Health Care Transitions最新文献

{"title":"Health Care Transition Planning and Outcomes: What’s Next?","authors":"C. Betz, M. E. Díaz-González de Ferris","doi":"10.1016/j.hctj.2024.100045","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100045","url":null,"abstract":"","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"71 10","pages":""},"PeriodicalIF":0.0,"publicationDate":"2024-02-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139888199","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"An exploration of anxiety and depressive symptoms among sexual and gender minority young adults visiting a drop-in center for youth experiencing homelessness","authors":"Lourence Misedah-Robinson ,&nbsp;Laura Witte ,&nbsp;Elizabeth Henneke ,&nbsp;MaDonna Land ,&nbsp;Vanessa Schick","doi":"10.1016/j.hctj.2024.100055","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100055","url":null,"abstract":"<div><h3>Background</h3><p>Research suggests that marginalized young adults, particularly sexual and gender minorities (SGM), face distinctive healthcare transition challenges. SGM often navigate a complex intersection of identities, experiences, and stressors that can contribute to mental health disparities. However, they often lack access to appropriate support and resources tailored to their needs, which can result in increased psychological distress. Drop-in centers are effective mental health interventions for marginalized communities. Therefore, we conducted a study to explore the healthcare access experiences and mental health outcomes of young adult SGM compared to their non-SGM counterparts.</p></div><div><h3>Methods</h3><p>We surveyed 151 young adults aged 18–25 who visited two drop-in centers for young adults experiencing homelessness in Houston, Texas, between October and November 2018. Depressive and anxiety symptoms were assessed using Patient Health Questionnaire- 4 (PHQ-4.ther variables included demographics, prior mental health diagnosis, and experiences of homelessness and involvement in justice.</p></div><div><h3>Results</h3><p>Transgender and gender-diverse individuals had higher proportions of anxiety symptoms than their cisgender counterparts, while gay and lesbian individuals were more likely to experience depressive symptoms. In general, SGM individuals were three times more likely to report a previous anxiety diagnosis and four times more likely to report a previous depression diagnosis than their non-SGM counterparts. However, we did not find a significant association between having anxiety or depressive symptoms with seeking healthcare, experiences of homelessness, and justice involvement.</p></div><div><h3>Conclusion</h3><p>The findings suggest that drop-in centers can provide targeted care for SGM youth with intersecting needs, thus improving their mental health outcomes. Nevertheless, more research is needed to understand further and inform more targeted and effective evidence-based interventions that support SGM young adults across the trajectory of experiences, changing needs, and care coordination over time during this critical and vulnerable transition to adulthood.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100055"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000151/pdfft?md5=2287a7849f2c88840b19e74ca0f4d2ee&pid=1-s2.0-S2949923224000151-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"140122177","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Wellbeing measurement among adults with Charcot-Marie-Tooth disease","authors":"Payton D. Rule,&nbsp;Megan W. Wolk,&nbsp;Patrick L. Hill","doi":"10.1016/j.hctj.2024.100053","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100053","url":null,"abstract":"<div><h3>Background and aims</h3><p>Wellbeing research among individuals with Charcot-Marie-Tooth disease (CMT) is limited. The goal of the current study is to characterize the challenges experienced by adults with CMT that researchers may miss by utilizing typical strategies to capture mental health and wellbeing.</p></div><div><h3>Methods</h3><p>In 2021, we recruited 288 US adults with CMT (<span><math><msub><mrow><mi>M</mi></mrow><mrow><mi>Age</mi></mrow></msub></math></span> = 60 years, 59% Female, 93% White) to take part in an online survey. Participants were presented with validated wellbeing and health measures, in addition to newly created measures specific to CMT, and then asked to provide free-response feedback about aspects of their lived experiences missing from these measures. Thematic analysis were applied to the free-response data to identify CMT-related difficulties that may impact wellbeing among adults with CMT.</p></div><div><h3>Results</h3><p>Results identified nine CMT-related challenges that are important to individuals with CMT and are often left out of wellbeing assessments in this population. The three most common themes identified were anxiety or worry, coping with loss of function or progression, and difficulty finding knowledgeable medical providers. Further, some aspects of the CMT experience may be comorbid.</p></div><div><h3>Interpretation</h3><p>These results can be used to inform future research and clinical practice in the CMT population.