Health Care Transitions最新文献

{"title":"Patient and parent perspectives on an academic rheumatology transition clinic","authors":"Rebecca S. Overbury ,&nbsp;Devin Eddington ,&nbsp;Katherine Sward ,&nbsp;Aimee Hersh","doi":"10.1016/j.hctj.2024.100094","DOIUrl":"10.1016/j.hctj.2024.100094","url":null,"abstract":"<div><h3>Objectives</h3><div>To better define components of successful Health Care Transition (HCT) we surveyed patients in an academic Rheumatology Transition clinic at the University of Utah. Results can be used to improve HCT over time.</div></div><div><h3>Methodology</h3><div>We asked patients and parents to complete Mind the Gap and the Transition Feedback survey as part of a larger registry dataset collected from said Rheumatology Transition clinic. Results from Mind the Gap and the Transition Feedback survey were analyzed. Survey responses are presented as averages.</div></div><div><h3>Results</h3><div>Sixty-five patients and 42 parents completed Mind the Gap. Patients report that the clinic is outperforming their expectations in 20 of 22 variables. Parents report that the clinic is underperforming their expectations in 23 of 27 variables. Parents value these 22 variables more than the patients. Twenty-four patients and 15 parents completed the Transition Feedback survey. More than 50 % of patients and parents state that the components of HCT curriculum were addressed. 58 % of patients (14 out of 24) reported feeling “very ready” to move to an adult doctor or other health care provider. 53 % of parents (8 out of 15) felt their child was “very ready” to move to an adult doctor or other health care provider.</div></div><div><h3>Conclusion</h3><div>A difficulty in defining a successful transfer is how to simultaneously integrate the perspective and needs of the patient and parents. This research shows that the values of patients and their parents generally align. However, there are important disparities between these groups. We demonstrate that even in a dedicated Transition clinic, not all components of HCT are being administered and that only half of patients and parents feel prepared to transfer.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100094"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11786896/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143082994","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"“When you’re in the office, it means you managed to get somewhere”: An interpretive descriptive study of the perceptions of adolescents accessing primary care for mental health services","authors":"Lisa De Panfilis RN, MSc ,&nbsp;Rebecca Ganann RN, MSc, PhD ,&nbsp;Gillian Mulvale MA, PhD ,&nbsp;Naomi Thulien NP-PHC PhD ,&nbsp;Ruta Valaitis MA, PhD","doi":"10.1016/j.hctj.2024.100093","DOIUrl":"10.1016/j.hctj.2024.100093","url":null,"abstract":"<div><h3>Objective</h3><div>Primary care offers an entry point into the health care system for adolescents experiencing mental illnesses. This study explored the perceptions of adolescents with an anxiety or mood disorder accessing primary care for mental health services.</div></div><div><h3>Methods</h3><div>Qualitative interpretive descriptive design was employed. Participants ages 15–18 years (n = 10) were recruited from a mid-sized city in Canada utilizing flyers and social media advertisements. Data were collected between August and December 2019. Data generation methods included photo-elicitation, demographic survey, and semi-structured interviews. Analysis was guided by a health care access framework and ecological model.</div></div><div><h3>Results</h3><div>Adolescents perceived the process of accessing primary care for mental health services as complex and beginning prior to entering the primary care environment; a novel conceptual framework was developed to depict the process. Adolescents described three stages in this process: feeling uncertain about their concerns and requiring help; seeking informal support from parents and friends to initiate help-seeking; and receiving mental health services through primary care.</div></div><div><h3>Discussion</h3><div>A novel conceptual framework to depict the process of access for adolescents is proposed. Primary care practitioners require awareness of the access process adolescents conceptualize prior to deciding to seek help in primary care, as well as the need to foster their emerging adulthood in care. Targeted interventions to enable early intervention include providing information about mental health services available during routine interactions.