Sneha Dave , Sydney Reed , Mara Shapiro , Yeabsira Taye , Isabela Hernandez , Navin Kariyawasam , Ildiko Mehes , Manasi Agrawal , Miguel Regueiro , Adam Faye , Jeremy Adler
{"title":"Clinical trials and young adults with inflammatory bowel disease","authors":"Sneha Dave , Sydney Reed , Mara Shapiro , Yeabsira Taye , Isabela Hernandez , Navin Kariyawasam , Ildiko Mehes , Manasi Agrawal , Miguel Regueiro , Adam Faye , Jeremy Adler","doi":"10.1016/j.hctj.2025.100100","DOIUrl":"10.1016/j.hctj.2025.100100","url":null,"abstract":"<div><div>Young adults (approximately 18–35 years) with inflammatory bowel disease (IBD) represent a distinct demographic with unique developmental and physiological characteristics, yet they are underrepresented in clinical trials. This commentary synthesizes insights from a roundtable discussion facilitated by the Crohn's and Colitis Young Adults Network (CCYAN) between young adult patients with IBD and medical professionals, including physicians, nurses, psychologists, and trainees/medical students. Themes include defining young adults as a distinct demographic in research, improving outcomes for young adults with IBD through age-specific data disaggregation, barriers for participation and post-trial responsibilities, as well as regulatory and legislative policy opportunities to enhance young adult representation in clinical trials.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100100"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143738388","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Dynamic assessment of a transition process for patients with diabetes","authors":"Sarah Allan , Jessica Schmitt, Christy Foster","doi":"10.1016/j.hctj.2025.100097","DOIUrl":"10.1016/j.hctj.2025.100097","url":null,"abstract":"<div><h3>Introduction</h3><div>Adolescence can be defined as the period during which all individuals move from childhood to adulthood, including in the healthcare system, creating a need for a healthcare transition process. Children’s of Alabama provides four transition education sessions during clinic visits for adolescents with type 1 diabetes (T1D). We aimed to assess baseline patient data and patient perspectives of our current transition education process to guide our efforts to improve this process.</div></div><div><h3>Methods</h3><div>We used a mixed methods design comprised of a quantitative analysis of baseline data in our adolescents with T1D and qualitative analysis of provide and patient perspectives. We queried the electronic medical record to obtain baseline characteristics of adolescent adolescents with T1D seen at our center from January 2022 to May 2022 and sought input via anonymous surveys of adult and pediatric endocrinology attendings, fellows, and nurse practitioners at our institution and of adolescents with T1D who had completed the final education session via an electronic secure database.</div></div><div><h3>Results</h3><div>Electronic Medical review of adolescents with T1D transitioning to adult care at our center revealed most of our adolescents with T1D had a gap in care of four months or greater between last pediatric visit and first adult visit. Pediatric provider surveys emphasized barriers for adolescents with T1D with appointment scheduling and challenges navigating the adult health care system. Adult surveys emphasized lack of communication with the adult health care team. Adolescents with T1D overall reported transition education prepared them well for adult care, but only 35.3 % had identified an adult provider after completing transition education.</div></div><div><h3>Conclusions</h3><div>Our findings outline additional areas for improvement in our transition process for adolescents with T1D. Based on feedback from the pediatric team, we are working to initiate transition education by age 16, standardize document discussions around transition, document date of planned transition, and document planned accepting adult provider. We are working to streamline record transfer based on feedback from adult providers. Based on patient feedback and our documented gaps in care, we are working to place referrals for adult care to minimize gaps in diabetes care.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100097"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143577662","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Sadie M. Butcher , Caren Steinway , Brahadesh Sivakumar , Katherine Wu , Toyosi Oluwole , Desireé N. Williford , Sophia Jan , Symme W. Trachtenberg , Kim Smith-Whitley , Tanisha D. Belton
