Health Care Transitions最新文献

{"title":"“Hurt and Misunderstood”: Emotional reactions to pain dismissal in emerging adults with chronic pain","authors":"Elizabeth Fenelon,&nbsp;Kayla McCracken,&nbsp;Keely Bieniak-Fortier,&nbsp;Chloe Crosby,&nbsp;Paulina Paredes Cienega,&nbsp;Susan T. Tran","doi":"10.1016/j.hctj.2025.100116","DOIUrl":"10.1016/j.hctj.2025.100116","url":null,"abstract":"<div><h3>Background</h3><div>Twelve percent of emerging adults (EAs) experience chronic pain which is associated with psychological distress and isolation. At least 40 % of EAs with chronic pain experience pain dismissal which poses a significant barrier to care and treatment. The goals of this paper were to expand our understanding of pain dismissal experiences among EAs and to extend research to the emotional and psychological impact of pain dismissal on EAs.</div></div><div><h3>Method</h3><div>EAs with chronic pain (<em>N</em> = 227) between the ages of 18–25 (<em>M</em>age = 19.58) completed online surveys of pain experiences, anxiety, and depression. Thematic analysis was conducted for three open-ended responses.</div></div><div><h3>Results</h3><div>Over 40 % of EAs with chronic pain experienced pain dismissal (43 %), with female and EAs identifying as other gender identity experiencing greater dismissal than male EAs. There were no differences across racial/ethnic identities. <em>Medical professionals</em> (46 %) and <em>caregivers/parents</em> (38 %) were most frequently reported people to have dismissed participant pain. <em>Minimizing/invalidating</em> (27 %) and <em>normalizing</em> (26 %) were the most frequent themes of what was said to dismiss one’s pain. In response to pain dismissal, EAs described feeling <em>gener</em>ic <em>negative feelings</em> (25 %) and <em>anger/annoyance</em> (21 %).</div></div><div><h3>Discussion</h3><div>Survey responses suggest that pain dismissal bothered EAs, and those who experienced pain dismissal had higher anxiety and depression, indicating a need for family/provider education on pain in EAs and validation of pain experiences in EAs. New themes around what constituted pain dismissal included <em>negative self-view</em> and <em>invalidated</em>/<em>gaslit</em>. Future research should explore the long-term effects pain dismissal has on chronic pain outcomes.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100116"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144767014","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition services in 22q11 deletion syndrome: Hit or miss","authors":"Sophie Ayoub ,&nbsp;Sandra Meier ,&nbsp;Cheryl Cytrynbaum ,&nbsp;Ann Swillen ,&nbsp;Luzius A. Steiner ,&nbsp;Holly Carbyn ,&nbsp;Bernice S. Elger ,&nbsp;Eva De Clercq","doi":"10.1016/j.hctj.2025.100120","DOIUrl":"10.1016/j.hctj.2025.100120","url":null,"abstract":"<div><h3>Introduction</h3><div>22q11 deletion syndrome (22q11DS) is a rare genetic condition and the most common microdeletion in humans. The symptomatology is broad and variable between individuals. It is usually diagnosed in childhood and requires a multidisciplinary lifelong approach including a structured transitional care process. This study therefore seeks to enrich our understanding of transitional care for individuals with 22q11DS by exploring the insights from healthcare professionals (HCPs) from Europe and Canada with multidisciplinary backgrounds.</div></div><div><h3>Methods</h3><div>This interview study was part of a larger mixed-methods research project, with the qualitative component concentrating on gathering insights from HCPs involved in patient care through semi-structured interviews. We conducted qualitative thematic analysis while focusing on transitional care within families caring for a child with 22q11DS from the perspective of HCPs.</div></div><div><h3>Results</h3><div>The 20 HCPs interviewed came from diverse professional backgrounds and all had clinical experience with 22q11DS. Our analysis of the data identified three primary themes. Our participants emphasized the inadequacy of the transitional care system, despite its critical importance. HCPs tried their best to overcome the challenges by relying on longer follow-up with their patients, with some even merging children and adult services. There was a shared desire among HCPs for a structured transitional care plan, better access to adult services for 22q11DS, and a more integrated, collaborative approach.</div></div><div><h3>Conclusion</h3><div>This study highlights the inadequacy of transitional care for individuals with 22q11DS and their families, showing a need to better align policies and clinical practice. Filling the gap between existing policies and the desired transitional care services is essential. The latter includes: an appropriate longitudinal transition plan, strong psychological support not only for the individual with 22q11DS but also for their family, a coordination system, and accessible adult services with expertise on 22q11DS.