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100093"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11772970/pdf/","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143061844","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Quality of life in young adults with type 1 diabetes","authors":"Marissa N. Baudino PhD ,&nbsp;Samantha A. Carreon PhD ,&nbsp;Randi Streisand PhD ,&nbsp;Tricia Tang PhD ,&nbsp;Sarah Lyons MD ,&nbsp;Siripoom McKay MD ,&nbsp;Barbara J. Anderson PhD ,&nbsp;Charles G. Minard PhD ,&nbsp;Sridevi Devaraj PhD, DABCC ,&nbsp;Ashley M. Butler PhD ,&nbsp;Marisa E. Hilliard PhD","doi":"10.1016/j.hctj.2025.100101","DOIUrl":"10.1016/j.hctj.2025.100101","url":null,"abstract":"<div><h3>Introduction</h3><div>Challenges of young adulthood with type 1 diabetes (T1D) include transitioning to adult care, increased T1D self-management responsibilities, and normal developmental transitions. Recognizing patterns of health-related quality of life (HRQOL) across a demographically and clinically broad range of young adults with T1D may help identify who needs additional support as they transfer to adult healthcare. We hypothesized that young adults from specific demographic and clinical groups would report lower HRQOL.</div></div><div><h3>Methods</h3><div>At baseline of a behavioral RCT (≤2 months after last pediatric T1D clinic visit), 100 young adults (M_age=19.9 ± 1.3, M_A1c=8.8 ± 2.0 %) self-reported demographics and HRQOL; A1c was analyzed via point of care or dried blood spot. ANOVAs and t-tests were used to compare HRQOL by demographic (gender, race/ethnicity, insurance, school enrollment) and clinical variables (device use, A1c).</div></div><div><h3>Results</h3><div>Diabetes-specific HRQOL differed significantly by gender and school enrollment; females and young adults enrolled in school reported higher HRQOL. There were no significant differences in HRQOL across race/ethnicity, insurance type, and diabetes technology use.</div></div><div><h3>Conclusion</h3><div>Monitoring HRQOL may be helpful to identify diabetes-specific psychosocial needs during the transition from pediatric to adult healthcare. Patterns suggest males and those not in school may benefit from additional support.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100101"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143734914","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition experiences of young adults with perinatal HIV in the Netherlands","authors":"Annouschka Weijsenfeld RN, MSc ,&nbsp;Linda van der Knaap RN, MSc ,&nbsp;Jane Sattoe PhD ,&nbsp;AnneLoes van Staa MD PhD ,&nbsp;Clementien Vermont MD PhD ,&nbsp;Jeannine F.J.B. Nellen MD, PhD ,&nbsp;Dasja Pajkrt MD, PhD, MBA","doi":"10.1016/j.hctj.2025.100098","DOIUrl":"10.1016/j.hctj.2025.100098","url":null,"abstract":"<div><h3>Introduction</h3><div>The process of transition from paediatric to adult care is a crucial step towards self-management of healthcare for young adults with chronic health conditions. In the Netherlands, the On Your Own Feet program offers an extensive framework for supporting optimal transition. In this national study, we aimed to evaluate the transition experiences of young adults with perinatal HIV who transferred from a paediatric to an adult HIV treatment centre.</div></div><div><h3>Methods</h3><div>Participants who transferred to adult care less than six years ago received questionnaires on transition experiences, the validated On Your Own Feet – Transition Experiences Scale (OYOF-TES), and demographics. Demographic and healthcare-related variables were collected from patients’ medical files. We explored correlations between OYOF-TES scores and other variables.</div></div><div><h3>Results</h3><div>Of 44 participants, 29 responded (65.1 %). Their median age was 20 (IQR 19–23). Overall, high scores were found on the subscales ‘Reception in adult care’ (median 4.8, IQR 4.0–5.0), ‘Alliance paediatric and adult care’ (median 4.0, IQR 3.4–4.4), and ‘Transfer readiness’ (median 4.2, IQR 3.8–4.8). The lowest scores were found in the subscales ‘Preparation for transfer’ (median 3.3, IQR 2.7–4.0) and ‘Youth involvement’ (median 3.5, IQR 2.5–4.5). Higher scores on transition experiences were correlated with younger age and female sex, while lower scores were correlated with those of whom one or both biological parents died during childhood.</div></div><div><h3>Conclusion</h3><div>Transition experiences in our population were positive. Younger participants felt better prepared for the transfer, which indicates that transition is increasingly becoming a joint effort between young adults and healthcare professionals and that pathways accustomed to individual needs improve the transition experience for young adults with perinatal HIV.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100098"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143600566","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Associated factors that contribute to readiness for healthcare transition in a population of adolescents and young adults with special healthcare needs","authors":"Benedicta C. Anikputa ,&nbsp;Sharon D. Horner ,&nbsp;Cecily L. Betz ,&nbsp;Megan Thomas-Hebdon ,&nbsp;Cara Young","doi":"10.1016/j.hctj.2024.100081","DOIUrl":"10.1016/j.hctj.2024.100081","url":null,"abstract":"<div><h3>Background</h3><div>Children with special health care needs (SHCN) are a growing population in the United States, who because of advancements in medicine, are surviving into adulthood and are expected to transition from pediatric care to adult care. The purpose of this study was to identify and describe which ecological variables (internal locus of control, self-efficacy, self-advocacy, adolescent responsibility, parental responsibility, or perceived healthcare provider communication) are most influential in preparing adolescents and young adults (AYA) with SHCN to transition into the adult healthcare system.