{"title":"Community health workers supporting emerging adults with sickle cell disease","authors":"Sadie M. Butcher , Caren Steinway , Brahadesh Sivakumar , Katherine Wu , Toyosi Oluwole , Desireé N. Williford , Sophia Jan , Symme W. Trachtenberg , Kim Smith-Whitley , Tanisha D. Belton","doi":"10.1016/j.hctj.2024.100091","DOIUrl":"10.1016/j.hctj.2024.100091","url":null,"abstract":"<div><h3>Background</h3><div>Community health workers (CHWs) are vital links between communities and health systems, with CHW models facilitating positive health and life outcomes. However, little is known about CHWs’ experiences serving in these roles or their potential to support the transition to adulthood for adolescents and young adults (AYA).</div></div><div><h3>Methods</h3><div>Semi-structured interviews were conducted with CHWs and their supervisors from five recruitment sites affiliated with Community Health Worker and Mobile Health for Emerging Adults Transitioning Sickle Cell Disease Care (COMETS) Trial. COMETS compared the effectiveness of a CHW intervention, mobile health application, or enhanced usual care on the health-related quality of life of AYA with SCD transitioning from pediatric to adult care. To understand CHW and CHW supervisor experiences during the COMETS trial, interviews were analyzed using an integrated inductive and deductive thematic analytic approach.</div></div><div><h3>Results</h3><div>Three key themes emerged as interviewees described the unique aspects of the CHW role: (1) the supports for transition to adulthood that CHWs provided to patients, (2) the experiences of establishing trusting relationships with patients, and (3) the impact of the role on CHWs themselves. All interviewees reported unique contributions made by CHWs in supporting patients’ transition readiness, and CHWs expressed that participating in COMETS impacted them personally and professionally.</div></div><div><h3>Conclusion</h3><div>This study highlights that the CHW role is unique both in how CHWs connect with AYA and how it impacts CHWs. Health systems should explore paths for sustainable funding and workforce development for CHWs and invest in infrastructure for CHW transition programs.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100091"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141407","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Alberto Rodríguez-Quiroga , Cristina Bonilla Sanz , Miguel Ángel Álvarez-Mon , Fernando Mora Mínguez , Javier Quintero
{"title":"Diagnostic stability of attention deficit hyperactivity disorder during healthcare transition","authors":"Alberto Rodríguez-Quiroga , Cristina Bonilla Sanz , Miguel Ángel Álvarez-Mon , Fernando Mora Mínguez , Javier Quintero","doi":"10.1016/j.hctj.2024.100089","DOIUrl":"10.1016/j.hctj.2024.100089","url":null,"abstract":"<div><h3>Background and Aims</h3><div>The belief that ADHD remitted in adulthood and the absence of specific criteria for its diagnosis in adults have led to discrepancies in estimating its persistence, hindering proper treatment. The objective of this study was to evaluate the persistence of diagnosis and subtypes of ADHD in patients transitioning to adulthood in a specialized setting using DSM-5 criteria.</div></div><div><h3>Material and Methods</h3><div>Retrospective data were collected from 59 patients diagnosed with ADHD at the Hospital Universitario Infanta Leonor, Madrid, with symptom onset between 2 and 12 years of age. Subgroups were formed based on diagnosis and initial subtype stability, and descriptive and statistical analysis was performed using SPSS software.</div></div><div><h3>Results</h3><div>The persistence rate was 93.2 %. Persistence was significantly associated with the need for specific follow-up at present, but not with gender, current age, or treatment. High percentages of comorbidity were found in both the persistent and remission groups. The initial inattentive subtype showed greater stability, with a preservation rate of 95.83 %. The combined subtype decreased more over time, with a preservation rate of 71.4 %. The diagnostic consistency for each subtype was high, although overall diagnostic concordance decreased slightly with age.</div></div><div><h3>Conclusions</h3><div>ADHD stability using appropriate criteria is higher than previously described. Comprehensive follow-up is necessary regardless of the current diagnostic status, especially in the period of transition from adolescence to adulthood.