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100053"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000138/pdfft?md5=3dc8405b9d0a5a75c9eb7d0f91f22e81&pid=1-s2.0-S2949923224000138-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139986520","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"What skills do adolescents and young adults desire as they prepare for adult health care?","authors":"Megan Patton ,&nbsp;Daniella San Martin-Feeney ,&nbsp;Brooke Allemang ,&nbsp;Zoya Punjwani ,&nbsp;Sophie Samborn ,&nbsp;Ken Pfister ,&nbsp;Laurel Ryan ,&nbsp;Andrew S. Mackie ,&nbsp;Susan Samuel ,&nbsp;Gina Dimitropoulos","doi":"10.1016/j.hctj.2024.100049","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100049","url":null,"abstract":"<div><h3>Background</h3><p>The transition from pediatric to adult care is a period associated with adverse health outcomes (e.g., health care dropout, health deterioration and poor adherence to management) for adolescents and young adults (AYA) with chronic conditions and their caregivers. AYA and caregivers often struggle to adapt to adult care settings resulting from a lack of preparedness and difficulties accessing services to manage their health conditions. To adequately design transition interventions and supports, it is critical to explore what skills AYA think would increase their confidence and ability to successfully move into adult health care.</p></div><div><h3>Methods</h3><p>The Transition Navigator Trial is a randomized controlled trial being conducted in Alberta, Canada, recruiting from three major tertiary care pediatric centers, in which half of participants receive a patient navigator, whose goal is to assist with this transition. Twenty-seven youth were interviewed at baseline, with a planned follow-up interview at the end of the trial. Participants were asked about their perspectives on the upcoming transition and how working with the navigator may assist with the transfer to adult-oriented services. Using an inductive approach to thematic analysis, baseline interviews were analyzed to explore AYA perspectives on their wants and needs for an upcoming transition to adult health care. The overarching guiding question is: what skills do AYA desire to assist with the transition to adult health care services?</p></div><div><h3>Results</h3><p>Two broad themes were generated based on participant baseline interviews: 1) ownership of care; and 2) system navigation. Participants identified that self-management and self-advocacy skills are essential for taking ownership of their own healthcare. Participants identified that even when they have acquired the necessary skills to take ownership of their care, there is a further step of system navigation that they might require external help with.</p></div><div><h3>Conclusions</h3><p>It has been highlighted in the literature that health-related knowledge, self-advocacy, and self-management skills promote a more successful transition, however, a gap exists in what youth prioritize as important skills. These findings exemplify that AYA want to gain skills that will allow for independence and success in the transition to adult health care. By involving youth in the development of future transition interventions, we can better understand the needs and priorities of AYA to assist in the success of transition to adult health care.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100049"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000096/pdfft?md5=058e94317f7e5a29ce998a7be863c5f3&pid=1-s2.0-S2949923224000096-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139908102","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Role of primary care for individuals with childhood-onset neurologic conditions","authors":"Miho Osako ,&nbsp;Yui Yamaoka ,&nbsp;Yoko Mochizuki ,&nbsp;Takeo Fujiwara","doi":"10.1016/j.hctj.2023.100037","DOIUrl":"https://doi.org/10.1016/j.hctj.2023.100037","url":null,"abstract":"<div><h3>Background</h3><p>Individuals with childhood-onset neurologic conditions often face challenges in the pediatric-to-adult health care transition (HCT). Furthermore, the importance of implementing primary care is unrecognized. We investigated the situation of adults with childhood-onset neurologic conditions from the perspective of health care professionals (HCPs) in community- and hospital-based primary care practice.</p></div><div><h3>Design and methods</h3><p>Overall, 1334 HCPs in medical facilities across Tokyo (mainly in Kita, Nerima, and Itabashi Cities) were surveyed regarding their experience caring for adults with childhood-onset neurologic conditions. Snowball sampling was also deployed to enhance the input from various health professions. The questionnaire included quick response codes linked to web-based questionnaires identical to paper-based ones, enabling additional HCPs to answer the questionnaire. The survey included questions about the care provided by HCPs, the perceived challenges and worthwhileness of the care, and their views on HCT.