</div></div><div><h3>Methods</h3><div>A convenience sample of AYA with SHCN between the ages of 18–25, were recruited from specialty clinics, universities, local and national organizations. Flyers were placed at local establishments and businesses. The researcher also reached out to AYA with SHCN and those that worked with AYA with SHCN. Participants completed an online survey and multiple linear regression was used to answer the research question.</div></div><div><h3>Results</h3><div>Self-advocacy (p=.013), self-efficacy (p=.007), adolescent responsibility (p&lt;.001), and communication with healthcare provider (p=.014) significantly predicted transition readiness. The resultant model was significant (F (1, 78) =6.39, P=.014, Adj R 2 =.540 and R 2 =.573).</div></div><div><h3>Conclusion</h3><div>This study addresses the gap in literature by examining factors from multiple domains that are theoretically seen as potentially influencing transition readiness. By determining which transition variables are the most important and necessary for transition readiness, then programs can be created to bolster them.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100081"},"PeriodicalIF":0.0,"publicationDate":"2025-01-01","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"143141983","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Transition experiences of adolescents and young adults working with a patient navigator","authors":"Daniella San Martin-Feeney ,&nbsp;Sophie Samborn ,&nbsp;Brooke Allemang ,&nbsp;Megan Patton ,&nbsp;Zoya Punjwani ,&nbsp;Ken Pfister ,&nbsp;Laurel Ryan ,&nbsp;Gregory M.T. Guilcher ,&nbsp;Lorraine Hamiwka ,&nbsp;Scott Klarenbach ,&nbsp;Eddy Lang ,&nbsp;Kerry McBrien ,&nbsp;Alberto Nettel-Aguirre ,&nbsp;Danièle Pacaud ,&nbsp;Jorge Pinzon ,&nbsp;Shannon D. Scott ,&nbsp;Lonnie Zwaigenbaum ,&nbsp;Curtis Perrott ,&nbsp;John Andersen ,&nbsp;Gail Andrew ,&nbsp;Gina Dimitropoulos","doi":"10.1016/j.hctj.2024.100088","DOIUrl":"10.1016/j.hctj.2024.100088","url":null,"abstract":"<div><h3>Introduction</h3><div>The transition from pediatric to adult care poses challenges for adolescents and young adults (AYA) with chronic conditions and their caregivers. A patient navigator (PN) intervention may mitigate transition-related barriers.</div></div><div><h3>Methods</h3><div>A qualitative study was conducted within a pragmatic randomized controlled trial. A purposive sample was recruited of AYA with diverse diagnostic and demographic characteristics who worked with the PN and/or their caregivers. Seventeen participants completed semi-structured interviews at baseline and post-intervention and optional journal entries. Thematic analysis was used inductively.</div></div><div><h3>Results</h3><div>Analysis yielded two themes from baseline interviews: 1) uncertainty and hesitation with leaving a place of support, 2) navigator assistance with post-secondary education, and three themes from post-intervention interviews: 1) emotional support, 2) informational and task-focused support, 3) navigator guidance to become more independent.</div></div><div><h3>Discussion</h3><div>Our findings describe the needs of AYA and the experience of PN support; our findings may guide future implementation of PNs in transition care.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100088"},"PeriodicalIF":0.0,"publicationDate":"2024-11-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142747898","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Self-perceived importance and confidence of adolescents transitioning to adult care","authors":"Lisa Lestishock ,&nbsp;Carrie Cuomo ,&nbsp;Teresa Hickam ,&nbsp;Tisa Johnson-Hooper ,&nbsp;Michele Maddux ,&nbsp;Evan Muzzall ,&nbsp;Margaret McManus ,&nbsp;Patience White","doi":"10.1016/j.hctj.2024.100086","DOIUrl":"10.1016/j.hctj.2024.100086","url":null,"abstract":"<div><h3>Purpose</h3><div>Motivational interviewing (MI) techniques are used by health care teams to engage adolescents and young adults (AYAs) in health care self-management and pediatric to adult health care transition (HCT) planning efforts. The aim of this study was to assess the initial level of motivation of AYAs prior to receipt of HCT anticipatory guidance and to determine associations with demographic and health coverage factors.</div></div><div><h3>Methods</h3><div>This retrospective study included 5112 AYAs, aged 12–26 years, from four health systems. All AYAs completed the Got Transition readiness assessment that includes MI questions on importance and confidence related to the move to an adult provider.Independent variables included demographic and health coverage factors: age, sex, race, ethnicity, language, and insurance type. The statistical approach included summary statistics, chi-square tests of independence and log-likelihood ratio tests, and generalized linear models and contrasts.