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100089"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141984","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"The effects of serving as a peer supporter on adolescents and young adults with chronic conditions: A scoping review","authors":"Alison Manning , McLean D. Pollock , Nikhita Gopisetty , Brian Linder , Remi Misiewicz , Tyra Girdwood , Mirai Matsuura , Jodie Neukirch Elliot , Gary Maslow , Sharron Docherty","doi":"10.1016/j.hctj.2025.100103","DOIUrl":"10.1016/j.hctj.2025.100103","url":null,"abstract":"<div><h3>Introduction</h3><div>Peer support has been shown to improve self-management and quality of life for adolescents and young adults (AYA) living with childhood onset chronic conditions (COCC), but little is known about the impact on AYA supporters. This review evaluates the impact of being a peer supporter with a COCC on the supporters and places those results within a theoretical context.</div></div><div><h3>Methods</h3><div>Extraction and synthesis of study findings was conducted using a collaborative approach.</div></div><div><h3>Results</h3><div>16 articles were included. The majority of studies were qualitative and fair to good quality. Effects were categorized into 3 areas: condition-related factors, personal/professional growth, and connectedness. 4 articles described risks of serving as a peer supporter.</div></div><div><h3>Discussion</h3><div>AYA peer supporters with COCC benefited from their role. Serving as a peer supporter may enhance skills related to becoming a successful, healthy young adult. Risks may be mitigated with training and support. Psychological theories inform the results.</div></div><div><h3>Implications <strong>to practice</strong></h3><div>Providers should encourage youth to engage in peer support programs as peer supporters, which may lead to improved health and related outcomes.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100103"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143912625","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jennifer G. Andrews , Rena Shifren , Richard Wahl , Wendy Parent-Johnson , Scott Klewer
{"title":"A mixed methods exploratory study assessing youth knowledge, self-efficacy and mental health outcomes in transition to adult healthcare","authors":"Jennifer G. Andrews , Rena Shifren , Richard Wahl , Wendy Parent-Johnson , Scott Klewer","doi":"10.1016/j.hctj.2025.100096","DOIUrl":"10.1016/j.hctj.2025.100096","url":null,"abstract":"<div><h3>Background</h3><div>Transition from adolescence to adulthood is a change in status yielding self-sufficiency, independence, and participation in adult roles. There are numerous efforts to define transition elements and encourage formalized processes readying youth for adulthood, yet significant challenges remain.</div></div><div><h3>Methods</h3><div>We recruited individuals who were age 12 years or older and not transitioned or 18 years and older who transitioned within 24 months to complete questionnaires and participate in a focus group.</div></div><div><h3>Results</h3><div>25 participants (Mean age 17.9 years) completed questionnaires and 76 % participated in focus groups. Youth 18 years and older had mean scores in the reason for concern range on 7 of 9 NIH Toolbox scales de. Transition readiness was lower in adults across all five categories. Key themes include misunderstanding the concept of transition and self-determination in transition.</div></div><div><h3>Conclusions</h3><div>Few youth understood what “transition” entails. Most considered it a single issue, such as aging out of insurance or leaving their pediatric specialist. Youth self-efficacy and life outlook declines in the late teens and early adulthood, exacerbating perceived inability to self-manage and gain independence. Most concerning is the emotional well-being and self-esteem of our adults who scored in the reason for concern range in 7 of 9 scales whereas adolescent peers did not. A directed attempt to create self-efficacy for youth in transition through training in health management, understanding the meaning of transition and promoting a positive perception prior to transition is needed.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100096"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143227652","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD
{"title":"Transitioning spine care from the pediatric to adult center: Challenges and future directions","authors":"Jesse Shen MD PhD , Eric Klineberg MD MS , Burt Yaszay MD , Jennifer Bauer MD MS , Aiyush Bansal MD MASc , Caroline Drolet PhD , Patricia Lipson BS , Philip K. Louie MD , Rajiv Sethi MD PhD","doi":"10.1016/j.hctj.2025.100107","DOIUrl":"10.1016/j.hctj.2025.100107","url":null,"abstract":"<div><h3>Study design</h3><div>Anonymous, survey-based prospective study.</div></div><div><h3>Objectives</h3><div>The objective of this study was to evaluate the current practice patterns and opinions of surgeons treating pediatric spinal deformity patients into adulthood.