</p></div><div><h3>Results</h3><p>We collected 276 responses (response rate, 20.7%): 224 by mail and 52 online. In total, 94 HCPs of the respondents (75 doctors, 11 nurses, 5 therapists, 2 care workers, and 1 medical social worker) involved in caring for this population were analyzed. Doctors and nurses managed medical devices, educated patients, and provided consultation and care. Doctors cited the management of comorbidities outside of their expertise and difficulties securing hospitalization during emergencies as barriers to care. HCPs found the valuable opportunities to enrich their clinical experience and long-term relationships with patients worthwhile. HCPs expressed the need for systems that guarantee patient hospitalization and multidisciplinary conferences between HCPs and specialists.</p></div><div><h3>Conclusion</h3><p>We described the roles of HCPs in community- and hospital-based primary care, which are vital components of HCT for adults with childhood-onset neurologic conditions. Their practice includes multidisciplinary involvement, patient education, and care coordination. For better HCT in this population, efforts are required to enhance HCPs’ capability to respond to patients with disabilities, patients’ multiple comorbidities, and families’ needs.</p></div><div><h3>Practice implications</h3><p>Further efforts to deepen community-based care are desired to improve HCT for people with childhood-onset neurologic conditions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100037"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923223000375/pdfft?md5=c5c057b3cb4ff0f199618b0c2099209f&pid=1-s2.0-S2949923223000375-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139107369","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of the iManage SCD mobile health application for transition","authors":"Caren Steinway ,&nbsp;Steffi Shilly ,&nbsp;Tanisha Belton ,&nbsp;Kim Smith-Whitley ,&nbsp;Sophia Jan ,&nbsp;Lisa A. Schwartz ,&nbsp;Lori E. Crosby","doi":"10.1016/j.hctj.2024.100074","DOIUrl":"10.1016/j.hctj.2024.100074","url":null,"abstract":"<div><h3>Objective</h3><div>This paper outlines the design and implementation of iManage SCD, a self-management mobile health application for adolescents and young adults (AYA) with sickle cell disease (SCD) during transition from pediatric to adult health care.</div></div><div><h3>Methods</h3><div>The Integrate, Design, Assess, Share (IDEAS) framework, emphasizing user insights, iterative design, rigorous assessment, and knowledge sharing, guided the development process. The design team consisted of researchers, psychologists, physicians, social workers, AYA with SCD, and parents of AYA with SCD (n = 16) across three states. Qualitative focus groups and interviews were conducted and analyzed using thematic analysis across the integrate and design phases. Point of use feedback from AYA with SCD was used to assess feasibility and acceptability.</div></div><div><h3>Results</h3><div>The development process was centered around tenants of the Social-ecological Model of Adolescent and Young Adult Readiness to Transition. Development integrated multidisciplinary perspectives, fostering a person-centered approach. The iterative design process involved collaboration with a digital health firm, Agency39A. Health equity and implementation considerations were addressed at individual, community, and healthcare system levels. Themes that emerged from focus groups with AYA, clinicians, and researchers in the integrate and design phases of development included recommendations for content and user experience features.</div></div><div><h3>Conclusions</h3><div>iManage SCD emerges as a comprehensive, user-friendly mobile health application, incorporating theoretical principles and direct user input. The development process demonstrated feasibility and acceptability, and the paper discusses dissemination strategies for the Community Health Workers and Mobile Health Programs to Help Young Adults with SCD Transition to Using Adult Healthcare Services (COMETS) study.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100074"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142531591","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Development of a transition program for emerging adults with type 1 diabetes: A quality improvement initiative","authors":"Elizabeth A. Minchau ,&nbsp;Billie S. Vance ,&nbsp;Emily Barnes","doi":"10.1016/j.hctj.2024.100073","DOIUrl":"10.1016/j.hctj.2024.100073","url":null,"abstract":"<div><h3>Background</h3><div>Emerging adults with type 1 diabetes (T1D) struggle with glycemic management that can be exacerbated by a disorganized transition process. Substantial gaps in care have been noted during this transition period and have been shown to lead to suboptimal health care utilization, worsening glycemic management, increased incidence of serious complications, and mental health challenges. A formal transition program can help prevent gaps in care, improve disease self-management skills, decrease disease burden, and reduce diabetes complications.</div></div><div><h3>Purpose</h3><div>There is an increased focus within the pediatric community to formally prepare young adults with T1D as they transition to the adult health care setting. The purpose of the quality improvement initiative was to develop a transition program for adolescents with T1D in a pediatric endocrinology clinic within an academic medical center.