</div></div><div><h3>Results</h3><div>The study results demonstrate initial trends in importance and confidence scores for AYAs before they became part of a HCT planning process. Importance scores increased from 12-14 through 18–20 years of age, then decreased in the 21–26-year group. Confidence scores increased from the 12–14 through the 21–26-year group.Confidence scores were generally higher than importance scores and were accompanied by smaller standard deviations. Ethnicity and insurance type also demonstrated an association with MI scoring.</div></div><div><h3>Discussion</h3><div>This study provides baseline scores on two key MI importance and confidence questions that can facilitate clinician understanding of AYA engagement in discussing the changes needed to move to adult care and guides the clinician to start earlier than just before transfer that often occurs around age 21.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100086"},"PeriodicalIF":0.0,"publicationDate":"2024-11-28","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142721093","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Experiences of barriers and facilitators in mental health care transitions: A qualitative exploration of perspectives from transitional-aged youth, family, and service providers (part 1)","authors":"Roula Markoulakis ,&nbsp;Hinaya Cader ,&nbsp;Karen Wong ,&nbsp;Sugy Kodeeswaran ,&nbsp;Tracey Addison ,&nbsp;Cathy Walsh ,&nbsp;Jocelyn Charles ,&nbsp;Amy Cheung ,&nbsp;Deepy Sur ,&nbsp;David Willis ,&nbsp;Anthony Levitt","doi":"10.1016/j.hctj.2024.100087","DOIUrl":"10.1016/j.hctj.2024.100087","url":null,"abstract":"<div><h3>Introduction</h3><div>Transitional-aged youth (TAY) are at a vulnerable stage of their development in which mental health and/or addiction (MHA) issues tend to manifest and/or increase in severity. TAY also tend to find themselves subject to multiple care transitions, often resulting in sub-optimal access to MHA services. The objective of this study was to explore the perspectives of TAY, family members, and system providers regarding the supports needed by TAY and their families during transitions through MHA care.</div></div><div><h3>Methods</h3><div>This is a descriptive qualitative study of TAY, family, and provider perspectives on their experiences with accessing/providing MHA care and transition supports for TAY. Focus groups and interviews were conducted with 14 TAY, 26 family members, and 23 service providers. Participants were asked about their experiences with regard to barriers and facilitators to transitions in care for TAY with MHA concerns. Data was analyzed utilizing a thematic analysis approach.</div></div><div><h3>Results</h3><div>Six themes emerged during data analysis: pathways to care, appropriate and comprehensive care, continuity of care, informed care, family involvement, and TAY involvement. These results provide a better understanding of the needs of TAY and their families in relation to accessing and transitioning through MHA system supports and improving MHA outcomes. They also include the views of service providers on the current state of access to and transitions through MHA care, specifically for the TAY population.</div></div><div><h3>Discussion</h3><div>This information reveals the supports needed by TAY and their families along with the challenges created due to a lack of guidance, transition preparation, collaboration, and continuity in the MHA system. MHA providers working with TAY and families can utilize these findings to promote effective TAY and family engagement for positive transitions and care experiences.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100087"},"PeriodicalIF":0.0,"publicationDate":"2024-11-27","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142721094","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"The role of navigation services in supporting mental health and addictions care transitions: A qualitative exploration of perspectives from transitional-aged youth, family, and service providers (part 2)","authors":"Roula Markoulakis ,&nbsp;Hinaya Cader ,&nbsp;Karen Wong ,&nbsp;Sugy Kodeeswaran ,&nbsp;Tracey Addison ,&nbsp;Cathy Walsh ,&nbsp;Jocelyn Charles ,&nbsp;Amy Cheung ,&nbsp;Deepy Sur ,&nbsp;David Willis ,&nbsp;Anthony Levitt","doi":"10.1016/j.hctj.2024.100082","DOIUrl":"10.1016/j.hctj.2024.100082","url":null,"abstract":"<div><h3>Introduction</h3><div>Transitional-aged youth (TAY) are at a vulnerable stage of their development in which mental health and/or addiction (MHA) issues tend to manifest and/or increase in severity. These youth also tend to find themselves caught in the gap between child and adult MHA services, often resulting in sub-optimal access to and transition through MHA services. Navigation services may be one way to close this and other system gaps and improve service utilization and supports for TAY. The objective of this study was to explore the perspectives of TAY, family members, and system providers regarding the support that can be provided by navigation services in addressing the needs and barriers encountered during transitions in MHA care.