Health Care Transitions最新文献

{"title":"Integrating vocational supports into a transition clinic: A pilot program","authors":"Elijah W. Hale ,&nbsp;Aryn Taylor ,&nbsp;Marlee Elton ,&nbsp;Melanie Honsbruch ,&nbsp;Cordelia Robinson Rosenberg ,&nbsp;Jessica Solomon Sanders","doi":"10.1016/j.hctj.2024.100048","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100048","url":null,"abstract":"<div><h3>Objective</h3><p>Pilot a clinical model and study to learn more about how employment impacts health in children and young adults with intellectual and developmental disabilities.</p></div><div><h3>Background</h3><p>As young individuals transition into adulthood, milestones such as independent living and gainful employment become paramount. However, for those with intellectual and developmental disabilities (IDD), these milestones can diverge notably from those of typically developing peers. They often confront distinct challenges, especially during shifts from pediatric to adult health care and transitioning from school to employment. Despite the positive influence of employment on quality of life, fragmented support systems create barriers to achieving this outcome. Employment is an important aspect of overall health and wellness, and more research is needed to determine how employment supports can be integrated with health care to improve certain health outcomes.</p></div><div><h3>Design</h3><p>Self-determination theory and social ecological theory highlight the need for a comprehensive approach that considers both the internal needs and motivations of the individual with IDD and the external factors that influence their transition to adulthood. Based in these theories, our intervention offers an innovative blend of vocational support within a transition services framework at a large academic hospital. Our study introduces vocational support tailored for IDD youths within three health clinics.</p></div><div><h3>Results</h3><p>Initial results demonstrate the technical and scheduling feasibility of integrating the intervention within existing healthcare services. The study has enrolled several participants, showing potential in technical, scheduling, economic, and operational domains. However, upcoming long-term data and comprehensive evaluation are required for a conclusive understanding of the intervention's impact.</p></div><div><h3>Conclusions</h3><p>The program integrates vocational support into transitioning individuals with IDD from childhood to adult health care services. This intervention has potential to improve the health outcomes and quality of life for individuals with IDD, which could drive broader interdisciplinary interventions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100048"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000084/pdfft?md5=18f34267149f0529fc924b63163e7de3&pid=1-s2.0-S2949923224000084-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139976109","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Developing a transition workshop for adolescents with sickle cell disease","authors":"James Bradley ,&nbsp;Zelyn Lee ,&nbsp;Melina Cheong","doi":"10.1016/j.hctj.2023.100040","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100040","url":null,"abstract":"<div><h3>Background</h3><p>The transfer from paediatric to adult care presents a significant challenge for adolescents and young adults (AYA) with sickle cell disease (SCD). Disease self-management skills have been recognized as important mediators of poor health outcomes, but transition-related skills such as scheduling appointments and understanding the shift in health care responsibilities remain under taught in the healthcare system. The purpose of this quality improvement (QI) study was to (1) understand the areas of disease self-management that AYA patients felt underprepared for, and (2) design and evaluate an educational program addressing the top unmet skills.</p></div><div><h3>Methods</h3><p>The Plan-Do-Study-Act (PDSA) model was implemented in a tertiary outpatient clinic between September 2020 and July 2021. Patients were surveyed during regular clinic visits to identify their priorities on disease self-management skills. Based on the results, a virtual workshop was created and administered three separate times. Feedback was collected using an electronic survey.</p></div><div><h3>Results</h3><p>‘Navigating the adult health care system’ was the top self-management skill that AYA patients (n = 39) identified needing more support with. The majority of participants (79%, n = 14) reported that the virtual workshop was excellent, with ‘appointment management’ being the most useful topic discussed. Participants also reported feeling more confident (71%) and aware (86%) of how to navigate adult care.</p></div><div><h3>Conclusion</h3><p>This QI study showed that delivering a virtual workshop on transition skills was well received by AYA participants with SCD. The PDSA framework was useful for identifying specific knowledge gaps in transition aged AYA to help improve patient education in a well-established transition program.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100040"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000405/pdfft?md5=7d465ef7d6615ab17fad2f66509cb045&pid=1-s2.0-S2949923223000405-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139434544","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Navigating the complex care landscape: Addressing challenges and advancing adult care frameworks for individuals with cerebral palsy","authors":"Jensine’ Clark ,&nbsp;Cristina Sarmiento ,&nbsp;Jessica Sanders ,&nbsp;Lauren Wang ,&nbsp;Lauren Fetsko ,&nbsp;Unoma Akamagwuna","doi":"10.1016/j.hctj.2024.100051","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100051","url":null,"abstract":"<div><p>Despite cerebral palsy (CP) being the most common motor disability in childhood, there are more adults living with CP than children. The necessitates a systematic approach to the care of adults with CP. This perspective piece presents the complex nature of a lifespan approach to the care of a childhood-onset disability. We share the multidisciplinary considerations from a primary care model to address chronic health conditions and preventive care. We also present a care model with an emphasis on Neurology and Neurodevelopmental Disability with its implications for adults with CP. Finally, we advocate for a care model that encompasses a biopsychosocial approach to treatments and interventions with essential elements that include the adult perspective.