</div></div><div><h3>Methods</h3><div>An electronic survey regarding the transition process of pediatric patients into adulthood was administered to members of the ISSG (International Spine Study Group) and HSG (Harms Study Group). The survey covered themes such as protocols of transition of care, deformities recommended for follow-up into adulthood and institutional capability as well as organization for future follow-up into adulthood. Results of the survey were described in frequencies. Statistical analyses to detect differences in responses between groups were performed when appropriate.</div></div><div><h3>Results</h3><div>A total of 56 responses were analyzed. 85 % of the members of the HSG responded to the survey (41 out of 48 surgeons), and 42 % of members from the ISSG responded (15 out of 36). A third of the respondents described having the institutional capability to follow-up with patients of any age. Most (60 %) of the ISSG members continue to follow-up with their pediatric patients into adulthood. For the question about treatment plans for patients who cannot be followed due to age, there was significant differences in referral patterns following pediatric care (p = .0006). Furthermore, HSG significantly discussed more about transitional care planning with patients and their families compared to ISSG (<em>p</em> = .001).</div></div><div><h3>Conclusions</h3><div>Although more than 80 % of respondents somewhat discussed transitional care for spinal deformity, more than 90 % do not have a formal transitional care protocol. There is a clear lack of both uniformity and standards for transitional care for spinal deformity. It is imperative to develop and disseminate standards of transitional care for youth with spinal deformities. This work encourages all specialty societies including the Scoliosis Research Society and all professionals involved with youth transitional care to lead future work.</div></div><div><h3>Level of evidence</h3><div>V</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100107"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144307245","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Eric Racine , François Ouimet , Rocio Gissel Gutierrez Rojas , Marie-José Clermont , Anne Fournier
{"title":"Transition from pediatric to adult health services: A survey of challenges, needs, and preferences of youths and parents","authors":"Eric Racine , François Ouimet , Rocio Gissel Gutierrez Rojas , Marie-José Clermont , Anne Fournier","doi":"10.1016/j.hctj.2025.100095","DOIUrl":"10.1016/j.hctj.2025.100095","url":null,"abstract":"<div><h3>Aim</h3><div>Transition from pediatric to adult healthcare is a critical period. Recommendations have pointed to greater preparation of youths and families and better coordination. Considerations such as patient values and preferences may – if not taken into consideration – impede uptake of clinical recommendations. This survey-based study aimed to better understand challenges, needs, and intervention preferences of youths and parents during transition.</div></div><div><h3>Methods</h3><div>Two online surveys were designed to investigate challenges, needs, and intervention preferences of youths with a chronic or rare condition and parents during transition. The youth survey included the French translation of the Transition Readiness Assessment Questionnaire (TRAQ). Additional questions were derived from an interview-based study and aimed to grasp issues related to human flourishing in addition to more conventional clinical issues related to the transition process. Descriptive statistics were used and ANOVAs to detect differences between the groups when applicable.</div></div><div><h3>Results</h3><div>86 youths and 94 parents completed the survey. Average scores for TRAQ subscales were high except for “Tracking health issues” and “Appointment keeping”. Youths and parents reported being able to give their opinion. Parents were judged to be slightly over-involved. Ongoing involvement of parents in health management was desired. Awareness of differences between pediatric and adult healthcare was high, but a source of notable concern (e.g., accessibility of different medical and professional services). Information on transition was lacking. Installing a pivot-person, visits to the adult hospital, meeting other youths, and accessing transition videos were supported interventions.</div></div><div><h3>Conclusion</h3><div>Transition readiness can be high, but significant challenges can still be present and salient. Youths and adults want to be involved and informed to prepare actively for transition through meetings or adapted materials.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100095"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141993","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