</div></div><div><h3>Methods</h3><div>This is a descriptive qualitative study of TAY, family, and provider perspectives on the role of navigation as it pertains to transitions in care for TAY with MHA concerns. Focus groups and semi-structured interviews were conducted with 63 participants with varying levels of familiarity with navigation. Participants were asked about their experiences with navigating transitions through the MHA system and their views on the role of navigation services in supporting transitions in care. Data was analyzed utilizing a thematic analysis approach.</div></div><div><h3>Results</h3><div>Five themes emerged during data analysis: navigation to traverse difficult pathways, navigation to ensure appropriate and comprehensive care, navigation to sustain continuity of care, navigation to support informed care, and navigation to facilitate TAY and family involvement.</div></div><div><h3>Discussion</h3><div>These findings contribute to an understanding of how navigation services can be meaningful in mitigating the challenges faced by TAY and their families when seeking help for MHA issues. Navigation services have the potential to support MHA system transformation for enhanced transitions in care for TAY with MHA concerns and their families.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100082"},"PeriodicalIF":0.0,"publicationDate":"2024-11-23","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142707038","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}

{"title":"Bolstering connectedness through peer support: Randomized-controlled trial of a web-based peer support program for adolescents with inflammatory bowel disease","authors":"Meghan K. Ford ,&nbsp;Armanda Iuliano ,&nbsp;Thomas D. Walters ,&nbsp;Anthony R. Otley ,&nbsp;David R. Mack ,&nbsp;Kevan Jacobson ,&nbsp;Jason D. Rights ,&nbsp;Dean A. Tripp ,&nbsp;Jennifer N. Stinson ,&nbsp;Sara Ahola Kohut","doi":"10.1016/j.hctj.2024.100085","DOIUrl":"10.1016/j.hctj.2024.100085","url":null,"abstract":"<div><h3>Background</h3><div>Inflammatory bowel disease (IBD) is a chronic autoimmune disease often diagnosed during adolescence. IBD negatively impacts all aspects of health-related quality of life, resulting in physical, emotional, social, school, and work functioning challenges. Adolescents have identified the need for peer support in managing their disease and promoting positive health outcomes. However, studies have yet to explore the peer support needs of this population. The study aimed to capture whether a peer mentoring program (iPeer2Peer©) was successful at improving adolescent disease self-management. The study also aimed to understand the lived experiences of adolescents participating in iPeer2Peer©.</div></div><div><h3>Methods</h3><div>Adolescents with IBD were recruited from three tertiary hospitals in Canada. The study adopted a waitlist pilot randomized control trial (RCT) with participants randomly allocated to the intervention (iPeer2Peer© program) or control group. Participants completed questionnaire measures at baseline and post-program examining self-reported self-management, self-efficacy, emotional distress, social support, and health-related quality of life. A subset of intervention participants were randomly invited post-program to participate in a semi-structured interview to examine mentee program experiences</div></div><div><h3>Results</h3><div>The quantitative analyses showed no significant differences between the intervention and control group. Three themes were identified in the qualitative analysis: 1) forming a connection over shared experiences and beyond, 2) improving mentee program experience, and 3) program flexibility.</div></div><div><h3>Conclusion</h3><div>Despite the lack of significant quantitative outcomes, qualitative data suggests peer support for adolescents with IBD adds value to IBD care by developing a sense of belonging with peers who share lived experiences. This study demonstrates the complexity of mentee psychosocial needs and challenges in measuring outcomes in peer support research. Clinical implications and future research opportunities are discussed.</div></div>","PeriodicalId":100602,"journal":{"name":"Health Care Transitions","volume":"3 ","pages":"Article 100085"},"PeriodicalIF":0.0,"publicationDate":"2024-11-17","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":null,"resultStr":null,"platform":"Semanticscholar","paperid":"142707037","PeriodicalName":null,"FirstCategoryId":null,"ListUrlMain":null,"RegionNum":0,"RegionCategory":"","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":"OA","EPubDate":null,"PubModel":null,"JCR":null,"JCRName":null,"Score":null,"Total":0}