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100051"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000114/pdfft?md5=7ce7cd79b7bd9838b9f6f23ef76e2038&pid=1-s2.0-S2949923224000114-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139908121","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Health care transition experiences of young adults with medical complexity","authors":"Rhonda G. Cady ,&nbsp;Tori Bahr ,&nbsp;Carrie Au-Yeung ,&nbsp;Sera Kinoglu ,&nbsp;Megan Lutz ,&nbsp;Mark Jankowski","doi":"10.1016/j.hctj.2024.100070","DOIUrl":"10.1016/j.hctj.2024.100070","url":null,"abstract":"<div><h3>Background</h3><p>Transition from pediatric to adult healthcare and services is an important event in the life course of all youth, including youth living with medical complexity. Data from the National Survey of Children’s Health indicates less than 20 % of youth receive health care transition services. The goal of our study was understanding the support, tools and resources that facilitate successful health care transition of young adults living with medical complexity.</p></div><div><h3>Methods</h3><p>Young adults living with medical complexity and their parents shared their lived experience of ‘what worked’ and ‘what is needed’ for successful health care transition during focus group sessions. Content analysis of transcripts used an iterative and deductive approach guided by a priori themes.</p></div><div><h3>Findings</h3><p>The voices of ten young adults and fourteen parents were shared during three virtual focus group sessions. They described health care transition (HCT) as an individualized process with success relying on consistent, clearly-defined and systemwide guidelines and resources. Moving from pediatric/family-focused care to adult/patient-focused care requires increased self-management and young adults often felt under-prepared for this role. Support from formal transition coordinators would improve communication between the multiple health, county/state agency and education systems involved during the transition period.</p></div><div><h3>Conclusions</h3><p>Understanding the support, tools, and resources specifically needed by young adults with medical complexity for successful pediatric to adult health care transition is a critical first step in addressing the documented lack of transition services for this vulnerable population. This includes formal peer support programs for young adults with medical complexity and their parents.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100070"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000308/pdfft?md5=80476fcfd536a59520ef8c2ac7e06719&pid=1-s2.0-S2949923224000308-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142150001","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Evaluating the transition of adolescents and young adults with palliative care needs from pediatric to adult care","authors":"Emma W. Healy ,&nbsp;Natasha Z. Piracha","doi":"10.1016/j.hctj.2024.100072","DOIUrl":"10.1016/j.hctj.2024.100072","url":null,"abstract":"<div><h3>Background</h3><p>The transition from pediatric to adult healthcare poses significant challenges for adolescents and young adults (AYA), especially those with chronic conditions, yet most children receive inadequate transition preparation. Research on the transition for patients receiving palliative care services is particularly limited. We sought to address this gap in the literature.</p></div><div><h3>Methods</h3><p>Young adults aged 18 to 35 years who transitioned from the pediatric setting and received adult palliative care services at an urban academic medical center between the dates of February 1st_, 2020 and July 1st, 2022 were identified retrospectively via electronic medical record. Chart review was used to investigate outcomes of interest, including use of pediatric palliative care services and timing of care conversations.</p></div><div><h3>Results</h3><p>Only 23 % of patients interfaced with pediatric palliative care, despite all having childhood diagnoses. Pediatric palliative care exposure was associated with a significantly earlier median age of first adult palliative care encounter (19.63 versus 25.06, p = &lt;0.001). Goals of care discussions, code status conversations, and healthcare proxy documentation occurred earlier if pediatric palliative care was involved (18.9 years versus 25.7 years, p &lt; 0.001; 20.9 years versus 30.0 years, p &lt; 0.001; 20.7 versus 28.9, p &lt; 0.001).</p></div><div><h3>Conclusions</h3><p>Pediatric palliative care services were underutilized in AYA patients, but when used, were associated with earlier adult palliative care encounters, goals of care discussions, code status decisions, and health care proxy identification.