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100120"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145095359","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“When you’re in the office, it means you managed to get somewhere”: An interpretive descriptive study of the perceptions of adolescents accessing primary care for mental health services","authors":"Lisa De Panfilis RN, MSc ,&nbsp;Rebecca Ganann RN, MSc, PhD ,&nbsp;Gillian Mulvale MA, PhD ,&nbsp;Naomi Thulien NP-PHC PhD ,&nbsp;Ruta Valaitis MA, PhD","doi":"10.1016/j.hctj.2024.100093","DOIUrl":"10.1016/j.hctj.2024.100093","url":null,"abstract":"<div><h3>Objective</h3><div>Primary care offers an entry point into the health care system for adolescents experiencing mental illnesses. This study explored the perceptions of adolescents with an anxiety or mood disorder accessing primary care for mental health services.</div></div><div><h3>Methods</h3><div>Qualitative interpretive descriptive design was employed. Participants ages 15–18 years (n = 10) were recruited from a mid-sized city in Canada utilizing flyers and social media advertisements. Data were collected between August and December 2019. Data generation methods included photo-elicitation, demographic survey, and semi-structured interviews. Analysis was guided by a health care access framework and ecological model.</div></div><div><h3>Results</h3><div>Adolescents perceived the process of accessing primary care for mental health services as complex and beginning prior to entering the primary care environment; a novel conceptual framework was developed to depict the process. Adolescents described three stages in this process: feeling uncertain about their concerns and requiring help; seeking informal support from parents and friends to initiate help-seeking; and receiving mental health services through primary care.</div></div><div><h3>Discussion</h3><div>A novel conceptual framework to depict the process of access for adolescents is proposed. Primary care practitioners require awareness of the access process adolescents conceptualize prior to deciding to seek help in primary care, as well as the need to foster their emerging adulthood in care. Targeted interventions to enable early intervention include providing information about mental health services available during routine interactions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100093"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11772970/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bibliometric analysis of transition readiness in adolescents with chronic diseases","authors":"Yao Zhang ,&nbsp;Xuewei Chen ,&nbsp;Yi Qi,&nbsp;Yiwen Hu,&nbsp;Ziling Xie,&nbsp;Chaoqun Dong","doi":"10.1016/j.hctj.2025.100105","DOIUrl":"10.1016/j.hctj.2025.100105","url":null,"abstract":"<div><h3>Objective</h3><div>This study aims to explore current hot topics and research trends in transition readiness for adolescents with chronic diseases using a bibliometric methodology.</div></div><div><h3>Methods</h3><div>The Web of Science database core collection was searched for literature related to transition readiness in adolescents with chronic diseases published from January 1, 2000, to December 31, 2024. CiteSpace and VOSviewer were adopted to analyze the publication characteristics.</div></div><div><h3>Results</h3><div>The results showed that, the number of studies on transition readiness is increasing in a wave-like pattern. The hot topics about the transition readiness of adolescents with chronic diseases can be summarized as follows: adolescents with sickle cell disease, epilepsy, crohn's disease, transplantation and neurogastroenterology-related diseases, the validation of The Self-Management and Transition to Adult Treatment Questionnaire, the crucial role of parents, care coordination, vocational readiness, quality of life, and health literacy. Based on the burst keywords, transition readiness-related influencing factors, comprehensively exploring the transition readiness of adolescents with chronic diseases, identifying specific intervention goals, and systematically constructing intervention programs may be future research trends.</div></div><div><h3>Conclusions</h3><div>This study systematically reviews the current state of research on transition readiness for adolescents with chronic diseases and analyzes potential future trends that can provide input into the direction of healthcare transition research.</div></div><div><h3>Practical implications</h3><div>By highlighting hot topics and trends in the field, this research contributes to raising awareness among healthcare professionals and researchers of areas in need of further attention, and helps them to identify potential gaps and opportunities in their own clinical practice or research efforts.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100105"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144098589","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Effects of mental health on transition readiness in primary care","authors":"Jennifer L. Woods ,&nbsp;Courtney E. Batt ,&nbsp;Catherine Clark ,&nbsp;Amanda R. Bogart ,&nbsp;Jeanelle L. Sheeder","doi":"10.1016/j.hctj.2025.100119","DOIUrl":"10.1016/j.hctj.2025.100119","url":null,"abstract":"<div><h3>Background</h3><div>Adolescents and young adults often lack appropriate healthcare transition preparation, a concern amplified by prevalent mental health issues. Our study aimed to assess the relationship between transition readiness and behavioral health screening across multiple domains in adolescents within a primary care medical home.