</div></div><div><h3>Methods/interventions</h3><div>The Institute for Healthcare Improvement <em>Model for Improvement</em> was used to guide this project. Got Transition's® <em>Six Core Elements of Health Care Transition</em> were adapted to the unique needs of the pediatric endocrinology setting by incorporating diabetes-specific transition guidelines recommended by the American Diabetes Association (ADA). A new program was designed to target patients between the ages of 16–18 offering structured transition visits focused on enhancing knowledge and skills related to the management of T1D and improving the transfer of care process between pediatric and adult providers. Key elements of the program were integrated into the electronic health record. A focus group with clinical partners was used to evaluate the acceptability and practicality of the program.</div></div><div><h3>Results</h3><div>Transition activity within the clinic increased from 12/32–28/32 on the <em>Current Assessment of Healthcare Transition Activities</em> tool. Four themes were identified from clinical partner feedback supporting the acceptability and practicality of program design.</div></div><div><h3>Conclusions</h3><div>The integration of the Got Transition® framework and the ADA recommendations supports clinicians in meeting the unique needs of adolescents with T1D. Incorporating the transition activities into the electronic health record facilitated integration into the workflow of the clinic providers. This initiative can serve as a model to expand transition activities across pediatric specialty care settings.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100073"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142432438","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Comparative analysis of characteristics amongyoungpeople discharged from adolescent medium secure psychiatric hospital","authors":"Charlotte A. Jones ,&nbsp;Simon A Hill ,&nbsp;Louise Dibben ,&nbsp;Sana Sajid ,&nbsp;Suchith Shetty ,&nbsp;Selma Majeed ,&nbsp;Peter Phiri","doi":"10.1016/j.hctj.2024.100047","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100047","url":null,"abstract":"<div><h3>Background</h3><p>Specialised forensic mental health provision for young people with mental disorders and high-risk behaviours has developed significantly in the UK. Despite this, research on the young people within secure settings remains limited. Adolescents in secure settings exhibit higher levels of mental disorders and have complex needs. This study aims to compare the demographic characteristics of patients discharged from an adolescent medium secure unit (AMSU) to different discharge destinations: community, another hospital, or custodial setting.</p></div><div><h3>Methods</h3><p>A retrospective study was conducted using data from 155 patients admitted to a UK AMSU from 2008 to 2021. Demographic data, clinical information and Millon Adolescent Clinical Inventory (MACI) scores were extracted from electronic health records. A descriptive statistical method was used to report observational differences in patient characteristics between discharge locations. Statistical analysis included Chi-squared tests and AVOVA testing.</p></div><div><h3>Results</h3><p>Patients discharged to different settings exhibited distinct demographic and clinical characteristics. Those discharged to custodial settings were predominantly male and often transferred from custodial settings. Those discharged to other hospitals were mostly females with a diagnosis of Borderline Personality Disorder. The community-discharged group had a higher frequency of admissions from other hospitals under civil sections. Multiple variables were found to be statistically significant in relation to discharge location including gender and age at discharge. Findings of the MACI were not statistically significant in relationship with discharge location.</p></div><div><h3>Conclusions</h3><p>The study enhances understanding of healthcare transitions from AMSUs. The influence of diagnoses, particularly personality disorders, and their connection to admission duration is explored, as is the influence of this on transitioning patients across care settings. The impact of trauma-informed, attachment focussed models of care in regards transitions from AMSUs is also examined. Despite diversity in discharge locations, self-reported personality questionnaires show consistent outcomes, demonstrating psychological similarities across groups. Further research is needed to understand post-discharge trajectories enabling targeted interventions and improved care pathways.