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100072"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000321/pdfft?md5=3220ceff60f54c5dbfb393cdaefa750a&pid=1-s2.0-S2949923224000321-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142232176","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition services in mental health — A suitable solution for young patients? A qualitative study of the opinions of adolescent and adult psychiatrists in Portugal","authors":"José António da Costa Salgado","doi":"10.1016/j.hctj.2024.100076","DOIUrl":"10.1016/j.hctj.2024.100076","url":null,"abstract":"<div><h3>Objectives</h3><div>Transition from pediatric to adult health services is a difficult and common problem in many medical specialties, particularly in mental health, fraught with pitfalls that threaten its success and disrupt the continuity of care. However, there is a lack of research on this topic. The aim of this study was to characterize the perceptions of Portuguese physicians who are responsible for direct intervention in this process—child and adolescent psychiatrists (CAP) and adult psychiatrists (AP)—and to explore the possibilities for improvement.</div></div><div><h3>Methods</h3><div>A qualitative methodology was adopted, using thematic analysis to evaluate results, participants were selected using a convenience sampling of CAPs and APs in Lisbon area, 28 APs and 18 CAPs expressed interest in participating.</div><div>Saturation point was reached after interviewing eight CAPs and 13 APs, and the interviews were first listened to and transcribed, then NVivo software was used to facilitate coding of data.</div></div><div><h3>Results</h3><div>Many young people transition informally to adult services. Relying on the commitment of doctors, families, and patients is common in clinical discharge to general practitioners, who then make psychiatric referrals. A formal and standardized transition process was not found. Two-thirds of the respondents thought that transition services were useful, while others thought that such services were not needed and had no positive effect on the quality of care. However, all agreed that in the absence of transition protocols, informal transfers provided the best results.</div></div><div><h3>Conclusions</h3><div>All participants agreed on the importance of a seamless transition to ensure the continuity of care and that developing transition strategies to improve communication between pediatric and adult services would be beneficial. Some participants considered this issue for the first time. This suggests that the situation in Portugal is similar to that in other countries, highlighting a lack of awareness of the importance of transition process for patient outcomes.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100076"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142539152","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Topical review: The role of psychologists in healthcare transition","authors":"Shreela Palit ,&nbsp;MaryJane S. Campbell ,&nbsp;Jessica Pierce","doi":"10.1016/j.hctj.2024.100064","DOIUrl":"10.1016/j.hctj.2024.100064","url":null,"abstract":"<div><h3>Objective</h3><p>Adolescents and young adults (AYAs) with chronic medical conditions often face significant challenges while transitioning from pediatric to adult healthcare (healthcare transition, HCT). Although some guidelines exist on how to facilitate this process, the specific role of psychologists in promoting successful HCT is not clearly defined. In this topical review, we propose a conceptual framework integrating the role of psychology within HCT. We also provide an agenda for behavioral health researchers investigating ways to improve transition services/care for emerging adults.</p></div><div><h3>Method</h3><p>We first review existing standards of care and HCT guidelines. Using existing literature and the Got Transition model as a theoretical foundation, we developed a conceptual framework to outline the specific roles and recommendations for integrating psychologists in the HCT process, including recommendations for future research in this area.</p></div><div><h3>Results</h3><p>Limited research has systematically examined the efficacy and effectiveness of HCT services, which vary widely across institutions and populations. Further, existing HCT guidelines/recommendations largely exclude the role of psychologists during this process. There are many opportunities for psychologists to provide essential services as part of an interdisciplinary HCT team and to better understand how to improve these models of care.</p></div><div><h3>Conclusions</h3><p>Psychologists offer a unique and specialized element essential to fostering effective HCT. These professionals can take a more active role in promoting successful HCT from both clinical and research perspectives.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100064"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000242/pdfft?md5=8388ed3d3750c593af98bde0deec62a2&pid=1-s2.0-S2949923224000242-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141637878","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Adolescent transition preparation around the COVID-19 pandemic: A cross-sectional study","authors":"Sarah P. Cohen ,&nbsp;Andrew H. Tran ,&nbsp;Robin Alexander ,&nbsp;Laura C. Hart","doi":"10.1016/j.hctj.2024.100066","DOIUrl":"10.1016/j.hctj.2024.100066","url":null,"abstract":"<div><h3>Objective</h3><p>To compare preparation for transition in adolescents in the United States prior to and during the COVID-19 pandemic.</p></div><div><h3>Study Design</h3><p>We used data from the 2019 and 2021 National Survey of Children’s Health to compare transition preparation before and after the COVID-19 pandemic among adolescents who had a medical care visit within the preceding year, controlled for relevant potential confounders. The association of demographic factors and survey year with a composite measure of adequate transition preparation was evaluated using univariable analysis and multivariable logistic regression.