</div></div><div><h3>Methods</h3><div>We conducted a retrospective cohort study (October 2021-December 2024) for new, preventive and follow-up visits where patients (ages 14–25 years) completed validated depression, transition readiness screening, Transition Readiness Assessment Questionnaire (TRAQ) and the Patient Questionnaire-9 (PHQ-9). Nonparametric median tests for continuous variables and chi-squared tests for categorical variables assessed for differences for patient age, race/ethnicity, legal sex, and insurance type. Linear and linear logistic regression was also performed.</div></div><div><h3>Results</h3><div>Patients (median 17.0 years; 62.8 % female; Hispanic 44.9 %; public insurance 62.2 %) completed the TRAQ and PHQ-9 for 3010 visits. Patients with PHQ-9 &gt; 10 were more likely to be female, non-Hispanic White at follow up visits with private insurance; p &lt; 0.001. There was no significant relationship between PHQ-9 and TRAQ scores. Linear regression showed significance for age at visit, legal sex (female), non-Hispanic White, visit type (follow up); p &lt; 0.001 and English language (p = 0.017); logistic regression showed significance for age at visit, legal sex (female), non-Hispanic white, follow up visits (p &lt; 0.001)</div></div><div><h3>Conclusions</h3><div>Age, legal sex, race/ethnicity, and insurance status significantly influence transition readiness among AYA. While positive depression screens do not show a direct association with transition readiness, depression may still affect health factors that indirectly shape readiness for transition.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100119"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144925727","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Caregiver-child discrepancy in healthcare transition readiness and its associations","authors":"Yunzhen Huang ,&nbsp;Eugene Maung ,&nbsp;Stephen R. Hooper ,&nbsp;Chad Coltrane ,&nbsp;Maria Díaz-González de Ferris","doi":"10.1016/j.hctj.2025.100113","DOIUrl":"10.1016/j.hctj.2025.100113","url":null,"abstract":"<div><h3>Purpose</h3><div>To explore caregiver-child discrepancy in healthcare transition (HCT) readiness and its association with demographic variables, anxiety, and health services utilization in children and adolescents with chronic health conditions.</div></div><div><h3>Methods</h3><div>This cross-sectional study surveyed 214 caregiver-child dyads recruited from a therapeutic camp in the Southeastern United States. Children and adolescents aged 7–17 years and their caregivers completed the STAR_x Questionnaire to assess HCT readiness. Additionally, children rated their anxiety using the PROMIS-Anxiety scale, and caregivers reported their child’s past-year health services utilization. Paired <em>t</em>-tests were used to examine the caregiver-child discrepancies in HCT readiness. Correlation analyses and linear regression were used to explore factors associated with caregiver-child discrepancies in HCT readiness.</div></div><div><h3>Results</h3><div>No statistically significant discrepancies were identified at the full-scale and subscale levels of the STAR_x Questionnaire. However, single-item level analysis showed caregiver-child discrepancies in their perception of the child’s medication adherence and disease knowledge. Caregivers generally rated children’s HCT readiness higher than children did themselves, particularly in younger children and those diagnosed at a younger age. Higher caregiver ratings were correlated with greater child anxiety.</div></div><div><h3>Conclusion</h3><div>This study revealed gaps in caregiver-child perceptions of the child’s HCT readiness. Addressing these gaps through collaborative communication, shared decision-making, and targeted interventions may improve the HCT process and outcomes. Additionally, this study showed that greater caregiver ratings were linked to younger age, younger age at diagnoses, and elevated child anxiety, calling for early, effective interventions for transition planning to mitigate differences in caregiver-child ratings and facilitate HCT.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100113"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"A statewide initiative to improve healthcare transition from pediatric to adult care for individuals with neurodevelopmental disabilities: Lessons learned from engaging stakeholders","authors":"Susan Shanske ,&nbsp;Lindsay MacAuley ,&nbsp;Jamara Possemato ,&nbsp;Lindsay Hunt ,&nbsp;Tuba Rashid Khan ,&nbsp;Sarah Spence","doi":"10.1016/j.hctj.2025.100115","DOIUrl":"10.1016/j.hctj.2025.100115","url":null,"abstract":"<div><h3>Background</h3><div>Transition from pediatric to adult healthcare is challenging for patients with Neurodevelopmental Disabilities (NDD). Patients, families, and providers endure systemic barriers. Our objective was convening stakeholders in Massachusetts to identify specific challenges and target solutions for improvement.