Factors that would facilitate development of self-actualizing skills include resources that promote creating structure in an adult world that can appear unstructured to YAASD.</p></div><div><h3>Conclusions</h3><p>Self-actualization for adults requires skills for self-care, decision making, and effective communication. Unfortunately, most programs for YAASD emphasize vocational and simple task performance. Our framework facilitates self-actualization skills to enhance health and wellness, potentially reducing barriers to living meaningfully within the community.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100038"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000387/pdfft?md5=c5be1ad0bdaf75879a9e98f3d43f9cd5&pid=1-s2.0-S2949923223000387-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139434543","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Perceived barriers transitioning to adult healthcare among adults with spina bifida 患有脊柱裂的成人在过渡到成人医疗保健时遇到的障碍
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100054
Tessa K. Kritikos , Colleen Stiles-Shields , Raynie S. Leard , Grayson N. Holmbeck
{"title":"Perceived barriers transitioning to adult healthcare among adults with spina bifida","authors":"Tessa K. Kritikos ,&nbsp;Colleen Stiles-Shields ,&nbsp;Raynie S. Leard ,&nbsp;Grayson N. Holmbeck","doi":"10.1016/j.hctj.2024.100054","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100054","url":null,"abstract":"<div><h3>Background</h3><p>This study examined perceived barriers to transitioning to adult healthcare among a sample of young adults with spina bifida (SB) and the degree to which these perceived barriers have impeded the transition process, and assessed relationships between these self-reported barriers and demographic and medical variables.</p></div><div><h3>Methods</h3><p>In a large national survey conducted in 2019, young adults with SB between the ages of 18 and 30 years old (<em>N</em> = 326) completed a questionnaire on perceived barriers to transition, which yielded scores representing the proportion of barriers experienced and the degree of interference of these barriers. Participants included both individuals who reported that they already transitioned to adult healthcare and those who did not.</p></div><div><h3>Results</h3><p>Participants endorsed a high number of barriers, with an average of 13 (<em>SD</em> = 7.39) of the 21 assessed barriers occurring for participants. Barriers were reported to be significantly interfering (<em>M</em> = 2.38, <em>SD</em> = 0.54, range: 1- 4). Higher proportions of barriers were experienced by individuals who returned to a pediatric provider after transitioning, males, employed or students, and with sacral lesion levels. Higher interference scores were reported by individuals who returned to a pediatric provider after transitioning, as well as by individuals who identified as White, and who had a shunt.</p></div><div><h3>Conclusion</h3><p>Implications for transition programs and support are discussed.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100054"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294992322400014X/pdfft?md5=3f017c9b103045940c58ce93981b9d57&pid=1-s2.0-S294992322400014X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140309212","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
引用次数: 0
Health care transition planning and outcomes: What’s next? 医疗保健过渡规划和结果:下一步是什么?
Health Care Transitions Pub Date : 2024-01-01 DOI: 10.1016/j.hctj.2024.100045
Cecily L. Betz PhD, RN, FAAN (Editor-in-Chief) , Maria E. Díaz-González de Ferris MD, MPH, PhD (Associate Editor)
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