</p></div><div><h3>Results</h3><p>The difference in transition preparation was not significant when comparing 2019 to 2021 (9.25 % in 2019 vs. 8.67 % in 2021, p = .556), despite changes in potential confounders, such as worse caregiver mental or emotional health and fewer adolescents having insurance or a usual source of preventive care. Older adolescents (odds ratio for each year 1.321, 95 % confidence interval 1.196 – 1.459), females (odds ratio 1.153, 95 % confidence interval 1.02 – 1.304) were more likely to have received adequate transition preparation. Adolescents from Spanish-speaking homes were less likely than adolescents from English-speaking homes to have received adequate transition preparation (odds ratio 0.529, 95 % confidence interval 0.329 – 0.849).</p></div><div><h3>Conclusions</h3><p>The proportion of adolescents in the United States who received adequate preparation to transition to adult care did not change during the COVID-19 pandemic. However, in both years studied, only a small minority of adolescents in the United States were adequately prepared.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100066"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000266/pdfft?md5=2194eaf2e649ac18bbe9cf87110bd368&pid=1-s2.0-S2949923224000266-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141963713","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Medical trauma in young adults with inflammatory bowel disease: The role of trauma-informed care","authors":"Amy K. Bugwadia ,&nbsp;Sydney Reed ,&nbsp;Mara Shapiro ,&nbsp;Sneha Dave ,&nbsp;Nikhil Jayswal ,&nbsp;David Kohler ,&nbsp;Laurie Keefer","doi":"10.1016/j.hctj.2024.100044","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100044","url":null,"abstract":"<div><p>Medical trauma is a profound concern for those with chronic conditions like inflammatory bowel disease (IBD), especially young adults. This trauma, arising from both the disease itself and necessary medical interventions, manifests as an accumulation of traumatic experiences impacting a patient’s physical and psychological well-being. The <u>Crohn’s and Colitis Young Adults Network</u> (CCYAN) conducted a roundtable discussion involving young adult IBD patients and healthcare professionals focused on medical trauma and its implications in the treatment of young adults with IBD. This article summarizes the key insights from this discussion, including medical trauma in IBD as an accumulation of ‘micro-traumas,’ the impacts of such trauma and disruptions in care regardless of post-traumatic stress diagnosis, the role of adverse childhood experiences and trauma-informed care, practical strategies to cultivate trust during individual patient encounters, and recommendations for providing trauma-informed care within the clinical setting.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100044"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000047/pdfft?md5=fe77bfe64233cef4d7cba7204e0e06c4&pid=1-s2.0-S2949923224000047-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139653285","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Training young adults as community health workers specializing in pediatric to adult health care transition to support emerging adults with sickle cell disease","authors":"Tanisha D. Belton ,&nbsp;Katherine Wu ,&nbsp;Caren M. Steinway ,&nbsp;Symme W. Trachtenberg ,&nbsp;Trudy Tchume-Johnson ,&nbsp;Steffi Shilly ,&nbsp;Tahirah Austin ,&nbsp;Samantha Luma ,&nbsp;Kyle Smith ,&nbsp;Kim Smith-Whitley ,&nbsp;David Rubin ,&nbsp;Sophia Jan","doi":"10.1016/j.hctj.2024.100050","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100050","url":null,"abstract":"<div><h3>Background</h3><p>Transition to adulthood is a vulnerable time for emerging adults (16–25 years of age) with sickle cell disease (SCD), as there is a seven-fold increase in mortality rates during the transition period. Emerging adults with SCD also have the highest rates of hospitalizations, emergency room visits, and hospital readmissions compared to other age groups. Community health worker (CHW) programs have been developed to address outcomes such as patient activation which includes an individual’s knowledge, skill, and confidence for managing one’s health and healthcare, quality of life, and healthcare utilization for patients with chronic illnesses. However, few programs specifically target transition-age patients with SCD.</p></div><div><h3>Methods</h3><p>The aims of this study were to (1) create and adapt the existing Penn Center for Community Health Workers IMPaCT model trainings and materials to specifically support CHWs working with transition-age patients with SCD and (2) evaluate the feasibility of this adapted model to improve job readiness of the CHWs and perceived value of the CHWs by patients with SCD. A multidisciplinary workgroup defined specific goal-setting categories and developed a targeted CHW training curriculum. Additionally, the workgroup wrote a job manual including step-by-step guidelines with example talking points and defined an ongoing supervision of CHWs. Measures of implementation and impact on CHW job readiness included CHW training completion, job retention, knowledge evaluation, and patient reported CHW engagement.</p></div><div><h3>Results</h3><p>15 individuals completed CHW training with an average employment length of 1 year and 4 months. 7 (47%) CHWs had research experience, 8 (53%) had clinical experience, and 11 (73%) reported SCD experience. On post-training knowledge evaluations, CHWs successfully identified key aspects of SCD, role scope, and research ethics. Patients frequently reported that they reached their goals while working with trained CHWs.</p></div><div><h3>Conclusion</h3><p>This CHW training program provides a novel adaptation to the evidence-based IMPaCT CHW model to support the needs of youth with SCD during the vulnerable time of transition from pediatric-focused to adulthood-focused healthcare.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100050"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000102/pdfft?md5=657033b65f5d185f5efecd32f7afca16&pid=1-s2.0-S2949923224000102-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139908101","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}