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100047"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000072/pdfft?md5=890c21d52881a60dfbece034d1941819&pid=1-s2.0-S2949923224000072-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"139975726","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Pediatric urology patient transition to adulthood: Brief report on the barriers and shortcomings in a resource poor state","authors":"Victor C. Showalter,&nbsp;Angela C. Salazar,&nbsp;Jason M. Wilson,&nbsp;Jessica M. Ming","doi":"10.1016/j.hctj.2024.100062","DOIUrl":"https://doi.org/10.1016/j.hctj.2024.100062","url":null,"abstract":"<div><h3>Introduction and Objectives</h3><p>To evaluate the readiness of pediatric spina bifida (SB) patients to transition from pediatric to adult urologic care. Since 1975 the survival rate of SB has increased from less than 50 % to 85 %. Adult SB patients have increased urologic needs due to their increased risk of complications including: 7–11 times risk of renal failure, 2 times risk of bladder cancer, and 46 times risk likely of UTIs. These SB complications resulted in 37,000 hospitalization from 2004–2005 with one third of those being deemed preventable. Research has shown that adult SB patients who have successfully transitioned to adult care utilize less care 5.33 annual ambulatory visits compared to 7.25 in the non-transitioned counterparts. Our goal is to evaluate barriers, concerns, and comfort in skills deemed necessary for an SB patient’s successful transition to adult care in a resource poor state.</p></div><div><h3>Material and Methods</h3><p>All SB patients between the ages of 12–18 who participate in the multidisciplinary clinic and are seen by urology at UNM were eligible and offered to complete a questionnaire prior to their clinic visit. The questionnaire addressed awareness, fears and desire to learn about transitioning.</p></div><div><h3>Results</h3><p>Of the SB patients that were eligible for the study 10 have filled out the survey. The average age is 17.7. While 70 % know the meaning of transition, only 40 % have thought about the process. 70 % of patients believe the best age to transition is 19–21. The most prominent fears about transition included leaving current urologist (60 %), increasing responsibility for their own care (50 %), and the new urologist not knowing their past medical history (50 %) (Fig 1). Questions evaluating preferred method transition education 60 % preferred talking with the pediatric urologist, and marked they would like to meet with the pediatric urologist and adult urologist simultaneously.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100062"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2949923224000229/pdfft?md5=68601c18d533ca72ae70c8380a82f09c&pid=1-s2.0-S2949923224000229-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"141595915","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Letting go/ moving on: A scoping review of relational effects on transition to adult care","authors":"Susan Shanske ,&nbsp;Janis Arnold ,&nbsp;Judy Bond ,&nbsp;Jennifer Cuadra ,&nbsp;Colleen Hayden ,&nbsp;Lynne Helfand ,&nbsp;Salihah Hanson ,&nbsp;Teresa Hickam ,&nbsp;Colleen Huysman ,&nbsp;Alexandria Cronin","doi":"10.1016/j.hctj.2024.100068","DOIUrl":"10.1016/j.hctj.2024.100068","url":null,"abstract":"<div><h3>Objective</h3><p>The objective of this scoping review was to assess the extent of the literature on how relational components in pediatric care contribute to the transition process and transfer outcomes.</p></div><div><h3>Background</h3><p>Relationships between patients, parents and pediatric providers are a frequently cited barrier in transition to adult care. A scoping review aimed to identify studies focused on how the relationship between patients/parents and pediatric providers related to transition from pediatric to adult healthcare and explore the nature and depth of the evidence.</p></div><div><h3>Methods</h3><p>Search terms were identified through a combination of medical librarian term harvesting and expert input. Four databases were searched with a combination of keyword and controlled vocabulary: PubMed, CINAHL, PsycINFO, and Web of Science. In order to reduce the risk of bias, each record was reviewed by two independent clinical experts in both the screening and full-text review stages. No database filters were applied during the searching process.</p></div><div><h3>Results</h3><p>The initial search strategy resulted in 13,121 records. After removal of duplicates, 271 moved on to full text review, and 152 met inclusion criteria as related to both transition from pediatric to adult medical care and relationships between pediatric providers and patients/families.</p></div><div><h3>Conclusions</h3><p>This scoping review aimed to identify available literature on relationships between pediatric providers and patients/families. Variable levels of research were identified, with little formal study of interventions. The majority described relationship issues as barriers, either on the part of providers, patients, parents or a combination of these. Several highlighted relationship ties as facilitators in the transition, an important consideration in determining interventions.</p></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"2 ","pages":"Article 100068"},"PeriodicalIF":0.0,"publicationDate":"2024-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S294992322400028X/pdfft?md5=7dabc5faa06e4fdbea540dd40ddbdc57&pid=1-s2.0-S294992322400028X-main.pdf","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142087582","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}