{"title":"Patient and parent perspectives on an academic rheumatology transition clinic","authors":"Rebecca S. Overbury , Devin Eddington , Katherine Sward , Aimee Hersh","doi":"10.1016/j.hctj.2024.100094","DOIUrl":"10.1016/j.hctj.2024.100094","url":null,"abstract":"<div><h3>Objectives</h3><div>To better define components of successful Health Care Transition (HCT) we surveyed patients in an academic Rheumatology Transition clinic at the University of Utah. Results can be used to improve HCT over time.</div></div><div><h3>Methodology</h3><div>We asked patients and parents to complete Mind the Gap and the Transition Feedback survey as part of a larger registry dataset collected from said Rheumatology Transition clinic. Results from Mind the Gap and the Transition Feedback survey were analyzed. Survey responses are presented as averages.</div></div><div><h3>Results</h3><div>Sixty-five patients and 42 parents completed Mind the Gap. Patients report that the clinic is outperforming their expectations in 20 of 22 variables. Parents report that the clinic is underperforming their expectations in 23 of 27 variables. Parents value these 22 variables more than the patients. Twenty-four patients and 15 parents completed the Transition Feedback survey. More than 50 % of patients and parents state that the components of HCT curriculum were addressed. 58 % of patients (14 out of 24) reported feeling “very ready” to move to an adult doctor or other health care provider. 53 % of parents (8 out of 15) felt their child was “very ready” to move to an adult doctor or other health care provider.</div></div><div><h3>Conclusion</h3><div>A difficulty in defining a successful transfer is how to simultaneously integrate the perspective and needs of the patient and parents. This research shows that the values of patients and their parents generally align. However, there are important disparities between these groups. We demonstrate that even in a dedicated Transition clinic, not all components of HCT are being administered and that only half of patients and parents feel prepared to transfer.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100094"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}
Katherine Melton PhD, RN , Brynn Telenko , Peyton Miles , Sneha Dave , Sydney Reed , Rosa Kelekian MSW , Caroline Walsh , Shannon O’Donnell , Kathleen E. Walsh MD, MS
{"title":"Peer-support needs and experiences of young adults with chronic conditions: A mixed methods study","authors":"Katherine Melton PhD, RN , Brynn Telenko , Peyton Miles , Sneha Dave , Sydney Reed , Rosa Kelekian MSW , Caroline Walsh , Shannon O’Donnell , Kathleen E. Walsh MD, MS","doi":"10.1016/j.hctj.2025.100114","DOIUrl":"10.1016/j.hctj.2025.100114","url":null,"abstract":"<div><h3>Introduction</h3><div>Little is known about how young adults with chronic conditions view peer support and virtual peer-support programming. The purpose of this study is to (1) describe the psychosocial and peer support needs of young adults with different chronic conditions and (2) evaluate the acceptability of a virtual community led peer-support program.</div></div><div><h3>Methods</h3><div>We developed and pilot-tested a 64-item online survey that included items about demographics, diagnosis and disease severity, peer support use and beliefs, program use and satisfaction, the UCLA 3-item loneliness scale, and free text responses. 136 young adults (18−35) with chronic conditions recruited from an email listserv participated. Two researchers coded free text responses and integrated quantitative and qualitative data using a convergent parallel mixed methods approach.</div></div><div><h3>Results</h3><div>Participants expressed social isolation, difficulty connecting with healthy peers, and a desire for greater availability of peer support programs. Of the participants, 72 % (n = 96) reported a UCLA loneliness score ≥ 6, indicating loneliness. The majority (91 %, n = 119) expressed that it was important to them to know other chronically ill young adults. Only 11 % (n = 15) reported that their hospital provided peer support programming. Most (94 %;(n = 32) peer support participants were somewhat or completely satisfied with the program.</div></div><div><h3>Conclusions</h3><div>Across different chronic conditions, peer support was seen as an unmet need and greater availability of virtual peer support programs may help support the psychosocial wellbeing of young adults with chronic conditions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100114"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"144724581","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}