</div></div><div><h3>Methods</h3><div>This initiative involved a multistep stakeholder engagement process to improve healthcare transition for individuals with NDD. A steering committee (28 participants) and four task forces (72 participants overall) focused on major improvement themes (e.g., workforce development, practice infrastructure, clinical care, and financing). These groups included multidisciplinary providers, payers, advocacy organizations, state agencies and family partners and met routinely over 18-months to identify barriers and solutions, creating resources to share with key stakeholders. A statewide summit was convened to disseminate results (n = 256 participants). Quality improvement approaches guided initiative efforts and evaluation. Evaluation included interviews with adult providers caring for young adults with NDD, surveys of family members on their satisfaction with the transition process, and surveys of steering committee/taskforce members on their satisfaction with the process and recommendations for future change.</div></div><div><h3>Results</h3><div>During the 18-month period, the steering committee and taskforce participants created resources and developed and refined a driver diagram that built a foundation for future improvement work. Provider interviews described a lack of adult providers with NDD expertise as a barrier, while availability of care coordination and ability to accommodation patient/family needs were key facilitators. Family surveys indicated low confidence for successful transition prior to transfer to adult providers, but high satisfaction with process once transfer had occurred. Summit participants reported better understanding of healthcare transition needs of the NDD population and an ability to set related goals. When asked to identify change ideas generated at the summit, participants contributed over 100 suggestions, ranging from clinic-level interventions to system-level improvements, reflecting enthusiasm for this work. The majority reported feeling satisfied with the initiative’s process and that it was a good use of time.</div></div><div><h3>Conclusion</h3><div>This model succeeded in building relationships, developing resources collaboratively and identifying goals and improvements to address healthcare transition for those with NDD. This initiative could serve as a roadmap for convening successful transition improvement efforts.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100115"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144780457","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Reframing healthcare transition: Systems, relationships, and independence in adolescent-to-adult care","authors":"Caroline Walsh ,&nbsp;Sydney Reed ,&nbsp;Sneha Dave ,&nbsp;Susan Shanske ,&nbsp;Katherine Melton","doi":"10.1016/j.hctj.2025.100122","DOIUrl":"10.1016/j.hctj.2025.100122","url":null,"abstract":"&lt;div&gt;&lt;div&gt;This article summarizes the findings from a roundtable convening led by the organization Generation Patient between patients, healthcare providers, and researchers on the transition from pediatric to adult care, identifying barriers at both within the clinic and broader system levels, including the need for improved self advocacy skills, tailored care approaches for patients with complex care needs, and systemic supports such as transition navigators and social workers. Recommendations include enhancing patient independence during pediatric care, adopting a multidisciplinary team approach, and implementing long-term system reforms such as improved adult provider training and Medicaid policy changes. These insights present a call to action for healthcare stakeholders to share responsibility and take a more active role to ensure patients with chronic conditions receive the appropriate care after they transition from pediatrics.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Introduction&lt;/h3&gt;&lt;div&gt;Transition from pediatric to adult care remains a significant challenge for adolescents and young adults (AYAs) with chronic conditions. Insufficient preparation and support during this period can lead to increased morbidity and gaps in care. Existing systems often place the burden of transition on patients and families, resulting in unmet needs for self-advocacy skill development, tailored care approaches for diverse populations, and system-level supports.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Methods&lt;/h3&gt;&lt;div&gt;A roundtable was convened by the young-adult-led advocacy organization Generation Patient, involving 9 healthcare professionals (physicians, nurses, social workers, researchers, transition specialists) and 11 young adult patients from across the United States. Discussions were structured to elicit experiences and recommendations regarding barriers and solutions for healthcare transition. Qualitative analysis of the proceedings identified key themes and consensus recommendations.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Results&lt;/h3&gt;&lt;div&gt;Participants highlighted that current transition processes are abrupt and emotionally taxing for AYAs, especially those with complex or rare conditions and neurodevelopmental differences. Barriers included limited preparation for patient independence, lack of individualized care models, insufficient system supports, and challenges with insurance and provider handoffs. Recommendations focused on early promotion of independence within pediatric care, personalized approaches for patients with varied needs, integration of transition navigators and case managers, and upstream reforms such as Medicaid policy changes and enhanced adult provider training.&lt;/div&gt;&lt;/div&gt;&lt;div&gt;&lt;h3&gt;Conclusion&lt;/h3&gt;&lt;div&gt;A successful transition from pediatric to adult care requires moving beyond solely individual patient solutions toward system-wide, collaborative responsibility. Engaging multidisciplinary teams, supporting patient autonomy, and implementing policy reforms are essential steps to ensure conti","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100122"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"145265088","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of life in young adults with type 1 diabetes","authors":"Marissa N. Baudino PhD ,&nbsp;Samantha A. Carreon PhD ,&nbsp;Randi Streisand PhD ,&nbsp;Tricia Tang PhD ,&nbsp;Sarah Lyons MD ,&nbsp;Siripoom McKay MD ,&nbsp;Barbara J. Anderson PhD ,&nbsp;Charles G. Minard PhD ,&nbsp;Sridevi Devaraj PhD, DABCC ,&nbsp;Ashley M. Butler PhD ,&nbsp;Marisa E. Hilliard PhD","doi":"10.1016/j.hctj.2025.100101","DOIUrl":"10.1016/j.hctj.2025.100101","url":null,"abstract":"<div><h3>Introduction</h3><div>Challenges of young adulthood with type 1 diabetes (T1D) include transitioning to adult care, increased T1D self-management responsibilities, and normal developmental transitions. Recognizing patterns of health-related quality of life (HRQOL) across a demographically and clinically broad range of young adults with T1D may help identify who needs additional support as they transfer to adult healthcare. We hypothesized that young adults from specific demographic and clinical groups would report lower HRQOL.</div></div><div><h3>Methods</h3><div>At baseline of a behavioral RCT (≤2 months after last pediatric T1D clinic visit), 100 young adults (M_age=19.9 ± 1.3, M_A1c=8.8 ± 2.0 %) self-reported demographics and HRQOL; A1c was analyzed via point of care or dried blood spot. ANOVAs and t-tests were used to compare HRQOL by demographic (gender, race/ethnicity, insurance, school enrollment) and clinical variables (device use, A1c).</div></div><div><h3>Results</h3><div>Diabetes-specific HRQOL differed significantly by gender and school enrollment; females and young adults enrolled in school reported higher HRQOL. There were no significant differences in HRQOL across race/ethnicity, insurance type, and diabetes technology use.</div></div><div><h3>Conclusion</h3><div>Monitoring HRQOL may be helpful to identify diabetes-specific psychosocial needs during the transition from pediatric to adult healthcare. Patterns suggest males and those not in school may benefit from additional support.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100101"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143734914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Mobile asthma apps for emerging adults transitioning to college: A scoping review","authors":"V. Ann Andreoni ,&nbsp;Margaret C. Delaney ,&nbsp;Susan McNamee ,&nbsp;Elizabeth Huggins ,&nbsp;Barbara Velsor-Friedrich","doi":"10.1016/j.hctj.2025.100112","DOIUrl":"10.1016/j.hctj.2025.100112","url":null,"abstract":"<div><h3>Background</h3><div>Limited data exists to direct evidence-based asthma self-care for emerging adults as they transition from pediatric to adult health care. This transition often occurs in the college setting, apart from usual parental and health care support systems. Given the chronic, episodic nature of asthma, it is imperative that emerging adults have essential tools to maintain disease control.</div></div><div><h3>Objective</h3><div>A scoping review was conducted to discover if mobile applications (apps) for asthma self-care and management exist for college students between 17 and 25 years of age.</div></div><div><h3>Results</h3><div>Research studies (n = 456) from peer-reviewed journals published between 2015 and 2023 were analyzed. As the search revealed no published articles that met the inclusion criteria for age and educational status, the criteria were revised to eliminate the requirement for college enrollment. Six published articles evaluating 3 separate asthma apps with similar age ranges were identified but without the same educational transition needs.</div></div><div><h3>Discussion</h3><div>The studies reviewed suggested that app use had a positive effect on participants, including ease of information access and improved disease knowledge, symptom control, and/or symptom self-management. Limitations included small sample sizes, participant age variability, and lack of studies on needs specific to emerging adults. Small sample sizes, potential bias due to self-report variability, and inherent bias in cell phone availability in disadvantaged populations limit generalizability.</div></div><div><h3>Conclusion</h3><div>Mobile asthma apps can facilitate transitional care in the emerging adult population. Although this scoping review suggests improved health outcomes with app use, there remains a need for future research on emerging adults with asthma transitioning to college.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100112"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144653844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}